Science.gov

Sample records for abnormalities intellectual disability

  1. Spinal and Limb Abnormalities in Adolescents with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Lin, Jin-Ding; Lin, Pei-Ying; Lin, Lan-Ping; Lai, Chia-Im; Leu, Yii-Rong; Yen, Chia-Feng; Hsu, Shang-Wei; Chu, Chi-Ming; Wu, Chia-Ling; Chu, Cordia M.

    2010-01-01

    There are not many studies pertaining to the spinal or limb abnormalities in people with intellectual disabilities, without a clear profile of these deformities of them, efforts to understand its characters and improve their quality of life will be impossible. Therefore, this paper aims to describe the prevalence and related factors of spinal and…

  2. Intellectual disability

    MedlinePlus

    Intellectual disability is a condition diagnosed before age 18 that includes below-average intellectual function and a lack of ... Intellectual disability affects about 1 to 3% of the population. There are many causes of intellectual disability, but doctors ...

  3. Intellectual disability

    MedlinePlus

    ... page: //medlineplus.gov/ency/article/001523.htm Intellectual disability To use the sharing features on this page, please enable JavaScript. Intellectual disability is a condition diagnosed before age 18 that ...

  4. Intellectual Disability

    MedlinePlus

    ... follows: _________________ Definition of “Intellectual Disability” under IDEA Until Rosa’s Law was signed into law by President Obama ... the term “mental retardation” instead of “intellectual disability.” Rosa’s Law changed the term to be used in ...

  5. Intellectual Disability

    MedlinePlus

    ... known causes of intellectual disability – like Down syndrome, fetal alcohol syndrome, fragile X syndrome, genetic conditions, birth defects, and infections – happen before birth. Others happen while a baby is being born or soon after ... fetal, el síndrome X frágil, afecciones genéticas, defectos congénitos ...

  6. Dandy–Walker Malformation, Genitourinary Abnormalities, and Intellectual Disability in Two Families

    PubMed Central

    Gregor, Anne; Gleeson, Joseph G.; Rosti, Rasim Ozgur

    2016-01-01

    We report on two families, each with documented consanguinity and two affected with overlapping features of Dandy-Walker malformation, genitourinary abnormalities, intellectual disability, and hearing deficit. This phenotype shares similar findings with many well-known syndromes. However, the clinical findings of this syndrome categorize this as a new syndrome as compared with the phenotype of already established syndromes. Due to parental consanguinity, occurrence in siblings of both genders and the absence of manifestations in obligate carrier parents, an autosomal recessive pattern of inheritance is more likely. The authors believe that these families suggest a novel autosomal recessive cerebello–genital syndrome. Array CGH analyses of an affected did not show pathological deletions or duplications. PMID:26109232

  7. Sexuality and Intellectual Disability

    MedlinePlus

    ... Curiae Briefs Legislative Goals Consortium for Citizens with Disabilities National Goals 2015 SIS Product Information Benefits of ... SIS Use Order SIS-A Contact Us Intellectual Disability Historical Context Definition FAQs on Intellectual Disability Diagnostic ...

  8. Analysis of chromosomal abnormalities by CGH-array in patients with dysmorphic and intellectual disability with normal karyotype

    PubMed Central

    Pratte-Santos, Rodrigo; Ribeiro, Katyanne Heringer; Santos, Thainá Altoe; Cintra, Terezinha Sarquis

    2016-01-01

    ABSTRACT Objective To investigate chromosomal abnormalities by CGH-array in patients with dysmorphic features and intellectual disability with normal conventional karyotype. Methods Retrospective study, carried out from January 2012 to February 2014, analyzing the CGH-array results of 39 patients. Results Twenty-six (66.7%) patients had normal results and 13 (33.3%) showed abnormal results - in that, 6 (15.4%) had pathogenic variants, 6 (15.4%) variants designated as uncertain and 1 (2.5%) non-pathogenic variants. Conclusion The characterization of the genetic profile by CGH-array in patients with intellectual disability and dysmorphic features enabled making etiologic diagnosis, followed by genetic counseling for families and specific treatment. PMID:27074231

  9. A patient with Mullerian abnormalities, renal dysplasia, cervical spine fusion, cataracts and intellectual disability: MURCS-plus?

    PubMed

    Tan, Tiong Yang; Whitelaw, Charlotte; Savarirayan, Ravi

    2007-10-01

    We report a 15-year-old girl with features of the MURCS (Mullerian abnormalities, renal agenesis/ectopy and cervicothoracic somite dysplasia) association and birth defects not typically associated with MURCS. In addition to seizures and intellectual disability, she has cortical brain heterotopia, bilateral subclinical cataracts, submucous cleft palate and patent ductus arteriosus. We propose that this patient represents a more severe form of MURCS, or 'MURCS-plus', which may represent a defect of or insult to mesodermal morphogenesis. PMID:17786121

  10. What is an Intellectual Disability?

    MedlinePlus

    ... White House Lunch Recipes What Is an Intellectual Disability? KidsHealth > For Kids > What Is an Intellectual Disability? ... becoming an independent person. continue What Causes Intellectual Disabilities? Intellectual disabilities happen because the brain gets injured ...

  11. Intellectual and Developmental Disabilities

    MedlinePlus

    ... Clinical Trials Resources and Publications Intellectual and Developmental Disabilities (IDDs): Overview Skip sharing on social media links Share this: Page Content Intellectual and developmental disabilities (IDDs) are a primary focus of the NICHD’s ...

  12. Expansion of the spectrum of ITGB6-related disorders to adolescent alopecia, dentogingival abnormalities and intellectual disability.

    PubMed

    Ansar, Muhammad; Jan, Abid; Santos-Cortez, Regie Lyn P; Wang, Xin; Suliman, Muhammad; Acharya, Anushree; Habib, Rabia; Abbe, Izoduwa; Ali, Ghazanfar; Lee, Kwanghyuk; Smith, Joshua D; Nickerson, Deborah A; Shendure, Jay; Bamshad, Michael J; Ahmad, Wasim; Leal, Suzanne M

    2016-08-01

    Alopecia with mental retardation (APMR) is a very rare disorder. In this study, we report on a consanguineous Pakistani family (AP91) with mild-to-moderate intellectual disability, adolescent alopecia and dentogingival abnormalities. Using homozygosity mapping, linkage analysis and exome sequencing, we identified a novel rare missense variant c.898G>A (p.(Glu300Lys)) in ITGB6, which co-segregates with the phenotype within the family and is predicted to be deleterious. Structural modeling shows that Glu300 lies in the β-propeller domain, and is surrounded by several residues that are important for heterodimerization with α integrin. Previous studies showed that ITGB6 variants can cause amelogenesis imperfecta in humans, but patients from family AP91 who are homozygous for the c.898G>A variant present with neurological and dermatological features, indicating a role for ITGB6 beyond enamel formation. Our study demonstrates that a rare deleterious variant within ITGB6 causes not only dentogingival anomalies but also intellectual disability and alopecia. PMID:26695873

  13. Screening Tests for Adults with Intellectual Disabilities

    PubMed Central

    Wilkinson, Joanne E.; Culpepper, Larry; Cerreto, Mary

    2013-01-01

    Adults with intellectual disabilities need thoughtful, well-coordinated primary care from family physicians. However, evidence-based screening recommendations are lacking. We examined screening recommendations for common preventable conditions using the US Preventative Service Task Force guidelines. We also reviewed the literature about the prevalence of these conditions in adults with intellectual disabilities. Obesity, osteoporosis, and smoking are more prevalent in adults with intellectual disabilities, and enhanced screening for these conditions is recommended. Abnormal Papanicolaou smears and cervical cancer are less common in adults with intellectual disabilities and screening recommendations should be individualized. We also discussed strategies to make screening procedures less stressful for these patients. PMID:17615421

  14. Abnormal development of sensory-motor, visual temporal and parahippocampal cortex in children with learning disabilities and borderline intellectual functioning

    PubMed Central

    Baglio, Francesca; Cabinio, Monia; Ricci, Cristian; Baglio, Gisella; Lipari, Susanna; Griffanti, Ludovica; Preti, Maria G.; Nemni, Raffaello; Clerici, Mario; Zanette, Michela; Blasi, Valeria

    2014-01-01

    Borderline intellectual functioning (BIF) is a condition characterized by an intelligence quotient (IQ) between 70 and 85. BIF children present with cognitive, motor, social, and adaptive limitations that result in learning disabilities and are more likely to develop psychiatric disorders later in life. The aim of this study was to investigate brain morphometry and its relation to IQ level in BIF children. Thirteen children with BIF and 14 age- and sex-matched typically developing (TD) children were enrolled. All children underwent a full IQ assessment (WISC-III scale) and a magnetic resonance (MR) examination including conventional sequences to assess brain structural abnormalities and high resolution 3D images for voxel-based morphometry analysis. To investigate to what extent the group influenced gray matter (GM) volumes, both univariate and multivariate generalized linear model analysis of variance were used, and the varimax factor analysis was used to explore variable correlations and clusters among subjects. Results showed that BIF children, compared to controls have increased regional GM volume in bilateral sensorimotor and right posterior temporal cortices and decreased GM volume in the right parahippocampal gyrus. GM volumes were highly correlated with IQ indices. The present work is a case study of a group of BIF children showing that BIF is associated with abnormal cortical development in brain areas that have a pivotal role in motor, learning, and behavioral processes. Our findings, although allowing for little generalization to the general population, contribute to the very limited knowledge in this field. Future longitudinal MR studies will be useful in verifying whether cortical features can be modified over time even in association with rehabilitative intervention. PMID:25360097

  15. Intellectual Disability and Homelessness

    ERIC Educational Resources Information Center

    Mercier, C.; Picard, S.

    2011-01-01

    Background: The association between poverty and intellectual disability (ID) has been well documented. However, little is known about persons with ID who face circumstances of extreme poverty, such as homelessness. This paper describes the situation of persons with ID who were or are homeless in Montreal and are currently receiving services from a…

  16. Children with an Intellectual Disability

    MedlinePlus

    ... Facts For Families Guide Facts For Families Guide - Table of Contents Facts For Families Guide - View by ... treatment and management of children with intellectual disabilities. Periodic consultation with a child and adolescent psychiatrist may ...

  17. Intellectual Disability and Spiritual Development

    ERIC Educational Resources Information Center

    Watts, Graeme

    2011-01-01

    Linking the concepts of intellectual disability and spiritual development creates a challenging mixture of sociological and theological issues. Formal definitions of the concepts can be less than conclusive but it remains a fundamental issue to consider if there may be some minimal level of intellectual competence below which it is not feasible to…

  18. Intellectual Disabilities and Hearing Loss

    ERIC Educational Resources Information Center

    Herer, Gilbert R.

    2012-01-01

    Undetected/untreated hearing loss imposes significant limitations upon individuals with intellectual disabilities (ID). It can interfere with cognitive development, impede communicative and social interactions, and limit vocational aspirations. Over the past decade, the hearing of 9961 people with ID was evaluated at Special Olympics sports…

  19. The Interrater Reliability of the Modified Gait Abnormality Rating Scale for Use with People with Intellectual Disability

    ERIC Educational Resources Information Center

    Hale, Leigh; McIlraith, Lucy; Miller, Clare; Stanley-Clarke, Terri; George, Rebecca

    2010-01-01

    Background: Researching falls in persons with ID is limited by difficulties in applying standardised balance outcome measures. The modified Gait Abnormality Rating Scale (GARS-M), developed to identify falls risk in older adults, requires only that the participant walks and thus may be a feasible falls research tool to use with people with ID. In…

  20. Emerging Policy Challenges in Intellectual Disabilities

    ERIC Educational Resources Information Center

    Fujiura, Glenn T.; Parish, Susan L.

    2007-01-01

    The forces shaping intellectual disability policy-making are diverse; while many of the policy issues reviewed in this issue are specific to intellectual disabilities, there are others that transcend disability-specific concerns. Our review is organized around six emerging demographic and socio-cultural trends that may directly and profoundly…

  1. Fruit flies and intellectual disability

    PubMed Central

    Bolduc, François V.; Tully, Tim

    2011-01-01

    Mental retardation—known more commonly nowadays as intellectual disability—is a severe neurological condition affecting up to 3% of the general population. As a result of the analysis of familial cases and recent advances in clinical genetic testing, great strides have been made in our understanding of the genetic etiologies of mental retardation. Nonetheless, no treatment is currently clinically available to patients suffering from intellectual disability. Several animal models have been used in the study of memory and cognition. Established paradigms in Drosophila have recently captured cognitive defects in fly mutants for orthologs of genes involved in human intellectual disability. We review here three protocols designed to understand the molecular genetic basis of learning and memory in Drosophila and the genes identified so far with relation to mental retardation. In addition, we explore the mental retardation genes for which evidence of neuronal dysfunction other than memory has been established in Drosophila. Finally, we summarize the findings in Drosophila for mental retardation genes for which no neuronal information is yet available. All in all, this review illustrates the impressive overlap between genes identified in human mental retardation and genes involved in physiological learning and memory. PMID:19182539

  2. Genetics Home Reference: X-linked intellectual disability, Siderius type

    MedlinePlus

    ... linked intellectual disability, Siderius type X-linked intellectual disability, Siderius type Enable Javascript to view the expand/ ... Open All Close All Description X-linked intellectual disability, Siderius type is a condition characterized by mild ...

  3. Executive Functions in Individuals with Intellectual Disability

    ERIC Educational Resources Information Center

    Danielsson, Henrik; Henry, Lucy; Ronnberg, Jerker; Nilsson, Lars-Goran

    2010-01-01

    The aim of the present study was to investigate executive functions in adults with intellectual disability, and compare them to a closely matched control group longitudinally for 5 years. In the Betula database, a group of adults with intellectual disability (ID, n = 46) was defined from measures of verbal and non-verbal IQ. A control group, with…

  4. Poverty and People with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Emerson, Eric

    2007-01-01

    Epidemiological studies have consistently reported a significant association between poverty and the prevalence of intellectual disabilities. The available evidence suggests that this association reflects two distinct processes. First, poverty causes intellectual disabilities, an effect mediated through the association between poverty and exposure…

  5. Religious Expression amongst Adults with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Turner, Susannah; Hatton, Chris; Shah, Robina; Stansfield, Julie; Rahim, Nabela

    2004-01-01

    Background: Although religion is an important part of many people's lives, little is known about the role of religion in the lives of people with intellectual disabilities. Method: Semi-structured face-to-face interviews were conducted with 29 people with intellectual disabilities of a range of faiths (various Christian denominations, Islam and…

  6. Towards Hybrid Therapeutic Strategies in Intellectual Disabilities

    ERIC Educational Resources Information Center

    Rondal, Jean-A.; Lang, Sc.

    2009-01-01

    I present and discuss what I see as a decisive convergence between future (no longer science fiction) genetic therapies in human beings with intellectual disabilities and standard (so to speak) neurobehavioral interventions. This crossing will lead to a radical modification in the life prospect of people with intellectual disability from genetic…

  7. Low-Functioning Autism and Nonsyndromic Intellectual Disability: Magnetic Resonance Imaging (MRI) Findings.

    PubMed

    Erbetta, Alessandra; Bulgheroni, Sara; Contarino, Valeria Elisa; Chiapparini, Luisa; Esposito, Silvia; Annunziata, Silvia; Riva, Daria

    2015-10-01

    Previous neuroradiologic studies reported a high incidence of abnormalities in low-functioning autistic children. In this population, it is difficult to know which abnormality depends on autism itself and which is related to intellectual disability associated with autism. The aim of this study was to evaluate the frequency of neuroradiologic abnormalities in low-functioning autistic children compared to Intellectual Quotient and age-matched nonsyndromic children, using the same set of magnetic resonance imaging (MRI) sequences. MRI was rated as abnormal in 44% of autistic and 54% of children with intellectual disability. The main results were mega cisterna magna in autism and hypoplastic corpus callosum in intellectual disability. These abnormalities are morphologically visible signs of altered brain development. These findings, more frequent than expected, are not specific to the 2 conditions. Although MRI cannot be considered mandatory, it allows an in-depth clinical assessment in nonsyndromic intellectual-disabled and autistic children. PMID:25895913

  8. Antipsychotic Drug Side Effects for Persons with Intellectual Disability

    ERIC Educational Resources Information Center

    Matson, Johnny L.; Mahan, Sara

    2010-01-01

    Antipsychotic drugs are the most frequently prescribed of the psychotropic drugs among the intellectually disabled (ID) population. Given their widespread use, efforts to systematically assess and report side effects are warranted. Specific scaling methods such as the "Matson Evaluation of Side Effects" ("MEDS"), the "Abnormal Inventory Movement…

  9. 77 FR 6022 - Excepted Service-Appointment of Persons With Intellectual Disabilities, Severe Physical...

    Federal Register 2010, 2011, 2012, 2013, 2014

    2012-02-07

    ... Intellectual Disabilities, Severe Physical Disabilities, and Psychiatric Disabilities AGENCY: U.S. Office of... substitute the phrase ``intellectual disability'' for the phrase ``mental retardation'' throughout this Part... retardation'' to ``intellectual disability'' or ``individual with intellectual disability'' in......

  10. Intellectual Disability: Definition, Classification, and Systems of Supports. Eleventh Edition

    ERIC Educational Resources Information Center

    Schalock, Robert L.; Borthwick-Duffy, Sharon A.; Bradley, Valerie J.; Buntinx, Wil H. E.; Coulter, David L.; Craig, Ellis M.; Gomez, Sharon C.; Lachapelle, Yves; Luckasson, Ruth; Reeve, Alya; Shogren, Karrie A.; Snell, Martha E.; Spreat, Scott; Tasse, Marc J.; Thompson, James R.; Verdugo-Alonso, Miguel A.; Wehmeyer, Michael L.; Yeager, Mark H.

    2010-01-01

    This Manual contains the most current and authoritative information and knowledge on intellectual disability, including best practice guidelines on diagnosing and classifying intellectual disability and developing a system of supports for people living with an intellectual disability. Written by a committee of 18 experts, "Intellectual Disability:…

  11. Mortality in People with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Heslop, Pauline; Lauer, Emily; Hoghton, Matt

    2015-01-01

    This paper reviews why an understanding of mortality data in general, and in relation to people with intellectual disabilities in particular, is an important area of concern, and introduces the papers in this Special Edition.

  12. Intellectual Disability: A Critical Concept Analysis.

    PubMed

    Pariseau-Legault, Pierre; Holmes, Dave

    2015-01-01

    Over the last number of years, the emergence of new scientific and social constructions of intellectual disability has contributed to many terminological, conceptual, and structural changes. As a result, the expression "mental retardation" has gradually been abandoned in favor of "intellectual disability" for classification and diagnosis. In addition to helping redefine intellectual disability, the implementation of new deinstitutionalized mechanisms of governmentality required the adoption of different clinical models. Concrete applications of those models have yet to be studied in nursing practice. The main objective of this article is to analyze the concept of intellectual disability in light of recent developments to clarify its philosophical bases, influence, and relevance for clinical practice. This concept analysis was realized following a literature review of scientific articles and monographs addressing topics related to intellectual disability. Inspired by a poststructuralist approach, we will discuss about the ambiguity of nurses' role regarding people labeled as having an intellectual disability. Lastly, we will address the clinical implications of our analysis and we will propose an actualized understanding of the nursing practice in such context. PMID:26714353

  13. ADAT3-related intellectual disability: Further delineation of the phenotype.

    PubMed

    El-Hattab, Ayman W; Saleh, Mohammed A; Hashem, Amal; Al-Owain, Mohammed; Asmari, Ali Al; Rabei, Hala; Abdelraouf, Hanem; Hashem, Mais; Alazami, Anas M; Patel, Nisha; Shaheen, Ranad; Faqeih, Eissa A; Alkuraya, Fowzan S

    2016-05-01

    ADAT3-related intellectual disability has been recently described in 24 individuals from eight Saudi families who had cognitive impairment and strabismus. Other common features included growth failure, microcephaly, tone abnormalities, epilepsy, and nonspecific brain abnormalities. A single homozygous founder mutation (c.382G>A:p.(V128M)) in the ADAT3 gene, which encodes a protein that functions in tRNA editing, was identified in all affected individuals. In this report, we present additional 15 individuals from 11 families (10 Saudis and 1 Emirati) who are homozygous for the same founder mutation. In addition to the universal findings of intellectual disability and strabismus, the majority exhibited microcephaly and growth failure. Additional features not reported in the original cohort include dysmorphic facial features (prominent forehead, up-slanted palpebral fissures, epicanthus, and depressed nasal bridge), behavioral problems (hyperactivity and aggressiveness), recurrent otitis media, and growth hormone deficiency. ADAT3-related intellectual disability is an important recognizable cause of intellectual disability in Arabia. © 2016 Wiley Periodicals, Inc. PMID:26842963

  14. Epilepsy and Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    Oguni, Hirokazu

    2013-01-01

    The co-occurrence of epilepsy in people with intellectual disabilities (ID) and other developmental disabilities (DD) has received attention because it has a significant negative impact on health, well-being, and quality of life. The current research investigating the frequency and form of epilepsy in children with ID and DD is reviewed, with…

  15. Substance Abuse among Individuals with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Chapman, Shawna L. Carroll; Wu, Li-Tzy

    2012-01-01

    Individuals with disabilities are a growing population that confronts multiple disadvantages from social and environmental determinants of health. In particular, the 7-8 million people in the U.S. with an intellectual disability (ID) suffer disproportionately from substance use problems, largely because of a lack of empirical evidence to inform…

  16. An Abnormal Nitric Oxide Metabolism Contributes to Brain Oxidative Stress in the Mouse Model for the Fragile X Syndrome, a Possible Role in Intellectual Disability

    PubMed Central

    Lima-Cabello, Elena; Garcia-Guirado, Francisco; Calvo-Medina, Rocio; el Bekay, Rajaa; Perez-Costillas, Lucia; Quintero-Navarro, Carolina; Sanchez-Salido, Lourdes

    2016-01-01

    Background. Fragile X syndrome is the most common genetic cause of mental disability. Although many research has been performed, the mechanism underlying the pathogenesis is unclear and needs further investigation. Oxidative stress played major roles in the syndrome. The aim was to investigate the nitric oxide metabolism, protein nitration level, the expression of NOS isoforms, and furthermore the activation of the nuclear factor NF-κB-p65 subunit in different brain areas on the fragile X mouse model. Methods. This study involved adult male Fmr1-knockout and wild-type mice as controls. We detected nitric oxide metabolism and the activation of the nuclear factor NF-κBp65 subunit, comparing the mRNA expression and protein content of the three NOS isoforms in different brain areas. Results. Fmr1-KO mice showed an abnormal nitric oxide metabolism and increased levels of protein tyrosine nitrosylation. Besides that, nuclear factor NF-κB-p65 and inducible nitric oxide synthase appeared significantly increased in the Fmr1-knockout mice. mRNA and protein levels of the neuronal nitric oxide synthase appeared significantly decreased in the knockout mice. However, the epithelial nitric oxide synthase isoform displayed no significant changes. Conclusions. These data suggest the potential involvement of an abnormal nitric oxide metabolism in the pathogenesis of the fragile X syndrome. PMID:26788253

  17. Relapse prevention with intellectually disabled sexual offenders.

    PubMed

    Keeling, Jenny A; Rose, John L

    2005-10-01

    The adaptation of relapse prevention theory to sexual offending (W. D. Pithers, J. K. Marques, C. C. Gibat, & G. A. Marlatt, 1983) has represented an important movement in cognitive-behavioural treatment for sexual offenders. However, this model of relapse prevention has been criticised for its limited view and oversimplification of the relapse prevention process (R. K. Hanson, 2000; T. Ward & S. M. Hudson, 1996). As a result, T. Ward and S. M. Hudson (2000a) have developed a multiple pathway model of the relapse prevention process based on self-regulation theory. Although this model continues to be empirically validated on sexual offenders (J. A. Bickley & A. R. Beech, 2002; T. Ward, S. M. Hudson, & J. C. McCormick, 1999), there has been no empirical research regarding the application of this theory to intellectually disabled sexual offenders. This paper discusses whether the characteristics of offenders in each of the relapse offence pathways, as described by T. Ward and S. M. Hudson (2000a), may be similar to the characteristics of intellectually disabled sexual offenders. From a review of the literature, it appears that the intellectually disabled sexual offender may be most likely to offend via the approach-automatic pathway or the avoidant-passive pathway. The potential treatment implications of the self-regulation model for intellectually disabled sexual offenders is discussed, as well as the need for empirical evaluation with regards to the application of this model to the intellectually disabled sexual offender population. PMID:16341602

  18. X-linked congenital ptosis and associated intellectual disability, short stature, microcephaly, cleft palate, digital and genital abnormalities define novel Xq25q26 duplication syndrome.

    PubMed

    Møller, R S; Jensen, L R; Maas, S M; Filmus, J; Capurro, M; Hansen, C; Marcelis, C L M; Ravn, K; Andrieux, J; Mathieu, M; Kirchhoff, M; Rødningen, O K; de Leeuw, N; Yntema, H G; Froyen, G; Vandewalle, J; Ballon, K; Klopocki, E; Joss, S; Tolmie, J; Knegt, A C; Lund, A M; Hjalgrim, H; Kuss, A W; Tommerup, N; Ullmann, R; de Brouwer, A P M; Strømme, P; Kjaergaard, S; Tümer, Z; Kleefstra, T

    2014-05-01

    Submicroscopic duplications along the long arm of the X-chromosome with known phenotypic consequences are relatively rare events. The clinical features resulting from such duplications are various, though they often include intellectual disability, microcephaly, short stature, hypotonia, hypogonadism and feeding difficulties. Female carriers are often phenotypically normal or show a similar but milder phenotype, as in most cases the X-chromosome harbouring the duplication is subject to inactivation. Xq28, which includes MECP2 is the major locus for submicroscopic X-chromosome duplications, whereas duplications in Xq25 and Xq26 have been reported in only a few cases. Using genome-wide array platforms we identified overlapping interstitial Xq25q26 duplications ranging from 0.2 to 4.76 Mb in eight unrelated families with in total five affected males and seven affected females. All affected males shared a common phenotype with intrauterine- and postnatal growth retardation and feeding difficulties in childhood. Three had microcephaly and two out of five suffered from epilepsy. In addition, three males had a distinct facial appearance with congenital bilateral ptosis and large protruding ears and two of them showed a cleft palate. The affected females had various clinical symptoms similar to that of the males with congenital bilateral ptosis in three families as most remarkable feature. Comparison of the gene content of the individual duplications with the respective phenotypes suggested three critical regions with candidate genes (AIFM1, RAB33A, GPC3 and IGSF1) for the common phenotypes, including candidate loci for congenital bilateral ptosis, small head circumference, short stature, genital and digital defects. PMID:24326587

  19. The Law's Understanding of Intellectual Disability as a Disability

    ERIC Educational Resources Information Center

    Ellis, James W.

    2013-01-01

    Intellectual disability (ID) is differently yet validly described by different professions. Legal professionals find it most useful to consider ID as a disability rather than a disorder. Because the law regulates the actions of individuals in a society and the actions of society on an individual, the law's concern in dealing with a person with ID…

  20. Understanding intellectual disability in healthcare practice.

    PubMed

    Hayes, Catherine; Batey, Glenn

    This article has been developed for allied health professionals. These practitioners may face significant barriers to providing high-quality healthcare to people with intellectual disabilities, just because they lack awareness of policies and initiatives in health. There are fundamental issues to address within the context of healthcare provision that are of direct relevance to improving services for people with intellectual disabilities with regard to their empowerment and the facilitation of care. Emphasis is placed upon the need for equity in healthcare for all and the need to avoid the tendency of society to homogenise all individual people with intellectual disabilities into one group, for whom empowerment cannot become panacea in reality. PMID:23588014

  1. Occupational Engagement and Adults With Intellectual Disabilities.

    PubMed

    Mahoney, Wanda J; Roberts, Elysa; Bryze, Kimberly; Parker Kent, Judith A

    2016-01-01

    People with intellectual disabilities may be predisposed to occupational alienation as a result of an inherent need for ongoing support and limited understanding of how they express choice and engagement in occupation. In response to this risk of occupational injustice, this phenomenological study explored the occupational engagement of adults with intellectual disabilities in a community-based day program. Data were collected through interviews using visual supports and through observation of activity groups using the Volitional Questionnaire. Thematic analysis illustrated how participants demonstrated engagement in occupation through doing activity/initiating action, expressing positive affect, and showing focused attention. Findings can inform how occupational therapy practitioners describe and facilitate occupational engagement in adults with intellectual disabilities. PMID:26709435

  2. Genetics Home Reference: SYNGAP1-related intellectual disability

    MedlinePlus

    ... of SYNGAP1 -related intellectual disability include recurrent seizures (epilepsy), hyperactivity, and autism spectrum disorders, which are conditions ... almost everyone with SYNGAP1 -related intellectual disability develops epilepsy, and about half have an autism spectrum disorder. ...

  3. What Are Treatments for Intellectual & Developmental Disabilities (IDDs)?

    MedlinePlus

    ... Resources Research A-Z Topics Intellectual and Developmental Disabilities (IDDs) Overview Condition Information What are common signs? ... Share this: Page Content Many intellectual and developmental disabilities (IDDs) have no cure, but there are often ...

  4. Malformations Among the X-Linked Intellectual Disability Syndromes

    PubMed Central

    Stevenson, Roger E.; Schwartz, Charles E.; Rogers, R. Curtis

    2013-01-01

    Malformations are significant contributions to childhood mortality and disability. Their co-occurrence with intellectual disability may compound the health burden, requiring additional evaluation and management measures. Overall, malformations of greater or lesser severity occur in at least some cases of almost half of the 153 XLID syndromes. Genitourinary abnormalities are most common, but tend to contribute little or no health burden and occur in only a minority of cases of a given XLID syndrome. Some malformations (e.g., lissencephaly, hydranencephaly, long bone deficiency, renal agenesis/dysplasia) are not amenable to medical or surgical intervention; others (e.g., hydrocephaly, facial clefting, cardiac malformations, hypospadias) may be substantially corrected. PMID:24166814

  5. Use of Outpatient Endometrial Biopsy in a Population with Intellectual Disability

    ERIC Educational Resources Information Center

    Jaffe, Joshua S.

    2008-01-01

    Background: To demonstrate the feasibility of outpatient endometrial sampling to evaluate abnormal uterine bleeding in a population of women with intellectual disability. Method: Retrospective chart review was completed of all endometrial biopsies performed on women attending a dedicated gynaecology clinic for women with intellectual disability…

  6. Intellectual Disability and Epilepsy in Down Syndrome

    PubMed Central

    BARCA, Diana; TARTA-ARSENE, Oana; DICA, Alice; ILIESCU, Catrinel; BUDISTEANU, Magdalena; MOTOESCU, Cristina; BUTOIANU, Niculina; CRAIU, Dana

    2014-01-01

    Down Syndrome (DS) is the most common genetic cause of mental retardation, with a reported frequency of epilepsy between 1.4-17% (1). There is a paucity of data in the literature regarding epilepsy in Down syndrome and its relation to intellectual disability. Objectives: The purpose of this article is to analyze the association of epilepsy in children with DS - frequency and type of seizures, treatment, outcome and to compare cognitive impairment of children with DS and epilepsy and DS without epilepsy from our cohort. Methods: A four years systematic retrospective analysis of the database of the Pediatric Neurology Clinic (January 2010 - December 2013) identified a cohort of 39 pediatric cases with DS and neurological symptoms, 9 of them (23%) associating epileptic seizures. Following data were analysed: clinical and neurological examination, type/s of seizures, electroencephalography (EEG), cerebral magnetic resonance imaging (MRI), psychological examination, psychiatric evaluation in selected cases, electrocardiography (ECG), cardiac ultrasonography, ophthalmologic examination. Results: 23% (9 patients) of the children with DS of our cohort presented epilepsy. Five patients had epileptic spasms (56%), one of these further developed astatic seizures. Focal seizures were observed in three patients (33%) and absence with eyelid myoclonias in one patient (11%). Two of the nine patients with DS and epilepsy had generalized seizures, both with very good response to levetiracetam (LEV). EEG was abnormal at seizure onset, and was improved after treatment. Of the nine children with DS and epilepsy, two (22%) presented mild mental retardation and seven (78%) had moderate to severe cognitive delay. Of the 30 children with DS and without epilepsy, 21 (70%) had mild mental retardation and 9 (30%) had moderate to severe cognitive impairment. Conclusions: The most frequent epileptic syndrome associated with DS is West syndrome, with good response to specific antiepileptics

  7. The Assessment of Severely Intellectually Disabled Students

    ERIC Educational Resources Information Center

    Kontu, Elina; Pirttimaa, Raija

    2008-01-01

    The aim of this study was to gather information on the tools used by special education teachers for the assessment of severely intellectually disabled students (SID), preparing an individual education plan, and about the methodology used for monitoring their learning progress. The survey included all Finnish special education teachers working with…

  8. Communicative Empowerment of People with Intellectual Disability

    ERIC Educational Resources Information Center

    van Nijnatten, Carolus; Heestermans, Marianne

    2012-01-01

    Background: Personal narratives are conditional for victims of sexual abuse to overcome their trauma. Counsellors can help victims with intellectual disability to take an active position in conversations about sexuality and to co-construct a personal narrative. Method: Using discourse and conversational analysis, we studied 4 conversations between…

  9. Menopausal Experiences of Women with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Willis, D. S.; Wishart, J. G.; Muir, W. J.

    2011-01-01

    Background: Little is known about the menopause in women with intellectual disabilities (ID) save that its onset is earlier than in the general population, and earlier still in women with Down's syndrome (DS). This study directly explored menopausal experiences in women with ID, both with and without DS, with the aim of identifying levels of…

  10. Obesity and Intellectual Disability in New Zealand

    ERIC Educational Resources Information Center

    Stedman, Kurstyn V.; Leland, Louis S., Jr.

    2010-01-01

    Background: The international literature suggests that obesity is likely to be more pronounced in the population of people with intellectual disability (ID). However, there are no published New Zealand data for this population. Method: We accessed a database containing anonymous data for a New Zealand ID population. Ninety-eight people of 141 had…

  11. Contraception and Women with Intellectual Disabilities

    ERIC Educational Resources Information Center

    McCarthy, Michelle

    2009-01-01

    Background: Contraception is widely prescribed to women with intellectual disabilities, yet little is known about what the women think and feel about this. One of the aims of the study was to explore what women understood and to what extent they were able to exercise choice and control. Method: Twenty-three women with mild and moderate…

  12. At the End of Intellectual Disability

    ERIC Educational Resources Information Center

    Kliewer, Christopher; Biklen, Douglas; Petersen, Amy J.

    2015-01-01

    In this essay, Christopher Kliewer, Douglas Biklen, and Amy J. Petersen unravel the construct of intellectual disability that has dominated both policy and practice in schools and communities. The authors synthesize data from first-person narratives, family accounts, and participatory inquiry to propose a theory of human connectedness in which…

  13. Aging in Rare Intellectual Disability Syndromes

    ERIC Educational Resources Information Center

    Dykens, Elisabeth M.

    2013-01-01

    This review highlights several methodological challenges involved in research on aging, health, and mortality in adults with rare intellectual disability syndromes. Few studies have been performed in this area, with research obstacles that include: the ascertainment of older adults with genetic versus clinical diagnoses; likelihood that adults…

  14. The Male Workforce in Intellectual Disability Services

    ERIC Educational Resources Information Center

    McConkey, Roy; McAuley, Patricia; Simpson, Leanne; Collins, Suzanne

    2007-01-01

    Staff shortages are predicted in community social care sector services for people with intellectual disabilities (ID). One option is to attract more men to the workforce, which would also counter the present sex-ratio (gender) imbalance among workers. Potential strategies for recruitment could be identified by analyzing the characteristics and…

  15. Life Satisfaction in Persons with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Lucas-Carrasco, Ramona; Salvador-Carulla, Luis

    2012-01-01

    We appraised life satisfaction using the Satisfaction with Life Scale (SWLS), and analysed its psychometric properties in persons with intellectual disability (ID). Ninety-nine persons with ID from four services in Spain participated. A battery of subjective assessments was used, including the SWLS, a Quality of Life measure (WHOQOL-BREF), and…

  16. Mothering and Intellectual Disability: Partnership Rhetoric?

    ERIC Educational Resources Information Center

    Rogers, Chrissie

    2011-01-01

    This paper is about mothering an intellectually disabled child identified with special educational needs. It specifically looks at the parent partnership rhetoric that has dominated UK government policy and directives for nearly three decades and yet research suggests parents and more often mothers have to battle to be recognised as legitimate…

  17. Legal Rights & Intellectual Disability: A Short Guide.

    ERIC Educational Resources Information Center

    Hall, Julia, Ed.; And Others

    The book examines actions that may be taken to redress wrongs illegally perpetrated against people with intellectual disabilities in New South Wales, Australia. Ten topic areas are addressed (sample subtopics in parentheses): protecting rights (complaints to government departments, use of the ombudsman); discrimination (legal aid); personal…

  18. Perspectives on Pain and Intellectual Disability

    ERIC Educational Resources Information Center

    Symons, F. J.; Shinde, S. K.; Gilles, E.

    2008-01-01

    Historically, individuals with intellectual disability (ID) have been excluded from pain research and assumed to be insensitive or indifferent to pain. The weight of the evidence suggests that individuals with ID have been subject to practices and procedures with little regard for their ability to experience or express pain. A number of issues…

  19. 76 FR 51986 - President's Committee for People With Intellectual Disabilities (PCPID); Notice of Meeting

    Federal Register 2010, 2011, 2012, 2013, 2014

    2011-08-19

    ... Intellectual Disabilities (PCPID); Notice of Meeting AGENCY: President's Committee for People with Intellectual..., services and supports for persons with intellectual disabilities. The PCPID Executive Order stipulates that the Committee shall: (1) Provide such advice concerning intellectual disabilities as the President...

  20. Pain in Intellectually Disabled Children: Towards Evidence-Based Pharmacotherapy?

    PubMed

    Valkenburg, Abraham J; de Leeuw, Tom G; van Dijk, Monique; Tibboel, Dick

    2015-10-01

    This critical opinion article deals with the challenges of finding the most effective pharmacotherapeutic options for the management of pain in intellectually disabled children and provides recommendations for clinical practice and research. Intellectual disability can be caused by a wide variety of underlying diseases and may be associated with congenital anomalies such as cardiac defects, small-bowel obstructions or limb abnormalities as well as with comorbidities such as scoliosis, gastro-esophageal reflux disease, spasticity, and epilepsy. These conditions themselves or any necessary surgical interventions are sources of pain. Epilepsy often requires chronic pharmacological treatment with antiepileptic drugs. These antiepileptic drugs can potentially cause drug-drug interactions with analgesic drugs. It is unfortunate that children with intellectual disabilities often cannot communicate pain to caregivers. Although these children are at high risk of experiencing pain, researchers nevertheless often have to exclude them from trials on pain management because of ethical considerations. We therefore make a plea for prescribers, researchers, patient organizations, pharmaceutical companies, and policy makers to study evidence-based, safe and effective pharmacotherapy in these children through properly designed studies. In the meantime, parents and clinicians must resort to validated pain assessment tools such as the revised FLACC scale. PMID:26076801

  1. Menstrual issues for women with intellectual disability

    PubMed Central

    Tracy, Jane; Grover, Sonia; Macgibbon, Sandra

    2016-01-01

    Summary The approach to menstrual management in girls with intellectual disabilities should be the same as it is for other girls. Advice may need to be tailored according to the severity of the disability. Girls who can manage their own toilet hygiene can usually learn to manage their menses independently. They need preparation for the menarche with information appropriate to their level of understanding. When assessing menstrual problems, it may help to chart any symptoms against the menstrual cycle to confirm that they are related. The management options for problems such as dysmenorrhoea or heavy bleeding are the same as they are for other women. PMID:27340323

  2. Menstrual issues for women with intellectual disability.

    PubMed

    Tracy, Jane; Grover, Sonia; Macgibbon, Sandra

    2016-04-01

    The approach to menstrual management in girls with intellectual disabilities should be the same as it is for other girls. Advice may need to be tailored according to the severity of the disability. Girls who can manage their own toilet hygiene can usually learn to manage their menses independently. They need preparation for the menarche with information appropriate to their level of understanding. When assessing menstrual problems, it may help to chart any symptoms against the menstrual cycle to confirm that they are related. The management options for problems such as dysmenorrhoea or heavy bleeding are the same as they are for other women. PMID:27340323

  3. Cell Phone Use by Adults with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Bryen, Diane Nelson; Carey, Allison; Friedman, Mark

    2007-01-01

    Although cell phone use has grown dramatically, there is a gap in cell phone access between people with disabilities and the general public. The importance of cell phone use among people with intellectual disabilities and studies about use of cell phones by adults with intellectual disabilities was described. Our goal was to determine the extent…

  4. Exploring the Meaning of Trauma with Adults with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Mitchell, Anna; Clegg, Jennifer; Furniss, Frederick

    2006-01-01

    Background: Previous research investigating post-traumatic stress disorder assumed that adults with intellectual disabilities would react to trauma in the same way as those in the non-disabled population. This study explored the personal experience of trauma in a small group of adults with intellectual disabilities. Methods: Semi-structured…

  5. Identifying the Key Concerns of Irish Persons with Intellectual Disability

    ERIC Educational Resources Information Center

    García Iriarte, Edurne; O'Brien, Patricia; McConkey, Roy; Wolfe, Marie; O'Doherty, Siobhain

    2014-01-01

    Background: Internationally, people with intellectual disability are socially marginalized, and their rights under the United Nations Convention for the Rights of Persons with Disabilities (CRPD) are often ignored. Aims: This paper aims to define the key concerns of adults with an intellectual disability in relation to their participation in…

  6. Parent Report of Conversations with Their Adolescents with Intellectual Disability

    ERIC Educational Resources Information Center

    Jones, Jennifer L.; Oseland, Lauren M.; Morris, Kathryn L.; Larzelere, Robert E.

    2014-01-01

    Background: The purpose of this study was to examine parent report of conversations about difference and disability in families of adolescents with intellectual disability. Materials and Methods: Participants included 50 parents (44 mothers, four fathers, and two other caregivers) and their adolescents with intellectual disability (M age = 15.9).…

  7. Psychodynamic Therapy and Intellectual Disabilities: Dealing with Challenging Behaviour.

    ERIC Educational Resources Information Center

    Berry, Paul

    2003-01-01

    Four case studies concerning long-term psychodynamic treatment of German individuals with intellectual disabilities are presented: an aggressive young man with a mild intellectual disability; a young man with multiple disabilities with destructive behavior; a withdrawn young woman with self-destructive behavior; and a young man with autism with…

  8. Attitudes towards People with Disabilities--What Do People with Intellectual Disabilities Have to Say?

    ERIC Educational Resources Information Center

    Corr McEvoy, Sandra; Keenan, Emer

    2014-01-01

    Attitudes towards people with intellectual disabilities have traditionally been very negative, resulting in people with intellectual disabilities being treated badly by other. This claim was explored by conducting focus groups with adults who have an intellectual disability to find out about their everyday experiences in different places and using…

  9. 76 FR 63623 - President's Committee for People With Intellectual Disabilities Committee Meeting via Conference...

    Federal Register 2010, 2011, 2012, 2013, 2014

    2011-10-13

    ... Intellectual Disabilities Committee Meeting via Conference Call AGENCY: President's Committee for People with Intellectual Disabilities (PCPID), HHS. ACTION: Notice of committee meeting via conference call. DATES: Friday... for People with Intellectual Disabilities, The Aerospace Center, Second Floor West, 370...

  10. 76 FR 38658 - President's Committee for People With Intellectual Disabilities; Notice of Committee Meeting via...

    Federal Register 2010, 2011, 2012, 2013, 2014

    2011-07-01

    ... Intellectual Disabilities; Notice of Committee Meeting via Conference Call AGENCY: President's Committee for People with Intellectual Disabilities (PCPID), HHS. ACTION: Notice of committee meeting via conference..., President's Committee for People with Intellectual Disabilities, The Aerospace Center, Second Floor...

  11. 76 FR 76738 - President's Committee for People With Intellectual Disabilities Notice of Committee Meeting via...

    Federal Register 2010, 2011, 2012, 2013, 2014

    2011-12-08

    ... Intellectual Disabilities Notice of Committee Meeting via Conference Call AGENCY: President's Committee for People with Intellectual Disabilities (PCPID), Administration for Children and Families, HHS. ACTION..., services, and supports for persons with intellectual disabilities. The PCPID Executive Order...

  12. 77 FR 43092 - President's Committee for People with Intellectual Disabilities; Committee Meeting via Conference...

    Federal Register 2010, 2011, 2012, 2013, 2014

    2012-07-23

    ... Taylor Roach, Senior Advisor, President's Committee for People with Intellectual Disabilities, The... Administration on Intellectual and Developmental Disabilities, on a broad range of topics relating to programs, services, and supports for persons with intellectual disabilities. The PCPID Executive Order...

  13. 76 FR 31341 - President's Committee for People With Intellectual Disabilities; Notice of Correction of Room for...

    Federal Register 2010, 2011, 2012, 2013, 2014

    2011-05-31

    ... Intellectual Disabilities; Notice of Correction of Room for Meeting AGENCY: President's Committee for People with Intellectual Disabilities (PCPID). ACTION: Notice of correction of room for meeting. DATES... Laverdia Taylor Roach, Director, President's Committee for People with Intellectual Disabilities,...

  14. 77 FR 12306 - Notice of Committee Meetings, President's Committee for People With Intellectual Disabilities...

    Federal Register 2010, 2011, 2012, 2013, 2014

    2012-02-29

    ... Committee for People With Intellectual Disabilities (PCPID) AGENCY: President's Committee for People with Intellectual Disabilities, ACF, HHS. ACTION: Notice of Committee Meetings. DATES: Friday, April 6, 2012, from 1... Taylor Roach, Senior Advisor, President's Committee for People with Intellectual Disabilities,...

  15. 76 FR 68486 - President's Committee for People With Intellectual Disabilities: Committee Meeting via Conference...

    Federal Register 2010, 2011, 2012, 2013, 2014

    2011-11-04

    ... Intellectual Disabilities: Committee Meeting via Conference Call AGENCY: President's Committee for People with Intellectual Disabilities (PCPID). ACTION: Notice of committee meeting via conference call. DATES: Monday...'s Committee for People with Intellectual Disabilities, The Aerospace Center, Second Floor West,...

  16. Genetics Home Reference: alpha thalassemia X-linked intellectual disability syndrome

    MedlinePlus

    ... intellectual disability syndrome alpha thalassemia X-linked intellectual disability syndrome Enable Javascript to view the expand/collapse ... Close All Description Alpha thalassemia X-linked intellectual disability syndrome is an inherited disorder that affects many ...

  17. Care of Adults With Intellectual and Developmental Disabilities: Cerebral Palsy.

    PubMed

    Jones, Kyle Bradford; Wilson, Benjamin; Weedon, Dean; Bilder, Deborah

    2015-12-01

    Cerebral palsy (CP) is a group of disorders that primarily affect motor function. This developmental disability is becoming more common in adults as life expectancy increases for individuals with CP. Many physical, medical, mental, and behavioral health conditions are associated with CP, and assistance should be provided to patients with CP to optimize function, when available. These comorbidities include intellectual disabilities, seizures, muscle contractures, abnormal gait, osteoporosis, communication disorders, malnutrition, sleep disorders, and mental health disorders, such as depression and anxiety. The physician should be familiar with screening for and assisting patients with these issues. Optimizing quality of life requires individualized care plans that may include physical therapy, muscle relaxants, surgery, and nutritional support. Other issues to be addressed include methods to facilitate employment; sexual concerns; and support through local and national organizations for patients, families, and caregivers. PMID:26669212

  18. Vision, spatial cognition and intellectual disability.

    PubMed

    Giuliani, Fabienne; Schenk, Françoise

    2015-02-01

    Vision is the most synthetic sensory channel and it provides specific information about the relative position of distant landmarks during visual exploration. In this paper we propose that visual exploration, as assessed by the recording of eye movements, offers an original method to analyze spatial cognition and to reveal alternative adaptation strategies in people with intellectual disabilities (ID). Our general assumption is that eye movement exploration may simultaneously reveal whether, why, and how, compensatory strategies point to specific difficulties related to neurological symptoms. An understanding of these strategies will also help in the development of optimal rehabilitation procedures. PMID:25506655

  19. Next-Generation Sequencing in Intellectual Disability.

    PubMed

    Carvill, Gemma L; Mefford, Heather C

    2015-09-01

    Next-generation sequencing technologies have revolutionized gene discovery in patients with intellectual disability (ID) and led to an unprecedented expansion in the number of genes implicated in this disorder. We discuss the strategies that have been used to identify these novel genes for both syndromic and nonsyndromic ID and highlight the phenotypic and genetic heterogeneity that underpin this condition. Finally, we discuss the future of defining the genetic etiology of ID, including the role of whole-genome sequencing, mosaicism, and the importance of diagnostic testing in ID. PMID:27617123

  20. Poverty Transitions among Families Supporting a Child with Intellectual Disability

    ERIC Educational Resources Information Center

    Emerson, Eric; Shahtahmasebi, Said; Lancaster, Gillian; Berridge, Damon

    2010-01-01

    Background: Little is known about child disability and dynamic aspects of poverty. Method: Analysis of data collected over a 12-month period for families (a) supporting a child with intellectual disability (n = 370), (b) supporting a child with other disability (n = 1,418), and (c) supporting a child with no disability (n = 7,215). Results: When…

  1. What Is Right? Ethics in Intellectual Disabilities Research

    ERIC Educational Resources Information Center

    McDonald, Katherine E.; Kidney, Colleen A.

    2012-01-01

    There are important benefits to including adults with intellectual disabilities in research. Calls for their increased participation in research co-occur with notable discussion about how to conduct ethically strong research with adults with intellectual disabilities, a population widely considered vulnerable in the context of research. The…

  2. Aetiology of Intellectual Disability in Paediatric Outpatients in Northern India

    ERIC Educational Resources Information Center

    Jauhari, Prashant; Boggula, Raju; Bhave, Anupama; Bhargava, Roli; Singh, Chandrakanta; Kohli, Neera; Yadav, Rajesh; Kumar, Rashmi

    2011-01-01

    Aim: To study the aetiology of intellectual disability in patients presenting to hospital and the diagnostic yield of a standardized examination. Method: Over a 1-year period, the first three children presenting to the paediatric outpatients department (OPD) on 2 selected weekdays with developmental delay, suspected intellectual disability, or…

  3. An Audit of the Irish National Intellectual Disability Database

    ERIC Educational Resources Information Center

    Dodd, Philip; Craig, Sarah; Kelly, Fionnola; Guerin, Suzanne

    2010-01-01

    This study describes a national data audit of the National Intellectual Disability Database (NIDD). The NIDD is a national information system for intellectual disability (ID) for Ireland. The purpose of this audit was to assess the overall accuracy of information contained on the NIDD, as well as collecting qualitative information to support the…

  4. The Siblings Relationship of Adolescents with and without Intellectual Disabilities

    ERIC Educational Resources Information Center

    Begum, Gazi; Blacher, Jan

    2011-01-01

    The sibling relationship of adolescents with and without intellectual disabilities was examined. Participants were 70 sibling dyads--each dyad was comprised of one 12-year old adolescent with (N = 23) or without intellectual disabilities (N = 47). Sibling relationships, behavior problems, and social skills were assessed using mother reports.…

  5. Stressful Social Interactions Experienced by Adults with Mild Intellectual Disability

    ERIC Educational Resources Information Center

    Hartley, Sigan L.; MacLean, William E., Jr.

    2009-01-01

    Adults with intellectual disability are vulnerable to stressful social interactions. We determined frequency and severity of various stressful social interactions, identified the social partners in these interactions, and examined the specific interpersonal skill difficulties of 114 adults with mild intellectual disability. Participants'…

  6. Overweight and Obesity in Older People with Intellectual Disability

    ERIC Educational Resources Information Center

    de Winter, C. F.; Bastiaanse, L. P.; Hilgenkamp, T. I. M.; Evenhuis, H. M.; Echteld, M. A.

    2012-01-01

    Overweight and obesity are major health problems associated with increased cardiovascular disease risk, which is not sufficiently studied in people with intellectual disability yet. The present study was part of the Healthy Ageing in Intellectual Disability (HA-ID) study. The aim of this study was to establish (1) the prevalence of overweight,…

  7. Assessment of Risk Manageability of Intellectually Disabled Sex Offenders

    ERIC Educational Resources Information Center

    Boer, Douglas P.; Tough, Susan; Haaven, James

    2004-01-01

    Background: There are no validated risk assessment tools for intellectually disabled (ID) sex offenders, with the exception of the work of Lindsay et al. ["Journal of Applied Research in Intellectual Disabilities" (2004) 17: 267] regarding the prediction of risk for aggressive behaviour of ID offenders in residential settings. ID sex offenders…

  8. Psychiatric Disorders and Behavior Problems in People with Intellectual Disability

    ERIC Educational Resources Information Center

    Myrbakk, Even; von Tetzchner, Stephen

    2008-01-01

    The relationship between behavior problems and psychiatric disorders in individuals with intellectual disability is still unresolved. The present study compares the prevalence and pattern of psychiatric disorders in individuals with intellectual disability who were assessed on the ABC to have moderate and severe behavior problems and a matched…

  9. The Evolving Understanding of the Construct of Intellectual Disability

    ERIC Educational Resources Information Center

    Schalock, Robert L.

    2011-01-01

    This article addresses two major areas concerned with the evolving understanding of the construct of intellectual disability. The first part of the article discusses current answers to five critical questions that have revolved around the general question, "What is Intellectual Disability?" These five are what to call the phenomenon, how to…

  10. Constructing Sexual Identities: People with Intellectual Disability Talking about Sexuality

    ERIC Educational Resources Information Center

    Azzopardi-Lane, Claire; Callus, Anne-Marie

    2015-01-01

    This paper presented research undertaken in collaboration with a self-advocacy group using inclusive research methods and puts forward the views of people with intellectual disability on the topics of sexuality and relationships. The paper presents the perceptions of sexuality of the people with intellectual disability and how these are influenced…

  11. Qualitative Study of Malnutrition in People with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Franssen, Janine J. L.; Maaskant, Marian A.; van Schrojenstein Lantman-de Valk, Henny M. J.

    2011-01-01

    The prevalence of underweight status is relatively high in persons with intellectual disabilities. However, it is not clear whether this is due to malnourishment. The authors sought to examine the awareness and knowledge of physicians, dieticians, and direct care staff regarding malnutrition in people with intellectual disabilities. They also…

  12. Teaching Reading for Students with Intellectual Disabilities: A Systematic Review

    ERIC Educational Resources Information Center

    Alnahdi, Ghaleb Hamad

    2015-01-01

    A systematic review of the literature related to instructional strategies to improve reading skills for students with intellectual disabilities was conducted. Studies reviewed were within three categories; early reading approaches, comprehensive approaches, and one method approach. It was concluded that students with intellectual disabilities are…

  13. Intellectual Disability and Space: Critical Narratives of Exclusion

    ERIC Educational Resources Information Center

    Gabel, Susan L.; Cohen, Carie J.; Kotel, Kathleen; Pearson, Holly

    2013-01-01

    The language of intellectual disability is rife with spatial terms. Students labeled with intellectual disability are "placed in" special education where they may be "self-contained," "segregated," "excluded," or "included." Conversations ensue about where to seat them, "next" to whom, and at what distance "from" the teacher and other students. In…

  14. Physical Fitness and Fatness in Adolescents with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Salaun, Laureline; Berthouze-Aranda, Sophie E.

    2012-01-01

    Background: This study investigated health-related fitness in adolescents with intellectual disabilities and analysed the various performances in physical fitness tests according to degrees of obesity. Materials and Methods: Eighty-seven French intellectual disabilities adolescents (14.24 [plus or minus] 1.48 years) performed the EUROFIT physical…

  15. Parenting Training for Intellectually Disabled Parents: A Cochrane Systematic Review

    ERIC Educational Resources Information Center

    Coren, Esther; Thomae, Manuela; Hutchfield, Jemeela

    2011-01-01

    Objectives: This article presents a Cochrane/Campbell systematic review of the evidence on the effect of parent training to support the parenting of parents with intellectual disabilities. Method: Randomized controlled trials (RCTs) comparing parent training interventions for parents with intellectual disability with usual care or with a control…

  16. How Do People with Intellectual Disabilities View Abuse and Abusers?

    ERIC Educational Resources Information Center

    Northway, Ruth; Melsome, Melissa; Flood, Samantha; Bennett, Davey; Howarth, Joyce; Thomas, Becki

    2013-01-01

    People with intellectual disabilities have a higher risk of being abused than other people, but to date research has not explored their views regarding abuse. This article reports the findings relating to one question within a participatory research study concerning the abuse of people with intellectual disabilities. This question asked what…

  17. Students' Attitudes towards Individuals with an Intellectual Disability

    ERIC Educational Resources Information Center

    Patel, Meera; Rose, John

    2014-01-01

    The aim of the study was to investigate attitudes held by a British student population towards individuals with an intellectual disability. Students participated in focus groups addressing their attitudes, behaviours and perceptions of individuals with an intellectual disability. Thematic analysis was the method used to identify emergent themes.…

  18. Interface between Intellectual Disability and Mental Health: hermeneutic review

    PubMed Central

    Surjus, Luciana Togni de Lima e Silva; Campos, Rosana Teresa Onocko

    2014-01-01

    A literature review was conducted aiming to understand the interface between the Intellectual Disability and Mental Health fields and to contribute to mitigating the path of institutionalizing individuals with intellectual deficiencies. The so-called dual diagnosis phenomenon remains underestimated in Brazil but is the object of research and specific public policy internationally. This phenomenon alerts us to the prevalence of mental health problems in those with intellectual disabilities, limiting their social inclusion. The findings reinforce the importance of this theme and indicate possible diagnostic invisibility of the development of mental illness in those with intellectual disabilities in Brazil, which may contribute to sustaining psychiatric institutionalization of this population.  PMID:25119948

  19. Tele-assistance in intellectual disability.

    PubMed

    Buono, Serafino; Città, Santina

    2007-01-01

    We conducted a trial of multidisciplinary tele-assistance to support 20 families of patients with intellectual disability. Psychological, educational, social and medical support was provided by videoconferencing, email and on-line sharing of diagnostic and rehabilitation tools. The main topics dealt with were self-care, learning processes, adaptation skills, management of problem behaviours and health problems. A computer network was developed which connected workstations at the patients' houses and two main sites at the Oasi Institute. It was based on ISDN transmission. During the study, 840 videoconference sessions and 805 programme planning and case discussions took place. After one year of tele-assistance, most families (84%) stated that they were satisfied with the experience, underlining, among various advantages, the availability of professional and continuous support, the reduction of inconvenient travelling to specialized centres and the increase in adaptation skills of their children. Although the present study was empirical, our experience suggests that tele-assistance can satisfy some of the main needs of persons with intellectual disability and their families. PMID:17697511

  20. The Evaluation of a Screening Tool for Children with an Intellectual Disability: The Child and Adolescent Intellectual Disability Screening Questionnaire

    ERIC Educational Resources Information Center

    McKenzie, Karen; Paxton, Donna; Murray, George; Milanesi, Paula; Murray, Aja Louise

    2012-01-01

    The study outlines the evaluation of an intellectual disability screening tool, the "Child and Adolescent Intellectual Disability Screening Questionnaire" ("CAIDS-Q"), with two age groups. A number of aspects of the reliability and validity of the "CAIDS-Q" were assessed for these two groups, including inter-rater reliability, convergent and…

  1. Epilepsy in Children with Intellectual Disability in Bosnia and Herzegovina: Effects of Sex, Level and Etiology of Intellectual Disability

    ERIC Educational Resources Information Center

    Memisevic, Haris; Sinanovic, Osman

    2009-01-01

    The purpose of this study was to examine the occurrence of epilepsy in children with intellectual disability. An additional goal was to determine if there were statistical differences in the occurrence of epilepsy related to the sex, level and etiology of intellectual disability of children. The sample consisted of 167 children with intellectual…

  2. Parents Labelled with Intellectual Disability: Position of the IASSID SIRG on Parents and Parenting with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Journal of Applied Research in Intellectual Disabilities, 2008

    2008-01-01

    Background: On August 5th, 2006, the third meeting of the International Association for the Scientific Study of Intellectual Disabilities (IASSID) Special Interest Research Group (SIRG) on Parents and Parenting with Intellectual Disabilities was convened in Maastricht, The Netherlands, coinciding with the 2nd International Congress of…

  3. Factors Related to Impaired Visual Orienting Behavior in Children with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Boot, F. H.; Pel, J .J. M.; Evenhuis, H. M.; van der Steen, J.

    2012-01-01

    It is generally assumed that children with intellectual disabilities (ID) have an increased risk of impaired visual information processing due to brain damage or brain development disorder. So far little evidence has been presented to support this assumption. Abnormal visual orienting behavior is a sensitive tool to evaluate impaired visual…

  4. Connecting employers with people who have intellectual disability.

    PubMed

    Luecking, Richard G

    2011-08-01

    Longstanding advocacy for employment opportunity, recent legislative and policy developments, and advancements in employment service practice have contributed to an emerging notion of presumptive employability for individuals with disabilities. Unfortunately, low levels of employment remain the norm for people with disabilities, especially those with intellectual disability. Further, an examination of employer views of people with intellectual disability suggests that effective connections remain elusive between employers and employment service programs that support job seekers with intellectual disability. In this article employer perspectives are considered and case descriptions of effective connections of people with intellectual disability to employers are provided in order to meet demand-side operational needs. These perspectives have implications for elevating the effectiveness of employment service practice. PMID:21721979

  5. Screening for Offenders with an Intellectual Disability: The Validity of the Learning Disability Screening Questionnaire

    ERIC Educational Resources Information Center

    McKenzie, Karen; Michie, Amanda; Murray, Aja; Hales, Charlene

    2012-01-01

    The study assessed the validity of an intellectual disability screening tool, the Learning Disability Screening Questionnaire (LDSQ), in three forensic settings: a community intellectual disability forensic service; a forensic in-patient secure unit and a prison, using data for 94 individuals. A significant positive relationship was found between…

  6. Is There Really a Difference? Distinguishing Mild Intellectual Disability from "Similar" Disability Categories

    ERIC Educational Resources Information Center

    Bouck, Emily C.; Satsangi, Rajiv

    2015-01-01

    Students with mild intellectual disability generally garner less individual attention in research, as they are often aggregated with students with moderate and severe intellectual disability or students with other high incidence disabilities. This study used the National Longitudinal Transition Study-2 (NLTS2) to look at the personal…

  7. Multimorbidity in older adults with intellectual disabilities.

    PubMed

    Hermans, Heidi; Evenhuis, Heleen M

    2014-04-01

    Multimorbidity may be related to the supposed early aging of people with intellectual disabilities (ID). This group may suffer more often from multimorbidity, because of ID-related physical health conditions, unhealthy lifestyle and metabolic effects of antipsychotic drug use. Multimorbidity has been defined as two or more chronic conditions. Data on chronic conditions have been collected through physical assessment, questionnaires, and medical files. Prevalence, associated factors and clusters of multimorbidity have been studied in 1047 older adults (≥ 50 years) with ID. Multimorbidity was prevalent in 79.8% and associated with age and severe/profound ID. Four or more conditions were prevalent in 46.8% and associated with age, severe/profound ID and Down syndrome. Factor analyses did not reveal a model for disease-clusters with good fit. Multimorbidity is highly prevalent in older adults with ID. Multimorbidity should receive more attention in research and clinical practice for targeted pro-active prevention and treatment. PMID:24529858

  8. Aberrant epigenetic landscape in intellectual disability.

    PubMed

    Sanchez-Mut, J V; Huertas, D; Esteller, M

    2012-01-01

    In recent decades, epigenetics has emerged as a broad-ranging regulatory layer that modulates the whole genome and transcriptome. It largely determines the firing of transcription start sites, the splicing processes, and the binding of transcription factors, among many other processes. Its wide spectrum of action has provided us with the keys to new doors to investigate many diseases, including intellectual disability syndromes. The involvement of epigenetic factors in Rett syndrome is already well established, and its involvement in alpha-thalassemia/mental retardation-X-linked and Rubinstein-Taybi syndromes is also being elucidated. Down syndrome is not an exception, and the most recent reports suggest that epigenetic factors may play a crucial role in its etiology and also have the potential to provide new panels of biomarkers and tailored treatments. PMID:22541288

  9. Socioeconomic Status and Children with Intellectual Disability in China

    ERIC Educational Resources Information Center

    Zheng, X.; Chen, R.; Li, N.; Du, W.; Pei, L.; Zhang, J.; Ji, Y.; Song, X.; Tan, L.; Yang, R.

    2012-01-01

    Background: Intellectual disability (ID) accounts for 70% of all disabilities among children in China's Second National Sampling Survey on Disability. Although studies have shown a relationship between social class and ID in children, none have investigated the association of socioeconomic variables in Chinese children with mild or severe ID.…

  10. Intellectual Disability in the Context of a South African Population

    ERIC Educational Resources Information Center

    Kromberg, Jennifer; Zwane, Esther; Manga, Prashiela; Venter, Andre; Rosen, Eric; Christianson, Arnold

    2008-01-01

    Childhood disabilities, including intellectual disabilities (ID), are thought to occur in 5-17% of children in developing countries around the world. In order to identify and describe the childhood disabilities occurring in a rural South African population, as well as the context in which they occur, a study was carried out in the Bushbuckridge…

  11. Health Status and Health Risks of the "Hidden Majority" of Adults with Intellectual Disability

    ERIC Educational Resources Information Center

    Emerson, Eric

    2011-01-01

    Little is known about the health status of and health risks faced by adults with intellectual disability who do not use intellectual disability services. Self-report data collected from 1,022 people with mild intellectual disability in England indicated that people who do not use intellectual disability services are more likely to smoke tobacco…

  12. Social Support and Intellectual Disabilities: A Comparison between Social Networks of Adults with Intellectual Disability and Those with Physical Disability

    ERIC Educational Resources Information Center

    Lippold, T.; Burns, J.

    2009-01-01

    Background: Social support has been identified as a major protective factor in preventing mental health problems and also as a major contributor to quality of life. People with intellectual disabilities (ID) have been identified as having limited social support structures. Interventions have been focused on promoting their social presence and…

  13. Oppositional Defiant Disorder in Children with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Christensen, Lisa; Baker, Bruce L.; Blacher, Jan

    2013-01-01

    The study examines the epidemiology of oppositional defiant disorder (ODD) for children with intellectual disabilities (ID; n = 49), children with borderline intellectual functioning (BIF; n = 20), and typically developing children (TD; n = 115). The Diagnostic Interview Schedule for Children was administered to mothers at child ages 5, 6, 7, 8,…

  14. Advances in understanding – genetic basis of intellectual disability

    PubMed Central

    Chiurazzi, Pietro; Pirozzi, Filomena

    2016-01-01

    Intellectual disability is the most common developmental disorder characterized by a congenital limitation in intellectual functioning and adaptive behavior. It often co-occurs with other mental conditions like attention deficit/hyperactivity disorder and autism spectrum disorder, and can be part of a malformation syndrome that affects other organs. Considering the heterogeneity of its causes (environmental and genetic), its frequency worldwide varies greatly. This review focuses on known genes underlying (syndromic and non-syndromic) intellectual disability, it provides a succinct analysis of their Gene Ontology, and it suggests the use of transcriptional profiling for the prioritization of candidate genes. PMID:27127621

  15. Motor Performance of Children with Mild Intellectual Disability and Borderline Intellectual Functioning

    ERIC Educational Resources Information Center

    Vuijk, P. J.; Hartman, E.; Scherder, E.; Visscher, C.

    2010-01-01

    Background: There is a relatively small body of research on the motor performance of children with mild intellectual disabilities (MID) and borderline intellectual functioning (BIF). Adequate levels of motor skills may contribute to lifelong enjoyment of physical activity, participation in sports and healthy lifestyles. The present study compares…

  16. Pre-Trial Reported Defendants in the Netherlands with Intellectual Disability, Borderline and Normal Intellectual Functioning

    ERIC Educational Resources Information Center

    Vinkers, David J.

    2013-01-01

    Background: Intellectually disabled offenders may have different characteristics than offenders with average intellectual functioning. We therefore compared pre-trial reported defendants with an IQ score =70, 71-84 and =85 points. Methods: Nationwide database of pre-trial psychiatric reports requested by Dutch courts between 2000 and 2006 with a…

  17. 76 FR 29250 - President's Committee for People With Intellectual Disabilities; Notice of Meeting

    Federal Register 2010, 2011, 2012, 2013, 2014

    2011-05-20

    ... Intellectual Disabilities; Notice of Meeting AGENCY: President's Committee for People with Intellectual... Committee for People with Intellectual Disabilities, The Aerospace Center, Second Floor West, 370 L'Enfant... relating to programs, services and supports for persons with intellectual disabilities. The PCPID...

  18. Intellectual Disabilities and Child Psychiatry: Looking to the Future

    ERIC Educational Resources Information Center

    Hodapp, Robert M.; Dykens, Elisabeth M.

    2009-01-01

    We begin this article by examining the role of intellectual disabilities within child psychiatry, highlighting the relatively steady role of disabilities and the recent movement to examine behavior in specific genetic syndromes. We next propose five questions for future work. Questions relate to (1) specifying the nature of gene-brain-behavior…

  19. Effects of Helicobacter Pylori Eradication Among Adults with Intellectual Disability

    ERIC Educational Resources Information Center

    Wallace, R. A.; Schluter, P. J.; Webb, P. M.

    2004-01-01

    Compared to the general population, Helicobacter pylori infection is more common among adults with intellectual disability (ID) and is associated with greater levels of disability, maladaptive behaviour, and institutionalization. Little information exists about the effects of eradication therapy in this group, so we aimed to evaluate: (1) success…

  20. Comparative Policy Brief: Status of Intellectual Disabilities in Nepal

    ERIC Educational Resources Information Center

    Crishna, Brinda; Prajapati, Surya Bhakta

    2008-01-01

    In Nepal, the estimates of the prevalence of disabilities vary, and there is sparse information specifically about people with intellectual disabilities (ID). Existing data suggest higher rates of prevalence of ID in the more remote northern area due to use of non-iodized salt, lack of health facilities, and extreme poverty. Superstitious beliefs…

  1. Dental Care among Young Adults with Intellectual Disability

    ERIC Educational Resources Information Center

    Kancherla, Vijaya; Van Naarden Braun, Kim; Yeargin-Allsopp, Marshalyn

    2013-01-01

    Dental care among young adults with intellectual disability (ID) is poorly documented and largely unmet. By using population-based data from the Metropolitan Atlanta Developmental Disabilities Follow-Up Study, we assessed factors associated with at least one or two dental visits per year among young adults with and without ID. Significantly fewer…

  2. Assessment of Children with Intellectual Giftedness and Reading Disabilities

    ERIC Educational Resources Information Center

    Volker, Martin A.; Lopata, Christopher; Cook-Cottone, Catherine

    2006-01-01

    This article discusses the current issues involved in the evaluation of children who have both intellectual gifts and a specific learning disability (SLD) in reading. Given recent changes in federal special education law (i.e., the Individuals With Disabilities Education Improvement Act of 2004), the use of a unified assessment model that…

  3. Think College! Postsecondary Education Options for Students with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Grigal, Meg; Hart, Debra

    2010-01-01

    As the Higher Education Opportunity Act opens the door to more options and supports, more and more students with intellectual disabilities are "thinking college." That means high schools, colleges, and universities must be fully prepared to meet the needs of students with disabilities--and this comprehensive resource is just what they need.…

  4. Overweight and Obesity among Adults with Intellectual Disabilities Who Use Intellectual Disability/Developmental Disability Services in 20 U.S. States

    ERIC Educational Resources Information Center

    Stancliffe, Roger J.; Lakin, K. Charlie; Larson, Sheryl; Engler, Joshua; Bershadsky, Julie; Taub, Sarah; Fortune, Jon; Ticha, Renata

    2011-01-01

    The authors compare the prevalence of obesity for National Core Indicators (NCI) survey participants with intellectual disability and the general U.S. adult population. In general, adults with intellectual disability did not differ from the general population in prevalence of obesity. For obesity and overweight combined, prevalence was lower for…

  5. Changing teachers' negative attitudes toward persons with intellectual disabilities.

    PubMed

    Hassanein, Elsayed Elshabrawy Ahmed

    2015-05-01

    The current study aims at changing teachers' negative attitudes toward persons with intellectual disabilities. The intervention is based on the argument that providing information is not sufficient to achieve lasting change of attitudes toward people with disabilities, and that contact is required as an additional element to show positive results. A pretest-posttest intervention was conducted using three conditions: (a) cognitive intervention, (b) cognitive and behavioral intervention involving contact with the target group, and (c) no-intervention control. The participants comprised 18 teachers, with 6 teachers in each group. Following baseline assessments of attitudes, attitude change was measured immediately following the intervention and at a follow-up 12 weeks postintervention. The cognitive intervention provided information about intellectual disability and challenged stereotypic conceptions about persons with intellectual disabilities. The behavioral intervention involved being engaged in work with and training persons with intellectual disabilities in sheltered workshops. The results showed that the cognitive intervention alone did not result in significant changes in attitudes toward persons with intellectual disabilities. However, the combined cognitive-behavioral intervention resulted in greater attitude change than the no-intervention condition, both immediately postintervention and at a 12-week follow-up. The findings are discussed with regard to models of attitude change. The study concludes with some recommendations for teacher training programs to be attended to. PMID:25488181

  6. The place of people with intellectual disabilities in Bandung, Indonesia.

    PubMed

    Komardjaja, Inge

    2005-06-01

    This report is an attempt to 'make visible' people with intellectual disabilities in Bandung, Indonesia, who have been rendered invisible due the stigmatization of disabled bodies in Indonesian society. The Western concept of deinstitutionalization is not appropriate to the contemporary culture of Indonesia. Returning to the 'special schools' following completion of secondary education resolves some of the problems of social exclusion, while reinforcing other exclusionary aspects of Indonesian society. Institutionalization is seen as a privilege in the Indonesian context, as only the better off can afford the cost of placing people with intellectual disabilities in institutions. PMID:15629679

  7. Comparative Policy Brief: Status of Intellectual Disabilities in the Republic of Zambia

    ERIC Educational Resources Information Center

    Mung'omba, James

    2008-01-01

    In the Republic of Zambia, an estimated 256,000 persons have some form of disability, and of these, 5.4% have intellectual disabilities. Even now, traditional beliefs about the etiology of intellectual disabilities persist and considerable stigma is attached to the presence of persons with intellectual disabilities who are often excluded from…

  8. 77 FR 57091 - Administration on Intellectual and Developmental Disabilities (AIDD); Notice of Meeting

    Federal Register 2010, 2011, 2012, 2013, 2014

    2012-09-17

    ... Disabilities (AIDD); Notice of Meeting AGENCY: President's Committee for People with Intellectual Disabilities... Committee for People with Intellectual Disabilities, 200 Independence Avenue SW., Room 637D, Washington, DC... Services, through the Administration on Intellectual and Developmental Disabilities, on a broad range...

  9. 78 FR 12219 - Excepted Service-Appointment of Persons With Intellectual Disabilities, Severe Physical...

    Federal Register 2010, 2011, 2012, 2013, 2014

    2013-02-22

    ... RIN 3206-AM07 Excepted Service--Appointment of Persons With Intellectual Disabilities, Severe Physical... to the appointment of persons with intellectual disabilities, severe physical disabilities, and... retardation'' with ``intellectual disability.'' OPM received 12 sets of comments in response to the...

  10. Dysthymic disorder in adolescents with intellectual disability.

    PubMed

    Masi, G; Mucci, M; Favilla, L; Poli, P

    1999-04-01

    The present report examines the clinical features of dysthymic disorder in a sample of adolescents with mild intellectual disability (ID). Frequency of symptoms, comorbidity, agreement between reports of subjects and parents, comparison between the frequency of depressive symptoms in subjects with ID and in two different groups of normal IQ dysthymic subjects (aged 7-11, 11 and 12-18 years) are described. The sample consisted of 12 subjects (age range = 12-25.6 years; mean age = 16.3 years) screened from unselected consecutively referred patients with mild ID. All the subjects were comprehensively diagnosed with a structured diagnostic interview, the Kiddie-Schedule for Affective Disorder and Schizophrenia (K-SADS), according to DSM-IV criteria. A symptomatic profile in the group with ID showed that intrapsychic and cognitive symptoms, such as depressed mood, irritability, pathological guilt and low self-image, were frequently reported in people with ID. Parents were less aware of depressed mood, but they reported high rates of low self-esteem; the agreement between the depressive reports of ID subjects and their parents was higher than in previous findings in normal IQ children. The symptomatic profile of subjects with ID was more comparable to that of prepubertal dysthymic children than that of dysthymic adolescents, but more significant are the analogies between dysthymic disorder in ID and normal IQ subjects. High rates of comorbidity with generalized anxiety disorder were evident in the group with ID. According to the present data, dysthymic disorder can be diagnosed in adolescents with mild ID. The K-SADS clinical interview seems to be a reliable instrument for the diagnosis and clinical definition of depressive symptomatology in this special population. PMID:10221787

  11. Best Practices for Practitioners in Autism, Intellectual Disability, and Developmental Disabilities

    ERIC Educational Resources Information Center

    Zucker, Stanley H.; Perras, Cindy; Perner, Darlene E.; Murdick, Nikki

    2013-01-01

    On January 23-25, 2013, the Council for Exceptional Children Division on Autism and Developmental Disabilities (DADD) sponsored its Fourteenth International Conference: Research to Practice in Autism, Intellectual Disability and Developmental Disabilities. The conference was held at the Sheraton Kona Resort at Keauhou Bay, Hawaii. The DADD Board…

  12. Screening for offenders with an intellectual disability: the validity of the Learning Disability Screening Questionnaire.

    PubMed

    McKenzie, Karen; Michie, Amanda; Murray, Aja; Hales, Charlene

    2012-01-01

    The study assessed the validity of an intellectual disability screening tool, the Learning Disability Screening Questionnaire (LDSQ), in three forensic settings: a community intellectual disability forensic service; a forensic in-patient secure unit and a prison, using data for 94 individuals. A significant positive relationship was found between full scale IQ and LDSQ score, indicating convergent validity. Discriminative validity was indicated by, firstly, a significant difference in the LDSQ scores between those with and without an intellectual disability, with those with a diagnosis of intellectual disability, scoring significantly lower. Secondly, a ROC analysis indicated that the sensitivity and specificity of the LDSQ were both above 80%. The screening tool was found to have lower sensitivity in the forensic populations than was obtained in the original community standardisation sample, but had slightly higher specificity. Limitations and implications of the study are discussed. PMID:22245728

  13. Older women with intellectual disability and the meaning of aging.

    PubMed

    David, Niry; Duvdevani, Ilana; Doron, Israel

    2015-01-01

    Aging with intellectual disability has become an important topic in light of the significant increase in life expectancy of this population. More specifically, the combination of gender, age, and intellectual disability raises unique social issues. The aim of this research was to capture and analyze the aging experience of women with intellectual disability from their own voice and viewpoint within the Israeli experience. A phenomenological qualitative method was used in this study. In-depth interviews were conducted with 19 women with mild-to-moderate intellectual disability. Four key themes arose from the interviews: (a) the importance of work and reluctance to retire, (b) ageism and the fear of getting old, (c) the importance of a significant partner in old age, and (d) today's positive self-perception. A meaningful aging process can be constructed within the context of gender and disability. It was manifested in this study as a disability-neutral experience. However, ageism and negative attitudes toward old age still need to be addressed. PMID:25853785

  14. Old World--new territory: European perspectives on intellectual disability.

    PubMed

    Walsh, P N

    1997-04-01

    People with intellectual disability share the mixed fortunes of the diverse countries in that they live, as well as the social and political changes that mark life in Europe at the close of the twentieth century. The European Union exerts its influence through common policies and centrally funded initiatives which promote the social and vocational integration of people with intellectual disabilities. At the same time, many countries in Central and Eastern Europe are building a new and as-yet untested social order. This paper outlines the distinctive features of European identity. Some of the gains already achieved on behalf of Europeans with intellectual disability are presented, as well as some of the problems which continue to threaten their well-being and inclusion. It is suggested that partnerships between countries and regions can help to chart new territory for citizens of the Old World. PMID:9161922

  15. 76 FR 67746 - President's Committee for People With Intellectual Disabilities Meeting, Via Conference Call...

    Federal Register 2010, 2011, 2012, 2013, 2014

    2011-11-02

    ... Intellectual Disabilities Meeting, Via Conference Call, Cancellation AGENCY: President's Committee for People with Intellectual Disabilities (PCPID). ACTION: Notice of PCPID Conference Call Cancellation. DATES... CONTACT: Laverdia Taylor Roach, Senior Advisor, President's Committee for People with...

  16. The Role of Learning Disability Nurses in Promoting Cervical Screening Uptake in Women with Intellectual Disabilities: A Qualitative Study

    ERIC Educational Resources Information Center

    Lloyd, Jennifer L.; Coulson, Neil S.

    2014-01-01

    Research suggests that the uptake of cervical screening by women with intellectual disabilities (commonly known as learning disabilities within UK policy frameworks, practice areas and health services) is poor compared to women without intellectual disabilities. The present study explored learning disability nurses' experiences of supporting women…

  17. Health of Young Children Whose Mothers Have Intellectual Disability.

    PubMed

    Powell, Robyn M; Parish, Susan L; Akobirshoev, Ilhom

    2016-07-01

    Understanding the needs and experiences of parents with intellectual disability (ID) and their children is critical to ensuring that policies can effectively support these families. This research analyzed data from the Fragile Families and Child Wellbeing Study to examine the health outcomes of U.S. children whose mothers have (n = 263) and do not have ID (n = 1,298). Compared to mothers without ID, mothers with ID experienced worse outcomes related to socioeconomic status, limited support networks, and poor self-reported health. However, after controlling for sociodemographic characteristics, mother's intellectual disability was not associated with a child having fair or poor health, asthma, or being overweight or obese. PMID:27351697

  18. Locus of Control Orientations in Students with Intellectual Disability, Learning Disabilities, and No Disabilities: A Latent Growth Curve Analysis

    ERIC Educational Resources Information Center

    Shogren, Karrie A.; Bovaird, James A.; Palmer, Susan B.; Wehmeyer, Michael L.

    2010-01-01

    Previous research has suggested differences in the locus of control (LOC) orientations of students with intellectual disability, learning disabilities, and no disabilities, although this research has been characterized by methodological limitations. The purpose of this study was to examine the development of LOC orientations in students with…

  19. Moving Home: The Experiences of Women with Severe Intellectual Disabilities in Transition from a Locked Ward

    ERIC Educational Resources Information Center

    Owen, Katherine; Hubert, Jane; Hollins, Sheila

    2008-01-01

    Previous research into deinstitutionalization has largely ignored the perspective of people with intellectual disabilities, especially those with severe intellectual disabilities. This research aimed first to understand how women with severe intellectual disabilities experienced transition from a locked ward of an old long-stay hospital into other…

  20. Parental Bereavement and the Loss of a Child with Intellectual Disabilities: A Review of the Literature

    ERIC Educational Resources Information Center

    Reilly, Deirdre E.; Hastings, Richard P.; Vaughan, Frances L.; Huws, Jaci C.

    2008-01-01

    Inequalities in health care and other risk factors mean that children with intellectual disabilities are more likely to predecease their parents. Research on the effects on family members when a child with intellectual disability dies is sparse. In the present review, the authors describe 5 studies of bereavement in intellectual disability and…

  1. Predictors of Visual-Motor Integration in Children with Intellectual Disability

    ERIC Educational Resources Information Center

    Memisevic, Haris; Sinanovic, Osman

    2012-01-01

    The aim of this study was to assess the influence of sex, age, level and etiology of intellectual disability on visual-motor integration in children with intellectual disability. The sample consisted of 90 children with intellectual disability between 7 and 15 years of age. Visual-motor integration was measured using the Acadia test of…

  2. "Sometimes I Feel Overwhelmed": Educational Needs of Family Physicians Caring for People with Intellectual Disability

    ERIC Educational Resources Information Center

    Wilkinson, Joanne; Dreyfus, Deborah; Cerreto, Mary; Bokhour, Barbara

    2012-01-01

    Primary care physicians who care for adults with intellectual disability often lack experience with the population, and patients with intellectual disability express dissatisfaction with their care. Establishing a secure primary care relationship is particularly important for adults with intellectual disability, who experience health disparities…

  3. Randomized Control Trial of the 3Rs Health Knowledge Training Program for Persons with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Feldman, Maurice A.; Owen, Frances; Andrews, Amy E.; Tahir, Munazza; Barber, Rachel; Griffiths, Dorothy

    2016-01-01

    Background: Persons with intellectual disabilities (ID) experience a wide range of health problems. Research is needed on teaching persons with intellectual disabilities about their health to promote self-advocacy. This study used a RCT to evaluate a health knowledge training program for adults with intellectual disabilities and verbal skills.…

  4. Video Self-Modeling: A Job Skills Intervention with Individuals with Intellectual Disabilities in Employment Settings

    ERIC Educational Resources Information Center

    Goh, Ailsa E.

    2010-01-01

    A large majority of adults with intellectual disabilities are unemployed. Unemployment of adults with intellectual disabilities is a complex multidimensional issue. Some barriers to employment of individuals with intellectual disabilities are the lack of job experience and skills training. In recent years, video-based interventions, such as video…

  5. The Experience of Stress and Personal Growth among Grandparents of Children with and without Intellectual Disability

    ERIC Educational Resources Information Center

    Findler, Liora

    2014-01-01

    The aim of this research was to examine the contribution of internal and external resources to stress and personal growth among grandparents of children with and without an intellectual disability. Ninety-four grandparents of children with intellectual disability and 105 grandparents of children without intellectual disability completed the…

  6. Gender Differences in Psychiatric Diagnoses among Inpatients with and without Intellectual Disabilities

    ERIC Educational Resources Information Center

    Lunsky, Yona; Bradley, Elspeth A.; Gracey, Carolyn D.; Durbin, Janet; Koegl, Chris

    2009-01-01

    There are few published studies on the relationship between gender and psychiatric disorders in individuals with intellectual disabilities. Adults (N = 1,971) with and without intellectual disabilities who received inpatient services for psychiatric diagnosis and clinical issues were examined. Among individuals with intellectual disabilities,…

  7. Negotiating Autonomy within the Family: The Experiences of Young Adults with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Mill, Aviva; Mayes, Rachel; McConnell, David

    2010-01-01

    There is a small but expanding literature about the transition to adulthood for young people with intellectual disabilities. However, voices of young people with intellectual disabilities are under-represented. This study explored the perspectives of young people with intellectual disabilities on their transition to adulthood, focusing…

  8. Does the Daily Choice Making of Adults with Intellectual Disability Meet the Normalisation Principle?

    ERIC Educational Resources Information Center

    Smith, Rosanne Burton; Morgan, Michaela; Davidson, John

    2005-01-01

    Background: This study examined whether daily choice availability for adults with intellectual disability was consistent with Nirje's (1973) normalisation principle. Method: Ratings of the daily choice availability of 59 people with intellectual disability in group homes and 198 individuals without intellectual disability in family homes were…

  9. 78 FR 2997 - Administration on Intellectual and Developmental Disabilities (AIDD); Notice of Meeting via...

    Federal Register 2010, 2011, 2012, 2013, 2014

    2013-01-15

    ... Intellectual Disabilities (PCPID), HHS. ACTION: Notice of Meeting via Conference Call. DATES: Wednesday... Committee for People with Intellectual Disabilities, 200 Independence Avenue, SW., Room 637D, Washington, DC... Services, through the Administration on Intellectual and Developmental Disabilities, on a broad range...

  10. Processing of Facial Expressions of Emotions by Adults with Down Syndrome and Moderate Intellectual Disability

    ERIC Educational Resources Information Center

    Carvajal, Fernando; Fernandez-Alcaraz, Camino; Rueda, Maria; Sarrion, Louise

    2012-01-01

    The processing of facial expressions of emotions by 23 adults with Down syndrome and moderate intellectual disability was compared with that of adults with intellectual disability of other etiologies (24 matched in cognitive level and 26 with mild intellectual disability). Each participant performed 4 tasks of the Florida Affect Battery and an…

  11. Gatekeepers of Science: Attitudes toward the Research Participation of Adults with Intellectual Disability

    ERIC Educational Resources Information Center

    McDonald, Katherine E.; Keys, Christopher B.; Henry, David B.

    2008-01-01

    Researchers and Institutional Review Board (IRB) members' attitudes influence scientific knowledge about individuals with intellectual disability. We recruited 260 intellectual disability researchers and IRB members to develop a measure of attitudes toward the research participation of adults with intellectual disability, the Participation in…

  12. "I Never Thought about It": Teaching People with Intellectual Disability to Vote

    ERIC Educational Resources Information Center

    Agran, Martin; MacLean, William; Andren, Katherine Anne Kitchen

    2015-01-01

    Despite an increasing commitment in promoting the full inclusion of people with intellectual disability in their communities, it appears that few adults with intellectual disability participate in elections as registered voters. We surveyed a variety of stakeholders about voting by people with intellectual disability using quantitative and…

  13. "You Have to Care." Perceptions of Promoting Autonomy in Support Settings for Adults with Intellectual Disability

    ERIC Educational Resources Information Center

    Petner-Arrey, Jami; Copeland, Susan R.

    2015-01-01

    This study from the south-western United States investigated the perceptions of persons with intellectual disability receiving support and of persons providing support regarding the autonomy of people with intellectual disability. The participants included 10 people with intellectual disability and 10 support workers. Through interviews, this…

  14. Transition and Students with Mild Intellectual Disability: Findings From the National Longitudinal Transition Study-2

    ERIC Educational Resources Information Center

    Bouck, Emily C.; Joshi, Gauri S.

    2016-01-01

    Students with intellectual disability historically struggle with post-school outcomes. However, much of the research on students with intellectual disability relative to post-school outcomes and transition services is aggregated for students with mild, moderate, and severe intellectual disability. This secondary analysis of the National…

  15. Preliminary Findings of Serum Creatinine and Estimated Glomerular Filtration Rate (eGFR) in Adolescents with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Lin, Jin-Ding; Lin, Lan-Ping; Hsieh, Molly; Lin, Pei-Ying

    2010-01-01

    The present study aimed to describe the kidney function profile--serum creatinine and estimated glomerular filtration rate (eGFR), and to examine the relationships of predisposing factors to abnormal serum creatinine in people with intellectual disabilities (ID). Data were collected by a cross-sectional study of 827 aged 15-18 years adolescents…

  16. Understanding Quality of Working Life of Workers with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Flores, Noelia; Jenaro, Cristina; Orgaz, M. Begona; Martin, M. Victoria

    2011-01-01

    Background: This paper examines the perceived quality of working life of workers with intellectual disabilities. Specifically, this paper looks at participants' perceptions in relation to perceived job demands and resources and their impact on experienced job satisfaction. Methods: In this cross-sectional survey, 507 workers with intellectual…

  17. Psychopathology in Adults with Autism and Intellectual Disability

    ERIC Educational Resources Information Center

    Tsakanikos, Elias; Costello, Helen; Holt, Geraldine; Bouras, Nick; Sturmey, Peter; Newton, Tim

    2006-01-01

    There have been few studies of psychopathology in adults with autism. This study examined psychiatric co-morbidity in 147 adults with intellectual disability (ID) and autism and 605 adults with ID but without autism. After controlling for the effects of gender, age, psychotropic medication and level of ID, people with autism and ID were no more…

  18. Enabling Integration in Sports for Adolescents with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Grandisson, Marie; Tetreault, Sylvie; Freeman, Andrew R.

    2012-01-01

    Background: Promoting the health and social participation of adolescents with intellectual disability is important as they are particularly vulnerable to encountering difficulties in those areas. Integration of these individuals in integrated sports is one strategy to address this issue. Methods: The main objective of this study was to gain a…

  19. Intravenous Sedation for Dental Patients with Intellectual Disability

    ERIC Educational Resources Information Center

    Miyawaki, T.; Kohjitani, A.; Maeda, S.; Egusa, M.; Mori, T.; Higuchi, H.; Kita, F.; Shimada, M.

    2004-01-01

    The poor quality of oral health care for people with intellectual disability (ID) has been recognized, and the strong fears about dental treatment suggested as a major reason for disturbances of visits to dentists by such patients. Intravenous sedation is a useful method for relieving the anxiety and fear of such patients about dental treatment,…

  20. Prevalence of Chronic Diseases in Adolescents with Intellectual Disability

    ERIC Educational Resources Information Center

    Oeseburg, B.; Jansen, D. E. M. C.; Dijkstra, G. J.; Groothoff, J. W.; Reijneveld, S. A.

    2010-01-01

    Valid community-based data on the prevalence of chronic diseases in adolescents (12-18 years) with intellectual disability (ID-adolescents) are scarce. The aim of this study was to assess the prevalence rates and the nature of chronic diseases in a population of ID-adolescents and to compare them with the rates among adolescents in the general…

  1. Risk Factors for Psychiatric Disturbance in Children with Intellectual Disability

    ERIC Educational Resources Information Center

    Koskentausta, T.; Iivanainen, M.; Almqvist, F.

    2007-01-01

    Background: Children with intellectual disability (ID) have a higher risk for psychiatric disturbance than their peers with normal intelligence, but research data on risk factors are insufficient and partially conflicting. Method: The subjects comprised 75 children with ID aged 6-13 years. Data were obtained from case files and the following four…

  2. Scaling Methods to Measure Psychopathology in Persons with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Matson, Johnny L.; Belva, Brian C.; Hattier, Megan A.; Matson, Michael L.

    2012-01-01

    Psychopathology prior to the last four decades was generally viewed as a set of problems and disorders that did not occur in persons with intellectual disabilities (ID). That notion now seems very antiquated. In no small part, a revolutionary development of scales worldwide has occurred for the assessment of emotional problems in persons with ID.…

  3. Psychopathology in Children with Intellectual Disability: Risk Markers and Correlates

    ERIC Educational Resources Information Center

    Witwer, Andrea N.; Lecavalier, Luc

    2008-01-01

    The purpose of this literature review was to summarize studies examining risk factors, markers, and correlates of psychopathology in youngsters with intellectual disability. A total of 26 studies met inclusion criteria and were reviewed. Due to the limitations of research methods (i.e., not establishing precedence), no risk factors were…

  4. Women with Intellectual Disabilities Talk about Their Perceptions of Sex

    ERIC Educational Resources Information Center

    Bernert, D. J.; Ogletree, R. J.

    2013-01-01

    Background: Sexuality is learned through sexual socialisation that women with intellectual disabilities (IDs) understand and express. Rules of sexual engagement for these women can include barriers for their socialisation, intimate partner selection, and sexual expression. These rules can become more limiting when coupled with rules of femininity…

  5. Treatment of Adolescent Sex Offenders with Intellectual Disabilities.

    ERIC Educational Resources Information Center

    Lindsay, William R.; Olley, Susan; Baillie, Nicola; Smith, Anne H. W.

    1999-01-01

    This article presents four case studies of male adolescent sex offenders with intellectual disabilities. All were successfully treated in a group program that focused on specific techniques for cognitive change for thinking errors related to sex offending, problem-solving in offending situations, and analysis of behavior and routines consistent…

  6. Public Attitudes towards Intellectual Disability: A Multidimensional Perspective

    ERIC Educational Resources Information Center

    Morin, D.; Rivard, M.; Crocker, A. G.; Boursier, C. P.; Caron, J.

    2013-01-01

    Background: Public attitudes towards persons with intellectual disabilities (IDs) have a significant effect on potential community integration. A better understanding of these can help target service provision and public awareness programmes. Objectives: The objective of the present study is threefold: (1) describe public attitudes towards persons…

  7. Arithmetic Operations and Attention in Children with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Djuric-Zdravkovic, Aleksandra; Japundza-Milisavljevic, Mirjana; Macesic-Petrovic, Dragana

    2011-01-01

    This paper is aimed at depicting the quality of functions of some of the aspects of attention in children with mild intellectual disabilities and their influence on the mastering of arithmetic operations, including addition and subtraction. The sample used in this study encompasses 60 pupils, both males and females. The criteria used in the…

  8. Reactive Attachment Disorder Symptoms in Adults with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Minnis, Helen; Fleming, Gail; Cooper, Sally-Ann

    2010-01-01

    Background: Studies with children suggest that reactive attachment disorder (RAD) is associated with pathogenic early care. Little is known about RAD in adults with intellectual disabilities, many of whom experience adversity and abuse in early life. We investigated whether RAD symptoms occur in this population, and explored whether hypothesized…

  9. Perceived Credibility and Eyewitness Testimony of Children with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Henry, L.; Ridley, A.; Perry, J.; Crane, L.

    2011-01-01

    Background: Although children with intellectual disabilities (ID) often provide accurate witness testimony, jurors tend to perceive their witness statements to be inherently unreliable. Method: The current study explored the free recall transcripts of child witnesses with ID who had watched a video clip, relative to those of typically developing…

  10. Aspects of Cognitive Functioning in Adults with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Perkins, Elizabeth A.; Small, Brent J.

    2006-01-01

    Recently, more attention is being given to identifying aging-related and dementia-related pathological changes in performance and cognition among persons with intellectual disabilities (ID). This literature review examines age-related differences in specific aspects of cognitive functioning and cognitive performance of people with ID and…

  11. Children and Youth with Intellectual Disabilities: Targets for Sexual Abuse.

    ERIC Educational Resources Information Center

    Goldman, Renitta L.

    1994-01-01

    This paper examines the characteristics and behaviors which may exacerbate the vulnerability of children with an intellectual disability toward sexually abusive relationships. It focuses on incidence, characteristics of offenders, characteristics of children, consequences of sexual abuse, and challenges for intervention and prevention. (JDD)

  12. Sexual Offending Theories and Offenders with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Keeling, Jenny A.; Rose, John L.; Beech, Anthony R.

    2009-01-01

    Background: There have been limited theoretical developments with respect to sexual offending by people with intellectual disabilities [Lindsay (2005) Mental Retardation, Vol. 43, pp. 428-441], especially when compared with the development of theories for mainstream sexual offenders. This paper aims at examining a range of theories in their…

  13. Numerical Magnitude Processing in Children with Mild Intellectual Disabilities

    ERIC Educational Resources Information Center

    Brankaer, Carmen; Ghesquiere, Pol; De Smedt, Bert

    2011-01-01

    The present study investigated numerical magnitude processing in children with mild intellectual disabilities (MID) and examined whether these children have difficulties in the ability to represent numerical magnitudes and/or difficulties in the ability to access numerical magnitudes from formal symbols. We compared the performance of 26 children…

  14. Persons with Intellectual and Multiple Disabilities in Japan

    ERIC Educational Resources Information Center

    Suemitsu, Shigeru

    2009-01-01

    The author outlines the history, current situation, and the future of the care and support system for people with intellectual and multiple disabilities in Japan. He describes how the service system has been shaped from within by Japanese legislation dating back to the Child Welfare Act of 1947, and how international events such as the…

  15. Short-Term Memory Coding in Children with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Henry, Lucy

    2008-01-01

    To examine visual and verbal coding strategies, I asked children with intellectual disabilities and peers matched for MA and CA to perform picture memory span tasks with phonologically similar, visually similar, long, or nonsimilar named items. The CA group showed effects consistent with advanced verbal memory coding (phonological similarity and…

  16. Reassurance Seeking and Depression in Adults with Mild Intellectual Disability

    ERIC Educational Resources Information Center

    Hartley, S. L.; Lickel, A. Hayes; MacLean, W. E., Jr.

    2008-01-01

    Background: Adults with intellectual disability (ID) experience a high prevalence of depression. Yet, little research has investigated interpersonal processes related to depression in this population. In the general population, depressed persons behave in ways that elicit negative and rejecting reactions from others. In particular, excessive…

  17. Including People with Intellectual Disabilities in Qualitative Research

    ERIC Educational Resources Information Center

    Hall, Sarah A.

    2013-01-01

    The voice of people with intellectual disabilities (ID) is needed in the literature to best understand their unique experiences and perspectives. Researchers face challenges in conducting interviews with people with ID who are limited in conceptual and verbal language skills. It can also be difficult to obtain participants with ID because of…

  18. Thriving in Youth with Autism Spectrum Disorder and Intellectual Disability

    ERIC Educational Resources Information Center

    Weiss, Jonathan A.; Burnham Riosa, Priscilla

    2015-01-01

    Most research on mental health in individuals with autism spectrum disorder (ASD) and intellectual disability (ID) has focused on deficits. We examined individual (i.e., sociocommunicative skills, adaptive behavior, functional cognitive skills) and contextual (i.e., home, school, and community participation) correlates of thriving in 330 youth…

  19. Consumption of Mental Health Services by People with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Spiller, Mary Jane; Costello, Helen; Bramley, Agnieszka; Bouras, Nick; Martin, Graham; Tsakanikos, Elias; Holt, Geraldine

    2007-01-01

    Background: Although research is starting to identify those factors that predict contact with mental health services in individuals with intellectual disabilities, very little is known about the patterns of service use following referral. Yet, this information is vital for effective service planning and development. We therefore examined the…

  20. Early-Onset Psychosis in Youth with Intellectual Disability

    ERIC Educational Resources Information Center

    Friedlander, R. I.; Donnelly, T.

    2004-01-01

    Accurate diagnosis of psychotic disorders may be very difficult in youth with intellectual disabilities. The authors reviewed the assessment, treatment and follow-up of 21 youths with ID referred because of early onset of psychotic symptoms. Just over one half of the patients had a diagnosis of schizophrenia or schizo-affective disorder. One third…

  1. Residential Transitions among Adults with Intellectual Disability across 20 Years

    ERIC Educational Resources Information Center

    Woodman, Ashley C.; Mailick, Marsha R.; Anderson, Kristy A.; Esbensen, Anna J.

    2014-01-01

    The present study addresses critical gaps in the literature by examining residential transitions among 303 adults with intellectual disability (ID) over 10 years (Part 1) and 75 adults with Down syndrome over 20 years (Part 2). All adults lived at home at the start of the study, but many moved to a variety of settings. Several characteristics of…

  2. Conceptions of Work in Italian Adults with Intellectual Disability

    ERIC Educational Resources Information Center

    Ferrari, Lea; Nota, Laura; Soresi, Salvatore

    2008-01-01

    People's ideas about work can greatly affect the ways in which they characterize their own work experience and their lives. The first aim of the present study was to analyze the concept of work in individuals with mild or moderate intellectual disability working in competitive or sheltered work settings and, second, to compare the notions of work…

  3. Behaviour Problems in Children with Genetic Disorders Causing Intellectual Disability

    ERIC Educational Resources Information Center

    Einfeld, Stewart L.

    2005-01-01

    This paper reviews several genetic syndromes that are associated with intellectual disability. The specific focus is on the behavioural patterns associated with the syndrome. Included in this review are the patterns of disruptive behaviour disorders associated with Fragile X, Prader-Willi, and Williams syndromes. Understanding and recognition of…

  4. Is Test Anxiety a Peril for Students with Intellectual Disabilities?

    ERIC Educational Resources Information Center

    Datta, Poulomee

    2013-01-01

    Test anxiety is one of the most confronting issues in modern times with the increase in the number of standardised and high-stakes testing. Research has established that there is a direct link between test anxiety and cognitive deficits. The aim of this study is to determine the test anxiety scores of the students with intellectual disabilities in…

  5. Teachers' Attitudes toward the Integration of Pupils with Intellectual Disabilities.

    ERIC Educational Resources Information Center

    Kis-Glavas, Lelia; And Others

    This study examined the attitudes of 194 teachers in 17 regular primary schools in the city of Zagreb (Croatia) and the surrounding area about the integration of children with intellectual or other developmental disabilities. In addition to providing demographic data, the teachers completed a 21-item questionnaire with questions that addressed:…

  6. Cancer Screening in Women with Intellectual Disabilities: An Irish perspective

    ERIC Educational Resources Information Center

    Reidy, Mary; Denieffe, Suzanne; Foran, Sinéad

    2014-01-01

    In the Republic of Ireland, more than 8000 women with intellectual disabilities (IDs), aged 20 years and over, are registered for service provision. Their health needs challenge preventative health services including breast and cervical cancer screening programmes. This review explores the literature about cancer screening participation rates and…

  7. Repeated Interviews with Children Who Have Intellectual Disabilities

    ERIC Educational Resources Information Center

    Cederborg, A.-C.; La Rooy, D.; Lamb, M. E.

    2008-01-01

    Background: We predicted that repeated interviewing would improve the informativeness of children with intellectual disabilities who were questioned in criminal investigations. Materials: The chronological ages of the 19 children, involved in 20 cases, ranged between 4.7 and 18 years (M = 10.3 years) at the time of the first alleged abuse. Method:…

  8. Healthy Persons with Intellectual Disabilities in an Inclusive Society

    ERIC Educational Resources Information Center

    van Schrojenstein Lantman-de Valk, H. M. J.

    2009-01-01

    Persons with intellectual disabilities (ID) have twice as many health problems than the general public. The author discusses evidence-based research on prevalence and best treatment of primary and secondary health problems in persons with ID. Citing the pan-European Pomona project, European data were collected on training for health professionals…

  9. Risk of Fall for Individuals with Intellectual Disability

    ERIC Educational Resources Information Center

    Chiba, Yoichi; Shimada, Atsuyoshi; Yoshida, Futoshi; Keino, Hiromi; Hasegawa, Mariko; Ikari, Hiroyuki; Miyake, Shikako; Hosokawa, Masanori

    2009-01-01

    Our aim was to identify risk factors for falling and establish a method to assess risk for falls in adults with intellectual disabilities. In a cross-sectional survey of 144 Japanese adults, we found that age, presence of epilepsy, and presence of paretic conditions were independent risk factors. The Tinetti balance and gait instrument was…

  10. Lifestyle and Health Behaviours of Adults with an Intellectual Disability

    ERIC Educational Resources Information Center

    McGuire, B. E.; Daly, P.; Smyth, F.

    2007-01-01

    Background: There is currently no published research in Ireland on the health behaviours of adults with an intellectual disability (ID). With an increasing age profile and similar patterns of morbidity to the general population, the ID population would benefit from baseline data from which to establish risk factors. Methods: A questionnaire survey…

  11. Psychosocial Treatment Malls for People with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Thorn, Shannon H.; Bamburg, Jay W.; Pittman, Amanda

    2007-01-01

    The provision of active treatment for people with intellectual disabilities has been seminal in the literature and in practice for a number of years. Active treatment has programmatic, financial, and legal ramifications for agencies and should be at the center of all appropriate treatment plans. The current work examines the use of psychosocial…

  12. Validation of the Attitudes toward Intellectual Disability--ATTID Questionnaire

    ERIC Educational Resources Information Center

    Morin, D.; Crocker, A. G.; Beaulieu-Bergeron, R.; Caron, J.

    2013-01-01

    Background: Individuals with an intellectual disability (ID) continue to experience major obstacles towards social, educational and vocational integration. Negative attitudes toward persons with ID has remained relevant over time and has led to discrimination and stigma. Objective: The present study describes the development of a new questionnaire…

  13. Life Online: Resources for Students with an Intellectual Disability.

    ERIC Educational Resources Information Center

    Weeks, Kerri

    2001-01-01

    Two Australian agencies planned, developed, piloted, and evaluated an online resource for teaching independent living skills to adult students with a mild intellectual disability using technology and the Internet. The resource, called Life Online, is a package of support resource materials tested in regional classrooms in Victoria, Australia.…

  14. The Use of Contraception by Women with Intellectual Disabilities

    ERIC Educational Resources Information Center

    van Schrojenstein Lantman-de Valk, H. M. J.; Rook, F.; Maaskant, M. A.

    2011-01-01

    Background: Worldwide, contraception is frequently used by women for the prevention of conception, to regulate or postpone menstrual bleeding. The study aims to determine the use (number and method) of contraception by women with intellectual disabilities (ID), the indications, sources of referrals and relations with level of ID and age of the…

  15. The Use of Clozapine in Adults with Intellectual Disability

    ERIC Educational Resources Information Center

    Thalayasingam, S.; Alexander, R. T.; Singh, I.

    2004-01-01

    There are not many studies on the use of clozapine in patients with intellectual disability (ID). The authors describe a case series of patients treated with clozapine, drawn from a medium secure unit, a low secure assessment and treatment service and a community team in the London region. A retrospective file-review of patients treated in these…

  16. Teaching Area and Volume to Students with Mild Intellectual Disability

    ERIC Educational Resources Information Center

    Hord, Casey; Xin, Yan Ping

    2015-01-01

    In the current educational climate, teachers are required to find methods to give all students, including students with mild intellectual disability, access to the general education curriculum. The purpose of this study was to investigate the combined effects of the concrete-semiconcrete-abstract instructional sequence and model-based problem…

  17. Intellectual Disability Modifies Gender Effects on Disruptive Behaviors

    ERIC Educational Resources Information Center

    Einfeld, Stewart L.; Gray, Kylie M.; Ellis, Louise A.; Taffe, John; Emerson, Eric; Tonge, Bruce J.; Horstead, Sian K.

    2010-01-01

    In typically developing children, boys are more commonly diagnosed than girls with disruptive behavior disorders, namely, attention-deficit/hyperactivity disorder, conduct disorder, and oppositional defiant disorder. For children with intellectual disability (ID), the evidence for this gender effect is less clear. In this report we examine gender…

  18. Women with Intellectual Disability Who Have Offended: Characteristics and Outcome

    ERIC Educational Resources Information Center

    Lindsay, W. R.; Smith, A. H. W.; Quinn, K.; Anderson, A.; Smith, A.; Allan, R.; Law, J.

    2004-01-01

    There have been a few reports describing the characteristics and outcomes of male offenders with intellectual disability (ID). Therefore, while we are building up a reasonable picture of this client group, there are almost no reports of female offenders with ID. This paper is a preliminary attempt to present information on a small cohort of female…

  19. Late Diagnosis in Severe and Mild Intellectual Disability in Adulthood

    ERIC Educational Resources Information Center

    Verri, A. P.; Maraschio, P.; Uggetti, C.; Pucci, E.; Ronchi, G.; Nespoli, L.; Destefani, V.; Ramponi, A.; Federico, A.

    2004-01-01

    The diagnosis of intellectual disability (ID) is highly dependent on a comprehensive personal and family medical history, a complete physical examination and a careful developmental assessment of the patient. Our study intended to: (1) classify the aetiology of mild and severe ID in an adult population of 140 Italian subjects; (2) evaluate the…

  20. Recruitment to Intellectual Disability Research: A Qualitative Study

    ERIC Educational Resources Information Center

    Nicholson, L.; Colyer, M.; Cooper, S. -A.

    2013-01-01

    Background: Difficulties in the recruitment of adults with intellectual disability (ID) to research studies are well described but little studied. The aim of this study was to investigate the difficulties in recruiting to a specific research project, in order to inform future recruitment to ID research. Methods: Individual semi-structured…

  1. Modifying the "Positive Parenting Program" for Parents with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Glazemakers, I.; Deboutte, D.

    2013-01-01

    Background: Many parents with intellectual disabilities (ID) want and/or need professional guidance and support to learn skills and strategies to prevent and manage child behaviour problems. However, the available support is rarely suitable, and suitable support is rarely available. The aim of this study was to determine whether a popular…

  2. Sexual Health Care in Persons with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Servais, Laurent

    2006-01-01

    In the past, preventive health concerning sexuality of people with intellectual disabilities was addressed through surgical sterilization as part of nationwide eugenic programs in many countries. For more than 30 years now, it has come progressively to light in the scientific literature that, besides major ethical and legal problems, these…

  3. Definition of Intellectual Disability in Criminal Court Cases

    ERIC Educational Resources Information Center

    Olley, J. Gregory

    2013-01-01

    Definitions and associated descriptions of the condition now commonly known as "intellectual disability" serve many functions. The "Atkins v. Virginia" U.S. Supreme Court decision (2002) has called attention to the importance of clear, objective, and measureable wording of the definition. This article discusses the potential for misunderstanding…

  4. Evidence-Based Practices for Learners with Severe Intellectual Disability

    ERIC Educational Resources Information Center

    Courtade, Ginevra R.; Test, David W.; Cook, Bryan G.

    2014-01-01

    Because of their highly intensive and variable learning needs, learners with severe intellectual disability present significant challenges to special educators and other stakeholders in terms of selecting and implementing effective instructional practices. Although scholars have made considerable progress in conducting and synthesizing research…

  5. Supporting Parents of Youths with Intellectual Disabilities and Psychopathology

    ERIC Educational Resources Information Center

    Douma, J. C. H.; Dekker, M. C.; Koot, H. M.

    2006-01-01

    Background: Parents of children and adolescents with both intellectual disabilities (ID) and psychopathology often experience high levels of parenting stress. To support these parents, information is required regarding the types of support they need and whether their needs are met. Method: In a sample of 745 youths (aged 10-24 years) with moderate…

  6. Assessing the Prevalence of Intellectual Disability among Young Male Prisoners

    ERIC Educational Resources Information Center

    Herrington, V.

    2009-01-01

    Background: In recent years, academic debate has (re)focused on the extent of the co-occurrence of intellectual disability (ID) and criminality, although findings from prevalence studies examining this link have been inconsistent. In April 2004, a process for transferring responsibility for commissioning healthcare services in UK prisons to…

  7. Caregiving and Adults with Intellectual Disabilities Affected by Dementia

    ERIC Educational Resources Information Center

    Courtenay, Ken; Jokinen, Nancy S.; Strydom, Andre

    2010-01-01

    Authors conducted a systematic review of the available Dutch, English, and German language literature for the period 1997-2008 on the current knowledge on social-psychological and pharmacological caregiving with respect to older adults with intellectual disabilities (ID) affected by dementia. Authors note that caregiving occurs on a personal level…

  8. Incidence of Dementia in Older Adults with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Strydom, Andre; Chan, Trevor; King, Michael; Hassiotis, Angela; Livingston, Gill

    2013-01-01

    Dementia may be more common in older adults with intellectual disability (ID) than in the general population. The increased risk for Alzheimer's disease in people with Down syndrome (DS) is well established, but much less is known about dementia in adults with ID who do not have DS. We estimated incidence rates from a longitudinal study of…

  9. The Life Expectancy of People with Intellectual Disabilities in Germany

    ERIC Educational Resources Information Center

    Dieckmann, Friedrich; Giovis, Christos; Offergeld, Jana

    2015-01-01

    Background: This study presents age group-specific mortality rates and the average life expectancy of people with intellectual disabilities in Germany. Method: For two samples from Westphalia-Lippe and Baden-Wuerttemberg, person-related data for the years 2007-2009 were analysed. Age group-specific mortality rates were estimated by exponential…

  10. Prenatal and Perinatal Factors Associated with Intellectual Disability

    ERIC Educational Resources Information Center

    Bilder, Deborah A.; Pinborough-Zimmerman, Judith; Bakian, Amanda V.; Miller, Judith S.; Dorius, Josette T.; Nangle, Barry; McMahon, William M.

    2013-01-01

    Prenatal and perinatal risk factors associated with intellectual disability (ID) were studied in 8-year-old Utah children from a 1994 birth cohort (N = 26,108) using broad ascertainment methods and birth records following the most current recording guidelines. Risk factor analyses were performed inclusive and exclusive of children with a known or…

  11. The Impact of Simulated Interviews for Individuals with Intellectual Disability

    ERIC Educational Resources Information Center

    Walker, Zachary; Vasquez, Eleazar; Wienke, Wilfred

    2016-01-01

    The purpose of this research study was to explore the efficacy of role-playing and coaching in mixed-reality environments for the acquisition and generalization of social skills leading to successful job interview performance. Using a multiple baseline across participants design, five young adults with intellectual disability practiced…

  12. Students with Intellectual Disabilities Going to College? Absolutely!

    ERIC Educational Resources Information Center

    Kleinert, Harold L.; Jones, Melissa M.; Sheppard-Jones, Kathleen; Harp, Beverly; Harrison, Elizabeth M.

    2012-01-01

    In this article we describe the new opportunities for postsecondary education available to students with intellectual disabilities (ID) through the Higher Education Opportunities Act of 2008. We also identify the importance of these opportunities for students with ID, and key strategies for ensuring that their college experience is an important…

  13. Comparative Policy Brief: Status of Intellectual Disabilities in Jamaica

    ERIC Educational Resources Information Center

    Thorburn, Marigold J.

    2008-01-01

    A population-based prevalence study in one region of Jamaica in 1987-1989 indicated that about 8% of the childhood population had cognitive (intellectual) disability. Some harmful beliefs and practices persist about child rearing, violence towards women, and child abuse of all types. A lack of knowledge is apparent about the efficacy of home-based…

  14. The Prevalence and Nature of Intellectual Disability in Norwegian Prisons

    ERIC Educational Resources Information Center

    Sondenaa, E.; Rasmussen, K.; Palmstierna, T.; Nottestad, J.

    2008-01-01

    Background: The objective of the study was to calculate the prevalence of inmates with intellectual disabilities (ID), and identify historical, medical and criminological characteristics of a certain impact. Methods: A random sample of 143 inmates from a Norwegian prison cross sectional sample was studied. The Hayes Ability Screening Index (HASI)…

  15. Working Memory and Educational Achievement in Children with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Henry, L.; Winfield, J.

    2010-01-01

    Background: There is little previous research examining whether measures of working memory are related to educational achievement in children with intellectual disabilities (ID). Methods: A battery of working memory and achievement measures was administered to 11- to 12-year-old children with ID; younger typically developing children of comparable…

  16. Critical Health Literacy Health Promotion and People with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Chinn, Deborah

    2014-01-01

    Health literacy research and scholarship has largely overlooked the experiences of people with intellectual disabilities (ID), though growing concern about the health inequalities they face has increasingly given rise to health promotion interventions for this group. However, these interventions reference a rather limited vision of health literacy…

  17. Occurrence of Medical Concerns in Psychiatric Outpatients with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Azimi, Kousha; Modi, Miti; Hurlbut, Janice; Lunsky, Yona

    2016-01-01

    Despite the fact that adults with both intellectual disabilities (ID) and psychiatric disorders are at increased risk for physical health problems, few studies have described their medical concerns specifically. This study reports on the rates of physical health issues and completion of recommended health screenings among 78 adult outpatients with…

  18. Historical Reflection on Advocacy in the Psychology of Intellectual Disability

    ERIC Educational Resources Information Center

    Routh, Donald K.

    2005-01-01

    Advocacy by psychologists has often been portrayed as requiring immersion in the processes of public policy. In the area of intellectual disability, many relevant laws have been passed, court cases fought, and administrative decisions made. These policy decisions have, however, sometimes been based on a division of labor, with psychologists doing…

  19. Verbal Working Memory in Children with Mild Intellectual Disabilities

    ERIC Educational Resources Information Center

    Van der Molen, M. J.; Van Luit, J. E. H.; Jongmans, M. J.; Van der Molen, M. W.

    2007-01-01

    Background: Previous research into working memory of individuals with intellectual disabilities (ID) has established clear deficits. The current study examined working memory in children with mild ID (IQ 55-85) within the framework of the Baddeley model, fractionating working memory into a central executive and two slave systems, the phonological…

  20. Hypertension, Hyperglycemia, and Hyperlipemia among Adolescents with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Lin, Pei-Ying; Lin, Lan-Ping; Lin, Jin-Ding

    2010-01-01

    The present paper aims to assess the hypertension, hyperglycemia and hyperlipidemia prevalence of adolescents with intellectual disabilities, and to recognize the health disparities between the study participants and the general population. This study conducted a cross-sectional medical chart analysis of 856 students who participated in school…

  1. What Is Intellectual Disability? How Is It Assessed and Classified?

    ERIC Educational Resources Information Center

    Parmenter, Trevor R.

    2011-01-01

    People with an intellectual disability have existed across human history, making up a part of all cultures. They represent a small part of the extremely wide variety of people in the human population at any one time. This review essay examines the 11th and latest Definition and Classification Manual published by the American Association on…

  2. Dr. Tulp, I Presume: Intellectual Disability and Ethnicity in Rotherham

    ERIC Educational Resources Information Center

    McClimens, Alex; Lewis, Robin; Brewster, Jacqui

    2013-01-01

    In this article, we report on that aspect of our ongoing simulation project which focuses on the cultural needs of a "virtual" young man living with profound and multiple intellectual disabilities, who is British Asian and receives care in a residential setting. We describe our involvement with a local agency who supports families from…

  3. Caregiver Attitudes to Gynaecological Health of Women with Intellectual Disability

    ERIC Educational Resources Information Center

    Lin, Lan-Ping; Lin, Jin-Ding; Chu, Cordia M.; Chen, Li-Mei

    2011-01-01

    Background: There is little information available related to the reproductive health of people with intellectual disability (ID). The aims of the present study are to describe caregiver attitudes and to examine determinants of gynaecological health for women with ID. Method: We recruited 1152 caregivers (response rate = 71.87%) and analysed their…

  4. Enhancing Visual Search Abilities of People with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Li-Tsang, Cecilia W. P.; Wong, Jackson K. K.

    2009-01-01

    This study aimed to evaluate the effects of cueing in visual search paradigm for people with and without intellectual disabilities (ID). A total of 36 subjects (18 persons with ID and 18 persons with normal intelligence) were recruited using convenient sampling method. A series of experiments were conducted to compare guided cue strategies using…

  5. An Exploration of Substance Misuse in People with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Taggart, L.; McLaughlin, D.; Quinn, B.; Milligan, V.

    2006-01-01

    Background: Little is known about the characteristics of people with intellectual disabilities (IDs) who misuse substances and how such problems impinge upon their well-being. The aim of this paper is to describe how alcohol and drugs affect the health of people with IDs. Methods: A questionnaire was forwarded to all the community ID teams and…

  6. Intellectual Disabilities and Mental Health: United States-Based Research

    ERIC Educational Resources Information Center

    Charlot, Lauren; Beasley, Joan B.

    2013-01-01

    In the United States, research directed specifically at improving our understanding of the psychiatric assessment and treatment of individuals with intellectual disabilities (ID) has grown, yet lags far behind efforts for typically developing children and adults. In the United States, a lack of a national approach to the mental health problems of…

  7. Obesity in School Children with Intellectual Disabilities in France

    ERIC Educational Resources Information Center

    Salaun, Laureline; Berthouze-Aranda, Sophie

    2011-01-01

    Background: The aims of this study were to assess the prevalence of obesity in school children with intellectual disabilities and to determine the most appropriate indicators of obesity measurement. Materials and Methods: The weight, height, body mass index (BMI), waist circumference, waist-to-height ratio and body fat percentage as measured by…

  8. Personal Safety Programs for Children with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Kim, Yu-Ri

    2010-01-01

    As the severity and extent of child abuse among children with intellectual disabilities is widely recognized, increased attention is now being directed toward personal safety programs. There is, however, relatively little research on teaching personal safety skills to these children. The purpose of this study was to review studies on personal…

  9. How Staff Pursue Questions to Adults with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Finlay, W. M. L.; Antaki, C.

    2012-01-01

    Background: When support staff use questions to instruct, advise or guide adults with intellectual disabilities (ID), or to solicit information from them, the interaction does not always proceed smoothly, particularly when replies are ambiguous, absent or not obviously relevant. That can lead to interactional trouble and dissatisfaction, or worse.…

  10. Hospitalizations of Adults with Intellectual Disability in Academic Medical Centers

    ERIC Educational Resources Information Center

    Ailey, Sarah H.; Johnson, Tricia; Fogg, Louis; Friese, Tanya R.

    2014-01-01

    Individuals with intellectual disability (ID) represent a small but important group of hospitalized patients who often have complex health care needs. Individuals with ID experience high rates of hospitalization for ambulatory-sensitive conditions and high rates of hospitalizations in general, even when in formal community care systems; however,…

  11. Health Self-Advocacy Training for Persons with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Feldman, M. A.; Owen, F.; Andrews, A.; Hamelin, J.; Barber, R.; Griffiths, D.

    2012-01-01

    Background: People with intellectual disabilities (ID) have unequal access to health care. While systemic efforts are addressing health inequalities, there remains a need to demonstrate that persons with ID can increase their health self-advocacy skills. Method: A randomised control design with up to 6-month follow-up was used to evaluate the 3Rs…

  12. Predictors of Specialized Inpatient Admissions for Adults with Intellectual Disability

    ERIC Educational Resources Information Center

    Modi, Miti; McMorris, Carly; Palucka, Anna; Raina, Poonam; Lunsky, Yona

    2015-01-01

    Individuals with intellectual disability (ID) have complex mental health needs and may seek specialized ID psychiatric services. This study reports on predictors of specialized inpatient admissions for 234 individuals with ID who received outpatient services at a psychiatric hospital. Overall, from 2007-2012, 55 of the 234 outpatients were triaged…

  13. Procedural Discourse in Intellectual Disability and Dual Diagnosis

    ERIC Educational Resources Information Center

    Ryan, J.; Woodyatt, G.; Copeland, D.

    2010-01-01

    Background: Knowledge of discourse abilities of adults with intellectual disability (ID) and mental illness is limited. The present study examined the procedural discourse skills of two cohorts of adults with ID--one cohort with (n = 7) and one cohort without (n = 7) a psychiatric diagnosis of psychosis. Methods: Participants completed the "dice…

  14. Increasing Community Integration and Inclusion for People with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Thorn, Shannon H.; Pittman, Amanda; Myers, Rachel E.; Slaughter, Connie

    2009-01-01

    Historically residential facilities for individuals with intellectual disabilities have served the role of segregation and congregation with no real focus on integration into the community. More recently the focus has been to get people out of residential institutions and into community-based living settings. This work examines an approach to…

  15. Assessment of Anger Coping Skills in Individuals with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Willner, P.; Brace, N.; Phillips, J.

    2005-01-01

    Recent controlled studies have supported the effectiveness of anger management training for people with intellectual disabilities (IDs). This report describes an evaluation instrument designed to assess their usage of specific anger coping skills. The Profile of Anger Coping Skills (PACS) is designed for completion by a staff member or carer.…

  16. College Students' Conceptualizations of Deficits Involved in Mild Intellectual Disability

    ERIC Educational Resources Information Center

    Musso, Mandi W.; Barker, Alyse A.; Proto, Daniel A.; Gouvier, Wm. Drew

    2012-01-01

    Precedential rulings in recent capital murder trials may, in some cases, leave it up to a jury to determine whether or not an individual meets criteria for an intellectual disability (ID) and should be spared from the death penalty. Despite the potential for misconceptions about ID to bias decisions, few empirical studies have examined the…

  17. Conceptualizing Inclusive Research with People with Intellectual Disability

    ERIC Educational Resources Information Center

    Bigby, Christine; Frawley, Patsie; Ramcharan, Paul

    2014-01-01

    Background: The inclusion of people with intellectual disability in research is a common requirement of research funding. Little conceptual clarity is available to guide the conduct of inclusive research or judge its fidelity, there is minimal evidence of its impact, and questions remain about its feasibility and rigour. Method: A comprehensive…

  18. Review of Parent Training Interventions for Parents with Intellectual Disability

    ERIC Educational Resources Information Center

    Wade, Catherine; Llewellyn, Gwynnyth; Matthews, Jan

    2008-01-01

    Background: This paper reviews recent research to provide an updated perspective on the effectiveness of parent training interventions for parents with intellectual disability. The degree to which these studies meet previous recommendations for future research is explored, particularly with regard to the influence of context on intervention…

  19. The Road Barely Taken: Funerals, and People with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Forrester-Jones, Rachel

    2013-01-01

    Background: The topic of funerals within the life cycle approach to care in the UK remains largely absent. This small exploratory study sought to investigate how practitioners deal with this sensitive issue and to capture the views of older people with and without intellectual disabilities about funerals. Methods: A semi-structured questionnaire…

  20. Readiness for Cognitive Therapy in People with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Willner, Paul

    2006-01-01

    Aims: Cognitive therapies are increasingly being offered by clinical psychologists to people with intellectual disabilities. This paper reviews some of the factors that influence people's readiness to engage in cognitive therapy. Literature review: Limited verbal ability, psychological-mindedness (particularly in relation to the understanding of…

  1. ACCESS! Teaching Writing Skills to Students with Intellectual Disability

    ERIC Educational Resources Information Center

    Cannella-Malone, Helen I.; Konrad, Moira; Pennington, Robert C.

    2015-01-01

    The purpose of this article is to provide teachers with tools that they can use to teach written expression to school-age students with intellectual disabilities. These tools are presented around the mnemonic ACCESS: accommodations and assistive technologies, concrete topics, critical skills, explicit instruction, strategy instruction, systematic…

  2. Transition for Teenagers with Intellectual Disability: Carers' Perspectives

    ERIC Educational Resources Information Center

    Bhaumik, Sabyasachi; Watson, Joanna; Barrett, Mary; Raju, Bala; Burton, Tracey; Forte, Jane

    2011-01-01

    Teenagers with intellectual disabilities (ID) have significantly more health problems than the rest of the population and many encounter difficulties accessing the services they need during the transition from children's to adult services. A multidisciplinary, interagency study was carried out in one area of the UK with the intent to estimate the…

  3. A Descriptive Investigation of Dysphagia in Adults with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Chadwick, Darren D.; Jolliffe, J.

    2009-01-01

    Background: Dysphagia has rarely been investigated in adults with intellectual disabilities (ID) despite being a serious condition affecting health and quality of life. Method: This study collected information about 101 adults with ID, living in community settings, referred for an assessment of their eating and drinking. Ninety-nine people were…

  4. Physical Activity and Its Determinants among Adolescents with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Lin, Jin-Ding; Lin, Pei-Ying; Lin, Lan-Ping; Chang, Yu-Yu; Wu, Sheng-Ru; Wu, Jia-Ling

    2010-01-01

    Physical inactivity is a global public health problem, and it has been linked to many of the most serious illnesses facing many industrialized nations. There is little evidence examining the physical activity profile and determinants for the vulnerable population such as people with intellectual disabilities (ID). The present paper aims to…

  5. Predictors of Life Satisfaction in Individuals with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Miller, S. M.; Chan, F.

    2008-01-01

    Background: The purpose of this study was to examine factors that predict life satisfaction in individuals with intellectual disabilities (ID). Two groups of variables were studied: life skills (interpersonal, instrumental and leisure) and higher-order predictors (social support, self-determination and productivity). Method: Fifty-six participants…

  6. Pre-Partum Distress in Women with Intellectual Disabilities

    ERIC Educational Resources Information Center

    McConnell, David; Mayes, Rachel; Llewellyn, Gwynnyth

    2008-01-01

    Background: This study investigates depression, anxiety and stress in pregnant women with intellectual disabilities and/or self-reported learning difficulties, and examines the association between these negative emotional states and perceived support and conflict in the women's interpersonal relationships. Method: Eight-hundred-and-seventy-eight…

  7. Same-Sex Relationships and Women with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Burns, Jan; Davies, Danielle

    2011-01-01

    Background: Limited existing research looking at homosexuality and people with intellectual disabilities has identified a low level of knowledge, homophobic attitudes and negative experiences for gay men. Mainstream research has identified traditional gender role beliefs to be highly associated with negative attitudes towards homosexuality. This…

  8. Meaning and Value of Productivity to Adults with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Lysaght, Rosemary; Ouellette-Kuntz, Helene; Morrison, Carole

    2009-01-01

    Involvement in productivity roles such as work, volunteerism, and personal projects plays a central role in the lives of most adults and is associated with enhanced physical and mental health. This study examined the meaning of productivity to adults with intellectual disabilities, their satisfaction with the roles they held, and contributors and…

  9. ADHD Symptoms in Children with Mild Intellectual Disability

    ERIC Educational Resources Information Center

    Simonoff, Emily; Pickles, Andrew; Wood, Nicky; Gringras, Paul; Chadwick, Oliver

    2007-01-01

    Objectives: To determine whether the nature and correlates of attention-deficit/hyperactivity disorder (ADHD) symptoms are different in subjects with mild intellectual disability (ID) compared to subjects with average ability. Method: From a general population sample of 2,726 12- to 15-year-olds, a stratified subsample was selected to enrich for…

  10. Aggression as Positive Reinforcement in People with Intellectual Disabilities

    ERIC Educational Resources Information Center

    May, Michael E.

    2011-01-01

    From an applied behavior-analytic perspective, aggression in people with intellectual disabilities is mostly maintained by social reinforcement consequences. However, nonsocial consequences have also been identified in functional assessments on aggression. Behaviors producing their own reinforcement have been labeled "automatic" or "nonsocial" in…

  11. Evaluation of Executive Functioning in People with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Willner, P.; Bailey, R.; Parry, R.; Dymond, S.

    2010-01-01

    Background: Executive functioning (EF) is an important concept in cognitive psychology that has rarely been studied in people with intellectual disabilities (IDs). The aim of this study was to examine the validity of two test batteries and the structure of EF in this client group. Methods: We administered the children's version of the Behavioural…

  12. Study Healthy Ageing and Intellectual Disabilities: Recruitment and Design

    ERIC Educational Resources Information Center

    Hilgenkamp, Thessa I. M.; Bastiaanse, Luc P.; Hermans, Heidi; Penning, Corine; van Wijck, Ruud; Evenhuis, Heleen M.

    2011-01-01

    Problems encountered in epidemiologic health research in older adults with intellectual disabilities (ID) are how to recruit a large-scale sample of participants and how to measure a range of health variables in such a group. This cross-sectional study into healthy ageing started with founding a consort of three large care providers with a total…

  13. Preparing Students with Intellectual Disabilities to Audit Inclusive University Courses

    ERIC Educational Resources Information Center

    Wintle, James

    2015-01-01

    There is a growing trend toward including adults with intellectual disabilities (ID) in further education. However, there is a lack of literature on the preparation of students with ID to attend further education. This article, by James Wintle of Queen's University, Ontario, describes how a non-profit organisation, CALC Prep, prepares adults with…

  14. Enhancing Primary Health Care Services for Adults with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Melville, C. A.; Finlayson, J.; Cooper, S.-A.; Allan, L.; Robinson, N.; Burns, E.; Martin, G.; Morrison, J.

    2005-01-01

    Primary health care teams have an important part to play in addressing the health inequalities and high levels of unmet health needs experienced by people with intellectual disabilities (ID). Practice nurses have an expanding role within primary health care teams. However, no previous studies have measured their attitudes, knowledge, training…

  15. System Dynamics Modeling for Intellectual Disability Services: A Case Study

    ERIC Educational Resources Information Center

    Duryan, Meri; Nikolik, Dragan; van Merode, Godefridus; Curfs, Leopold

    2012-01-01

    Organizations providing services to persons with intellectual disabilities (ID) are complex because of many interacting stakeholders with often different and competing interests. The combination of increased consumer demand and diminished resources makes organizational planning a challenge for the managers of such organizations. Such challenges…

  16. Difficulties in Working Memory Updating in Individuals with Intellectual Disability

    ERIC Educational Resources Information Center

    Carretti, B.; Belacchi, C.; Cornoldi, C.

    2010-01-01

    Background: Despite the critical role attributed to working memory (WM) updating for executive functions and fluid intelligence, no research has yet been carried out on its specific role in the vital case of fluid intelligence weakness, represented by individuals with intellectual disability (ID). Furthermore, the relationship between updating and…

  17. Vitamin D and Fractures in People with Intellectual Disability

    ERIC Educational Resources Information Center

    Vanlint, S.; Nugent, M.

    2006-01-01

    Background: People with intellectual disability (ID) are thought to be at an increased risk of fractures. The extent of this increase in risk has been incompletely documented in the literature, and the underlying reasons remain to be elucidated. Methods: The aims of our study were to document the vitamin D status and fracture incidence in an…

  18. Depression in Adults with Intellectual Disability: Symptoms and Challenging Behaviour

    ERIC Educational Resources Information Center

    Hurley, A. D.

    2008-01-01

    Background: Psychiatric evaluation of adults with intellectual disability (ID) remains complex because of limitations in verbal abilities, atypical clinical presentation and challenging behaviour. This study examines the clinical presentation of adults with depression compared with bipolar disorder, anxiety disorders and non-psychiatric control…

  19. Anger Management and Intellectual Disabilities: A Systematic Review

    ERIC Educational Resources Information Center

    Hamelin, Jeffery; Travis, Robert; Sturmey, Peter

    2013-01-01

    We conducted a systematic literature review of anger management in people with intellectual disabilities (ID). We identified 2 studies that used randomized controlled trials and 6 that used pretest-posttest nonequivalent control group designs. The mean between-group effect size was 1.52 for randomized controlled trials and 0.89 for the other…

  20. Sexual Risk Assessment for People with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Embregts, P.; van den Bogaard, K.; Hendriks, L.; Heestermans, M.; Schuitemaker, M.; van Wouwe, H.

    2010-01-01

    Given that sexually offensive behavior on the part of people with intellectual disabilities has been identified as a significant problem, we developed a risk assessment questionnaire, that takes not only various static and dynamic factors into account but also environmental risk variables. Psychologists and staff members completed this Risk…

  1. Sexual Relationships in Adults with Intellectual Disabilities: Understanding the Law

    ERIC Educational Resources Information Center

    O'Callaghan, A. C.; Murphy, G. H.

    2007-01-01

    Introduction: Adults with intellectual disabilities (IDs) are known to be very vulnerable to sexual abuse. This may result partly from their lack of sexual knowledge and their powerless position in society. It could also be exacerbated by an ignorance of the law. This study investigates their understanding of the law relating to sexuality. Method:…

  2. An Assessment of Intellectual Disability Among Aboriginal Australians

    ERIC Educational Resources Information Center

    Glasson, E. J.; Sullivan, S. G.; Hussain, R.; Bittles, A. H.

    2005-01-01

    Background: The health and well-being of Indigenous people is a significant global problem, and Aboriginal Australians suffer from a considerably higher burden of disease and lower life expectancy than the non-Indigenous population. Intellectual disability (ID) can further compromise health, but there is little information that documents the…

  3. Early onset intellectual disability in chromosome 22q11.2 deletion syndrome.

    PubMed

    Cascella, Marco; Muzio, Maria Rosaria

    2015-01-01

    Chromosome 22q11.2 deletion syndrome, or DiGeorge syndrome, or velocardiofacial syndrome, is one of the most common multiple anomaly syndromes in humans. This syndrome is commonly caused by a microdelection from chromosome 22 at band q11.2. Although this genetic disorder may reflect several clinical abnormalities and different degrees of organ commitment, the clinical features that have driven the greatest amount of attention are behavioral and developmental features, because individuals with 22q11.2 deletion syndrome have a 30-fold risk of developing schizophrenia. There are differing opinions about the cognitive development, and commonly a cognitive decline rather than an early onset intellectual disability has been observed. We report a case of 22q11.2 deletion syndrome with both early assessment of mild intellectual disabilities and tetralogy of Fallot as the only physic manifestation. PMID:26358864

  4. Does Visual Impairment Lead to Additional Disability in Adults with Intellectual Disabilities?

    ERIC Educational Resources Information Center

    Evenhuis, Heleen M.; Sjoukes, L.; Koot, H. M.; Kooijman, A. C.

    2009-01-01

    Background: This study addresses the question to what extent visual impairment leads to additional disability in adults with intellectual disabilities (ID). Method: In a multi-centre cross-sectional study of 269 adults with mild to profound ID, social and behavioural functioning was assessed with observant-based questionnaires, prior to expert…

  5. Setting Global Research Priorities for Developmental Disabilities, Including Intellectual Disabilities and Autism

    ERIC Educational Resources Information Center

    Tomlinson, M.; Yasamy, M. T.; Emerson, E.; Officer, A.; Richler, D.; Saxena, S.

    2014-01-01

    Objectives: The prevalence of intellectual disabilities (ID) has been estimated at 10.4/1000 worldwide with higher rates among children and adolescents in lower income countries. The objective of this paper is to address research priorities for development disabilities, notably ID and autism, at the global level and to propose the more rational…

  6. Intellectual Disability and Sexuality: Attitudes of Disability Support Staff and Leisure Industry Employees

    ERIC Educational Resources Information Center

    Gilmore, Linda; Chambers, Brooke

    2010-01-01

    Background: The attitudes of support staff and others in the community towards the sexuality of individuals with an intellectual disability (ID) have the potential to influence opportunities for normalised life experiences in the area of sexuality. Method: A sample of 169 disability support staff and 50 employees from leisure and service…

  7. Disability Support Workers' Experience of Interaction with a Person with Profound Intellectual Disability

    ERIC Educational Resources Information Center

    Forster, Sheridan; Iacono, Teresa

    2008-01-01

    Background: The primary communication partner for many people with profound intellectual disability (PID) who are living in supported accommodation is their disability support worker (DSW). The experiences of DSWs in interacting with people with PID have received limited attention in the literature. Method: The nature of interactions between…

  8. Mild Intellectual Disability at the Postsecondary Level: Results of a Survey of Disability Service Offices

    ERIC Educational Resources Information Center

    Harrison, Allyson G.; Holmes, Alana

    2014-01-01

    Disability Service Staff at colleges and universities in Ontario, Canada were surveyed regarding the number of students arriving at their offices with the label of mild intellectual disability. Information was obtained regarding criteria used in association with this label, documentation required to support the classification, and accommodations…

  9. Aged and Dependency Ratios among Autism, Intellectual Disability and Other Disabilities: 10-Year Trend Analysis

    ERIC Educational Resources Information Center

    Lin, Jin-Ding; Lin, Lan-Ping; Sung, Chang-Lin; Wu, Jia-Ling

    2011-01-01

    Dependency ratios are useful as general indicators of future economic and social health. The present paper focuses on the description of dependency ratios and over time change in different kind of disability which include autism, intellectual disability, vision, hearing, and limb impairments. We analyzed data mainly from the public web-access…

  10. Osteoporosis in Groups with Intellectual Disability.

    ERIC Educational Resources Information Center

    Center, J. R.; And Others

    1994-01-01

    Fifty-three adults with intellectual impairment referred to an endocrinology clinic in New South Wales (Australia) were measured for lumbar bone mineral density. Bone mineral density was significantly lower in this group than in an age and sex matched control group. Risk factors included male gender, physical inactivity, small body size,…

  11. Postsecondary Outcomes for Students with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Farnham, Lindsey Beth

    2011-01-01

    A survey of 89 post secondary youth with intellectual impairments exiting a college based school-to-work program tracked school and post school experiences to identify significant correlates and predictors of post school outcomes. The three significant predictors were self-determination training, course taking patterns, and home care skills…

  12. Outlook for Children with Intellectual Disabilities

    MedlinePlus

    ... Prenatal Baby (0-12 mos.) Toddler 1-3yrs. Preschool 3-5yrs Grade School 5-12yrs. Teen 12- ... is not known, having no specific identifiable source. Education By middle childhood most youngsters with an intellectual ...

  13. Sibling Relationship Quality and Social Functioning of Children and Adolescents with Intellectual Disability

    ERIC Educational Resources Information Center

    Floyd, Frank J.; Purcell, Susan E.; Richardson, Shana S.; Kupersmidt, Janis B.

    2009-01-01

    We examined sibling relationships for children and adolescents with intellectual disability and assessed implications for their social functioning. Targets (total N = 212) had either intellectual disability, a chronic illness/physical disability, or no disability. Nontarget siblings reported on relationship quality, sibling interactions were…

  14. Self-Esteem of Greek Mothers of Children with Intellectual Disabilities.

    ERIC Educational Resources Information Center

    Argyrakouli, Effi; Zafiropoulou, Maria

    2003-01-01

    This study examined the self-esteem of 50 mothers of children with intellectual disabilities living in central Greece and 50 similar mothers of non-disabled children. Results indicated significantly lower self-esteem for mothers of children with intellectual disabilities. The best predictor of positive maternal self-esteem in the disabled group…

  15. Intellectual disability, consumerism and identity: to have and have not?

    PubMed

    McClimens, Alex; Hyde, Martin

    2012-06-01

    Here we consider the consumer society as it currently exists in the UK and examine its relationship and relevance to the population of individuals with intellectual disability. We do this through a reading of the associated literature on theories of shopping and consumption which we then contrast with research evidence as it applies to the lives of people with intellectual disability. By brining together these two perspectives we hope to shine some light on ideas around identity and choice. We then transfer these arguments to the health and social care sector. Here we ask whether an economic model which has been exposed as divisive and exclusionary should be used in the administration of social secutity benefits of the kind accesed by people with a range of disabilities. We conclude that the unchallenged advance of marketisation within health and social care may benefit those who are financially able but for those who are economically disadvantaged the choices offered are illusory at best. PMID:22544482

  16. Development of a New Attention Rating Scale for Children with Intellectual Disability: The Scale of Attention in Intellectual Disability (SAID)

    ERIC Educational Resources Information Center

    Freeman, Nerelie C.; Gray, Kylie M.; Taffe, John R.; Cornish, Kim M.

    2015-01-01

    Difficulties with attention, impulsivity, and hyperactivity are thought to be as common among children with intellectual disability (ID) as they are in children without ID. Despite this, there is a lack of scales to specifically assess ADHD symptomatology in children and adolescents with ID. This article describes the development and evaluation of…

  17. Development and Validation of the Intellectual Disability Literacy Scale for Assessment of Knowledge, Beliefs and Attitudes to Intellectual Disability

    ERIC Educational Resources Information Center

    Scior, Katrina; Furnham, Adrian

    2011-01-01

    Research into the general public's responses to individuals with intellectual disabilities has been dominated by attitudinal research. While this approach has unquestionably generated useful findings, it ignores important aspects, such as lay knowledge, explanatory models and beliefs about suitable interventions that can produce a multi-faceted…

  18. Executive Function in Children with Intellectual Disability--The Effects of Sex, Level and Aetiology of Intellectual Disability

    ERIC Educational Resources Information Center

    Memisevic, H.; Sinanovic, O.

    2014-01-01

    Background: Executive function is very important in the children's overall development. The goal of this study was to assess the executive function in children with intellectual disability (ID) through the use of the Behavior Rating Inventory of Executive Function (BRIEF) teacher version. An additional goal was to examine the differences in…

  19. American Association on Intellectual and Developmental Disabilities

    MedlinePlus

    ... Membership Spotlight Archive 2009-2012 AAIDD Community AAIDD E-Learning Online education for developmental disability professionals More than ... 1968 Fax: 202-387-2193 Education Teleconferences & Webinars E-Learning & CEUs Network Partner Conferences Annual Conferences Publications Journals ...

  20. Research Ethics and Intellectual Disability: Broadening the Debates

    PubMed Central

    Carlson, Licia

    2013-01-01

    This article examines the ethical issues surrounding the inclusion of people with intellectual disabilities as research subjects. It explores subject selection, competence, risk and benefits, and authority through three tensions that emerge when considering these concepts in the context of the Disability Rights Movement and critical disability scholarship. These tensions are defined as the double dangers of inclusion and exclusion; the challenges of defining competence and risk in terms of individuals vs. groups; and the conflicts that arise when pursuing the dual goals of amelioration and elimination of disabilities. Though these tensions are not resolved, they underscore the importance of researchers engaging with critical disability perspectives in order to navigate these complex ethical questions. PMID:24058305

  1. Methodological Issues in Inclusive Intellectual Disability Research: A Health Promotion Needs Assessment of People Attending Irish Disability Services

    ERIC Educational Resources Information Center

    Boland, M.; Daly, L.; Staines, A.

    2008-01-01

    Background: This paper describes a novel combination of inclusive methods to evaluate health and health promotion needs of service users (clients) with intellectual disability. Sixty centres provide disability services to over 900 clients with intellectual disability in the East Coast Area Health Board region of Ireland (population approximately…

  2. Intellectual disability in Africa: implications for research and service development.

    PubMed

    McKenzie, Judith Anne; McConkey, Roy; Adnams, Colleen

    2013-09-01

    Although intellectual disability (ID) is probably the largest impairment grouping on the African continent, few indigenous research and evaluation studies have been undertaken. This article is an initial attempt to relate service delivery issues to an African research agenda. We critically analysed the available literature, drawing on academic publications and those of non-governmental agencies. In this process we identified several key issues for further investigation, namely: understanding ID in African contexts, access to education and health care, the provision of appropriate assistance and support, and income generation. We relate our analysis to the recommendations made in the World Report on Disability but with a specific focus on ID in Africa. The need for mainstreaming and prioritising ID in non-disability related and across impairment programmes is highlighted. We note the importance of families and emphasise the need to draw on informal and traditional forms of care and participation. The need for reliable research evidence to support practice is highlighted. We conclude with a call to action by and on behalf of individuals with ID to be included in the development priorities of the continent. Implications for Rehabilitation Service provision for people with intellectual disabilities in Africa is not always well served by insights obtained from western research agendas. Appropriate and effective rehabilitation requires an understanding of the context and the environment in which the disabled person operates. Indigenous research into the provision of support to families and the inclusion of persons with intellectual disability into mainstream programmes as well as disability specific provision is recommended. PMID:23350758

  3. Exploring the self-concepts of persons with intellectual disabilities.

    PubMed

    Li, Eria Ping-Ying; Tam, Alan Sing-Fai; Man, David Wai-Kwong

    2006-03-01

    This study explores the self-concepts of Hong Kong Chinese with intellectual disabilities. Face-to-face and individual interviews were conducted in Cantonese, using the Chinese version of the Adult Source of Self-Esteem Inventory (ASSEI) together with three open-ended questions to explore the participants' self-conceptions in different life domains. An opportunity sample of 135 young adults with intellectual disabilities was interviewed. The findings showed that the family self, the social self and achievement in school and work were the self-concept attributes most important to the participants. The participants of this study had a higher total self-concept than that of a comparison group of people without disabilities when the participants used the in-group social comparison to maintain positive self-perception. The importance of partnership with family, self-concept enhancement strategies and quality employment service are discussed in order to facilitate people with intellectual disabilities to develop more positive self-concepts and thus achieve better community integration. PMID:16495322

  4. The World Report on Disability and People with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Officer, Alana; Shakespeare, Tom

    2013-01-01

    The "World Report on Disability" was requested by the World Health Assembly, the governing body of the World Health Organization (WHO). Because disability is broader than health, WHO partnered with the World Bank. The "World Report" was published in 2011 and provides a comprehensive scientific analysis on the global situation…

  5. Genetic testing in patients with global developmental delay / intellectual disabilities. A review

    PubMed Central

    MICLEA, DIANA; PECA, LOREDANA; CUZMICI, ZINA; POP, IOAN VICTOR

    2015-01-01

    Genetic factors are responsible for up to 40% developmental disability cases, such as global developmental delay/intellectual disability (GDD/DI). The American and more recently the European guidelines on this group of diseases state that genetic testing is essential and should become a standardized diagnostic practice. The main arguments for the necessity of implementing such a practice are: (1) the high prevalence of developmental disabilities (3% of the population); (2) the high genetic contribution to this type of pathology; (3) insufficient referral for genetic consultation. In an attempt to address these issues, the purpose of this paper is to present the genetic etiology of global developmental delay / intellectual disability with emphasis on the need to implement a genetic testing protocol for the patients with GDD/DI, as indicated by the current guidelines. Chromosomal abnormalities and fragile X syndrome are the most frequent causes of developmental disabilities and the techniques employed to detect such genetic disorders should be used as first line investigations of GDD/DI. PMID:26609258

  6. Positive Impact of Intellectual Disability on Families

    ERIC Educational Resources Information Center

    Blacher, Jan; Baker, Bruce L.

    2007-01-01

    Understanding positive, as well as negative, impact of a child with mental retardation will lead to a more balanced view of families and disability. In two studies we examined parents' perceived positive impact of a child with MR/DD. Study 1 involved 282 young adults with severe mental retardation; Study 2 involved 214 young children with, or…

  7. The Effect of Physical Training on Static Balance in Young People with Intellectual Disability

    ERIC Educational Resources Information Center

    Jankowicz-Szymanska, A.; Mikolajczyk, E.; Wojtanowski, W.

    2012-01-01

    Intellectual disability affects all spheres of people's lives who suffer from it. It lowers the level of intellectual functioning, often stigmatizes, characteristically changing features, and decreases motor performance. Unfortunately, modern medicine cannot cure intellectual disability; however, there is a chance to improve the quality of life of…

  8. Feasibility of Eight Physical Fitness Tests in 1,050 Older Adults with Intellectual Disability: Results of the Healthy Ageing with Intellectual Disabilities Study

    ERIC Educational Resources Information Center

    Hilgenkamp, Thessa I. M.; van Wijck, Ruud; Evenhuis, Heleen M.

    2013-01-01

    Although physical fitness is relevant for well-being and health, knowledge on the feasibility of instruments to measure physical fitness in older adults with intellectual disability (ID) is lacking. As part of the study Healthy Ageing with Intellectual Disabilities with 1,050 older clients with ID in three Dutch care services, the feasibility of 8…

  9. Prescription Errors in Older Individuals with an Intellectual Disability: Prevalence and Risk Factors in the Healthy Ageing and Intellectual Disability Study

    ERIC Educational Resources Information Center

    Zaal, Rianne J.; van der Kaaij, Annemieke D. M.; Evenhuis, Heleen M.; van den Bemt, Patricia M. L. A.

    2013-01-01

    Prescribing pharmacotherapy for older individuals with an intellectual disability (ID) is a complex process, possibly leading to an increased risk of prescription errors. The objectives of this study were (1) to determine the prevalence of older individuals with an intellectual disability with at least one prescription error and (2) to identify…

  10. Gait Transitions of Persons with and without Intellectual Disability

    ERIC Educational Resources Information Center

    Agiovlasitis, Stamatis; Yun, Joonkoo; Pavol, Michael J.; McCubbin, Jeffrey A.; Kim, So-Yeun

    2008-01-01

    This study examined whether the walk-to-run transition speed (W-RTS) and the run-to-walk transition speed (R-WTS) were different or more variable between participants with and without intellectual disability (ID). Nine adults with ID and 10 adults without ID completed in a series of walk-to-run and run-to-walk trials on a treadmill. W-RTS and…

  11. Intellectual Disability: When the Hypertrichosis Is a Clue.

    PubMed

    Pezzani, Lidia; Milani, Donatella; Tadini, Gianluca

    2015-09-01

    The skin and the central and peripheral nervous system both derive from the ectoderm ridge. Therefore, several syndromes characterized by the presence of intellectual disability (ID) can be associated with specific congenital cutaneous manifestations. In this review, we list some of the most frequent diseases characterized by the presence of ID associated with hirsutism, which might be an incentive for the clinicians to pay attention to the ectodermal annexes in patients with ID. PMID:27617126

  12. Mutations in JMJD1C are involved in Rett syndrome and intellectual disability

    PubMed Central

    Sáez, Mauricio A.; Fernández-Rodríguez, Juana; Moutinho, Catia; Sanchez-Mut, Jose V.; Gomez, Antonio; Vidal, Enrique; Petazzi, Paolo; Szczesna, Karolina; Lopez-Serra, Paula; Lucariello, Mario; Lorden, Patricia; Delgado-Morales, Raul; de la Caridad, Olga J.; Huertas, Dori; Gelpí, Josep L.; Orozco, Modesto; López-Doriga, Adriana; Milà, Montserrat; Perez-Jurado, Luís A.; Pineda, Mercedes; Armstrong, Judith; Lázaro, Conxi; Esteller, Manel

    2016-01-01

    Purpose: Autism spectrum disorders are associated with defects in social response and communication that often occur in the context of intellectual disability. Rett syndrome is one example in which epilepsy, motor impairment, and motor disturbance may co-occur. Mutations in histone demethylases are known to occur in several of these syndromes. Herein, we aimed to identify whether mutations in the candidate histone demethylase JMJD1C (jumonji domain containing 1C) are implicated in these disorders. Genet Med 18 1, 378–385. Methods: We performed the mutational and functional analysis of JMJD1C in 215 cases of autism spectrum disorders, intellectual disability, and Rett syndrome without a known genetic defect. Genet Med 18 1, 378–385. Results: We found seven JMJD1C variants that were not present in any control sample (~ 6,000) and caused an amino acid change involving a different functional group. From these, two de novo JMJD1C germline mutations were identified in a case of Rett syndrome and in a patient with intellectual disability. The functional study of the JMJD1C mutant Rett syndrome patient demonstrated that the altered protein had abnormal subcellular localization, diminished activity to demethylate the DNA damage-response protein MDC1, and reduced binding to MECP2. We confirmed that JMJD1C protein is widely expressed in brain regions and that its depletion compromises dendritic activity. Genet Med 18 1, 378–385. Conclusions: Our findings indicate that mutations in JMJD1C contribute to the development of Rett syndrome and intellectual disability. Genet Med 18 1, 378–385. PMID:26181491

  13. The role of learning disability nurses in promoting cervical screening uptake in women with intellectual disabilities: A qualitative study.

    PubMed

    Lloyd, Jennifer L; Coulson, Neil S

    2014-04-01

    Research suggests that the uptake of cervical screening by women with intellectual disabilities (commonly known as learning disabilities within UK policy frameworks, practice areas and health services) is poor compared to women without intellectual disabilities. The present study explored learning disability nurses' experiences of supporting women with intellectual disabilities to access cervical screening in order to examine their role in promoting attendance and elucidate potential barriers and facilitators to uptake. Ten participants recruited from a specialist learning disability service completed a semi-structured interview and data were analysed using experiential thematic analysis. Identified individual barriers included limited health literacy, negative attitudes and beliefs and competing demands; barriers attributed to primary care professionals included time pressures, limited exposure to people with intellectual disabilities and lack of appropriate knowledge, attitudes and skills. Attendance at cervical screening was facilitated by prolonged preparation work undertaken by learning disability nurses, helpful clinical behaviours in the primary care context and effective joint working. PMID:24698957

  14. The Influences of Delay and Severity of Intellectual Disability on Event Memory in Children

    ERIC Educational Resources Information Center

    Brown, Deirdre A.; Lewis, Charlie N.; Lamb, Michael E.; Stephens, Emma

    2012-01-01

    Objective: To examine the ability of children with intellectual disabilities to give reliable accounts of personally experienced events, considering the effects of delay, severity of disability, and the types of interview prompt used. Method: In a between-subjects design, we compared children with intellectual disabilities (7-12 years) that fell…

  15. Eyewitness Testimony and Perceived Credibility of Youth with Mild Intellectual Disability

    ERIC Educational Resources Information Center

    Peled, M.; Iarocci, G.; Connolly, D. A.

    2004-01-01

    Background Individuals with intellectual disability (ID) are more vulnerable to abuse compared to individuals without disabilities yet have limited access to the legal system. This study examined perceived credibility of youth with mild intellectual disability (MID) who provide courtroom testimony. Method Participants, 187 undergraduates, were…

  16. Human Needs and Intellectual Disabilities: Applications for Person Centered Planning, Dual Diagnosis, and Crisis Intervention

    ERIC Educational Resources Information Center

    Reiss, Steven

    2009-01-01

    Human Needs and Intellectual Disabilities identifies the 12 human needs most relevant to the lives of people with intellectual disabilities, autism and related developmental disabilities. It includes detailed, practical suggestions for caregivers or parents interested in the happiness, quality of life, and self-determination of their loved ones or…

  17. Nursing Perspectives on Cancer Screening in Adults with Intellectual and Other Developmental Disabilities

    ERIC Educational Resources Information Center

    Tyler, Carl V.; Zyzanski, Stephen J.; Panaite, Vanessa; Council, Linda

    2010-01-01

    Health care disparities have been documented in cancer screenings of adults with intellectual and other developmental disabilities. Developmental disabilities nurses were surveyed to better understand and improve this deficiency. Two thirds of respondents believed that adults with intellectual and developmental disabilities received fewer cancer…

  18. Social Inclusion and People with Intellectual Disability and Challenging Behaviour: A Systematic Review

    ERIC Educational Resources Information Center

    Bigby, Christine

    2012-01-01

    Background: Social inclusion is central to disability policies internationally. The high risk of social exclusion for people with intellectual disability is compounded for those with challenging behaviour. Method: A systematic literature review examined how social inclusion of people with intellectual disability and challenging behaviour has been…

  19. Prevalence of Overweight and Obesity in Children with Intellectual Disabilities in Korea

    ERIC Educational Resources Information Center

    Choi, Eunsook; Park, HyunJu; Ha, Yeongmi; Hwang, Won Ju

    2012-01-01

    Background: Overweight and obesity in children with intellectual disabilities may be a major health threat. The purpose of this study was to examine the prevalence of overweight and obesity in Korean children with intellectual disabilities aged 7-18 years who did not have specific genetic syndromes or physical disabilities. Materials and methods:…

  20. Self-Harm among People with Intellectual Disabilities Living in Secure Service Provision: A Qualitative Exploration

    ERIC Educational Resources Information Center

    Brown, Jessica; Beail, Nigel

    2009-01-01

    Background: Research into self-harm among people with intellectual disabilities has focused predominantly on high frequency internally maladaptive behaviour among people whose disability is severe or profound. Research into different forms of self-harm, such as cutting or burning the skin, found in those with mild intellectual disabilities;…

  1. The Performance of Mouse Pointing and Selecting for Pupils with and without Intellectual Disabilities

    ERIC Educational Resources Information Center

    Lin, Yun-Lung; Chen, Ming-Chung; Chang, Yun-Ting; Yeh, Chih-Ching; Meng, Ling-Fu

    2009-01-01

    The purpose of this study was to compare the performance of mouse pointing and selecting in the tasks with different index of difficulty between 20 pupils with intellectual disabilities and 21 pupils without disabilities. A mouse proficiency assessment software was utilized to collect data. Pupils with intellectual disabilities executed tasks more…

  2. Attitudes of Pakistani Community Members and Staff toward People with Intellectual Disability

    ERIC Educational Resources Information Center

    Patka, Mazna; Keys, Christopher B.; Henry, David B.; McDonald, Katherine E.

    2013-01-01

    The acceptance and inclusion of persons with intellectual disability can vary across cultures, and understanding attitudes can provide insight into such variation. To our knowledge, no previous study has explored attitudes toward people with intellectual disability among Pakistani community members and disability service providers. We administered…

  3. Everyday life of young adults with intellectual disabilities: inclusionary and exclusionary processes among young adults of parents with intellectual disability.

    PubMed

    Starke, Mikaela

    2013-06-01

    Ten young adults with an intellectual disability whose parents, too, have an intellectual disability were interviewed and completed questionnaires for this exploratory study aimed at charting their experiences of everyday life. Most of the participants reported high life satisfaction, especially with the domains of friends, leisure time, and family, and considered their families as a resource for their empowerment and development of resilience. The study participants' informal networks were composed of only a few individuals who, moreover, were mostly of dissimilar age and also included support professionals. The participants typically described themselves as excluded from others, an experience that was articulated most conspicuously in their narratives about the special schools they were attending. PMID:23834213

  4. Rates of breastfeeding and exposure to socio-economic adversity amongst children with intellectual disability.

    PubMed

    Gore, Nick; Emerson, Eric; Brady, Serena

    2015-04-01

    Children with intellectual disability are at increased risk of experiencing poor health relative to their typically developing peers. Previous research indicates that exposure to socio-economic disadvantage contributes towards this disparity but that additional factors (including parenting practices) may be involved in mediating/moderating pathways. This study examined duration of breastfeeding amongst children with and without intellectual disability by a secondary analysis of data from the UK Millennium Cohort Study. Children with intellectual disability were significantly less likely to have been ever breastfed; breastfed exclusively or at all at 3 months or breastfed at all at 6 months relative to children without intellectual disability. None of these differences remained significant when other psycho-social risk factors for reduced breastfeeding were controlled for. The study adds to both the sparse literature on breastfeeding practices amongst families of children with intellectual disability and research demonstrating relationships between socio-economic disadvantage and wellbeing for children with intellectual disability. PMID:25613368

  5. The Deployment of the Medico-Psychological Gaze and Disability Expertise in Relation to Children with Intellectual Disability

    ERIC Educational Resources Information Center

    Mckenzie, Judith Anne; Macleod, Catriona Ida

    2012-01-01

    In this study, we adopt the concepts of Michel Foucault on the medical gaze and Nikolas Rose on psychological expertise to differentiate between two forms of expertise evident in the education of intellectually disabled children. We draw on a discourse analytic study carried out in South Africa on intellectual disability in relation to educational…

  6. Factors affecting placement of a child with intellectual disability.

    PubMed

    Kandel, Isack; Merrick, Joav

    2005-05-01

    Parents of disabled children often face the question whether or not to keep the child at home or to place them. The choice between the two alternatives resides with the parents and various factors influence their decision. Several researchers have identified these factors, which include child-related parameters, family and parental attitudes, the influence of the social environment, and the external assistance provided to the family. In a pilot study, we attempted to isolate the main factors involved in the parental decision either to keep the child at home or place the child by examining a sample comprised of 50 parents of children suffering severe intellectual disability studying in a special education school and 48 parents of adults with intellectual disability working in sheltered workshops. Each parent filled out a questionnaire used in a study in the United States and results of the research indicated parental-related factors as the dominant factors that delayed the placement of their child in residential care; guilt feelings were the main factor. PMID:15915290

  7. Reduced Gamma Oscillations in a Mouse Model of Intellectual Disability: A Role for Impaired Repetitive Neurotransmission?

    PubMed Central

    Gill, Kalbinder K.; Bharathan, Ashtami; Buck, S. Caroline; Morris, Gareth; Jiruska, Premysl; Jefferys, John G. R.

    2014-01-01

    Intellectual disability affects 2–3% of the population; mutations of the X-chromosome are a major cause of moderate to severe cases. The link between the molecular consequences of the mutation and impaired cognitive function remains unclear. Loss of function mutations of oligophrenin-1 (OPHN1) disrupt Rho-GTPase signalling. Here we demonstrate abnormal neurotransmission at CA3 synapses in hippocampal slices from Ophn1-/y mice, resulting from a substantial decrease in the readily releasable pool of vesicles. As a result, synaptic transmission fails at high frequencies required for oscillations associated with cognitive functions. Both spontaneous and KA-induced gamma oscillations were reduced in Ophn1-/y hippocampal slices. Spontaneous oscillations were rapidly rescued by inhibition of the downstream signalling pathway of oligophrenin-1. These findings suggest that the intellectual disability due to mutations of oligophrenin-1 results from a synaptopathy and consequent network malfunction, providing a plausible mechanism for the learning disabilities. Furthermore, they raise the prospect of drug treatments for affected individuals. PMID:24800744

  8. Reduced gamma oscillations in a mouse model of intellectual disability: a role for impaired repetitive neurotransmission?

    PubMed

    Powell, Andrew D; Saintot, Pierre-Philippe; Gill, Kalbinder K; Bharathan, Ashtami; Buck, S Caroline; Morris, Gareth; Jiruska, Premysl; Jefferys, John G R

    2014-01-01

    Intellectual disability affects 2-3% of the population; mutations of the X-chromosome are a major cause of moderate to severe cases. The link between the molecular consequences of the mutation and impaired cognitive function remains unclear. Loss of function mutations of oligophrenin-1 (OPHN1) disrupt Rho-GTPase signalling. Here we demonstrate abnormal neurotransmission at CA3 synapses in hippocampal slices from Ophn1-/y mice, resulting from a substantial decrease in the readily releasable pool of vesicles. As a result, synaptic transmission fails at high frequencies required for oscillations associated with cognitive functions. Both spontaneous and KA-induced gamma oscillations were reduced in Ophn1-/y hippocampal slices. Spontaneous oscillations were rapidly rescued by inhibition of the downstream signalling pathway of oligophrenin-1. These findings suggest that the intellectual disability due to mutations of oligophrenin-1 results from a synaptopathy and consequent network malfunction, providing a plausible mechanism for the learning disabilities. Furthermore, they raise the prospect of drug treatments for affected individuals. PMID:24800744

  9. Mania and Intellectual Disability: The Course of Manic Symptoms in Persons with Intellectual Disability

    ERIC Educational Resources Information Center

    Gonzalez, Melissa; Matson, Johnny L.

    2006-01-01

    Our aim was to extend the literature by examining the presence of manic symptoms in persons with intellectual deficits with and without bipolar disorder for 3 years. Three groups (bipolar, psychopathology other than bipolar disorder, and no Axis I diagnosis) were formed with 14 participants in each group. Initially, the presence of mania symptoms…

  10. Test Anxiety Research: Students with Vision Impairments and Students with Mild Intellectual Disabilities

    ERIC Educational Resources Information Center

    Datta, Poulomee

    2014-01-01

    There is an absence of research on test anxiety in students with disabilities although such testing is taken for granted among students without disabilities. This study investigated the test anxiety of the students in each of the two disability groups, those with vision impairments and those with intellectual disabilities who are placed in…

  11. Comparative Policy Brief: Status of Intellectual Disabilities in the Republic of Haiti

    ERIC Educational Resources Information Center

    Jacobson, Erik

    2008-01-01

    An estimated 800,000 persons have disabilities in Haiti, but there are no data that refer specifically to those with intellectual disabilities. Traditional fears and stigma about disability are widespread. While the constitution supports the idea that people with disabilities should have autonomy and education, there are no laws to mandate…

  12. Models of Intellectual Disability: Towards a Perspective of (Poss)ability

    ERIC Educational Resources Information Center

    Mckenzie, J. A.

    2013-01-01

    Background: The social and medical models of disability configure the relationship between disability and impairment differently. Neither of these models has provided a comprehensive theoretical or practical basis for talking about intellectual disability (ID). Models that emphasise the interactive nature of disability appear to be more promising.…

  13. Young adults with intellectual disability recall their childhood.

    PubMed

    Starke, Mikaela

    2011-12-01

    Eleven young adults with an intellectual disability were interviewed for this exploratory study aimed at charting their experiences of growing up in homes where at least one parent had the same or a similar disability. Two main themes emerged from the interviews. Firstly, a clear majority of the young adults had positive experiences of family life during their upbringing, as expressed especially through their memories of their grandparents. Secondly, the study participants all described experiences of being bullied and harassed outside the family context. The results obtained in this study highlight the importance of the parents, the family, and informal networks in the upbringing of these children. The study also considers the consequences that the study participants' negative experiences of peer contacts and their sense of exclusion might have for their prospects in later life. PMID:22129525

  14. Differences in HIV knowledge and sexual practices of learners with intellectual disabilities and non-disabled learners in Nigeria

    PubMed Central

    Aderemi, Toyin J; Pillay, Basil J; Esterhuizen, Tonya M

    2013-01-01

    Introduction Individuals with intellectual disabilities are rarely targeted by the current human immunodeficiency virus (HIV) response, thereby reducing their access to HIV information and services. Currently, little is known about the HIV knowledge and sexual practices of young Nigerians with intellectual disabilities. Thus, this study sought to compare the HIV knowledge and sexual practices of learners with mild/moderate intellectual disabilities and non-disabled learners (NDL) in Nigeria. Findings could help in the development of HIV interventions that are accessible to Nigerian learners with intellectual impairments. Methods This cross-sectional, comparative study utilized a survey to investigate HIV knowledge and sexual practices among learners with mild/moderate intellectual disabilities and NDL in Nigeria. Learners with mild/moderate intellectual disabilities (n=300) and NDL (n=300) within the age range of 12 to 19 years drawn from schools across Oyo State, Nigeria, completed a structured questionnaire to assess their knowledge of HIV transmission and sexual practices. Results Significantly more learners with mild/moderate intellectual disabilities (62.2%) than NDL 48 (37.8%) reported having sexual experience (p=0.002). Of the sexually experienced female learners with mild/moderate intellectual disabilities, 28 (68.3%) reported history of rape compared with 9 (2.9%) of female NDL (p=0.053). Intellectual impairment was significantly associated with lower HIV transmission knowledge scores (p<0.001). Learners with mild/moderate intellectual disabilities were less likely than NDL (p<0.001) to have heard about HIV from most of the common sources of HIV information. In addition, when compared with non-disabled learners, learners with mild/moderate intellectual disabilities were significantly more likely to have reported inconsistent condom use with boyfriends/girlfriends (p<0.001), with casual sexual partners (p<0.001) and non-use of condom during last sexual

  15. Older and Younger Family Caregivers of Adults with Intellectual Disability: Factors Associated with Future Plans

    ERIC Educational Resources Information Center

    Chou, Yueh-Ching; Lee, Yue-Chune; Lin, Li-Chan; Kroger, Teppo; Chang, Ai-Ning

    2009-01-01

    A structured interview survey was conducted in a major city in Taiwan to explore and compare older and younger family primary caregivers' well being and their future caregiving plans for these adults with intellectual disability. The sample size was 315 caregivers who were 55 years or older and who cared for adults with intellectual disability and…

  16. Australians from a Non-English Speaking Background with Intellectual Disability: The Importance of Research

    ERIC Educational Resources Information Center

    Brolan, Claire E.; Gomez, Miriam Taylor; Lennox, Nicholas G.; Ware, Robert S.

    2013-01-01

    The authors review available data on Australians from a non-English speaking background (NESB) with intellectual disability (ID). They find that intellectual disability in the Australian NESB community has received limited attention in terms of both qualitative and quantitative research. The existing literature is over 10 years old and is relevant…

  17. Phonological and Visuo-Spatial Working Memory in Individuals with Intellectual Disability.

    ERIC Educational Resources Information Center

    Rosenquist, Celia; Conners, Frances A.; Roskos-Ewoldsen, Beverly

    2003-01-01

    Differences in storage and rehearsal components of the phonological loop and visuo-spatial sketchpad were investigated in individuals with (n=19) and without (n=21) intellectual disability matched on memory span. Those with intellectual disability had specific difficulty in the rehearsal component of the phonological loop. Groups did not differ in…

  18. The Prevalence and Severity of Physical Mobility Limitations in Older Adults with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Cleaver, Shaun; Ouellette-Kuntz, Helene; Hunter, Duncan

    2009-01-01

    Background: The population of older adults with intellectual disabilities is growing, creating new challenges for individuals, families and service providers. Although there has been increased research into the ageing process for adults with intellectual disabilities, there is little focused research investigating physical mobility. Materials and…

  19. End-of-Life Care for People with Intellectual Disabilities: Paid Carer Perspectives

    ERIC Educational Resources Information Center

    Ryan, Karen; Guerin, Suzanne; Dodd, Philip; McEvoy, John

    2011-01-01

    Background: Little is known of paid carers' perspectives when caring for people with intellectual disabilities at the end-of-life. Materials and methods: Sixty four individuals from intellectual disability services took part in 12 focus groups. Interviews were analysed using framework analysis. Results: Participants wanted to provide palliative…

  20. Exploring the Experiences of People with Intellectual Disabilities when Service Users Die

    ERIC Educational Resources Information Center

    Ryan, Karen; Guerin, Suzanne; Dodd, Philip; McEvoy, John

    2011-01-01

    Research is lacking on the effect of the deaths of fellow service users on people with intellectual disabilities. This qualitative study formed part of a project which aimed to describe the provision of palliative care to people with intellectual disabilities in Ireland and to assess the population's palliative care needs. We report on findings…

  1. Agreement in Quality of Life Assessment between Adolescents with Intellectual Disability and Their Parents

    ERIC Educational Resources Information Center

    Golubovic, Spela; Skrbic, Renata

    2013-01-01

    Intellectual disability affects different aspects of functioning and quality of life, as well as the ability to independently assess the quality of life itself. The paper examines the agreement in the quality of life assessments made by adolescents with intellectual disability and their parents compared with assessments made by adolescents without…

  2. The Social Inclusion of Young Adults with Intellectual Disabilities: A Phenomenology of Their Experiences

    ERIC Educational Resources Information Center

    Hall, Sarah A.

    2009-01-01

    The purpose of this phenomenological study was to describe the social inclusion of young adults with intellectual disabilities. Participants included 14 adults from 21 to 35 years of age with a mild or moderate intellectual disability who were able to verbally communicate their thoughts and experiences. I ensued with open-ended questions about…

  3. A Comparison of the Prevalence of Chronic Disease among People with and without Intellectual Disability

    ERIC Educational Resources Information Center

    Morin, Diane; Merineau-Cote, Julie; Ouellette-Kuntz, Helene; Tasse, Marc J.; Kerr, Michael

    2012-01-01

    Some studies have reported the presence of health disparities in people with intellectual disability. This study compared the prevalence of chronic health conditions between people with and without intellectual disability (ID). Health-related data for 791 people with ID were collected through a province-wide mail survey in Quebec, Canada. The…

  4. Symptoms of Depression and Challenging Behaviours in People with Intellectual Disability: A Bayesian Analysis. Brief Report

    ERIC Educational Resources Information Center

    Tsiouris, John; Mann, Rachel; Patti, Paul; Sturmey, Peter

    2004-01-01

    Clinicians need to know the likelihood of a condition given a positive or negative diagnostic test. In this study a Bayesian analysis of the Clinical Behavior Checklist for Persons with Intellectual Disabilities (CBCPID) to predict depression in people with intellectual disability was conducted. The CBCPID was administered to 92 adults with…

  5. Factors Associated with Self-Concept: Adolescents with Intellectual and Development Disabilities Share Their Perspectives

    ERIC Educational Resources Information Center

    Jones, Jennifer L.

    2012-01-01

    How one perceives the self is critical to long-term development. The purpose of this study was to explore the self-perceptions of adolescents with intellectual and developmental disabilities. Participants included 51 adolescents with intellectual and developmental disabilities, their parents (n = 50), and teachers (n = 12). A mixed-methods design…

  6. Public Special Services Provided to People with Intellectual Disabilities in Sweden: A Life-Span Perspective

    ERIC Educational Resources Information Center

    Umb-Carlsson, Oie

    2008-01-01

    This study describes public special services, support, and health care provided to an administratively defined county sample of people with intellectual disabilities from early childhood to adult age. Comparisons were made on the variables year of birth, sex, and assessed level of intellectual disabilities in 1974. Information was obtained from…

  7. Men with Intellectual Disabilities Who Have Attended Sex Offender Treatment Groups: A Follow-up

    ERIC Educational Resources Information Center

    Heaton, Kathryn M.; Murphy, Glynis H.

    2013-01-01

    Background: There have been a number of studies of treatment for men with intellectual disabilities and sexually abusive behaviour but few follow-up studies. Our aim was to follow up men with intellectual disabilities who had attended group cognitive behavioural treatment (CBT) for sexually abusive behaviour. Method Thirty-four men (from seven…

  8. The Social-Sexual Voice of Adults with Mild Intellectual Disabilities: A Qualitative Case Study

    ERIC Educational Resources Information Center

    Turner, George W.

    2012-01-01

    The purpose of this qualitative case study was to explore how adults with mild intellectual disabilities live out their social-sexual lives. Adults with intellectual disabilities (ID) are often assumed to be asexual or incapable of having sexual lives, resulting in a paucity of research-based knowledge. Research and educational efforts with this…

  9. The Prevalence of Psychiatric Disorders among People with Intellectual Disabilities: An Analysis of the Literature

    ERIC Educational Resources Information Center

    Whitaker, Simon; Read, Stephen

    2006-01-01

    Background: It has often been stated that the prevalence of psychiatric disorders in people with intellectual disabilities is greater than it is in the population as a whole. Method: The epidemiological studies on psychiatric disorders in people with intellectual disabilities were reviewed. Results: There is evidence that the prevalence of…

  10. Physical Performance of Individuals with Intellectual Disability: A 30-Year Follow up

    ERIC Educational Resources Information Center

    Lahtinen, Ulla; Rintala, Pauli; Malin, Antero

    2007-01-01

    Physical performance of Finnish adolescents (33 females, 44 males) with moderate intellectual disability (ID) was studied over a 30-year period. This study is an extension of Lahtinen's previous work on documenting the performance of individuals with intellectual disabilities over time. This study consisted of analyzing data from a total of four…

  11. The Impact of Intellectual Disability, Caregiver Burden, Family Functioning, Marital Quality, and Sense of Coherence

    ERIC Educational Resources Information Center

    Al-Krenawi, Alean; Graham, John R.; Al Gharaibeh, Fakir

    2011-01-01

    The present article is the first to consider the impact of intellectual disability on Bedouin-Arab families' caregiver burden, family functioning, marital quality, and sense of coherence. A random sample of 300 Bedouin-Arab parents with one or more intellectually disabled children, and a control group (n = 100) completed the McMaster Family…

  12. Eyewitness Memory and Eyewitness Identification Performance in Adults with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Ternes, Marguerite; Yuille, John C.

    2008-01-01

    Background: Since individuals with intellectual disabilities are often the only witnesses to alleged crimes, it is important to know their capacity to provide eyewitness testimony. Methods: Twenty-two participants with intellectual disabilities and 23 comparison group participants had their photographs taken by a confederate. One to two weeks…

  13. The Validity of a Personality Disorder Diagnosis for People with an Intellectual Disability

    ERIC Educational Resources Information Center

    Moreland, Jessica; Hendy, Steve; Brown, Freddy

    2008-01-01

    Background: It has long been appreciated that people with intellectual disabilities experience mental health problems. Studies into the prevalence of personality disorder in the population of people with an intellectual disability indicate significant variations, which have no clear explanation. Method: Work on personality disorder and personality…

  14. Teaching to Intellectual Disability Individuals the Shopping Skill through iPad

    ERIC Educational Resources Information Center

    Cakmak, Salih; Cakmak, Sibel

    2015-01-01

    Because of the importance of intellectual disability teenagers fulfilling the daily life skills by themselves, an animation that shows the intellectual disability and autistic high school students an interactive shopping skill by means of iPad was played and its effect on providing them with the independent shopping skill was analyzed. 3…

  15. A Structured Method of Assessing Dynamic Risk Factors among Sexual Abusers with Intellectual Disabilities

    ERIC Educational Resources Information Center

    McGrath, Robert J.; Livingston, Joy A.; Falk, Gail

    2007-01-01

    The nature and severity of dynamic risk factors among a group of 87 adult male sexual abusers with intellectual disabilities were examined as was the psychometric properties of a new scale designed to measure these risk factors. The Treatment Intervention and Progress Scale for Sexual Abusers with Intellectual Disabilities (TIPS-ID) is composed of…

  16. Developmental Behaviour Checklist (DBC) in the Assessment of Psychopathology in Finnish Children with Intellectual Disability

    ERIC Educational Resources Information Center

    Koskentausta, Terhi; Almqvist, Fredrik

    2004-01-01

    We evaluated the Developmental Behaviour Checklist (DBC) in the assessment of psychopathology in a Finnish population of children with intellectual disability. Disruptive behaviour was more common in children with mild intellectual disability, and problems with social interaction and communication in those with moderate, severe or profound…

  17. Contribution of Socioeconomic Position to Health Inequalities of British Children and Adolescents with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Emerson, Eric; Hatton, Chris

    2007-01-01

    We examined the contribution of socioeconomic position to the health and mental health status of children and adolescents with intellectual disabilities in a sample of 10,438 British children. Intellectual disability was a significant risk factor for poorer general health, OR = 4.5, emotional disorders, OR = 2.0, and conduct disorders, OR = 7.7.…

  18. Staffs' Knowledge and Perceptions of Working with Women with Intellectual Disabilities and Mental Health Problems

    ERIC Educational Resources Information Center

    Taggart, L.; McMillan, R.; Lawson, A.

    2010-01-01

    Aim: There is a growing evidence of the physical and mental health inequalities in people with intellectual disability (ID) although less has been written concerning the mental health of women with ID (International Association for the Scientific Study of Intellectual Disabilities). This is compared with the substantive literature published within…

  19. The Prevalence and Determinants of Obesity in Adults with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Melville, C. A.; Cooper, S. -A.; Morrison, J.; Allan, L.; Smiley, E.; Williamson, A.

    2008-01-01

    Background: Obesity is a major public health concern internationally and this study aimed to measure the prevalence of obesity in adults with intellectual disabilities in comparison with general population data, and examine the factors associated with obesity. Methods: This was a cross-sectional study of all adults with intellectual disabilities,…

  20. National Cost Efficiency of Supported Employees with Intellectual Disabilities: 2002 to 2007

    ERIC Educational Resources Information Center

    Cimera, Robert E.

    2010-01-01

    The cost efficiency of supported employees with intellectual disabilities who were served by vocational rehabilitation agencies throughout the United State from 2002 to 2007 was explored. Findings indicate that, on average, supported employees with intellectual disabilities were cost-efficient from the taxpayers' perspective regardless of whether…

  1. The Prevalence and Incidence of Mental Ill-Health in Adults with Autism and Intellectual Disabilities

    ERIC Educational Resources Information Center

    Melville, Craig A.; Cooper, Sally-Ann; Morrison, Jill; Smiley, Elita; Allan, Linda; Jackson, Alison; Finlayson, Janet; Mantry, Dipali

    2008-01-01

    The prevalence, and incidence, of mental ill-health in adults with intellectual disabilities and autism were compared with the whole population with intellectual disabilities, and with controls, matched individually for age, gender, ability-level, and Down syndrome. Although the adults with autism had a higher point prevalence of problem…

  2. Enabling Access and Enhancing Comprehension of Video Content for Postsecondary Students with Intellectual Disability

    ERIC Educational Resources Information Center

    Evmenova, Anya S.; Behrmann, Michael M.

    2014-01-01

    There is a great need for new innovative tools to integrate individuals with intellectual disability into educational experiences. This multiple baseline study examined the effects of various adaptations for improving factual and inferential comprehension of non-fiction videos by six postsecondary students with intellectual disability. Video…

  3. The Individual with Intellectual Disabilities and Sex Education: Perspectives of Involved Adults.

    ERIC Educational Resources Information Center

    Brown, Randel D.

    This study examined the perceptions of involved adults concerning sex education for individuals with intellectual disabilities. Participants were 40 individuals who provided direct care or instruction to individuals with intellectual disabilities or who had administrative responsibility for them. They completed a 36-item Q-sort that examined their…

  4. Thematic Analysis of the Effectiveness of an Inpatient Mindfulness Group for Adults with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Yildiran, Hatice; Holt, Rachel R.

    2015-01-01

    The study focused on the effectiveness of group mindfulness for people with intellectual disabilities in an assessment and treatment unit. Six participants with mild or moderate intellectual disabilities were interviewed using semi-structured interviews. The interviews focused on identifying the benefits and difficulties of using mindfulness. The…

  5. The Development of Research Skills in Young Adults with Intellectual Disability in Participatory Research

    ERIC Educational Resources Information Center

    Morgan, Michelle F.; Moni, Karen B.; Cuskelly, Monica

    2015-01-01

    There is limited information about specific research constructs developed by adults with intellectual disability in undertaking research despite increasing involvement in research "with" rather than "on" these individuals. Participatory research was used with three young adults with intellectual disability to collaboratively…

  6. People with Intellectual Disabilities in Iceland: A Bourdieuean Interpretation of Self-Advocacy

    ERIC Educational Resources Information Center

    Bjornsdottir, Kristin; Johannesson, Ingolfur Asgeir

    2009-01-01

    There are many barriers to social participation in Iceland for people with intellectual disabilities. This article builds on qualitative research with young adults with intellectual disabilities. The purpose of this article is to develop an approach where the struggles over the meaning of social participation of people with intellectual…

  7. Family Members' Reports of the Technology Use of Family Members with Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    Palmer, S. B.; Wehmeyer, M. L.; Davies, D. K.; Stock, S. E.

    2012-01-01

    Background: A nationwide survey of family members of people with intellectual and developmental disabilities ranging in age from birth through adulthood was conducted to replicate a similar effort by Wehmeyer and update the knowledge base concerning technology use by people with intellectual and developmental disabilities. Method: Survey responses…

  8. The Differences between Sex Offending and Challenging Behaviour in People with an Intellectual Disability

    ERIC Educational Resources Information Center

    Doyle, David Michael

    2004-01-01

    This paper differentiates between sexual offending behaviour and challenging behaviour in people with an intellectual disability. There is growing awareness that people with an intellectual disability can perform both classes of behaviour. The definitions of sexual offending and challenging behaviour are almost interchangeable, due to the poor…

  9. Training of Child and Adolescent Psychiatry Fellows in Autism and Intellectual Disability

    ERIC Educational Resources Information Center

    Marrus, Natasha; Veenstra-VanderWeele, Jeremy; Hellings, Jessica A.; Stigler, Kimberly A.; Szymanski, Ludwik; King, Bryan H.; Carlisle, L. Lee; Cook, Edwin H., Jr.; Pruett, John R., Jr.

    2014-01-01

    Patients with autism spectrum disorders and intellectual disability can be clinically complex and often have limited access to psychiatric care. Because little is known about post-graduate clinical education in autism spectrum disorder and intellectual disability, we surveyed training directors of child and adolescent psychiatry fellowship…

  10. Practitioners Who Work with Parents with Intellectual Disability: Stress, Coping and Training Needs

    ERIC Educational Resources Information Center

    Clayton, Olivia; Chester, Andrea; Mildon, Robyn; Matthews, Jan

    2008-01-01

    Background: Challenges for practitioners who work with parents with intellectual disability arise from several sources. The purpose of the current study was to identify the stressors experienced by practitioners who work with parents with intellectual disability in Australia, investigate coping strategies and explore training needs so as to inform…

  11. Efficacy of a Peer-Guided Exercise Programme for Adolescents with Intellectual Disability

    ERIC Educational Resources Information Center

    Stanish, Heidi I.; Temple, Viviene A.

    2012-01-01

    Background: Peer support is strongly associated with physical activity of adolescents. This study examined the efficacy of a YMCA-based, peer-guided exercise training programme for increasing health-related physical fitness among adolescents with intellectual disabilities. Materials and Methods: Adolescents with intellectual disabilities and…

  12. The Effects of Traumatizing Life Events on People with Intellectual Disabilities: A Systematic Review

    ERIC Educational Resources Information Center

    Wigham, Sarah; Hatton, Chris; Taylor, John L.

    2011-01-01

    This article systematically reviews the literature on the effects of adverse life events or trauma on people with intellectual disabilities. It is important to systematically examine empirical evidence of the effects of trauma in people with intellectual disabilities as to date the number of studies in this area is not substantial, and the effects…

  13. "Healthy Start." A National Strategy for Parents with Intellectual Disabilities and Their Children

    ERIC Educational Resources Information Center

    McConnell, David; Matthews, Jan; Llewellyn, Gwynnyth; Mildon, Robyn; Hindmarsh, Gabrielle

    2008-01-01

    Parents with intellectual disabilities, like all other parents, need support with child rearing. Often this support comes from family and friends, but in the case of parents with intellectual disabilities, they are more likely to have to rely on the service system. Research from a number of countries demonstrates that there is limited system…

  14. Participation in Sports by People with Intellectual Disabilities in England: A Brief Report

    ERIC Educational Resources Information Center

    Robertson, Janet; Emerson, Eric

    2010-01-01

    Background: Participation in sports has been linked to a range of physical, social and mental health benefits. Little is known about the extent to which people with intellectual disabilities take part in sports. This study looks at participation in sports and factors associated with participation by people with intellectual disabilities in…

  15. Comparative Policy Brief: Status of Intellectual Disabilities in the Islamic Republic of Iran

    ERIC Educational Resources Information Center

    Samadi, Sayyed Ali

    2008-01-01

    In the Islamic Republic of Iran, considerable stigma is attached to the presence of a family member with intellectual disabilities, and even in Iran's new constitution, a word with traditional, negative connotation has been retained to refer to persons with intellectual disabilities. While two government organizations have recently become involved…

  16. Bone Mineral Density in Adults With Down Syndrome, Intellectual Disability, and Nondisabled Adults

    ERIC Educational Resources Information Center

    Geijer, Justin R.; Stanish, Heidi I.; Draheim, Christopher C.; Dengel, Donald R.

    2014-01-01

    Individuals with intellectual disability (ID) or Down syndrome (DS) may be at greater risk of osteoporosis. The purpose of this study was to compare bone mineral density (BMD) of DS, ID, and non-intellectually disabled (NID) populations. In each group, 33 participants between the ages of 28 and 60 years were compared. BMD was measured with…

  17. Mortality among a Cohort of Persons with an Intellectual Disability in New South Wales, Australia

    ERIC Educational Resources Information Center

    Florio, Tony; Trollor, Julian

    2015-01-01

    Objectives: The main objective of the study was to compare mortality for people with an intellectual disability (ID) to the general population in New South Wales (NSW), Australia. A second objective was to provide mortality data for people with an intellectual disability from NSW in a standardized format, which allows for international comparisons…

  18. Individuals with Intellectual and/or Developmental Disabilities Use of Assistive Technology Devices in Support Provision

    ERIC Educational Resources Information Center

    Bryant, Brian R.; Seok, Soonwha; Ok, Minwook; Bryant, Diane Pedrotty

    2012-01-01

    During a four-year period, from 1988-1992, two significant events occurred that greatly influenced assistive technology (AT) and intellectual disability: the passage by Congress of the Technology-Related Assistance for Individuals with Disabilities Act of 1988 and publication by the American Association on Intellectual and Development Disabilities…

  19. Effect of Incorporating Adaptive Functioning Scores on the Prevalence of Intellectual Disability

    ERIC Educational Resources Information Center

    Obi, Obianuju; Braun, Kim Van Naarden; Baio, Jon; Drews-Botsch, Carolyn; Devine, Owen; Yeargin-Allsopp, Marshalyn

    2011-01-01

    Surveillance and epidemiologic research on intellectual disability often do not incorporate adaptive functioning (AF) data. Exclusion of AF data leads to overestimation of the prevalence of intellectual disability, the extent of which is not known. In this study, the authors evaluated the effect of incorporating AF data on overall intellectual…

  20. Stress in Parents of Adults with Intellectual Disabilities Attending Special Olympics Competitions

    ERIC Educational Resources Information Center

    Weiss, Jonathan A.; Diamond, Terry

    2005-01-01

    Background: It is important to determine how programmes serving the individual with intellectual disability may also help to reduce stress in parents of adult children with intellectual disabilities. The aim of this study was to test whether parents who frequently watch their children at Special Olympics (SO) competitions report less stress than…

  1. X-Linked Intellectual Disability: Unique Vulnerability of the Male Genome

    ERIC Educational Resources Information Center

    Stevenson, Roger E.; Schwartz, Charles E.

    2009-01-01

    X-linked intellectual disability (XLID) accounts for approximately 16% of males with intellectual disability (ID). This is, in part, related to the fact that males have a single X chromosome. Progress in the clinical and molecular characterization of XLID has outpaced progress in the delineation of ID due to genes on the other 22 chromosomes.…

  2. Predicting Sexual Re-Offending in a UK Sample of Adolescents with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Griffin, Helen Louise; Vettor, Shannon

    2012-01-01

    The current study aimed to address the paucity of research and assessment tools for adolescent males with intellectual disabilities who have sexually harmed, by comparing the predictive accuracy of the AIM2 assessment, developed with populations without intellectual disabilities, and the adapted AIM assessment, designed for this group. The sample…

  3. Prevalence of Sexual Abuse of People with Intellectual Disabilities in Taiwan

    ERIC Educational Resources Information Center

    Pan, Shu-Man

    2007-01-01

    Although sexual abuse of people with intellectual disabilities has emerged as a major issue in the West over recent years, few researchers have examined this issue in Taiwan. The prevalence and current state of sexual abuse for people with intellectual disabilities in Taiwan were investigated here. Results of face-to-face interviews with 336…

  4. Augmented Reality for Teaching Science Vocabulary to Postsecondary Education Students with Intellectual Disabilities and Autism

    ERIC Educational Resources Information Center

    McMahon, Don D.; Cihak, David F.; Wright, Rachel E.; Bell, Sherry Mee

    2016-01-01

    The purpose of this study was to examine the use of an emerging technology called augmented reality to teach science vocabulary words to college students with intellectual disability and autism spectrum disorders. One student with autism and three students with an intellectual disability participated in a multiple probe across behaviors (i.e.,…

  5. Structured Medication Review to Improve Pharmacotherapy in People with Intellectual Disability and Behavioural Problems

    ERIC Educational Resources Information Center

    Scheifes, Arlette; Egberts, Toine C. G.; Stolker, Joost Jan; Nijman, Henk. L. I.; Heerdink, Eibert R.

    2016-01-01

    Background: Polypharmacy and chronic drug use are common in people with intellectual disability and behavioural problems, although evidence of effectiveness and safety in this population is lacking. This study examined the effects of a structured medication review and aimed to improve pharmacotherapy in inpatients with intellectual disability.…

  6. A Study of Behaviour Profiles among Intellectually Disabled People in Residential Care in Hungary

    ERIC Educational Resources Information Center

    Csorba, Janos; Radvanyi, Katalin; Regenyi, Eniko; Dinya, Elek

    2011-01-01

    The authors investigated the behavioural dimensions of 269 intellectually disabled (ID) people in residential care in specialized institutions in Tolna county (South-West Hungary) with the aim of screening the frequency and severity of the relevant behavioural symptoms associated with intellectual disability and depending on the level of…

  7. Examining Rater Effects of the TGMD-2 on Children with Intellectual Disability

    ERIC Educational Resources Information Center

    Kim, Youngdeok; Park, Ilhyeok; Kang, Minsoo

    2012-01-01

    The purpose of this study was to investigate rater effects on the TGMD-2 when it applied to children with intellectual disability. A total of 22 children with intellectual disabilities participated in this study. Children's performances in each of 12 subtests of the TGMD-2 were recorded via video and scored by three adapted physical activity…

  8. Determinants of Prescription Drug Use by Adolescents with Intellectual Disabilities in Taiwan

    ERIC Educational Resources Information Center

    Yen, Chia-Feng; Lin, Jin-Ding; Loh, Ching-Hui; Shi, Leiyu; Hsu, Shang-Wei

    2009-01-01

    Direct family caregivers of population-based adolescents with intellectual disabilities in Taiwan were surveyed regarding their perceptions of the use of prescribed medication and its relationship with health-related behaviors, medical care and preventive health utilization of people with intellectual disabilities. Cross-sectional data on 1419…

  9. Carer Knowledge and Perceptions of Healthy Lifestyles for Adults with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Melville, Craig A.; Hamilton, Sarah; Miller, Susan; Boyle, Susan; Robinson, Nicola; Pert, Carol; Hankey, Catherine R.

    2009-01-01

    Background: Carers can have a significant impact supporting people with intellectual disabilities to make healthy lifestyle choices. This study examines carers' training needs on diet and physical activity. Methods: A cross-sectional survey was undertaken of the knowledge and perceptions of carers supporting adults with intellectual disabilities.…

  10. Co-Researching with People Who Have Intellectual Disabilities: Insights from a National Survey

    ERIC Educational Resources Information Center

    O'Brien, Patricia; McConkey, Roy; García-Iriarte, Edurne

    2014-01-01

    Background: Inclusive research with people with intellectual disabilities is growing internationally but with few studies examining its feasibility. Methods: In undertaking a national study exploring what life was like in Ireland for people with intellectual disabilities, a community of practice was developed involving a core group of…

  11. Physical Activity Levels among Adolescent and Young Adult Women and Men with and without Intellectual Disability

    ERIC Educational Resources Information Center

    Sundahl, Lina; Zetterberg, Marie; Wester, Anita; Rehn, Börje; Blomqvist, Sven

    2016-01-01

    Background: As physical activity can prevent overweight and promote general health, the aim was to investigate the amount of physical activity among adolescent and young adult women and men with intellectual disability (ID), compared to age-matched control groups without intellectual disability. A further aim was to examine whether physical…

  12. Staff Stress and Burnout in Intellectual Disability Services: Work Stress Theory and Its Application

    ERIC Educational Resources Information Center

    Devereux, Jason; Hastings, Richard; Noone, Steve

    2009-01-01

    Background: Staff in intellectual disability services can be at risk of stress and burnout at work. Given that staff well-being has implications for the quality of life of the staff themselves and people with intellectual disabilities themselves, this is an important research and practical topic. In this paper, we review work stress theories that…

  13. Understanding Information about Mortality among People with Intellectual and Developmental Disabilities in Canada

    ERIC Educational Resources Information Center

    Ouellette-Kuntz, Hélène; Shooshtari, Shahin; Balogh, Robert; Martens, Patricia

    2015-01-01

    Background: This paper reviews what is currently known about mortality among Canadians with intellectual and developmental disabilities and describes opportunities for ongoing monitoring. Methods: In-hospital mortality among adults with intellectual and developmental disabilities in Ontario was examined using hospital data. Mortality was compared…

  14. Supporting Primary Healthcare Professionals to Care for People with Intellectual Disability: A Research Agenda

    ERIC Educational Resources Information Center

    Lennox, Nicholas; Van Driel, Mieke L.; van Dooren, Kate

    2015-01-01

    Background: The vast health inequities experienced by people with intellectual disability remain indisputable. Persistent and contemporary challenges exist for primary healthcare providers and researchers working to contribute to improvements to the health and well-being of people with intellectual disability. Over two decades after the only…

  15. Masculinity Theory in Applied Research with Men and Boys with Intellectual Disability

    ERIC Educational Resources Information Center

    Wilson, Nathan John; Shuttleworth, Russell; Stancliffe, Roger; Parmenter, Trevor

    2012-01-01

    Researchers in intellectual disability have had limited theoretical engagement with mainstream theories of masculinity. In this article, the authors consider what mainstream theories of masculinity may offer to applied research on, and hence to therapeutic interventions with, men and boys with intellectual disability. An example from one research…

  16. Understanding Sources of Knowledge for Coaches of Athletes with Intellectual Disabilities

    ERIC Educational Resources Information Center

    MacDonald, Dany J.; Beck, Katie; Erickson, Karl; Côté, Jean

    2016-01-01

    Background: Recent research has investigated development of coaching knowledge; however, less research has investigated the development of coaches who coach athletes with intellectual disabilities. The purpose of this study was to understand how coaches of athletes with intellectual disabilities gain their knowledge. Method: Forty-five Special…

  17. Mortality of People with Intellectual Disabilities in England: A Comparison of Data from Existing Sources

    ERIC Educational Resources Information Center

    Heslop, Pauline; Glover, Gyles

    2015-01-01

    Background: At present, there is limited statistical information about mortality of people with intellectual disabilities in England. This study explores the data that are currently available. Materials and Methods: Four recent sources of data about mortality of people with intellectual disabilities in England are reviewed: the Confidential…

  18. How Employment Support and Social Integration Programmes are Viewed by the Intellectually Disabled

    ERIC Educational Resources Information Center

    Cramm, J. M.; Finkenflugel, H.; Kuijsten, R.; van Exel, N. J. A.

    2009-01-01

    Background: Supported employment is intended to facilitate and promote participation and integration of intellectually disabled citizens in society. This study investigated their view of the programme. Methods: Q-methodology was used. Eighteen respondents with a mild intellectual disability rank-ordered 22 statements representing five main aspects…

  19. Being a Member of a Self-Advocacy Group: Experiences of Intellectually Disabled People

    ERIC Educational Resources Information Center

    Gilmartin, Ann; Slevin, Eamonn

    2010-01-01

    A phenomenological methodology was used to explore the lived experiences of belonging to a self-advocacy group for people with intellectual disabilities. Thirteen persons with intellectual disabilities who attend three self-advocacy day centre based groups in a city in the west of Ireland were the sample identified for the study. Changes affected…

  20. An Interactive Multimedia Program to Prevent HIV Transmission in Men with Intellectual Disability

    ERIC Educational Resources Information Center

    Wells, Jennifer; Clark, Khaya; Sarno, Karen

    2014-01-01

    The efficacy of a computer-based interactive multimedia HIV/AIDS prevention program for men with intellectual disability (ID) was examined using a quasi-experimental within-subjects design. Thirty-seven men with mild to moderate intellectual disability evaluated the program. The pretest and posttest instruments assessed HIV/AIDS knowledge…

  1. Child Welfare-Involved Youth with Intellectual Disabilities: Pathways into and Placements in Foster Care

    ERIC Educational Resources Information Center

    Slayter, Elspeth; Springer, Cheryl

    2011-01-01

    Existing literature suggests that youth with intellectual disabilities are at increased risk for child maltreatment. Little is known about youth with intellectual disabilities who are supervised by child welfare authorities or living in foster care. Reasons for child welfare system involvement and placement types are explored. In this…

  2. Family Perspectives on Post-Secondary Education for Students with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Griffin, Megan M.; McMillan, Elise D.; Hodapp, Robert M.

    2010-01-01

    This study investigated the issues that families consider when making decisions regarding post-secondary education (PSE) for young adults with intellectual disabilities. Survey respondents were 108 family members of transition-aged students with intellectual disabilities. Although respondents were generally positive about PSE programs, they…

  3. Exogenous Melatonin for Sleep Problems in Individuals with Intellectual Disability: A Meta-Analysis

    ERIC Educational Resources Information Center

    Braam, Wiebe; Smits, Marcel G.; Didden, Robert; Korzilius, Hubert; van Geijlswijk, Ingeborg M.; Curfs, Leopold M. G.

    2009-01-01

    Recent meta-analyses on melatonin has raised doubts as to whether melatonin is effective in treating sleep problems in people without intellectual disabilities. This is in contrast to results of several trials on melatonin in treating sleep problems in individuals with intellectual disabilities. To investigate the efficacy of melatonin in treating…

  4. Walking Activity, Body Composition and Blood Pressure in Adults with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Stanish, Heidi I.; Draheim, Christopher C.

    2007-01-01

    Background: Individuals with intellectual disabilities engage in limited physical activity which places their health at risk. This study examined the walking activity, body composition and blood pressure of adults with intellectual disabilities. Methods: A group of male and female adults (n = 103) wore a pedometer for 7 days and were categorized…

  5. Health Disparities of Adults with Intellectual Disabilities: What Do We Know? What Do We Do?

    ERIC Educational Resources Information Center

    Krahn, Gloria L.; Fox, Michael H.

    2014-01-01

    Background: Recent attention to health of people with intellectual disabilities has used a health disparities framework. Building on historical context, the paper summarizes what is known about health disparities from reports and research and provides direction on what to do to reduce these disparities among adults with intellectual disabilities.…

  6. Prisoners with intellectual disabilities and detention status. Findings from a UK cross sectional study of prisons.

    PubMed

    Ali, Afia; Ghosh, Sanjib; Strydom, Andre; Hassiotis, Angela

    2016-01-01

    The purpose of this study was to compare social and environmental historical and contextual risk factors between prisoners with intellectual disabilities and those without intellectual disabilities, and to investigate whether prisoners with intellectual disabilities were more likely to be placed on remand in prison (awaiting trial or sentencing) compared to those without intellectual disabilities, after controlling for socio-demographic factors such as age, gender, ethnicity, accommodation status and nature of offences. In this study, we carried out a secondary analysis of data from the 1997 Prison survey, which included 131 prisons in England and Wales. A fixed sampling fraction was used to obtain a representative sample of prisoners. A total of 3563 prisoners were approached and 3142 (88%) prisoners gave informed consent to be interviewed. Of these, 170 were identified as having intellectual disabilities using the Quick Test. Prisoners with intellectual disabilities were more likely to have lived in institutions or taken into local authority care and more likely to live in temporary accommodation. They were less likely to have had a paid job or any educational qualifications and more likely to perceive a lack of social support. Prisoners with intellectual disabilities were more likely to be placed on remand and were less likely to be sentenced, even after controlling for socio-demographic factors and nature of offence. This study suggests that prisons should be more pro-active at identifying people with intellectual disabilities and ensuring that their needs are met, including appropriate access to bail and court diversion schemes. PMID:26921526

  7. Detecting and Treating Depression in People with Mild Intellectual Disability: The Views of Key Stakeholders

    ERIC Educational Resources Information Center

    McGillivray, Jane A.; McCabe, Marita P.

    2010-01-01

    There is a pressing need for the development of programs for the early identification and treatment of depression in individuals with mild intellectual disability. The aim of this study was to ascertain the perspective of 64 key stakeholders (people with intellectual disability, healthcare professionals, family/caregivers & support workers)…

  8. Impact of Mental Health Training for Frontline Staff Working with Children with Severe Intellectual Disabilities

    ERIC Educational Resources Information Center

    Whitehurst, Teresa

    2008-01-01

    The risk factors for young people with intellectual disabilities developing a mental health disorder are higher than those found in the general population, yet training is very rarely available to frontline staff. A recent study in the United Kingdom cited prevalence rates of mental ill health among adults with intellectual disabilities ranging…

  9. On Some Recent Claims for the Efficacy of Cognitive Therapy for People with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Sturmey, Peter

    2006-01-01

    Background: Many authors have expressed concern regarding the efficacy of psychotherapy, including psychotherapy for people with intellectual disabilities. Materials and Methods: Recently, many authors have made claims for the effectiveness of cognitive therapy for treating people with intellectual disabilities. During this debate, applied…

  10. Perceptions about Intellectual Disability: A Qualitative Study from Vellore, South India

    ERIC Educational Resources Information Center

    Edwardraj, S.; Mumtaj, K.; Prasad, J. H.; Kuruvilla, A.; Jacob, K. S.

    2010-01-01

    Background: Cultural and religious beliefs influence perceptions about health and illness. Data, from India, on perceptions about intellectual disability are scant. This study explored people's cultural beliefs and attitudes about intellectual disability, perceived needs and burden associated with care in Vellore, south India. Method: A…

  11. Review of Academic Mathematics Instruction for Students with Mild Intellectual Disability

    ERIC Educational Resources Information Center

    Hord, Casey; Bouck, Emily C.

    2012-01-01

    Mathematics education--like all education--faced changes in recent years including increasing expectations, and these expectations have impacted all students, including students with mild intellectual disability. To explore the impact of the changes on mathematics education on students with mild intellectual disability, the authors reviewed the…

  12. Assessing Components of Empathy in Sex-Offenders with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Ralfs, Sonya; Beail, Nigel

    2012-01-01

    Background: Because of a lack of research investigating empathy in sex offenders with intellectual disabilities, this study explored empathy in sex offenders and non-offenders with intellectual disabilities. Specific aims were to explore differences between these groups on measures of the components of empathy. Methods: The scores of 21…

  13. Attention-Deficit/Hyperactivity Disorder among Children with and without Intellectual Disability: An Examination across Time

    ERIC Educational Resources Information Center

    Neece, C. L.; Baker, B. L.; Blacher, J.; Crnic, K. A.

    2011-01-01

    Background: Children with intellectual and developmental disabilities are at heightened risk for mental disorders, and disruptive behaviour disorders appear to be the most prevalent. The current study is a longitudinal examination of attention-deficit/hyperactivity disorder (ADHD) among children with and without intellectual disability (ID) across…

  14. Family Quality of Life: Adult School Children with Intellectual Disabilities in Bosnia and Herzegovina

    ERIC Educational Resources Information Center

    Svraka, E.; Loga, S.; Brown, I.

    2011-01-01

    Aims: This study endeavours to provide initial data on quality of life for families with adult children who have intellectual disabilities (ID) in the Canton of Sarajevo. Methods: The principal measure used was the "Family Quality of life Survey 2006-main caregivers of people with intellectual or developmental disabilities." The sample consisted…

  15. Health Policy and the Community Safety Net for Individuals with Intellectual Disability

    ERIC Educational Resources Information Center

    Pollack, Harold A.

    2011-01-01

    This article explores social policy developments in the arena of intellectual and developmental disabilities. It begins by summarizing the challenges facing persons with intellectual disabilities and their caregivers in 1945. Families depended on a patchwork of over-crowded and under-funded large state institutions. Children with intellectual…

  16. The Process of Perceiving Stigmatization: Perspectives from Taiwanese Young People with Intellectual Disability

    ERIC Educational Resources Information Center

    Chen, Chih-Hsuan; Shu, Bih-Ching

    2012-01-01

    Background: There is a dearth of studies about the causes of stigmatization in people with intellectual disability. This study is aimed at gaining an understanding of how feelings of stigmatization are formed and perceived among young people with intellectual disability in Taiwanese cultural and social contexts. Materials and Methods: Fourteen…

  17. Prevalence of Falls and Risk Factors in Adults with Intellectual Disability

    ERIC Educational Resources Information Center

    Hsieh, Kelly; Rimmer, James; Heller, Tamar

    2012-01-01

    The purpose of this study was to examine the prevalence of falls and risk factors for falls in 1,515 adults (greater than or equal to 18 years) with intellectual disability using baseline data from the Longitudinal Health and Intellectual Disability Study. Nearly 25% of adults from the study were reported to have had one or more falls in the past…

  18. Physical Activity Benefits and Needs in Adults with Intellectual Disabilities: Systematic Review of the Literature

    ERIC Educational Resources Information Center

    Bartlo, Pamela; Klein, Penelope J.

    2011-01-01

    Regular physical activity is vital for adult individuals with intellectual disabilities. The purpose of this review was to assess critically the evidence on effectiveness of physical activity interventions for adults with intellectual disability. An electronic database search was conducted. Research was then assessed for methodological rigor, and…

  19. Symptoms of ADHD and Their Correlates in Children with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Hastings, Richard P.; Beck, Alexandra; Daley, Dave; Hill, Christopher

    2005-01-01

    Existing research suggests that children with intellectual disabilities are at increased risk for ADHD, and that the symptoms of the disorder might successfully be treated with stimulant drugs. However, there has been little exploration of ADHD symptoms and their correlates in children with intellectual disabilities. Analyses of three samples of…

  20. Sexuality Education for Students with Intellectual Disabilities, a Critical Pedagogical Approach: Outing the Ignored Curriculum

    ERIC Educational Resources Information Center

    Gougeon, Nathalie A.

    2009-01-01

    In this paper, it is argued that sexuality education for individuals with intellectual disabilities has historically been incomplete to non-existent. While some progress has been made in this area, individuals with intellectual disabilities continue to receive inadequate sexuality education due to its failure to address the "ignored curriculum".…

  1. The Role and Timing of Palliative Care in Supporting Persons with Intellectual Disability and Advanced Dementia

    ERIC Educational Resources Information Center

    McCarron, Mary; McCallion, Philip; Fahey-McCarthy, Elizabeth; Connaire, Kevin

    2011-01-01

    Aim: To better describe the role and timing of palliative care in supporting persons with intellectual disabilities and advanced dementia (AD). Background: Specialist palliative care providers have focused mostly on people with cancers. Working with persons with intellectual disabilities and AD offers opportunities to expand such palliative care…

  2. Surveying Community Nursing Support for Persons with an Intellectual Disability and Palliative Care Needs

    ERIC Educational Resources Information Center

    Bailey, Maria; Doody, Owen; Lyons, Rosemary

    2016-01-01

    Palliative care services have developed over the years to support all persons with life-limiting conditions. Moreover, services for people with an intellectual disability have moved from the traditional institutional setting to supporting people with an intellectual disability to live in their own community and family home. The expansion of…

  3. Transition Services for Students with Mild Intellectual Disability in Saudi Arabia

    ERIC Educational Resources Information Center

    Alnahdi, Ghaleb

    2013-01-01

    This study examined teachers' attitudes and perceptions toward transition services for students with mild intellectual disability in Saudi Arabia, and also examined the relationship between teachers' attitudes regarding transition services for students with mild intellectual disability and teachers' gender and educational…

  4. Community Management of Sex Offenders with Intellectual Disabilities: Characteristics, Services, and Outcome of a Statewide Program

    ERIC Educational Resources Information Center

    McGrath, Robert J.; Livingston, Joy A.; Falk, Gail

    2007-01-01

    The state of Vermont closed its only institution for persons with intellectual disabilities in 1993 and moved to a totally community-based model of services. Here we describe the characteristics of the near exhaustive statewide sample of adult male sex offenders with intellectual disabilities (N = 103) who received these services between 1993 and…

  5. Starting a New Job: The Social and Emotional Experience of People with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Jahoda, Andrew; Banks, Pauline; Dagnan, Dave; Kemp, Jeremy; Kerr, Wendy; Williams, Victoria

    2009-01-01

    Background: Employment is viewed by policy makers as both a human right and as a means of changing the marginalized status of people with intellectual disabilities, with important social and emotional benefits. However, there has been little longitudinal research examining the experience of people with intellectual disabilities in the workplace.…

  6. School Supported Work Placements for Students with Intellectual Disabilities: Why Inclusive Principles/Principals Matter!

    ERIC Educational Resources Information Center

    Gallagher, Tiffany L.; Bennett, Sheila M.

    2013-01-01

    This article offers considerations for principals and other educators as they seek to provide students with intellectual disabilities (ID) with authentic work placement experiences. Survey and interview data gathered from 20 employers, 7 paraprofessionals (job coaches), a principal, and 21 students with intellectual disabilities provide a…

  7. Mainstream Students' Attitudes to Possible Inclusion in Unified Sports with Students Who Have an Intellectual Disability

    ERIC Educational Resources Information Center

    Townsend, Michael; Hassall, John

    2007-01-01

    Background: Schools in New Zealand do not normally include students with intellectual disability in their sports programmes. This study examined regular students' attitudes towards the possible inclusion of students with an intellectual disability in an integrated sports programme within their school. Materials and Methods: A total of 170 school…

  8. Mothers' and Fathers' Roles in Caring for an Adult Child with an Intellectual Disability

    ERIC Educational Resources Information Center

    Rowbotham, Michelle; Carroll, Annemaree; Cuskelly, Monica

    2011-01-01

    To date, there have been few studies of mothers' and fathers' roles in caring for their adult children with intellectual disabilities. The present study investigated the care-giving roles of mother and father couples caring for their adult offspring with an intellectual disability, their psychological health, and the demands and satisfaction of…

  9. The Effectiveness of Talking Mats[R] with People with Intellectual Disability

    ERIC Educational Resources Information Center

    Murphy, Joan; Cameron, Lois

    2008-01-01

    People with intellectual disability have significant difficulties in ensuring their voice is heard. Talking Mats is a low tech communication resource which helps understanding and supports expression. This study examined the effectiveness of the resource for people with intellectual disability. A mixed method quantitative and qualitative study…

  10. Working Memory Functions in Children with Different Degrees of Intellectual Disability

    ERIC Educational Resources Information Center

    Schuchardt, K.; Gebhardt, M.; Maehler, C.

    2010-01-01

    Background: In recent years, there has been increased research interest in the functioning of working memory in people with intellectual disabilities. Although studies have repeatedly found these individuals to have weak working memory skills, few investigations have distinguished between different degrees of intellectual disability. This study…

  11. "Sometimes I feel overwhelmed": educational needs of family physicians caring for people with intellectual disability.

    PubMed

    Wilkinson, Joanne; Dreyfus, Deborah; Cerreto, Mary; Bokhour, Barbara

    2012-06-01

    Primary care physicians who care for adults with intellectual disability often lack experience with the population, and patients with intellectual disability express dissatisfaction with their care. Establishing a secure primary care relationship is particularly important for adults with intellectual disability, who experience health disparities and may rely on their physician to direct/coordinate their care. The authors conducted semistructured interviews with 22 family physicians with the goal of identifying educational needs of family physicians who care for people with intellectual disability. Interviews were transcribed and coded using tools from grounded theory. Several themes related to educational needs were identified. Physician participants identified themes of "operating without a map," discomfort with patients with intellectual disability, and a need for more exposure to/experience with people with intellectual disability as important content areas. The authors also identified physician frustration and lack of confidence, compounded by anxiety related to difficult behaviors and a lack of context or frame of reference for patients with intellectual disability. Primary care physicians request some modification of their educational experience to better equip them to care for patients with intellectual disability. Their request for experiential, not theoretical, learning fits well under the umbrella of cultural competence (a required competency in U.S. medical education). PMID:22731973

  12. Research Ethics and the Use of Visual Images in Research with People with Intellectual Disability

    ERIC Educational Resources Information Center

    Boxall, Kathy; Ralph, Sue

    2009-01-01

    The aim of this paper is to encourage debate about the use of creative visual approaches in intellectual disability research and discussion about Internet publication of photographs. Image-based research with people with intellectual disability is explored within the contexts of tighter ethical regulation of social research, increased interest in…

  13. Individual and Service Factors Affecting Deinstitutionalization and Community Use of People with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Baker, Peter A.

    2007-01-01

    Background: The aim was to evaluate the effect of the closure of a small intellectual disability hospital on the community use of those people involved. In addition, the study sought to identify those factors that might influence the community use of people with intellectual disabilities. Methods: The impact of resettlement was investigated using…

  14. The Emotional Experience of People with Intellectual Disability: An Analysis Using the International Affective Pictures System

    ERIC Educational Resources Information Center

    Bermejo, Belen G.; Mateos, Pedro M.; Sanchez-Mateos, Juan Degado

    2014-01-01

    The present study provides information on the emotional experience of people with intellectual disability. To evaluate this emotional experience, we have used the International Affective Pictures System (IAPS). The most important result from this study is that the emotional reaction of people with intellectual disability to affective stimuli is…

  15. Making Work Fit Care: Reconciliation Strategies Used by Working Mothers of Adults with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Chou, Yueh-Ching; Fu, Li-yeh; Chang, Heng-Hao

    2013-01-01

    Background: This study explored the experiences of working mothers with an adult child with intellectual disabilities to understand how they reconcile paid work and care responsibilities. Methods: Fifteen working mothers in Taiwan with an adult child with intellectual disabilities were interviewed, and an interpretative phenomenological approach…

  16. Social Interaction with Adults with Severe Intellectual Disability: Having Fun and Hanging Out

    ERIC Educational Resources Information Center

    Johnson, Hilary; Douglas, Jacinta; Bigby, Christine; Iacono, Teresa

    2012-01-01

    Background: Social interaction is integral to social inclusion. Little is known about the nature of social interaction between adults with severe intellectual disability and those with whom they engage. Method: Participants were six adults with intellectual disability and people identified as those with whom they shared demonstrable pleasurable…

  17. Have We Made Any Progress? Including Students with Intellectual Disabilities in Regular Education Classrooms

    ERIC Educational Resources Information Center

    Smith, Phil

    2007-01-01

    To what extent are students with intellectual disabilities included in regular education classrooms in the United States? Although inclusion is an accepted best practice in special education, little progress has been made in including students with intellectual and other developmental disabilities. Using historical and the most recent available…

  18. Assessment of Functional Caregiving in Homes with a Child with an Intellectual Disability

    ERIC Educational Resources Information Center

    Bezruczko, Nikolaus; Chen, Shu-Pi C.; Gulley, S. Beverly; Maher, Joan M.; Lawton, Cathrine S.

    2011-01-01

    The authors report on the nature of assessing functional caregiving (FC) via three studies, conducted by a university-public preschool collaboration that was designed to measure mothers' confidence to care for children with intellectual disabilities in their homes. Caregiving of children with intellectual disabilities was conceptualized in terms…

  19. Measuring Physical Activity with Pedometers in Older Adults with Intellectual Disability: Reactivity and Number of Days

    ERIC Educational Resources Information Center

    Hilgenkamp, Thessa; Van Wijck, Ruud; Evenhuis, Heleen

    2012-01-01

    The minimum number of days of pedometer monitoring needed to estimate valid average weekly step counts and reactivity was investigated for older adults with intellectual disability. Participants (N = 268) with borderline to severe intellectual disability ages 50 years and older were instructed to wear a pedometer for 14 days. The outcome measure…

  20. Application of Computer Simulation to Teach ATM Access to Individuals with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Davies, Daniel K.; Stock, Steven E.; Wehmeyer, Michael L.

    2003-01-01

    This study investigates use of computer simulation for teaching ATM use to adults with intellectual disabilities. ATM-SIM is a computer-based trainer used for teaching individuals with intellectual disabilities how to use an automated teller machine (ATM) to access their personal bank accounts. In the pilot evaluation, a prototype system was…

  1. Characteristics of People with Intellectual Disabilities in a Secure U.S. Forensic Hospital

    ERIC Educational Resources Information Center

    Stinson, Jill Diane; Robbins, Sharon Bradford

    2014-01-01

    Prior research examining persons with intellectual disabilities who have committed criminal offenses has focused primarily on correctional populations, or those who reside in secure forensic settings in the United Kingdom and Australia. This study describes 235 persons with intellectual, developmental, and cognitive disabilities who reside in a…

  2. Promoting Health of People with Intellectual Disabilities: Views of Professionals Working in Group Homes

    ERIC Educational Resources Information Center

    Wahlström, Lina; Bergström, Helena; Marttila, Anneli

    2014-01-01

    Deinstitutionalisation has influenced the life situation for people with intellectual disabilities, whilst the experiences of health promotion in group homes now are limited. This study aimed to explore aspects important to consider when promoting health amongst persons with intellectual disabilities in group homes, from the perspective of…

  3. Teaching Chained Tasks to Students with Intellectual Disabilities by Using Video Prompting in Small Group Instruction

    ERIC Educational Resources Information Center

    Aykut, Çigil; Dagseven Emecen, Deniz; Dayi, Eylem; Karasu, Necdet

    2014-01-01

    Teaching students with intellectual disabilities in groups presents several difficulties. Use of technology can reduce some of these difficulties. The literature cites several examples of skill acquisition. The purpose of this study is to teach skills to students with intellectual disabilities by using video prompting. A multiple-probe design of…

  4. The Quality of Life of Family Caregivers of Adults with Intellectual Disabilities in Taiwan

    ERIC Educational Resources Information Center

    Chou, Yueh-Ching; Lin, Li-Chan; Chang, Ai-Ling; Schalock, Robert L.

    2007-01-01

    Background: Taiwanese family carers of people with intellectual disabilities not only suffer from long-term stress but also need to cope with social difficulties. The aim of this study is to evaluate the quality of life (QOL) among family carers of people with intellectual disabilities. Materials and methods: A census interview survey was…

  5. Route Learning and Shortcut Performance in Adults with Intellectual Disability: A Study with Virtual Environments

    ERIC Educational Resources Information Center

    Mengue-Topio, Hursula; Courbois, Yannick; Farran, Emily K.; Sockeel, Pascal

    2011-01-01

    The ability to learn routes though a virtual environment (VE) and to make a novel shortcut between two locations was assessed in 18 adults with intellectual disability and 18 adults without intellectual disability matched on chronological age. Participants explored two routes (A [double big arrow] B and A [double big arrow] C) until they reached a…

  6. Public Attitudes towards People with Intellectual Disabilities: A Qualitative Comparison of White British & South Asian People

    ERIC Educational Resources Information Center

    Coles, Sarah; Scior, Katrina

    2012-01-01

    Background: National and international polices promote the acceptance, integration and inclusion of people with intellectual disabilities into mainstream society. However, there is little systematic research into general population attitudes towards people with intellectual disabilities, and even less research, which considers the impact of…

  7. Traditional Chinese Values and Attitudes of Chinese University Students toward People with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Hampton, Nan Zhang; Xiao, Fei

    2009-01-01

    The purpose of the study was to explore relationships between traditional Chinese values and attitudes toward people with intellectual disabilities. A total of 534 college students in China participated in the study. Two instruments that measure Chinese values and attitudes toward people with intellectual disabilities were used. Results indicated…

  8. Public Awareness, Attitudes and Beliefs regarding Intellectual Disability: A Systematic Review

    ERIC Educational Resources Information Center

    Scior, Katrina

    2011-01-01

    The general public's responses to people with intellectual disabilities influence the likely success or failure of policies aimed at increasing their social inclusion. The present paper provides a review of general population based research into awareness, attitudes and beliefs regarding intellectual disability published in English between 1990…

  9. Microenterprise Options for People with Intellectual and Developmental Disabilities: An Outcome Evaluation

    ERIC Educational Resources Information Center

    Conroy, James W.; Ferris, Charles S.; Irvine, Ron

    2010-01-01

    Opportunities for community employment of people with intellectual and developmental disabilities are limited, and have not improved over the past quarter century of interest and effort. This report provides the findings from an outcome study of this issue. Twenty-seven people with intellectual and developmental disability, residents in Kent…

  10. Quality of Life for Transition-Age Youth with Autism or Intellectual Disability

    ERIC Educational Resources Information Center

    Biggs, Elizabeth E.; Carter, Erik W.

    2016-01-01

    We examined the subjective health and well-being of 389 transition-age youth with autism or intellectual disability using the parent proxy version of the KIDSCREEN-27. Parents reported well-being of youth with autism and youth with intellectual disability lower than a normative sample in the domains of Physical Well-being, Psychological…

  11. Choice, Degree of Preference, and Happiness Indices with Persons with Intellectual Disabilities: A Surprising Finding

    ERIC Educational Resources Information Center

    Schwartzman, Lisa; Martin, Garry L.; Yu, C. T.; Whiteley, John

    2004-01-01

    Two persons with severe intellectual disabilities and two persons with profound intellectual disabilities were repeatedly presented with five different pairs of food items. The five pairs of items represented different degrees of preference, from highest to lowest. Happiness indices were monitored from the time that a pair of items was presented…

  12. Prevalence of Intellectual Disability: A Meta-Analysis of Population-Based Studies

    ERIC Educational Resources Information Center

    Maulik, Pallab K.; Mascarenhas, Maya N.; Mathers, Colin D.; Dua, Tarun; Saxena, Shekhar

    2011-01-01

    Intellectual disability is an extremely stigmatizing condition and involves utilization of large public health resources, but most data about its burden is based on studies conducted in developed countries. The aim of this meta-analysis was to collate data from published literature and estimate the prevalence of intellectual disability across all…

  13. Prevalence of Cardiovascular Risk Factors in Older People with Intellectual Disability

    ERIC Educational Resources Information Center

    de Winter, Channa F.; Magilsen, Karla W.; van Alfen, J. Claudia; Penning, Corine; Evenhuis, Heleen M.

    2009-01-01

    The prevalence and correlates of cardiovascular risk factors in older adults with intellectual disability was examined. We conducted a cross-sectional study with 50- to 90-year-old clients (N = 470) of three Dutch intellectual disability care providing organizations and found that healthy behavior was low, with 98.9% of the participants having an…

  14. Contribution of Leisure Satisfaction, Acceptance Disability, and Social Relationship to Life Satisfaction among Korean Individuals with Intellectual Disability

    ERIC Educational Resources Information Center

    Kim, Junhyoung; Schilling, Mary Lou; Kim, May; Han, Areum

    2016-01-01

    There is a dearth of literature that explores the relationships among leisure satisfaction, acceptance of disability, social relationships, and life satisfaction among adults with intellectual disability from Eastern countries. The purpose of this study was to examine how leisure satisfaction, disability acceptance, and social relationships are…

  15. Physical and motor skill training for children with intellectual disabilities.

    PubMed

    Hayakawa, Kimiyasu; Kobayashi, Kando

    2011-04-01

    This study investigated the effectiveness of using special training machines for children with intellectual disabilities to strengthen their body's inner muscles and improve their ability to maintain standing posture and improve walking movement. The participants were 23 high school age boys with intellectual disabilities who had difficulties expressing greetings, and needed to be led by the hand when walking. Four special training machines were used for walking movements, for standing and walking balance, for leg-hip extension, and for ipsilateral movement in a sitting position. Each participant underwent 30 min. of training once a week over a 3-mo. period during school time. Body control ability required to perform each training exercise was improved over the training period. A significant improvement was observed in the 50-m dash, mean 10-m walk time, and 10-m obstacle course walk. The hip joint split angle showed a significant increase. Legal guardians all reported their child had "improved and/or progressed" for each of the targeted movements. PMID:21667765

  16. Incontinence in Intellectual Disability: An Under Recognized Cause.

    PubMed

    Nair, Lal Devayanivasudevan; Sagayaraj, Benjamin; V T T, Rajan; Kumar, Radha

    2015-09-01

    Many children with Down syndrome may develop urinary incontinence during adolescence or nearing adulthood. Most often low mental ability, behavioural issues, urinary tract infection, hypothyroidism, atlanto-axial subluxation or sexual abuse may be suspected to be the reason. We report a case of Down syndrome with tethered cord syndrome (TCS) and Lipoma of Filum terminale with Cauda equina in normal position, as a cause of bowel and bladder incontinence. The need for operating with Cauda Equina in normal position is debated. But a conscious decision was taken to operate and the incontinence improved markedly which was documented by using a standardized questionnaire (King's questionnaire) and thereby making a difference in the child's life. A literature search did not result in any case of Down syndrome with tethered cord syndrome and secondary incontinence as presentation. Considering the possibility of TCS as a cause of incontinence, often neglected even in normal children, careful evaluation and correction of such problems will make a difference in the life of many intellectually disabled children. Incontinence should not be casually attributed to intellectual disability without ruling out other causes. PMID:26500975

  17. Aggression as positive reinforcement in people with intellectual disabilities.

    PubMed

    May, Michael E

    2011-01-01

    From an applied behavior-analytic perspective, aggression in people with intellectual disabilities is mostly maintained by social reinforcement consequences. However, nonsocial consequences have also been identified in functional assessments on aggression. Behaviors producing their own reinforcement have been labeled "automatic" or "nonsocial" in the behavior-analytic literature, a label that bares a striking resemblance to biobehavioral explanations of reward-seeking behaviors. Biobehavioral studies have revealed that aggression activates the same endogenous brain mechanisms as primary reinforcers like food. Therefore, integrating brain-environment explanations would result in a better understanding of the functional mechanisms associated with nonsocial aggression. The purpose of this paper was to explore aggression as a reinforcing consequence for reinforcement-seeking behaviors in people with intellectual disabilities. First, the literature establishing aggression as reinforcement for arbitrary responding will be reviewed. Next, the reward-related biological process associated with aggression was described. Finally, the paper discusses what might be done to assess and treat aggression maintained by nonsocial reinforcement. PMID:21700420

  18. Training of child and adolescent psychiatry fellows in autism and intellectual disability.

    PubMed

    Marrus, Natasha; Veenstra-Vanderweele, Jeremy; Hellings, Jessica A; Stigler, Kimberly A; Szymanski, Ludwik; King, Bryan H; Carlisle, L Lee; Cook, Edwin H; Pruett, John R

    2014-05-01

    Patients with autism spectrum disorders and intellectual disability can be clinically complex and often have limited access to psychiatric care. Because little is known about post-graduate clinical education in autism spectrum disorder and intellectual disability, we surveyed training directors of child and adolescent psychiatry fellowship programs. On average, child and adolescent psychiatry directors reported lectures of 3 and 4 h per year in autism spectrum disorder and intellectual disability, respectively. Training directors commonly reported that trainees see 1-5 patients with autism spectrum disorder or intellectual disability per year for outpatient pharmacological management and inpatient treatment. Overall, 43% of directors endorsed the need for additional resources for training in autism spectrum disorder and intellectual disability, which, coupled with low didactic and clinical exposure, suggests that current training is inadequate. PMID:24113341

  19. Pathways through Services for Offenders with Intellectual Disability: A One- and Two-Year Follow-Up Study

    ERIC Educational Resources Information Center

    Lindsay, William R.; Holland, Tony; Wheeler, Jessica R.; Carson, Derek; O'Brien, Gregory; Taylor, John L.; Steptoe, Lesley; Middleton, Claire; Price, Karen; Johnston, Susan; Young, Steven J.

    2010-01-01

    The pathways through services for offenders with intellectual disability were reviewed. Participants were 197 offenders with intellectual disability accepted into three types of community and three types of secure forensic intellectual disability services. They were first compared with 280 participants referred but not accepted into services and…

  20. New AP4B1 mutation in an African-American child associated with intellectual disability

    PubMed Central

    Lamichhane, Dronacharya

    2013-01-01

    Prevalence of intellectual disability (ID) varies from 1–3%. Genetic causes of ID are being increasingly recognized. Although multiple mutations have been identified as a cause of syndromic ID, the genetic etiology of non-syndromic ID is poorly understood. However, more than 100 loci have been mapped that are associated with non-syndromic ID. There have been a couple of reports of AP4B1 gene mutation causing severe intellectual disability, absent speech, shy character, stereotypic laughter, muscular hypotonia that progressed to spastic paraplegia, microcephaly, foot deformity, decreased muscle mass of the lower limbs, inability to walk, and growth retardation. They had structural brain abnormalities and seizures. The reported cases were from Arab families where consanguineous marriage is common. We encountered an African-American child who presented first at the age of 24 mo with language difficulties and was subsequently found to have moderate to severe intellectual disability by standardized tests. Shortly, he started to have seizures and problems with ambulation. Although he was hypotonic at the time of presentation, legs slowly became spastic at the age of 4 yr. After a thorough work up, he was found to have heterozygous mutation in the AP4B1 gene along with another missense mutation in the same gene. There has been no report of mutation in this gene in the North American population. Although AP4B1 typically is said to be an autosomal recessive disease-causing gene, our case is different in the sense that there are two mutations in the same gene one of which has never been reported before and co-exists with a known disease causing mutation. Yet, the phenotype of the case closely resembles those published previously.

  1. Pathogenic Variants in PIGG Cause Intellectual Disability with Seizures and Hypotonia.

    PubMed

    Makrythanasis, Periklis; Kato, Mitsuhiro; Zaki, Maha S; Saitsu, Hirotomo; Nakamura, Kazuyuki; Santoni, Federico A; Miyatake, Satoko; Nakashima, Mitsuko; Issa, Mahmoud Y; Guipponi, Michel; Letourneau, Audrey; Logan, Clare V; Roberts, Nicola; Parry, David A; Johnson, Colin A; Matsumoto, Naomichi; Hamamy, Hanan; Sheridan, Eamonn; Kinoshita, Taroh; Antonarakis, Stylianos E; Murakami, Yoshiko

    2016-04-01

    Glycosylphosphatidylinositol (GPI) is a glycolipid that anchors >150 various proteins to the cell surface. At least 27 genes are involved in biosynthesis and transport of GPI-anchored proteins (GPI-APs). To date, mutations in 13 of these genes are known to cause inherited GPI deficiencies (IGDs), and all are inherited as recessive traits. IGDs mainly manifest as intellectual disability, epilepsy, coarse facial features, and multiple organ anomalies. These symptoms are caused by the decreased surface expression of GPI-APs or by structural abnormalities of GPI. Here, we present five affected individuals (from two consanguineous families from Egypt and Pakistan and one non-consanguineous family from Japan) who show intellectual disability, hypotonia, and early-onset seizures. We identified pathogenic variants in PIGG, a gene in the GPI pathway. In the consanguineous families, homozygous variants c.928C>T (p.Gln310(∗)) and c.2261+1G>C were found, whereas the Japanese individual was compound heterozygous for c.2005C>T (p.Arg669Cys) and a 2.4 Mb deletion involving PIGG. PIGG is the enzyme that modifies the second mannose with ethanolamine phosphate, which is removed soon after GPI is attached to the protein. Physiological significance of this transient modification has been unclear. Using B lymphoblasts from affected individuals of the Egyptian and Japanese families, we revealed that PIGG activity was almost completely abolished; however, the GPI-APs had normal surface levels and normal structure, indicating that the pathogenesis of PIGG deficiency is not yet fully understood. The discovery of pathogenic variants in PIGG expands the spectrum of IGDs and further enhances our understanding of this etiopathogenic class of intellectual disability. PMID:26996948

  2. Behavioral Pattern during Dental Pain in Intellectually Disabled Children: A Comparative Study

    PubMed Central

    Shanmugam, Muthukali; Shivakumar, Vetrivel; Anitha, Vijayarangan; Meenapriya, Bagavathi Perumal; Aishwarya, Srinivasan; Anitha, Ramakrishnan

    2014-01-01

    Aim. Children with developmental disabilities generally experience more pain than the normal children. Description of pain is generally difficult in children and more so in children with intellectual disabilities. The study aimed at evaluating dental pain in children with intellectual disabilities. Methods. The survey was carried out in an institution caring for intellectually disabled children to determine the oral health status and the treatment needs of the special kids. 236 children were surveyed out of which the test group is comprised of 111 intellectually disabled children and the control group had 125 normal children with age ranging between five to eighteen years. A questionnaire was presented to the caregivers to elaborate about dental pain in their wards using the dental discomfort questionnaire (DDQ+). The children were examined for dental caries and periodontal status based on the WHO indices for oral hygiene status. Result. Results revealed a statistically significant difference between intellectual disability and brushing, chewing, and earache. The frequency of reporting dental pain was lesser in the intellectually disabled group. Conclusion. Children with intellectual disability tended to report dental pain of any nature with lesser frequency than typically developing peers. They also faced greater difficulty in brushing and chewing. PMID:27437469

  3. Differences in the intellectual profile of children with intellectual vs. learning disability.

    PubMed

    Cornoldi, Cesare; Giofrè, David; Orsini, Arturo; Pezzuti, Lina

    2014-09-01

    The WISC-IV was used to compare the intellectual profile of two groups of children, one with specific learning disorders (SLDs), the other with intellectual disabilities (ID), with a view to identifying which of the four main factor indexes and two additional indexes can distinguish between the groups. We collected information on WISC-IV scores for 267 children (Mage=10.61 [SD=2.51], range 6-16 years, females=99) with a diagnosis of either SLD or ID. Children with SLD performed better than those with ID in all measures. Only the SLD children, not the ID children, revealed significant differences in the four main factor indexes, and their scores for the additional General Ability Index (GAI) were higher than for the Cognitive Proficiency Index (CPI). Children with a diagnosis of SLD whose Full-Scale Intelligence Quotient (FSIQ) was <85 showed a similar pattern. Our findings confirm the hypothesis that children with SLD generally obtain high GAI scores, but have specific deficiencies relating to working memory and processing speed, whereas children with ID have a general intellectual impairment. These findings have important diagnostic and clinical implications and should be considered when making diagnostic decisions in borderline cognitive cases. PMID:24927516

  4. Intellectual developmental disorders: towards a new name, definition and framework for "mental retardation/intellectual disability" in ICD-11.

    PubMed

    Salvador-Carulla, Luis; Reed, Geoffrey M; Vaez-Azizi, Leila M; Cooper, Sally-Ann; Martinez-Leal, Rafael; Bertelli, Marco; Adnams, Colleen; Cooray, Sherva; Deb, Shoumitro; Akoury-Dirani, Leyla; Girimaji, Satish Chandra; Katz, Gregorio; Kwok, Henry; Luckasson, Ruth; Simeonsson, Rune; Walsh, Carolyn; Munir, Kemir; Saxena, Shekhar

    2011-10-01

    Although "intellectual disability" has widely replaced the term "mental retardation", the debate as to whether this entity should be conceptualized as a health condition or as a disability has intensified as the revision of the World Health Organization (WHO)'s International Classification of Diseases (ICD) advances. Defining intellectual disability as a health condition is central to retaining it in ICD, with significant implications for health policy and access to health services. This paper presents the consensus reached to date by the WHO ICD Working Group on the Classification of Intellectual Disabilities. Literature reviews were conducted and a mixed qualitative approach was followed in a series of meetings to produce consensus-based recommendations combining prior expert knowledge and available evidence. The Working Group proposes replacing mental retardation with intellectual developmental disorders, defined as "a group of developmental conditions characterized by significant impairment of cognitive functions, which are associated with limitations of learning, adaptive behaviour and skills". The Working Group further advises that intellectual developmental disorders be incorporated in the larger grouping (parent category) of neurodevelopmental disorders, that current subcategories based on clinical severity (i.e., mild, moderate, severe, profound) be continued, and that problem behaviours be removed from the core classification structure of intellectual developmental disorders and instead described as associated features. PMID:21991267

  5. Stair-Walking Performance in Adolescents with Intellectual Disabilities.

    PubMed

    Shieh, Wann-Yun; Ju, Yan-Ying; Yu, Yu-Chun; Lin, Che-Kuan; Lin, Yen-Tzu; Cheng, Hsin-Yi Kathy

    2016-01-01

    Most individuals with intellectual disabilities (ID) demonstrate problems in learning and movement coordination. Consequently, they usually have difficulties in activities such as standing, walking, and stair climbing. To monitor the physical impairments of these children, regular gross motor evaluation is crucial. Straight-line level walking is the most frequently used test of their mobility. However, numerous studies have found that unless the children have multiple disabilities, no significant differences can be found between the children with ID and typically-developed children in this test. Stair climbing presents more challenges than level walking because it is associated with numerous physical factors, including lower extremity strength, cardiopulmonary endurance, vision, balance, and fear of falling. Limited ability in those factors is one of the most vital markers for children with ID. In this paper, we propose a sensor-based approach for measuring stair-walking performance, both upstairs and downstairs, for adolescents with ID. Particularly, we address the problem of sensor calibration to ensure measurement accuracy. In total, 62 participants aged 15 to 21 years, namely 32 typically-developed (TD) adolescents, 20 adolescents with ID, and 10 adolescents with multiple disabilities (MD), participated. The experimental results showed that stair-walking is more sensitive than straight-line level walking in capturing gait characteristics for adolescents with ID. PMID:27409621

  6. Stair-Walking Performance in Adolescents with Intellectual Disabilities

    PubMed Central

    Shieh, Wann-Yun; Ju, Yan-Ying; Yu, Yu-Chun; Lin, Che-Kuan; Lin, Yen-Tzu; Cheng, Hsin-Yi Kathy

    2016-01-01

    Most individuals with intellectual disabilities (ID) demonstrate problems in learning and movement coordination. Consequently, they usually have difficulties in activities such as standing, walking, and stair climbing. To monitor the physical impairments of these children, regular gross motor evaluation is crucial. Straight-line level walking is the most frequently used test of their mobility. However, numerous studies have found that unless the children have multiple disabilities, no significant differences can be found between the children with ID and typically-developed children in this test. Stair climbing presents more challenges than level walking because it is associated with numerous physical factors, including lower extremity strength, cardiopulmonary endurance, vision, balance, and fear of falling. Limited ability in those factors is one of the most vital markers for children with ID. In this paper, we propose a sensor-based approach for measuring stair-walking performance, both upstairs and downstairs, for adolescents with ID. Particularly, we address the problem of sensor calibration to ensure measurement accuracy. In total, 62 participants aged 15 to 21 years, namely 32 typically-developed (TD) adolescents, 20 adolescents with ID, and 10 adolescents with multiple disabilities (MD), participated. The experimental results showed that stair-walking is more sensitive than straight-line level walking in capturing gait characteristics for adolescents with ID. PMID:27409621

  7. Absence of Nails, Deaf-mutism, Seizures, and Intellectual Disability: A Case Report

    PubMed Central

    Sagayaraj, Benjamin; Kumar, Radha

    2015-01-01

    Seizures coexists in children with intellectual disability and are often attributed to neural dysfunction associated with it. Often a careful clinical examination will unravel many diagnostic pointers as in this 8-year-old child with global development delay, deaf-mutism and moderate intellectual disability (mental retardation) who presented with seizures in the emergency department. General examination revealed dysmorphic features like anonychia, low set ears, long philtrum, large lower lips and abnormal dermatoglyphics with features of osteodystrophy on radiology. She was diagnosed as a case of DOORS syndrome, an extremely rare genetic condition affecting the TCA cycle, with just over 40 cases reported, worldwide till date, since its first description in 1961. Her genetic analysis did not reveal the common TBC1D24 mutation in 16p13.3 resulting often from substitutions affecting the arginine at position 242, in spite of all classical clinical features associated with it, suggesting genetic heterogeneity in DOORS syndrome. Though four year follow-up revealed changes in seizure pattern, there was no optic atrophy, change in IQ or peripheral nerve problem. This probably suggests that children with typical clinical features and TBC1D24 mutations may have more progressive deterioration than those without it and newer molecular techniques may identify unexplained phenotypic expressions. PMID:26023614

  8. Segregation of a 4p16.3 duplication with a characteristic appearance, macrocephaly, speech delay and mild intellectual disability in a 3-generation family.

    PubMed

    Schönewolf-Greulich, Bitten; Ravn, Kirstine; Hamborg-Petersen, Bente; Brøndum-Nielsen, Karen; Tümer, Zeynep

    2013-09-01

    Microscopically visible rearrangements of chromosome 4p includes the two well known abnormalities: partial trisomy 4p, and deletions of the Wolf-Hirschhorn critical regions 1 and 2 (WHSCR 1 and WHSCR2, respectively), which cause well-defined phenotypes including minor anomalies, and developmental delay/intellectual disability. In contrast small duplications of 4p are rare but with the advent of microarray techniques a few cases have been reported in recent years. Here we describe a 3 Mb duplication at 4p16.3 segregating with a characteristic phenotype, macrocephaly, speech delay and mild intellectual disability in a three generation family. PMID:23894085

  9. Single exon-resolution targeted chromosomal microarray analysis of known and candidate intellectual disability genes.

    PubMed

    Tucker, Tracy; Zahir, Farah R; Griffith, Malachi; Delaney, Allen; Chai, David; Tsang, Erica; Lemyre, Emmanuelle; Dobrzeniecka, Sylvia; Marra, Marco; Eydoux, Patrice; Langlois, Sylvie; Hamdan, Fadi F; Michaud, Jacques L; Friedman, Jan M

    2014-06-01

    Intellectual disability affects about 3% of individuals globally, with∼50% idiopathic. We designed an exonic-resolution array targeting all known submicroscopic chromosomal intellectual disability syndrome loci, causative genes for intellectual disability, and potential candidate genes, all genes encoding glutamate receptors and epigenetic regulators. Using this platform, we performed chromosomal microarray analysis on 165 intellectual disability trios (affected child and both normal parents). We identified and independently validated 36 de novo copy-number changes in 32 trios. In all, 67% of the validated events were intragenic, involving only exon 1 (which includes the promoter sequence according to our design), exon 1 and adjacent exons, or one or more exons excluding exon 1. Seventeen of the 36 copy-number variants involve genes known to cause intellectual disability. Eleven of these, including seven intragenic variants, are clearly pathogenic (involving STXBP1, SHANK3 (3 patients), IL1RAPL1, UBE2A, NRXN1, MEF2C, CHD7, 15q24 and 9p24 microdeletion), two are likely pathogenic (PI4KA, DCX), two are unlikely to be pathogenic (GRIK2, FREM2), and two are unclear (ARID1B, 15q22 microdeletion). Twelve individuals with genomic imbalances identified by our array were tested with a clinical microarray, and six had a normal result. We identified de novo copy-number variants within genes not previously implicated in intellectual disability and uncovered pathogenic variation of known intellectual disability genes below the detection limit of standard clinical diagnostic chromosomal microarray analysis. PMID:24253858

  10. Mortality Among Adults With Intellectual Disability in England: Comparisons With the General Population

    PubMed Central

    Hosking, Fay J.; Shah, Sunil M.; Harris, Tess; DeWilde, Stephen; Beighton, Carole; Cook, Derek G.

    2016-01-01

    Objectives. To describe mortality among adults with intellectual disability in England in comparison with the general population. Methods. We conducted a cohort study from 2009 to 2013 using data from 343 general practices. Adults with intellectual disability (n = 16 666; 656 deaths) were compared with age-, gender-, and practice-matched controls (n = 113 562; 1358 deaths). Results. Adults with intellectual disability had higher mortality rates than controls (hazard ratio [HR] = 3.6; 95% confidence interval [CI] = 3.3, 3.9). This risk remained high after adjustment for comorbidity, smoking, and deprivation (HR = 3.1; 95% CI = 2.7, 3.4); it was even higher among adults with intellectual disability and Down syndrome or epilepsy. A total of 37.0% of all deaths among adults with intellectual disability were classified as being amenable to health care intervention, compared with 22.5% in the general population (HR = 5.9; 95% CI = 5.1, 6.8). Conclusions. Mortality among adults with intellectual disability is markedly elevated in comparison with the general population, with more than a third of deaths potentially amenable to health care interventions. This mortality disparity suggests the need to improve access to, and quality of, health care among people with intellectual disability. PMID:27310347

  11. Sibling relationships in adults who have siblings with or without intellectual disabilities.

    PubMed

    Doody, Mairéad A; Hastings, Richard P; O'Neill, Sarah; Grey, Ian M

    2010-01-01

    There is relatively little research on the relationships between adults with intellectual disability and their siblings, despite the potential importance of these relationships for either individual's psychological well-being and future care roles that might be adopted by adult siblings. In the present study, sibling relationships of adults with adult siblings with (N=63) and without (N=123) intellectual disability were explored. Contact, warmth, conflict, and rivalry were measured using questionnaires available as an on-line survey. Expressed emotion was measured using the Five Minute Speech Sample over the telephone to establish an independently coded measure of criticism from the participant towards their sibling. Overall, there were few group differences in contact and sibling relationship. There was less telephone contact in the intellectual disability group, and less reported warmth in the relationship with siblings with intellectual disability although this was mainly associated with severe/profound intellectual disability. Exploratory analyses were conducted of the correlates of sibling relationships in both the intellectual disability and control groups. These analyses revealed a small number of different associations especially for conflict, which was lower when either the participant or sibling was younger in the control group but associated with relative age in the intellectual disability group. PMID:19819671

  12. Is Celiac Disease an Etiological Factor in Children with Nonsyndromic Intellectual Disability?

    PubMed

    Sezer, Taner; Balcı, Oya; Özçay, Figen; Bayraktar, Nilufer; Alehan, Füsun

    2016-03-01

    To determine the prevalence of celiac disease in children and adolescents with nonsyndromic intellectual disability, we investigated serum levels of tissue transglutaminase antibody and total IgA from 232 children with nonsyndromic intellectual disability and in a healthy control group of 239 children. Study participants who were positive for tissue transglutaminase antibody underwent a duodenal biopsy. A total of 3 patients in the nonsyndromic intellectual disability group (5.45%) and 1 in the control group (0.41%) had positive serum tissue transglutaminase antibody (P > .05). Duodenal biopsy confirmed celiac disease in only 1 patient who had nonsyndromic intellectual disability. In this present study, children with nonsyndromic intellectual disability did not exhibit a higher celiac disease prevalence rate compared with healthy controls. Therefore, we suggest that screening test for celiac disease should not be necessary as a part of the management of mild and moderate nonsyndromic intellectual disability. However, cases of severe nonsyndromic intellectual disability could be examined for celiac disease. PMID:26078418

  13. Reduced Metaboreflex Control of Blood Pressure during Exercise in Individuals with Intellectual Disability: A Possible Contributor to Exercise Intolerance

    ERIC Educational Resources Information Center

    Dipla, K.; Zafeiridis, A.; Papadopoulos, S.; Koskolou, M.; Geladas, N.; Vrabas, I. S.

    2013-01-01

    The aim was to investigate the hemodynamic responses to isometric handgrip exercise (HG) and examine the role of the muscle metaboreflex in the exercise pressor response in individuals with intellectual disability (IID) and non-disabled control subjects. Eleven males with mild-moderate intellectual disabilities and eleven non-disabled males…

  14. Interstitial microduplication at 2p11.2 in a patient with syndromic intellectual disability: 30-year follow-up

    PubMed Central

    2014-01-01

    Background Copy number variations at 2p11.2 have been rare and to our knowledge, no abnormal phenotype with an interstitial 2p11.2 duplication has yet been reported. Here we report the first case with syndromic intellectual disability associated with microduplication at 2p11.2. Results We revisited a white female subject with a chromosome translocation, t(8;10)(p23;q23)mat and a 10q telomeric deletion suspected by G-banding 30 years ago. This female with severe intellectual disability, no speech, facial dysmorphism, intractable epilepsy, recurrent infection, and skeletal abnormalities has been observed from the birth until her death. The karyotype analysis reconfirmed the previously reported chromosome translocation with a revision as 46,XX,t(8;10)(p23.3;q23.2)mat by adding more detail in chromosomal sub-bands. The array comparative genomic hybridization, however, did not detect the 10q terminal deletion originally reported, but instead, revealed a 390 kb duplication at 2p11.2; 46,XX,t(8;10)(p23.3;q23.2)mat.arr[hg 19] 2p11.2(85469151x2,85474356-85864257x3,85868355x2). This duplication region was confirmed by real-time quantitative PCR and real-time reverse transcriptase quantitative PCR. Conclusions We suggest three positional candidate genes for intellectual disability and recurrent infection based upon gene function and data from real-time reverse transcriptase quantitative PCR—VAMP8 and RNF181 for intellectual disability and CAPG for recurrent infection. PMID:25295072

  15. ADHD among adolescents with intellectual disabilities: Pre-pathway influences

    PubMed Central

    Neece, Cameron; Baker, Bruce; Lee, Steve

    2013-01-01

    Children and adolescents with intellectual disabilities (ID) are at heightened risk for developing ADHD. However, the validity of ADHD as a diagnosis for youth with ID remains controversial. To advance research on validity, the present study examined the hypothesized precursors to ADHD in typically developing adolescents (TD) and adolescents with ID, specifically with regard to family history of ADHD, molecular genetics, and neuropsychological functioning. Results indicated that youth ADHD symptoms were related to parental ADHD symptoms regardless of the adolescent’s cognitive functioning. Additionally, findings suggested that the DRD4 genetic variant and adolescent set-shifting abilities were related to adolescent ADHD symptoms independent of cognitive functioning. This study provides an initial investigation of the biological correlates of ADHD among youth with ID. PMID:23665431

  16. [Advance care planning for people with intellectual disability].

    PubMed

    Wagemans, Annemieke M A; van Wijmen, Frans C B

    2014-01-01

    Difficult medical decisions regularly need to be made for people with intellectual disability. They are often unable to play a meaningful role in this and the decisions fall to the family or guardians. A useful aid to proactive medical management is advance care planning. This is a long-term care plan which is centred on the well-being of patients and their quality of life. Ideally it should be a matter for patients and those closest to them, the responsible medical practitioner and those tasked with the day-to-day care of patients. It is important to draw up this plan carefully and to regularly review it in the light of current circumstances. PMID:25424633

  17. Rapid Teaching of Arbitrary Matching in Individuals with Intellectual Disabilities

    PubMed Central

    Morro, Greg; Mackay, Harry A.; Carlin, Michael T.

    2014-01-01

    This research extended to arbitrary matching-to-sample procedures a method that was successful in rapidly establishing identity matching in children with and without intellectual disabilities (Mackay et al., 2002). The method involves increasing the number of identical comparison stimuli in a choice array in order to create a homogenous background that makes the target more salient, thus likely to prompt selection. The number of comparison stimuli then is faded systematically contingent on accurate responding. This method unites cognitive research on visual search and behavior analytic research on conditional stimulus control. Two experiments examined use of the method to teach arbitrary relations between visual stimuli (numerals and colors and their printed names) and between visual and auditory stimuli (e.g., numerals and colors and their dictated names). Results demonstrated the generality of the method to symbolic matching. This finding is important for conceptual reasons and for its relevance to special education. PMID:25408559

  18. Intellectual disability, unusual facial morphology and hand anomalies in sibs.

    PubMed

    Sousa, Sérgio B; Venâncio, Margarida; Chanudet, Estelle; Palmer, Rodger; Ramos, Lina; Beales, Philip L; Moore, Gudrun E; Saraiva, Jorge M; Hennekam, Raoul C

    2013-10-01

    Here we report on a Portuguese family with three sisters who shared moderate intellectual disability, unusual facial morphology (short palpebral fissures; broad nasal tip; thin upper and lower vermillion; broad and pointed chin) and hand anomalies in two of them (short left third and fifth right metacarpals in one case; marked syndactyly between the third and fourth fingers in another). One of the sisters had microcephaly and short stature, and the other two were obese. Obesity and somewhat similar facial features were also present in the otherwise healthy mother. Despite the overlap with several known syndromes (Albright osteodystrophy; Filippi syndrome; Rubinstein-Taybi syndrome; microdeletion 2q37), we suggest this condition is previously unreported, and most likely displays an autosomal recessive pattern of inheritance. © 2013 Wiley Periodicals, Inc. PMID:23949889

  19. Sex Offenders with Intellectual Disabilities and Their Academic Observers: Popular Methodologies and Research Interests

    ERIC Educational Resources Information Center

    Hollomotz, A.

    2014-01-01

    Background: Over the past two decades, disability activists and scholars have developed research paradigms that aim to place (some of the) control over the research process in the hands of disabled people. This paper discusses the appropriateness of applying such paradigms to sex offenders with intellectual disabilities (ID). It exposes to what…

  20. Uncovering Health Care Inequalities among Adults with Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    Ward, Rolanda L.; Nichols, Amanda D.; Freedman, Ruth I.

    2010-01-01

    Even as attention is drawn to the increasing number of individuals who experience health inequalities in the United States, little is known about the health inequalities experienced by individuals with intellectual and developmental disabilities. Current disability research mainly focuses on physical disabilities. This article discusses the health…

  1. A Friendships and Dating Program for Adults with Intellectual and Developmental Disabilities: A Formative Evaluation

    ERIC Educational Resources Information Center

    Ward, Karen M.; Atkinson, Julie P.; Smith, Curtis A.; Windsor, Richard

    2013-01-01

    Meaningful relationships with others are often elusive for people with intellectual and developmental disabilities, but no less desired for their full inclusion and participation in society. It is well documented that people with disabilities are victims of interpersonal violence at higher rates than peers without disabilities. This article…

  2. Beyond Specialist Programmes: A Study of the Needs of Offenders with Intellectual Disability Requiring Psychiatric Attention

    ERIC Educational Resources Information Center

    Glaser, W.; Florio, D.

    2004-01-01

    Despite the increased prevalence of psychiatric disorder amongst offenders with an intellectual disability (ID), there is very little known about the characteristics and needs of those with dual disability. A study of admissions to a new community forensic dual disability clinic during the first 10 months of its operation. Typically, the offenders…

  3. Obstacles to Special Education for Students with Intellectual Disabilities in Turkey: A Brief Report

    ERIC Educational Resources Information Center

    Meral, Bekir Fatih

    2015-01-01

    Turkey regulates the special education of students with disabilities and, particularly, those who have intellectual disabilities (ID) based on international and national legal texts. However, the gap between law and practice cannot be denied. The existence of obstacles to special education for students with disabilities or ID continues in Turkey.…

  4. Disparities in Substance Abuse Treatment Utilization Among Women with Intellectual Disability.

    PubMed

    Slayter, Elspeth

    2016-01-01

    Despite concerns about health disparities among women with intellectual disabilities, little is known about substance abuse treatment access in this population. Using standardized performance measures, treatment initiation and engagement were examined retrospectively for women aged 18 to 64 (N = 3,752), men with (N = 5,732) and women without intellectual disability (N = 493,446). Logistic regression models of utilization were conducted. Women in the sample were less likely than men in the sample or women without intellectual disability to utilize treatment, suggesting both gender-related and disability-related barriers. Policy and practice implications for improving the health and welfare of women with intellectual disabilities are discussed. PMID:26958802

  5. The challenges of providing eye care for adults with intellectual disabilities.

    PubMed

    Li, Josephine Ch; Wong, Katrina; Park, Adela Sy; Fricke, Timothy R; Jackson, A Jonathan

    2015-09-01

    This review is intended to raise awareness of the importance of providing high-quality eye care for people with intellectual disabilities and the increasing need for this eye care to be community-based. We describe the challenges to the provision of high-quality community-based eye care for people with intellectual disabilities and ideas, evidence and methods for overcoming them. The prevalence of visual impairment in people with intellectual disabilities has been reported to be at least 40 per cent, rising to as high as 100 per cent in those with profound and severe disabilities. A progressive move toward deinstitutionalisation has shifted the provision of care for people with intellectual disabilities. Individuals can have the freedom to access health-care services of their choice. This has posed challenges to the health-care system, including how to deliver high-quality community-based eye care, creating a current significant unmet need for eye-care services. Undiagnosed refractive error and under-prescription of spectacles are major reasons for avoidable visual impairment among people with disabilities. There is an apparent reluctance of optometrists to engage in this work due to the perceived difficulties of working with people with intellectual and multiple disabilities. There are challenges associated with diagnosis and management of ocular conditions in people with intellectual disabilities and the demand is clear. Small shifts in training, knowledge and awareness would place optometry well to meet the challenges of this specialised area of eye care. PMID:26390904

  6. Teaching individuals with intellectual disability to email across multiple device platforms.

    PubMed

    Cihak, David F; McMahon, Donald; Smith, Cate C; Wright, Rachel; Gibbons, Melinda M

    2014-11-20

    The purpose of this study was to examine the use of email by people with intellectual disability across multiple technological devices or platforms. Four individuals with intellectual disability participated in this study. Participants were taught how to access and send an email on a Windows desktop computer, laptop, and an iPad tablet device. Results indicated a functional relation. All participants acquired and generalized sending and receiving an email from multiple platforms. Conclusions are discussed about the importance of empowering people with intellectual disability by providing multiple means of expression, including the ability to communicate effectively using a variety of devices. PMID:25462524

  7. Parental experiences of caring for a child with intellectual disabilities: A UK perspective.

    PubMed

    Willingham-Storr, Gemma Louise

    2014-03-01

    A structured literature search and thematic analysis of six research articles relating to stress and parenting of a child with an intellectual disability in the United Kingdom identified four key themes: impact upon families, service provision and support networks, coping and transition. The findings identified that parenting a child with an intellectual disability is not always a negative role; it is a role that parents find both rewarding and empowering. However, the findings of the literature review primarily related to mothers of children with an intellectual disability with very little focus on the experiences of fathers. PMID:24595868

  8. Mutations in HIVEP2 are associated with developmental delay, intellectual disability, and dysmorphic features.

    PubMed

    Steinfeld, Hallie; Cho, Megan T; Retterer, Kyle; Person, Rick; Schaefer, G Bradley; Danylchuk, Noelle; Malik, Saleem; Wechsler, Stephanie Burns; Wheeler, Patricia G; van Gassen, Koen L I; Terhal, P A; Verhoeven, Virginie J M; van Slegtenhorst, Marjon A; Monaghan, Kristin G; Henderson, Lindsay B; Chung, Wendy K

    2016-07-01

    Human immunodeficiency virus type I enhancer binding protein 2 (HIVEP2) has been previously associated with intellectual disability and developmental delay in three patients. Here, we describe six patients with developmental delay, intellectual disability, and dysmorphic features with de novo likely gene-damaging variants in HIVEP2 identified by whole-exome sequencing (WES). HIVEP2 encodes a large transcription factor that regulates various neurodevelopmental pathways. Our findings provide further evidence that pathogenic variants in HIVEP2 lead to intellectual disabilities and developmental delay. PMID:27003583

  9. Mutations in HIVEP2 are associated with developmental delay, intellectual disability and dysmorphic features

    PubMed Central

    Steinfeld, Hallie; Cho, Megan T.; Retterer, Kyle; Person, Rick; Schaefer, G. Bradley; Danylchuk, Noelle; Malik, Saleem; Wechsler, Stephanie Burns; Wheeler, Patricia G.; van Gassen, Koen L.I.; Terhal, P.A.; Verhoeven, Virginie J.M.; van Slegtenhorst, Marjon A.; Monaghan, Kristin G.; Henderson, Lindsay B.; Chung, Wendy K.

    2016-01-01

    HIVEP2 (human immunodeficiency virus type I enhancer binding protein 2) has been previously associated with intellectual disability and developmental delay in three patients. Here we describe six patients with developmental delay, intellectual disability and dysmorphic features with de novo likely gene damaging variants in HIVEP2 identified by whole exome sequencing (WES). HIVEP2 encodes a large transcription factor that regulates various neurodevelopmental pathways. Our findings provide further evidence that pathogenic variants in HIVEP2 lead to intellectual disabilities and developmental delay. PMID:27003583

  10. Assessment of Patients with Intellectual Disability using the International Classification of Functioning, Disability and Health to Evaluate Dental Treatment Tolerability

    ERIC Educational Resources Information Center

    Maeda, S.; Kita, F.; Miyawaki, T.; Takeuchi, K.; Ishida, R.; Egusa, M.; Shimada, M.

    2005-01-01

    Patients with serious intellectual disability (ID) are occasionally unable to tolerate dental treatment when intravenous sedation or general anaesthesia (IVSGA) is involved. In order to make a decision regarding the application of IVSGA, the International Classification of Functioning, Disability and Health (ICF) is useful. Therefore, in this…

  11. Impact of Inclusive College Programs Serving Students with Intellectual Disabilities on Disability Studies Interns and Typically Enrolled Students

    ERIC Educational Resources Information Center

    Izzo, Margo Vreeburg; Shuman, Amy

    2013-01-01

    The purpose of this study was to confirm and extend prior research on the attitudes and experiences of typical college students towards students with intellectual disabilities who were enrolled in an inclusive postsecondary program. College students enrolled in a Disability Studies Internship class completed surveys, journals, and participated in…

  12. Caring for independent lives: geographies of caring for young adults with intellectual disabilities.

    PubMed

    Power, Andrew

    2008-09-01

    This paper engages with the emerging disciplinary clash between 'care' and 'independence' within disability studies by examining the geography of home care for young adults with intellectual disabilities. The care system as a whole is viewed as central to disablist structures within disability studies (see Thomas, C. (2007). Sociologies of disability and illness: Contested ideas in disability studies and medical sociology. Hampshire: Palgrave Macmillan.). However, despite the theorisation of dependency as being in antipathy to the goals of the disability movement, caregiving at home still continues to dominate community care. The paper attempts to address how family carers are 'caught-in-the-middle' between their 'duty' to care and at the same time, perpetuating dependency; the reality being that parents have to deal with issues of being overprotective and confronting various social assumptions about disability. It examines the narratives from 25 family caregivers in Ireland who provide personal assistance to young adults with intellectual disabilities. PMID:18573581

  13. Related factors and use of free preventive health services among adults with intellectual disabilities in Taiwan

    PubMed Central

    2014-01-01

    Background This study aimed to investigate the utilization of preventive health services in the adults with intellectual disabilities from the nationwide database. Methods The research method of this study is secondary data analysis. The data was obtained from three nationwide databases from 2006 to 2008. This study employed descriptive statistics to analyze the use and rate of preventive health services by intellectual disabled adults. Chi-square test was used to determine the relationship between the utilization of preventive health services and these variables. Multivariate logistic regression analysis was used to explore the factors that affect intellectual disabled adults’ use of preventive health services. Results Our findings indicated 16.65% of people with intellectual disabilities aged over 40 years used the preventive health services. Females were more frequent users than males (18.27% vs. 15.21%, p <0.001). The utilization rate decreased with increasing severity of intellectual disabilities. The utilization was lowest (13.83%) for those with very severe disability, whereas that was the highest (19.38%) for those with mild severity. The factors significantly influencing utilization of the services included gender, age, and marital status, urbanization of resident areas, monthly payroll, low-income household status, catastrophic illnesses status and relevant chronic diseases and severity of disability. Conclusions Although Taiwan’s Health Promotion Administration (HPA) has provided free preventive health services for more than 15 years, people with intellectual disabilities using preventive health care tend to be low. Demographics, economic conditions, health status, relevant chronic diseases, environmental factor, and severity of disability are the main factors influencing the use of preventive healthcare. According to the present findings, it is recommended that the government should increase the reimbursement of the medical staff performing health

  14. Physical activity levels of adolescents with and without intellectual disabilities during physical education and recess.

    PubMed

    Pan, Chien-Yu; Liu, Chin-Wen; Chung, I Chiao; Hsu, Po-Jen

    2014-11-16

    To compare physical activity levels in adolescents with and without intellectual disabilities during physical education and recess. Forty adolescents diagnosed with intellectual disabilities (inclusive classrooms, n=20; self-contained classrooms, n=20) and 40 age-matched typically developing peers (general classrooms) participated. All participants wore an Actigraph GT1M accelerometer for 5 consecutive weekdays during school hours. Three groups of adolescents were similarly active during physical education; however, adolescents with intellectual disabilities in self-contained classrooms were less active during recess than did the other two groups. In addition, they spent less percentage of time in moderate-to-vigorous physical activity during recess than did the typically developing adolescents. An inclusive, structured, and supportive environment promotes physical activity engagement in adolescents with intellectual disabilities. PMID:25462518

  15. Shifting Diagnostic Systems for Defining Intellectual Disability in Death Penalty Cases: Hall vs. Florida

    ERIC Educational Resources Information Center

    Mukherjee, Mina; Westphal, Alexander

    2015-01-01

    The case of Hall vs. Florida tested Florida's so called "bright line rule" in determining intellectual disability in capital cases. The Supreme Court Decision reflects a more general trend from categorical to dimensional approaches in psychiatric diagnostic systems.

  16. Consumers with an intellectual disability and carers: perceptions of interactions with banks.

    PubMed

    Hayes, Susan C; Martin, Fiona B

    2007-03-01

    As more people with an intellectual disability reside independently in the community, there is both the need and the opportunity for them to use financial services, including banks and credit unions, and products such as cash machine cards, credit cards and loans. There is a dearth of information about interactions between consumers with intellectual disabilities and their carers, and financial service providers. This study investigated the perceptions of 94 consumers with an intellectual disability and 53 carers regarding interactions with financial service providers. Consumers and carers mentioned a number of problems with banks, and reported a low rate of successful resolution of these difficulties. Carers mentioned more problems than consumers, and more frequently reported intangible problems such as discrimination. The 'digital divide' was evident, with few consumers having access to Internet or telephone banking. People with intellectual disabilities need education programmes about electronic banking, their rights as consumers and their access to problem resolution strategies. PMID:17287227

  17. Standardised patients with intellectual disabilities in training tomorrow’s doctors

    PubMed Central

    Thomas, Bini; Courtenay, Ken; Hassiotis, Angela; Strydom, Andre; Rantell, Khadija

    2014-01-01

    Aims and method To develop a programme to help undergraduate medical students and postgraduate trainees to improve their skills in communicating with people with intellectual disabilities through teaching sessions that had input from simulated patients with intellectual disabilities. We conducted four sessions of training for 47 undergraduate 4th-year medical students. The training involved a multiprofessional taught session followed by a clinical scenario role-play with simulated patients who were people with intellectual disabilities. The training was assessed by completing the healthcare provider questionnaire before and after the training. Results There were improvements in the students’ perceived skill, comfort and the type of clinical approach across all three scenarios. Clinical implications By involving people with intellectual disabilities in training medical students there has been a significant improvement in students’ communication skills in areas of perceived skills, comfort and type of clinical approach which will raise the quality of care provided by them in the future. PMID:25237524

  18. Shifting Diagnostic Systems for Defining Intellectual Disability in Death Penalty Cases: Hall vs. Florida.

    PubMed

    Mukherjee, Mina; Westphal, Alexander

    2015-07-01

    The case of Hall vs. Florida tested Florida's so called "bright line rule" in determining intellectual disability in capital cases. The Supreme Court Decision reflects a more general trend from categorical to dimensional approaches in psychiatric diagnostic systems. PMID:25663625

  19. Hearing in Athletes with Intellectual Disabilities: The Need for Improved Ear Care

    ERIC Educational Resources Information Center

    McCracken, W.; Lumm, J.; Laoide-Kemp, S.

    2011-01-01

    Background: The Special Olympics offer the opportunity for athletes with intellectual disabilities to participate in a range of sports at regional, national and international level. A parallel Healthy Athletes programme was introduced to ensure safety at the games but also to collect data on the health needs of those with intellectual disabilities…

  20. Tobacco Use among Individuals with Intellectual or Developmental Disabilities: A Brief Review

    ERIC Educational Resources Information Center

    Steinberg, Marc L.; Heimlich, Laura; Williams, Jill M.

    2009-01-01

    Tobacco use is the leading preventable cause of death in the United States. Although few tobacco control efforts target individuals with intellectual and/or developmental disabilities, this population may be especially vulnerable to the deleterious effects of tobacco use and dependence. Individuals with intellectual and developmental disabilities…

  1. Perceptions of Death and Management of Grief in People with Intellectual Disability

    ERIC Educational Resources Information Center

    Meeusen-van de Kerkhof, Rianne; van Bommel, Hanneke; van de Wouw, Werner; Maaskant, Marian

    2006-01-01

    The authors examine the way in which people with intellectual disability (ID) handle death and mourning, and note that the way in which death and bereavement are being experienced depends--among other things--upon the intellectual and socio-emotional age of the individual. The authors used the theories formulated by Piaget (cognitive development),…

  2. Perceived Social Acceptance, Theory of Mind and Social Adjustment in Children with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Fiasse, Catherine; Nader-Grosbois, Nathalie

    2012-01-01

    Perceived social acceptance, theory of mind (ToM) and social adjustment were investigated in 45 children with intellectual disabilities (ID) compared with 45 typically developing (TD) preschoolers, matched for developmental age assessed by means of the Differential Scales of Intellectual Efficiency-Revised edition (EDEI-R, Perron-Borelli, 1996).…

  3. Mental Health Services for Individuals with Intellectual Disabilities in Canada: Findings from a National Survey

    ERIC Educational Resources Information Center

    Lunsky, Y.; Garcin, N.; Morin, D.; Cobigo, V.; Bradley, E.

    2007-01-01

    Background: People with intellectual disabilities are known to have a high prevalence of mental health problems but few studies have considered how such mental health problems are addressed in Canada. The purpose of the present study was to document both the range of mental health services available to individuals with intellectual disabilities…

  4. Andragogy for Teen and Young Adult Learners with Intellectual Disabilities: Learning, Independence, and Best Practices

    ERIC Educational Resources Information Center

    Bowman, Stephanie L.; Plourde, Lee A.

    2012-01-01

    Teens and young adults with Intellectual Disabilities (ID) meet the criteria of teen and adult learners chronologically, but may be deficient in many other areas of teen and adult learning. The spectrum of intellectual and adaptive capabilities among teens and adults with ID is vast, with each individual being unique. There are specific teaching…

  5. Measurement Invariance in the Assessment of People with an Intellectual Disability

    ERIC Educational Resources Information Center

    MacLean, Hannah; McKenzie, Karen; Kidd, Gill; Murray, Aja L.; Schwannauer, Matthias

    2011-01-01

    Intellectual assessment is central to the process of diagnosing an intellectual disability and the assessment process needs to be valid and reliable. One fundamental aspect of validity is that of measurement invariance, i.e. that the assessment measures the same thing in different populations. There are reasons to believe that measurement…

  6. Everyday Memory and Working Memory in Adolescents with Mild Intellectual Disability

    ERIC Educational Resources Information Center

    Van der Molen, M. J.; Van Luit, J. E. H.; Van der Molen, Maurits W.; Jongmans, Marian J.

    2010-01-01

    Everyday memory and its relationship to working memory was investigated in adolescents with mild intellectual disability and compared to typically developing adolescents of the same age (CA) and younger children matched on mental age (MA). Results showed a delay on almost all memory measures for the adolescents with mild intellectual disability…

  7. Restrictive Behaviour Management Procedures with People with Intellectual Disabilities Who Require Dental Treatment

    ERIC Educational Resources Information Center

    Newton, J. T.

    2009-01-01

    Background: Dental disease is more common among people with intellectual disabilities than in the general population. Improvements in oral health require individuals to engage in daily oral hygiene and regular visits to a dental practitioner; both may be challenging for the individual with intellectual impairment. Materials and Methods: A review…

  8. "We Want Respect": Adults with Intellectual and Developmental Disabilities Address Respect in Research

    ERIC Educational Resources Information Center

    McDonald, Katherine Elizabeth

    2012-01-01

    Respect is central to ethical guidelines for research. The scientific community has long debated, and at times disagreed on, how to demonstrate respect in research with adults with intellectual and developmental disabilities. To illuminate the voices of those most affected, the author studies the views of adults with intellectual and developmental…

  9. Homicide Defendants with Intellectual Disabilities: Issues in Diagnosis in Capital Cases

    ERIC Educational Resources Information Center

    Greenspan, Stephen

    2011-01-01

    This article explores the many issues involved in establishing the diagnosis of intellectual disability in a so-called Atkins (death penalty exemption) hearing. Among the issues addressed are the need to go beyond IQ scores in establishing intellectual deficits, the need to go beyond rating scores in establishing adaptive behavior deficits, the…

  10. Neuropsychological Characteristics of Adults with Comorbid ADHD and Borderline/Mild Intellectual Disability

    ERIC Educational Resources Information Center

    Rose, E.; Bramham, J.; Young, S.; Paliokostas, E.; Xenitidis, K.

    2009-01-01

    This study aimed to characterise the neuropsychological functioning of adults with comorbid attention deficit hyperactivity disorder (ADHD) and intellectual disability. Individuals with ADHD and mild-borderline range intelligence (N=59) and individuals with ADHD and normal intellectual functioning (N=95) were compared on attentional and response…

  11. Nutrition Education and Support Program for Community-Dwelling Adults with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Humphries, Kathleen; Traci, Meg Ann; Seekins, Tom

    2008-01-01

    To test the efficacy, acceptability, and appropriateness of a nutrition education and support program, 4 community-based group homes for adults with intellectual or developmental disabilities participated in a pilot intervention with extended baseline period and pre--post-test design. Adults (N = 32) with intellectual or developmental…

  12. High School Counselors' Attitudes toward the Sexuality of Students with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Parker, Latofia P.

    2012-01-01

    The purpose of this study was to examine high school counselors' attitudes toward the sexuality of students with intellectual disabilities. One hundred and twenty-two high school counselors in Alabama were the participants for this study. Participants completed the "Attitudes towards Sexuality and Students with Intellectual Disability…

  13. A new prognostic index of severity of intellectual disabilities in Cornelia de Lange syndrome.

    PubMed

    Cereda, Anna; Mariani, Milena; Rebora, Paola; Sajeva, Anna; Ajmone, Paola Francesca; Gervasini, Cristina; Russo, Silvia; Kullmann, Gaia; Valsecchi, Grazia; Selicorni, Angelo

    2016-06-01

    Cornelia de Lange syndrome is a well-known multiple congenital anomalies/intellectual disability syndrome with genetic heterogeneity and wide clinical variability, regarding the severity of both the intellectual disabilities and the physical features, not completely explained by the genotype-phenotype correlations known to date. The aim of the study was the identification of prognostic features, ascertainable precociously in the patient's life, of a better intellectual outcome and the development of a new prognostic index of severity of intellectual disability in CdLS patients. In 66 italian CdLS patients aged 8 years or more, we evaluated the association of the degree of intellectual disability with various clinical parameters ascertainable before 6 months of life and with the molecular data by the application of cumulative regression logistic model. Based on these results and on the previously known genotype-phenotype correlations, we selected seven parameters to be used in a multivariate cumulative regression logistic model to develop a prognostic index of severity of intellectual disability. The probability of a mild ID increases with the reducing final score less than two, the probability of a severe ID increases with the increasing final score more than three. This prognostic index allows to define, precociously in the life of a baby, the probability of a better or worse intellectual outcome in CdLS patients. © 2016 Wiley Periodicals, Inc. PMID:27148700

  14. The Effectiveness of Healthy Physical Fitness Programs on People with Intellectual Disabilities Living in a Disability Institution: Six-Month Short-Term Effect

    ERIC Educational Resources Information Center

    Wu, Chia-Ling; Lin, Jin-Ding; Hu, Jung; Yen, Chia-Feng; Yen, Cheng-Tung; Chou, Yu-Lan; Wu, Po-Hsun

    2010-01-01

    Little information is available on the provision of physical fitness and intervention program among people with intellectual disabilities. The aim of this study is to provide information of examining the effectiveness of healthy physical fitness programs on people with intellectual disabilities living in a disability institution. There were 146…

  15. Determinants of physical health parameters in individuals with intellectual disability who use long-term antipsychotics.

    PubMed

    de Kuijper, Gerda; Mulder, Hans; Evenhuis, Heleen; Scholte, Frans; Visser, Frank; Hoekstra, Pieter J

    2013-09-01

    Individuals with intellectual disability frequently use antipsychotics for many years. This may have detrimental health effects, including neurological symptoms and metabolic and hormonal dysregulation, the latter possibly affecting bone metabolism. There is large variability in the degree in which antipsychotic agents lead to these health problems. In the current study we investigated potential determinants of physical symptoms and biological parameters known to be associated with use of antipsychotics in a convenience sample of 99 individuals with intellectual disability who had used antipsychotics for more than one year for behavioural symptoms. We focused on extrapyramidal symptoms; on overweight and presence of components of the metabolic syndrome; and on elevated plasma prolactin and bone turnover parameters. As predictor variables, we used patient (sex, age, genetic polymorphisms, and severity of intellectual disability) and medication use (type and dosage) characteristics. We found extrapyramidal symptoms to be present in 53%, overweight or obesity in 46%, and the metabolic syndrome in 11% of participants. Hyperprolactineaemia and one or more elevated bone turnover markers were present in 17% and 25%, respectively. Higher age and more severe intellectual disability were associated with dyskinesia and a higher dosage of the antipsychotic drug was associated with parkinsonism. Less severe intellectual disability was related to higher Body Mass Index. Use of atypical antipsychotics was associated with higher diastolic blood pressure and elevated fasting glucose. Clinicians who prescribe antipsychotics in individuals with intellectual disability should carefully balance the potential benefits of prolonged treatment against the risk of health hazards associated with the use of antipsychotics. PMID:23792429

  16. Relationships between visual-motor and cognitive abilities in intellectual disabilities.

    PubMed

    Di Blasi, Francesco D; Elia, Flaviana; Buono, Serafino; Ramakers, Ger J A; Di Nuovo, Santo F

    2007-06-01

    The neurobiological hypothesis supports the relevance of studying visual-perceptual and visual-motor skills in relation to cognitive abilities in intellectual disabilities because the defective intellectual functioning in intellectual disabilities is not restricted to higher cognitive functions but also to more basic functions. The sample was 102 children 6 to 16 years old and with different severities of intellectual disabilities. Children were administered the Wechsler Intelligence Scale for Children, the Bender Visual Motor Gestalt Test, and the Developmental Test of Visual Perception, and data were also analysed according to the presence or absence of organic anomalies, which are etiologically relevant for mental disabilities. Children with intellectual disabilities had deficits in perceptual organisation which correlated with the severity of intellectual disabilities. Higher correlations between the spatial subtests of the Developmental Test of Visual Perception and the Performance subtests of the Wechsler Intelligence Scale for Children suggested that the spatial skills and cognitive performance may have a similar basis in information processing. Need to differentiate protocols for rehabilitation and intervention for recovery of perceptual abilities from general programs of cognitive stimulations is suggested. PMID:17688131

  17. The Impact of Physical, Intellectual and Social Impairments on Survival in Adults with Intellectual Disability: A Population-Based Register Study

    ERIC Educational Resources Information Center

    Tyrer, Freya; Smith, Lucy K.; McGrother, Catherine W.; Taub, Nicholas A.

    2007-01-01

    Background: Research into factors associated with survival in adults with intellectual disability is limited and no studies have controlled for changes in these factors over time. Material and Methods: All adults aged greater than or equal to 20 years with moderate to profound intellectual disability (approximate IQ less than 50) using specialist…

  18. [Schooling and care of mild intellectual disability children].

    PubMed

    David, M; Billette de Villemeur, A; Devillard, F; Dieterich, K; Jouk, P-S; Prado, C; Descotes, A; Guillon, J-L; Counillon, J; Bloch, J; Cans, C

    2015-03-01

    Studies on mild intellectual disability (MID) are scarce. The aim of this study was to describe the educational and medical care trajectories and their determinants in children with MID. The study population concerned children born in 1997 and resident in a French county (Isère) in 2008. MID was defined as an overall IQ score between 50 and 69. For the present study, this definition was adjusted by integrating the IQ confidence intervals so that the risk of IQ measurement relativity and possible score discrepancy could be taken into account. Of the 267 children included, 180 (67%) were identified through an institute that decides upon special education and allowances (MDPH) and 87 (33%) through the educational system. The parents of 181 children (68%) accepted to answer a telephone questionnaire, describing their child's educational and medical history. Children with MID frequently presented clinical signs and comorbidities. Educational trajectories were quite varied: a majority of the children (52.9%) were oriented toward sections with adapted general and professional education (SEGPA) after finishing primary school, a minority (41.3%) were oriented towards specialized schools, such as medical-educational institutions, and a small proportion of children (5.8%) stayed in ordinary school. Children followed the SEGPA orientation more frequently when a relative written language disorder was present, and autism-spectrum disorders or other clinical signs were absent. Concerning follow-up care and rehabilitation, children mostly took part in speech therapy (76.2%) and psychotherapy (55.8%). The French law dating from 2005, ensuring equal opportunity for people with disabilities, has borne fruit in the diversification of educational trajectories. PMID:25656456

  19. Cooperative learning and social acceptance of children with mild intellectual disability.

    PubMed

    Jacques, N; Wilton, K; Townsend, M

    1998-02-01

    The effects of the participation of non-disabled children in a cooperative learning programme on their social acceptance of classmates with mild intellectual disability was examined. A sample of 24 children with mild intellectual disability in the 9-11-year-old age-range was identified from educational psychologists' case records. All of the children were receiving mainstreaming special education programmes at the time of the study. Twelve of the children had previously attended special education classes, while the remainder had always attended regular classes. Half of the children's regular classes were randomly assigned to either receive an experimental cooperative learning programme or to serve as control classrooms. The non-disabled children in the experimental classes showed significant increases in their social acceptance (sociometric ratings) of the children with mild intellectual disability, both immediately following the programme and 5 weeks later, but no such increases were evident in the children in the control classrooms. This pattern held for both the former special class pupils and the children with mild intellectual disability who had never attended special classes. The results confirm the usefulness of cooperative learning strategies for enhancing the social acceptance of children with mild intellectual disability in mainstreaming special educational programmes, regardless of the nature of their previous special educational provisions. PMID:9534112

  20. Prevalence and associated risk factors of anemia in children and adolescents with intellectual disabilities.

    PubMed

    Lin, Jin-Ding; Lin, Pei-Ying; Lin, Lan-Ping; Hsu, Shang-Wei; Loh, Ching-Hui; Yen, Chia-Feng; Fang, Wen-Hui; Chien, Wu-Chien; Tang, Chi-Chieh; Wu, Chia-Ling

    2010-01-01

    Anemia is known to be a significant public health problem in many countries. Most of the available information is incomplete or limited to special groups such as people with intellectual disability. The present study aims to provide the information of anemia prevalence and associated risk factors of children and adolescents with intellectual disability in Taiwan. We analyzed physical examination charts of 937 children and adolescents with intellectual disability at the age of 6-18 years from three special schools. We collected information on their demographic characteristics (age and gender), disability condition (type and level), BMI (weight and height) and measured blood hemoglobin concentration (Hb). There were 11.6% of children and adolescents with intellectual disability with anemia (boy <13 g/dl, girl <12 g/dl), and the factors of gender, age, disability level and BMI are significantly correlated to anemia in bivariant analyses in the study. In the logistic regression analysis, the model revealed that the factors of gender (OR=0.63, 95% CI=0.41-0.95), and age (OR=3.21, 95% CI=1.77-5.82) were variables that could significantly predict the anemia occurrence of the participants. The study highlights the anemia prevalence in children and adolescents with ID is a mild public health problem among people with intellectual disabilities, but to prevent the problems become worst; the health authority should include providing children and adolescents with adequate nutrition and appropriate health protections during early childhood. PMID:19717276