Sample records for developmental disabilities system

  1. 45 CFR 1386.23 - Periodic reports: Protection and Advocacy System.

    Code of Federal Regulations, 2010 CFR

    2010-10-01

    ... HUMAN DEVELOPMENT SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES THE ADMINISTRATION ON DEVELOPMENTAL DISABILITIES, DEVELOPMENTAL DISABILITIES PROGRAM FORMULA GRANT PROGRAMS State System for Protection and Advocacy of the Rights of Individuals with Developmental Disabilities § 1386.23 Periodic reports...

  2. 45 CFR 1386.24 - Non-allowable costs for the Protection and Advocacy System.

    Code of Federal Regulations, 2010 CFR

    2010-10-01

    ...) OFFICE OF HUMAN DEVELOPMENT SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES THE ADMINISTRATION ON DEVELOPMENTAL DISABILITIES, DEVELOPMENTAL DISABILITIES PROGRAM FORMULA GRANT PROGRAMS State System for Protection and Advocacy of the Rights of Individuals with Developmental Disabilities § 1386.24 Non-allowable...

  3. Mortality of People with Intellectual and Developmental Disabilities from Select US State Disability Service Systems and Medical Claims Data.

    PubMed

    Lauer, Emily; McCallion, Philip

    2015-09-01

    Monitoring population trends including mortality within subgroups such as people with intellectual and developmental disabilities and between countries provides crucial information about the population's health and insights into underlying health concerns and the need for and effectiveness of public health efforts. Data from both US state intellectual and developmental disabilities service system administrative data sets and de-identified state Medicaid claims were used to calculate average age at death and crude mortality rates. Average age at death for people in state intellectual and developmental disabilities systems was 50.4-58.7 years and 61.2-63.0 years in Medicaid data, with a crude adult mortality rate of 15.2 per thousand. Age at death remains lower and mortality rates higher for people with intellectual and developmental disabilities. Improved case finding (e.g. medical claims) could provide more complete mortality patterns for the population with intellectual and developmental disabilities to inform the range of access and receipt of supportive and health-related interventions and preventive care. © 2015 John Wiley & Sons Ltd.

  4. Toward social system theory: implications for older people with developmental disabilities and service delivery.

    PubMed

    Dossa, P A

    1990-01-01

    The literature refers to older people with developmental disabilities as the "new service population." How and why this population emerged as a special category is discussed conceptually with reference to social systems theory. A brief review of social systems theory and some basic systemic tenets are presented. Systemic tenets are employed in examining the historical development of social gerontology and present trends in the service-delivery system. I show that the systemic variable of the economic model of human development has significantly impacted on the making of older people with developmental disabilities a dependent population. In the conclusion the systems perspective is explored in relation to recognizing the liminal, in-between parts between components. It is argued that such a perception minimizes the dichotomy between older people with developmental disabilities and the non-disabled population, paving the way for a genuine encounter.

  5. 45 CFR 1386.20 - Designated State Protection and Advocacy agency.

    Code of Federal Regulations, 2010 CFR

    2010-10-01

    ... HUMAN DEVELOPMENT SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES THE ADMINISTRATION ON DEVELOPMENTAL DISABILITIES, DEVELOPMENTAL DISABILITIES PROGRAM FORMULA GRANT PROGRAMS State System for Protection and Advocacy of the Rights of Individuals with Developmental Disabilities § 1386.20 Designated State Protection...

  6. Labeling the Developmentally Disabled: A Social-System Approach.

    ERIC Educational Resources Information Center

    Alsikafi, M.H.

    This paper examines procedures utilized in five social systems in affixing the label of disability on a sample of the developmentally disabled in three counties located in a Southern state. The social systems are: medical clinics, public schools, governmental and semigovernmental agencies, civic organizations, and families and neighbors. The…

  7. 76 FR 41800 - Estimated Federal Allotments to State Developmental Disabilities Councils and Protection and...

    Federal Register 2010, 2011, 2012, 2013, 2014

    2011-07-15

    ..., pursuant to section 122 and section 142 of the Developmental Disabilities Assistance and Bill of Rights Act... DEPARTMENT OF HEALTH AND HUMAN SERVICES Administration for Children and Families Estimated Federal Allotments to State Developmental Disabilities Councils and Protection and Advocacy Systems Formula Grant...

  8. Health disparities among adults with developmental disabilities, adults with other disabilities, and adults not reporting disability in North Carolina.

    PubMed

    Havercamp, Susan M; Scandlin, Donna; Roth, Marcia

    2004-01-01

    The purposes of this study were (1) to identify disparities between adults with developmental disabilities and non-disabled adults in health and medical care, and (2) to compare this pattern of disparities to the pattern of disparities between adults with other disabilities and adults without disabilities. The authors compared data on health status, health risk behaviors, chronic health conditions, and utilization of medical care across three groups of adults: No Disability, Disability, and Developmental Disability. Data sources were the 2001 North Carolina Behavioral Risk Factor Surveillance System and the North Carolina National Core Indicators survey. Adults with developmental disabilities were more likely to lead sedentary lifestyles and seven times as likely to report inadequate emotional support, compared with adults without disabilities. Adults with disabilities and developmental disabilities were significantly more likely to report being in fair or poor health than adults without disabilities. Similar rates of tobacco use and overweight/obesity were reported. Adults with developmental disabilities had a similar or greater risk of having four of five chronic health conditions compared with non-disabled adults. Significant medical care utilization disparities were found for breast and cervical cancer screening as well as for oral health care. Adults with developmental disabilities presented a unique risk for inadequate emotional support and low utilization of breast and cervical cancer screenings. Significant disparities in health and medical care utilization were found for adults with developmental disabilities relative to non-disabled adults. The National Core Indicators protocol offers a sound methodology to gather much-needed surveillance information on the health status, health risk behaviors, and medical care utilization of adults with developmental disabilities. Health promotion efforts must be specifically designed for this population.

  9. 45 CFR 1386.21 - Requirements and authority of the Protection and Advocacy System.

    Code of Federal Regulations, 2010 CFR

    2010-10-01

    ... Protection and Advocacy of the Rights of Individuals with Developmental Disabilities § 1386.21 Requirements... with developmental disabilities to remedy abuse, neglect and violations of rights as well and... disabilities regarding rights violations. (f) A Protection and Advocacy System may exercise its authority under...

  10. Doing Justice? Criminal Offenders with Developmental Disabilities. Detailed Research Findings.

    ERIC Educational Resources Information Center

    Petersilia, Joan

    People with cognitive, intellectual, or developmental disabilities are a small but increasing portion of offenders in the criminal justice system. People with developmental disabilities are estimated to comprise 2-3% of the general population, but 4-10% of the prison population, and an even higher percentage of those in juvenile facilities and in…

  11. Prevention Strategies for Developmental Disabilities: An Annotated Resource Listing.

    ERIC Educational Resources Information Center

    Hedrick, Bonnie M.; And Others

    This listing of print and non-print resources related to the prevention of developmental disabilities is intended for use by health professionals and the general public. An introductory section defines developmental disabilities, offers a statement of the problem in Ohio, and describes Ohio's system for prevention/early intervention and the Ohio…

  12. Doing nothing: adults with disabilities with no daily activities and their siblings.

    PubMed

    Taylor, Julie Lounds; Hodapp, Robert M

    2012-01-01

    A significant concern of parents and professionals is that adults with intellectual and developmental disabilities will go without regular educational-vocational activities. The authors examined predictors of such inactivity in individuals with intellectual and developmental disabilities, as well as how inactivity related to their sibling's well-being and the sibling relationship. Participants included 796 siblings of adults with intellectual and developmental disabilities who responded to a web-based survey. Nearly 13% of adults with intellectual and developmental disabilities were without daytime activities; these adults had more emotional-behavioral and health problems, were more underserved by the formal service system, and had parents who were less able to provide care. Although siblings of adults without activities reported more depressive symptoms, worse health, and less close sibling relationships, inactivity no longer predicted these problems after controlling for characteristics that predisposed adults with intellectual and developmental disabilities to have no activities.

  13. 76 FR 22408 - Agency Information Collection Activities: Submission for OMB Review; Comment Request

    Federal Register 2010, 2011, 2012, 2013, 2014

    2011-04-21

    ...) systems created under the Developmental Disabilities Assistance and Bill of Rights Act of 1975, known as... DEPARTMENT OF HEALTH AND HUMAN SERVICES Substance Abuse and Mental Health Services Administration... Advocacy for Developmental Disabilities (PADD) Program administered by the Administration on Developmental...

  14. 45 CFR 1386.20 - Designated State Protection and Advocacy agency.

    Code of Federal Regulations, 2012 CFR

    2012-10-01

    ... DISABILITIES, DEVELOPMENTAL DISABILITIES PROGRAM FORMULA GRANT PROGRAMS State System for Protection and Advocacy of the Rights of Individuals with Developmental Disabilities § 1386.20 Designated State Protection... 45 Public Welfare 4 2012-10-01 2012-10-01 false Designated State Protection and Advocacy agency...

  15. 45 CFR 1386.20 - Designated State Protection and Advocacy agency.

    Code of Federal Regulations, 2013 CFR

    2013-10-01

    ... DISABILITIES, DEVELOPMENTAL DISABILITIES PROGRAM FORMULA GRANT PROGRAMS State System for Protection and Advocacy of the Rights of Individuals with Developmental Disabilities § 1386.20 Designated State Protection... 45 Public Welfare 4 2013-10-01 2013-10-01 false Designated State Protection and Advocacy agency...

  16. 45 CFR 1386.20 - Designated State Protection and Advocacy agency.

    Code of Federal Regulations, 2011 CFR

    2011-10-01

    ... DISABILITIES, DEVELOPMENTAL DISABILITIES PROGRAM FORMULA GRANT PROGRAMS State System for Protection and Advocacy of the Rights of Individuals with Developmental Disabilities § 1386.20 Designated State Protection... 45 Public Welfare 4 2011-10-01 2011-10-01 false Designated State Protection and Advocacy agency...

  17. 45 CFR 1386.20 - Designated State Protection and Advocacy agency.

    Code of Federal Regulations, 2014 CFR

    2014-10-01

    ... DISABILITIES, DEVELOPMENTAL DISABILITIES PROGRAM FORMULA GRANT PROGRAMS State System for Protection and Advocacy of the Rights of Individuals with Developmental Disabilities § 1386.20 Designated State Protection... 45 Public Welfare 4 2014-10-01 2014-10-01 false Designated State Protection and Advocacy agency...

  18. Child Protection Services and Parents with Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    LaLiberte, Traci; Piescher, Kristine; Mickelson, Nicole; Lee, Mi Hwa

    2017-01-01

    Background: Information about parents with intellectual and developmental disabilities (IDD) in the child protection system (CPS) continues to evolve. This study examined characteristics, experiences and representation of parents with IDD across three CPS decision points, as compared to parents with other disabilities and parents without…

  19. The direct support workforce in community supports to individuals with developmental disabilities: issues, implications, and promising practices.

    PubMed

    Hewitt, Amy; Larson, Sheryl

    2007-01-01

    Difficulties in finding, keeping, and ensuring the competence of the direct support workforce in community developmental disability services has long been a challenge for individuals, families, providers, and policy makers. Direct support staff recruitment, retention, and competence are widely reported as one of the most significant barriers to the sustainability, growth, and quality of community services for people with developmental disabilities (ANCOR [2001] State of the states report. Alexandria, VA: ANCOR; Colorado Department of Human Services, [2000] Response to Footnote 106 of the FY 2001 appropriations long bill: Capacity of the community services systems for persons with developmental disabilities in Colorado; Hewitt [2000] Dynamics of the workforce crisis. Presentation at the NASDDDS Fall meeting. Alexandria, VA). While long in existence, these challenges are ones of growing concern because the number of people demanding community services is increasing and the population of people from which to recruit workers is declining (Office of the Assistant Secretary for Planning and Evaluation [2006] The supply of direct support professionals serving individuals with intellectual disabilities and other developmental disabilities: Report to Congress. Washington, DC: Office of Disability, Aging and Long-Term Care Policy, ASPE, U.S. Department of Health and Human Services). As the service system moves towards consumer direction, managed care, and more noncategorical service delivery systems, the difficulties of providing for an adequate and well-prepared workforce to support people with developmental disabilities becomes more complex and multifaceted. The solutions to those challenges are also more complex. This article reviews the literature regarding the complexity of the direct support workforce crisis, the effects of this crisis on various stakeholder groups, promising practices designed to address the challenges, and the related practice and policy implications. (c) 2007 Wiley-Liss, Inc.

  20. The Perceptions of Professionals toward Siblings of Individuals with Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    Burke, Meghan M.; Lee, Chung eun; Arnold, Catherine K.; Owen, Aleksa

    2017-01-01

    Adult siblings of individuals with intellectual and developmental disabilities (IDD) report struggling to navigate the adult disability service delivery system and collaborate with professionals. To date, though, it is unclear how professionals encourage sibling involvement and, accordingly, the facilitators and challenges in working with…

  1. Meanings of Sisterhood and Developmental Disability: Narratives from White Nondisabled Sisters

    ERIC Educational Resources Information Center

    McGraw, Lori A.; Walker, Alexis J.

    2007-01-01

    Integrating thought from critical feminist and disability theorists via a strategic social constructionist perspective, the authors analyzed 10 in-depth qualitative interviews to begin to understand the dialogue between (a) how nondisabled sisters understand themselves and their siblings with developmental disabilities and (b) wider systems of…

  2. Evaluation of the Battelle Developmental Inventory, 2nd Edition, Screening Test for Use in States' Child Outcomes Measurement Systems under the Individuals with Disabilities Education Act

    ERIC Educational Resources Information Center

    Elbaum, Batya; Gattamorta, Karina A.; Penfield, Randall D.

    2010-01-01

    This study evaluated the Battelle Developmental Inventory, 2nd Edition, Screening Test (BDI-2 ST) for use in states' child outcomes accountability systems under the Individuals with Disabilities Education Act. Complete Battelle Developmental Inventory, 2nd Edition (BDI-2), assessment data were obtained for 142 children, ages 2 to 62 months, who…

  3. 45 CFR 1386.19 - Definitions.

    Code of Federal Regulations, 2010 CFR

    2010-10-01

    ... Welfare Regulations Relating to Public Welfare (Continued) OFFICE OF HUMAN DEVELOPMENT SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES THE ADMINISTRATION ON DEVELOPMENTAL DISABILITIES, DEVELOPMENTAL DISABILITIES PROGRAM FORMULA GRANT PROGRAMS State System for Protection and Advocacy of the Rights of...

  4. Habilitation Services for Developmentally Disabled Persons.

    ERIC Educational Resources Information Center

    Flexer, Robert W.

    1983-01-01

    Developmental disabilities are reviewed from the standpoint of definition, service systems, and interventions. Definitions from relevant laws outline population characteristics and required services. Intensive, comprehensive, coordinated ongoing delivery mechanisms are emphasized, including vocational, residential, and generic services. General…

  5. The Developmentally Disabled Offender in the Illinois Criminal Justice System.

    ERIC Educational Resources Information Center

    Correctional Services for the Developmentally Disabled, Inc., Chicago, IL.

    Reported are findings from five studies which explored the special problems and needs of the developmentally disabled offender in the Illinois criminal justice system. Introductory information includes a discussion of the problem, goals of the present study, and a review of programs for retarded offenders throughout the U.S. Presented are five…

  6. Effects of Implementing the Picture Exchange Communication System (PECS) with Adults with Developmental Disabilities and Severe Communication Deficits

    ERIC Educational Resources Information Center

    Conklin, Carl G.; Mayer, G. Roy

    2011-01-01

    The purpose of this study is to evaluate the effects of "Picture Exchange Communication System" (PECS) training, using a multiple baseline design on the independent initiations of three adults with developmental disabilities and severe communication deficits. All participants increased their independent initiations, although at different…

  7. Well-Being and Support Systems of Taiwanese Mothers of Young Children with Developmental Disabilities

    ERIC Educational Resources Information Center

    Ho, Tzu-Hua

    2013-01-01

    This study investigated the influences of children's adaptive skills, problem behaviors, and parent support systems (informal support and formal professional support) on maternal well-being (health and stress) in Taiwanese mothers of young children with developmental disabilities. The study examined the moderating effects of formal support and…

  8. 45 CFR 1386.25 - Allowable litigation costs.

    Code of Federal Regulations, 2010 CFR

    2010-10-01

    ....25 Public Welfare Regulations Relating to Public Welfare (Continued) OFFICE OF HUMAN DEVELOPMENT SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES THE ADMINISTRATION ON DEVELOPMENTAL DISABILITIES, DEVELOPMENTAL DISABILITIES PROGRAM FORMULA GRANT PROGRAMS State System for Protection and Advocacy of the Rights...

  9. Mortality of People with Intellectual and Developmental Disabilities from Select US State Disability Service Systems and Medical Claims Data

    ERIC Educational Resources Information Center

    Lauer, Emily; McCallion, Philip

    2015-01-01

    Background: Monitoring population trends including mortality within subgroups such as people with intellectual and developmental disabilities and between countries provides crucial information about the population's health and insights into underlying health concerns and the need for and effectiveness of public health efforts. Methods: Data from…

  10. Assistance with Integrity: The Search for Accountability and the Lives of People with Developmental Disabilities.

    ERIC Educational Resources Information Center

    O'Brien, John; O'Brien, Connie Lyle

    This report discusses basic issues in the provision of residential services for people with developmental disabilities. Main points of the discussion include: (1) the service system for this population is in a crisis of accountability as meeting safety and quality requirements threatens to become counterproductive; (2) the current system is well…

  11. Picture Exchange Communication System with Individuals with Developmental Disabilities: A Meta-Analysis of Single Subject Studies

    ERIC Educational Resources Information Center

    Hart, Stephanie L.; Banda, Devender R.

    2010-01-01

    Picture Exchange Communication System (PECS) is a picture-based communication strategy used to teach communication skills to persons with developmental disabilities including autism. This article systematically reviews 13 published single-subject studies to examine the effectiveness of PECS, the effects of PECS on speech and problem behaviors,…

  12. Developing culturally responsive approaches with Southeast Asian American families experiencing developmental disabilities.

    PubMed

    Baker, Dian L; Miller, Elizabeth; Dang, Michelle T; Yaangh, Chiem-Seng; Hansen, Robin L

    2010-12-01

    Southeast Asian American families are underrepresented among recipients of special education and social services for people with developmental disabilities. Our aims were to use a community-based participatory research approach to examine Hmong and Mien families' perceptions of developmental disabilities and understand barriers to and facilitators of service provision among families experiencing developmental disabilities. We describe here a case study of a successful attempt to engage marginalized and underserved communities to understand their needs to improve access and services for persons with developmental disabilities. We conducted 2 focus groups with 11 key informants and 1 focus group with 10 family members of persons with developmental disabilities, as well as in-depth interviews with 3 shamans. Using a thematic analysis approach, we coded notes and transcripts to assess community members' understanding of developmental disabilities, experiences negotiating educational and health care systems, and barriers to high-quality care. A predominant theme was the perception that reliance on governmental support services is not appropriate. Common barriers identified included lack of accurate information, language difficulties, lack of trust, and limited outreach. These perceptions and barriers, combined with limited access to services, interfere with community acceptance and use of available support services. Despite these barriers, participants indicated that with education, outreach, and culturally responsive support, families would likely accept services. Community-based participatory methods are effective for eliciting root causes of health inequities in marginalized communities. Outreach to community-based organizations and an inclusive research practice identified social and cultural reasons for low service uptake and provided a pathway for the community to improve services for persons with developmental disabilities.

  13. Annual Statistical Report, 1988. Client Assistance Program, Protection & Advocacy System for Persons with Mental Illness, Protection & Advocacy System for Persons with Developmental Disabilities.

    ERIC Educational Resources Information Center

    National Association of Protection and Advocacy Systems, Washington, DC.

    The report summarizes: (1) 1988 program data for state Protection and Advocacy Systems for persons with developmental disabilities and persons with mental illness, and (2) 1988 program data for Client Assistance Programs. The data are derived from reports from 56 states and territories. In addition to nationwide data totals, each state's…

  14. When Satisfaction Is Not Directly Related to the Support Services Received: Understanding Parents' Varied Experiences with Specialised Services for Children with Developmental Disabilities

    ERIC Educational Resources Information Center

    Robert, Marie; Leblanc, Line; Boyer, Thierry

    2015-01-01

    Parents of children with developmental disabilities (autism or intellectual disabilities) are more susceptible to stress and have a greater burden of adversity than other parents. Their well-being and satisfaction greatly depend on the system's response of finding them formal support and the help they need. This study proposes an interpretive…

  15. Engaging Engineering and Information Systems Students in Advocacy for Individuals with Disabilities through a Disability Film Media Project

    ERIC Educational Resources Information Center

    Lawler, James; Iturralde, Val; Goldstein, Allan; Joseph, Anthony

    2015-01-01

    College curricula of engineering and information systems do not afford frequent engagement with individuals with disabilities. The authors of this research study analyzed the benefits of disability films for a community film festival of largely engineering and information systems students and individuals with developmental and intellectual…

  16. Aging and Developmental Disabilities. Feature Issue.

    ERIC Educational Resources Information Center

    Anderson, Deborah, Ed.; And Others

    1993-01-01

    This feature issue of a bulletin on community integration points out the challenge of making service systems more familiar with and responsive to the needs of older adults with developmental disabilities and their families. It includes articles with the following titles and authors: "Living on the Edge" (Arthur Campbell, Jr.); "Aging and…

  17. Meeting the Transition Needs of Incarcerated Youth with Disabilities

    ERIC Educational Resources Information Center

    Hogan, Kathleen A.; Bullock, Lyndal M.; Fritsch, Eric J.

    2010-01-01

    Research confirms that students with disabilities (e.g., emotional and behavioral disabilities, learning disabilities, and developmental delays) are overrepresented in correctional facilities across the United States. The literature suggests several reasons for the overrepresentation of students with disabilities in the correctional system: (a)…

  18. Pinworm Eradication in Community Residential Settings for People with Developmental Disabilities.

    ERIC Educational Resources Information Center

    Kastner, Theodore; And Others

    1992-01-01

    A public health approach was used to eliminate pinworm from a system of community residential settings for individuals with developmental disabilities. The approach involved screening and treatment of staff members and clients living and working in close proximity to index cases, and prophylactically treating many clients and staff based on…

  19. "Just Having a Job": Career Advancement for Low-Wage Workers with Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    Lindstrom, Lauren; Hirano, Kara A.; McCarthy, Colleen; Alverson, Charlotte Y.

    2014-01-01

    This study examined career development and early employment experiences for four young adults with intellectual and developmental disabilities. Researchers used a multiple-method, multiple case-study longitudinal design to explore career development within the context of family systems, high school and transition programs, adult services, and…

  20. Are We There yet? Screening Processes for Intellectual and Developmental Disabilities in Jail Settings

    ERIC Educational Resources Information Center

    Scheyett, Anna; Vaughn, Jennie; Taylor, Melissa; Parish, Susan

    2009-01-01

    Early identification of intellectual and developmental disabilities in persons in the criminal justice system is essential to protect their rights during arrest and trial, ensure safety when incarcerated, and maximize the opportunities to receive services while incarcerated and postrelease. Using telephone interviews of jail administrators (N =…

  1. Technical Elements, Demonstration Projects, and Fiscal Models in Medicaid Managed Care for People with Developmental Disabilities.

    ERIC Educational Resources Information Center

    Kastner, Theodore A.; Walsh, Kevin K.; Criscione, Teri

    1997-01-01

    Presents a general model of the structure and functioning of managed care and describes elements (provider networks, fiscal elements, risk estimation, case-mix, management information systems, practice parameters, and quality improvement) critical to people with developmental disabilities. Managed care demonstration projects and a hypothetical…

  2. Residential Services for Persons with Developmental Disabilities: Status and Trends through 1994. Report #46.

    ERIC Educational Resources Information Center

    Prouty, Robert, Ed.; Lakin, K. Charlie, Ed.

    This report from the ongoing National Residential Information Systems Project provides statistics on persons with mental retardation and related developmental disabilities (MR/DD) receiving residential services in the United States for the year ending June 30, 1994, as well as comparative statistics from earlier years. An executive summary…

  3. Residential Services for Persons with Developmental Disabilities: Status and Trends through 1996. Report #49.

    ERIC Educational Resources Information Center

    Prouty, Robert, Ed.; Lakin, K. Charlie, Ed.

    This report from the ongoing National Residential Information Systems Project provides statistics on persons with mental retardation and related developmental disabilities (MR/DD) receiving residential services in the United States for the year ending June 30, 1996, as well as comparative statistics from earlier years. Section 1 contains chapters…

  4. Indian Immigrant Parents of Children with Developmental Disabilities: Stressors and Support Systems

    ERIC Educational Resources Information Center

    John, Aesha; Bower, Kori; McCullough, Samie

    2016-01-01

    Although Asian Indians constitute one of the largest immigrant groups in the USA, research examining wellbeing among Indian immigrant families caring for a child with a developmental disability is relatively scarce. In response, this study examined the stressors and perceived quality of social support among Indian immigrant families of children…

  5. Intellectual Disability and Developmental Risk: Promoting Intervention to Improve Child and Family Well-Being

    ERIC Educational Resources Information Center

    Crnic, Keith A.; Neece, Cameron L.; McIntyre, Laura Lee; Blacher, Jan; Baker, Bruce L.

    2017-01-01

    Initial intervention processes for children with intellectual disabilities (IDs) largely focused on direct efforts to impact core cognitive and academic deficits associated with the diagnosis. Recent research on risk processes in families of children with ID, however, has influenced new developmental system approaches to early intervention. Recent…

  6. Automated Developmental Disabilities Out-Patient Treatment Review System (ADDOPTRS)—Development and Automation of a Microcomputer Based Case Management System

    PubMed Central

    Fisch, Clifford B.; Fisch, Martin L.

    1979-01-01

    The Stanley S. Lamm Institute for Developmental Disabilities of The Long Island College Hospital, in conjunction with Micro-Med Systems has developed a low cost micro-computer based information system (ADDOP TRS) which monitors quality of care in outpatient settings rendering services to the developmentally disabled population. The process of conversion from paper record keeping systems to direct key-to-disk data capture at the point of service delivery is described. Data elements of the information system including identifying patient information, coded and English-grammar entry procedures for tracking elements of service as well as their delivery status are described. Project evaluation criteria are defined including improved quality of care, improved productivity for clerical and professional staff and enhanced decision making capability. These criteria are achieved in a cost effective manner as a function of more efficient information flow. Administrative applications including staff/budgeting procedures, submissions for third party reimbursement and case reporting to utilization review committees are considered.

  7. National health surveillance of adults with disabilities, adults with intellectual and developmental disabilities, and adults with no disabilities.

    PubMed

    Havercamp, Susan M; Scott, Haleigh M

    2015-04-01

    People with disabilities experience worse health and poorer access to health care compared to people without disability. Large-scale health surveillance efforts have largely excluded adults with intellectual and developmental disability. This study expands knowledge of health status, health risks and preventative health care in a representative US sample comparing the health of adults with no disability to adults with intellectual and developmental disability and to adults with other types of disability. The purposes of this study were (1) to identify disparities between adults with intellectual and developmental disability and adults with no disability and (2) compare this pattern of disparities to the pattern between adults with other types of disability and adults without disability. This study compares health status, health risks and preventative health care in a national sample across three groups of adults: No Disability, Disability, and Intellectual and Developmental Disability. Data sources were the 2010 Behavior Risk Factor Surveillance Survey and the National Core Indicators Consumer Survey. Adults with disability and with intellectual and developmental disability were more likely to report being in poor health compared to adults without disability. Disability and intellectual and developmental disability conferred unique health risks and health care utilization patterns. Significant disparities in health and health care utilization were found for adults with disability and developmental disability relative to adults without disability. Disability training for health care providers and health promotion research that identifies disability as a demographic group is needed. Copyright © 2015 Elsevier Inc. All rights reserved.

  8. 45 CFR 1386.30 - State plan requirements.

    Code of Federal Regulations, 2010 CFR

    2010-10-01

    ... and inclusion into the community of individuals with developmental disabilities. Direct service..., DEPARTMENT OF HEALTH AND HUMAN SERVICES THE ADMINISTRATION ON DEVELOPMENTAL DISABILITIES, DEVELOPMENTAL DISABILITIES PROGRAM FORMULA GRANT PROGRAMS Federal Assistance to State Developmental Disabilities Councils...

  9. Improving Social Understanding of Individuals of Intellectual and Developmental disabilities through a 3D-Facial Expression Intervention Program

    ERIC Educational Resources Information Center

    Cheng, Yufang; Chen, Shuhui

    2010-01-01

    Individuals with intellectual and developmental disabilities (IDD) have specific difficulties in cognitive social-emotional capability, which affect numerous aspects of social competence. This study evaluated the learning effects of using 3D-emotion system intervention program for individuals with IDD in learning socially based-emotions capability…

  10. The Relationship between Body Movements and Qualities of Social Interaction between a Boy with Severe Developmental Disabilities and His Caregiver

    ERIC Educational Resources Information Center

    Dammeyer, Jesper; Koppe, Simo

    2013-01-01

    Research in social interaction and nonverbal communication among individuals with severe developmental disabilities also includes the study of body movements. Advances in analytical technology give new possibilities for measuring body movements more accurately and reliably. One such advance is the Qualisys Motion Capture System (QMCS), which…

  11. Residential Services for Persons with Developmental Disabilities: Status and Trends through 1995. Report #49.

    ERIC Educational Resources Information Center

    Prouty, Robert, Ed.; Lakin, K. Charlie, Ed.

    This report from the ongoing National Residential Information Systems Project on Residential Services provides statistics on persons with mental retardation and related developmental disabilities (MR/DD) receiving residential services in the U.S. for the year ending June 30,1995, as well as comparative statistics from earlier years. The report…

  12. Family Caregivers of Adults with Intellectual and Developmental Disabilities: Outcomes Associated with U.S. Services and Supports

    ERIC Educational Resources Information Center

    Williamson, Heather J.; Perkins, Elizabeth A.

    2014-01-01

    Individuals with intellectual and developmental disabilities (IDD) in the U.S. predominantly live with their family caregivers. As care delivery and support systems vary widely globally, consideration of caregiver outcomes specifically in the U.S. context is needed. A systematic literature review was conducted to identify U.S. family caregiver…

  13. PECS and VOCAs to Enable Students with Developmental Disabilities to Make Requests: An Overview of the Literature

    ERIC Educational Resources Information Center

    Lancioni, Giulio E.; O'Reilly, Mark F.; Cuvo, Anthony J.; Singh, Nirbhay N.; Sigafoos, Jeff; Didden, Robert

    2007-01-01

    This paper provides an overview of the literature dealing with the use of the Picture Exchange Communication System (PECS) and voice output communication aids (VOCAs) for promoting the performance of requests by students with developmental disabilities. Computerized and manual searches were carried out to identify the studies published during the…

  14. Using Virtual Interactive Training Agents (ViTA) with Adults with Autism and Other Developmental Disabilities

    ERIC Educational Resources Information Center

    Burke, Shanna L.; Bresnahan, Tammy; Li, Tan; Epnere, Katrina; Rizzo, Albert; Partin, Mary; Ahlness, Robert M.; Trimmer, Matthew

    2018-01-01

    Conversational virtual human (VH) agents are increasingly used to support role-play experiential learning. This project examined whether a Virtual Interactive Training Agent (ViTA) system would improve job interviewing skills in individuals with autism and developmental disabilities (N = 32). A linear mixed model was employed to evaluate adjusted…

  15. United States Living Arrangements of People with Intellectual and/or Developmental Disabilities in 1995

    ERIC Educational Resources Information Center

    Larson, Sheryl A.; Doljanac, Robert; Lakin, K. Charlie

    2005-01-01

    In the United States, data on the number of people with intellectual or developmental disabilities (ID/DD) living in institutional and other congregate care settings have been gathered and reported since 1977 through the Residential Information Systems Program (RISP) at the University of Minnesota (e.g., Prouty & Lakin, 1997). These data were…

  16. Evaluation of Cognitive Function of Children with Developmental Disabilities by means of Button-Press Task

    NASA Astrophysics Data System (ADS)

    Nakazono, Shogo; Kobori, Satoshi

    The button-press task means that the subject observes a moving target and presses a button to stop it when the target enters a specified area on a computer display. Subjects perform normal task, suppressed task and delayed task. In the suppressed task, the moving target disappears at some point during the trial. In the delayed task, there is some lag time between the time of pressing button and of stopping target. In these tasks, subjects estimate the movement of the target, and press the button considering his/her own reaction time. In our previous study, we showed that cognitive and motor function was able to be evaluated by these tasks. In this study, we examined error data of children with developmental disabilities to evaluate the cognitive function, and investigated the learning processes. Moreover, we discussed the developmental stages by comparing the children with disabilities to normal control children, and we clarified the behavior characteristics of children with developmental disabilities. Asa result, it was shown that our evaluation method and system for the button-press task were effective to evaluate cognitive ability of children with developmental disabilities.

  17. Financial well-being of single, working-age mothers of children with developmental disabilities.

    PubMed

    Parish, Susan L; Rose, Roderick A; Swaine, Jamie G; Dababnah, Sarah; Mayra, Ellen Tracy

    2012-09-01

    Understanding the financial well-being of single mothers who care for children with developmental disabilities is important to ensure that public policies can be effectively targeted to support these vulnerable families. The authors analyze data from the Survey of Income and Program Participation to describe income poverty, asset poverty, income, net worth, and liquid assets of U.S. single, working-age mothers (n  =  242) of children and adult children with developmental disabilities. The well-being of these mothers was compared to the situation of married mothers of children with developmental disabilities (n  =  345) and of single mothers who did not have children with developmental disabilities (n  =  6,547). Compared with both married mothers of children with developmental disabilities and single mothers without children with developmental disabilities, single mothers of children with developmental disabilities had markedly worse financial well-being across a range of income- and asset-based measures. Single mothers caring for children with developmental disabilities face adverse financial well-being as compared with other mothers. Policy makers should consider targeted measures to improve the financial well-being of these parents.

  18. Two-Year Transitional Plan. State of Minnesota Developmental Disabilities. October 1, 1989-September 30, 1991. Accountability.

    ERIC Educational Resources Information Center

    Minnesota State Planning Agency, St. Paul.

    The Minnesota 2-year state plan presents a review of the existing service delivery system for: (1) the provision of services to persons with developmental disabilities and their families; (2) a continuing response to priority areas specified in federal legislation; and (3) development of a work plan leading toward development of a Three-Year State…

  19. Effect of Supported Employment on Vocational Rehabilitation Outcomes of Transition-Age Youth with Intellectual and Developmental Disabilities: A Case Control Study

    ERIC Educational Resources Information Center

    Wehman, Paul; Chan, Fong; Ditchman, Nicole; Kang, Hyun-Ju

    2014-01-01

    The purpose of this study was to examine the effect of supported employment intervention on the employment outcomes of transition-age youth with intellectual and developmental disabilities served by the public vocational rehabilitation system using a case-control study design. Data for this study were extracted from the Rehabilitation Services…

  20. Issues in Sexuality for Individuals with Developmental Disabilities: Myths, Misconceptions, and Mistreatment

    ERIC Educational Resources Information Center

    Irvine, Angela

    2005-01-01

    The myths and misconceptions surrounding the topic of sexuality and people with developmental disabilities were examined to better understand the detrimental effects they were having on the sexual health of individuals with developmental disabilities. Persons with developmental disabilities are often infantilised and viewed as asexual. This…

  1. Nursing Perspectives on Cancer Screening in Adults with Intellectual and Other Developmental Disabilities

    ERIC Educational Resources Information Center

    Tyler, Carl V.; Zyzanski, Stephen J.; Panaite, Vanessa; Council, Linda

    2010-01-01

    Health care disparities have been documented in cancer screenings of adults with intellectual and other developmental disabilities. Developmental disabilities nurses were surveyed to better understand and improve this deficiency. Two thirds of respondents believed that adults with intellectual and developmental disabilities received fewer cancer…

  2. Central nervous system medication use in older adults with intellectual disability: Results from the successful ageing in intellectual disability study.

    PubMed

    Chitty, Kate M; Evans, Elizabeth; Torr, Jennifer J; Iacono, Teresa; Brodaty, Henry; Sachdev, Perminder; Trollor, Julian N

    2016-04-01

    Information on the rates and predictors of polypharmacy of central nervous system medication in older people with intellectual disability is limited, despite the increased life expectancy of this group. This study examined central nervous system medication use in an older sample of people with intellectual disability. Data regarding demographics, psychiatric diagnoses and current medications were collected as part of a larger survey completed by carers of people with intellectual disability over the age of 40 years. Recruitment occurred predominantly via disability services across different urban and rural locations in New South Wales and Victoria. Medications were coded according to the Monthly Index of Medical Specialties central nervous system medication categories, including sedatives/hypnotics, anti-anxiety agents, antipsychotics, antidepressants, central nervous system stimulants, movement disorder medications and anticonvulsants. The Developmental Behaviour Checklist for Adults was used to assess behaviour. Data were available for 114 people with intellectual disability. In all, 62.3% of the sample was prescribed a central nervous system medication, with 47.4% taking more than one. Of those who were medicated, 46.5% had a neurological diagnosis (a seizure disorder or Parkinson's disease) and 45.1% had a psychiatric diagnosis (an affective or psychotic disorder). Linear regression revealed that polypharmacy was predicted by the presence of neurological and psychiatric diagnosis, higher Developmental Behaviour Checklist for Adults scores and male gender. This study is the first to focus on central nervous system medication in an older sample with intellectual disability. The findings are in line with the wider literature in younger people, showing a high degree of prescription and polypharmacy. Within the sample, there seems to be adequate rationale for central nervous system medication prescription. Although these data do not indicate non-adherence to guidelines for prescribing in intellectual disability, the high rate of polypharmacy and its relationship to Developmental Behaviour Checklist for Adults scores reiterate the importance of continued medication review in older people with intellectual disability. © The Royal Australian and New Zealand College of Psychiatrists 2015.

  3. The History of Legislation and Regulations Related to Children with Developmental Disabilities: Implications for School Nursing Practice Today

    ERIC Educational Resources Information Center

    Dang, Michelle T.

    2010-01-01

    A significant number of children in the United States have developmental disabilities. Historically, many children with developmental disabilities were institutionalized and rarely seen in public. Currently, children with developmental disabilities are entitled to education and health-related support services that permit them access to public…

  4. Disparities in diabetes prevalence and preventable hospitalizations in people with intellectual and developmental disability: a population-based study.

    PubMed

    Balogh, R S; Lake, J K; Lin, E; Wilton, A; Lunsky, Y

    2015-02-01

    To describe and compare population-level aspects of diabetes and diabetes primary care among people with and without intellectual and developmental disabilities. Administrative health data accessed from the Institute for Clinical Evaluative Sciences was used to identify a cohort of Ontarians with and without intellectual and developmental disabilities between the ages of 30 and 69 years (n = 28 567). These people were compared with a random sample of people without intellectual and developmental disabilities (n = 2 261 919) according to diabetes prevalence, incidence, age, sex, rurality, neighbourhood income and morbidity. To measure diabetes primary care, we also studied hospitalizations for diabetes-related ambulatory care-sensitive conditions. Adults with intellectual and developmental disabilities had a consistently higher prevalence and incidence of diabetes than those without intellectual and developmental disabilities. Disparities in prevalence between those with and without intellectual and developmental disabilities were most notable among women, younger adults and those residing in rural or high income neighbourhoods. In terms of hospitalizations for diabetes-related ambulatory care-sensitive conditions, people with intellectual and developmental disabilities were 2.6 times more likely to be hospitalized. Adults with intellectual and developmental disabilities are at high risk of developing and being hospitalized for diabetes. The findings of the present study have a number of important implications related to the early detection, prevention and proper management of diabetes among adults with intellectual and developmental disabilities. © 2014 The Authors. Diabetic Medicine © 2014 Diabetes UK.

  5. Begin the Between: Planning for the Transition from High School to Adult Life for Youth with Developmental Disabilities. Second Edition.

    ERIC Educational Resources Information Center

    Matuszak, Trish; And Others

    This guide was developed to provide an overview of the major elements of the transition planning process from school to the adult system of supports and services for youth with developmental disabilities and their families. The workbook format is intended to enable families to be proactive at each stage of the planning process. Initial sections…

  6. Investigating the Acquisition, Generalization, and Emergence of Untrained Verbal Operants for Mands Acquired Using the Picture Exchange Communication System in Adults with Severe Developmental Disabilities

    ERIC Educational Resources Information Center

    Ziomek, M. M.; Rehfeldt, R. A.

    2008-01-01

    This study compared the total amount of training time and total number of trial blocks for individuals with severe developmental disabilities to acquire mands under control of unconditioned establishing operations and mands under control of transitive conditioned establishing operations for manual sign and for the Picture Exchange Communication…

  7. The Effectiveness of a Group Triple P with Chinese Parents Who Have a Child with Developmental Disabilities: A Randomized Controlled Trial

    ERIC Educational Resources Information Center

    Leung, Cynthia; Fan, Angel; Sanders, Matthew R.

    2013-01-01

    The study examined the effectiveness of Group Triple P, a Level 4 variant of the Triple P multilevel system of parenting support, with Chinese parents who had a preschool aged child with a developmental disability, using randomized controlled trial design. Participants (Intervention group: 42; Waitlist Control group: 39) completed measures on…

  8. Best Practices for Practitioners in Autism, Intellectual Disability, and Developmental Disabilities

    ERIC Educational Resources Information Center

    Zucker, Stanley H.; Perras, Cindy; Perner, Darlene E.; Murdick, Nikki

    2013-01-01

    On January 23-25, 2013, the Council for Exceptional Children Division on Autism and Developmental Disabilities (DADD) sponsored its Fourteenth International Conference: Research to Practice in Autism, Intellectual Disability and Developmental Disabilities. The conference was held at the Sheraton Kona Resort at Keauhou Bay, Hawaii. The DADD Board…

  9. Resources: A Guide to Services for People with Developmental Disabilities and Their Families.

    ERIC Educational Resources Information Center

    Mizanin, Gregory, Ed.

    This volume provides a quick reference to services available in New Jersey for people with developmental disabilities and their families. The guide begins with a brief overview of New Jersey's definition of developmental disabilities, a description of the work of the New Jersey Developmental Disabilities Council, and an outline of civil rights…

  10. Knowledge and Perceptions of Newly Graduated Medical Practitioners in Malaysia of Their Role in Medical Care of People with Developmental Disabilities

    ERIC Educational Resources Information Center

    Moyle, Judith L.; Iacono, Teresa; Liddell, Merilyn

    2010-01-01

    Improving content and consistency on developmental disabilities in undergraduate medical curricula has been recommended as a means of improving health outcomes for people with developmental disabilities. Although often the subject of studies in Western countries, little is known about content on developmental disabilities in undergraduate…

  11. Child and adolescent psychiatry leadership in public mental health, child welfare, and developmental disabilities agencies.

    PubMed

    Zachik, Albert A; Naylor, Michael W; Klaehn, Robert L

    2010-01-01

    Child and adolescent psychiatrists are in a unique position to provide administrative and clinical leadership to public agencies. In mental health, services for children and adolescents in early childhood, school, child welfare, and juvenile justice settings, transition-aged youth programs, workforce development, family and youth leadership programs, and use of Medicaid waivers for home- and community-based service system development are described. In child welfare, collaboration between an academic child psychiatry department and a state child welfare department is described. In developmental disabilities, the role of the child and adolescent psychiatrist administrator is described providing administrative leadership, clinical consultation, quality review, and oversight of health and behavioral health plans for persons with developmental disabilities.

  12. Child protection services and parents with intellectual and developmental disabilities.

    PubMed

    LaLiberte, Traci; Piescher, Kristine; Mickelson, Nicole; Lee, Mi Hwa

    2017-05-01

    Information about parents with intellectual and developmental disabilities (IDD) in the child protection system (CPS) continues to evolve. This study examined characteristics, experiences and representation of parents with IDD across three CPS decision points, as compared to parents with other disabilities and parents without disabilities in the United States. The sample consisted of 303,039 individuals: 2,081 were individuals identified as parents in a CPS investigation; 1,101 had children in out-of-home care (OHC); and 308 experienced termination of parental rights (TPR). Descriptive statistics, chi-square analysis, disparity indices and logistic regression were employed. Parents with IDD were significantly more likely than parents without disabilities (but not significantly more likely than parents with other types of disabilities) to experience disproportionately representation. Parents with IDD are generally over-represented within CPS; however, this representation is dependent upon the comparison group utilized and other risk factors. CPS system-level changes are necessary. © 2016 John Wiley & Sons Ltd.

  13. Treating Individuals With Intellectual Disabilities and Challenging Behaviors With Adapted Dialectical Behavior Therapy

    PubMed Central

    Brown, Julie F.; Brown, Milton Z.; Dibiasio, Paige

    2013-01-01

    Approximately one third of adults with intellectual and developmental disabilities have emotion dysregulation and challenging behaviors (CBs). Although research has not yet confirmed that existing treatments adequately reduce CBs in this population, dialectical behavior therapy (DBT) holds promise, as it has been shown to effectively reduce CBs in other emotionally dysregulated populations. This longitudinal single-group pilot study examined whether individuals with impaired intellectual functioning would show reductions in CBs while receiving standard DBT individual therapy used in conjunction with the Skills System (DBT-SS), a DBT emotion regulation skills curriculum adapted for individuals with cognitive impairment. Forty adults with developmental disabilities (most of whom also had intellectual disabilities) and CBs, including histories of aggression, self-injury, sexual offending, or other CBs, participated in this study. Changes in their behaviors were monitored over 4 years while in DBT-SS. Large reductions in CBs were observed during the 4 years. These findings suggest that modified DBT holds promise for effectively treating individuals with intellectual and developmental disabilities. PMID:23914278

  14. Setting global research priorities for developmental disabilities, including intellectual disabilities and autism.

    PubMed

    Tomlinson, M; Yasamy, M T; Emerson, E; Officer, A; Richler, D; Saxena, S

    2014-12-01

    The prevalence of intellectual disabilities (ID) has been estimated at 10.4/1000 worldwide with higher rates among children and adolescents in lower income countries. The objective of this paper is to address research priorities for development disabilities, notably ID and autism, at the global level and to propose the more rational use of scarce funds in addressing this under-investigated area. An expert group was identified and invited to systematically list and score research questions. They applied the priority setting methodology of the Child Health and Nutrition Research Initiative (CHNRI) to generate research questions and to evaluate them using a set of five criteria: answerability, feasibility, applicability and impact, support within the context and equity. The results of this process clearly indicated that the important priorities for future research related to the need for effective and efficient approaches to early intervention, empowerment of families supporting a person with developmental disability and to address preventable causes of poor health in people with ID and autism. For the public health and other systems to become more effective in delivering appropriate support to persons with developmental disabilities, greater (and more targeted) investment in research is required to produce evidence of what works consistent with international human rights standards. © 2014 MENCAP and International Association of the Scientific Study of Intellectual and Developmental Disabilities and John Wiley & Sons Ltd.

  15. Food Insecurity among Young Adults with Intellectual and Developmental Disabilities in the United States: Evidence from the National Health Interview Survey

    ERIC Educational Resources Information Center

    Brucker, Debra L.; Nord, Derek

    2016-01-01

    People with intellectual or developmental disabilities (IDD) face higher levels of poverty than others, which can lead to concerns regarding areas of well-being, such as food security. Young adults with IDD who are, in many cases, transitioning from the system of educational, health care, and income supports of their youth into the adult world may…

  16. A Manual on the Primary Prevention of Developmental Disabilities.

    ERIC Educational Resources Information Center

    Whitley, Elizabeth B.; Skiles, Laura Lopater

    This manual presents information about major causes of developmental disabilities, discusses strategies to prevent development disabilities, and identifies relevant resources and reference material. Introductory information defines developmental disabilities and prevention (under Virginia statutes). The first section considers causes prior to and…

  17. Addressing sexual and reproductive health in adolescents and young adults with intellectual and developmental disabilities.

    PubMed

    Walters, Frinny Polanco; Gray, Susan Hayden

    2018-05-24

    This review provides support for promoting the sexual health of adolescents and young adults with developmental disabilities, and particularly those with intellectual disabilities. It offers guidance for pediatricians on incorporating counseling on sexuality and reproductive healthcare, socially appropriate behavior, and sexual abuse prevention for adolescents and young adults with developmental disabilities into healthcare visits. Additionally, it provides resources for developmentally appropriate sexuality education in the home and community to allow access to the comprehensive sexual and reproductive healthcare patients deserve. Adolescents and young adults with developmental disabilities often do not receive developmentally appropriate sexual health education, and this is associated with poor sexual health outcomes and increased rates of sexual abuse in this population. Pediatricians should discuss sexual health with all patients, including adolescents and young adults with developmental disabilities. They are well suited to provide sexual health education and inform families about appropriate sexual health resources.

  18. Paddling with Individuals with Developmental Disabilities

    ERIC Educational Resources Information Center

    Todd, Teri; Medina, Jacquie

    2013-01-01

    Although there is a variety of literature that offers adaptations and teaching suggestions for paddling with individuals who have physical disabilities, only a few address the needs of individuals with developmental disabilities (Gullion, 2009; Zeller, 2009). Developmental disabilities refer to a diverse group of severe chronic conditions that are…

  19. 77 FR 57091 - Administration on Intellectual and Developmental Disabilities (AIDD); Notice of Meeting

    Federal Register 2010, 2011, 2012, 2013, 2014

    2012-09-17

    ... Intellectual and Developmental Disabilities (AIDD); Notice of Meeting AGENCY: President's Committee for People with Intellectual Disabilities (PCPID), HHS. ACTION: Notice of Meeting. DATES: Tuesday, October 16... Intellectual and Developmental Disabilities. [FR Doc. 2012-22830 Filed 9-14-12; 8:45 am] BILLING CODE 4154-01-P ...

  20. Handicaps and Developmental Disabilities. Matrix No. 10.

    ERIC Educational Resources Information Center

    Prensky, Arthur L.

    This paper summarizes the recent advances achieved by research in the area of developmental disabilities, and discusses directions for future research in this area. Approximately 8 to 10 per cent of the pediatric population suffers from one or more developmental disabilities. The most common of these are learning disabilities, which include some…

  1. Dental care in children with developmental disabilities: attention deficit disorder, intellectual disabilities, and autism.

    PubMed

    Charles, Jane M

    2010-01-01

    The Federal government reports that 13% of Americans between birth and 18 years of old meet the definition of a child with special health care needs. These children and young adults present unique challenges for both pediatric and general dentists to provide access to the oral health care system--establishing a treatment plan for those with unique medical, behavioral and dental needs and maintaining oral health over the lifetime. The purpose of this article was to describe the characteristics of 3 common developmental disabilities and the challenges these issues present to the oral health care practitioner.

  2. 45 CFR 1385.1 - General.

    Code of Federal Regulations, 2010 CFR

    2010-10-01

    ... Regulations Relating to Public Welfare (Continued) OFFICE OF HUMAN DEVELOPMENT SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES THE ADMINISTRATION ON DEVELOPMENTAL DISABILITIES, DEVELOPMENTAL DISABILITIES... the Rights of Individuals with Developmental Disabilities; (c)Projects of National Significance;and (d...

  3. Hearing-Impaired/Developmentally Disabled Persons in the United States: Definitions, Causes, Effects, and Prevalence Estimates

    ERIC Educational Resources Information Center

    Stewart, Larry G.

    1978-01-01

    Information is presented on the definition, causes, effects and population estimates for developmental disabilities; and a tentative hypothesis regarding the hearing impaired/developmentally disabled is set forth. (CL)

  4. The Diagnostic Yield of Array Comparative Genomic Hybridization Is High Regardless of Severity of Intellectual Disability/Developmental Delay in Children.

    PubMed

    D'Arrigo, Stefano; Gavazzi, Francesco; Alfei, Enrico; Zuffardi, Orsetta; Montomoli, Cristina; Corso, Barbara; Buzzi, Erika; Sciacca, Francesca L; Bulgheroni, Sara; Riva, Daria; Pantaleoni, Chiara

    2016-05-01

    Microarray-based comparative genomic hybridization is a method of molecular analysis that identifies chromosomal anomalies (or copy number variants) that correlate with clinical phenotypes. The aim of the present study was to apply a clinical score previously designated by de Vries to 329 patients with intellectual disability/developmental disorder (intellectual disability/developmental delay) referred to our tertiary center and to see whether the clinical factors are associated with a positive outcome of aCGH analyses. Another goal was to test the association between a positive microarray-based comparative genomic hybridization result and the severity of intellectual disability/developmental delay. Microarray-based comparative genomic hybridization identified structural chromosomal alterations responsible for the intellectual disability/developmental delay phenotype in 16% of our sample. Our study showed that causative copy number variants are frequently found even in cases of mild intellectual disability (30.77%). We want to emphasize the need to conduct microarray-based comparative genomic hybridization on all individuals with intellectual disability/developmental delay, regardless of the severity, because the degree of intellectual disability/developmental delay does not predict the diagnostic yield of microarray-based comparative genomic hybridization. © The Author(s) 2015.

  5. Teaching topography-based and selection-based verbal behavior to developmentally disabled individuals: Some considerations

    PubMed Central

    Shafer, Esther

    1993-01-01

    Augmentative and alternative communication systems are widely recommended for nonvocal developmentally disabled individuals, with selection-based systems becoming increasingly popular. However, theoretical and experimental evidence suggests that topography-based communication systems are easier to learn. This paper discusses research relevant to the ease of acquisition of topography-based and selection-based systems. Additionally, current practices for choosing and designing communication systems are reviewed in order to investigate the extent to which links have been made with available theoretical and experimental knowledge. A stimulus equivalence model is proposed as a clearer direction for practitioners to follow when planning a communication training program. Suggestions for future research are also offered. PMID:22477085

  6. 45 CFR 1388.7 - Program criteria-dissemination.

    Code of Federal Regulations, 2010 CFR

    2010-10-01

    ..., productivity, integration and inclusion of individuals with developmental disabilities and their families. (b... SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES THE ADMINISTRATION ON DEVELOPMENTAL DISABILITIES, DEVELOPMENTAL DISABILITIES PROGRAM THE UNIVERSITY AFFILIATED PROGRAMS § 1388.7 Program criteria—dissemination...

  7. Investigating the Acquisition, Generalization, and Emergence of Untrained Verbal Operants for Mands Acquired Using the Picture Exchange Communication System in Adults With Severe Developmental Disabilities

    PubMed Central

    Ziomek, Megan M; Rehfeldt, Ruth Anne

    2008-01-01

    This study compared the total amount of training time and total number of trial blocks for individuals with severe developmental disabilities to acquire mands under control of unconditioned establishing operations and mands under control of transitive conditioned establishing operations for manual sign and for the Picture Exchange Communication System (PECS). Also examined was the generalization of mands across settings and communicative partners, as well as the emergence of untrained tacts and intraverbals for mands acquired using PECS. Mands for preferred items and for items needed to complete a chained task were acquired more rapidly and in fewer training blocks for PECS than for manual sign. Moreover, mands established using PECS generalized across settings and communicative partners. Finally, untrained tacts and intraverbals using PECS were shown to emerge for some of the participants following PECS training. These results suggest that PECS may be a viable alternative communication system for adults with severe developmental disabilities who have little or no history of systematic instruction and limited imitative repertoires. PMID:22477401

  8. Investigating the acquisition, generalization, and emergence of untrained verbal operants for mands acquired using the picture exchange communication system in adults with severe developmental disabilities.

    PubMed

    Ziomek, Megan M; Rehfeldt, Ruth Anne

    2008-01-01

    This study compared the total amount of training time and total number of trial blocks for individuals with severe developmental disabilities to acquire mands under control of unconditioned establishing operations and mands under control of transitive conditioned establishing operations for manual sign and for the Picture Exchange Communication System (PECS). Also examined was the generalization of mands across settings and communicative partners, as well as the emergence of untrained tacts and intraverbals for mands acquired using PECS. Mands for preferred items and for items needed to complete a chained task were acquired more rapidly and in fewer training blocks for PECS than for manual sign. Moreover, mands established using PECS generalized across settings and communicative partners. Finally, untrained tacts and intraverbals using PECS were shown to emerge for some of the participants following PECS training. These results suggest that PECS may be a viable alternative communication system for adults with severe developmental disabilities who have little or no history of systematic instruction and limited imitative repertoires.

  9. METROPOLITAN ATLANTA DEVELOPMENTAL DISABILITIES PROGRAM (MADDSP)

    EPA Science Inventory

    To address the problem of developmental disabilities among children, CDC, the former Division of Birth Defects and Developmental Disabilities, which was funded by the Agency for Toxic Substances and Disease Registry (ATSDR), and the Georgia Department of Human Resources, initiate...

  10. 45 CFR 1388.2 - Program criteria-purpose.

    Code of Federal Regulations, 2010 CFR

    2010-10-01

    ... inclusion of individuals with developmental disabilities. Compliance with the program criteria is a..., DEPARTMENT OF HEALTH AND HUMAN SERVICES THE ADMINISTRATION ON DEVELOPMENTAL DISABILITIES, DEVELOPMENTAL DISABILITIES PROGRAM THE UNIVERSITY AFFILIATED PROGRAMS § 1388.2 Program criteria—purpose. The program criteria...

  11. 77 FR 43335 - Administration on Intellectual and Developmental Disabilities; Agency Information Collection...

    Federal Register 2010, 2011, 2012, 2013, 2014

    2012-07-24

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Administration for Community Living Administration on Intellectual and Developmental Disabilities; Agency Information Collection Activities; Proposed Collection; Comment Request; Financial Status Reporting Form for State Councils on Developmental Disabilities AGENCY...

  12. 45 CFR 1386.33 - Protection of employee's interests.

    Code of Federal Regulations, 2010 CFR

    2010-10-01

    ... Section 1386.33 Public Welfare Regulations Relating to Public Welfare (Continued) OFFICE OF HUMAN DEVELOPMENT SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES THE ADMINISTRATION ON DEVELOPMENTAL DISABILITIES, DEVELOPMENTAL DISABILITIES PROGRAM FORMULA GRANT PROGRAMS Federal Assistance to State Developmental Disabilities...

  13. Relations among motor, social, and cognitive skills in pre-kindergarten children with developmental disabilities.

    PubMed

    Kim, Helyn; Carlson, Abby G; Curby, Timothy W; Winsler, Adam

    2016-01-01

    Despite the comorbidity between motor difficulties and certain disabilities, limited research has examined links between early motor, cognitive, and social skills in preschool-aged children with developmental disabilities. The present study examined the relative contributions of gross motor and fine motor skills to the prediction of improvements in children's cognitive and social skills among 2,027 pre-kindergarten children with developmental disabilities, including specific learning disorder, speech/language impairment, intellectual disability, and autism spectrum disorder. Results indicated that for pre-kindergarten children with developmental disabilities, fine motor skills, but not gross motor skills, were predictive of improvements in cognitive and social skills, even after controlling for demographic information and initial skill levels. Moreover, depending on the type of developmental disability, the pattern of prediction of gross motor and fine motor skills to improvements in children's cognitive and social skills differed. Implications are discussed. Copyright © 2016 Elsevier Ltd. All rights reserved.

  14. Midlife and Aging Parents of Adults with Intellectual and Developmental Disabilities: Impacts of Lifelong Parenting

    ERIC Educational Resources Information Center

    Seltzer, Marsha Mailick; Floyd, Frank; Song, Jieun; Greenberg, Jan; Hong, Jinkuk

    2011-01-01

    Using population data, this study included parents of individuals with intellectual and developmental disabilities (n = 220) and parents of individuals without disabilities (n = 1,042). Parents of individuals with intellectual and developmental disabilities were further divided into those who co-resided with their adult child and those whose adult…

  15. 77 FR 60123 - Agency Information Collection Activities: Submission for OMB Review; Comment Request...

    Federal Register 2010, 2011, 2012, 2013, 2014

    2012-10-02

    ...: Notice. SUMMARY: The Administration Intellectual and Developmental Disabilities (AIDD), Administration... Intellectual and Developmental Disabilities (AIDD). AIDD will aggregate the information in the SGPs into a... Collection Activities: Submission for OMB Review; Comment Request; Developmental Disabilities Protection...

  16. Twelve tips for teaching child development and disability to medical students.

    PubMed

    McDonald, Jenny

    2018-02-01

    Child development is a marker of well-being in childhood and recognition of developmental delay allows timely investigation and intervention for children with developmental disabilities. Despite this, child development and disabilities are not given emphasis in the medical curriculum. This under representation of teaching combined with the stigma associated with disabilities contributes to the sub-optimal health care of people with disabilities. As well as, addressing the stigma of disability a medical undergraduate curriculum should include: the key concepts of child development; the clinical presentation of the most common developmental disabilities; developmental history taking and the infant neurodevelopmental examination. The following twelve tips provide practical advice about how to teach this knowledge and these skills during medical training.

  17. Review of gynecologic and reproductive care for women with developmental disabilities.

    PubMed

    Abells, Dara; Kirkham, Yolanda A; Ornstein, Melanie P

    2016-10-01

    Care for women with developmental disabilities requires special consideration for unique needs related to their cognitive and physical abilities. These women and their caregivers require more support and guidance during reproductive health care. We review the literature and provide expert opinion surrounding gynecological issues for women with developmental disabilities to support healthcare providers better understand and care for this population. Women with developmental disabilities are more vulnerable to abuse and experience poorer gynecological healthcare outcomes. Many women with developmental disabilities are fertile and participate in sexual activity without adequate knowledge. They are at higher risk of pregnancy and birth complications. They are less likely to receive appropriate preventive screening. The review highlights important issues and practice suggestions related to the reproductive health care of women with developmental disabilities. Topics include clinic visits, menstruation, sexuality, sexual abuse, sexual health education, contraception, sexually transmitted infections, pregnancy, labor and delivery, and cancer screening/prevention. We emphasize the need for an individualized, comprehensive approach for these patients and review perceived and actual barriers to care. More education is needed on the aforementioned topics for women with developmental disabilities, their caregivers, and their providers.

  18. Exploring the meaning of parental involvement in physical education for students with developmental disabilities.

    PubMed

    An, Jihoun; Hodge, Samuel R

    2013-04-01

    The purpose of this phenomenological inquiry was to explore the experiences and meaning of parental involvement in physical education from the perspectives of the parents of students with developmental disabilities. The stories of four mothers of elementary aged children (3 boys, 1 girl), two mothers and one couple (mother and father) of secondary-aged youth (1 girl, 2 boys) with developmental disabilities, were gathered by using interviews, photographs, school documents, and the researcher's journal. Bronfenbrenner's (2005) ecological system theory provided a conceptual framework to interpret the findings of this inquiry. Three themes emerged from thematic analysis: being an advocate for my child, understanding the big picture, and collaborative partnerships undeveloped in GPE. The findings lend additional support to the need for establishing collaborative partnerships in physical education between home and school environments (An & Goodwin, 2007; Tekin, 2011).

  19. 45 CFR 1388.5 - Program criteria-preparation of personnel.

    Code of Federal Regulations, 2010 CFR

    2010-10-01

    ..., integration and inclusion of individuals with developmental disabilities and their families. (f) The UAP must... DEVELOPMENT SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES THE ADMINISTRATION ON DEVELOPMENTAL DISABILITIES, DEVELOPMENTAL DISABILITIES PROGRAM THE UNIVERSITY AFFILIATED PROGRAMS § 1388.5 Program criteria—preparation of...

  20. 45 CFR 1388.6 - Program criteria-services and supports.

    Code of Federal Regulations, 2010 CFR

    2010-10-01

    ..., integration and inclusion of individuals with developmental disabilities and their families. (b) UAP community... DEVELOPMENT SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES THE ADMINISTRATION ON DEVELOPMENTAL DISABILITIES, DEVELOPMENTAL DISABILITIES PROGRAM THE UNIVERSITY AFFILIATED PROGRAMS § 1388.6 Program criteria—services and...

  1. Scientific and Policy Statements on Environmental Agents Associated with Neurodevelopmental Disorders

    ERIC Educational Resources Information Center

    Gilbert, Steven G.; Miller, Elise; Martin, Joyce; Abulafia, Laura

    2010-01-01

    Damage to the brain or nervous system at an early developmental stage creates lifelong challenges for the individual. To examine one source of harm to the developing nervous system, the Collaborative on Health and the Environment's (CHE) Learning and Developmental Disabilities Initiative (LDDI) (Collaborative on Health and the Environment, 2009)…

  2. Setting global research priorities for developmental disabilities, including intellectual disabilities and autism

    PubMed Central

    Tomlinson, Mark; Yasamy, M. Taghi; Emerson, Eric; Officer, Alana; Richler, Diane; Saxena, Shekhar

    2015-01-01

    Objectives The prevalence of intellectual disabilities (ID) has been estimated at 10.4/1000 worldwide with higher rates among children and adolescents in lower income countries. The objective of this paper is to address research priorities for development disabilities, notably intellectual disabilities and autism, at the global level and to propose the more rational use of scarce funds in addressing this under-investigated area. Methods An expert group was identified and invited to systematically list and score research questions. They applied the priority setting methodology of the Child Health and Nutrition Research Initiative (CHNRI) to generate research questions and to evaluate them using a set of five criteria: answerability, feasibility, applicability and impact, support within the context and equity. Findings The results of this process clearly indicated that the important priorities for future research related to the need for effective and efficient approaches to early intervention, empowerment of families supporting a person with developmental disability and to address preventable causes of poor health in people with ID and autism. Conclusions For the public health and other systems to become more effective in delivering appropriate support to persons with developmental disabilities, greater (and more targeted) investment in research is required to produce evidence of what works consistent with international human rights standards. PMID:24397279

  3. Facts about Developmental Disabilities

    MedlinePlus

    ... Children with kernicterus are more likely to have cerebral palsy, hearing and vision problems, and problems with their ... developmental disabilities, such as: ADHD , autism spectrum disorder , cerebral palsy , hearing loss , intellectual disability , learning disability, vision impairment , ...

  4. Space, Time, and Dyslexia: Central Nervous System Factors in Reading Disability.

    ERIC Educational Resources Information Center

    Krippner, Stanley

    Developmental and post-traumatic dyslexia are discussed in terms of a dysfunction of the central nervous system resulting in reading disabilities. The relationship of reading to other language functions is considered, with emphasis on the temporal aspects of speech and reading. An interdisciplinary approach is held necessary for the diagnosis of…

  5. Inclusion Assistants in General Education Settings--A Model for In-Service Training

    ERIC Educational Resources Information Center

    Moshe, Anat

    2017-01-01

    The inclusion assistant (IA) is a fairly new position in the education system and is the outcome of current ideological and legislative steps to include students with special needs into the general educational system. The IA's function is to personally accompany students with severe disabilities--autism, developmental disabilities, physical…

  6. Young Children with Disabilities in Israel: System of Early Intervention Service Delivery

    ERIC Educational Resources Information Center

    Shulman, Cory; Meadan, Hedda; Sandhaus, Yoram

    2012-01-01

    This article aims to analyze early intervention programs in Israel according to the Developmental Systems Model (Guralnick, 2001), in an attempt to identify strengths and areas for further development for service delivery for young children with disabilities in Israel. Early intervention in Israel is part of a comprehensive healthcare model…

  7. Mathematical models in simulation process in rehabilitation of persons with disabilities

    NASA Astrophysics Data System (ADS)

    Gorie, Nina; Dolga, Valer; Mondoc, Alina

    2012-11-01

    The problems of people with disability are varied. A disability may be physical, cognitive, mental, sensory, emotional, developmental or some combination of these. The major disabilities which can appear in people's lives are: the blindness, the deafness, the limb-girdle muscular dystrophy, the orthopedic impairment, the visual impairment. A disability is an umbrella term, covering impairments, activity limitations and participation restrictions. A disability may occur during a person's lifetime or may be present from birth. The authors conclude that some of these disabilities like physical, cognitive, mental, sensory, emotional, developmental can be rehabilitated. Starting from this state of affairs the authors present briefly the possibility of using certain mechatronic systems for rehabilitation of persons with different disabilities. The authors focus their presentation on alternative calling the Stewart platform in order to achieve the proposed goal. The authors present a mathematical model of systems theory approach under the parallel system and described its contents can. The authors analyze in a meaningful mathematical model describing the procedure of rehabilitation process. From the affected function biomechanics and taking into account medical recommendations the authors illustrate the mathematical models of rehabilitation work. The authors assemble a whole mathematical model of parallel structure and the rehabilitation process and making simulation and highlighting the results estimated. The authors present in the end work the results envisaged in the end analysis work, conclusions and steps for future work program..

  8. The relationship between body movements and qualities of social interaction between a boy with severe developmental disabilities and his caregiver.

    PubMed

    Dammeyer, Jesper; Køppe, Simo

    2013-06-01

    Research in social interaction and nonverbal communication among individuals with severe developmental disabilities also includes the study of body movements. Advances in analytical technology give new possibilities for measuring body movements more accurately and reliably. One such advance is the Qualisys Motion Capture System (QMCS), which utilizes optical markers to capture body movements. The aim of this study was to explore the practicality of measuring body movements in the nonverbal communication of a child with severe developmental disabilities. A preliminary case study has been undertaken. The social interaction between a boy with developmental disabilities and his teacher was analyzed (1) using observer ratings on psychological aspects of the social interaction and (2) measuring body positions, velocity, and angles of body movements using the QMCS. Associations between observer ratings and measured body movements were examined. This preliminary case study has indicated that emotional response and attention level during the social interaction corresponded with local, synchronized movements and face-to-face orientation. Measurement of motor behavior is suggested as being a potentially useful methodological approach to studying social interaction and communication development.

  9. A clinical approach to developmental delay and intellectual disability.

    PubMed

    Vasudevan, Pradeep; Suri, Mohnish

    2017-12-01

    Global developmental delay and intellectual disability are phenotypically and genetically heterogeneous and a specific diagnosis is not reached in many cases. This paper outlines a systematic approach to global developmental delay and intellectual disability. © Royal College of Physicians 2017. All rights reserved.

  10. Communication Deficits in Infants and Toddlers with Developmental Disabilities

    ERIC Educational Resources Information Center

    Hattier, Megan A.; Matson, Johnny L.; Sipes, Megan; Turygin, Nicole

    2011-01-01

    Research that focuses on detecting and assessing the presence of communication impairments in children with developmental disabilities exists. However, more research is needed which compares these deficits across individuals with various developmental disabilities. This information could inform the assessment process and treatment programs.…

  11. 45 CFR 1386.36 - Final disapproval of the State plan or plan amendments.

    Code of Federal Regulations, 2010 CFR

    2010-10-01

    ... OF HUMAN DEVELOPMENT SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES THE ADMINISTRATION ON DEVELOPMENTAL DISABILITIES, DEVELOPMENTAL DISABILITIES PROGRAM FORMULA GRANT PROGRAMS Federal Assistance to State Developmental Disabilities Councils § 1386.36 Final disapproval of the State plan or plan...

  12. 76 FR 17421 - Proposed Information Collection Activity; Comment Request

    Federal Register 2010, 2011, 2012, 2013, 2014

    2011-03-29

    ... DEPARTMENT OF HEALTH AND HUMAN SERVICES Administration for Children and Families [OMB No. 0980... Developmental Disabilities Council 5-Year State Plan. Description A Plan developed by the State Council on Developmental Disabilities is required by Federal statute. Each State Council on Developmental Disabilities must...

  13. Sleep and Developmental Disabilities: Assessment, Treatment, and Outcome Measures

    ERIC Educational Resources Information Center

    Doran, Scott M.; Harvey, Mark T.; Horner, Robert H.

    2006-01-01

    People with developmental disabilities sleep less and experience higher incidence of clinical sleep disorders than the general population. Exploring the neurophysiology linking sleep with daytime performance in patients with developmental disabilities is now possible using minimally sufficient sleep and sleep-sensitive behavioral assays. Although…

  14. Disparities in Unmet Service Needs Among Adults with Intellectual and Other Developmental Disabilities.

    PubMed

    Burke, Meghan M; Heller, Tamar

    2017-09-01

    Due to long waiting lists for services, many adults with intellectual and developmental disabilities in the United States have unmet service needs. Little research, however, has identified the characteristics of caregivers and individuals with intellectual and developmental disabilities that relate to the unmet service needs among individuals who are waiting for services. The present authors conducted a statewide mail survey of 234 caregivers of individuals with intellectual and developmental disabilities who were waiting for services. The present authors identified which parent and individual with intellectual and developmental disability characteristics were significantly associated with the number of unmet service needs. Individuals with intellectual and developmental disabilities who were in poor health, from minority backgrounds and non-verbal were significantly more likely to have a greater number of unmet service needs. Additionally, individuals with younger caregivers and individuals with caregivers from low-income backgrounds were significantly more likely to report a greater number of unmet service needs. Implications for research and policy are discussed. © 2016 John Wiley & Sons Ltd.

  15. Neurobehavioral assessment of children and adolescents attending a developmental disabilities clinic.

    PubMed

    Brasić, James Robert; Barnett, Jacqueline Y; Kowalik, S; Tsaltas, Margaret Owen; Ahmad, Raheela

    2004-12-01

    Although the risk of the eventual development of tardive dyskinesia and other persistent adverse effects of neuroleptics is high, among adults with mental retardation and other developmental disabilities, neuroleptics may ameliorate dyskinesias, aggression, and inattention. The effects of traditional neuroleptics on a comparable population of children and adolescents with mental retardation and other developmental disabilities are unknown. The objective of this study was to develop an assessment battery to describe the effects of traditional neuroleptics on the behavior and movements of a small sample of children and adolescents with mental retardation and other developmental disabilities. 13 children and adolescents aged 6 to 16 years attending a developmental disabilities clinic were evaluated utilizing a Movement Assessment Battery to measure behavior and motions. Five subjects took traditional neuroleptic medications. Trained raters can reliably assess the movements and behaviors of children and adolescents with multiple handicaps. Children and adolescents with developmental disabilities may be vulnerable to experience functional impairment and akathisia, tics, and other dyskinesias when administered traditional neuroleptic medications.

  16. Project PLANTWORK: A Horticulture Employment Initiative for Workers with Developmental Disabilities.

    ERIC Educational Resources Information Center

    National Council for Therapy and Rehabilitation through Horticulture, Inc., Gaithersburg, MD.

    Intended for persons establishing job development programs for developmentally disabled individuals, this training manual details the structure and procedures of Project PLANTWORK, a 21-month demonstration program which placed approximately 70 workers with developmental disabilities into employment in horticulture industry firms or into…

  17. Social Inclusion of Adults with Developmental Disabilities.

    ERIC Educational Resources Information Center

    Gaylord, Vicki, Ed.

    1997-01-01

    This feature issue presents articles on the social inclusion of people with developmental disabilities into the community and also some related news items. This issue provides profiles of organizations, workplaces, and schools that are successfully integrating people with developmental disabilities into community activities. The articles are:…

  18. Guide to Federal Resources for the Developmentally Disabled.

    ERIC Educational Resources Information Center

    Russem, Wendy, Ed.; And Others

    The guide presents information on available federal resources to improve services for developmentally disabled persons. An introductory chapter provides an overview of the creation and evolution of the Developmental Disabilities Program. Chapter two focuses on federal funding and appropriations, including methods of awarding grants and contracts.…

  19. Family Functioning, Social Opportunities and Health as Predictors of Stress in Families of Children with Developmental Disability in the United Arab Emirates

    ERIC Educational Resources Information Center

    Dukmak, Samir J.; Aburezeq, Ibtehal M.

    2012-01-01

    A significant number of individuals all over the world experience various types of developmental disabilities. Families of these individuals are likely to be impacted by these disabilities in different ways. This research examines the UAE parents' adaptation and stress to the developmental disabilities that their children have as well as examines…

  20. Motor proficiency differences among students with intellectual disabilities, autism, and developmental disability

    PubMed Central

    Jeoung, Bogja

    2018-01-01

    There is considerable overlap in the manifestations of intellectual disability, autism, and developmental disability. We aimed to determine whether students with such disabilities have differences in their motor proficiency. We compared the motor proficiency of 82 students (age, 11 to 20 years) with different severities of intellectual disability (borderline, 11 students; mild, 27 students; moderate, 19 students), developmental disability (15 students), or autism (10 students). The Bruininks-Oseretsky Test of Motor Proficiency, Second edition was used to assess motor skills. The data were analyzed using descriptive statistics, independent t-tests, and analysis of variance. Compared to students with borderline intellectual disabilities, mild intellectual disabilities, or autism, those with moderate intellectual disabilities scored significantly lower on al-most all items regarding motor skill on the Bruininks-Oseretsky Test of Motor Proficiency. The results of this study provide key information for developing exercise programs to improve the motor proficiency and quality of life of children with various developmental disorders. PMID:29740563

  1. Motor proficiency differences among students with intellectual disabilities, autism, and developmental disability.

    PubMed

    Jeoung, Bogja

    2018-04-01

    There is considerable overlap in the manifestations of intellectual disability, autism, and developmental disability. We aimed to determine whether students with such disabilities have differences in their motor proficiency. We compared the motor proficiency of 82 students (age, 11 to 20 years) with different severities of intellectual disability (borderline, 11 students; mild, 27 students; moderate, 19 students), developmental disability (15 students), or autism (10 students). The Bruininks-Oseretsky Test of Motor Proficiency, Second edition was used to assess motor skills. The data were analyzed using descriptive statistics, independent t -tests, and analysis of variance. Compared to students with borderline intellectual disabilities, mild intellectual disabilities, or autism, those with moderate intellectual disabilities scored significantly lower on al-most all items regarding motor skill on the Bruininks-Oseretsky Test of Motor Proficiency. The results of this study provide key information for developing exercise programs to improve the motor proficiency and quality of life of children with various developmental disorders.

  2. Teaching Pedestrian Skills to Individuals with Developmental Disabilities

    ERIC Educational Resources Information Center

    Batu, Sema; Ergenekon, Yasemin; Erbas, Dilek; Akmanoglu, Nurgul

    2004-01-01

    The purpose of the present study was to examine the effectiveness of most to least prompting on teaching pedestrian skills to individuals with developmental disabilities. Five individuals with developmental disabilities were taught three different pedestrian skills, all related to crossing the streets, using simulation activities on a road model…

  3. Predictors of Care-Giver Stress in Families of Preschool-Aged Children with Developmental Disabilities

    ERIC Educational Resources Information Center

    Plant, K. M.; Sanders, M. R.

    2007-01-01

    Background: This study examined the predictors, mediators and moderators of parent stress in families of preschool-aged children with developmental disability. Method: One hundred and five mothers of preschool-aged children with developmental disability completed assessment measures addressing the key variables. Results: Analyses demonstrated that…

  4. Developing Inclusive College Opportunities for Students with Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    Papay, Clare; Griffin, Megan

    2013-01-01

    Over the past decade, inclusive postsecondary opportunities have become more available to students with intellectual and developmental disabilities than ever before. With greater demand for such opportunities as well as greater awareness of the possibilities for youth with intellectual and developmental disabilities, developing new programs on…

  5. Understanding Information about Mortality among People with Intellectual and Developmental Disabilities in Canada

    ERIC Educational Resources Information Center

    Ouellette-Kuntz, Hélène; Shooshtari, Shahin; Balogh, Robert; Martens, Patricia

    2015-01-01

    Background: This paper reviews what is currently known about mortality among Canadians with intellectual and developmental disabilities and describes opportunities for ongoing monitoring. Methods: In-hospital mortality among adults with intellectual and developmental disabilities in Ontario was examined using hospital data. Mortality was compared…

  6. Transitioning Youth with Intellectual and Other Developmental Disabilities: Predicting Community Employment Outcomes

    ERIC Educational Resources Information Center

    Simonsen, Monica L.; Neubert, Debra A.

    2013-01-01

    Community employment outcomes were examined for 338 transitioning youth with intellectual and other developmental disabilities in one state 18 months after exiting public school. All transitioning youth received ongoing Developmental Disability agency funding. The majority of transitioning youth (57.1%) were engaged in sheltered or nonwork…

  7. A Predoctoral Program in Dental Care for the Developmentally Disabled.

    ERIC Educational Resources Information Center

    Ferguson, Fred S.; And Others

    1990-01-01

    In 1980, the State University of New York at Stony Brook began a program, integrated into the program of children's dentistry, to train students in care for the developmentally disabled. Management of developmentally disabled patients is provided over three years, and represents an extension of pediatric behavior management. (MSE)

  8. 76 FR 67194 - Announcing the Award of a Single-Source Expansion Supplement Grant to the National Association of...

    Federal Register 2010, 2011, 2012, 2013, 2014

    2011-10-31

    ... Number: 93.631. Statutory Authority: The Developmental Disabilities Assistance and Bill of Rights Act of... DEPARTMENT OF HEALTH AND HUMAN SERVICES Administration for Children and Families Announcing the... Developmental Disabilities in Washington, DC AGENCY: Administration on Developmental Disabilities, ACF, HHS...

  9. Sexuality and Developmental Disability: Obstacles to Healthy Sexuality throughout the Lifespan

    ERIC Educational Resources Information Center

    Richards, Deborah; Miodrag, Nancy; Watson, Shelley L.

    2006-01-01

    This paper presents a lifespan perspective of sexuality issues for individuals with developmental disabilities. Individuals with developmental disabilities are human beings who have historically been denied the right to express their sexuality or engage in sexual relationships due to misconceptions or negative attitudes. Using a hypothetical case…

  10. 45 CFR 88.5 - Written certification of compliance.

    Code of Federal Regulations, 2010 CFR

    2010-10-01

    ... Developmental Disabilities Assistance and Bill of Rights Act of 2000, require such individual to perform or... Health Centers Act, or the Developmental Disabilities Assistance and Bill of Rights Act of 2000 that is... Act, or the Developmental Disabilities Assistance and Bill of Rights Act of 2000, require such...

  11. Let's Talk about Sex: Recommendations for Educating Adolescents with Developmental Disabilities

    ERIC Educational Resources Information Center

    Minch, Laura M.

    2011-01-01

    Individuals with developmental disabilities are vulnerable to sexual abuse, and are often denied access to sexuality education. Public schools have vague curricula regarding sexuality education for general education students, curricula to which adolescents with developmental disabilities do not have access. The current study sought to determine…

  12. Nutrition and Fitness Curriculum: Designing Instructional Interventions for Children with Developmental Disabilities

    ERIC Educational Resources Information Center

    Simpson, Cynthia G.; Swicegood, Philip R.; Gaus, Mark D.

    2006-01-01

    With the recent rise of childhood obesity, teaching children with developmental disabilities about healthful lifestyle choices has important implications for special educators. Designing instructional interventions for children with developmental disabilities in the areas of nutrition and weight management poses challenges to educators, who must…

  13. The State of the States in Developmental Disabilities. Fifth Edition.

    ERIC Educational Resources Information Center

    Braddock, David; Hemp, Richard; Parish, Susan; Westrich, James

    This volume reports on the fifth nationwide survey of trends in mental retardation (MR) and developmental disabilities (DD). It begins with four chapters summarizing trends in the nation as a whole. The first chapter is "Mental Retardation and Developmental Disabilities: Historical and Contemporary Perspectives" (David Braddock). This…

  14. Mutations in HIVEP2 are associated with developmental delay, intellectual disability, and dysmorphic features.

    PubMed

    Steinfeld, Hallie; Cho, Megan T; Retterer, Kyle; Person, Rick; Schaefer, G Bradley; Danylchuk, Noelle; Malik, Saleem; Wechsler, Stephanie Burns; Wheeler, Patricia G; van Gassen, Koen L I; Terhal, P A; Verhoeven, Virginie J M; van Slegtenhorst, Marjon A; Monaghan, Kristin G; Henderson, Lindsay B; Chung, Wendy K

    2016-07-01

    Human immunodeficiency virus type I enhancer binding protein 2 (HIVEP2) has been previously associated with intellectual disability and developmental delay in three patients. Here, we describe six patients with developmental delay, intellectual disability, and dysmorphic features with de novo likely gene-damaging variants in HIVEP2 identified by whole-exome sequencing (WES). HIVEP2 encodes a large transcription factor that regulates various neurodevelopmental pathways. Our findings provide further evidence that pathogenic variants in HIVEP2 lead to intellectual disabilities and developmental delay.

  15. Monoamine oxidase a promoter gene associated with problem behavior in adults with intellectual/developmental disabilities.

    PubMed

    May, Michael E; Srour, Ali; Hedges, Lora K; Lightfoot, David A; Phillips, John A; Blakely, Randy D; Kennedy, Craig H

    2009-07-01

    A functional polymorphism in the promoter of the gene encoding monoamine oxidase A has been associated with problem behavior in various populations. We examined the association of MAOA alleles in adult males with intellectual/developmental disabilities with and without established histories of problem behavior. These data were compared with a gender, ethnicity, and age-matched contrast sample. About 43% (15/35) of adults with intellectual/developmental disabilities and problem behavior possessed the low-efficiency version of the MAOA gene. In comparison, 20% (7/35) of adults with intellectual/developmental disabilities and no problem behavior and 20% (7/35) of the contrast group had the short-allele MAOA polymorphism. Therefore, a common variant in the MAOA gene may be associated with problem behavior in adults with intellectual/developmental disabilities.

  16. The sexuality of young women with intellectual and developmental disabilities: A neglected focus in the American foster care system.

    PubMed

    Ballan, Michelle S; Freyer, Molly Burke

    2017-07-01

    Youths with intellectual and developmental disabilities (ID/DD) are overrepresented in the American foster care system and experience heightened rates of pregnancy compared to their nondisabled peers. Yet limited information is known about sexually active or pregnant young women with ID/DD in foster care. Consequently, important healthcare needs of this population are not adequately addressed. This article explores sexuality education and sexual healthcare for female adolescents in foster care with ID/DD and recommends practice guidelines to support and prepare their emergent sexual development. Copyright © 2017 Elsevier Inc. All rights reserved.

  17. Barriers to Employment for Transition-age Youth with Developmental and Psychiatric Disabilities.

    PubMed

    Noel, Valerie A; Oulvey, Eugene; Drake, Robert E; Bond, Gary R

    2017-05-01

    Youth with developmental and psychiatric disabilities encounter significant vocational challenges, even when they receive supported employment services. We examined the barriers to employment for 280 transition-age youth with disabilities enrolled in supported employment in eight community rehabilitation centers. Employment team members identified each youth's top three barriers to employment using a 21-item checklist. Lack of work experience, transportation problems, and program engagement issues represented common barriers for both youth with developmental disabilities (53, 36, and 25%) and youth with psychiatric disabilities (20, 33, and 26%). Additional common barriers among youth with developmental disabilities included cognitive problems (32%) and lack of social skills (23%) and among youth with psychiatric disabilities included poor control of psychiatric symptoms (23%). Despite receiving evidence-based employment services, youth with disabilities encounter many barriers to employment. Awareness of typical barriers for transition-age youth, including those specific to different disability groups, may help employment programs anticipate challenges and develop strategies that avoid these barriers and their effects on employment opportunities.

  18. Learning Disability: An Educational Adventure. The 1967 Kappa Delta Pi Lecture.

    ERIC Educational Resources Information Center

    Kephart, Newell C.

    Educational implications and symptoms are described for learning disorders, the disruption in the processing of information within the central nervous system caused by brain damage, emotional disturbance, or inadequate presentation of learning experiences. Developmental sequences, developmental progression, and restoration of development are…

  19. Sexual Abuse Prevention: A Training Program for Developmental Disabilities Service Providers

    ERIC Educational Resources Information Center

    Bowman, Rachel A.; Scotti, Joseph R.; Morris, Tracy L.

    2010-01-01

    Persons with developmental disabilities are at an increased risk for becoming victims of sexual abuse. Research has revealed that the largest group of identified perpetrators of sexual abuse is developmental disability service providers. The purpose of the present study was to develop, implement, and evaluate the effectiveness of a sexual abuse…

  20. Relationships between Leisure Participation and Quality of Life of People with Developmental Disabilities

    ERIC Educational Resources Information Center

    Badia, Marta; Orgaz, María Begoña; Verdugo, Miguel Á.; Ullán, Ana M.; Martínez, Magdalena

    2013-01-01

    Background: Studies of people with developmental disabilities suggest that participation in leisure activities might be a key factor for good quality of life. This study explores the relationships between objective and subjective quality of life and leisure participation of adults with developmental disabilities. Materials and Methods: A…

  1. Sleep Quality and Psychological Wellbeing in Mothers of Children with Developmental Disabilities

    ERIC Educational Resources Information Center

    Chu, Judy; Richdale, Amanda L.

    2009-01-01

    Sleep and behavioural difficulties are common in children with developmental disabilities. Mothers often wake and tend to their child when their child is having sleep difficulties. Therefore, mothers of children with developmental disabilities can have poor sleep quality due to these disruptions. The present study investigated the impact of sleep…

  2. A Systematic Review of Mindfulness Intervention for Individuals with Developmental Disabilities: Long-Term Practice and Long Lasting Effects

    ERIC Educational Resources Information Center

    Hwang, Yoon-Suk; Kearney, Patrick

    2013-01-01

    Can individuals with developmental disabilities learn mindfulness? If so, with what result? A systematic literature review identified 12 studies that taught mindfulness practice to individuals with mild to severe developmental disabilities, demonstrating that mindfulness intervention could significantly reduce the behavioural and/or psychological…

  3. Family Members' Reports of the Technology Use of Family Members with Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    Palmer, S. B.; Wehmeyer, M. L.; Davies, D. K.; Stock, S. E.

    2012-01-01

    Background: A nationwide survey of family members of people with intellectual and developmental disabilities ranging in age from birth through adulthood was conducted to replicate a similar effort by Wehmeyer and update the knowledge base concerning technology use by people with intellectual and developmental disabilities. Method: Survey responses…

  4. Predictors of Future Caregiving by Adult Siblings of Individuals with Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    Burke, Meghan M.; Taylor, Julie Lounds; Urbano, Richard; Hodapp, Robert M.

    2012-01-01

    With the growing life expectancy for individuals with intellectual and developmental disabilities, siblings will increasingly assume responsibility for the care of their brother or sister with intellectual and developmental disabilities. Using a 163-item survey completed by 757 siblings, the authors identified factors related to future caregiving…

  5. "Say Cheese": Teaching Photography Skills to Adults with Developmental Disabilities

    ERIC Educational Resources Information Center

    Edrisinha, Chaturi; O'Reilly, Mark F.; Choi, Ha Young; Sigafoos, Jeff; Lancioni, Giulio E.

    2011-01-01

    We evaluated a video prompting procedure to teach adults with developmental disabilities to take a digital photograph and print it using a laptop computer and a printer. Participants were four men with developmental disabilities. Training was conducted at the participants' residential facility. During baseline, participants were told to take a…

  6. Toilet Training Individuals with Autism and Other Developmental Disabilities: A Critical Review

    ERIC Educational Resources Information Center

    Kroeger, K. A.; Sorensen-Burnworth, Rena

    2009-01-01

    The following article reviews the current literature addressing toilet training individuals with autism and other developmental disabilities. The review addresses programs typical to toilet training the developmental disability population, most of which are modeled after the original Foxx and Azrin [Azrin, N. H., & Foxx, R. M. (1971). A rapid…

  7. Disparities in Unmet Service Needs among Adults with Intellectual and Other Developmental Disabilities

    ERIC Educational Resources Information Center

    Burke, Meghan M.; Heller, Tamar

    2017-01-01

    Background: Due to long waiting lists for services, many adults with intellectual and developmental disabilities in the United States have unmet service needs. Little research, however, has identified the characteristics of caregivers and individuals with intellectual and developmental disabilities that relate to the unmet service needs among…

  8. Guidelines for the Use of Clozapine in Individuals with Developmental Disabilities

    ERIC Educational Resources Information Center

    Sabaawi, Mohamed; Singh, Nirbhay N.; de Leon, Jose

    2006-01-01

    Clozapine is the most effective antipsychotic medication currently in use, but there has been a paucity of well-controlled research on its efficacy with people with developmental disabilities. We present a set of guidelines to ensure proper utilization of clozapine in individuals with developmental disabilities, because it can offer them…

  9. Description of Communication Breakdown Repair Strategies Produced by Nonverbal Students with Developmental Disabilities

    ERIC Educational Resources Information Center

    Dincer, Baris; Erbas, Dilek

    2010-01-01

    This study describes the communication repair behaviors used by nonverbal students with developmental disabilities in the interactions they were involved in with their teachers during free play activities. All children were students at centers serving student with developmental disabilities at Anadolu University in Turkey. Data were collected by…

  10. Network Analysis of a Demonstration Program for the Developmentally Disabled

    ERIC Educational Resources Information Center

    Fredericks, Kimberly A.

    2005-01-01

    This chapter presents the findings from a network analysis of a demonstration program for the developmentally disabled to show the application of graphical network analysis in program evaluation. The developmentally disabled demonstration (DDD) program was a five-year pilot project to provide person-centered service environments to people with …

  11. Developmentally Disabled Persons in Family Settings: Report No. 1.

    ERIC Educational Resources Information Center

    Cox, Wendy M.; Wilson, Wendell L.

    The first of three reports from a study of developmentally disabled persons living with their families, this document presents findings on the first group (group A) studied: Washington's Division of Developmental Disabilities (DDD) clients 16 and older who currently live with their families. The closest relatives or guardians were interviewed and…

  12. Project READDY: Real Employment Alternatives for Developmentally Disabled Youth. Job Training Manual.

    ERIC Educational Resources Information Center

    Berkell, Dianne E.; And Others

    The manual is intended to provide special educators, adult service providers, and parents with strategies for providing community based job training to youth with autism and other developmental disabilities. Section I deals with a variety of work sites appropriate for training young people with severe developmental disabilities. Information…

  13. A Handbook on Legal Rights of Developmentally Disabled People in Massachusetts.

    ERIC Educational Resources Information Center

    Ambrogi, Robert; And Others

    The handbook provides information in question-and-answer format on the legal rights of developmentally disabled persons, focusing on those in the state of Massachusetts. An introductory section discusses developmental disabilities and advocacy. The main section, on legal rights, covers such areas as discrimination (including Section 504 of the…

  14. Colorado State Plan for the Developmentally Disabled: Master Planning Guide for Instructional Objectives. Second Edition.

    ERIC Educational Resources Information Center

    Shibata, Paul

    A product of joint effort between the Colorado Department of Institutions and the Division of Developmental Disabilities, the guide presents hierarchically arranged instructional objectives to determine goals for developmentally disabled persons. The most advanced skills are listed first with basic skills following for four major categories:…

  15. Master Planning Guide for Instructional Objectives. Colorado State Plan for the Developmentally Disabled.

    ERIC Educational Resources Information Center

    Myers, Marvin L.; And Others

    Presented by the Master Planning Committee of the Colorado Department of Institutions and the Division of Developmental Disabilities is a behavior inventory of sequential skills in four areas basic to the normalization of developmentally disabled persons. Instructional objectives are listed in the following areas: physical, including perceptual…

  16. Antipsychotic Medication Prescription Patterns in Adults with Developmental Disabilities Who Have Experienced Psychiatric Crisis

    ERIC Educational Resources Information Center

    Lunsky, Yona; Elserafi, Jonny

    2012-01-01

    Antipsychotic medication rates are high in adults with developmental disability. This study considered rates of antipsychotic use in 743 adults with developmental disability who had experienced a psychiatric crisis. Nearly half (49%) of these adults were prescribed antipsychotics. Polypharmacy was common with 22% of those prescribed antipsychotics…

  17. Microenterprise Options for People with Intellectual and Developmental Disabilities: An Outcome Evaluation

    ERIC Educational Resources Information Center

    Conroy, James W.; Ferris, Charles S.; Irvine, Ron

    2010-01-01

    Opportunities for community employment of people with intellectual and developmental disabilities are limited, and have not improved over the past quarter century of interest and effort. This report provides the findings from an outcome study of this issue. Twenty-seven people with intellectual and developmental disability, residents in Kent…

  18. What Legislators Need To Know about Mental Retardation and Developmental Disabilities.

    ERIC Educational Resources Information Center

    Wright, Barbara

    This publication provides background information on financing and programming for persons with developmental disabilities to assist state legislators in making public policy and funding decisions. The booklet is in a question-and-answer format and covers the following topics: (1) definition of developmental disabilities and factors of concern to…

  19. Family Decision Making: Benefits to Persons with Developmental Disabilities and Their Family Members

    ERIC Educational Resources Information Center

    Neely-Barnes, Susan; Graff, J. Carolyn; Marcenko, Maureen; Weber, Lisa

    2008-01-01

    Family involvement in planning and choosing services has become a key intervention concept in developmental disability services. This study (N = 547) modeled patterns of family decision making and assessed benefits to persons with developmental disabilities (DDs) and their family members. A latent profile analysis identified 4 classes that were…

  20. 45 CFR 1386.32 - Periodic reports: Federal assistance to State Developmental Disabilities Councils.

    Code of Federal Regulations, 2012 CFR

    2012-10-01

    ... 45 Public Welfare 4 2012-10-01 2012-10-01 false Periodic reports: Federal assistance to State Developmental Disabilities Councils. 1386.32 Section 1386.32 Public Welfare Regulations Relating to Public Welfare (Continued) OFFICE OF HUMAN DEVELOPMENT SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES THE ADMINISTRATION ON DEVELOPMENTAL DISABILITIES...

  1. Social Support Is Associated with Blood Pressure Responses in Parents Caring for Children with Developmental Disabilities

    ERIC Educational Resources Information Center

    Gallagher, Stephen; Whiteley, Jenny

    2012-01-01

    The present study tested whether parents caring for children with developmental disabilities would have higher blood pressure compared to parents of typically developing children (controls). It also examined the psychosocial factors underlying this observation. Thirty-five parents of children with developmental disability and thirty controls…

  2. Predictors of Self-Determination in Postsecondary Education for Students with Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    Shogren, Karrie A.; Wehmeyer, Michael L.; Shaw, Leslie A.; Grigal, Meg; Hart, Debra; Smith, Frank A.; Khamsi, Sheida

    2018-01-01

    Given the increasing enrollment of students with intellectual and developmental disabilities in postsecondary education and the potential impact of self-determination on postsecondary outcomes, this study analyzed data on the self-determination status of students with intellectual and developmental disabilities completing their first year of a…

  3. A Functional Analysis of Gestural Behaviors Emitted by Young Children with Severe Developmental Disabilities

    ERIC Educational Resources Information Center

    Ferreri, Summer J.; Plavnick, Joshua B.

    2011-01-01

    Many children with severe developmental disabilities emit idiosyncratic gestures that may function as verbal operants (Sigafoos et al., 2000). This study examined the effectiveness of a functional analysis methodology to identify the variables responsible for gestures emitted by 2 young children with severe developmental disabilities. Potential…

  4. Aging curve of neuromotor function by pronation and supination of forearms using three-dimensional wireless acceleration and angular velocity sensors.

    PubMed

    Kaneko, M; Okui, H; Hirakawa, G; Ishinishi, H; Katayama, Y; Iramina, K

    2012-01-01

    We have developed an evaluation system for pronation and supination of forearms. The motion of pronation and supination of the forearm is used as a diagnosis method of developmental disability, etc. However, this diagnosis method has a demerit in which diagnosis results between doctors are not consistent. It is hoped that a more quantitative and simple evaluation method is established. Moreover it is hoped a diagnostic criteria obtained from healthy subjects can be established to diagnose developmental disorder patients. We developed a simple and portable evaluation system for pronation and supination of forearms. Three-dimensional wireless acceleration and angular velocity sensors are used for this system. In this study, pronation and supination of forearms of 570 subjects (subjects aged 6-12, 21-100) were examined. We could obtain aging curves in the neuromotor function of pronation and supination. These aging curves obtained by our developed system, has the potential to become diagnostic criteria for a developmental disability, etc.

  5. Goals, Outcomes, and Future Challenges for People with Intellectual Disabilities in a Noninstitutional Society: The Norwegian Experience

    ERIC Educational Resources Information Center

    Meyer, Jan

    2004-01-01

    The Norwegian Welfare System and how its programs support Norwegians with intellectual and developmental disabilities is described and proffered as a case example of how one nation's public policy shifted to provide community-invested services for people with lifelong disabilities. The foundation of Norway's shift to complete reliance on home and…

  6. Effects of ordinary and adaptive toys on pre-school children with developmental disabilities.

    PubMed

    Hsieh, Hsieh-Chun

    2008-01-01

    Toys help children in mastering developmental tasks. This study investigated toy effect on children with developmental disabilities as they engage in using ordinary and adaptive toys. A single-subject design was used to identify the effects on their toy play abilities. Differences in toy effects between playing ordinary and adaptive toys were examined. Three special education teachers chose ordinary toys and modified ordinary toys. Modified ordinary toys, i.e., adaptive toys, were designed according to the individual disabilities of participating children, treatment goals, and the toy types. Three children with developmental disabilities from pre-schools in Taiwan were enrolled. Appropriate participation of three pre-schoolers increased dramatically in playing adaptive toys during intervention phase. The toy effects demonstrate that when using adaptive toys, children with developmental disabilities may response better during toy play sessions.

  7. "I just had to be flexible and show good patience": management of interactional approaches to enact mentoring roles by peer mentors with developmental disabilities.

    PubMed

    Schwartz, Ariel E; Kramer, Jessica M

    2017-06-08

    Peer mentoring may be an effective approach for fostering skill development for mentors and mentees with developmental disabilities. However, little is known about how mentors with developmental disabilities perceive and enact their roles. (1) How do young adults with developmental disabilities describe their role as a peer mentor in the context of instrumental peer mentoring? (2) How do they enact their perceived roles? Thematic analysis of semi-structured reflections completed by six mentors with developmental disabilities (ages 17-35) with multiple mentoring experiences. Mentors perceived themselves as professionals with a primary role of teaching, and for some mentoring relationships, a secondary role of developing an interpersonal relationship. To enact these roles, mentors used a supportive interactional approach characterized by actions such as encouragement and sharing examples and dispositions, such as flexibility and patience. Mentors monitored mentee learning and engagement within the mentoring session and, as needed, adjusted their approach to optimize mentee learning and engagement. To successfully manage their interactional approach, mentors used supports such as peer mentoring scripts, tip sheets, and supervisors. While mentors reported several actions for teaching, they may benefit from training to learn approaches to facilitate more consistent development of interpersonal relationships. Implications for Rehabilitation Peer mentoring may be an effective approach for fostering skill development for young adult mentors and mentees with developmental disabilities. In this study, young adult peer mentors with developmental disabilities perceived themselves as professionals with a primary role of teaching and a secondary role of developing an interpersonal relationship. Peer mentors used actions and dispositions that matched their perceived roles and supported mentees with developmental disabilities to engage in instrumental mentoring. With supports and training, young adults with developmental disabilities can successfully execute the complex relational and teaching tasks required of peer mentoring.

  8. Consumer Involvement in Evaluation and Quality Assurance Efforts: Review of Current Efforts in the Field of Developmental Disabilities.

    ERIC Educational Resources Information Center

    Ashline, Melissa

    This review of the professional and programmatic literature in the field of developmental disabilities focuses on ways in which individuals with developmental disabilities and their families are becoming increasingly involved in program evaluation and quality assurance efforts. Three major movements are having an impact on this activity: state and…

  9. Annotation: Early Intervention and Prevention of Self-Injurious Behaviour Exhibited by Young Children with Developmental Disabilities

    ERIC Educational Resources Information Center

    Richman, D. M.

    2008-01-01

    The ontogeny of self-injurious behaviour exhibited by young children with developmental delays or disabilities is due to a complex interaction between neurobiological and environmental variables. In this manuscript, the literature on emerging self-injury in the developmental disability population is reviewed with a focus on an operant conceptual…

  10. The World of the Developmentally Disabled Child: A Parents' Handbook with Directory of Services for Families in Lake County, Illinois.

    ERIC Educational Resources Information Center

    Suelzle, Marijean; Keenan, Vincent

    Intended for parents of developmentally disabled children, the handbook provides information on service needs and services available in Lake County, Illinois. Section I focuses on life course planning with sections of diagnosis and assessment, professionals involved with special education, education for the developmentally disabled, vocational…

  11. Developmentally Disabled Persons in Family Settings: Report No. 3.

    ERIC Educational Resources Information Center

    Cox, Wendy M.; Wilson, Wendell L.

    The final part of a three part study of developmentally disabled persons in Washington State, this document focuses on clients of the Division of Developmental Disabilities (DDD), ages 19 through 26, who appeared to be eligible for DDD services but were not enrolled with the DDD (group C). Telephone interviews were conducted with parents of 55…

  12. An Exploratory Study of the Knowledge of Personal Safety Skills among Children with Developmental Disabilities and Their Parents

    ERIC Educational Resources Information Center

    Miller, Hannah L.; Pavlik, Kathryn M.; Kim, Min Ah; Rogers, Karen C.

    2017-01-01

    Background: This study assessed the knowledge of personal safety skills among children with developmental disabilities and their parents' perceptions of children's knowledge. Method: This exploratory study examined the mental health records of 37 children with developmental disabilities referred for an abuse risk reduction group in a community…

  13. Weight Management in Adults with Intellectual and Developmental Disabilities: A Randomized Controlled Trial of Two Dietary Approaches

    ERIC Educational Resources Information Center

    Ptomey, Lauren T.; Saunders, Richard R.; Saunders, Muriel; Washburn, Richard A.; Mayo, Matthew S.; Sullivan, Debra K.; Gibson, Cheryl A.; Goetz, Jeannine R.; Honas, Jeff J.; Willis, Erik A.; Danon, Jessica C.; Krebill, Ron; Donnelly, Joseph E.

    2018-01-01

    Background: The prevalence of obesity among individuals with intellectual and developmental disabilities (IDD) is equal to or greater than the general population. Methods: Overweight/obese adults (BMI =25 kg/m2) with mild-to-moderate intellectual and developmental disabilities were randomized to an enhanced stop light diet…

  14. Family Care for Persons with Developmental Disabilities: A Growing Commitment.

    ERIC Educational Resources Information Center

    Agosta, J. M., Ed.; Bradley, V. J., Ed.

    The report presents findings from a study of family-based care for persons with developmental disabilities. The first of four parts introduces the problems of family-based care and presents perspectives of parents and of persons with developmental disabilities. Part 2, on responding to the needs of families, includes a review of historical and…

  15. Psychometric Properties of the ASPeCT-DD: Measuring Positive Traits in Persons with Developmental Disabilities

    ERIC Educational Resources Information Center

    Woodard, Cooper

    2009-01-01

    Background: The Assessment Scale for Positive Character Traits-Developmental Disabilities (ASPeCT-DD) was designed to measure the presence and strength of selected positive or strength-based traits in persons with developmental disabilities. These traits may help to determine level of happiness or value associated with the more commonly measured…

  16. Intellectual and Developmental Disabilities in Kinshasa, Democratic Republic of the Congo: Causality and Implications for Resilience and Support

    ERIC Educational Resources Information Center

    Aldersey, Heather M.; Turnbull, H. Rutherford, III; Turnbull, Ann P.

    2014-01-01

    This article reports results of a 7-month qualitative study on intellectual and related developmental disabilities in Kinshasa, Democratic Republic of the Congo, particularly as they relate to the causes and meaning of intellectual and developmental disabilities (IDD). This study raises important questions related to the understanding of…

  17. The Transition to School of Children with Developmental Disabilities: Views of Parents and Teachers

    ERIC Educational Resources Information Center

    Walker, Sue; Dunbar, Stephanie; Meldrum, Katrina; Whiteford, Chrystal; Carrington, Suzanne; Berthelsen, Donna; Hand, Kirstine; Nicholson, Jan

    2012-01-01

    The transition from early intervention programs to inclusive school settings presents a range of social challenges for children with developmental disabilities. In Queensland, in the year of transition to school, many children with developmental disabilities attend an Early Childhood Development Program for two to three days each week and also…

  18. 78 FR 2997 - Administration on Intellectual and Developmental Disabilities (AIDD); Notice of Meeting via...

    Federal Register 2010, 2011, 2012, 2013, 2014

    2013-01-15

    ... Intellectual and Developmental Disabilities (AIDD); Notice of Meeting via Conference Call AGENCY: President's Committee for People with Intellectual Disabilities (PCPID), HHS. ACTION: Notice of Meeting via Conference... Analyst, President's Committee for People with Intellectual Disabilities, 200 Independence Avenue, SW...

  19. Melatonin Treatment in Children with Developmental Disabilities

    PubMed Central

    Schwichtenberg, A.J.; Malow, Beth A.

    2015-01-01

    Melatonin is commonly recommended to treat sleep problems in children with developmental disabilities. However, relatively few studies document the efficacy and safety of melatonin in pediatric populations with developmental diagnoses. This chapter reviews recent studies of melatonin efficacy across a wide breadth of developmental disabilities. Overall, short treatment trials (1 week to 3 months) of melatonin were associated with a significant decrease in sleep onset latency time for each of the disorders reviewed, with one notable exception, tuberous sclerosis. In general, reported side effects were uncommon and mild in nature. Across disorders, additional research is needed to draw disability-specific conclusions. However, studies to date provide positive support for future trials that include larger groups of children with specific disabilities/syndromes. PMID:26055866

  20. Timing of first dental checkup for newly Medicaid-enrolled children with an intellectual or developmental disability.

    PubMed

    Chi, Donald L; Momany, Elizabeth T; Jones, Michael P; Kuthy, Raymond; Damiano, Peter C

    2012-02-01

    We compared the extent to which having an intellectual or developmental disability was associated with rates at which Iowa Medicaid-enrolled children ages 3 to 8 had first dental checkups after an initial dental examination. We hypothesized that these children would have later first dental checkups than would children without an intellectual or developmental disability. Findings suggest no significant difference in the time to first dental checkup for children by intellectual or developmental disability status. Those who took over 12 months to see a dentist for their initial dental examination were 1.68 times as likely to have an earlier first dental checkup as children whose initial dental examination occurred within 4 months of being enrolled. Results suggest that having an intellectual or developmental disability is not associated with later first dental checkups for this population.

  1. Fourth Grade Outcomes of Children with a Preschool History of Developmental Disability

    ERIC Educational Resources Information Center

    Delgado, Christine E. F.

    2009-01-01

    Special education outcomes were evaluated for 3,608 children (2,513 males) with a preschool history of developmental disability. Sixty-six percent of the children had an identified disability in fourth grade. The percentage of children with a disability at outcome varied across preschool disability categories from 54% to 96%. The consistency of…

  2. Successful Living: Understanding Californians with Special Developmental Needs.

    ERIC Educational Resources Information Center

    Singer, George H. S.; Apolloni, Tony

    The book defines functional and categorical approaches to needs of developmentally disabled citizens, compares the current with the ideal service delivery system, describes approaches for effective advocacy efforts, and includes a resource guide for Californians. Seven functional definitions of such terms as self care, mobility, and capacity for…

  3. Diabetes in people with an intellectual disability: a systematic review of prevalence, incidence and impact.

    PubMed

    McVilly, K; McGillivray, J; Curtis, A; Lehmann, J; Morrish, L; Speight, J

    2014-08-01

    To establish the prevalence and incidence of type 1 and type 2 diabetes in people with an intellectual and developmental disability and determine their impact on health and well-being and to appraise the evidence available to inform good practice in diabetes management for people with intellectual and developmental disabilities. We conducted separate searches of multiple databases (EMBASE, CINAHL, MEDLINE, PsycINFO, SCOPUS, Web of Science, PUBMED and Cochrane Library) to find relevant articles. A total of 13 studies were identified: 13 addressed the prevalence of diabetes in people with intellectual and developmental disability, three addressed the impact of diabetes on their health and well-being and three addressed the management of diabetes. The prevalence of diabetes in people with intellectual and developmental disability remains uncertain, and the incidence of diabetes in this group of people is unknown. There is some evidence to support the assertion that people with intellectual and developmental disability might be at greater risk of diabetes than the general population. Overall, the quality of the evidence on which to base prevention and management strategies is variable. There is a paucity of research focusing on the prevalence, incidence and impact of diabetes among people with intellectual and developmental disability. Further research is needed to inform policy and practice in this area and, in particular, work is needed to develop methodologies, evaluation tools, educational resources and diabetes care support services appropriate to the needs of people with intellectual and developmental disability. © 2014 The Authors. Diabetic Medicine © 2014 Diabetes UK.

  4. The Relationship between Dimensions of Forgiveness with Mental Health in Mothers of Children with Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    Nemati, Shahrooz; Mirnasab, Mir Mahmoud; Bonab, Bagher Ghobari

    2016-01-01

    The aim of the current study was to predict mental health of the mothers of children with intellectual and developmental disabilities from the magnitude of their forgiveness. To fulfill the stated goal 88 mothers of children with intellectual and developmental disabilities by means of accessible sampling procedure, and Besharat mental health…

  5. Health Care of Latino Children with Autism and Other Developmental Disabilities: Quality of Provider Interaction Mediates Utilization

    ERIC Educational Resources Information Center

    Parish, Susan; Magana, Sandra; Rose, Roderick; Timberlake, Maria; Swaine, Jamie G.

    2012-01-01

    This study examines access to, utilization of, and quality of health care for Latino children with autism and other developmental disabilities. We analyze data from the National Survey of Children with Special Health Care Needs (N = 4,414 children with autism and other developmental disabilities). Compared with White children, Latino children with…

  6. Safeguarding Our Children at Home: Reducing Exposures to Toxic Chemicals and Heavy Metals

    ERIC Educational Resources Information Center

    Miller, Elise; Snow, Nancy

    2005-01-01

    Emerging research suggests that exposure to environmental pollutants, prenatally and in early childhood, may contribute significantly to diseases and disabilities. For example, exposures to mercury or lead early in life can impact the nervous system and brain, potentially contributing to learning, behavioral, and developmental disabilities. The…

  7. A Longitudinal Study of Employment and Skill Acquisition among Individuals with Developmental Disabilities

    ERIC Educational Resources Information Center

    Stephens, Dawn L.; Collins, Michael D.; Dodder, Richard A.

    2005-01-01

    Recent legislation, especially the Americans with Disabilities Act in 1990, generated the closure of institutions for people with disabilities and inclusion into community residences and employment. It has been well documented that individuals with developmental disabilities often experience difficulties with employment including both obtaining…

  8. The (Be)Comings and Goings of "Developmental Disabilities": The Cultural Politics of "Impairment"

    ERIC Educational Resources Information Center

    Goodley, Dan; Roets, Griet

    2008-01-01

    Disability should be a concern for those interested in analysing and subverting the cultural politics of education. In this paper we address this concern through connecting critical analyses of "developmental disabilities" (formerly "mental retardation"), disability studies and poststructuralism. We target normative constructions of "developmental…

  9. Uncovering Health Care Inequalities among Adults with Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    Ward, Rolanda L.; Nichols, Amanda D.; Freedman, Ruth I.

    2010-01-01

    Even as attention is drawn to the increasing number of individuals who experience health inequalities in the United States, little is known about the health inequalities experienced by individuals with intellectual and developmental disabilities. Current disability research mainly focuses on physical disabilities. This article discusses the health…

  10. A standing location detector enabling people with developmental disabilities to control environmental stimulation through simple physical activities with Nintendo Wii Balance Boards.

    PubMed

    Shih, Ching-Hsiang

    2011-01-01

    This study evaluated whether two people with developmental disabilities would be able to actively perform simple physical activities by controlling their favorite environmental stimulation using Nintendo Wii Balance Boards with a newly developed standing location detection program (SLDP, i.e., a new software program turning a Nintendo Wii Balance Board into a standing location detector). This study was carried out using to an ABAB design. The data showed that both participants significantly increased their simple physical activity (target response) to activate the control system to produce environmental stimulation during the B (intervention) phases. The practical and developmental implications of the findings are discussed. Copyright © 2010 Elsevier Ltd. All rights reserved.

  11. 45 CFR 1386.80 - Definitions.

    Code of Federal Regulations, 2010 CFR

    2010-10-01

    ... Welfare Regulations Relating to Public Welfare (Continued) OFFICE OF HUMAN DEVELOPMENT SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES THE ADMINISTRATION ON DEVELOPMENTAL DISABILITIES, DEVELOPMENTAL... Developmental Disabilities Assistance and Bill of Rights Act. This term includes Federal funds provided under...

  12. Predicting Impact of Childhood Disability on Families: Results from the 1995 National Health Interview Survey Disability Supplement

    ERIC Educational Resources Information Center

    Neely-Barnes, Susan; Marcenko, Maureen

    2004-01-01

    Predictors of impact on families with a child who has developmental disabilities were examined using results from the 1995 National Health Interview Study Disability Supplement (NHIS-D). From this sample, 505 children who met criteria for a developmental disability were selected. Predictors of impact on these families were investigated across and…

  13. "We want respect": adults with intellectual and developmental disabilities address respect in research.

    PubMed

    McDonald, Katherine Elizabeth

    2012-07-01

    Respect is central to ethical guidelines for research. The scientific community has long debated, and at times disagreed on, how to demonstrate respect in research with adults with intellectual and developmental disabilities. To illuminate the voices of those most affected, the author studies the views of adults with intellectual and developmental disabilities on respect in research. Findings are consistent with disability rights' ideas and indicate that adults with intellectual and developmental disabilities have much to contribute to the discussion, that they value participating, and that they agree with calls to focus on human rights and dignity. Notably, participants spoke at lengths about the nature of interactions between researchers and participants. Implications are discussed, including how to infuse research standards with community-supported values and preferences.

  14. Vestibulo-Ocular Response and Balance Control in Children and Young Adults with Mild-to-Moderate Intellectual and Developmental Disability: A Pilot Study

    ERIC Educational Resources Information Center

    Zur, Oz; Ronen, Ayelet; Melzer, Itshak; Carmeli, Eli

    2013-01-01

    The vestibulo-ocular response (VOR) may not be fully developed in children with an intellectual and developmental disability (IDD). This study aimed to identify the presence of VOR deficit in children and young adults with unspecified mild-to-moderate intellectual and developmental disability and its effect on balance control. Twenty-one children…

  15. Patterns and Trends in Services to Persons on the Caseload of the Division of Developmental Disabilities: A 5-Year Analysis (July 1989-August 1994).

    ERIC Educational Resources Information Center

    Weber, Lisa A.; And Others

    This report presents patterns and trends in services provided to persons with developmental disabilities through the Washington State Division of Developmental Disabilities (DDD) and related agencies from 1989 through 1994. Following an executive summary, individual chapters provide extensive detail on: (1) the Division and this project; (2) types…

  16. Health Outcomes of Midlife and Older Latina and Black American Mothers of Children with Developmental Disabilities

    ERIC Educational Resources Information Center

    Magana, Sandra; Smith, Matthew J.

    2006-01-01

    The impact of caring for a child with a developmental disability on the physical and mental health of Latina and Black American women was examined. We used the National Health Interview Survey to compare the health of older mothers who were co-residing with a child who had a developmental disability to the health of same age mothers without…

  17. 45 CFR 1385.2 - Purpose of the regulations.

    Code of Federal Regulations, 2010 CFR

    2010-10-01

    ... Public Welfare Regulations Relating to Public Welfare (Continued) OFFICE OF HUMAN DEVELOPMENT SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES THE ADMINISTRATION ON DEVELOPMENTAL DISABILITIES, DEVELOPMENTAL... regulations. These regulations implement the Developmental Disabilities Assistance and Bill of Rights Act as...

  18. Development of a Preschool Developmental Assessment Scale for Assessment of Developmental Disabilities

    ERIC Educational Resources Information Center

    Leung, Cynthia; Mak, Rose; Lau, Vanessa; Cheung, Jasmine; Lam, Catherine

    2010-01-01

    The aim of this paper was to describe the development of the cognitive domain of the Preschool Developmental Assessment Scale (PDAS) for assessment of preschool children with developmental disabilities. The initial version of the cognitive domain consisted of 87 items. They were administered to 324 preschool children, including 240 children from…

  19. Communication-Based Assessment of Developmental Age for Young Children with Developmental Disabilities

    ERIC Educational Resources Information Center

    DeVeney, Shari L.; Hoffman, Lesa; Cress, Cynthia J.

    2012-01-01

    Purpose: In this study, the authors compared a multiple-domain strategy for assessing developmental age of young children with developmental disabilities who were at risk for long-term reliance on augmentative and alternative communication (AAC) with a communication-based strategy composed of receptive language and communication indices that may…

  20. A Friendships and Dating Program for Adults with Intellectual and Developmental Disabilities: A Formative Evaluation

    ERIC Educational Resources Information Center

    Ward, Karen M.; Atkinson, Julie P.; Smith, Curtis A.; Windsor, Richard

    2013-01-01

    Meaningful relationships with others are often elusive for people with intellectual and developmental disabilities, but no less desired for their full inclusion and participation in society. It is well documented that people with disabilities are victims of interpersonal violence at higher rates than peers without disabilities. This article…

  1. Acceptance of Disability and Hwa-Byung among Korean Mothers of Children with Developmental Disabilities

    ERIC Educational Resources Information Center

    Kim, Eunha; Hwang, Jowon; Park, Sukyoung

    2018-01-01

    This study examined how child problem behaviour could be related to maternal Hwa-Byung (HB; Korean culture syndrome, meaning "anger illness") among Korean mothers of children with developmental disabilities. Acceptance of disabilities and parenting stress were tested as mediators for the relationship between child problem behaviour and…

  2. Assisting people with disabilities to actively improve their collaborative physical activities with Nintendo Wii Balance Boards by controlling environmental stimulation.

    PubMed

    Shih, Ching-Hsiang; Chen, Ling-Che; Shih, Ching-Tien

    2012-01-01

    The latest researches have adopted software technology to modify the Nintendo Wii Balance Board functionality and used it to enable two people with developmental disabilities to actively perform physical activities. This study extended the latest research of the Wii Balance Board application to assess whether four people (two groups) with developmental disabilities would be able to actively improve their physical activities collaboration--walking to the designated location following simple instructions, by controlling their favorite environmental stimulation through using three Nintendo Wii Balance Boards. We employed an A-B-A-B design, with A represented the baseline and B represented intervention phases. Data showed that both groups of participants significantly increased their collaborative target response (collaboratively performing designated physical activities) by activating the control system to produce their preferred environmental stimulation during the intervention phases. Practical and developmental implications of the findings are discussed. Copyright © 2011 Elsevier Ltd. All rights reserved.

  3. The effectiveness of a Group Triple P with Chinese parents who have a child with developmental disabilities: a randomized controlled trial.

    PubMed

    Leung, Cynthia; Fan, Angel; Sanders, Matthew R

    2013-03-01

    The study examined the effectiveness of Group Triple P, a Level 4 variant of the Triple P multilevel system of parenting support, with Chinese parents who had a preschool aged child with a developmental disability, using randomized controlled trial design. Participants (Intervention group: 42; Waitlist Control group: 39) completed measures on child behaviour, parental stress, dysfunctional discipline styles and parental conflict before and after program completion by the Intervention group. Intervention group participants also completed these same measures six months after program completion. Compared to the Waitlist Control group, parents receiving Group Triple P reported significantly lower levels of child behaviour problems, parental stress, dysfunctional discipline style and parental conflict scores. The Intervention group participants maintained their gains six months after program completion. The results provided promising evidence for the Level 4 Group Triple P as an effective intervention program for Chinese parents who have preschool aged children with developmental disabilities. Copyright © 2012 Elsevier Ltd. All rights reserved.

  4. Maternal and offspring outcomes in women with intellectual and developmental disabilities: a population-based cohort study.

    PubMed

    Brown, H K; Cobigo, V; Lunsky, Y; Vigod, S N

    2017-04-01

    To compare the risks for adverse maternal and offspring outcomes in women with and without intellectual and developmental disabilities. Population-based cohort study. Ontario, Canada. Singleton obstetrical deliveries to 18- to 49-year-old women with and without intellectual and developmental disabilities (n = 3932 in the exposed cohort, n = 382 774 in the unexposed cohort; 2002-2011 fiscal years). Women with intellectual and developmental disabilities were identified based on diagnoses in health administrative data or receipt of disability income support. The unexposed cohort comprised women without intellectual and developmental disabilities. Modified Poisson regression was used to compute adjusted relative risks (aRR) and 95% confidence intervals (CI) comparing the two cohorts. Primary maternal outcomes were: gestational diabetes, gestational hypertension, pre-eclampsia, eclampsia, and venous thromboembolism. Primary offspring outcomes were: preterm birth, small for gestational age, and large for gestational age. The exposed cohort, compared with the unexposed cohort, had increased risks for pre-eclampsia (aRR 1.47, 95% CI 1.11-1.93) and venous thromboembolism (aRR 1.60, 95% CI 1.17-2.19). Their offspring had increased risks for preterm birth (aRR 1.63, 95% CI 1.47-1.80) and small for gestational age (aRR 1.35, 95% CI 1.25-1.45). These findings suggest that there is a need to address modifiable risk factors for adverse outcomes among women with intellectual and developmental disabilities prior to and during pregnancy. Moreover, there is a need to enhance monitoring for maternal and offspring complications in this population. Large cohort study: intellectual and developmental disabilities predispose women/babies to adverse outcomes. © 2016 Royal College of Obstetricians and Gynaecologists.

  5. An Education System for High-Risk Infants: A Preventive Approach to Developmental and Learning Disabilities.

    ERIC Educational Resources Information Center

    Meier, John H.; And Others

    This paper reviews recent literature in the field of infant education, presents a rationale for developing a systematic program of infant education, and suggests how this might be accomplished. Developmental research has shown that experiential deprivation, whether environmentally or neurologically caused, is the major factor in mental retardation…

  6. Parental Stress in Families of Children With Autism and Other Developmental Disabilities.

    PubMed

    Valicenti-McDermott, Maria; Lawson, Katharine; Hottinger, Kathryn; Seijo, Rosa; Schechtman, Merryl; Shulman, Lisa; Shinnar, Shlomo

    2015-11-01

    The level of parental stress in families of children with autism and other developmental disabilities and its association with child comorbid symptoms was studied in an ethnically diverse population, in a cross-sectional study with structured interview. The sample included 50 families of children with autism and 50 families of children with other developmental disabilities, matched by age/gender. Interview included Parenting Stress Index-Short Form, Gastrointestinal Questionnaire, Child Sleep Habits Questionnaire, and Aberrant Behavior Checklist. In this ethnically diverse sample, parental stress was significantly higher for the autism group and for non-Hispanic and US-born mothers. In both study groups, parental stress was related to child irritability. Parental stress was also related to gastrointestinal problems in the autism group and to sleep difficulties in the developmental disabilities group. Targeting child irritability may be particularly important in reducing parental stress for families of children with autism and other developmental disabilities. © The Author(s) 2015.

  7. A Review of Intervention Programs to Prevent and Treat Behavioral Problems in Young Children with Developmental Disabilities

    PubMed Central

    Petrenko, Christie L. M.

    2013-01-01

    Children with developmental disabilities are at higher risk for internalizing and externalizing behavioral problems than children in the general population. Effective prevention and treatment programs are necessary to reduce the burden of behavioral problems in this population. The current review identified 17 controlled trials of nine intervention programs for young children with developmental disabilities, with parent training the most common type of intervention in this population. Nearly all studies demonstrated medium to large intervention effects on child behavior post-intervention. Preliminary evidence suggests interventions developed for the general population can be effective for children with developmental disabilities and their families. A greater emphasis on the prevention of behavior problems in young children with developmental disabilities prior to the onset of significant symptoms or clinical disorders is needed. Multi-component interventions may be more efficacious for child behavior problems and yield greater benefits for parent and family adjustment. Recommendations for future research directions are provided. PMID:24222982

  8. Relations of Early Motor Skills on Age and Socialization, Communication, and Daily Living in Young Children With Developmental Disabilities.

    PubMed

    MacDonald, Megan; Ross, Samantha; McIntyre, Laura Lee; Tepfer, Amanda

    2017-04-01

    Young children with developmental disabilities experience known deficits in salient child behaviors, such as social behaviors, communication, and aspects of daily living, behaviors that generally improve with chronological age. The purpose of this study was to examine the mediating effects of motor skills on relations of age and salient child behaviors in a group of young children with developmental disabilities, thus tapping into the potential influences of motor skills in the development of salient child behaviors. One hundred thirteen young children with developmental disabilities participated in this study. Independent mediation analysis, with gender as a moderator between the mediating and outcome variable, indicated that motor skills meditated relations between age and socialization, communication, and daily living skills in young male children with developmental disabilities, but not female participants. Findings suggest motor skill content needs to be considered in combination with other child behaviors commonly focused on in early intervention.

  9. A Methodology for Assessing the Functions of Emerging Speech in Children with Developmental Disabilities

    PubMed Central

    2005-01-01

    An approach based on Skinner's (1957) theory of verbal behavior has been developed to understand and teach elementary communication skills to children with autism and developmental disabilities (Sundberg & Partington, 1998). However, few studies have directly examined the characteristics of emerging language in children with developmental disabilities. The purpose of this study was to develop and evaluate an assessment for identifying the elementary functions of vocal speech in children. Participants were 4 children with developmental disabilities, aged 6 years to 12 years, who exhibited at least one distinguishable vocal response (word or phrase) frequently in the natural environment. The assessment focused on three verbal operants delineated by Skinner (mand, tact, and intraverbal). One or more functions were identified for at least one vocal response of each child. Results suggested that this assessment would be useful for (a) evaluating Skinner's theory, (b) guiding decisions about language training for individual children, and (c) studying the nature of expressive language development in children with developmental disabilities. PMID:16270841

  10. A methodology for assessing the functions of emerging speech in children with developmental disabilities.

    PubMed

    Lerman, Dorothea C; Parten, Mandy; Addison, Laura R; Vorndran, Christina M; Volkert, Valerie M; Kodak, Tiffany

    2005-01-01

    An approach based on Skinner's (1957) theory of verbal behavior has been developed to understand and teach elementary communication skills to children with autism and developmental disabilities (Sundberg & Partington, 1998). However, few studies have directly examined the characteristics of emerging language in children with developmental disabilities. The purpose of this study was to develop and evaluate an assessment for identifying the elementary functions of vocal speech in children. Participants were 4 children with developmental disabilities, aged 6 years to 12 years, who exhibited at least one distinguishable vocal response (word or phrase) frequently in the natural environment. The assessment focused on three verbal operants delineated by Skinner (mand, tact, and intraverbal). One or more functions were identified for at least one vocal response of each child. Results suggested that this assessment would be useful for (a) evaluating Skinner's theory, (b) guiding decisions about language training for individual children, and (c) studying the nature of expressive language development in children with developmental disabilities.

  11. The Contribution of Developmental Behavioural Genetics towards a Multifactorial Understanding of Reading Disabilities.

    ERIC Educational Resources Information Center

    Crawford, Shawn; And Others

    1990-01-01

    The utility of developmental behavioral genetics in the study of reading disability is considered. Research which has found reading disability to be partly genetically determined is cited, and future research applications are discussed. (Author/JDD)

  12. Melatonin Treatment in Children with Developmental Disabilities.

    PubMed

    Schwichtenberg, A J; Malow, Beth A

    2015-06-01

    Melatonin is commonly recommended to treat sleep problems in children with developmental disabilities. However, few studies document the efficacy and safety of melatonin in these populations. This article reviews recent studies of melatonin efficacy in developmental disabilities. Overall, short treatment trials were associated with a significant decrease in sleep onset latency time for each of the disorders reviewed, with 1 notable exception-tuberous sclerosis. Reported side effects were uncommon and mild. Across disorders, additional research is needed to draw disability-specific conclusions. However, studies to date provide positive support for future trials that include larger groups of children with specific disabilities/syndromes. Copyright © 2015 Elsevier Inc. All rights reserved.

  13. Predictors of Supported Employment for Transitioning Youth with Developmental Disabilities

    ERIC Educational Resources Information Center

    Simonsen, Monica Lynn

    2010-01-01

    The Individuals with Disabilities Education Act of 2004 requires school systems to plan systematically for the transition from school to post-secondary education and/or employment and include measurable post-school goals in students' IEPs. Schools are required to coordinate activities, such as work experiences, to assist students in meeting their…

  14. Adolescents with Intellectual Disabilities: Personal Aspects of Their Developmental Disability

    ERIC Educational Resources Information Center

    Kedrova, Irina A.; Matantseva, Tatiana N.

    2016-01-01

    The article deals with the development of inclusive, special and integrated education in regions of the Russian Federation which is connected with socio-cultural changes in modern education. The author underlines the need for continuous improvement of education system and education of children with different development level. The expansion of…

  15. Perceptions of School Nurses in the Care of Students with Disabilities

    ERIC Educational Resources Information Center

    Singer, Barbara

    2013-01-01

    Many children are surviving prematurity and serious childhood illnesses due to advances in technology and medical care. As a result, more children are entering public school systems with complex health care needs and intellectual and developmental disabilities. School nurses are responsible for caring for these children; however, many nurses feel…

  16. Communication-based assessment of developmental age for young children with developmental disabilities.

    PubMed

    DeVeney, Shari L; Hoffman, Lesa; Cress, Cynthia J

    2012-06-01

    In this study, the authors compared a multiple-domain strategy for assessing developmental age of young children with developmental disabilities who were at risk for long-term reliance on augmentative and alternative communication (AAC) with a communication-based strategy composed of receptive language and communication indices that may be less affected by physically challenging tasks than traditional developmental age scores. Participants were 42 children (age 9-27 months) with developmental disabilities and who were at risk for long-term reliance on AAC. Children were assessed longitudinally in their homes at 3 occasions over 18 months using multiple-domain and communication-based measures. Confirmatory factor analysis examined dimensionality across the measures, and age-equivalence scores under each strategy were compared, where possible. The communication-based latent factor of developmental age demonstrated good reliability and was almost perfectly correlated with the multiple-domain latent factor. However, the mean age-equivalence score of the communication-based assessment significantly exceeded that of the multiple-domain assessment by 5.3 months across ages. Clinicians working with young children with developmental disabilities should consider a communication-based approach as an alternative developmental age assessment strategy for characterizing children's capabilities, identifying challenges, and developing interventions. A communication-based developmental age estimation is sufficiently reliable and may result in more valid inferences about developmental age for children whose developmental or cognitive age scores may otherwise be limited by their physical capabilities.

  17. Motor Performance and Rhythmic Perception of Children with Intellectual and Developmental Disability and Developmental Coordination Disorder

    ERIC Educational Resources Information Center

    Kartasidou, Lefkothea; Varsamis, Panagiotis; Sampsonidou, Anna

    2012-01-01

    Professionals who work with children presenting intellectual and developmental disability (IDD) and developmental coordination disorder (DCD) are concerned with their motor development and their rhythmic perception. The aim of this study is to investigate the correlation between a motor performance test and a music rhythmic test that measures…

  18. Psychometrics and utility of Psycho-Educational Profile-Revised as a developmental quotient measure among children with the dual disability of intellectual disability and autism.

    PubMed

    Alwinesh, Merlin Thanka Jemi; Joseph, Rachel Beulah Jansirani; Daniel, Anna; Abel, Julie Sandra; Shankar, Satya Raj; Mammen, Priya; Russell, Sushila; Russell, Paul Swamidhas Sudhakar

    2012-09-01

    There is no agreement about the measure to quantify the intellectual/developmental level in children with the dual disability of intellectual disability and autism. Therefore, we studied the psychometric properties and utility of Psycho-Educational Profile-Revised (PEP-R) as a developmental test in this population. We identified 116 children with dual disability from the day care and inpatient database of a specialised Autism Clinic. Scale and domain level scores of PEP-R were collected and analyzed. We examined the internal consistency, domain-total correlation of PEP-R and concurrent validity of PEP-R against Gesell's Developmental Schedule, inter-rater and test-retest reliability and utility of PEP-R among children with dual disability in different ages, functional level and severity of autism. Besides the adequate face and content validity, PEP-R demonstrates a good internal consistency (Cronbach's α ranging from 0.91 to 0.93) and domain-total correlation (ranging from 0.75 to 0.90). The inter-rater reliability (intraclass correlation coefficient, ICC = 0.96) and test-retest reliability (ICC = 0.87) for PEP-R is good. There is moderate-to-high concurrent validity with GDS (r ranging from 0.61 to 0.82; all Ps = 0.001). The utility of PEP-R as a developmental measure was good with infants, toddlers, pre-school and primary school children. The ability of PEP-R to measure the developmental age was good, irrespective of the severity of autism but was better with high-functioning children. The PEP-R as an intellectual/developmental test has strong psychometric properties in children with dual disability. It could be used in children with different age groups and severity of autism. PEP-R should be used with caution as a developmental test in children with dual disability who are low functioning.

  19. Safety assessment of a home-based telecare system for adults with developmental disabilities in Indiana: a multi-stakeholder perspective.

    PubMed

    Brewer, Jeffrey L; Taber-Doughty, Teresa; Kubik, Sara

    2010-01-01

    We investigated the perceptions of people about the safety, security and privacy of a telecare monitoring system for adults with developmental disabilities living in residential settings. The telecare system was used by remote caregivers overnight, when staff were not present in the homes. We surveyed 127 people from different stakeholder groups in the state of Indiana. The people surveyed included those with knowledge or experience of telecare, and those without. The stakeholders were clients, their advocates, service provider administrators and independent case coordinators. The responses in each category for every group were positive except one: only 4 of the 11 telecare case coordinators agreed that the telecare system provided a secure environment. Overall, the telecare system was perceived to be as safe, secure and private as the conventional alternative of having staff in the home.

  20. Parenting and family adjustment scales (PAFAS): validation of a brief parent-report measure for use with families who have a child with a developmental disability.

    PubMed

    Mazzucchelli, Trevor G; Hodges, Julie; Kane, Robert T; Sofronoff, Kate; Sanders, Matthew R; Einfeld, Stewart; Tonge, Bruce; Gray, Kylie M

    2018-01-01

    Children with a developmental disability are three to four times more likely than their typically developing peers of developing significant emotional and behavioural problems. There is strong evidence to suggest that individual biological and psychological factors interact with family functioning to precipitate and perpetuate these problems. This study examined the psychometric properties of a brief measure, the Parent and Family Adjustment Scales (PAFAS) for use with parents of children with a developmental disability. A sample of 914 parents of children (M=6.27years) with a developmental disability participated in the study. Disabilities included Autism Spectrum Disorder and Intellectual Disability RESULTS: A confirmatory factor analysis supported a 16-item, four factor model of PAFAS Parenting, and an 11-item, three factor model of PAFAS Family Adjustment. The Parenting Scale measures parental consistency, coercive practices, use of encouragement and the quality of parent-child relationship. The Family Adjustment Scale measures parental emotional adjustment and partner and family support in parenting. The current study indicated that the PAFAS demonstrates promise as a brief measure of multiple domains of family functioning important for families who have a child with a developmental disability. Copyright © 2017 Elsevier Ltd. All rights reserved.

  1. Intellectual and developmental disabilities in Kinshasa, Democratic Republic of the Congo: causality and implications for resilience and support.

    PubMed

    Aldersey, Heather M; Turnbull, H Rutherford; Turnbull, Ann P

    2014-06-01

    This article reports results of a 7-month qualitative study on intellectual and related developmental disabilities in Kinshasa, Democratic Republic of the Congo, particularly as they relate to the causes and meaning of intellectual and developmental disabilities (IDD). This study raises important questions related to the understanding of resilience of persons affected by IDD and the nature and purpose of support they use or desire.

  2. A Consumer Satisfaction Study of Services of Individuals with Developmental Disabilities in Mississippi. The 1990 Report to Congress, Volume II. Prepared in Accordance with: The Developmental Disabilities Act of 1987.

    ERIC Educational Resources Information Center

    Mann, James; Tan, Moh-Liang

    This report was prepared as part of Mississippi's reporting requirements for Public Law 100-146, the Developmental Disabilities Assistance and Bill of Rights Act Amendments of 1987. It contains the results of 300 in-person interviews determine their satisfaction with services. A descriptive analysis of the interviews is presented in six chapters…

  3. Long-Term Aripiprazole in Youth with Developmental Disabilities Including Autism

    ERIC Educational Resources Information Center

    Hellings, Jessica A.; Boehm, Danna; Yeh, Hung Wen; Butler, Merlin G.; Schroeder, Stephen R.

    2011-01-01

    We retrospectively reviewed clinic charts of 21 children and adolescents with developmental disabilities including autism spectrum disorders (ASD) treated consecutively with aripiprazole (ARI) for irritability and severe challenging behaviors. Data extracted include age, sex, and race; level of intellectual disability (ID); "Diagnostic and…

  4. Rapid Assessment of Severe Cognitive Impairment in Individuals with Developmental Disabilities

    ERIC Educational Resources Information Center

    Walsh, D. M.; Finwall, J.; Touchette, P. E.; McGregor, M. R.; Fernandez, G. E.; Lott, I. T.; Sandman, C. A.

    2007-01-01

    Background: Most standardized intelligence tests require more than 1hour for administration, which is problematic when evaluating individuals with intellectual disabilities and developmental disabilities (IDDD), because a significant proportion of these individuals can not tolerate lengthy evaluations. Furthermore, most standardized intelligence…

  5. Adaptive Behavior of Young Urban Children with Developmental Disabilities.

    ERIC Educational Resources Information Center

    Vig, Susan; Jedrysek, Eleonora

    1995-01-01

    Assessment of 497 urban preschool children with developmental disabilities using the Vineland Adaptive Behavior Scales indicated a strong positive relationship between adaptive behavior and intelligence if measured globally. When Vineland domains were assessed separately, this relationship varied across domains and disability groups. With…

  6. Medicaid Managed Care and Individuals with Disabilities: Status Report.

    ERIC Educational Resources Information Center

    Hemp, Richard; Braddock, David

    1998-01-01

    Summarizes information presented in the American Association on Mental Retardation's 1998 publication, "State of the States in Developmental Disabilities" (Braddock, Hemp, Parish, and Westrich), which reports data on the implementation of managed care for persons with developmental disabilities. A table summarizes information about…

  7. Access to dental care for persons with developmental disabilities in Ontario.

    PubMed

    Koneru, Anjani; Sigal, Michael J

    2009-03-01

    This study was undertaken to determine the proportion of persons primarily with developmental disabilities who encounter difficulties accessing dental care in Ontario, to identify perceived barriers to accessing dental care and to determine if persons with disabilities and their caregivers believe that oral health is important. Community organizations providing services mainly to persons with developmental disabilities in Ontario were recruited to circulate a questionnaire to their members by mail or the Internet. Fourteen organizations mailed out a total of 1,755 paper questionnaires in autumn 2006, of which 420 (23.9%) were returned; in addition, 236 Internet questionnaires were returned. Of the 656 paper and Internet responses, 634 were deemed valid. Most of the respondents had developmental disabilities. Almost three-quarters of respondents (464 [73.2%] ) reported being able to access dental services in Ontario. Personal (internal) factors were more likely to represent barriers to dental care than external factors. The majority of persons with disabilities and most caregivers believed that oral health is important for overall health.

  8. Predictors of Developmental Outcomes of High-Risk and Developmentally Delayed Infants and Children Enrolled in a State Early Childhood Intervention Program

    ERIC Educational Resources Information Center

    Giannoni, Peggy P.; Kass, Philip H.

    2012-01-01

    A retrospective cohort study was conducted to identify child, maternal, family, and community factors associated with rate of developmental disability among children enrolled in the California Early Start Program. The cohort included 8,987 children considered at high risk for developmental disability due to medical risks and/or developmental…

  9. Sustaining Inclusive Environments for Employees with Developmental Disabilities: A Study of Employers' Reports Regarding Best Practices

    ERIC Educational Resources Information Center

    Nelson, Gretchen

    2014-01-01

    The unemployment rate for individuals with disabilities is twice that of non-disabled job seekers (as reported by Allsup's second quarter report, 2012). An even greater disparity for individuals with developmental disabilities exists. Despite an equal or greater desire to find a job (Ali, Schur, & Blanck, 2011) in comparison with non-disabled…

  10. Unlikely Alliances: Friendship & People with Developmental Disabilities.

    ERIC Educational Resources Information Center

    O'Brien, John; O'Brien, Connie Lyle

    This discussion of friendship in the lives of people with developmental disabilities raises questions which probe the nature of friendship, friendship between people with and without disabilities, and the special challenges involved in making and keeping friends. First, four dimensions of friendship are identified and discussed: (1) attraction…

  11. 78 FR 16510 - Delegation of Authority

    Federal Register 2010, 2011, 2012, 2013, 2014

    2013-03-15

    ... Disabilities Assistance and Bill of Rights Act of 2000 are being delegated from the Assistant Secretary... Programs, The Developmental Disabilities Assistance and Bill of Rights Act of 2000, (The Act), Public Law... Living the authorities under the Developmental Disabilities Assistance and Bill of Rights Act of 2000, 42...

  12. Long-term care for people with developmental disabilities: a critical analysis.

    PubMed

    Palley, H A; Van Hollen, V

    2000-08-01

    This article explores how the trends toward long-term community care affecting people with developmental disabilities developed. Appropriateness of care and quality of life issues are discussed. The article also reviews the development of long-term care for frail and disabled elderly people and explores the arguments for a continuum of care that have developed in this area. The authors conclude that future policies with respect to meeting long-term care needs for people with developmental disabilities must be addressed flexibly on an individual basis, related to individual needs, and must provide a continuum of care services.

  13. The Relative Risk of Divorce in Parents of Children With Developmental Disabilities: Impacts of Lifelong Parenting.

    PubMed

    Namkung, Eun Ha; Song, Jieun; Greenberg, Jan S; Mailick, Marsha R; Floyd, Frank J

    2015-11-01

    We prospectively examined the risk of divorce in 190 parents of children with developmental disabilities compared to 7,251 parents of children without disabilities based on a random sample drawn from the community and followed longitudinally for over 50 years. A significant interaction between the parental group status and number of children was found: In the comparison group, having a larger number of children was related to an increased risk of divorce, whereas the number of children did not increase divorce risk among parents of children with developmental disabilities.

  14. The Relative Risk of Divorce in Parents of Children with Developmental Disabilities: Impacts of Lifelong Parenting

    PubMed Central

    Song, Jieun; Greenberg, Jan S.; Mailick, Marsha R.; Floyd, Frank J.

    2015-01-01

    We examined prospectively the risk of divorce in 190 parents of children with developmental disabilities compared to 7,251 parents of children without disabilities based on a random sample drawn from the community and followed longitudinally for over 50 years. A significant interaction between the parental group status and number of children was found: In the comparison group, having a larger number of children was related to an increased risk of divorce, whereas the number of children did not increase divorce risk among parents of children with developmental disabilities. PMID:26505872

  15. The incompetent developmentally disabled person's right of self-determination: right-to-die, sterilization and institutionalization.

    PubMed

    Krais, W A

    1989-01-01

    The developmentally disabled, specifically those mentally incompetent from birth, are entitled to a full panoply of constitutional rights and protections. These rights include the right to terminate life-sustaining treatment, the right of procreative integrity and the right not to be involuntarily institutionalized. However, the mentally incompetent developmentally disabled are generally unable to exercise these rights. This Note asserts first that proper procedural safeguards are necessary to guarantee the exercise of these constitutional rights by the incompetent disabled individual. Second, the Note focuses upon how best to preserve the disabled person's autonomy. The Note subsequently rejects the substituted judgment standard as a legal fiction, and endorses the best interest test which necessarily comports with the evidence, and properly accounts for the disabled person's incompetency.

  16. Effects of Structured Teaching on the Behavior of Young Children with Disabilities

    ERIC Educational Resources Information Center

    Bennett, Katherine; Reichow, Brian; Wolery, Mark

    2011-01-01

    The effects of structured work systems based on the principles of structured teaching were evaluated with 3 preschool-aged children with developmental disabilities (2 children had autism). A withdrawal design was used with 2 participants, and a multiple baseline across stimuli was used with the other. During baseline, children were given 3 tasks…

  17. Birth weight and gestational age characteristics of children with autism, including a comparison with other developmental disabilities.

    PubMed

    Schendel, Diana; Bhasin, Tanya Karapurkar

    2008-06-01

    The objectives of this study were to compare the birth weight and gestational age distributions and prevalence rates of autism with those of other developmental disabilities and to estimate the birth weight-and gestational age-specific risks for autism. For the first objective, a retrospective cohort of children born in Atlanta, Georgia, in 1981-1993 who survived to 3 years of age was identified through vital records. Children in the cohort who had developmental disabilities (autism, mental retardation, cerebral palsy, hearing loss, or vision impairment) and were still residing in metropolitan Atlanta at 3 to 10 years of age were identified through the Metropolitan Atlanta Developmental Disabilities Surveillance Program. A nested case-control sample from the cohort was used for the second objective; all cohort children identified with autism were case participants, and control participants were cohort children who were not identified as having developmental disabilities or receiving special education services. The prevalence of autism in low birth weight or preterm children was markedly lower than those of other developmental disabilities. In multivariate analyses, birth weight of <2500 g and preterm birth at <33 weeks' gestation were associated with an approximately twofold increased risk for autism, although the magnitude of risk from these factors varied according to gender (higher in girls) and autism subgroup (higher for autism accompanied by other developmental disabilities). For example, a significant fourfold increased risk was observed in low birth weight girls for autism accompanied by mental retardation, whereas there was no significantly increased risk observed in low birth weight boys for autism alone. Gender and autism subgroup differences in birth weight and gestational age, resulting in lower gender ratios with declining birth weight or gestational age across all autism subgroups, might be markers for etiologic heterogeneity in autism.

  18. Diagnosis of severe developmental disorders in children under three years of age.

    PubMed

    Markiewicz, Katarzyna; Pachalska, Maria

    2007-02-01

    Autism, intellectual disability, and specific language impairment (SLI) constitute three important forms of developmental disability that are often mistaken for each other, especially in very young children (under age 4). Diagnostic problems are caused by the fact that a fundamental problem in cognition, language, or behavior has secondary effects on the remaining areas, which makes it difficult to separate cause from effect. A wrong or absent diagnosis can be a major hindrance in providing properly targeted therapy for developmentally disabled children. From a population of 667 children referred to a specialized outpatient clinic for developmentally disabled children, we identified 35 children in whom the fundamental diagnosis of autism, intellectual disability, or SLI was unambiguous, and then analyzed these children's scores on 7 subtests from the Munich Functional Developmental Diagnosis, in order to identify specific features of each of the three syndromes. The most reliable differentiating factor in our research group proved to be the MFDD subtest for self-reliance. A model was constructed to assist in analyzing the complex interactions of symptoms, which frequently overlap. Cognitive and communicative limitations resulting from underlying perceptual dysfunctions can lead to inappropriate adaptive behavior in children with developmental disorders, such as autism, intellectual disability, and specific language impairment. Each of these syndromes has a specific profile in respect to measures of cognitive function, social skills, and verbal communication.

  19. Access to services, quality of care, and family impact for children with autism, other developmental disabilities, and other mental health conditions.

    PubMed

    Vohra, Rini; Madhavan, Suresh; Sambamoorthi, Usha; St Peter, Claire

    2014-10-01

    This cross-sectional study examined perceived access to services, quality of care, and family impact reported by caregivers of children aged 3-17 years with autism spectrum disorders, as compared to caregivers of children with other developmental disabilities and other mental health conditions. The 2009-2010 National Survey of Children with Special Health Care Needs was utilized to examine the association between child's special needs condition and three outcomes (N = 18,136): access to services (difficulty using services, difficulty getting referrals, lack of source of care, and inadequate insurance coverage), quality of care (lack of care coordination, lack of shared decision making, and no routine screening), and family impact (financial, employment, and time-related burden). Multivariate logistic regressions were performed to compare caregivers of children with autism spectrum disorders to caregivers of children with developmental disabilities (cerebral palsy, Down syndrome, developmental delay, or intellectual disability), mental health conditions (attention deficit hyperactivity disorder, anxiety, behavioral/conduct problems, or depression), or both developmental disabilities and mental health conditions. Caregivers of children with autism spectrum disorders were significantly more likely to report difficulty using services, lack of source of care, inadequate insurance coverage, lack of shared decision making and care coordination, and adverse family impact as compared to caregivers of children with developmental disabilities, mental health conditions, or both. © The Author(s) 2013.

  20. Treatment of Epilepsy in Children with Developmental Disabilities

    ERIC Educational Resources Information Center

    Depositario-Cabacar, Dewi Frances T.; Zelleke, Tesfaye-Getaneh

    2010-01-01

    Children with developmental disabilities are at increased risk for epilepsy with a prevalence rate higher than the general population. Some of the more common developmental disorders in childhood and the features of epilepsy in these conditions are discussed. Specifically, autism, cerebral palsy, mental retardation, and attention deficit and…

  1. SARC Supplementary Tutor Handbook: Supporting Literacy for People with Intellectual/Developmental Challenges.

    ERIC Educational Resources Information Center

    Lockert, Richard

    This handbook, which is intended for tutors, disability practitioners, and others working with adults with intellectual/developmental disabilities, contains supplementary materials for and about supporting literacy for people with intellectual/developmental challenges. The handbook is a product of the following activities: extensive research of…

  2. 45 CFR 1385.4 - Rights of individuals with developmental disabilities.

    Code of Federal Regulations, 2010 CFR

    2010-10-01

    ... PROGRAM § 1385.4 Rights of individuals with developmental disabilities. (a) Section 110 of the Act, Rights... that the human rights of individuals assisted by these programs will be protected consistent with... 45 Public Welfare 4 2010-10-01 2010-10-01 false Rights of individuals with developmental...

  3. Tobacco Use among Individuals with Intellectual or Developmental Disabilities: A Brief Review

    ERIC Educational Resources Information Center

    Steinberg, Marc L.; Heimlich, Laura; Williams, Jill M.

    2009-01-01

    Tobacco use is the leading preventable cause of death in the United States. Although few tobacco control efforts target individuals with intellectual and/or developmental disabilities, this population may be especially vulnerable to the deleterious effects of tobacco use and dependence. Individuals with intellectual and developmental disabilities…

  4. State of the States in Developmental Disabilities

    ERIC Educational Resources Information Center

    Braddock, David; Hemp, Richard; Rizzolo, Mary Kay

    2008-01-01

    This is the latest edition of the "State of the States in Developmental Disabilities" study--a thorough and the only one of its kind investigation on public spending, revenues, and programmatic trends of intellectual and developmental programs and services within the United States since 1977. Directed by leading researcher, Dr. David…

  5. Developmental Defects of Enamel in Children with Intellectual Disability.

    PubMed

    Erika, Vesna; Modrić; Verzak, Željko; Karlović, Zoran

    2016-03-01

    To investigate the frequency of developmental defects of enamel (DDE) in children with intellectual disability. Children aged 5-18 years (72 children with intellectual disabilities and 72 controls) were included in the study. All the teeth were screened for developmental defects of enamel using the modified Developmental defects of enamel (mDDE) index. Out of the 72 children with intellectual disabilities in this study, 20 (27.78%) presented dental defects of enamel, compared with 8 (11.11%) of those in the control group, which was considered statistically significant (p = 0.021). The majority of children in both groups had white demarcated opacities. Children in both groups were more likely to have maxillary teeth affected than the mandibular teeth and the asymmetrical demarcated enamel defects were more common than the symmetric ones. Majority of opacities in children in both groups were on the maxillary incisors. Children with intellectual disabilities have more developmental defects of enamel than children in the control group. Enamel defects increase caries risk and cause reduction in enamel mechanical properties leading to restoration failures.

  6. Judicial Reliance on Parental IQ in Appellate-Level Child Welfare Cases Involving Parents with Intellectual and Developmental Disabilities.

    PubMed

    Callow, Ella; Tahir, Munazza; Feldman, Maurice

    2017-05-01

    Parents with intellectual and developmental disabilities (IDDs) are over-represented in child welfare cases. Although IQ per se is an invalid indicator of parenting abilities, this study examined the prevalence of judicial consideration of parental IQ test evidence in US appellate cases. The present authors conducted Boolean searches of Westlaw Corporation's case database since 1999. The present authors used a six-question checklist to survey the 42 most recent American appellate cases involving termination of parental rights (TPR) decisions that included evidence of parental intellectual and developmental disabilities based on IQ. In 86% of cases, parental low IQ was presented as a barrier to parenting competence. Higher courts uphold TPR decision in 81% of cases involving parents with intellectual and developmental disabilities. Parental IQ scores are routinely relied upon to judge parenting capacity in custody cases where parents have intellectual and developmental disabilities. The present authors recommend more comprehensive assessments examining a broader range of contextual variable that may impact on parenting abilities. © 2016 John Wiley & Sons Ltd.

  7. Single Case Design Elements in Text Comprehension Research for Students with Developmental Disabilities

    ERIC Educational Resources Information Center

    Snyder, Sara M.; Knight, Victoria F.; Ayres, Kevin M.; Mims, Pamela J.; Sartini, Emily C.

    2017-01-01

    Recently researchers have begun exploring the efficacy of interventions designed to improve text comprehension skills for students with developmental disabilities (DD). Text comprehension is essential for understanding academic content as students with disabilities make progress in the general education curriculum. This article focuses on single…

  8. Vulnerability and Experiences Related to Social Victimization among Individuals with Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    Fisher, Marisa H.; Moskowitz, Andrew L.; Hodapp, Robert M.

    2012-01-01

    Compared to adults without disabilities, individuals with intellectual and developmental disabilities (IDD) are more likely to experience social victimization. This study examined responses of caregivers of 146 adults with IDD on questionnaires concerning demographics and behavioral characteristics as well as a newly developed Social Vulnerability…

  9. Parental Perceptions of Physical Activity Benefits for Youth with Developmental Disabilities

    ERIC Educational Resources Information Center

    Pitchford, E. Andrew; Siebert, Erin; Hamm, Jessica; Yun, Joonkoo

    2016-01-01

    Physical activity promotion is of need for youth with developmental disabilities. Parental perceptions of physical activity benefits may influence youth behaviors. This study investigated the relationship between parental beliefs on the importance of physical activity and physical activity levels among youth with disabilities. Parents and…

  10. Doing Nothing: Adults with Disabilities with No Daily Activities and Their Siblings

    ERIC Educational Resources Information Center

    Taylor, Julie Lounds; Hodapp, Robert M.

    2012-01-01

    A significant concern of parents and professionals is that adults with intellectual and developmental disabilities will go without regular educational-vocational activities. The authors examined predictors of such inactivity in individuals with intellectual and developmental disabilities, as well as how inactivity related to their sibling's…

  11. Preparing Tomorrow's Doctors to Care for Patients with Autism Spectrum Disorder

    ERIC Educational Resources Information Center

    Havercamp, Susan M.; Ratliff-Schaub, Karen; Macho, Patricia Navas; Johnson, Cherelle N.; Bush, Kelsey L.; Souders, Heather T.

    2016-01-01

    People with autism spectrum disorder (ASD) and other developmental disabilities have poorer health and face unique barriers to health care compared to people without disabilities. These health disparities can be partially attributed to physicians' limited knowledge about caring for patients with developmental disabilities. The purpose of this…

  12. Epilepsy and Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    Oguni, Hirokazu

    2013-01-01

    The co-occurrence of epilepsy in people with intellectual disabilities (ID) and other developmental disabilities (DD) has received attention because it has a significant negative impact on health, well-being, and quality of life. The current research investigating the frequency and form of epilepsy in children with ID and DD is reviewed, with…

  13. Developmental Disabilities Prevention and the Distribution of Risk among American Indians.

    ERIC Educational Resources Information Center

    Mendola, Pauline; And Others

    1994-01-01

    Compared to the U.S. general population, American Indian children experience a smaller proportion of genetic and congenital anomalies associated with developmental disabilities and greater risk associated with prenatal exposure to alcohol and tobacco, maternal diabetes, and disabling sequelae of accidents and otitis media. Prevention efforts…

  14. Leadership Development of Individuals with Developmental Disabilities in the Self-Advocacy Movement

    ERIC Educational Resources Information Center

    Caldwell, J.

    2010-01-01

    Background: Exploring the life stories of leaders in the self-advocacy movement can expand our knowledge about leadership development of individuals with developmental disabilities. A better understanding of this process may assist with supporting the movement and leadership development of youth with disabilities. Methods: In-depth qualitative…

  15. Post-Traumatic Stress Disorder in Young People with Intellectual Disability

    ERIC Educational Resources Information Center

    Turk, J.; Robbins, I.; Woodhead, M.

    2005-01-01

    Background: Post-traumatic stress disorder (PTSD) is common and treatable. There is extensive research on people of average intelligence yet little on individuals with developmental disabilities. Methods: We report two people with intellectual disability (ID) who experienced PTSD. The relevance of their developmental difficulties, social and…

  16. Treatment Strategies for Hispanic Developmentally Disabled Clients.

    ERIC Educational Resources Information Center

    Omdahl, Doris

    Professionals who work with developmentally disabled Hispanic clients must enhance their own ability to work with ethnic minorities and become thoroughly familiar with the culture of the people they serve. To encourage disabled Hispanic individuals to apply for services, agencies can employ strategies such as bilingual capability, use of…

  17. Barriers to the Inclusion of Volunteers with Developmental Disabilities.

    ERIC Educational Resources Information Center

    Miller, Kimberly D.; Schleien, Stuart J.; Bedini, Leandra A.

    2003-01-01

    Responses from 214 of 500 volunteer agencies determined that 1.1% of their volunteers have developmental disabilities/mental retardation (DD/MR) and identified barriers and benefits that volunteer coordinators perceive regarding volunteers with DD/MR. There was interest in learning how to accommodate volunteers with disabilities. (Contains 14…

  18. OSHA and ADA: "Reasonable Accommodation" in Training Persons with Developmental Disabilities.

    ERIC Educational Resources Information Center

    Sandoz, Charles J.

    This paper documents an approach to meeting the training requirements of the Occupational Safety and Health Act (OSHA) and the "reasonable accommodation" requirements of the Americans with Disabilities Act (ADA) for individuals with developmental disabilities. It describes a training program used with three adult workers with mild mental…

  19. Unhappy (and Happy) in Their Own Way: A Developmental Psychopathology Perspective on Quality of Life for Families Living with Developmental Disability with and without Autism

    ERIC Educational Resources Information Center

    Gardiner, Emily; Iarocci, Grace

    2012-01-01

    Research on families living with developmental disability generally and autism specifically is dominated by a deficit view that elicits an elaborate representation of problems and risks without the benefit of considering families' potential for adaptation and resilience. A central tenet of developmental psychopathology is that the study of…

  20. Peer-Mediated AAC Instruction for Young Children with Autism and other Developmental Disabilities

    PubMed Central

    Thiemann-Bourque, Kathy

    2013-01-01

    Many young children with developmental disabilities (DD) have significant delays in social, communication, and play skills. For those children learning to use augmentative and alternative communication (.AAC% successful social interactions with peers will require explicit instruction on the same system for both communication partners. Peer-mediated (PM) interventions are recommended best practice based on more than 30 years of research with young children with autism and other DDs. Integrating direct AAC instruction within PM programs to advance social reciprocity in typical preschool routines is a necessary and important next step for young AAC users. In this article, I will summarize the design and outcomes of two PM AAC studies documenting positive social outcomes for preschool children with severe autism. I will also teach} peer partners how to use AAC highlight strategies to recruit peers without disabilities systems (e.g., Picture Exchange Communication System [PECS], Speech Generating Devices [SGDs]), and engineer the preschool classroom for successful AAC communication. I will describe data collection procedures for measuring changes in reciprocal child and peer social communication interactions. PMID:24392179

  1. Peer-Mediated AAC Instruction for Young Children with Autism and other Developmental Disabilities.

    PubMed

    Thiemann-Bourque, Kathy

    2012-12-01

    Many young children with developmental disabilities (DD) have significant delays in social, communication, and play skills. For those children learning to use augmentative and alternative communication (.AAC% successful social interactions with peers will require explicit instruction on the same system for both communication partners. Peer-mediated (PM) interventions are recommended best practice based on more than 30 years of research with young children with autism and other DDs. Integrating direct AAC instruction within PM programs to advance social reciprocity in typical preschool routines is a necessary and important next step for young AAC users. In this article, I will summarize the design and outcomes of two PM AAC studies documenting positive social outcomes for preschool children with severe autism. I will also teach } peer partners how to use AAC highlight strategies to recruit peers without disabilities systems (e.g., Picture Exchange Communication System [PECS], Speech Generating Devices [SGDs]), and engineer the preschool classroom for successful AAC communication. I will describe data collection procedures for measuring changes in reciprocal child and peer social communication interactions.

  2. Developmental disabilities: improving competence in care using virtual patients.

    PubMed

    Sanders, Carla L; Kleinert, Harold L; Free, Teresa; King, Pam; Slusher, Ida; Boyd, Sara

    2008-02-01

    Nurse practitioners (NPs) have an increasingly important role in health care provision in the United States. However, most nurses report that they receive little or no clinical training in the area of developmental disabilities. A core development team consisting of NP faculty members from three universities, one physician assistant faculty member, the parents of children with developmental disabilities, and educational specialists developed two multimedia interactive pediatric instructional modules in CD-ROM format: one involving a child with Down syndrome and the other, an infant born at 26 weeks gestation. Participants were required to make decisions about proper clinical interaction throughout the cases. The modules on CD were piloted with NP students at three universities. Effectiveness study results demonstrated significant gains in both knowledge and comfort level regarding the care of patients with developmental disabilities.

  3. Factor analysis of Wechsler Adult Intelligence Scale-Revised in developmentally disabled persons.

    PubMed

    Di Nuovo, Santo F; Buono, Serafino

    2006-12-01

    The results of previous studies on the factorial structure of Wechsler Intelligence Scales are somewhat inconsistent across normal and pathological samples. To study specific clinical groups, such as developmentally disabled persons, it is useful to examine the factor structure in appropriate samples. A factor analysis was carried out using the principal component method and the Varimax orthogonal rotation on the Wechsler Adult Intelligence Scale (WAIS-R) in a sample of 203 developmentally disabled persons, with a mean age of 25 years 4 months. Developmental disability ranged from mild to moderate. Partially contrasting with previous studies on normal samples, results found a two-factor solution. Wechsler's traditional Verbal and Performance scales seems to be more appropriate for this sample than the alternative three-factor solution.

  4. Landau-Kleffner Syndrome

    MedlinePlus

    ... difficult to diagnose and may be misdiagnosed as autism, pervasive developmental disorder, hearing impairment, learning disability, auditory/ ... difficult to diagnose and may be misdiagnosed as autism, pervasive developmental disorder, hearing impairment, learning disability, auditory/ ...

  5. A wireless object location detector enabling people with developmental disabilities to control environmental stimulation through simple occupational activities with Nintendo Wii Balance Boards.

    PubMed

    Shih, Ching-Hsiang; Chang, Man-Ling

    2012-01-01

    The latest researches have adopted software technology, turning the Nintendo Wii Balance Board into a high performance standing location detector with a newly developed standing location detection program (SLDP). This study extended SLDP functionality to assess whether two people with developmental disabilities would be able to actively perform simple occupational activities by controlling their favorite environmental stimulation using Nintendo Wii Balance Boards and SLDP software. An ABAB design was adopted in this study to perform the tests. The test results showed that, during the intervention phases, both participants significantly increased their target response (i.e. simple occupational activity) to activate the control system to produce environmental stimulation. The practical and developmental implications of the findings are discussed. Copyright © 2012 Elsevier Ltd. All rights reserved.

  6. De novo variants in EBF3 are associated with hypotonia, developmental delay, intellectual disability, and autism

    PubMed Central

    Tanaka, Akemi J.; Cho, Megan T.; Willaert, Rebecca; Retterer, Kyle; Zarate, Yuri A.; Bosanko, Katie; Stefans, Vikki; Oishi, Kimihiko; Williamson, Amy; Wilson, Golder N.; Basinger, Alice; Barbaro-Dieber, Tina; Ortega, Lucia; Sorrentino, Susanna; Gabriel, Melissa K.; Anderson, Ilse J.; Sacoto, Maria J. Guillen; Schnur, Rhonda E.; Chung, Wendy K.

    2017-01-01

    Using whole-exome sequencing, we identified seven unrelated individuals with global developmental delay, hypotonia, dysmorphic facial features, and an increased frequency of short stature, ataxia, and autism with de novo heterozygous frameshift, nonsense, splice, and missense variants in the Early B-cell Transcription Factor Family Member 3 (EBF3) gene. EBF3 is a member of the collier/olfactory-1/early B-cell factor (COE) family of proteins, which are required for central nervous system (CNS) development. COE proteins are highly evolutionarily conserved and regulate neuronal specification, migration, axon guidance, and dendritogenesis during development and are essential for maintaining neuronal identity in adult neurons. Haploinsufficiency of EBF3 may affect brain development and function, resulting in developmental delay, intellectual disability, and behavioral differences observed in individuals with a deleterious variant in EBF3. PMID:29162653

  7. Behavioral Family Intervention for Children with Developmental Disabilities and Behavioral Problems

    ERIC Educational Resources Information Center

    Roberts, Clare; Mazzucchelli, Trevor; Studman, Lisa; Sanders, Matthew R.

    2006-01-01

    The outcomes of a randomized clinical trial of a new behavioral family intervention, Stepping Stones Triple P, for preschoolers with developmental and behavior problems are presented. Forty-eight children with developmental disabilities participated, 27 randomly allocated to an intervention group and 20 to a wait-list control group. Parents…

  8. Two-Year Follow-up of the Competitive Employment Status of Graduates with Developmental Disabilities.

    ERIC Educational Resources Information Center

    Hoisch, Sharon A.; And Others

    1992-01-01

    This follow-up study of 54 graduates of a California high school career and vocational services program for students with developmental disabilities or learning disabilities found that only 39 percent were in competitive employment and that jobs were predominantly in the food, building, fabrication, and packaging service occupations. Most…

  9. From Community Presence to Sense of Place: Community Experiences of Adults with Developmental Disabilities.

    ERIC Educational Resources Information Center

    Walker, Pam

    1999-01-01

    A study of seven adults with developmental disabilities found that they commonly spent time in places designated for people with disabilities versus the general public, in public versus private places, and in places characterized by business transactions versus social interactions. Strategies for increasing opportunities for positive community…

  10. Fostering Friendships: Supporting Relationships among Youth with and without Developmental Disabilities

    ERIC Educational Resources Information Center

    Carter, Erik W.; Asmus, Jennifer; Moss, Colleen K.

    2013-01-01

    Friendships are important not only to youth development but also to the growth and expansion of social networks. Although there has long been acknowledgment of this importance for youth, such relationships can be especially elusive for transition-age students with autism, intellectual disability, and other developmental disabilities. This article…

  11. Developmental Disabilities: A Summary of Major Classifications and Glossary of Terms. Parent Awareness Program, 1982-1983. Revised.

    ERIC Educational Resources Information Center

    Knudstrup, Katherine; And Others

    Designed for use in adult education courses for parents of developmentally disabled children, this manual provides basic information about major categories of disabilities and a glossary of commonly encountered terms. After an introductory overview, the manual provides information about the characteristics and etiology of five disabling…

  12. Early Childhood Predictors of Mothers' and Fathers' Relationships with Adolescents with Developmental Disabilities

    ERIC Educational Resources Information Center

    Mitchell, D. B.; Hauser-Cram, P.

    2010-01-01

    Background: The importance of positive parent-adolescent relationships is stressed in research on adolescents, although very little is known about this relationship when a teen has developmental disabilities (DD). We investigated the relationships of adolescents with disabilities with their mothers and their fathers in order to answer a number of…

  13. Data-Based Decisions Guidelines for Teachers of Students with Severe Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    Jimenez, Bree A.; Mims, Pamela J.; Browder, Diane M.

    2012-01-01

    Effective practices in student data collection and implementation of data-based instructional decisions are needed for all educators, but are especially important when students have severe intellectual and developmental disabilities. Although research in the area of data-based instructional decisions for students with severe disabilities shows…

  14. Students with Developmental Disabilities in Catholic Schools: Examples in Primary and Secondary Settings

    ERIC Educational Resources Information Center

    Burke, Meghan M.; Griffin, Megan M.

    2016-01-01

    While some Catholic schools include students with disabilities, few serve students with significant support needs. This paper offers two distinct models for including students with developmental disabilities in Catholic schools at the primary and secondary level. Describing programs at Children of Peace School and Notre Dame College Prep School,…

  15. Longitudinal Prescribing Patterns for Psychoactive Medications in Community-Based Individuals with Developmental Disabilities: Utilization of Pharmacy Records

    ERIC Educational Resources Information Center

    Lott, I. T.; McGregor, M.; Engelman, L.; Touchette, P.; Tournay, A.; Sandman, C.; Fernandez, G.; Plon, L.; Walsh, D.

    2004-01-01

    Little is known about longitudinal prescribing practices for psychoactive medications for individuals with intellectual disabilities and developmental disabilities (IDDD) who are living in community settings. Computerized pharmacy records were accessed for 2344 community-based individuals with IDDD for whom a total of 3421 prescriptions were…

  16. Developmental Disabilities Manual, 1984-1985. Revised. Delta College Parent Awareness. Developmental Disabilities/Parent Awareness Program.

    ERIC Educational Resources Information Center

    Delta Coll., University Center, MI. Allied Health-Community Affairs.

    Developed as part of Delta College's Parent Awareness Program, this manual offers parents and family members of handicapped children explanations of the following conditions: mental retardation, cerebral palsy, epilepsy, learning disabilities, and autism. In the first section, "Special Parenting Information," Gerri Caesar describes her own…

  17. Caregiver Strain and Sensory Features in Children with Autism Spectrum Disorder and Other Developmental Disabilities

    ERIC Educational Resources Information Center

    Kirby, Anne V.; White, Tamira J.; Baranek, Grace T.

    2015-01-01

    Caring for children with disabilities contributes to increased levels of parent stress or caregiver strain. However, the potential relationship of sensory features to strain among caregivers of children with autism spectrum disorder (ASD) and other developmental disabilities (DD) is unknown. Sensory features include overreactions, underreactions,…

  18. Psychiatric Services for Individuals with Intellectual and Developmental Disabilities: Medication Management

    ERIC Educational Resources Information Center

    Russell, Andrew T.; Hahn, Joan Earle; Hayward, Katharine

    2011-01-01

    The purpose of this study was to describe the medication management and treatment provided in a specialty outpatient psychiatry clinic for 198 community-residing children and adults with intellectual disability and other developmental disabilities (IDD) referred to the clinic and discharged between 1999 and 2008. Using a descriptive design, data…

  19. Positive Approaches: A Sexuality Guide for Teaching Developmentally Disabled Persons.

    ERIC Educational Resources Information Center

    Maurer, Lisa

    This guide is intended to assist caregivers of people with development disabilities in acquiring knowledge about sexuality and skill in expressing sexuality in a safe and appropriate manner. Section 1 provides an overview of the history of sexuality and developmentally disabled individuals. The second section provides exercises for the caregiver…

  20. Cervical and Breast Cancer-Screening Knowledge of Women with Developmental Disabilities

    ERIC Educational Resources Information Center

    Parish, Susan L.; Swaine, Jamie G.; Luken, Karen; Rose, Roderick A.; Dababnah, Sarah

    2012-01-01

    Women with developmental disabilities are significantly less likely than women without disabilities to receive cervical and breast cancer screening according to clinical guidelines. The reasons for this gap are not understood. The present study examined the extent of women's knowledge about cervical and breast cancer screening, with the intention…

  1. Does Choice Influence Quality of Life for People with Mild Intellectual Disabilities?

    ERIC Educational Resources Information Center

    Neely-Barnes, Susan; Marcenko, Maureen; Weber, Lisa

    2008-01-01

    Consumer choice is a key concept in developmental disability intervention, but relatively little quantitative research has focused on the relationship between choice and quality of life. This study used data from Washington state's Division of Developmental Disabilities 2002 National Core Indicators study (Human Services Research Institute, 2001a,…

  2. A Comprehensive Guide to Intellectual and Developmental Disabilities. Second Edition

    ERIC Educational Resources Information Center

    Wehmeyer, Michael L.. Ed.; Brown, Ivan, Ed.; Percy, Maire, Ed.; Fung, W. L. Alan, Ed.; Shogren, Karrie A., Ed.

    2017-01-01

    The trusted core disability textbook gets a comprehensive update in this second edition, now thoroughly revised to include all the critical topics today's professionals need to know about as they work with people who have intellectual and developmental disabilities. Brought to you by a new team of world-renowned experts and contributors, this…

  3. Relating Stress of Mothers of Children with Developmental Disabilities to Family-School Partnerships

    ERIC Educational Resources Information Center

    Burke, Meghan M.; Hodapp, Robert M.

    2014-01-01

    Although mothers of children with intellectual and developmental disabilities (IDD) experience high levels of stress and schools constitute an important resource, the relation remains unknown between maternal stress and educational services. Responding to a national, web-based survey, 965 mothers of students with disabilities completed a 163-item…

  4. Characteristics of international websites with information on developmental disabilities.

    PubMed

    Reichow, Brian; Gelbar, Nicholas W; Mouradjian, Keri; Shefcyk, Allison; Smith, Isaac C

    2014-10-01

    The Internet often serves as a primary resource for individuals seeking health-related information, and a large and growing number of websites contain information related to developmental disabilities. This paper presents the results of an international evaluation of the characteristics and content of the top 10 ranked results (i.e., not including sponsored results - pay-per-click) returned when one of five terms related to developmental disabilities (i.e., ADHD, autism, down syndrome, learning disability, intellectual disability) was entered into one of six country specific Google online search engines (i.e., Australia (https://www.google.com.au), Canada (https://www.google.ca), Ireland (https://www.google.ie), New Zealand (https://www.google.co.nz), the United Kingdom (https://www.google.co.uk), and the United States (https://www.google.com)) on October 22, 2013. Collectively, we found that international consumers of websites related to developmental disabilities will encounter different websites with differing content and terminology, and should be critical consumers to ensure they locate the information they are seeking. Copyright © 2014 Elsevier Ltd. All rights reserved.

  5. Developmental coordination disorder

    MedlinePlus

    Physical causes and other types of learning disabilities must be ruled out before the diagnosis can be confirmed. ... Elsevier; 2016:chap 90. Szklut SE, Philibert DB. Learning disabilities and developmental coordination disorder. In: Umphred DA, Burton ...

  6. Septo-Optic Dysplasia

    MedlinePlus

    ... children with SOD have normal intelligence, others have learning disabilities. Most, however, are developmentally delayed due to vision ... children with SOD have normal intelligence, others have learning disabilities. Most, however, are developmentally delayed due to vision ...

  7. Urine screening for patients with developmental disabilities detected a patient with creatine transporter deficiency due to a novel missense mutation in SLC6A8.

    PubMed

    Kato, Hidekazu; Miyake, Fuyu; Shimbo, Hiroko; Ohya, Makoto; Sugawara, Hidenori; Aida, Noriko; Anzai, Rie; Takagi, Mariko; Okuda, Mitsuko; Takano, Kyoko; Wada, Takahito; Iai, Mizue; Yamashita, Sumimasa; Osaka, Hitoshi

    2014-08-01

    Creatine transporter deficiency (CTD) is an example of X-linked intellectual disability syndromes, caused by mutations in SLC6A8 on Xq28. Although this is the second most frequent genetic cause of intellectual disabilities in Europe or America after Fragile X syndrome, information on the morbidity of this disease is limited in Japan. Using the HPLC screening method we have established recently, we examined samples of urine of 105 patients (73 males and 32 females) with developmental disabilities at our medical center. And we have found a family with three ID boys with a novel missense mutation in SLC6A8. This is the second report of a Japanese family case of CTD. A systematic diagnostic system of this syndrome should be established in Japan to enable us to estimate its frequency and treatment. Copyright © 2013 The Japanese Society of Child Neurology. Published by Elsevier B.V. All rights reserved.

  8. Ripple effects of developmental disabilities and mental illness on nondisabled adult siblings

    PubMed Central

    Wolfe, Barbara; Song, Jieun; Greenberg, Jan S.; Mailick, Marsha R.

    2014-01-01

    Developmental disabilities and severe mental illness are costly to the affected individual and frequently to their family as well. Little studied are their nondisabled siblings. Here we examine major life course outcomes (education, employment, and marriage) of these siblings in adulthood using data from the Wisconsin Longitudinal Study. Our sample comprises 113 individuals with developmental disabilities and 337 of their nondisabled siblings; 97 individuals with mental illness and 235 of their nondisabled siblings; and 17,126 unaffected comparison group members. We find that siblings of individuals with mental illness have less education and less employment than the unaffected comparison group, whereas those who have a sibling with developmental disabilities had normative patterns of education and employment, but less marriage and more divorce. Robustness tests incorporating genetic data do not change the conclusions based on the nongenetic analyses. PMID:24607704

  9. Daily Work Stress and Awakening Cortisol in Mothers of Individuals with Autism Spectrum Disorders or Fragile X Syndrome

    PubMed Central

    Wong, Jen D.; Mailick, Marsha R.; Greenberg, Jan S.; Hong, Jinkuk; Coe, Christopher L.

    2014-01-01

    The effect of daily work stress on the next morning’s awakening cortisol level was determined in a sample of 124 mothers (M age = 49.89, SD= 6.33) of adolescents and adults with developmental disabilities and compared to 115 mothers (M age = 46.19, SD = 7.08) of individuals without disabilities. Mothers participated in 8 days of diary telephone interviews and provided saliva samples. Multilevel models revealed that mothers of individuals with developmental disabilities had lower awakening cortisol levels than comparison mothers. Work stress interacted with parental status to predict the awakening cortisol level on the following morning. When mothers of individuals with developmental disabilities experienced a work stressor, their awakening cortisol level was significantly higher on the subsequent morning, but for comparison mothers, work stressors were not significantly associated with cortisol level. Findings extend understanding of the differential impacts of specific types of stressors on physiological functioning of mothers of individuals with and without developmental disabilities. PMID:25313265

  10. A comparison of communication using the Apple iPad and a picture-based system.

    PubMed

    Flores, Margaret; Musgrove, Kate; Renner, Scott; Hinton, Vanessa; Strozier, Shaunita; Franklin, Susan; Hil, Doris

    2012-06-01

    Augmentative and alternative communication (AAC) interventions have been shown to improve both communication and social skills in children and youth with autism spectrum disorders and other developmental disabilities. AAC applications have become available for personal devices such as cell phones, MP3 Players, and personal computer tablets. It is critical that these new forms of AAC are explored and evaluated. The purpose of this study was to investigate the utility of the Apple iPad™ as a communication device by comparing its use to a communication system using picture cards. Five elementary students with autism spectrum disorders and developmental disabilities who used a picture card system participated in the study. The results were mixed; communication behaviors either increased when using the iPad or remained the same as when using picture cards. The implications of these findings are discussed.

  11. The use of the Bayley Scales of Infant and Toddler Development III with clinical populations: a preliminary exploration.

    PubMed

    Milne, Susan; McDonald, Jenny; Comino, Elizabeth J

    2012-02-01

    In response to concerns that the Bayley Scales of Infant and Toddler Development III (BSIDIII) underestimate delay in clinical populations, this study explores developmental quotient scores as an alternative to composite scores for these children. One hundred and twenty-two children aged ≤42 months, referred for diagnosis of developmental disability from January 2007 to May 2010, were assessed, and their composite and developmental quotient scores on each scale were compared. Composite scores identified only 22% (cognitive), 27% (motor), and 47.5% (language) of children as having a developmental disability. Developmental quotient scores were significantly lower than composite scores, giving rates of developmental disability of 56.6% (cognitive), 48.4% (motor), and 74.6% (language) and more closely matching both clinical impressions of delay and the proportions of those children who were also delayed on standardized tests of adaptive function.

  12. Developmental Trajectories in Syndromes with Intellectual Disability, with a Focus on Wolf-Hirschhorn and Its Cognitive-Behavioral Profile

    ERIC Educational Resources Information Center

    Fisch, Gene S.; Carpenter, Nancy; Howard-Peebles, Patricia N.; Holden, Jeanette J. A.; Tarleton, Jack; Simensen, Richard; Battaglia, Agatino

    2012-01-01

    Few studies exist of developmental trajectories in children with intellectual disability, and none for those with subtelomeric deletions. We compared developmental trajectories of children with Wolf-Hirschhorn syndrome to other genetic disorders. We recruited 106 children diagnosed with fragile X, Williams-Beuren syndrome, or Wolf-Hirschhorn…

  13. Effects of Ordinary and Adaptive Toys on Pre-School Children with Developmental Disabilities

    ERIC Educational Resources Information Center

    Hsieh, Hsieh-Chun

    2008-01-01

    Toys help children in mastering developmental tasks. This study investigated toy effect on children with developmental disabilities as they engage in using ordinary and adaptive toys. A single-subject design was used to identify the effects on their toy play abilities. Differences in toy effects between playing ordinary and adaptive toys were…

  14. Solving Developmental Tasks in Adolescents with a Chronic Physical Illness or Physical/Sensory Disability: A Meta-Analysis

    ERIC Educational Resources Information Center

    Pinquart, Martin; Pfeiffer, Jens P.

    2015-01-01

    Chronic illnesses and disabilities may impair the attainment of age-typical developmental tasks, such as forming relationships with peers and gaining autonomy. Based on a systematic search in electronic databases and cross-referencing, 447 quantitative empirical studies were included which compared the attainment of developmental tasks of…

  15. Mental Retardation and Developmental Disabilities (MRDD) Branch. NICHD Report to the NACHHD Council

    ERIC Educational Resources Information Center

    National Institute of Child Health and Human Development (NICHD), 2005

    2005-01-01

    This document is the quadrennial report of the Mental Retardation and Developmental Disabilities (MRDD) Branch to the National Advisory Child Health and Human Development (NACHHD) Council. The MRDD Branch is a vital, evolving entity within the Center for Developmental Biology and Perinatal Medicine (CDBPM) at the National Institute of Child …

  16. The Experiences of Latino Siblings of Children with Developmental Disabilities

    PubMed Central

    Kao, Barbara; Romero-Bosch, Lilia; Plante, Wendy; Lobato, Debra

    2011-01-01

    Objective This qualitative study explored the experiences of Latino siblings of children with developmental disabilities. Methods Parents and typically developing siblings from 15 Latino families with a child with a developmental disability participated in separate interviews. Results Using Consensual Qualitative Research methodology (Hill, Thompson, & Williams, 1997), domains reflecting siblings’ relationships, emotional experiences, and communication about the disability were identified. The child’s need for caregiving was a prominent topic in the sibling and parent narratives. Parents reported concerns about siblings’ experience of differential treatment whereas siblings reported concerns about restricted social activities because of their brother/sister. Conclusions Including multiple informants revealed commonalities and differences in parents’ and siblings’ perspectives on the impact of a child’s disability. The importance of considering sibling adaptation in sociocultural context is discussed. PMID:21651613

  17. Evaluation of An Activities of Daily Living Scale for Adolescents and Adults with Developmental Disabilities

    PubMed Central

    Maenner, Matthew J; Smith, Leann E; Hong, Jinkuk; Makuch, Renee; Greenberg, Jan S; Mailick, Marsha R

    2012-01-01

    Background Activity limitations are an important and useful dimension of disability, but there are few validated measures of activity limitations for adolescents and adults with developmental disabilities. Objective/Hypothesis To describe the development of the Waisman Activities of Daily Living (W-ADL) Scale for adolescents and adults with developmental disabilities, and systematically evaluate its measurement properties according to an established set of criteria. Methods The W-ADL was administered among four longitudinally-studied groups of adolescents and adults with developmental disabilities: 406 with autism; 147 with fragile-X syndrome; 169 with Down syndrome, and 292 with intellectual disability of other or unknown origin. The W-ADL contains 17 activities and each is rated on a 3-point scale (0=“does not do at all”, 1=“does with help”, 2=“independent”), and a standard set of criteria were used to evaluate its measurement properties. Results Across the disability groups, Cronbach’s alphas ranged from 0.88 to 0.94, and a single-factor structure was most parsimonious. The W-ADL was reliable over time, with weighted kappas between 0.92 and 0.93. Criterion and construct validity were supported through substantial associations with the Vineland Screener, need for respite services, caregiving burden, and competitive employment. No floor or ceiling effects were present. There were significant group differences in W-ADL scores by maternally-reported level of intellectual disability (mild, moderate, severe, profound). Conclusions The W-ADL exceeded the recommended threshold for each quality criterion the authors evaluated. This freely-available tool is an efficient measure of activities of daily living for surveys and epidemiological research concerning adolescents and adults with developmental disabilities. PMID:23260606

  18. Comparing Acquisition of Exchange-Based and Signed Mands with Children with Autism

    ERIC Educational Resources Information Center

    Barlow, Kathryn E.; Tiger, Jeffrey H.; Slocum, Sarah K.; Miller, Sarah J.

    2013-01-01

    Therapists and educators frequently teach alternative-communication systems, such as picture exchanges or manual signs, to individuals with developmental disabilities who present with expressive language deficits. Michael (1985) recommended a taxonomy for alternative communication systems that differentiated between selection-based systems in…

  19. 45 CFR 1386.103 - Discovery.

    Code of Federal Regulations, 2010 CFR

    2010-10-01

    ... Welfare Regulations Relating to Public Welfare (Continued) OFFICE OF HUMAN DEVELOPMENT SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES THE ADMINISTRATION ON DEVELOPMENTAL DISABILITIES, DEVELOPMENTAL DISABILITIES PROGRAM FORMULA GRANT PROGRAMS Practice and Procedure for Hearings Pertaining to States...

  20. The Psychiatric Assessment Schedule for Adult with Developmental Disability (PAS-ADD) Checklist: Reliability and Validity of French Version

    ERIC Educational Resources Information Center

    Gerber, F.; Carminati, G. Galli

    2013-01-01

    Background: The lack of psychometric measures of psychopathology especially in intellectual disabilities (ID) population was addressed by creation of the Psychiatric Assessment Schedule for Adult with Developmental Disability (PAS-ADD-10) in Moss et?al. This schedule is a structured interview designed for professionals in psychopathology. The…

  1. Examining Emerging Strategies to Prevent Sexual Violence: Tailoring to the Needs of Women with Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    Stevens, Bethany

    2012-01-01

    Sexual violence (SV) negatively impacts women with disabilities disproportionately, especially those with intellectual and/or developmental disabilities (IDD). The 2 populations are included in this article as there are overlaps in diagnostic criteria as well as similar risk factors associated with the experience of SV. Despite lacking…

  2. Preparation of Social Workers to Support People with Developmental Disabilities

    ERIC Educational Resources Information Center

    Laws, Jason; Parish, Susan L.; Scheyett, Anna M.; Egan, Christopher

    2010-01-01

    We examine how well schools of social work prepare students to work with people with developmental disabilities (DD). Using websites of 50 U.S. schools of social work, we examine their curricula to determine the number and nature of disability studies courses. We examine tenure-line faculty to identify potential for current staff to expand DD…

  3. Coping of Siblings of Children with Developmental Disabilities in the Bedouin Community

    ERIC Educational Resources Information Center

    Manor-Binyamini, Iris; Abu-Ajaj, Othman

    2012-01-01

    This is the first study that examines the coping of siblings of children with developmental disabilities in comparison with siblings of children without disabilities in the Bedouin community in Israel. For this purpose, the study examines the components of self-esteem, stress, and growth. Data were collected from 200 adolescents. The findings of…

  4. Menstrual Support for Females with Developmental Disabilities: Survey and Interview of Parents or Caretakers

    ERIC Educational Resources Information Center

    Park, Hye Ran

    2013-01-01

    Menstruation is a difficult topic to address with as females with or without disabilities. It is a more significant challenge for females with developmental disabilities (DD) because it stimulates a variety of physical and psychological changes. Thus, some females with DD might have a qualitatively different experience compared to the general…

  5. Parental Appraisal of the Family Impact of Childhood Developmental Disability: Times of Sadness and Times of Joy

    ERIC Educational Resources Information Center

    Trute, Barry; Hiebert-Murphy, Diane; Levine, Kathryn

    2007-01-01

    Background: Parental positive and negative appraisals of the family impact of childhood disability are tested as early predictors of parental self-esteem and overall family adjustment in households with young children with intellectual and developmental disabilities. Method: Within 103 Canadian families, 103 mothers and 55 fathers independently…

  6. Antipsychotic Use and Metabolic Monitoring in Individuals with Developmental Disabilities Served in a Medicaid Medical Home

    ERIC Educational Resources Information Center

    Ruiz, Lisa M.; Damron, Mackenzie; Jones, Kyle B.; Weedon, Dean; Carbone, Paul S.; Bakian, Amanda V.; Bilder, Deborah A.

    2016-01-01

    This study describes antipsychotic use and metabolic monitoring rates among individuals with developmental disabilities enrolled in a subspecialty medical home (N = 826). Four hundred ninety-nine participants (60.4%) were taking antipsychotics, which was associated with male gender (p = 0.01), intellectual disability with and without autism…

  7. Effects of Functional Communication Training (FCT) on the Communicative, Self-Initiated Toileting Behavior for Students with Developmental Disabilities in a School Setting

    ERIC Educational Resources Information Center

    Kim, Jinnie

    2012-01-01

    Far less is known about the effects of functional communication-based toileting interventions for students with developmental disabilities in a school setting. Furthermore, the currently available toileting interventions for students with disabilities include some undesirable procedures such as the use of punishment, unnatural clinic/university…

  8. Project: "Teach 'n' Reach" Learning Handicapped: Developmentally Disabled, Learning Disabled. (Book 3 out of 4.)

    ERIC Educational Resources Information Center

    Kagan, Arleen

    The fourth of five volumes (and the third of four curriculum guides) in the Project Teach 'n' Reach series presents curriculum suggestions to help regular classroom teachers teach nondisabled students about learning handicaps. The developmentally disabled are considered in terms of anatomical structures of the brain, etiology, definition, sensory…

  9. A Review of Behavioral Interventions for the Treatment of Aggression in Individuals with Developmental Disabilities

    ERIC Educational Resources Information Center

    Brosnan, Julie; Healy, Olive

    2011-01-01

    Aggression can present as a significant problem behavior in individuals with a diagnosis of developmental disability. Much research has focused on the prevalence of aggression in individuals with varying degrees of severity of intellectual disability (AD), autism spectrum disorders (ASD) and co-morbidity of ID and ASD. Research has also focused on…

  10. Using Ipad Applications to Increase Literacy Skills for Children Prek to Grade 3 with Disabilities

    ERIC Educational Resources Information Center

    Stone-MacDonald, Angi

    2015-01-01

    This article, intended to inform educators on how to use iPad apps for literacy development for young children with developmental disabilities, briefly reviews the literature on iPad apps for literacy development, examines key apps for literacy development for children with developmental disabilities, and discusses how to incorporate iPad apps…

  11. Kentucky Disability Resource Manual: A Handbook of Program Descriptions, Eligibility Criteria, and Contact Information. Updated

    ERIC Educational Resources Information Center

    Human Development Institute, 2016

    2016-01-01

    This manual was designed primarily for use by individuals with developmental disabilities and related conditions. It is hoped that it is also useful for families, as well as service coordinators and providers who directly assist families and individuals with developmental disabilities. The focus of this manual is to provide easy-to-read…

  12. Kentucky Disability Resource Manual: A Handbook of Program Descriptions, Eligibility Criteria, and Contact Information

    ERIC Educational Resources Information Center

    Human Development Institute, 2010

    2010-01-01

    This manual was designed primarily for use by individuals with developmental disabilities and related conditions. It is hoped that it is also useful for families, as well as service coordinators and providers who directly assist families and individuals with developmental disabilities. The main focus of this manual is to provide easy-to-read…

  13. A Delphi Study on Staff Bereavement Training in the Intellectual and Developmental Disabilities Field

    ERIC Educational Resources Information Center

    Gray, Jennifer A.; Truesdale, Jesslyn

    2015-01-01

    The Delphi technique was used to obtain expert panel consensus to prioritize content areas and delivery methods for developing staff grief and bereavement curriculum training in the intellectual and developmental disabilities (IDD) field. The Delphi technique was conducted with a panel of 18 experts from formal and informal disability caregiving,…

  14. Patterns of Time Processing Ability in Children with and without Developmental Disabilities

    ERIC Educational Resources Information Center

    Janeslatt, Gunnel; Granlund, Mats; Kottorp, Anders; Almqvist, Lena

    2010-01-01

    Background: Children with developmental disabilities, e.g. intellectual disability or autism, are reported to have problems in time perception, time orientation or time management, i.e. in time-processing ability (TPA). The aim was to investigate whether the problems described are diagnosis specific or reflect differences in age or in level of…

  15. "Something You Have to Do"--Why Do Parents of Children with Developmental Disabilities Seek a Differential Diagnosis?

    ERIC Educational Resources Information Center

    Watson, Shelley L.

    2008-01-01

    This basic interpretive study addressed the reasons why parents seek a differential diagnosis for their child who has a developmental disability. Fourteen parents were interviewed about why they sought a label for the disabilities of their child. Participants included six parents of children with identified genetic conditions, three parents of…

  16. Chromosomal Microarray With Clinical Diagnostic Utility in Children With Developmental Delay or Intellectual Disability.

    PubMed

    Lee, Jin Sook; Hwang, Hee; Kim, Soo Yeon; Kim, Ki Joong; Choi, Jin Sun; Woo, Mi Jung; Choi, Young Min; Jun, Jong Kwan; Lim, Byung Chan; Chae, Jong Hee

    2018-09-01

    Chromosomal microarray (CMA) testing is a first-tier test for patients with developmental delay, autism, or congenital anomalies. It increases diagnostic yield for patients with developmental delay or intellectual disability. In some countries, including Korea, CMA testing is not yet implemented in clinical practice. We assessed the diagnostic utility of CMA testing in a large cohort of patients with developmental delay or intellectual disability in Korea. We conducted a genome-wide microarray analysis of 649 consecutive patients with developmental delay or intellectual disability at the Seoul National University Children's Hospital. Medical records were reviewed retrospectively. Pathogenicity of detected copy number variations (CNVs) was evaluated by referencing previous reports or parental testing using FISH or quantitative PCR. We found 110 patients to have pathogenic CNVs, which included 100 deletions and 31 duplications of 270 kb to 30 Mb. The diagnostic yield was 16.9%, demonstrating the diagnostic utility of CMA testing in clinic. Parental testing was performed in 66 patients, 86.4% of which carried de novo CNVs. In eight patients, pathogenic CNVs were inherited from healthy parents with a balanced translocation, and genetic counseling was provided to these families. We verified five rarely reported deletions on 2p21p16.3, 3p21.31, 10p11.22, 14q24.2, and 21q22.13. This study demonstrated the clinical utility of CMA testing in the genetic diagnosis of patients with developmental delay or intellectual disability. CMA testing should be included as a clinical diagnostic test for all children with developmental delay or intellectual disability. © The Korean Society for Laboratory Medicine.

  17. Stereotyped behavior of severely disabled children in classroom and free-play settings.

    PubMed

    Thompson, T J; Berkson, G

    1985-05-01

    The relationships between stereotyped behavior, object manipulation, self-manipulation, teacher attention, and various developmental measures were examined in 101 severely developmentally disabled children in their classrooms and a free-play setting. Stereotyped behavior without objects was positively correlated with self-manipulation and CA and was negatively correlated with complex object manipulation, developmental age, developmental quotient, and teacher attention. Stereotyped behavior with objects was negatively correlated with complex object manipulation. Partial correlations showed that age, self-manipulation, and developmental age shared unique variance with stereotyped behavior without objects.

  18. Identifying Medication Management Smartphone App Features Suitable for Young Adults With Developmental Disabilities: Delphi Consensus Study

    PubMed Central

    Salgado, Teresa M; Fedrigon, Alexa; Riccio Omichinski, Donna; Meade, Michelle A

    2018-01-01

    Background Smartphone apps can be a tool to facilitate independent medication management among persons with developmental disabilities. At present, multiple medication management apps exist in the market, but only 1 has been specifically designed for persons with developmental disabilities. Before initiating further app development targeting this population, input from stakeholders including persons with developmental disabilities, caregivers, and professionals regarding the most preferred features should be obtained. Objective The aim of this study was to identify medication management app features that are suitable to promote independence in the medication management process by young adults with developmental disabilities using a Delphi consensus method. Methods A compilation of medication management app features was performed by searching the iTunes App Store, United States, in February 2016, using the following terms: adherence, medication, medication management, medication list, and medication reminder. After identifying features within the retrieved apps, a final list of 42 features grouped into 4 modules (medication list, medication reminder, medication administration record, and additional features) was included in a questionnaire for expert consensus rating. A total of 52 experts in developmental disabilities, including persons with developmental disabilities, caregivers, and professionals, were invited to participate in a 3-round Delphi technique. The purpose was to obtain consensus on features that are preferred and suitable to promote independence in the medication management process among persons with developmental disabilities. Consensus for the first, second, and third rounds was defined as ≥90%, ≥80%, and ≥75% agreement, respectively. Results A total of 75 responses were received over the 3 Delphi rounds—30 in the first round, 24 in the second round, and 21 in the third round. At the end of the third round, cumulative consensus was achieved for 60% (12/20) items in the medication list module, 100% (3/3) in the medication reminder module, 67% (2/3) in the medication administration record module, and 63% (10/16) in the additional features module. In addition to the medication list, medication reminder, and medication administration record features, experts selected the following top 3 most important additional features: automatic refills through pharmacies; ability to share medication information from the app with providers; and ability to share medication information from the app with family, friends, and caregivers. The top 3 least important features included a link to an official drug information source, privacy settings and password protection, and prescription refill reminders. Conclusions Although several mobile apps for medication management exist, few are specifically designed to support persons with developmental disabilities in the complex medication management process. Of the 42 different features assessed, 64% (27/42) achieved consensus for inclusion in a future medication management app. This study provides information on the features of a medication management app that are most important to persons with developmental disabilities, caregivers, and professionals. PMID:29792292

  19. De novo variants in EBF3 are associated with hypotonia, developmental delay, intellectual disability, and autism.

    PubMed

    Tanaka, Akemi J; Cho, Megan T; Willaert, Rebecca; Retterer, Kyle; Zarate, Yuri A; Bosanko, Katie; Stefans, Vikki; Oishi, Kimihiko; Williamson, Amy; Wilson, Golder N; Basinger, Alice; Barbaro-Dieber, Tina; Ortega, Lucia; Sorrentino, Susanna; Gabriel, Melissa K; Anderson, Ilse J; Sacoto, Maria J Guillen; Schnur, Rhonda E; Chung, Wendy K

    2017-11-01

    Using whole-exome sequencing, we identified seven unrelated individuals with global developmental delay, hypotonia, dysmorphic facial features, and an increased frequency of short stature, ataxia, and autism with de novo heterozygous frameshift, nonsense, splice, and missense variants in the Early B-cell Transcription Factor Family Member 3 ( EBF3 ) gene. EBF3 is a member of the collier/olfactory-1/early B-cell factor (COE) family of proteins, which are required for central nervous system (CNS) development. COE proteins are highly evolutionarily conserved and regulate neuronal specification, migration, axon guidance, and dendritogenesis during development and are essential for maintaining neuronal identity in adult neurons. Haploinsufficiency of EBF3 may affect brain development and function, resulting in developmental delay, intellectual disability, and behavioral differences observed in individuals with a deleterious variant in EBF3 . © 2017 Tanaka et al.; Published by Cold Spring Harbor Laboratory Press.

  20. A three-dimensional object orientation detector assisting people with developmental disabilities to control their environmental stimulation through simple occupational activities with a Nintendo Wii Remote Controller.

    PubMed

    Shih, Ching-Hsiang; Chang, Man-Ling; Mohua, Zhang

    2012-01-01

    This study evaluated whether two people with developmental disabilities would be able to actively perform simple occupational activities to control their preferred environmental stimulation using a Nintendo Wii Remote Controller with a newly developed three-dimensional object orientation detection program (TDOODP, i.e. a new software program, which turns a Wii Remote Controller into a three-dimensional object orientation detector). An ABAB design, in which A represented the baseline and B represented intervention phases, was adopted in this study. The data shows that the performance of both participants has significantly increased (i.e. they perform more simple occupational activities to activate the control system to produce environmental stimulation) during the intervention phases. The practical and developmental implications of the findings are discussed. Copyright © 2011 Elsevier Ltd. All rights reserved.

  1. Interactive augmented reality using Scratch 2.0 to improve physical activities for children with developmental disabilities.

    PubMed

    Lin, Chien-Yu; Chang, Yu-Ming

    2015-02-01

    This study uses a body motion interactive game developed in Scratch 2.0 to enhance the body strength of children with disabilities. Scratch 2.0, using an augmented-reality function on a program platform, creates real world and virtual reality displays at the same time. This study uses a webcam integration that tracks movements and allows participants to interact physically with the project, to enhance the motivation of children with developmental disabilities to perform physical activities. This study follows a single-case research using an ABAB structure, in which A is the baseline and B is the intervention. The experimental period was 2 months. The experimental results demonstrated that the scores for 3 children with developmental disabilities increased considerably during the intervention phrases. The developmental applications of these results are also discussed. Copyright © 2014 Elsevier Ltd. All rights reserved.

  2. Children with developmental disabilities at a pediatric hospital: staff education to prevent and manage challenging behaviors.

    PubMed

    Johnson, Norah L; Lashley, Joel; Stonek, Alice V; Bonjour, Annette

    2012-12-01

    Children with developmental disabilities may get frustrated in unpredictable hospital environments. Frustration may escalate to challenging behaviors, which are a safety concern and may contribute to staff and patient injuries, use of restraints, and procedure delay or cancelations. The purpose of this article was to describe a pilot staff education program on preventing and managing challenging behaviors of children with developmental disabilities at a pediatric hospital. The 2-hour-long education (1 hour on-line and 1 hour instructor led) content focused on family-centered care and communication skills, including verbal judo™ modified for use in the health care setting. Participants in the instructor-led sessions reported improved knowledge and decreased fear about caring for children with developmental disabilities. Relationships of the education and fewer staff injuries, fewer canceled procedures, and decreased use of restraints merit further study. Copyright © 2012 Elsevier Inc. All rights reserved.

  3. Mouse Models for Down Syndrome-Associated Developmental Cognitive Disabilities

    PubMed Central

    Liu, Chunhong; Belichenko, Pavel V.; Zhang, Li; Fu, Dawei; Kleschevnikov, Alexander M.; Baldini, Antonio; Antonarakis, Stylianos E.; Mobley, William C.; Yu, Y. Eugene

    2011-01-01

    Down syndrome (DS) is mainly caused by the presence of an extra copy of human chromosome 21 (Hsa21) and is a leading genetic cause for developmental cognitive disabilities in humans. The mouse is a premier model organism for DS because the regions on Hsa21 are syntenically conserved with three regions in the mouse genome, which are located on mouse chromosome 10 (Mmu10), Mmu16 and Mmu17. With the advance of chromosomal manipulation technologies, new mouse mutants have been generated to mimic DS at both the genotypic and phenotypic levels. Further mouse-based molecular genetic studies in the future may lead to the unraveling of the mechanisms underlying DS-associated developmental cognitive disabilities, which would lay the groundwork for developing effective treatments for this phenotypic manifestation. In this review, we will discuss recent progress and future challenges in modeling DS-associated developmental cognitive disability in mice with an emphasis on hippocampus-related phenotypes. PMID:21865664

  4. Ripple effects of developmental disabilities and mental illness on nondisabled adult siblings.

    PubMed

    Wolfe, Barbara; Song, Jieun; Greenberg, Jan S; Mailick, Marsha R

    2014-05-01

    Developmental disabilities and severe mental illness are costly to the affected individual and frequently to their family as well. Little studied are their nondisabled siblings. Here we examine major life course outcomes (education, employment, and marriage) of these siblings in adulthood using data from the Wisconsin Longitudinal Study. Our sample comprises 113 individuals with developmental disabilities and 337 of their nondisabled siblings; 97 individuals with mental illness and 235 of their nondisabled siblings; and 17,126 unaffected comparison group members. We find that siblings of individuals with mental illness have less education and less employment than the unaffected comparison group, whereas those who have a sibling with developmental disabilities had normative patterns of education and employment, but less marriage and more divorce. Robustness tests incorporating genetic data do not change the conclusions based on the nongenetic analyses. Copyright © 2014 Elsevier Ltd. All rights reserved.

  5. The social context of parenting 3-year-old children with developmental delay in the UK.

    PubMed

    Emerson, E; Graham, H; McCulloch, A; Blacher, J; Hatton, C; Llewellyn, G

    2009-01-01

    Children with intellectual or developmental disability have significantly poorer health and mental health than their non-disabled peers and are at high risk of social exclusion. The aim of the present paper is to provide information on the circumstances in which 3-year-old children at risk of intellectual or developmental disability are growing up in the UK. Secondary analysis of data on 12 689 families in English-speaking monolingual households from the first two waves of the UK's Millennium Cohort Study. A total of 440 children (3% of the weighted sample) were identified as being developmentally delayed. When compared with other children, children with developmental delays were more disadvantaged on every indicator of social and economic disadvantage examined. Two out of three children with developmental delays had been exposed to repeated disadvantage as measured by income poverty, material hardship, social housing and receipt of means-tested benefits. The effect of repeated disadvantage on the risk of developmental delay remained after account was taken of parental education and occupational status. Young children with delayed development in the UK are likely to be exposed to repeated socio-economic disadvantage. Implications for policy and understanding the nature of the link between poverty and child disability are discussed.

  6. What Are Intellectual and Developmental Disabilities (IDDs)?

    MedlinePlus

    ... characterized by problems with both: Intellectual functioning or intelligence, which include the ability to learn, reason, problem ... cord, and nervous system function, which can affect intelligence and learning. These conditions can also cause other ...

  7. HIV Infection Legal Issues: An Introduction for Developmental Services. Technical Report on Developmental Disabilities and HIV Infection, Number 2.

    ERIC Educational Resources Information Center

    Harvey, David C.; Decker, Curtis L.

    As agencies and programs serving individuals with developmental disabilities are called upon to serve a new population of individuals with human immunodeficiency virus (HIV) infection, they will be forced to confront complex legal questions. This paper discusses the legal frameworks in which individuals with HIV infection are considered eligible…

  8. Safety Training for the Developmentally Disabled in Icon Recognition for the Safe Use of Hazardous Chemicals

    ERIC Educational Resources Information Center

    Sandoz, Jeff

    2005-01-01

    This unique document is a training manual for individuals such as job coaches and janitorial crew supervisors who train and work with Developmentally Disabled (DD) workers in vocational classrooms and on job sites. These workers need to be taught the importance of safety in the workplace using methods appropriate to their developmental needs. The…

  9. Emplotting children's lives: developmental delay vs. disability.

    PubMed

    Landsman, Gail

    2003-05-01

    While it is increasingly possible to envision "perfect" babies, it is not always the case that reproduction actually proceeds according to individual will; for example, there has been no recent reduction in rates of childhood disability. Nevertheless, in most studies of new reproductive technologies, the birth of those children whom few would actively choose-"defective" or disabled infants-is presented only in hypothetical terms. This paper argues for expanding the domain of reproduction to include research on the parenting of children with disabilities. Based on a qualitative research project carried out at a hospital-based newborn follow-up program that serves as an evaluation site determining eligibility for early intervention services for infants and young children with disabilities, this paper focuses on a particular part of women's experience of acquiring new knowledge about personhood and disability, that is, on the period of time when a woman has recently had confirmed that reproduction has, in her case, gone awry. Disability in many cultures, including the United States, diminishes personhood. I suggest that American mothers' narratives, by utilizing the concept of developmental delay, can assert personhood, or rather, the potential for its future attainment; in doing so, they justify ongoing nurturance of a disabled child in spite of negative attitudes about disability. A particular case of one mother's emplotment of her child's life within a story of developmental delay, in competition with the physician's story of disability, is analyzed. The paper concludes with reflections on how stories of developmental delay told by mothers just encountering a diagnosis of disability may differ from the stories told by those who have experienced mothering a disabled child over time, and on the implications of these differences for the cultural construction of personhood in the United States.

  10. Predicting Mental Health among Mothers of School-Aged Children with Developmental Disabilities: The Relative Contribution of Child, Maternal and Environmental Factors

    ERIC Educational Resources Information Center

    Bourke-Taylor, Helen; Pallant, Julie F.; Law, Mary; Howie, Linsey

    2012-01-01

    Aim: Many mothers of children with developmental disabilities are known to experience high levels of stress, and compromised mental health. Research is crucial to better understand and assist mothers with compromised mental health, and ultimately better service families raising and supporting a child with a disability. Method: Data were collected…

  11. Quality of Life of Families with Children Who Have Severe Developmental Disabilities: A Comparison Based on Child Residence

    ERIC Educational Resources Information Center

    McFelea, Joni Taylor; Raver, Sharon

    2012-01-01

    This study measured the quality of life of two groups of families with children who had severe developmental disabilities-families whose child lived at home and families whose child lived in a residential facility. Participants were 54 primary caregivers of children who had severe intellectual disabilities and who lacked the ability to both…

  12. The Role of Community Rehabilitation Providers in Employment for Persons with Intellectual and Developmental Disabilities: Results of the 2010-2011 National Survey

    ERIC Educational Resources Information Center

    Domin, Daria; Butterworth, John

    2013-01-01

    Based on the 2010-2011 National Survey of Community Rehabilitation Providers, findings are presented on people with all disabilities and people with intellectual and developmental disabilities (IDD) who are served in employment and nonwork settings by community rehabilitation providers. Findings suggest little change over the past eight years in…

  13. Kentucky Disability Resource Manual: A Handbook of Program Descriptions, Eligibility Criteria, and Contact Information. Updated December 2013

    ERIC Educational Resources Information Center

    Human Development Institute, 2013

    2013-01-01

    This updated manual was designed primarily for use by individuals with developmental disabilities and related conditions. It is hoped that it is also useful for families, as well as service coordinators and providers who directly assist families and individuals with developmental disabilities. The main focus of this manual is to provide…

  14. Use of a UDL Literacy Environment by Middle School Students with Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    Coyne, Peggy; Evans, Miriam; Karger, Joanne

    2017-01-01

    Universal Design for Learning (UDL) has been shown to have benefits for students with disabilities. However, little is known about its potential to support literacy for students with intellectual and developmental disabilities (IDD). This qualitative study explored (a) to what extent students with IDD are able to use Udio, an online UDL literacy…

  15. Parents' perception of the quality of life of preschool children at risk or having developmental disabilities.

    PubMed

    Lau, Ka-Ming; Chow, Susanna M K; Lo, Sing Kai

    2006-09-01

    Despite increased concern for the health related quality of life (HRQOL) of people with disabilities, little is known about the HRQOL of children with developmental disabilities. The present study aimed to explore the HRQOL of children who were at risk or having developmental disabilities in Hong Kong. Using the parent-reported Chinese Pediatric Quality of Life Inventory (PedsQL), the HRQOL of 173 children (2-4 years) with signs of delays in development was contrasted with that of 132 children with typical development. We found that those who exhibited high risk of developing a developmental disability had significantly lower overall well-being (76.3 +/- 13.7 vs. 84.2 +/- 11.3; p<0.001) and psychosocial health (71.3 +/- 15.6 vs. 82.5 +/- 12.9; p<0.001) but not necessarily physical health. The findings are consistent with previous findings in children with different disabilities and chronic illnesses. They suggest children at risk or having DDs need help in restoring their quality of life up to the standard experienced by their healthy peers, particular in psychosocial aspects such as social functioning, emotion functioning, and school functioning.

  16. Parental perceptions of barriers to physical activity in children with developmental disabilities living in Trinidad and Tobago.

    PubMed

    Njelesani, Janet; Leckie, Karen; Drummond, Jennifer; Cameron, Deb

    2015-01-01

    Parents have a strong influence on their child's engagement in physical activities, especially for children with developmental disabilities, as these children are less likely to initiate physical activity. Knowledge is limited regarding parents' perceptions of this phenomenon in low- and middle-income countries (LMICs); yet many rehabilitation providers work with children with developmental disabilities and their parents in these contexts. The aim of this study was to explore the barriers perceived by parents of children with developmental disabilities to their children's engagement in physical activity. An occupational perspective was used to explore how parents speak about barriers to their child's engagement in physical activity. Interviews were conducted with nine parents in Port-of-Spain, Trinidad and Tobago. Parent's perceived barriers were categorized into four themes: family priorities, not an option in our environment, need to match the activity to the child's ability, and need for specialized supports. FINDINGS provide opportunities for future rehabilitation and community programming in LMICs. Implications for Rehabilitation Children living with a developmental disability may engage more in solitary and sedentary pursuits as a result of parents choosing activities that do not present extensive social and physical demands for their child. Therapists can play an important role in providing knowledge to parents of appropriate physical activity and the benefits of physical activity for children with developmental disabilities in order to promote children's participation. In environments where there is limited social support for families, therapists need to consider and be particularly supportive of parental priorities and schedules.

  17. Unmet Health Services Needs Among US Children with Developmental Disabilities: Associations with Family Impact and Child Functioning.

    PubMed

    Lindly, Olivia J; Chavez, Alison E; Zuckerman, Katharine E

    To determine associations of unmet needs for child or family health services with (1) adverse family financial and employment impacts and (2) child behavioral functioning problems among US children with autism spectrum disorder (ASD), developmental delay (DD), and/or intellectual disability (ID). This was a secondary analysis of parent-reported data from the 2009 to 2010 National Survey of Children with Special Health Care Needs linked to the 2011 Survey of Pathways to Diagnosis and Services. The study sample (n = 3,518) represented an estimated 1,803,112 US children aged 6 to 17 years with current ASD, DD, and/or ID (developmental disabilities). Dependent variables included adverse family financial and employment impacts, as well as child behavioral functioning problems. The independent variables of interest were unmet need for (1) child health services and (2) family health services. Multivariable logistic regression models were fit to examine associations. Unmet need for child and family health services, adverse family financial and employment impacts, and child behavioral functioning problems were prevalent among US children with developmental disabilities. Unmet needs were associated with an increased likelihood of adverse family employment and financial impacts. Unmet needs were associated with an increased likelihood of child behavioral functioning problems the following year; however, this association was not statistically significant. Unmet needs are associated with adverse impacts for children with developmental disabilities and their families. Increased access to and coordination of needed health services following ASD, DD, and/or ID diagnosis may improve outcomes for children with developmental disabilities and their families.

  18. Handbook of Developmental Disabilities

    ERIC Educational Resources Information Center

    Odom, Samuel L., Ed.; Horner, Robert H., Ed.; Snell, Martha E., Ed.; Blacher, Jan, Ed.

    2007-01-01

    This authoritative handbook reviews the breadth of current knowledge about developmental disabilities: neuroscientific and genetic foundations; the impact on health, learning, and behavior; and effective educational and clinical practices. Leading authorities analyze what works in intervening with diverse children and families, from infancy…

  19. 42 CFR 51.2 - Definitions.

    Code of Federal Regulations, 2010 CFR

    2010-10-01

    ... protection and advocacy program under Part C of the Developmental Disabilities Assistance and Bill of Rights... HEALTH SERVICE, DEPARTMENT OF HEALTH AND HUMAN SERVICES GRANTS REQUIREMENTS APPLICABLE TO THE PROTECTION... means the Administration on Developmental Disabilities within the Administration for Children and...

  20. Rural Services.

    ERIC Educational Resources Information Center

    Miller, Jon, Ed.; And Others

    Presented are 10 papers resulting from a workshop, involving representatives from 33 state developmental disabilities councils, designed to examine common problems and issues confronting developmentally disabled citizens in rural areas. Entries include the following titles and authors: "Who, What, and Where--Studying Prevalence of Developmental…

  1. Community Based Competitive Employment Preparation of Developmentally Disabled Persons: A Program Description and Evaluation.

    ERIC Educational Resources Information Center

    Stodden, Robert A.; Browder, Phyllis Meighen

    1986-01-01

    Success in competitive employment placement of a demonstration project serving 53 persons with developmental disabilities is associated with three factors: (1) training approach and methodology; (2) program management; and (3) trainee characteristics. (CL)

  2. Accreditation of Developmental Disabilities Programs.

    ERIC Educational Resources Information Center

    Hemp, Richard; Braddock, David

    1988-01-01

    Data gathered from 296 agency accreditation surveys, conducted by the Accreditation Council on Services for People with Developmental Disabilities, were analyzed, focusing on ownership, services provided, size of residential units, critical standards, characteristics of individuals served, and accreditation outcome. Redundancies between private…

  3. Management of Developmentally Disabled Children with Chronic Infections.

    ERIC Educational Resources Information Center

    Andersen, Richard D.

    1988-01-01

    The nature of chronic infections in developmentally disabled children is reviewed, along with appropriate management strategies for care providers and implications for other children. Discussed are herpes simplex virus, cytomegalovirus, hepatitis B virus, and human immunodeficiency virus. (Author/JDD)

  4. Are survivors of childhood cancer with an unfavourable psychosocial developmental trajectory more likely to apply for disability benefits?

    PubMed

    Maurice-Stam, H; Verhoof, E J; Caron, H N; Grootenhuis, M A

    2013-03-01

    The aim of this study was to investigate whether an unfavourable psychosocial developmental trajectory while growing up with childhood cancer is related to a smaller likelihood of labour participation in adult life. A total of 53 childhood cancer survivors (CCS) with and 313 CCS without disability benefits, and 508 peers from the general Dutch population (reference group) completed the Course of Life Questionnaire (CoLQ) about the achievement of psychosocial developmental milestones. Differences between the three groups were tested by conducting analysis of variance with contrasts (scale scores CoLQ) and logistic regression analysis (individual milestones). Effect sizes and odds ratios were calculated. Compared with the reference group, both CCS with and CCS without benefits reported lower scale scores with respect to social and psychosexual development. CCS with disability benefits had lower social (d = - 0.6; p < 0.001) and psychosexual (d = -0.4; p < 0.01) scale scores than the CCS without disability benefits. CCS with disability benefits scored less favourably (p < 0.01) than peers from the general population on 14 out of 22 psychosocial milestones whereas the number was only six for those without disability benefits. CCS with an unfavourable developmental trajectory while growing up were more likely to apply for disability benefits in adulthood than CCS with a more favourable development. Early recognition and support are warranted. Further research is needed on risk factors of application for disability benefits. In addition, research should show whether stimulating the achievement of developmental milestones while growing up will create conditions for a better labour market position. Copyright © 2011 John Wiley & Sons, Ltd.

  5. In their own words: the place of faith in the lives of young people with autism and intellectual disability.

    PubMed

    Liu, Eleanor X; Carter, Erik W; Boehm, Thomas L; Annandale, Naomi H; Taylor, Courtney E

    2014-10-01

    Abstract Although the prominence of spirituality and religious connections among the people of the United States is well documented, little is known about the place of faith in the lives of youth with developmental disabilities. In this qualitative interview study, we examined the perspectives of 20 young people with intellectual disability or autism on their faith, spiritual expressions, and disability. Participants identified key spiritual expressions and themes reflecting the importance of faith in their lives. They also shared perceptions of their disability in the context of their faith, highlighting affirmation and acceptance of their disability. We offer recommendations to families, faith communities, and service systems for supporting the spiritual formation, expression, and connections of young people with disabilities.

  6. Neuropsychological Aspects of Developmental Dyscalculia.

    ERIC Educational Resources Information Center

    Shalev, R. S.; Manor, O.; Gross-Tsur, V.

    1997-01-01

    Classification of arithmetic disorders is predicated on neuropsychological features and associated learning disabilities. Assesses the compatibility of these classifications on a nonreferred, population-based cohort of children (N=139) with developmental dyscalculia. Concludes that children with dyscalculia and disabilities in reading and/or…

  7. 45 CFR 1385.5 - [Reserved

    Code of Federal Regulations, 2010 CFR

    2010-10-01

    ... 45 Public Welfare 4 2010-10-01 2010-10-01 false [Reserved] 1385.5 Section 1385.5 Public Welfare Regulations Relating to Public Welfare (Continued) OFFICE OF HUMAN DEVELOPMENT SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES THE ADMINISTRATION ON DEVELOPMENTAL DISABILITIES, DEVELOPMENTAL DISABILITIES...

  8. 45 CFR 1385.7 - [Reserved

    Code of Federal Regulations, 2010 CFR

    2010-10-01

    ... 45 Public Welfare 4 2010-10-01 2010-10-01 false [Reserved] 1385.7 Section 1385.7 Public Welfare Regulations Relating to Public Welfare (Continued) OFFICE OF HUMAN DEVELOPMENT SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES THE ADMINISTRATION ON DEVELOPMENTAL DISABILITIES, DEVELOPMENTAL DISABILITIES...

  9. 45 CFR 1388.8 - [Reserved

    Code of Federal Regulations, 2010 CFR

    2010-10-01

    ... 45 Public Welfare 4 2010-10-01 2010-10-01 false [Reserved] 1388.8 Section 1388.8 Public Welfare Regulations Relating to Public Welfare (Continued) OFFICE OF HUMAN DEVELOPMENT SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES THE ADMINISTRATION ON DEVELOPMENTAL DISABILITIES, DEVELOPMENTAL DISABILITIES...

  10. Pharmacotherapy in the Developmental Disabilities: New Developments.

    ERIC Educational Resources Information Center

    Aman, Michael G.

    1991-01-01

    This paper identifies and evaluates emerging developments in the behavioral pharmacotherapy of people with developmental disabilities, including such medications as the opiate antagonists, fenfluramine, beta adrenergic blockers, buspirone, antipsychotics, amantadine hydrochloride, and antilibidinal drugs. The need for more well-designed drug…

  11. Why reinvent the wheel? A behaviour analyst's reflections on pedagogy for inclusion for students with intellectual and developmental disability.

    PubMed

    Dillenburger, Karola

    2012-06-01

    The number of children identified as having intellectual or developmental disability is rising worldwide and their education has been found wanting. It has been said that "they simply need better teaching." At the same time, there is an increasing evidence base that pedagogy that is based on the discipline of behaviour analysis offers the best prospect for individuals diagnosed with autism spectrum disorders. On the basis of this evidence, it is proposed that behaviour analysis should be applied more broadly to improve teaching for all children with intellectual or developmental disability.

  12. Evaluation of short term effects of the IROMEC robotic toy for children with developmental disabilities.

    PubMed

    Klein, Tanja; Gelderblom, Gert Jan; de Witte, Luc; Vanstipelen, Silvie

    2011-01-01

    Research shows a reduced playfulness in children with developmental disabilities. This is a barrier for participation and children's health and wellbeing. IROMEC is a purposely designed robot to support play in impaired children. The reported study evaluates short-term effects of the IROMEC robot toy supporting play in an occupational therapy intervention for children with developmental disabilities. Two types of play intervention (standard occupational therapy versus robot-facilitated play intervention) were compared regarding their effect on the level of playfulness, on children's general functional development, goal achievement as well as the therapist's evaluation of the added value of a robot-facilitated play intervention. Three young children took part in this single-subject design study. Evaluation was performed through Test of Playfulness (ToP), the IROMEC evaluation questionnaire and qualitative evaluation by the therapists. Results confirmed the IROMEC robot did partly meet the needs of the children and therapists, and positive impact on TOP results was found with two children. This suggests robotic toys can support children with developmental disabilities in enriching play. Long term effect evaluation should verify these positive indications resulting from use of this innovative social robot for children with developmental disabilities. But it also became clear further development of the robot is required. © 2011 IEEE

  13. Intellectual developmental disorders: towards a new name, definition and framework for "mental retardation/intellectual disability" in ICD-11.

    PubMed

    Salvador-Carulla, Luis; Reed, Geoffrey M; Vaez-Azizi, Leila M; Cooper, Sally-Ann; Martinez-Leal, Rafael; Bertelli, Marco; Adnams, Colleen; Cooray, Sherva; Deb, Shoumitro; Akoury-Dirani, Leyla; Girimaji, Satish Chandra; Katz, Gregorio; Kwok, Henry; Luckasson, Ruth; Simeonsson, Rune; Walsh, Carolyn; Munir, Kemir; Saxena, Shekhar

    2011-10-01

    Although "intellectual disability" has widely replaced the term "mental retardation", the debate as to whether this entity should be conceptualized as a health condition or as a disability has intensified as the revision of the World Health Organization (WHO)'s International Classification of Diseases (ICD) advances. Defining intellectual disability as a health condition is central to retaining it in ICD, with significant implications for health policy and access to health services. This paper presents the consensus reached to date by the WHO ICD Working Group on the Classification of Intellectual Disabilities. Literature reviews were conducted and a mixed qualitative approach was followed in a series of meetings to produce consensus-based recommendations combining prior expert knowledge and available evidence. The Working Group proposes replacing mental retardation with intellectual developmental disorders, defined as "a group of developmental conditions characterized by significant impairment of cognitive functions, which are associated with limitations of learning, adaptive behaviour and skills". The Working Group further advises that intellectual developmental disorders be incorporated in the larger grouping (parent category) of neurodevelopmental disorders, that current subcategories based on clinical severity (i.e., mild, moderate, severe, profound) be continued, and that problem behaviours be removed from the core classification structure of intellectual developmental disorders and instead described as associated features.

  14. Limited access to special education services for school-aged children with developmental delay.

    PubMed

    Twardzik, Erica; Smit, Ellen; Hatfield, Bridget; Odden, Michelle C; Dixon-Ibarra, Alicia; MacDonald, Megan

    2018-01-01

    Current policy in Oregon limits eligibility of children diagnosed with developmental delay for school-based services. Due to eligibility definitions, children with developmental delay may face additional barriers transitioning from early intervention/early childhood special education into school-based special education services. Examine the relationship between enrollment in school-based special education programs given a change in primary disability diagnosis. Logistic regression models were fit for children who enrolled in early intervention/early childhood special education services with a primary disability diagnosis of developmental delay and changed primary disability diagnosis before third grade (n=5076). Odds of enrollment in future special education were greater in children with a change in primary disability diagnosis after the age of five in comparison to children that had a change in primary disability diagnosis before the age of five, while adjusting for demographic characteristics (adjusted odds ratio: 2.37, 95% CI 1.92, 2.92). Results suggest that children who are diagnosed with a developmental delay and exit early childhood special education due to maximum age of eligibility are more likely to enroll in special education compared to children without a gap in service access. Gaps in service access during early development are associated with the need for supportive services later on in life. Copyright © 2017 Elsevier Ltd. All rights reserved.

  15. Improving student dentist competencies and perception of difficulty in delivering care to children with developmental disabilities using a virtual patient module.

    PubMed

    Kleinert, Harold L; Sanders, Carla; Mink, John; Nash, David; Johnson, Jeff; Boyd, Sara; Challman, Sandra

    2007-02-01

    An interactive, multimedia, virtual patient module was designed and developed on compact disc (CD-ROM) to address the need for student dentists to increase their competence and decrease their perception of difficulty in caring for children with developmental disabilities. A development team consisting of pediatric dentistry faculty members, parents of children with developmental disabilities, an individual with a developmental disability, and educational specialists developed an interactive virtual patient case. The case involved a ten-year-old child with Down syndrome presenting with a painful tooth. Student dentists were required to make decisions regarding proper interactions with the child, as well as appropriate clinical procedures throughout the case. Differences in perceived difficulty level and knowledge change were measured, as well as the student dentists' overall satisfaction with the learning experience. Significant results were obtained in both perceived difficulty level and knowledge-based measures for student dentists. Participants reported overall satisfaction with the modules. Preparing student dentists to provide sensitive and competent care for children with developmental disabilities is a critical need within dentistry. This study demonstrated that an interactive, multimedia (CD-ROM), virtual patient learning module for student dentists is potentially an effective tool in meeting this need.

  16. Mutational Analysis of Cell Types in TSC

    DTIC Science & Technology

    2008-01-01

    disability, and autism . TSC1/TSC2 gene mutations lead to developmental alterations in brain structure known as tubers in over 80% of TSC patients. Loss of...that is associated with epilepsy, cognitive disability, and autism . TSC1/TSC2 gene mutations lead to developmental alterations in brain structure...2000). Comorbid neuropsychological disorders such as autism , mental retardation (MR), pervasive developmental disorder, attention deficit disorder (ADD

  17. Sociocultural studies of families of children with intellectual disabilities.

    PubMed

    Skinner, Debra; Weisner, Thomas S

    2007-01-01

    This article reviews recent sociocultural studies of families of children with intellectual disabilities to introduce the range of research conducted from this perspective and to highlight the methodological, conceptual, and theoretical contributions of this approach to the study of mental retardation. Sociocultural studies examine families within their cultural, historical, and sociopolitical contexts. This type of research is comparative across different cultural groups, but is not limited to such comparisons. Sociocultural studies use varied theories and methods, but they share a focus on families' coproduction of meanings and practices related to intellectual disability; families' responses and adaptations to disability; and how their understandings and experiences are shaped within larger social institutions and inequities. Sociocultural approaches take into account community contexts that matter to families with members with mental retardation or developmental delay, and they examine the broader systems that define and position individuals with disabilities and their families. As a whole, these studies provide a more experiential and holistic view of families' beliefs and adaptations within sociopolitical worlds, and offer new tools by which to study the families of children with developmental delays within and across different cultural groups. (c) 2007 Wiley-Liss, Inc.

  18. Effects of Post-School Options Instruction on Knowledge of Options and Ability to Orally Present Post-School Goals for High School Students with Developmental Disabilities

    ERIC Educational Resources Information Center

    Bartholomew, Audrey

    2012-01-01

    The study examined the effects of teaching presentation skills and post-school options to three high school students with developmental disabilities. While previous research has indicated students with learning disabilities can learn both academic and life skills within the same activity (Collins, Hager, & Galloway, 2011; Falkenstine, Collins,…

  19. Risk Factors of Children Who Exited from an Early Intervention Program without an Identified Disability and Returned with a Developmental Disability

    ERIC Educational Resources Information Center

    Giannoni, Peggy P.; Kass, Philip H.

    2010-01-01

    A retrospective cohort study was undertaken to identify risk factors for children at greatest risk of delayed diagnosis of developmental disability. Two thousand four hundred and thirty-nine children were selected for this study due to their participation in the California Early Start (ES) Program in 1998. Comparisons were made among children that…

  20. Job Burnout amongst the Institutional Caregivers Working with Individuals with Intellectual and Developmental Disabilities: Utilization of the Chinese Version of the Copenhagen Burnout Inventory Survey

    ERIC Educational Resources Information Center

    Lin, Lan-Ping; Lin, Jin-Ding

    2013-01-01

    Burnout has been considered important to understand the well-being of people who work with individuals with intellectual disabilities (ID) and developmental disabilities (DD). To identify personal and workplace characteristics associated with burnout, this study aimed to utilize the Chinese version of the Copenhagen Burnout Inventory to provide a…

  1. Concurrent Medical Conditions and Health Care Use and Needs among Children with Learning and Behavioral Developmental Disabilities, National Health Interview Survey, 2006-2010

    ERIC Educational Resources Information Center

    Schieve, Laura A.; Gonzalez, Vanessa; Boulet, Sheree L.; Visser, Susanna N.; Rice, Catherine E.; Braun, Kim Van Naarden; Boyle, Coleen A.

    2012-01-01

    Studies document various associated health risks for children with developmental disabilities (DDs). Further study is needed by disability type. Using the 2006-2010 National Health Interview Surveys, we assessed the prevalence of numerous medical conditions (e.g. asthma, frequent diarrhea/colitis, seizures), health care use measures (e.g. seeing a…

  2. Preventing behavioural and emotional problems in children who have a developmental disability: a public health approach.

    PubMed

    Mazzucchelli, Trevor G; Sanders, Matthew R

    2011-01-01

    Children with developmental disabilities are at substantially greater risk of developing emotional and behavioural problems compared to their typically developing peers. While the quality of parenting that children receive has a major effect on their development, empirically supported parenting programs reach relatively few parents. A recent trend in parenting intervention research has been the adoption of a public health approach to improve the quality of parenting at a population level. This has involved delivering parenting interventions on a large scale and in a cost-effective manner. Such trials have been demonstrated to reduce negative parenting practices, prevent child maltreatment, and reduce child behavioural and emotional problems. However, these trials have been restricted to parents of children who are developing typically. This paper explores the rational for the extension of a population health approach to parenting interventions for children with developmental disabilities. It is argued that a population-based implementation and evaluation trial of an empirically supported system of interventions is needed to determine whether this approach is viable and can have a positive impact on parents and their children in a disability context. The Stepping Stones Triple P--Positive Parenting Program is presented as an example of a parenting intervention that satisfies the requirements for such a trial. Tasks and challenges of such a trial are discussed. Copyright © 2011 Elsevier Ltd. All rights reserved.

  3. The Service System's Hidden Places: Adult Homes and Room and Board Homes Housing People with Developmental Disability and Psychiatric Labels in Onondaga County. Final Edition.

    ERIC Educational Resources Information Center

    Racino, Julie Ann; And Others

    The paper describes adult homes and room and board homes serving persons with disabilities in Onondaga County, New York. Visits were made to eight adult homes and five room and board homes. Briefly considered are ownership and licensing regulations, referrals, and admission criteria. Observations at the homes are offered. Concerns are raised about…

  4. Development of the Supported Decision Making Inventory System.

    PubMed

    Shogren, Karrie A; Wehmeyer, Michael L; Uyanik, Hatice; Heidrich, Megan

    2017-12-01

    Supported decision making has received increased attention as an alternative to guardianship and a means to enable people with intellectual and developmental disabilities to exercise their right to legal capacity. Assessments are needed that can used by people with disabilities and their systems of supports to identify and plan for needed supports to enable decision making. This article describes the steps taken to develop such an assessment tool, the Supported Decision Making Inventory System (SDMIS), and initial feedback received from self-advocates with intellectual disability. The three sections of the SDMIS (Supported Decision Making Personal Factors Inventory, Supported Decision Making Environmental Demands Inventory, and Decision Making Autonomy Inventory) are described and implications for future research, policy, and practice are discussed.

  5. 45 CFR 1388.4 - Program criteria-governance and administration.

    Code of Federal Regulations, 2010 CFR

    2010-10-01

    ... DEVELOPMENT SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES THE ADMINISTRATION ON DEVELOPMENTAL DISABILITIES, DEVELOPMENTAL DISABILITIES PROGRAM THE UNIVERSITY AFFILIATED PROGRAMS § 1388.4 Program criteria—governance and... integral part of, a university and promote the independence, productivity, integration, and inclusion of...

  6. 76 FR 81504 - Submission for OMB Review; Comment Request

    Federal Register 2010, 2011, 2012, 2013, 2014

    2011-12-28

    .... 15004) of the Developmental Disabilities Assistance and Bill of Rights Act of 2000 (DD Act of 2000... DEPARTMENT OF HEALTH AND HUMAN SERVICES Administration for Children and Families Submission for OMB Review; Comment Request Title: University Centers for Excellence in Developmental Disabilities...

  7. Food Insecurity Among Young Adults With Intellectual and Developmental Disabilities in the United States: Evidence From the National Health Interview Survey.

    PubMed

    Brucker, Debra L; Nord, Derek

    2016-11-01

    People with intellectual or developmental disabilities (IDD) face higher levels of poverty than others, which can lead to concerns regarding areas of well-being, such as food security. Young adults with IDD who are, in many cases, transitioning from the system of educational, health care, and income supports of their youth into the adult world may be particularly vulnerable. Using pooled data from the 2011-2014 National Health Interview Survey, we find that young adults with IDD have significantly higher levels of food insecurity than young adults without disabilities, even when controlling for poverty. Young adults with IDD who are living in low-income households are not significantly more likely to participate in the Supplemental Nutrition Assistance Program (SNAP) than young adults without disabilities who are also living in low-income households. Although our results suggest that SNAP is effectively reaching many young adults with IDD in need of nutrition assistance, further research is needed to determine the specific effects of food insecurity and SNAP participation on overall economic and health outcomes for this population.

  8. A longitudinal study of employment and skill acquisition among individuals with developmental disabilities.

    PubMed

    Stephens, Dawn L; Collins, Michael D; Dodder, Richard A

    2005-01-01

    Recent legislation, especially the Americans with Disabilities Act in 1990, generated the closure of institutions for people with disabilities and inclusion into community residences and employment. It has been well documented that individuals with developmental disabilities often experience difficulties with employment including both obtaining and maintaining jobs, and many researchers have looked for ways to make employment more successful [McConkey, R. & Mezza F. (2001). Employment aspirations of people with learning disabilities attending day centers. Journal of Learning Disabilities, 5(4), 309-318; Stevens, G. (2002). Employers' perceptions and practice in the employability of disabled people: a survey of companies in south east UK. Disability and Society, 17(7), 779-796; Capella, M., Roessler, R., & Hemmeria, K. (2002). Work-related skills awareness in high-school students with disabilities. Journal of Applied Rehabilitation Counseling, 33(2), 17-23; Ingraham, K., Rahimi, M., Tsang, H., Chan, F., & Oulvey, E. (2001). Work support groups in state vocational rehabilitation agency settings: a case study. Psychiatric Rehabilitation Skills, 5(1), 6-21; Gosling, V. & Cotterill, L. (2000). An employment project as a route to social inclusion for people with learning difficulties? Disability and Society, 15(7), 1001-1018; Neitupski, J. & Hamre-Nietupski, S. (2000). A systematic process for carving supported employment positions for people with severe disabilities. Journal of Developmental and Physical Disabilities, 12(2), 103-119]. While research has accumulated that has examined predictors of successful employment, this research assessed longitudinal outcomes of employment. Data were obtained from an existing data set of all known persons receiving services from the Developmental Disabilities Division of the Oklahoma Department of Human Services (N=2760). Results indicated that as people moved to employment, scores on adaptive skills increased, that as people moved from employment, adaptive skills decreased, and that as employment status remained constant, adaptive skills also remained unchanged. No consistent impact was found on challenging behaviors. Type of employment (sheltered, supported, and competitive) was then examined, and the same pattern of changes in adaptive skills was found; i.e., changes in employment to more/less competitive was accompanied by more/less adaptive skills. This suggests that employment itself, especially work in the competitive workforce, may be a significant source of enhancing adaptive skills for people with developmental disabilities and, thus, greatly adding to the success of community living.

  9. Enabling people with developmental disabilities to actively perform designated occupational activities according to simple instructions with a Nintendo Wii Remote Controller by controlling environmental stimulation.

    PubMed

    Shih, Ching-Hsiang; Wang, Shu-Hui; Chang, Man-Ling; Shih, Ching-Hsiang

    2012-01-01

    The latest researches have adopted software technology, turning the Nintendo Wii Remote Controller into a high performance three-dimensional object orientation detector. This study extended Wii Remote Controller functionality to assess whether two people with developmental disabilities would be able to actively perform designated simple occupational activities according to simple instructions by controlling their favorite environmental stimulation using a Nintendo Wii Remote Controller. This study was conducted using ABAB designs. The data showed that both participants significantly increased their target response (performing a designated occupational activity) by activating the control system to produce their preferred environmental stimulation during the intervention phases. Copyright © 2012 Elsevier Ltd. All rights reserved.

  10. Nutritional and dental issues in patients with intellectual and developmental disabilities.

    PubMed

    Ziegler, Jane; Spivack, Evan

    2018-04-01

    People with intellectual and developmental disabilities are among the most disadvantaged and underserved groups of dental patients. Considerable health care disparities for this population have been identified, particularly oral and dental health as well as access to dental care services. People with Down syndrome and cerebral palsy have a variety of nutritional and dental considerations. These people have a higher prevalence of untreated caries and periodontal disease than the general population and may have higher rates of obesity, edentulism, and chronic oral and systemic diseases. Diet choices may affect the oral health and may play an important role in the systemic health of these people. Suggestions to improve and affect dietary intake are provided. Health issues within this population require a holistic approach to care. Concerns about oral health and diet must be addressed to support optimal health. Copyright © 2018 American Dental Association. Published by Elsevier Inc. All rights reserved.

  11. Paradigm shifts in disability and health: toward more ethical public health research.

    PubMed

    McDonald, Katherine E; Raymaker, Dora M

    2013-12-01

    Disability is often considered a health outcome disproportionately experienced by minority groups. It is also possible to view people with disabilities as a minority group that itself experiences health disparities. Calls to reduce these disparities necessitate the inclusion of people with developmental disabilities in research, although resulting ethical issues can thwart scientific progress. Using disability rights principles can help address ethical challenges and promote safe, respectful public health research. Examples include applying human rights frameworks, providing accommodations, attending to power, countering legacies of deficits-based models of disability, and transforming access to science more broadly. Collectively, these strategies can encourage broader engagement in safe, respectful, inclusive public health research aimed at promoting the health and well-being of people with developmental disabilities.

  12. Quality comparison of websites related to developmental disabilities.

    PubMed

    Reichow, Brian; Shefcyk, Allison; Bruder, Mary Beth

    2013-10-01

    The Internet is commonly used to seek health-related information, but little is known about the quality of websites on developmental disabilities. Therefore, we sought to evaluate the characteristics and quality of websites located by searching ten common terms related to developmental disabilities and explore relations between website characteristics and website quality in order to make recommendations on ways to ensure locating good online information. We located 208 unique websites in our November 2012 US searches of Google and Bing. Two independent coders evaluated 10 characteristics of the websites and two different coders assessed the quality of the websites. From the 208 websites, 104 (50%) provided relevant information about the disability being searched. Of these 104 websites, those found to be of highest quality were least likely to be a sponsored result, contain advertisements, be from a for-profit company, and did contain references to peer-reviewed publications or had a top-level domain of .gov or .org. Individuals with developmental disabilities and their family members who choose to obtain disability-related information online should remain vigilant to ensure that they locate high-quality and accurate information and should not replace information obtained from health-care professionals and educational specialists with information found online. Copyright © 2013 Elsevier Ltd. All rights reserved.

  13. Strengthening Grief Support for Children with Developmental Disabilities

    ERIC Educational Resources Information Center

    Sormanti, Mary; Ballan, Michelle S.

    2011-01-01

    Although a sizable literature investigates and describes children's grief, the majority of information focuses on typically developing children. Far less has been published about the loss and grief of children with developmental disabilities (DD), even though this population experiences significant and multiple losses, increasing their…

  14. Developmental Right-Hemisphere Syndrome: Clinical Spectrum of the Nonverbal Learning Disability.

    ERIC Educational Resources Information Center

    Gross-Tsur, Varda; And Others

    1995-01-01

    This study reports clinical characteristics of developmental right-hemisphere syndrome, a nonverbal learning disability, in 20 children (mean age 9.5 years) who also manifested attention-deficit/hyperactivity disorder, graphomotor problems, and slow performance. Diagnostic criteria included emotional and interpersonal difficulties, paralinguistic…

  15. 76 FR 30945 - Submission for OMB Review; Comment Request

    Federal Register 2010, 2011, 2012, 2013, 2014

    2011-05-27

    ... Developmental Disabilities Assistance and Bill of Rights Act, as one basis for providing technical assistance (e... DEPARTMENT OF HEALTH AND HUMAN SERVICES Administration for Children and Families Submission for OMB Review; Comment Request Title: State Developmental Disabilities Council 5-Year State Plan. OMB No...

  16. 76 FR 77836 - Proposed Information Collection Activity; Comment Request

    Federal Register 2010, 2011, 2012, 2013, 2014

    2011-12-14

    ... of the Developmental Disabilities Assistance and Bill of Rights Act. The SF-425, ordinarily mandated... DEPARTMENT OF HEALTH AND HUMAN SERVICES Administration for Children and Families Proposed... Developmental Disabilities Program. OMB No. 0980-0212. Description For the program of the State Councils on...

  17. 76 FR 31614 - Submission for OMB Review; Comment Request

    Federal Register 2010, 2011, 2012, 2013, 2014

    2011-06-01

    ... Developmental Disabilities Assistance and Bill of Rights Act, as one basis for providing technical assistance (e... DEPARTMENT OF HEALTH AND HUMAN SERVICES Administration for Children and Families Submission for OMB Review; Comment Request Title: State Developmental Disabilities Council 5-Year State Plan. OMB No...

  18. Controversial Therapies for Young Children with Developmental Disabilities.

    ERIC Educational Resources Information Center

    Nickel, Robert E.

    1996-01-01

    This article examines reasons parents may choose a controversial alternative treatment for a child with developmental disabilities and reviews a few specific treatments--vitamin B-6 and magnesium, auditory integration training, megavitamins and minerals, Piracetam, intravenous immunoglobulin, and melatonin. Recommendations on talking with families…

  19. Pediatric HIV Infection and Developmental Disabilities.

    ERIC Educational Resources Information Center

    Seidel, John F.

    This paper presents an overview of the developmental disabilities associated with pediatric Human Immunodeficiency Virus (HIV) infection, and examines efficacious practices for assessment and intervention programming. The focus population is early childhood into school age. The paper describes the complex array of challenges presented by these…

  20. Community Inclusion for Children and Youth with Developmental Disabilities.

    ERIC Educational Resources Information Center

    Fennick, Ellen; Royle, James

    2003-01-01

    Activity coaches from university teacher education and health education programs were trained to use individualized accommodations to help six children (ages 6-13) with developmental disabilities participate in community recreation activities. Children participated in swim classes or gymnastics at individualized levels, expressed enjoyment, and…

  1. State health care financing strategies for children with intellectual and developmental disabilities.

    PubMed

    Bachman, Sara S; Comeau, Margaret; Tobias, Carol; Allen, Deborah; Epstein, Susan; Jantz, Kathryn; Honberg, Lynda

    2012-06-01

    We provide the first descriptive summary of selected programs developed to help expand the scope of coverage, mitigate family financial hardship, and provide health and support services that children with intellectual and developmental disabilities need to maximize their functional status and quality of life. State financing initiatives were identified through interviews with family advocacy, Title V, and Medicaid organizational representatives. Results showed that states use myriad strategies to pay for care and maximize supports, including benefits counseling, consumer- and family-directed care, flexible funding, mandated benefits, Medicaid buy-in programs, and Tax Equity and Fiscal Responsibility Act of 1982 funding. Although health reform may reduce variation among states, its impact on families of children with intellectual and developmental disabilities is not yet clear. As health reform is implemented, state strategies to ameliorate financial hardship among families of children with intellectual and developmental disabilities show promise for immediate use. However, further analysis and evaluation are required to understand their impact on family and child well-being.

  2. Comparative Survey of Drug Use in a Community Service System.

    ERIC Educational Resources Information Center

    Zaharia, E. S.; Struxness, L.

    1991-01-01

    Drug use patterns were surveyed in Colorado's community services system for 1,282 individuals with developmental disabilities. A psychotropic drug use rate of 18.6 percent compared favorably to other reported rates and rates in Colorado's institutional settings. Substantial experience with psychotropic and anticonvulsant medications across all…

  3. Pediatric cochlear implants: additional disabilities prevalence, risk factors, and effect on language outcomes.

    PubMed

    Birman, Catherine S; Elliott, Elizabeth J; Gibson, William P R

    2012-10-01

    To determine the prevalence of additional disabilities in a pediatric cochlear population, to identify medical and radiologic conditions associated with additional disabilities, and to identify the effect of additional disabilities on speech perception and language at 12 months postoperatively. Retrospective case review. Tertiary referral center and cochlear implant program. Records were reviewed for children 0 to 16 years old inclusive, who had cochlear implant-related operations over a 12-month period. Diagnostic and rehabilitative. Additional disabilities prevalence; medical history and radiologic abnormalities; and the effect on Categories of Auditory Performance (CAP) score at 12 months postoperatively. Eighty-eight children having 96 operations were identified. The overall prevalence of additional disabilities (including developmental delay, cerebral palsy, visual impairment, autism and attention deficit disorder) was 33%. The main conditions associated with additional disabilities were syndromes and chromosomal abnormalities (87%), jaundice (86%), prematurity (62%), cytomegalovirus (60%), and inner ear abnormalities including cochlea nerve hypoplasia or aplasia (75%) and semicircular canal anomalies (56%). At 12 months postoperatively, almost all (96%) of the children without additional disabilities had a CAP score of 5 or greater (speech), compared with 52% of children with additional disabilities. Children with developmental delay had a median CAP score of 4, at 12 months compared with 6 for those without developmental delay. Additional disabilities are prevalent in approximately a third of pediatric cochlear implant patients. Additional disabilities significantly affect the outcomes of cochlear implants.

  4. Photo-assisted recall increases estimates of energy and macronutrient intake in adults with intellectual and developmental disabilities.

    PubMed

    Ptomey, Lauren T; Herrmann, Stephen D; Lee, Jaehoon; Sullivan, Debra K; Rondon, Mary F; Donnelly, Joseph E

    2013-12-01

    Diet assessment of adults with intellectual and developmental disabilities is challenging because of their limited cognitive abilities. The objective of this study was to examine the feasibility and outcomes of combining photos with 24-hour dietary recalls for the assessment of energy and macronutrient intakes in adults with intellectual and developmental disabilities. Participants used an iPad 2 tablet computer (Apple) to take photos of all food and beverages consumed before a standard, multiple-pass, 24-hour dietary recall. After the standard 24-hour diet recall, the photos were reviewed with the participant for clarification details (eg, portion size) and differences were recorded. The standard 24-hour recall and photo-assisted recall were entered separately into the Nutrition Data System for Research for computerized dietary analysis. Sixty-four eating occasions were entered from 23 participants (48% female; mean age 26.4±9.7 years). Participants captured photos for 66.5%±30.4% of all recorded eating occasions. Greater energy intake per eating occasion was reported with the photo-assisted recalls than the standard recalls (625.6±85.7 kcal vs 497.2±86.6 kcal; P=0.002) and a greater intake of grams of fat (P=0.006), protein (P=0.029), and carbohydrates (P=0.003). Photo-assisted 24-hour recalls provided a significant increase in total calories and macronutrient content compared with a standard 24-hour recall and may be a feasible method to enhance dietary assessment in adults with intellectual and developmental disabilities. Copyright © 2013 Academy of Nutrition and Dietetics. Published by Elsevier Inc. All rights reserved.

  5. Using nursing intervention classification in an advance practice registered nurse-led preventive model for adults aging with developmental disabilities.

    PubMed

    Hahn, Joan Earle

    2014-09-01

    To describe the most frequently reported and the most central nursing interventions in an advance practice registered nurse (APRN)-led in-home preventive intervention model for adults aging with developmental disabilities using the Nursing Intervention Classification (NIC) system. A descriptive data analysis and a market basket analysis were conducted on de-identified nominal nursing intervention data from two home visits conducted by nurse practitioners (NPs) from October 2010 to June 2012 for 80 community-dwelling adults with developmental disabilities, ages 29 to 68 years. The mean number of NIC interventions was 4.7 in the first visit and 6.0 in the second visit and last visit. NPs reported 45 different intervention types as classified using a standardized language, with 376 in Visit One and 470 in Visit Two. Approximately 85% of the sample received the Health education intervention. The market basket analysis revealed common pairs, triples, and quadruple sets of interventions in this preventive model. The NIC nursing interventions that occurred together repeatedly were: Health education, Weight management, Nutrition management, Health screening, and Behavior management. Five NIC interventions form the basis of an APRN-led preventive intervention model for individuals aging with lifelong disability, with health education as the most common intervention, combined with interventions to manage weight and nutrition, promote healthy behaviors, and encourage routine health screening. Less frequently reported NIC interventions suggest the need to tailor prevention to individual needs, whether acute or chronic. APRNs employing prevention among adults aging with developmental disabilities must anticipate the need to focus on health education strategies for health promotion and prevention as well as tailor and target a patient-centered approach to support self-management of health to promote healthy aging in place. These NIC interventions serve not only as a guide for planning preventive interventions, but for designing nursing curricula to reduce health disparities among people with varying learning needs. © 2014 Sigma Theta Tau International.

  6. Disabilities of Arithmetic and Mathematical Reasoning: Perspectives from Neurology and Neuropsychology.

    ERIC Educational Resources Information Center

    Rourke, Byron P.; Conway, James A.

    1997-01-01

    Reviews current research on brain-behavior relationships in disabilities of arithmetic and mathematical reasoning from both a neurological and a neuropsychological perspective. Defines developmental dyscalculia and the developmental importance of right versus left hemisphere integrity for the mediation of arithmetic learning and explores…

  7. Child Abuse and Developmental Disabilities.

    ERIC Educational Resources Information Center

    Grayson, Joann, Ed.; Bartlette, Don

    1992-01-01

    Literature indicating high rates of abuse in this population is reviewed, as is literature indicating high rates of developmental disabilities in child victims of abuse. Problems in data collecting practices are noted. Reasons for these children's greater risk for abuse are identified, including child attributes, stress, parent vulnerabilities,…

  8. Promoting Healthy Aging in Adults with Developmental Disabilities

    ERIC Educational Resources Information Center

    Heller, Tamar; Sorensen, Amy

    2013-01-01

    This article reviews the research on health promotion for adults aging with developmental disabilities. First, it examines barriers to healthy aging, including health behaviors and access to health screenings and services. Second, it reviews the research on health promotion interventions, including physical activity interventions, health education…

  9. 34 CFR 303.111 - State definition of developmental delay.

    Code of Federal Regulations, 2013 CFR

    2013-07-01

    ... child's development; and (b) Specify the level of developmental delay in functioning or other comparable... INFANTS AND TODDLERS WITH DISABILITIES State Eligibility for a Grant and Requirements for a Statewide... to appropriately identify infants and toddlers with disabilities who are in need of services under...

  10. 34 CFR 303.111 - State definition of developmental delay.

    Code of Federal Regulations, 2014 CFR

    2014-07-01

    ... child's development; and (b) Specify the level of developmental delay in functioning or other comparable... INFANTS AND TODDLERS WITH DISABILITIES State Eligibility for a Grant and Requirements for a Statewide... to appropriately identify infants and toddlers with disabilities who are in need of services under...

  11. 34 CFR 303.111 - State definition of developmental delay.

    Code of Federal Regulations, 2012 CFR

    2012-07-01

    ... child's development; and (b) Specify the level of developmental delay in functioning or other comparable... INFANTS AND TODDLERS WITH DISABILITIES State Eligibility for a Grant and Requirements for a Statewide... to appropriately identify infants and toddlers with disabilities who are in need of services under...

  12. Pedestrian Safety Training Curriculum for Persons with Developmental Disabilities.

    ERIC Educational Resources Information Center

    Illinois State Office of the Secretary of State, Springfield.

    This manual provides a suggested curriculum, intended for use in the natural environment, for individualized instruction on street travel skills for adults with developmental disabilities. Suggestions are given for instruction in home or classroom; the community; vocational settings; recreational settings; and special pedestrian situations (for…

  13. Environmental Toxicants and Developmental Disabilities: A Challenge for Psychologists

    ERIC Educational Resources Information Center

    Koger, Susan M.; Schettler, Ted; Weiss, Bernard

    2005-01-01

    Developmental, learning, and behavioral disabilities are a significant public health problem. Environmental chemicals can interfere with brain development during critical periods, thereby impacting sensory, motor, and cognitive function. Because regulation in the United States is based on limited testing protocols and essentially requires proof of…

  14. Direct Support Workforce Development.

    ERIC Educational Resources Information Center

    Impact, 1998

    1998-01-01

    The fourteen brief articles in this theme issue all examine challenges in the development of direct support staff working with people who have developmental disabilities. The articles also include the views of direct support providers and people with developmental disabilities themselves, as well as examples of strategies used by provider agencies…

  15. 77 FR 6566 - Notice of Change in Application Requirements

    Federal Register 2010, 2011, 2012, 2013, 2014

    2012-02-08

    ... Developmental Disabilities Assistance and Bill of Rights Act of 2000 (DD Act) (42 U.S.C. 15002); and Section 509... DEPARTMENT OF HEALTH AND HUMAN SERVICES Administration for Children and Families Notice of Change in Application Requirements AGENCY: Administration on Developmental Disabilities, ACF, HHS. ACTION...

  16. Best and Promising Practices in Developmental Disabilities.

    ERIC Educational Resources Information Center

    Hilton, Alan, Ed.; Ringlaben, Ravic, Ed.

    Twenty-six papers on the education of students with developmental disabilities are divided into 7 sections on: (1) definition and placement; (2) assessment and curriculum; (3) instructional strategies; (4) individual needs; (5) systematic and data-based instruction and management; (6) family involvement and community attitudes; and (7) appropriate…

  17. Autism Spectrum Disorders: A Natural Fit with DDD.

    ERIC Educational Resources Information Center

    Myles, Brenda Smith; Simpson, Richard L.; Babkie, Andrea M.

    2003-01-01

    This position statement from the Critical Issues Committee of the Developmental Disabilities Division of the Council for Exceptional Children focuses on clarifying the place of autism spectrum disorders within the field of developmental disabilities. The representation of concerns relating to autism spectrum disorders by the Developmental…

  18. Measures To Monitor Developmental Disabilities Quality Assurance: A Study of Reliability.

    ERIC Educational Resources Information Center

    Dodder, Richard A.; Foster, Luann H.; Bolin, Brien L.

    1999-01-01

    This study examined the reliability of an instrument used to evaluate services for people with developmental disabilities. Seven types of variables were analyzed: demographic data, residential arrangements, medical needs, adaptive behavior, severity of challenging behavior, frequency of challenging behavior, and the perception that disabled…

  19. Teaching the Special Needs Learner: When Words Are Not Enough

    ERIC Educational Resources Information Center

    Brill, Michelle F.

    2011-01-01

    Extension educators and volunteers provide programs to people of all ages and abilities. This includes individuals with developmental disabilities. Individuals with autism and other developmental disabilities often have difficulty communicating verbally but have strong visual learning skills. This article describes the importance of using visual…

  20. Curriculum for Individuals with a Developmental Disability: An Overview.

    ERIC Educational Resources Information Center

    Palma, Gloria M; And Others

    1993-01-01

    A functional curriculum for individuals who are developmentally disabled was developed at Tohatchi Special Education and Training Center, located within the Navajo Reservation in New Mexico. The curriculum guide includes a contextual framework, extensive background information, and objectives for fine- and gross-motor and language and…

  1. Children with Developmental Disabilities: The Effect of Sound Field Amplification on Word Identification.

    ERIC Educational Resources Information Center

    Flexer, Carol; And Others

    1990-01-01

    Using sound field amplification which increased the intensity of the teacher's voice by 10 decibels, 9 primary-level children with developmental disabilities made fewer errors on a word identification task, were more relaxed, and responded more quickly than without amplification. (Author/JDD)

  2. Employability Project: The Employment of Persons with Developmental Disabilities.

    ERIC Educational Resources Information Center

    Watson, Marge

    The paper describes the efforts of Stepping Stones Growth Center, a vocational training organization which places persons with developmental disabilities into competitive employment. Two programs within Stepping Stones feature training for boat maintenance and janitorial and grounds maintenance. Placement preparation is described in terms of its…

  3. Americans with Developmental Disabilities: Policy Directions for the States.

    ERIC Educational Resources Information Center

    Wright, Barbara; King, Martha P.

    This Task Force report offers recommendations to state legislatures in the following policy areas: early intervention, family support, transition services, community living, supported employment, and funding for persons with developmental disabilities. Stressed is a consumer orientation which focuses on individual and family strengths and needs.…

  4. [Multiplex Ligation - dependent Probe Amplification (MLPA) as a screening test in children with developmental defects and intellectual disability of unknown etiology].

    PubMed

    Laczmańska, Izabela; Jakubiak, Aleksandra; Slęzak, Ryszard; Pesz, Karolina; Stembalska, Agnieszka; Laczmański, Lukasz; Sąsiadek, Maria M; Smigiel, Robert

    2011-01-01

    Developmental delay and intellectual disability are significant medical and social problems which concern 1-3% of population. The etiology remains unknown in over half of the cases. To evaluate the efficiency of MLPA (Multiplex Ligation-dependent Probe Amplification) as a screening test in diagnosis of patients with developmental delay and/or intellectual disability. 313 MLPA tests were performed in 256 patients with developmental delay and/ or intellectual disability with unknown etiology. MLPA test was made after exclusion of genetic disorders possible to diagnose by dysmorphological examination or using specifi c genetic tests. Positive results were confirmed by FISH analysis with appropriate probes. Chromosomal microaberrations were identifi ed in 15 patients (4,8%): deletions of 1p36 in 4 cases, in one case deletion of 22q11.21, 22q13.33, SNRPN1, 4ptel, 6qtel, 7q11.23, 16ptel, 18qtel as well as one ca se of deletion 3ptel/duplication 15qtel; deletion 18qtel/duplication Xqtel, and also duplication 7q11.23. Detail clinical analysis was performed in patients with diagnosed microaberrations in MLPA test. The molecular MLPA test, screening for chromosomal microaberration syndromes, should be performed in each patient with developmental delay and/or intellectual disability of unknown etiology and normal cytogenetic analysis, even if congenital defects and positive familial history do not exist.

  5. Telepsychiatry and Virtual Reality an the Teatment of Patients with Intellectual and Developmental Disabilities.

    PubMed

    Krysta, Krzysztof; Krzystanek, Marek; Cubała, Wiesław J; Wiglusz, Mariusz S; Jakuszkowiak-Wojten, Katarzyna; Gałuszko-Węgielnik, Maria; Czarnowska-Cubała, Monika; Szarmach, Joanna; Włodarczyk, Adam; Janas-Kozik, Małgorzata

    2017-09-01

    Treatment and rehabilitation of people with intellectual and developmental disabilities is a multidisciplinary challenge, which require implementing new attitudes. The use of modern technology solutions like telepsychiatry or virtual reality may be a valuable addition to the traditional methods. The objective of this review was to explore the usability of new technological solutions in this special population of patients. The search in the PubMed was conducted using the following terms: (intellectual disability (Title/Abstract) OR developmental disability OR learning disorder (Title/Abstract)) AND virtual reality (Title/Abstract) OR telepsychiatry OR telemedicine OR e-mental health AND English (lang) AND (1995/01/01(PDAT): 2017/07/31(PDAT)). Telepsychiatry may be a useful tool in situations, when the direct access to professional assistance is limited, in solving particular problems like e.g. managing challenging behavior, also to support patients' parents and for diagnostic and educational purposes. Virtual reality can be a safe and effective method of improving different skills, developing physical fitness, and enriching the ways of spending the leisure time. Using modern technology is a relatively new and promising field in which new ideas may develop to support the already existing services for patients with intellectual and developmental disabilities.

  6. Eliciting perceptions of satisfaction with services and supports from persons with intellectual disability and developmental disabilities: a review of the literature.

    PubMed

    Copeland, S R; Luckasson, R; Shauger, R

    2014-12-01

    Assessing the perceptions of individuals with intellectual disability (ID) and developmental disabilities (DD) is an essential part of evaluating and planning services and an important component of respect for self-direction and autonomy. It can be difficult, however, to assess satisfaction in such a way that individuals with disabilities' actual perceptions of satisfaction are accurately represented because of intellectual and communication difficulties they may have, the restricted range and nature of service systems, and the limitations of strategies used by some researchers. The purpose of this literature review was to systematically examine research studies designed to solicit personal satisfaction information from individuals with ID and DD. We reviewed 29 studies that met inclusion criteria to determine (1) who were participants in the studies, (2) what processes researchers used to obtain opinions and perspectives of persons with ID and DD, and (3) how researchers ensured the credibility, accuracy and voluntariness of participants' responses. Findings revealed that most of the research participants had ID with higher IQs and limited needs for supports. Researchers utilised a variety of processes to elicit perceptions of satisfaction. Most studies employed individual interviews; researchers addressed comprehensibility of questions in a number of ways (e.g. use of visuals, adjusting wording of questions, providing clear examples). Few studies reported training interviewers or taking into account participants' primary language or cultural background. No studies reported educating participants about how to understand the satisfaction information data or how to use it in advocating for more appropriate supports. Assessing the satisfaction with supports and services of individuals with ID and DD is complex particularly for persons with extensive support needs. Continued research using varied conceptual frameworks and new technologies is needed. Also helpful will be teaching persons with disabilities about the assessment process and how to use its results. © 2014 MENCAP and International Association of the Scientific Study of Intellectual and Developmental Disabilities and John Wiley & Sons Ltd.

  7. Replications and Extensions in Arousal Assessment for Sex Offenders with Developmental Disabilities

    ERIC Educational Resources Information Center

    Reyes, Jorge R.; Vollmer, Timothy R.; Hall, Astrid

    2011-01-01

    Three adult male sex offenders with developmental disabilities participated in phallometric assessments that involved repeated measures of arousal when exposed to various stimuli. Arousal assessment outcomes were similar to those obtained by Reyes et al. (2006). Additional data-analysis methods provided further information about sexual…

  8. MSW Programs: Gatekeepers to the Field of Developmental Disabilities

    ERIC Educational Resources Information Center

    Russo-Gleicher, Rosalie J.

    2008-01-01

    This article presents qualitative insights into the roles of master of social work programs in developing student practice interests in working with people with developmental disabilities (DD). Semistructured in-depth interviews were conducted with 24 MSW social workers practicing in the field of DD in the northeastern United States. Participants…

  9. Simple Steps for Teaching Prepositions to Students with Autism and Other Developmental Disabilities

    ERIC Educational Resources Information Center

    Hicks, S. Christy; Rivera, Christopher J.; Patterson, Dawn R.

    2016-01-01

    The acquisition of receptive and expressive language skills by students with autism and developmental disabilities (DD) is often delayed, thus making the process of communicating with others challenging. Some students develop language skills incidentally through conversations with their families and peers, but others require instruction in…

  10. Treatment of Bruxism in Individuals with Developmental Disabilities: A Systematic Review

    ERIC Educational Resources Information Center

    Lang, Russell; White, Pamela J.; Machalicek, Wendy; Rispoli, Mandy; Kang, Soyeon; Aquilar, Jeannie; O'Reilly, Mark; Sigafoos, Jeff; Lancioni, Giulio; Didden, Robert

    2009-01-01

    We reviewed studies involving the treatment of bruxism (i.e., teeth clenching or teeth grinding) in individuals with developmental disabilities. Systematic searches of electronic databases, journals, and reference lists identified 11 studies meeting the inclusion criteria. These studies were evaluated in terms of: (a) participants, (b) procedures…

  11. The Myth of Mental Retardation: Paradigm Shifts, Disaggregation, and Developmental Disabilities.

    ERIC Educational Resources Information Center

    Smith, J. David

    2002-01-01

    This commentary discusses whether the American Association on Mental Retardation should change its name. It argues that the term "mental retardation" should become an historical artifact of the evolution of our thinking about children and adults with developmental disabilities. The plurality of the term "developmental…

  12. Activity Limitations among Young Adults with Developmental Disabilities: A Population-Based Follow-Up Study

    ERIC Educational Resources Information Center

    Braun, Kim Van Naarden; Yeargin-Allsopp, Marshalyn; Lollar, Donald

    2009-01-01

    Developmental disabilities are a heterogeneous group of chronic conditions that may result in substantial activity limitations. The type and number of limitations may vary by impairment characteristics. Economic and social constraints may impact activity limitations beyond those attributable to their impairment. Using the International…

  13. Racial and Ethnic Health Disparities among People with Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    Magaña, Sandra; Parish, Susan; Morales, Miguel A.; Li, Henan; Fujiura, Glenn

    2016-01-01

    Racial and ethnic health disparities are a pervasive public health problem. Emerging research finds similar health disparities among people with intellectual and developmental disabilities (IDD) compared to nondisabled adults. However, few studies have examined racial and ethnic health disparities among adults with IDD. Using national data, we…

  14. Emotional Responsivity in Young Children with Williams Syndrome

    ERIC Educational Resources Information Center

    Fidler, Debbie J.; Hepburn, Susan L.; Most, David E.; Philofsky, Amy; Rogers, Sally J.

    2007-01-01

    The hypothesis that young children with Williams syndrome show higher rates of emotional responsivity relative to other children with developmental disabilities was explored. Performance of 23 young children with Williams syndrome and 30 MA-matched children with developmental disabilities of nonspecific etiologies was compared on an adaptation of…

  15. Meaning of Homeownership for Individuals with Developmental Disabilities: A Qualitative Study

    ERIC Educational Resources Information Center

    Hagner, David; Snow, Judith; Klein, Jay

    2006-01-01

    In-person semi-structured interviews were conducted with 7 homeowners selected by 6 state homeownership programs as representing good examples of homeownership by individuals with developmental disabilities. Recurring themes were found in the choice of a home, advantages and disadvantages of homeownership, handling problems, community…

  16. Advocacy, a Role for DD Councils.

    ERIC Educational Resources Information Center

    Paul, James, L., Ed.; And Others

    The advocacy role of state developmental disabilities councils is examined in the monograph. It is explained that the material was gathered from a 1974 conference in Winter Park, Colorado. Topics addressed include the potential for advocacy, a personal perspective on developmental disabilities from a cerebral palsied adult, planning and evaluating…

  17. Effectiveness of An Essay Writing Strategy for Post-Secondary Students with Developmental Disabilities

    ERIC Educational Resources Information Center

    Woods-Groves, Suzanne; Therrien, William J.; Hua, Youjia; Hendrickson, Jo M.; Shaw, Julia W.; Hughes, Charles A.

    2012-01-01

    This study examined the effectiveness of the ANSWER Strategy (Hughes, Schumaker, & Deshler, 2005) in improving the essay composition skills of post-secondary students with developmental disabilities. The six-step strategy incorporated analyzing essay prompts, creating an outline, generating an essay response, and reviewing the answer. The…

  18. Employment Support Services for Students with Intellectual and Developmental Disabilities Attending Postsecondary Education Programs

    ERIC Educational Resources Information Center

    Petcu, Stefania D.; Chezan, Laura C.; Van Horn, M. Lee

    2015-01-01

    Our purpose in this study is to offer a more comprehensive understanding of how students with intellectual and developmental disabilities attending postsecondary education programs are prepared for competitive employment. Data collected through a national survey indicate that the vocational-related support services offered frequently by…

  19. Developing Peer Supports for College Students with Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    Griffin, Megan M.; Wendel, Kelly F.; Day, Tammy L.; McMillan, Elise D.

    2016-01-01

    Many postsecondary education programs for students with intellectual and developmental disabilities (IDD) provide support to these students by matching them with peer mentors. Though this practice is widely used, the scholarly literature offers little information about successful peer support models in higher education settings. To address this…

  20. Predictors of Psychology Graduate Student Interest in the Field of Developmental Disabilities

    ERIC Educational Resources Information Center

    Viecili, Michelle A.; MacMullin, Jennifer A.; Weiss, Jonathan A.; Lunsky, Yona

    2010-01-01

    This study examined predictors of interest in the future provision of clinical services to people with developmental disabilities by Canadian graduate students in psychology. Utilizing a cross-sectional survey, 458 psychology students from clinical, clinical neuropsychology, and counseling psychology programs from across Canada provided…

  1. Nutrition and Feeding for the Developmentally Disabled: "A How-To Manual."

    ERIC Educational Resources Information Center

    Heinrichs, Eberhard; Rokusek, Cecilia

    This educational manual, an interdisciplinary effort of professionals throughout South Dakota, is intended to serve as a practical guidebook of ideas to better serve the nutritional needs of the developmentally disabled population. The manual addresses: dietary aids for specific disorders; appropriate foods or supplements for optimal nutrition;…

  2. Effects of Staff Implementation of a Choice Program on Challenging Behaviors in Persons with Developmental Disabilities.

    ERIC Educational Resources Information Center

    Ip, Sau M. V.; And Others

    1994-01-01

    Describes quasiexperimental investigation constructed to examine effects of staff implementation of choice program on reduction of challenging behaviors of people with developmental disabilities residing in supported community residences. Results suggest that choice program implementation produced significant decreases in frequency and severity of…

  3. Computerised Attention Training for Children with Intellectual and Developmental Disabilities: A Randomised Controlled Trial

    ERIC Educational Resources Information Center

    Kirk, Hannah E.; Gray, Kylie M.; Ellis, Kirsten; Taffe, John; Cornish, Kim M.

    2016-01-01

    Background: Children with intellectual and developmental disabilities (IDD) experience heightened attention difficulties which have been linked to poorer cognitive, academic and social outcomes. Although, increasing research has focused on the potential of computerised cognitive training in reducing attention problems, limited studies have…

  4. Self-Directed Workplace Literacy Distance Learning for Developmental Disabilities Workers. Final Report.

    ERIC Educational Resources Information Center

    Denny, Verna Haskins

    The Self-Directed Workplace Literacy Distance Learning Project demonstrated a model workplace literacy program that helped direct care workers in state-operated developmental disabilities facilities improve their literacy skills for a changing workplace. During the project, 268 New York State Office of Mental Retardation and Developmental…

  5. Assessment of Deviant Arousal in Adult Male Sex Offenders with Developmental Disabilities

    ERIC Educational Resources Information Center

    Reyes, Jorge R.; Vollmer, Timothy R.; Sloman, Kimberly N.; Hall, Astrid; Reed, Robert; Jansen, Greg; Carr, Sam; Jackson, Kevin; Stoutimore, Michael

    2006-01-01

    Ten individuals, residing in a treatment facility specializing in the rehabilitation of sex offenders with developmental disabilities, participated in an arousal assessment involving the use of the penile plethysmograph. The arousal assessments involved measuring change in penile circumference to various categories of stimuli both appropriate…

  6. Groups for Parents with Developmental Disabilities.

    ERIC Educational Resources Information Center

    Johnson, Paul L.

    The Parent Group Development Program was established to provide information and support for parents with developmental disabilities. Parent group activities focused on offering information about child development (through a guessing game in which behavior was matched to one of four age groups) and meal planning and budgeting (with a task that…

  7. Social Skills Training: A Three-Pronged Approach for Developmentally Disabled Adolescents and Young Adults.

    ERIC Educational Resources Information Center

    Coyne, Phyllis

    The document is designed to provide practical information for teachers, parents, group home workers, work activity personnel, and others interested in developing social interaction skills and appropriate social behaviors in developmentally disabled adolescents and young adults. An introductory section discusses social problems of the…

  8. Adapting Evidence-Based Interventions for Students with Developmental Disabilities

    ERIC Educational Resources Information Center

    Gilmore, Linda; Campbell, Marilyn; Shochet, Ian

    2016-01-01

    Students with developmental disabilities have many challenges with learning and adaptive behaviour, as well as a higher prevalence rate of mental health problems. Although there is a substantial body of evidence for effcacious interventions for enhancing resilience and promoting mental health in typically developing children, very few programs…

  9. Inclusion through Work and Productivity for Persons with Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    Lysaght, Rosemary; Petner-Arrey, Jami; Howell-Moneta, Angela; Cobigo, Virginie

    2017-01-01

    Background: Employment provides an important avenue to social inclusion for most adults. A range of productivity options exist for persons with intellectual and developmental disabilities (IDD) who wish to work, each offering unique challenges relative to inclusion. Methods: This qualitative study examined the productivity experiences of people…

  10. In-Home Respite Care Program Development. Background. Coordinator's Manual. Training Manual.

    ERIC Educational Resources Information Center

    Parham, J. D.; And Others

    This volume consists of a background discussion, coordinator's manual, and training manual dealing with developing programs for the in-home respite care (IHRC) of the developmentally disabled. Addressed in the background information unit are the nature of developmental disabilities; program variables, planning, and funding; and practical…

  11. "Ganando Confianza": Research Focus Groups with Immigrant Mexican Mothers

    ERIC Educational Resources Information Center

    Hausmann-Stabile, Carolina; Zayas, Luis H.; Runes, Sandra; Abenis-Cintron, Anna; Calzada, Esther

    2011-01-01

    Immigrant families with children with developmental disabilities must be served using culturally sensitive approaches to service and research to maximize treatment benefits. In an effort to better understand cultural issues relevant to the provision of parenting programs for immigrant Mexican mothers of children with developmental disabilities, we…

  12. National Study of Public Spending for Mental Retardation and Developmental Disabilities.

    ERIC Educational Resources Information Center

    Braddock, David; And Others

    1987-01-01

    Results of a nationwide study of public mental retardation/developmental disabilities spending in the states during Fiscal Years 1977 through 1986 were analyzed and identified trends such as continuing growth in spending for community services, contraction of total spending for institutional operations, and predominance of support for intermediate…

  13. Psychotropic Medication Adherence among Community-Based Individuals with Developmental Disabilities and Mental Illness

    ERIC Educational Resources Information Center

    Tan, Xi; Marshall, Vincent D.; Balkrishnan, Rajesh; Patel, Isha; Chang, Jongwha; Erickson, Steven R.

    2015-01-01

    Psychotropic medications are a common treatment for mental illness in people with developmental disabilities. Medication adherence is a critical determinant of the effectiveness of psychotropic drugs, but psychotropic medication adherence research specific to this population remains limited. This retrospective study analyzed Marketscan®…

  14. Oral Care for Developmentally Disabled Children: The Primary Dentition Stage.

    ERIC Educational Resources Information Center

    Kenny, David J.; Judd, Peter L.

    1988-01-01

    Developmental disabilities and chronic illness can impact the oral health of children in the preeruptive and primary dentition stages. The article covers prevention and management of dental caries; gingival changes; trauma to the primary dentition; sucking, swallowing, and mastication; extraorally fed patients; and factitial injuries. Home-care…

  15. Family Perspectives on Integrated Employment for Adults with Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    Gilson, Carly B.; Carter, Erik W.; Bumble, Jennifer L.; McMillan, Elise D.

    2018-01-01

    Families are essential partners in efforts to elevate the employment outcomes of adults with intellectual and developmental disabilities (IDD). We examined the employment-related expectations, preferences, and concerns of 673 parents and other family members of adults with IDD. Participants prioritized paid integrated employment over sheltered…

  16. The Down Syndrome Advantage: Fact or Fiction?

    ERIC Educational Resources Information Center

    Corrice, April M.; Glidden, Laraine Masters

    2009-01-01

    The "Down syndrome advantage" is the popular conception that children with Down syndrome are easier to rear than children with other developmental disabilities. We assessed whether mothers of children with developmental disabilities would demonstrate a consistent Down syndrome advantage as their children aged from 12 to 18 years. Results did not…

  17. Pica in Persons with Developmental Disabilities: Characteristics, Diagnosis, and Assessment

    ERIC Educational Resources Information Center

    Matson, Johnny L.; Belva, Brian; Hattier, Megan A.; Matson, Michael L.

    2011-01-01

    Pica is a very serious and often life threatening problem which occurs largely in persons with developmental disabilities. The topic has received sporadic attention from researchers for several decades. This paper reviews definitions, diagnostic implications, causes, prevalence, and assessment methods that have been described in the research…

  18. Generalization Procedures in Training Interventionists for Individuals with Developmental Disabilities

    ERIC Educational Resources Information Center

    Gianoumis, Stamatios; Sturmey, Peter

    2012-01-01

    The literature pertaining to training staff, parents, and peers to implement interventions for individuals with developmental disabilities was reviewed for training procedures that incorporated strategies to promote generalization. The search engines for the "Journal of Applied Behavior Analysis" and Pubmed[C] were used to find relevant studies.…

  19. 75 FR 65494 - Award of Three Single-Source Expansion Supplements to The University of Colorado Health Sciences...

    Federal Register 2010, 2011, 2012, 2013, 2014

    2010-10-25

    ... and inclusion of people with intellectual and developmental disabilities in all facets of community... and inclusion of people with intellectual and developmental disabilities in all facets of community..., The University of Massachusetts (Institute for Community Inclusion) in Boston, MA, and The University...

  20. Social Inclusion and Community Participation of Individuals with Intellectual/Developmental Disabilities

    ERIC Educational Resources Information Center

    Amado, Angela Novak; Stancliffe, Roger J.; McCarron, Mary; McCallion, Philip

    2013-01-01

    As more individuals with intellectual/developmental disabilities are physically included in community life, in schools, neighborhoods, jobs, recreation, and congregations, the challenge of going beyond physical inclusion to true social inclusion becomes more apparent. This article summarizes the status of the research about community participation…

  1. 78 FR 2997 - Agency Information Collection Activities; Submission for OMB Review; Comment Request: University...

    Federal Register 2010, 2011, 2012, 2013, 2014

    2013-01-15

    ... INFORMATION: Section 104 (42 U.S.C. 15004) of the Developmental Disabilities Assistance and Bill of Rights Act... DEPARTMENT OF HEALTH AND HUMAN SERVICES Administration for Community Living Agency Information... Developmental Disabilities Education, Research, and Service--Annual Report AGENCY: Administration for Community...

  2. Children with Developmental Disabilities and Sleep Problems: Parental Beliefs and Treatment Acceptability

    ERIC Educational Resources Information Center

    Keenan, Ruth A.; Wild, Matt R.; McArthur, Irene; Espie, Colin A.

    2007-01-01

    Background: This exploratory study investigated the relationships between illness beliefs and treatment acceptability among parents of children with a developmental disability living at home who had sleep onset or maintenance problems. Materials and Methods: A within-subject correlational design was employed. The parents of 58 children each…

  3. A Quality Framework for Personalised Residential Supports for Adults with Developmental Disabilities

    ERIC Educational Resources Information Center

    Cocks, E.; Boaden, R.

    2011-01-01

    Background: The Personalised Residential Supports (PRS) Project provided detailed information about the nature, purposes and outcomes of PRS from the perspectives of key stakeholder groups including people with developmental disabilities, family members and service providers. Although these forms of support have developed over the past two…

  4. Lead Abatement and Prevention of Developmental Disabilities.

    ERIC Educational Resources Information Center

    Chiang, Vico

    1999-01-01

    Reviews the literature on "safe" levels of lead in children and their association with developmental disabilities. It concludes that lead pollution in Australia, especially the Lake Macquarie area of New South Wales, continues to be a problem, that the current standard "safe" level should be reexamined, and that a…

  5. Feeding Disorders in Children with Developmental Disabilities.

    ERIC Educational Resources Information Center

    Schwarz, Steven M.

    2003-01-01

    This article describes an approach to evaluating and managing feeding disorders in children with developmental disabilities and examines effects of these management strategies on growth and clinical outcomes. A structured approach is stressed and a diagnostic and treatment algorithm is presented. Use with 79 children found that diagnostic-specific…

  6. Overcoming Barriers to the Sexual Expression of Women with Developmental Disabilities.

    ERIC Educational Resources Information Center

    Stinson, Jennifer; Christian, LeeAnn; Dotson, Lori Ann

    2002-01-01

    This article discusses barriers to sexual fulfillment faced by women with developmental disabilities, including: access to gynecological healthcare, limited choices regarding reproductive issues, lack of sex education, and prevailing negative stereotypes that affect the way women are viewed by others and the way they view themselves.…

  7. Teachers' Self-Efficacy, Sentiments, Attitudes, and Concerns about the Inclusion of Students with Developmental Disabilities

    ERIC Educational Resources Information Center

    Montgomery, Angela; Mirenda, Pat

    2014-01-01

    This study examined relationships between three factors related to teacher self-efficacy (use of inclusive instruction, collaboration with others, and managing disruptive behaviour) and practicing teachers' sentiments, attitudes, and concerns about inclusive education of students with developmental disabilities. We calculated Pearson…

  8. Intrafamilial Homicide of People with Developmental Disabilities

    ERIC Educational Resources Information Center

    Lucardie, Richard

    2005-01-01

    An increase in interest in crimes against people with developmental disabilities (PWDD) has been observed in the past decade. However, little attention has been given to intrafamilial homicides of PWDD. This paper provides a preliminary description of these types of homicides as they affect PWDD. Content analysis of media accounts of intrafamilial…

  9. Access to Health Care for Individuals with Developmental Disabilities from Minority Backgrounds

    ERIC Educational Resources Information Center

    Reichard, Amanda; Sacco,Therese Marie; Turnbull, H. Rutherford, III

    2004-01-01

    In this project we examined access to health care by individuals with developmental disabilities in Kansas from low income populations and from minority backgrounds. Four criteria for determining access were employed: availability, accessibility, affordability, and appropriateness of care. Factors that pose barriers and that facilitate access are…

  10. Perspectives on Health Care of Adults with Developmental Disabilities

    ERIC Educational Resources Information Center

    Parish, Susan L.; Moss, Kathryn; Richman, Erica L.

    2008-01-01

    A focus group study was conducted with individuals with developmental disabilities to understand their perspectives on their health status, health promotion behaviors, and health care services they receive. The majority of participants reported good to excellent health, and all had some form of medical insurance. However, participants reported…

  11. Antecedent Assessment and Intervention: Supporting Children and Adults with Developmental Disabilities in Community Settings

    ERIC Educational Resources Information Center

    Luiselli, James K., Ed.

    2006-01-01

    Challenging behavior is a significant barrier to communication, education, and positive social relationships. This practical book helps psychologists, educators, rehabilitation specialists, and other professionals recognize and address the causes of these problems in individuals with developmental disabilities--and resolve even the most difficult…

  12. Location Matters: Geographic Location and Educational Placement of Students with Developmental Disabilities

    ERIC Educational Resources Information Center

    Brock, Matthew E.; Schaefer, John M.

    2015-01-01

    Despite decades of advocacy, most students with developmental disabilities continue to spend the majority of the school day in self-contained special education classrooms. However, there is tremendous variability of educational placement across the United States. Identification of geographic trends that explain this variability could provide…

  13. Engaging a Developmentally Disabled Community through Arts-Based Service-Learning

    ERIC Educational Resources Information Center

    Alexander, Amanda

    2015-01-01

    This study examined whether teaching in a community arts organization that provides services for people with developmental disabilities enabled preservice art teachers to better understand diverse contexts of art programs and the benefits of teaching the arts to others. Through this activity, the author also examined whether preservice art…

  14. Bio-Engineering Services to the Developmentally Disabled Adolescent. Final Report.

    ERIC Educational Resources Information Center

    Mallik, Kalisankar; Yuspeh, Sheldon

    A 1-year demonstration project involving 24 developmentally disabled students (9- to 20-years-old) with severe physical limitations was conducted to increase their educational and vocational possibilities by using cost-effective bio-engineering techniques to modify their physical environment and develop improved adaptive devices. Phase I of the…

  15. 45 CFR 1386.32 - Periodic reports: Federal assistance to State Developmental Disabilities Councils.

    Code of Federal Regulations, 2010 CFR

    2010-10-01

    ... 45 Public Welfare 4 2010-10-01 2010-10-01 false Periodic reports: Federal assistance to State Developmental Disabilities Councils. 1386.32 Section 1386.32 Public Welfare Regulations Relating to Public Welfare (Continued) OFFICE OF HUMAN DEVELOPMENT SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES THE...

  16. Teaching Emergency Phone Numbers to Youth with Developmental Disabilities

    ERIC Educational Resources Information Center

    Ozen, Arzu

    2008-01-01

    The purpose of the present study was to investigate the acquisition, maintenance, and generalization effects of antecedent prompt and testing procedure (APTP) on teaching emergency phone numbers to youth with developmental disabilities. Three youths with mental retardation participated in the study. All participants were inclusion students at a…

  17. An Evaluation of a Stimulus Preference Assessment of Auditory Stimuli for Adolescents with Developmental Disabilities

    ERIC Educational Resources Information Center

    Horrocks, Erin; Higbee, Thomas S.

    2008-01-01

    Previous researchers have used stimulus preference assessment (SPA) methods to identify salient reinforcers for individuals with developmental disabilities including tangible, leisure, edible and olfactory stimuli. In the present study, SPA procedures were used to identify potential auditory reinforcers and determine the reinforcement value of…

  18. Secondary Conditions in People with Developmental Disability

    ERIC Educational Resources Information Center

    Koritsas, Stella; Iacono, Teresa

    2011-01-01

    The authors investigated secondary conditions in people with developmental disabilities in terms of (a) the average number of conditions experienced and overall health and independence, (b) their degree and nature, and (c) gender differences. Information was obtained by a questionnaire completed by the caregivers for 659 people with developmental…

  19. Review of Video Prompting Studies for Persons with Developmental Disabilities

    ERIC Educational Resources Information Center

    Banda, Devender R.; Dogoe, Maud S.; Matuszny, Rose Marie

    2011-01-01

    We reviewed 18 video prompting studies that were conducted with persons with developmental disabilities. Results across the studies indicate that video prompting is a viable method for improving various domestic, vocational, and independent living skills. In addition, video prompting strategies facilitated maintenance and generalization of learned…

  20. A Methodology for Assessing the Functions of Emerging Speech in Children with Developmental Disabilities

    ERIC Educational Resources Information Center

    Lerman, Dorothea C.; Parten, Mandy; Addison, Laura R.; Vorndran, Christina M.; Volkert, Valerie M.; Kodak, Tiffany

    2005-01-01

    An approach based on Skinner's (1957) theory of verbal behavior has been developed to understand and teach elementary communication skills to children with autism and developmental disabilities (Sundberg & Partington, 1998). However, few studies have directly examined the characteristics of emerging language in children with developmental…

  1. A Psychiatric Primer for Programs Serving People with Developmental Disabilities. Monograph #101.

    ERIC Educational Resources Information Center

    Dal Pozzo, Earlene; Bernstein, Gail S.

    Intended for personnel in programs serving persons with developmental disabilities, the booklet provides basic information about the major psychiatric disorders and their treatment. Five sections cover: the major disorders; medications--uses and problems; assessment; cooordination of services; and psychiatric emergencies. Major disorders such as…

  2. Paradigm Shifts in Disability and Health: Toward More Ethical Public Health Research

    PubMed Central

    Raymaker, Dora M.

    2013-01-01

    Disability is often considered a health outcome disproportionately experienced by minority groups. It is also possible to view people with disabilities as a minority group that itself experiences health disparities. Calls to reduce these disparities necessitate the inclusion of people with developmental disabilities in research, although resulting ethical issues can thwart scientific progress. Using disability rights principles can help address ethical challenges and promote safe, respectful public health research. Examples include applying human rights frameworks, providing accommodations, attending to power, countering legacies of deficits-based models of disability, and transforming access to science more broadly. Collectively, these strategies can encourage broader engagement in safe, respectful, inclusive public health research aimed at promoting the health and well-being of people with developmental disabilities. PMID:24134380

  3. Contraceptive Provision to Postpartum Women With Intellectual and Developmental Disabilities: A Population-Based Cohort Study.

    PubMed

    Brown, Hilary K; Kirkham, Yolanda A; Lunsky, Yona; Cobigo, Virginie; Vigod, Simone N

    2018-05-29

    Women with intellectual and developmental disabilities who experience pregnancy, like all women, require postpartum care that supports their contraceptive knowledge and decision making. Yet, little is known about the postpartum contraceptive care these women receive, or how it compares with care given to other women. A population-based study using linked health and social services administrative data examined provision of postpartum contraceptive care to women who had a live birth in Ontario, Canada, in 2002-2014 and were beneficiaries of Ontario's publicly funded drug plan. Modified Poisson regression was used to compare care between 1,181 women with and 36,259 women without intellectual and developmental disabilities. Outcomes were provision of any nonbarrier contraceptive in the year following the birth and type of method provided. In the first year postpartum, women with intellectual and developmental disabilities were provided with contraceptives at a higher rate than were other women (relative risk 1.3); the difference was significant for both nonsurgical and surgical methods (1.2 and 1.8, respectively). The higher rate of nonsurgical contraceptive provision was explained by provision of injectables (1.9); there were no differences for pills or IUDs. Nonbarrier contraceptives may be the most appropriate methods for some women with intellectual and developmental disabilities. However, future research should investigate why women with such disabilities are more likely than others to receive injectable contraceptives, which have possible negative side effects, and surgical contraception, which is irreversible. Research also should investigate how these women perceive their participation in contraceptive decision making. Copyright © 2018 by the Guttmacher Institute.

  4. The Relationship Between Speech, Language, and Phonological Awareness in Preschool-Age Children With Developmental Disabilities.

    PubMed

    Barton-Hulsey, Andrea; Sevcik, Rose A; Romski, MaryAnn

    2018-05-03

    A number of intrinsic factors, including expressive speech skills, have been suggested to place children with developmental disabilities at risk for limited development of reading skills. This study examines the relationship between these factors, speech ability, and children's phonological awareness skills. A nonexperimental study design was used to examine the relationship between intrinsic skills of speech, language, print, and letter-sound knowledge to phonological awareness in 42 children with developmental disabilities between the ages of 48 and 69 months. Hierarchical multiple regression was done to determine if speech ability accounted for a unique amount of variance in phonological awareness skill beyond what would be expected by developmental skills inclusive of receptive language and print and letter-sound knowledge. A range of skill in all areas of direct assessment was found. Children with limited speech were found to have emerging skills in print knowledge, letter-sound knowledge, and phonological awareness. Speech ability did not predict a significant amount of variance in phonological awareness beyond what would be expected by developmental skills of receptive language and print and letter-sound knowledge. Children with limited speech ability were found to have receptive language and letter-sound knowledge that supported the development of phonological awareness skills. This study provides implications for practitioners and researchers concerning the factors related to early reading development in children with limited speech ability and developmental disabilities.

  5. Enabling people with developmental disabilities to actively follow simple instructions and perform designated physical activities according to simple instructions with Nintendo Wii Balance Boards by controlling environmental stimulation.

    PubMed

    Shih, Ching-Hsiang; Chung, Chiao-Chen; Shih, Ching-Tien; Chen, Ling-Che

    2011-01-01

    The latest researches have adopted software technology turning the Nintendo Wii Balance Board into a high performance standing location detector. This study extended Wii Balance Board functionality to assess whether two people with developmental disabilities would be able to actively perform designated physical activities according to simple instructions by controlling their favorite environmental stimulation using Nintendo Wii Balance Boards. This study was carried out according to an A-B-A-B design. Data showed that both participants significantly increased their target response (performing a designated physical activity) by activating the control system to produce their preferred environmental stimulation during the intervention phases. Copyright © 2011 Elsevier Ltd. All rights reserved.

  6. Issues in the Medication Management Process in People Who Have Intellectual and Developmental Disabilities: A Qualitative Study of the Caregivers' Perspective.

    PubMed

    Erickson, Steven R; Salgado, Teresa M; Tan, Xi

    2016-12-01

    People who have intellectual and developmental disabilities (IDD) often rely on caregivers to assist in the medication management process. The aim of this study was to learn from caregivers, who are either family or support staff, what major issues arise throughout the process of managing medication and how these might be addressed. Problems identified by caregivers include (a) prescribers understanding of insurance and agency policies regarding medication utilization; (b) lack of continuity of care and accuracy of the medication record as well as clinical records; (c) poor communication among patients, caregivers, and clinicians; (d) patient willingness to take medication; (e) caregiver understanding and training of medication-related topics; and (f) the health system being unprepared to work with people who have IDD.

  7. Community-Engagement Strategies of the Developmental Disabilities Practice-Based Research Network (DD-PBRN)

    PubMed Central

    Tyler, Carl; Werner, James J.

    2016-01-01

    There is often a rich but untold history of events that occurred and relationships that formed prior to the launching of a practice-based research network (PBRN.) This is particularly the case in PBRNs that are community-based and comprised of partnerships outside of the health care system. In this article we summarize an organizational "prenatal history" prior to the birth of a PBRN devoted to persons with developmental disabilities. Using a case study approach, this article describes the historical events that preceded and fostered the evolution of this PBRN and contrasts how the processes leading to the creation of this multi-stakeholder community-based PBRN differ from those of typical academic-clinical practice PBRNs. We propose potential advantages and complexities inherent to this newest iteration of PBRNs. PMID:25381081

  8. Early Support Development of Children with Disorders of the Biopsychosocial Functioning in Poland

    ERIC Educational Resources Information Center

    Czyz, Anna

    2017-01-01

    This article presents the results of a research study on the system of early child development support with developmental disabilities and their families in Poland. The analysis covered areas such as proximity and accessibility of services, infrastructural conditions, preparation of personnel, and occurrence of systemic barriers. The article…

  9. POWER: Providing Options for the Workplace, Education and Rehabilitation. Final Report.

    ERIC Educational Resources Information Center

    Rickard, Patricia L.

    This final report describes activities and accomplishments of a 3-year federally supported project that provided 326 students, ages 18-21, with developmental disabilities employment training through five community colleges and three K-12 system adult education systems. Program sites were in California, Iowa, Ohio, and North Carolina. The program…

  10. The Direct Support Workforce Crisis: Can Unions Help Resolve This?

    ERIC Educational Resources Information Center

    Taylor, Steven J.

    2008-01-01

    Problems faced by the developmental disability service system in recruiting and retaining direct support staff are exacerbated by demands from competing service industries, including long term supports for the increasing aging population in the United States. Many factors account for high turnover and vacancy rates in the community service system,…

  11. Encopresis, soiling and constipation in children and adults with developmental disability.

    PubMed

    Matson, Johnny L; LoVullo, Santino V

    2009-01-01

    Children and adults with developmental disabilities are more likely to evince encopresis, soiling and constipation than the general population. This set of related behaviors can produce a great deal of stress and can be a major restriction in independent living. This paper provides a review of the current state of knowledge on the prevalence, etiology, assessment and treatment of this co-occurring set of disorders. These problems are more common in persons with developmental disabilities then the general population. Furthermore, classical and operant treatment methods appear to be the best supported interventions for most cases. Strengths and weaknesses of the current research base are discussed along with potential avenues for future research.

  12. 78 FR 27202 - Applications for New Awards; National Institute on Disability and Rehabilitation Research...

    Federal Register 2010, 2011, 2012, 2013, 2014

    2013-05-09

    ... DEPARTMENT OF EDUCATION Applications for New Awards; National Institute on Disability and... Disability and Rehabilitation Research (NIDRR)--Disability and Rehabilitation Research Projects and Centers... Disabilities, Health and Function of Individuals with Intellectual and Developmental [[Page 27203...

  13. Housing and Independent Living for Individuals with Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    Leach, Debra

    2016-01-01

    This manuscript provides a review of housing and independent living options for individuals with intellectual and developmental disabilities (I/DD). While there has certainly been an increased emphasis on community integration and inclusion for people with I/DD, barriers to delivering housing supports and services in natural, integrated settings…

  14. Behavioral Interventions to Reduce the Pica of Persons with Developmental Disabilities

    ERIC Educational Resources Information Center

    McAdam, David B.; Sherman, James A.; Sheldon, Jan B.; Napolitano, Deborah A.

    2004-01-01

    The consumption of nonfood items (i. e., pica) frequently occurs in persons with developmental disabilities. Pica may result in the puncture or blockage of the digestive tract, infestation by gastrointestinal parasites, and can interfere with an individuals daily learning, occupational performance, and quality of life. Twenty-six published studies…

  15. Social Skill Instruction for the Developmentally Disabled: A Generalizability Problem.

    ERIC Educational Resources Information Center

    Monroe, Don; And Others

    A social curriculum package was developed for use in adjustment training centers that serve developmentally disabled clients over the age of 16 years. The curriculum features two different instructional styles (verbal instruction and role play) for nine task areas: (1) seeking attention, (2) complying, (3) telling the truth, (4) expressing…

  16. Quality of Life of Adults with Pervasive Developmental Disorders and Intellectual Disabilities

    ERIC Educational Resources Information Center

    Gerber, F.; Baud, M. A.; Giroud, M.; Carminati, G. Galli

    2008-01-01

    The purpose of this study was to observe quality of life (QoL) and global evolution of persons with Pervasive Developmental Disorders (PDD) in three different groups. Individualized programs for PDD were compared to traditional programs for intellectual disabilities. Behavioural disorders were repeatedly evaluated using the Aberrant Behaviour…

  17. Supporting People with Intellectual and Developmental Disabilities to Participate in Their Communities through Support Staff Pilot Intervention

    ERIC Educational Resources Information Center

    Zakrajsek, Andrea Gossett; Hammel, Joy; Scazzero, Joseph A.

    2014-01-01

    Background: Increasingly, people with intellectual and developmental disabilities (I/DD) are supported to participate in least-restricted settings in the community. However, little is known about desired community participation choice and control of people with I/DD, nor effective strategies to support full participation. Furthermore, service…

  18. Perspectives of Physicians, Families, and Case Managers Concerning Access to Health Care by Individuals with Developmental Disabilities

    ERIC Educational Resources Information Center

    Reichard, Amanda; Turnbull, H. Rutherford, III

    2004-01-01

    This study of the status of medical care for Kansans with developmental disabilities consists of reports from physicians, service providers, and family members. Overall, these three groups indicated satisfaction with medical care across the four criteria of availability, accessibility, appropriateness, and affordability. The bases for these…

  19. Relationship between Intellectual Status and Reading Skills for Developmentally Disabled Children.

    ERIC Educational Resources Information Center

    Bloom, Allan; And Others

    1981-01-01

    For 80 developmentally disabled children (ages 6-10), scores on the Woodcock Reading Mastery Tests correlated moderately and significantly with IQ. Abstract reading skills correlated more fully with WISC-R Full Scale IQ than did concrete skills. The emotional importance of concrete learning patterns to these children is noted. (Author/SJL)

  20. Education and Training in Autism and Developmental Disabilities: Does Inclusion End at 3:00?

    ERIC Educational Resources Information Center

    Agran, Martin; Wojcik, Andrew; Cain, Irina; Thoma, Colleen; Achola, Edwin; Austin, Kira M.; Nixon, Cynthia Allen; Tamura, Ronald B.

    2017-01-01

    Although participation in extracurricular activities for students with intellectual and developmental disabilities has been advocated, a limited number of students appear to be involved in such activities. Further, there is little empirical research on how extracurricular activities are valued, supported, and encouraged. This study surveyed a…

  1. Personal Care Services Utilization by Individuals with Developmental Disabilities

    ERIC Educational Resources Information Center

    Harrington, Charlene; Kang, Taewoon

    2010-01-01

    This study examined factors associated with the use of personal care services (PCS) and the amount of authorized hours in California in 2004-2005. Of those Medicaid-eligible individuals with developmental disabilities living at home, 31% received PCS. When we controlled for client need, gender, and age, individuals who were Asian/Pacific…

  2. 45 CFR 1386.90 - Notice of hearing or opportunity for hearing.

    Code of Federal Regulations, 2010 CFR

    2010-10-01

    ... 45 Public Welfare 4 2010-10-01 2010-10-01 false Notice of hearing or opportunity for hearing. 1386.90 Section 1386.90 Public Welfare Regulations Relating to Public Welfare (Continued) OFFICE OF HUMAN DEVELOPMENT SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES THE ADMINISTRATION ON DEVELOPMENTAL DISABILITIES, DEVELOPMENTAL DISABILITIES PROGRAM...

  3. Impact of "Sleepwise": An Intervention for Youth with Developmental Disabilities and Sleep Disturbance

    ERIC Educational Resources Information Center

    Moss, Alicia H.; Gordon, Jocelynne E.; O'Connell, Annie

    2014-01-01

    The prevalence of sleep disturbance among children with developmental disabilities is known to be considerably higher than the typical population. The current study examined the effectiveness of the "Sleepwise" intervention program (O'Connell and Vannan in "Aust Occup Ther J" 55:212-214, 2008): a parent-assisted…

  4. Spiritual Dimensions of Bar/Bat Mitzvah Ceremonies for Jewish Children with Developmental Disabilities.

    ERIC Educational Resources Information Center

    Vogel, Gila; Reiter, Shunit

    2003-01-01

    Twenty-one children with moderate to severe developmental disabilities attending two special education schools in Israel participated in group bar/bat mitzvah ceremonies. Children were observed during the six-month learning process and the ceremonies. Parents and school staff were also interviewed. The study found the children could both express…

  5. Friendship at Any Cost: Parent Perspectives on Cyberbullying Children with Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    McHugh, Meaghan C.; Howard, Donna E.

    2017-01-01

    Bullying affects approximately 40% of individuals with intellectual and developmental disabilities (IDD). Cyberbullying, a type of bullying facilitated by electronic devices, may be particularly worrisome for parents of children with IDD as constant monitoring is difficult. In this study, ten parents of Special Olympics Maryland athletes completed…

  6. Being Human: A Resource Guide in Human Growth and Development for the Developmentally Disabled.

    ERIC Educational Resources Information Center

    Ogle, Peggy

    The resource guide is intended to help practitioners develop curricula in human growth and development for developmentally disabled students. A matrix guide is presented for evaluating clients in three domains (social identity, health and hygiene, and physiological identity). Behavioral indicators are then noted which relate to adaptive behaviors…

  7. A Non-Institutional Society for People with Developmental Disability in Norway.

    ERIC Educational Resources Information Center

    Meyer, Jan

    2003-01-01

    This article discusses how the intentions of the Norwegian commitment to create a "non-institutional society" with people with developmental disabilities living as fellow citizens is reflected in everyday life and support practices. The passage of the Norwegian Reform Act that required the end of institutional care is recounted.…

  8. Pharmacological Treatment of Sleep Disturbance in Developmental Disabilities: A Review of the Literature

    ERIC Educational Resources Information Center

    Hollway, Jill A.; Aman, Michael G.

    2011-01-01

    Sleep disturbance is a common problem in children with developmental disabilities. Effective pharmacologic interventions are needed to ameliorate sleep problems that persist when behavior therapy alone is insufficient. The aim of the present study was to provide an overview of the quantity and quality of pharmacologic research targeting sleep in…

  9. Teaching Early Reading Skills to Children with Intellectual and Developmental Disabilities Using Computer-Delivered Instruction: A Pilot Study

    ERIC Educational Resources Information Center

    Tyler, Emily J.; Hughes, John C.; Wilson, Meadhbh M.; Beverley, Michael; Hastings, Richard P.; Williams, Bethan M.

    2015-01-01

    Many children with Intellectual and Developmental Disabilities (IDD) have considerable difficulty learning basic reading skills. Increasing evidence suggests individuals with IDD may benefit from instruction incorporating components of reading found to be effective for typically developing children. However, little research into reading…

  10. Classroom Intervention for Illness-Related Problem Behavior in Children with Developmental Disabilities

    ERIC Educational Resources Information Center

    Carr, Edward G.; Blakeley-Smith, Audrey

    2006-01-01

    There is growing evidence of an association between physical illness and problem behavior in children with developmental disabilities. Such behavior can compromise school performance. Therefore, the purpose of the present study was to evaluate, using a group design, the effectiveness of medical intervention alone (N = 11) versus behavioral plus…

  11. Twenty Years of Communication Intervention Research with Individuals Who Have Severe Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    Snell, Martha E.; Brady, Nancy; McLean, Lee; Ogletree, Billy T.; Siegel, Ellin; Sylvester, Lorraine; Mineo, Beth; Paul, Diane; Romski, Mary Ann; Sevcik, Rose

    2010-01-01

    This literature review was conducted to evaluate the current state of evidence supporting communication interventions for individuals with severe intellectual and developmental disabilities. We reviewed 116 articles published between 1987 and 2007 in refereed journals meeting three criteria: (a) described a communication intervention, (b) involved…

  12. State Health Care Financing Strategies for Children with Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    Bachman, Sara S.; Comeau, Margaret; Tobias, Carol; Allen, Deborah; Epstein, Susan; Jantz, Kathryn; Honberg, Lynda

    2012-01-01

    We provide the first descriptive summary of selected programs developed to help expand the scope of coverage, mitigate family financial hardship, and provide health and support services that children with intellectual and developmental disabilities need to maximize their functional status and quality of life. State financing initiatives were…

  13. Transformation through Health Teaching for Adults with Intellectual and Developmental Disabilities: A Qualitative Study

    ERIC Educational Resources Information Center

    Focht-New, Ginny

    2012-01-01

    Adults with intellectual and developmental disabilities have medical conditions similar to those among the general population but with more complex presentation, a extended life expectancy, and increased risk of morbidity and mortality. These adults' health education has been inadequate. In this qualitative study, the author describes the…

  14. Supporting Students with Intellectual and Developmental Disabilities to Attend College

    ERIC Educational Resources Information Center

    Griffin, Megan M.; Papay, Clare K.

    2017-01-01

    Students with intellectual and developmental disabilities (IDD), such as autism spectrum disorder and Down syndrome, have more opportunities to go to college than ever before (Hart, Grigal, & Weir, 2010). Over the last decade, the issue of increasing access to college for students with IDD has gained much national attention, in part due to…

  15. Family Quality of Life of Australian Families with a Member with an Intellectual/Developmental Disability

    ERIC Educational Resources Information Center

    Rillotta, F.; Kirby, N.; Shearer, J.; Nettelbeck, T.

    2012-01-01

    Background: Family quality of life (FQOL) is a recent concept in intellectual/developmental disability research. Outcomes for the family are important to the provision of services because families, rather than institutions, are increasingly considered the primary support unit. This article presents Australian findings using the international…

  16. Families of Individuals with Intellectual and Developmental Disabilities: Policy, Funding, Services, and Experiences

    ERIC Educational Resources Information Center

    Hewitt, Amy; Agosta, John; Heller, Tamar; Williams, Ann Cameron; Reinke, Jennifer

    2013-01-01

    Families are critical in the provision of lifelong support to individuals with intellectual and developmental disabilities (IDD). Today, more people with IDD receive long-term services and supports while living with their families. Thus, it is important that researchers, practitioners, and policy makers understand how to best support families who…

  17. Stress in Caregivers of Individuals with Intellectual or Developmental Disabilities: A Systematic Review of Mindfulness-Based Interventions

    ERIC Educational Resources Information Center

    Ó Donnchadha, Seán

    2018-01-01

    Background: The efficacy of mindfulness-based interventions (MBIs) for stress and psychological distress in professional caregivers supporting individuals with intellectual or developmental disabilities (IDDs) is reviewed. Methods: Eight studies met inclusion criteria and were systematically reviewed, including RCTs and single-group designs.…

  18. Guide for Calculating and Interpreting Effect Sizes and Confidence Intervals in Intellectual and Developmental Disability Research Studies

    ERIC Educational Resources Information Center

    Dunst, Carl J.; Hamby, Deborah W.

    2012-01-01

    This paper includes a nontechnical description of methods for calculating effect sizes in intellectual and developmental disability studies. Different hypothetical studies are used to illustrate how null hypothesis significance testing (NHST) and effect size findings can result in quite different outcomes and therefore conflicting results. Whereas…

  19. A Model for Pain Behavior in Individuals with Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    Meir, Lotan; Strand, Liv Inger; Alice, Kvale

    2012-01-01

    The dearth of information on the pain experience of individuals with intellectual and developmental disabilities (IDD) calls for a more comprehensive understanding of pain in this population. The Non-Communicating Adults Pain Checklist (NCAPC) is an 18-item behavioral scale that was recently found to be reliable, valid, sensitive and clinically…

  20. Parent Training: A Review of Methods for Children with Developmental Disabilities

    ERIC Educational Resources Information Center

    Matson, Johnny L.; Mahan, Sara; LoVullo, Santino V.

    2009-01-01

    Great strides have been made in the development of skills and procedures to aid children with developmental disabilities to establish maximum independence and quality of life. Paramount among the treatment methods that have empirical support are treatments based on applied behavior analysis. These methods are often very labor intensive. Thus,…

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