Disability Studies in the Composition Classroom

ERIC Educational Resources Information Center

Browning, Ella R.

2014-01-01

Although attention to disability is becoming more apparent in first-year composition curricula, too often disability is simply "tacked on" to existing courses. Scholars have argued that composition instructors interested in fully integrating a disability studies perspective into their curriculum would do well, instead, to think…

Enabling disability inclusive practices within the University of Cape Town curriculum: A case study.

PubMed

Ohajunwa, Chioma; Mckenzie, Judith; Lorenzo, Theresa

2015-01-01

Disability inclusion in the curricula of higher education institutions contributes to socially responsive graduates with a capacity to address the cross-cutting issue of disability in development. This article discusses a study conducted at the University of Cape Town (UCT), South Africa, to explore disability inclusion. An instrumental case study approach was adopted and a thematic analysis of data was done. Academic staff found a variety of ways to include disability, such as discussions in class, practice and service learning, but mainly as part of disciplinary requirements. Including disability as an issue of social justice stems mostly from the personal interest of staff, and is done in an ad hoc manner. Disability should be valued, and integrated into the curriculum in a structured manner as a perspective on diversity with which to interrogate our beliefs about ourselves and society. Theorising on disability is needed, as well as the unique perspectives that emerge across interdisciplinary boundaries, especially within the African context.

Enabling disability inclusive practices within the University of Cape Town curriculum: A case study

PubMed Central

Ohajunwa, Chioma

2015-01-01

Background Disability inclusion in the curricula of higher education institutions contributes to socially responsive graduates with a capacity to address the cross-cutting issue of disability in development. This article discusses a study conducted at the University of Cape Town (UCT), South Africa, to explore disability inclusion. Methodology An instrumental case study approach was adopted and a thematic analysis of data was done. Findings Academic staff found a variety of ways to include disability, such as discussions in class, practice and service learning, but mainly as part of disciplinary requirements. Including disability as an issue of social justice stems mostly from the personal interest of staff, and is done in an ad hoc manner. Conclusion Disability should be valued, and integrated into the curriculum in a structured manner as a perspective on diversity with which to interrogate our beliefs about ourselves and society. Theorising on disability is needed, as well as the unique perspectives that emerge across interdisciplinary boundaries, especially within the African context. PMID:28730025

Relationships of People with Learning Disabilities in Ireland

ERIC Educational Resources Information Center

Bane, Geraldine; Deely, Marie; Donohoe, Brian; Dooher, Martin; Flaherty, Josephine; Iriarte, Edurne Garcia; Hopkins, Rob; Mahon, Ann; Minogue, Ger; Mc Donagh, Padraig; O'Doherty, Siobhain; Curry, Martin; Shannon, Stephen; Tierney, Edel; Wolfe, Marie

2012-01-01

This study explored the perspectives of people with learning disabilities on relationships and supports in the Republic of Ireland. A national research network consisting of 21 researchers with learning disabilities, 12 supporters, and 7 university researchers conducted the study. Researchers with learning disabilities and their supporters ran 16…

Perspectives of Canadian Teacher Candidates on Inclusion of Children with Developmental Disabilities: A Mixed-Methods Study

ERIC Educational Resources Information Center

Hutchinson, Nancy; Minnes, Patricia; Burbidge, Julie; Dods, Jenn; Pyle, Angela; Dalton, C. J.

2015-01-01

This mixed-methods study reports on the perspectives of 208 teacher candidates on teaching children with developmental disabilities and delays (DD) in inclusive classrooms from Kindergarten to Grade 6. The questionnaire included items on demographics, experience, knowledge, and feelings of competence, advocacy, and sense of efficacy. Open-ended…

Perspectives of Teachers and Parents of Chinese American Students with Disabilities about Their Home-School Communication

ERIC Educational Resources Information Center

Chu, Szu-Yin

2014-01-01

This exploratory qualitative study aimed to examine the perspectives of teachers and parents of Chinese American students with disabilities regarding home-school communication in the special education field. The author recruited 2 parents and 2 teachers for this study. Different sources of data including observations, interviews, documentations,…

The Transition Process for Adolescents with Learning Disabilities: Perspectives of Five Families

ERIC Educational Resources Information Center

Fullarton, Stephanie; Duquette, Cheryll

2015-01-01

This qualitative study examines, from the perspective of the families, the transition process to employment or postsecondary education for adolescents with learning disabilities (LDs) and the interplay of the roles of parents, students with LDs, and teachers. Using a case study design, series of three in-depth interviews were conducted with five…

Taiwanese Families' Perspectives on Learning Disabilities: An Exploratory Study in Three Middle Schools

ERIC Educational Resources Information Center

Chu, Szu-Yin; Lo, Yu-Ling Sabrina

2016-01-01

The purpose of this study was to investigate families' perspectives on learning disabilities (LD) in Taiwan. A researcher-designed survey was sent out to families of children with or without LD from three middle schools. Data from 153 participants were gathered and analysed. The survey consisted of four sections, namely demographic information,…

Level of Job Creativity among Learning Disabilities Teachers from Their Perspective in Kingdom of Saudi Arabia

ERIC Educational Resources Information Center

Hamadneh, Burhan M.

2016-01-01

The current study aims to identify the level of job creativity among learning disabilities teachers from their perspective in Kingdom of Saudi Arabia, and investigate the differences according to gender, scientific qualification and years of experience. The study sample consisted of (80) male and female teachers, who were randomly selected from…

Disability Studies in Education: The Need for a Plurality of Perspectives on Disability

ERIC Educational Resources Information Center

Baglieri, Susan; Valle, Jan W.; Connor, David J.; Gallagher, Deborah J.

2011-01-01

This article asserts that the field of special education, historically founded on conceptions of disability originating within scientific, psychological, and medical frameworks, will benefit from acknowledging broader understandings of disability. Although well intended, traditional understandings of disability in special education have…

A Capability Perspective on Impairment, Disability and Special Needs: Towards Social Justice in Education

ERIC Educational Resources Information Center

Terzi, Lorella

2005-01-01

This article presents elements of a capability perspective on impairment and disability and develops in connection with it a multidimensional and relational account of disability. It suggests how a capability perspective provides new and fundamental insights into the conceptualization of impairment and disability, and in doing this, resolves the…

Representing and organizing information to describe the lived experience of health from a personal factors perspective in the light of the International Classification of Functioning, Disability and Health (ICF): a discussion paper.

PubMed

Geyh, Szilvia; Schwegler, Urban; Peter, Claudio; Müller, Rachel

2018-03-06

To discuss the representation and organization of information describing persons' lived experience of health from a personal factors perspective in the light of the International Classification of Functioning, Disability and Health, using spinal cord injury as a case in point for disability. The scientific literature was reviewed, discussion rounds conducted, and qualitative secondary analyses of data carried out using an iterative inductive-deductive approach. Conceptual considerations are explicated that distinguish the personal factors perspective from other components of the International Classification of Functioning, Disability and Health. A representation structure is developed that organizes health-related concepts describing the internal context of functioning. Concepts are organized as individual facts, subjective experiences, and recurrent patterns of experience and behavior specifying 7 areas and 211 concept groups. The article calls for further scientific debate on the perspective of personal factors in the light of the International Classification of Functioning, Disability and Health. A structure that organizes concepts in relation to a personal factors perspective can enhance the comprehensiveness, transparency and standardization of health information, and contribute to the empowerment of persons with disabilities. Implications for rehabilitation The present study collected data from scientific literature reviews, discussion rounds and qualitative secondary analyses in order to develop a representation and organization of information describing persons' lived experience of health from a personal factors perspective in the light of the International Classification of Functioning, Disability and Health. The following representation structure for health-related information from a personal factors perspective was developed: (i) Individuals facts (i.e., socio-demographical factors, position in the immediate social and physical context, personal history and biography), (ii) subjective experience (i.e., feelings, thoughts and beliefs, motives), and (iii) recurrent patterns of experience (i.e., feelings, thoughts and beliefs) and behavior. With this study, we aim to stimulate further scientific discussion about the personal factors component in the International Classification of Functioning, Disability and Health, including its application and subsequent validation for potential implementation into clinical practice.

Transportation challenges for urban students with disabilities: parent perspectives.

PubMed

Graham, Benjamin C; Keys, Christopher B; McMahon, Susan D; Brubacher, Michael R

2014-01-01

This qualitative study explored parent perspectives of the transportation difficulties students with disabilities experienced getting to and around school. Participants were parents of predominantly African American and Latino/a high school youth with disabilities from low income neighborhoods. Content analysis of 14 meetings with 5 to 12 parents sponsored by the school district revealed five primary themes concerning transportation: the role of aides, exclusion from school programming, scheduling problems, equipment problems, and physical safety issues. Findings are discussed in regard to students' social and emotional experiences at school. Implications for school policy include improving the integration of transportation within inclusion best practice models. Incorporating parent perspectives can help school administrators and staff enrich the quality of inclusive, socially just education for students with disabilities.

Disability reconsidered: the paradox of physical therapy.

PubMed

Roush, Susan E; Sharby, Nancy

2011-12-01

The purposes of this perspective article are: (1) to explore models of disability from the perspective of the academic discipline of disability studies (DS), (2) to consider the paradox of improving functional capacities while valuing disability as diversity, (3) to identify how physical therapy's use of the International Classification of Functioning, Disability and Health (ICF) disablement model intersects with various disability models, and (4) to apply this broader understanding of disability to physical therapist practice, education, and research. The DS literature has been critical of rehabilitation professionals, particularly targeting the medical model of disability. In contrast, advocates for a social model of disability recognize disability as diversity. It is paradoxical for physical therapy to simultaneously work to ameliorate disability while celebrating it as diversity. The ICF biopsychosocial disablement model offers a mechanism to practice within this paradox and suggests that it is no longer sufficient to conceptualize disability as a purely individual matter that requires attention in isolation from the impact of the larger society.

An Evaluation of University Recreation Center Outdoor Programs for People with Disabilities: Perspectives from Professionals

ERIC Educational Resources Information Center

Daniels, Erin; Cottingham, Michael; Walsh, David W.; Pearson, Demetrius

2017-01-01

In this study, the researchers explored the perspectives of recreational practitioners currently working in the field of outdoor adventure programming on college campuses and their knowledge and interactions with students with disabilities participating in integrated outdoor adventure activities. A qualitative descriptive thematic analysis was…

Perspectives on Health Care of Adults with Developmental Disabilities

ERIC Educational Resources Information Center

Parish, Susan L.; Moss, Kathryn; Richman, Erica L.

2008-01-01

A focus group study was conducted with individuals with developmental disabilities to understand their perspectives on their health status, health promotion behaviors, and health care services they receive. The majority of participants reported good to excellent health, and all had some form of medical insurance. However, participants reported…

Special Education in Saudi Arabia: Challenges, Perspectives, Future Possibilities

ERIC Educational Resources Information Center

Alquraini, Turki

2011-01-01

This paper provides a brief background of the education system in Saudi Arabia and current special education services and programs for students with disabilities. Additionally, this paper presents the findings of some studies that examined teachers' perspectives regarding the inclusion of students with disabilities. As Saudi Arabia continues its…

Special Education in Saudi Arabia: Challenges, Perspectives, Future Possibilities

ERIC Educational Resources Information Center

Alquraini, Turki

2010-01-01

This paper provides a brief background of the education system in Saudi Arabia and current special education services and programs for students with disabilities. Additionally, this paper presents the findings of some studies that examined teachers' perspectives regarding the inclusion of students with disabilities. As Saudi Arabia continues its…

Disability Justifies Exclusion of Minority Students: A Critical History Grounded in Disability Studies

ERIC Educational Resources Information Center

Reid, D. Kim; Knight, Michelle G.

2006-01-01

From a disability studies (DS) perspective, the authors analyze how the historical conflation of disability with other identity factors and the ideology of normalcy contribute to the disproportionality problem in K-12 special education. They argue that this conflation and ideology make labeling and segregated education seem natural and legitimate…

Transitions from School for Young Adults with Intellectual Disability: Parental Perspectives on "Life as an Adjustment"

ERIC Educational Resources Information Center

Davies, Michael D.; Beamish, Wendi

2009-01-01

Background: Few studies have investigated transition programs and outcomes for young adults with disabilities as viewed from the parent perspective. The current Australian study provided a voice for parents to report on the experiences of and outcomes for young adults following their recent transition from school into post-school life. Method: A…

Parents' Perspectives on Coping with Duchenne Muscular Dystrophy and Concomitant Specific Learning Disabilities

ERIC Educational Resources Information Center

Webb, Carol L.

2005-01-01

This study addresses parental perspectives and coping strategies related to Duchenne muscular dystrophy and specific learning disabilities. Data were collected through individual semi-structured in-depth interviews with fifteen sets of parents. Participants were selected based on variables such as age of children, number of children with both…

Conceptualisations of Disability and Inclusion: Perspectives of Educators of Young Children

ERIC Educational Resources Information Center

Thornton, Colleen; Underwood, Kathryn

2013-01-01

This grounded theory study explores beliefs about disability and inclusion from the perspectives of educators of young children in their respective roles as elementary school teachers and early childhood educators, in Ontario, Canada. The social relational model described by Reindal is used as a theoretical framework for interviews with four…

The Critical Book Review: How, Why, and When?

ERIC Educational Resources Information Center

Nevin, Ann I.; Brown, Stephanie; Erratt, John; Esquer, Jocelyn; Kamae, Melanie; Neria, Christy; Ocampo, Alaine; Shubin, Jennifer

2010-01-01

Disability Studies in Education (DSE) offers a framework that (a) grounds policy/practice in the experiences [and] perspectives of people with disabilities, (b) challenges practices/policy that isolate, de-humanize individuals, and (c) leads to new questions to pose. In this session, pedagogy for critical book reviews from a DSE perspective is…

Ecocultural Perspective in Learning Disability: Family Support Resources, Values, Child Problem Behaviors

ERIC Educational Resources Information Center

Cen, Suzan; Aytac, Berna

2017-01-01

The present study aimed to assess the interaction between familial and cultural factors on child problem behaviors of learning disabled children aged between 7 and 14 within the perspective of ecocultural theory (N = 90). Mothers completed the Family Support Scale, Portrait Values Questionnaire, and Social-Demographical Form, and teachers…

We Did It Together: A Participatory Action Research Study on Poverty and Disability

ERIC Educational Resources Information Center

Buettgen, Alexis; Richardson, Jason; Beckham, Kristie; Richardson, Kathy; Ward, Michelle; Riemer, Manuel

2012-01-01

This article presents the perspective of both non-disabled and developmentally disabled people working together in a research project on poverty and disability. Our study used a participatory action research approach that challenges the norm of exclusion in the research process. Control of the research agenda has been inclusive and shared to…

Learning Disabilities: An Interdisciplinary Perspective.

ERIC Educational Resources Information Center

Zollinger, Ruth H., Ed.; Klein, Nancy K., Ed.

Presented are six papers originally delivered at a colloquium series on the problems of the learning disabled child, with emphasis on a multidisciplinary perspective. In "One Psychologist's Perspective on Learning Disabilities," J. Kessler provides an overview of the field with sections on definition and identification, etiology, testing as a…

A case for the use of Q-methodology in disability research: lessons learned from a training workshop.

PubMed

McKenzie, Judith; Braswell, Bob; Jelsma, Jennifer; Naidoo, Nirmala

2011-01-01

Q-methodology was developed to analyse subjective responses to a range of items dealing with specific topics. This article describes the use of Q-methodology and presents the results of a Q-study on perspectives on disability carried out in a training workshop as evidence for its usefulness in disability research. A Q-sort was administered in the context of a training workshop on Q-method. The Q-sort consisted of statements related to the topic of disability. The responses were analysed using specifically developed software to identify factors that represent patterns of responses. Twenty-two of the 23 respondents loaded on four factors. These factors appeared to represent different paradigms relating to the social, medical and disability rights models of disability. The fourth factor appeared to be that of a family perspective. These are all models evident in the disability research literature and provide evidence for the validity of Q-method in disability research. Based on this opportunistic study, it would appear that Q-methodology is a useful tool for identifying different view points related to disability.

A Typology of Disability Harassment in Secondary Schools

ERIC Educational Resources Information Center

Holzbauer, Jerome J.; Conrad, Clifton F.

2010-01-01

The purpose of this exploratory study of disability harassment was to develop a typology of disability harassment experiences anchored in the perspectives of students with disabilities who have experienced harassment in urban, suburban, and exurban-rural schools. Based on focus group interviews with four groups of young people with various…

Transition Follow-Up System Development for Youth with Disabilities: Stakeholders' Perspectives

ERIC Educational Resources Information Center

Park, Youn-Young

2014-01-01

In this study I examined in depth the perspectives of stakeholders in Manitoba on the development and implementation of a transition follow-up system (TFS) for youth with disabilities. I conducted focus groups and individual interviews with a total of 76 stakeholders and obtained qualitative data. The stakeholders who participated in this study…

Family and Staff Perspectives on Service Use for Individuals with Intellectual Disabilities in Crisis

ERIC Educational Resources Information Center

McMorris, Carly A.; Weiss, Jonathan A.; Cappelletti, Gabriella; Lunsky, Yona

2013-01-01

Carers of individuals with an intellectual disability are often responsible for managing their children's psychiatric crises when they arise. The purpose of this study was to examine the experiences of families using crisis and short-term transitional supports from the perspectives of families and of crisis and transitional support staff. Three…

Preservice Early Childhood Educators' and Elementary Teachers' Perspectives on Including Young Children with Developmental Disabilities: A Mixed Methods Analysis

ERIC Educational Resources Information Center

Frankel, Elaine B.; Hutchinson, Nancy L.; Burbidge, Julie; Minnes, Patricia

2014-01-01

This mixed methods study reports on the perspectives of 143 preservice early childhood educators (ECE) and 208 elementary teacher candidates (TC) on teaching children with developmental disabilities and delays (DDD) in inclusive classrooms. A questionnaire was administered which included items on demographic characteristics, experience, knowledge,…

When Your "Problem" Becomes Mine: Adult Female Siblings' Perspectives of Having a Brother with a Disability

ERIC Educational Resources Information Center

Pompeo, Michelle N.

2009-01-01

This study is a retrospective look at adult female siblings' perspectives of their childhoods and present identities based on having a brother with a disability. This paper focuses on siblings' experiences within educational and public domains, and how such experiences have shaped their personalities and career choices. Qualitative findings were…

Walking the Talk: Towards a More Inclusive Field of Disability Studies

ERIC Educational Resources Information Center

Opini, Bathseba

2016-01-01

This paper is a conversation about growing an inclusive field of disability studies. The paper draws on data collected through an analysis of existing disability studies programmes in selected Canadian universities. The paper makes a case for including diverse perspectives, experiences, viewpoints, and voices in these programmes. In this work, I…

Perspectives on quality of care for people who experience disability.

PubMed

Fadyl, Joanna K; McPherson, Kathryn M; Kayes, Nicola M

2011-01-01

Quality of care is considered to be of central importance in healthcare, disability services and rehabilitation. People experiencing disability often access a range of health and social care services; for some, these services are integral parts of daily life. Little research has explored perspectives of disabled people regarding what constitutes good quality care. This qualitative study aimed to explore and synthesise these perspectives to build a better picture of what constitutes good-quality care for disabled people in New Zealand. Qualitative focus groups and interviews were conducted with a range of participants including people with physical, sensory and/or intellectual impairment; informal and formal carers; and health and social care professionals. Data analysis used constant comparison methods as described in Strauss and Corbin (1998) to determine the factors of most importance and how they contributed to quality of care in health and social care services from the perspectives of people who use these services. Thirty-one participants took part, representing a range of ages and disabilities. Three main themes identified from data analysis were: (1) technical competence of care service and professionals; (2) a 'human' approach to service provision; and (3) context-appropriate response to needs. Findings offer a service-user perspective on what makes a difference to quality of care for people experiencing disability. They suggest that to provide context-appropriate care which addresses individual needs, the right mix of technical competence and a 'human' approach to care is needed. The mix required for the 'right' balance may depend on the type of service.

Towards Socially Just Pedagogies: Deleuzoguattarian Critical Disability Studies

ERIC Educational Resources Information Center

Goodley, Dan

2007-01-01

Socially just pedagogies call for sensitivity to politics and culture. In this paper I will uncover some key challenges in relation to working pedagogically with disabled people through the exploration of a critical disability studies perspective. First, I will unpack some of the assumptions that underpin educational understandings of…

The Challenge and Challenging of Childhood Studies? Learning from Disability Studies and Research with Disabled Children

ERIC Educational Resources Information Center

Tisdall, E. Kay M.

2012-01-01

Childhood studies have argued for the social construction of childhood, respecting children and childhood in the present, and recognising children's agency and rights. Such perspectives have parallels to, and challenges for, disability studies. This article considers such parallels and challenges, leading to a (re)consideration of research claims…

Perspectives of employees with intellectual disabilities on themes relevant to their job satisfaction. an explorative study using photovoice.

PubMed

Akkerman, Alma; Janssen, Cees G C; Kef, Sabina; Meininger, Herman P

2014-11-01

This study explored the perspectives of people with intellectual disabilities on themes relevant to their job satisfaction in integrated and sheltered employment. The photovoice method was used. Nine participants with moderate to mild intellectual disabilities, working in integrated and sheltered employment, took pictures of aspects related to their job satisfaction. Each participant was subsequently interviewed about his/her pictures. Interview transcripts were content analysed to distinguish themes. Nine themes were found: the nature of the work itself, working conditions, experienced job demands, social relations at work, received support, perceived autonomy, opportunities for using competencies, opportunities for growth and development and meaningfulness. All themes were applicable in integrated and sheltered employment. From the perspective of people with intellectual disabilities, various themes relate to their job satisfaction, either in positive or negative ways. Photovoice appeared to be a valuable approach, facilitating participants in expressing their views and providing in-depth information. © 2014 John Wiley & Sons Ltd.

Longitudinal Perspectives of Child Positive Impact on Families: Relationship to Disability and Culture

ERIC Educational Resources Information Center

Blacher, Jan; Begum, Gazi F.; Marcoulides, George A.; Baker, Bruce L.

2013-01-01

This study examined mothers' perceptions of the positive impact of having a child with an intellectual disability. Trajectories of positive impact from 7 time points were developed using latent growth modeling and 2 predictors: culture (Anglo, Latino) and child disability status (intellectual disability, typical development). Data were from 219…

Assistance to Pupils with Physical Disabilities in Regular Schools: Promoting Inclusion or Creating Dependency?

ERIC Educational Resources Information Center

Egilson, Snaefridur Thora; Traustadottir, Rannveig

2009-01-01

Drawing on the perspectives of pupils with physical disabilities, their parents and teachers, this study explored the adult support provided to pupils with physical disabilities in regular schools. Data were collected through observations at schools and qualitative interviews. In all, 49 individuals participated in this study: 14 pupils with…

Violent Video Games and the Military: Recruitment, Training, and Treating Mental Disability

ERIC Educational Resources Information Center

Derby, John

2014-01-01

This article adds to the small collection of art education studies on video games (Parks, 2008; Patton, 2013; Sweeny, 2010) by critically examining the association between violent video games, the U.S. military, and mental disability--from a critical disability studies perspective. Derby overviews the controversies surrounding violent video games…

Social Security Disability Programs: An International Perspective, Austria, Canada, Finland, Israel, Sweden, Netherlands, Federal Republic of Germany, England. Monograph Number Forty-One.

ERIC Educational Resources Information Center

Berkowitz, Monroe; And Others

The papers in this volume synthesize international disability policies, providing a cross-national perspective on disability definitions, the criteria for entitlement to disability benefits, and measures to facilitate a return to work for disabled individuals. Two papers, which were presented at the International Research Conference on Social…

Navigating Disability and Related Services: Stories of Immigrant Families

ERIC Educational Resources Information Center

Cummings, Katrina P.; Hardin, Belinda J.

2017-01-01

Cultural beliefs, values, language differences, and unfamiliar educational infrastructures and practices can impact immigrant parents' capacity to support their children with disabilities in their new country. This study presents perspectives of disability and experiences with special education services based on interviews with eight immigrant…

Family Caregivers' Perspectives on Barriers and Facilitators of Cervical and Breast Cancer Screening for Women with Intellectual Disability

ERIC Educational Resources Information Center

Swaine, Jamie G.; Dababnah, Sarah; Parish, Susan L.; Luken, Karen

2013-01-01

Women with intellectual disability do not receive cervical and breast cancer screening at the same number as women without disabilities. Numerous barriers to receipt of screening have been reported by individuals with intellectual disability, paid caregivers, nurses, and other medical professionals. This study utilized semi-structured qualitative…

A Preliminary Study of Perceived Stress in Adults with Intellectual Disabilities According to Self-Report and Informant Ratings

ERIC Educational Resources Information Center

Lunsky, Yona; Bramston, Paul

2006-01-01

Background: Stress is a major risk factor for mental health problems in individuals with intellectual disabilities, however few studies on stress have been conducted that take into account the perspective of both the person with the disability and the caregiver. The present study evaluated an informant version of the "Lifestress Inventory," and…

Disability and the Necessity for a Socio-Political Perspective. Monograph #51.

ERIC Educational Resources Information Center

Barton, Len; And Others

This monograph on international disability issues offers three main papers giving English, Australian, and New Zealand viewpoints. The first paper is by Len Barton from England and is titled "Disability and the Necessity for a Socio-Political Perspective." Barton attacks the medical model of disability and argues that people with…

Family Perspectives on Post-Secondary Education for Students with Intellectual Disabilities

ERIC Educational Resources Information Center

Griffin, Megan M.; McMillan, Elise D.; Hodapp, Robert M.

2010-01-01

This study investigated the issues that families consider when making decisions regarding post-secondary education (PSE) for young adults with intellectual disabilities. Survey respondents were 108 family members of transition-aged students with intellectual disabilities. Although respondents were generally positive about PSE programs, they…

Gender and Attitudes toward People Using Wheelchairs: A Multidimensional Perspective

ERIC Educational Resources Information Center

Vilchinsky, Noa; Werner, Shirli; Findler, Liora

2010-01-01

This study aims to investigate the effect of observer's gender and target's gender on attitudes toward people who use wheelchairs due to a physical disability. Four hundred four Jewish Israeli students without disabilities completed the "Multidimensional Attitudes Scale Toward Persons With Disabilities" (MAS). Initially, confirmatory…

Perspectives of Young Adults with Disabilities on Leadership

ERIC Educational Resources Information Center

Carter, Erik W.; Swedeen, Beth; Walter, Martha J.; Moss, Colleen K.; Hsin, Ching-Ting

2011-01-01

Increasingly, researchers have linked greater self-determination capacities to improved postsecondary outcomes for youth with disabilities. Although leadership is one component of self-determination, little is known about how youth and young adults with disabilities define, develop, and demonstrate leadership. In this qualitative interview study,…

Experiences of Students with Disabilities in a Public University in Jordan

ERIC Educational Resources Information Center

Al-Hmouz, Hanan

2014-01-01

The study examined students with disabilities perspectives toward their experiences in a public University in Jordan using a survey approach. The aim of this study was to take a closer look at the experiences of students with disabilities in Jordan and, in light of new legislation, to identify obstacles in the higher education system. It found…

Adults with Mild Intellectual Disabilities' Experiences of Mental Health Problems: A Qualitative Study Using Interpretative Phenomenological Analysis

ERIC Educational Resources Information Center

Tomlinson, Samantha; Hewitt, Olivia

2018-01-01

Research addressing people with intellectual disabilities' experiences of mental health problems has mainly focused on the perspectives of family members or professionals, or has been driven by service evaluation. Few studies have sought the views of people with intellectual disabilities about their own mental health experiences. This study…

"I'm Still Here": Exploring What Matters to People with Intellectual Disability during Advance Care Planning

ERIC Educational Resources Information Center

McKenzie, Nicola; Mirfin-Veitch, Brigit; Conder, Jennifer; Brandford, Sharon

2017-01-01

Background: This study sought to identify, from the perspective of people with intellectual disabilities and life limiting conditions, the factors that strengthened and inhibited their Advance Care Planning. Methods: This in depth qualitative study explored the experiences of four people with intellectual disability and life limiting conditions,…

Internet Use, Risks and Online Behaviour: The View of Internet Users with Intellectual Disabilities and Their Caregivers

ERIC Educational Resources Information Center

Chiner, Esther; Gómez-Puerta, Marcos; Cardona-Moltó, María Cristina

2017-01-01

Background: Internet offers opportunities to people with intellectual disabilities, but it also involves some risks. The aim of this study was to explore these issues considering caregivers and people with intellectual disabilities' perspectives. Materials and Methods: A descriptive, cross-sectional study was conducted. The sample consisted of 77…

Perceptions towards disability among social work students in Israel: Development and validation of a new scale.

PubMed

Holler, Roni; Werner, Shirli

2018-05-01

Over the last decades, the disability movement has been advocating for a paradigmatic shift in how disability is perceived and managed: from a medical or individual perspective focusing on the person's body and mind to a social perspective emphasizing the context and barriers of disability. However, we still know little about the perceptions of helping professionals, particularly social workers who work closely with disabled people. Thus, the aim of the current study is to develop and validate a scale-Perceptions Toward Disability Scale (PTDS)-to measure how social workers view disability: as an individual or social category. This paper describes the three phases of the scale's construction. First, scale items were formulated and its content validity was examined. Next, a pilot of 30 social workers completed a questionnaire and an initial exploratory factor analysis was conducted. In the third and main phase, the final draft was completed in 2016 by 565 Israeli social work students to assess its psychometric properties. Both exploratory and confirmatory factorial validity and discriminant validity analyses were conducted. The results of a confirmatory factor analysis revealed two distinct factors: an individual perspective of disability comprised of eight items (α = 0.77) and a social perspective of disability comprised of ten (α = 0.66). Subsequent analyses supported the scale's discriminant validity as indicated by the lack of an association between the Attitude Toward Disabled Persons Scale (ATDP) and the social model subscale (r = .13, p = .19) and by the weak negative relation with the individual model subscale (r = -.25, p = .01). These findings show that the PTDS possesses promising construct validity and provide support for its utility. This easy-to-administer instrument offers several practical benefits and can serve as a framework for further empirical research regarding social work practice with disabled people. © 2018 John Wiley & Sons Ltd.

A Common Open Space or a Digital Divide? A Social Model Perspective on the Online Disability Community in China

ERIC Educational Resources Information Center

Guo, Baorong; Bricout, John C.; Huang, Jin

2005-01-01

This paper explores the use and impact of the Internet by disabled people in China, informed by the social model of disability. Based on survey data from 122 disabled individuals across 25 provinces in China, study findings suggest that there is an emerging digital divide in the use of Internet amongst the disability community in China. Internet…

Exploration of the academic lives of students with disabilities at South African universities: Lecturers’ perspectives

PubMed Central

2017-01-01

Background A decade has passed since South Africa signed and ratified the Convention on the Rights of Persons with Disabilities, a human rights treaty that protects the rights and dignity of people with disabilities. However, not much have changed for students with disabilities. Objectives The aim of this study was to explore lecturers’ experiences with, and perspectives on, disability as well as with students with disabilities. It was hoped that this would contribute to the ongoing policy debates about diversity, inclusion and support for students with disabilities at universities. Methods In an effort to understand the lives of students with disabilities better, a study which included students with disabilities, lecturers and disability supporting staff was conducted at two South African universities – University of the Free State and University of Venda. The paper takes a snapshot view of four lecturers and their perceptions of the lives of students with disabilities at their respective universities. Results and Conclusion Although most disability literature report students with disabilities blaming lecturers for their failure to advance their needs, this paper highlights that the education system needs to be supportive to lecturers for the inclusive agenda to be realised. An argument is made for a more comprehensive approach towards a national disability policy in higher education involving many stakeholders. Without a broader understanding of disability, it will be difficult to engage with the complex ways in which inequalities emerge and are sustained. PMID:28730069

Inclusion of Children With Disabilities in Physical Education: A Systematic Review of Literature From 2009 to 2015.

PubMed

Wilhelmsen, Terese; Sørensen, Marit

2017-07-01

This systematic review examines research published from 2009 to 2015 on inclusion of children with disabilities in physical education according to the PRISMA guidelines. We have used a stakeholder approach as a framework for organizing and discussing the results. The searches yielded 535 studies, of which 112 were included. The systematic review outlines which stakeholder perspectives received the most attention, the main themes and findings, the methodological trends that governed the research contribution, and the country of data collection. The main findings indicated that perspectives of pre- and in-service teachers and studies of attitudes still dominate the research contributions. The strengths and limitations of the research conducted to date highlight that several other perspectives need to be discussed. Especially important is seeking information from children with disabilities themselves. Other barriers and facilitators perceived by those actively involved in the inclusion process need to be sought.

Teacher Counternarratives: Transgressing and "Restorying" Disability in Education

ERIC Educational Resources Information Center

Broderick, Alicia A.; Hawkins, Greta; Henze, Stefanie; Mirasol-Spath, Corinthia; Pollack-Berkovits, Rachel; Clune, Holly Prozzo; Skovera, Elizabeth; Steel, Christina

2012-01-01

This inquiry aims to explore the disconnect between the disability studies in education (DSE) perspectives on inclusive schooling held by a group of dually certified inclusive educators and the everyday, lived experiences of these same teachers who find themselves teaching students with labelled disabilities within the confines of the special…

The Learning Disabled Adolescent: Eriksonian Psychosocial Development, Self-Concept, and Delinquent Behavior.

ERIC Educational Resources Information Center

Pickar, Daniel B.; Tori, Christopher D.

1986-01-01

Using a developmental perspective, this study contrasted learning and nonlearning disabled adolescents on three variables: Erikson's stages of psychosocial development; self-concept; and delinquent behavior. The results indicated that the learning disabled subjects, due to years of failing, were unable to develop a sense of industry and…

Imposed Identities and Limited Opportunities: Advocacy Agency Staff Perspectives on the Construction of their Clients with Intellectual Disabilities

ERIC Educational Resources Information Center

Dorozenko, Kate P.; Roberts, Lynne D.; Bishop, Brian J.

2015-01-01

Intellectual disability is commonly conceptualised as stigmatised identity; however, within the literature, the notion of a damaged identity is contested. The aim of this research was to explore the social construction of intellectual disability from the perspective of staff who work closely with people with intellectual disabilities. Informed by…

The Experience of Adult Children of Mothers with Intellectual Disability: A Qualitative Retrospective Study from Poland

ERIC Educational Resources Information Center

Wolowicz-Ruszkowska, Agnieszka; McConnell, David

2017-01-01

Background: Little is known about the experience of growing up with a mother with intellectual disability. The aim of this study was to explore this experience from the perspective of adult children. Method: In-depth interviews with 23 adult children brought up by mothers with moderate-to-severe intellectual disability. The interview data were…

Quality of care, quality of life, and attitudes toward disabilities: perspectives from a qualitative focus group study in Porto Alegre, Brazil.

PubMed

Mattevi, Betina S; Bredemeier, Juliana; Fam, Cláudia; Fleck, Marcelo P

2012-03-01

To explore the concepts of quality of life (QOL), quality of care (QOC), and attitudes toward disabilities in Porto Alegre, Brazil, from the perspective of people living with disabilities, including their relatives and caregivers. This was a qualitative study that interviewed a total of 23 participants in five focus groups, during May-August 2006. After an open discussion about QOL, the WHOQOL-Bref, a generic questionnaire for the assessment of QOL, was presented to participants. The study was performed simultaneously in 15 international centers. Analysis was based on Bardin's content analysis. Regarding QOL, important themes that emerged were: work, education, leisure, universal accessibility, integration in the society, and social inclusion. Concerning QOC, professional qualifications, disabilities-related training for health and education professionals, and access to health services were considered important. Regarding attitudes toward disabilities, the participants perceived the attitudes of others, especially of caregivers, to significantly impact the QOL of people with disabilities. People living with disabilities value many of the same themes considered important by the general public; however, several additional themes specific to disabilities and specific to these groups of participants emerged. This information highlights the importance of taking into account the unique perceptions and cultural traits of the target population when measuring QOL, QOC, and attitudes toward disabilities.

Research and Global Perspectives in Learning Disabilities: Essays in Honor of William M. Cruickshank. The LEA Series on Special Education and Disability.

ERIC Educational Resources Information Center

Hallahan, Daniel P., Ed.; Keogh, Barbara K., Ed.

To honor the founder of the International Academy for Research in Learning Disabilities, William M. Cruickshank, this collection of essays reflects a range of perspectives on the "state of the art" in learning disabilities, documenting both commonalties and differences across countries. After an introduction, essays include: (1)…

"Dance Makes Me Happy": Experiences of Children with Disabilities in Elementary School Dance Education

ERIC Educational Resources Information Center

Zitomer, Michelle R.

2016-01-01

This study explored the perspectives of elementary school children with disabilities in inclusive dance education classrooms in two large school districts in Western Canada. A qualitative interpretivist approach facilitated understanding of the experiences of eight children with different disabilities between the ages 6 and 10 who participated in…

Culture as Ability: Organizing Enabling Educative Spaces for Humans and Animals

ERIC Educational Resources Information Center

Lloro-Bidart, Teresa

2015-01-01

Drawing on a multispecies ethnographic encounter with a physically disabled feral kitten, Whiskey, I take an intersectional theoretical approach to place disability studies in conversation with ecofeminist perspectives. In so doing I ask: How does a culture that produces disabled and unwanted humans render animals deserving of the same label? And…

Emergency Psychiatric Services for Individuals with Intellectual Disabilities: Perspectives of Hospital Staff

ERIC Educational Resources Information Center

Lunsky, Yona; Gracey, Carolyn; Gelfand, Sara

2008-01-01

Strains on the mainstream mental health system can result in inaccessible services that force individuals with intellectual disabilities into the emergency room (ER) when in psychiatric crisis. The purpose of this study was to identify clinical and systemic issues surrounding emergency psychiatry services for people with intellectual disabilities,…

Deconstructing Barriers: Perceptions of Students Labeled with Learning Disabilities in Higher Education

ERIC Educational Resources Information Center

Denhart, Hazel

2008-01-01

This phenomenological study investigated barriers to higher education faced by 11 college students labeled with learning disabilities (LD) using their voice as the primary data. Data were analyzed and interpreted through a disability theory perspective revealing barriers stemmed largely from external social causes rather than individual pathology.…

The Unintended Side Effects of Including Students with Learning Disabilities for Teacher Educators

ERIC Educational Resources Information Center

Griffin, Cynthia C.; Jones, Hazel A.; Kilgore, Karen L.

2007-01-01

The perspectives of general and special education teacher educators, who are nationally recognized for their work in the areas of learning disabilities, inclusive education, and teacher education, were explored. Study participants were asked to reveal how the inclusion of students with learning disabilities has impacted their professional lives in…

Whoever Shouts the Loudest: Listening to Parents of Children with Disabilities

ERIC Educational Resources Information Center

Ryan, Christian; Quinlan, Elizabeth

2018-01-01

Background: Elevated stress is common among parents of children with disabilities. The parents' perspective and evaluation of services have a significant impact on their well-being and adaptation to their child's disability and is a source of information for service improvements. This study explores parental perceptions of communication and…

Supporting Elementary Age Students with Significant Disabilities in General Education Classrooms: Personal Perspectives on Inclusion.

ERIC Educational Resources Information Center

Coots, Jennifer J.; Bishop, Kathryn D.; Grenot-Scheyer, Marquita

1998-01-01

Findings of a study in which four elementary general-education teachers commented on the inclusion of students with significant disabilities within general-education classrooms indicated that children with disabilities were described and observed as full classroom members. Difficulties were related to designing and implementing appropriate and…

Promoting Health of People with Intellectual Disabilities: Views of Professionals Working in Group Homes

ERIC Educational Resources Information Center

Wahlström, Lina; Bergström, Helena; Marttila, Anneli

2014-01-01

Deinstitutionalisation has influenced the life situation for people with intellectual disabilities, whilst the experiences of health promotion in group homes now are limited. This study aimed to explore aspects important to consider when promoting health amongst persons with intellectual disabilities in group homes, from the perspective of…

Understandings of participation in daily activity services among people with intellectual disabilities: A pedagogical sociocultural perspective.

PubMed

Svanelöv, Eric; Enarsson, Per; Flygare Wallén, Eva; Stier, Jonas

2017-01-01

This study sought to explore different understandings of participation in daily activity services among people with intellectual disabilities. Using a pedagogical sociocultural perspective, the research focused on individuals' perspectives and understandings as well as their account of social interaction, working and learning. In all, 17 people working in daily activity services were interviewed once, and, of these, 14 were interviewed a second time. Using qualitative content analysis, two themes and three categories were singled out. The results show that participation can be understood in two major ways: social interaction and performing work tasks.

Using Meta-Perspectives to Improve Equity and Inclusion

ERIC Educational Resources Information Center

Budd, Julia

2016-01-01

Equity for those experiencing disability is a complex real-world issue best studied by cross-disciplinary groups. However, these cross-disciplinary studies are often unsuccessful due to the different perspectives held by members of the cross-disciplinary group. Meta-perspectives have been found to help overcome the issues caused by these different…

A Literary Perspective on Learning Disabilities.

ERIC Educational Resources Information Center

Hildreth, Bertina L.

This critical review examines 18 books available to the general public about learning disabilities (LD) and offers guidelines for use of these books by professionals. Books are grouped into three categories: those written from the perspective of parents and individuals with learning disabilities, those written from an LD professional's…

Consensus statement of the International Summit on Intellectual Disability and Dementia on valuing the perspectives of persons with intellectual disability.

PubMed

Watchman, Karen; Janicki, Matthew P; Udell, Leslie; Hogan, Mary; Quinn, Sam; Beránková, Anna

2018-01-01

The International Summit on Intellectual Disability and Dementia covered a range of issues related to dementia and intellectual disability, including the dearth of personal reflections of persons with intellectual disability affected by dementia. This article reflects on this deficiency and explores some of the personal perspectives gleaned from the literature, from the Summit attendees and from the experiences of persons with intellectual disability recorded or scribed in advance of the two-day Summit meeting. Systemic recommendations included reinforcing the value of the involvement of persons with intellectual disability in (a) research alongside removing barriers to inclusion posed by institutional/ethics review boards, (b) planning groups that establish supports for dementia and (c) peer support. Practice recommendations included (a) valuing personal perspectives in decision-making, (b) enabling peer-to-peer support models, (c) supporting choice in community-dwelling arrangements and (d) broadening availability of materials for persons with intellectual disability that would promote understanding of dementia.

Reported Accommodations and Supports Provided to Secondary and Postsecondary Students with Disabilities: National Perspective

ERIC Educational Resources Information Center

Newman, Lynn A.; Madaus, Joseph W.

2015-01-01

There is a dearth of information on specific accommodations used by students with disabilities at the secondary and postsecondary levels. Using data from the National Longitudinal Transition Study-2, researchers examined a nationally representative cohort of 3,190 students with disabilities who reported that they had ever enrolled in a…

Detecting and Treating Depression in People with Mild Intellectual Disability: The Views of Key Stakeholders

ERIC Educational Resources Information Center

McGillivray, Jane A.; McCabe, Marita P.

2010-01-01

There is a pressing need for the development of programs for the early identification and treatment of depression in individuals with mild intellectual disability. The aim of this study was to ascertain the perspective of 64 key stakeholders (people with intellectual disability, healthcare professionals, family/caregivers & support workers)…

Predictors of Return to Work for People with Psychiatric Disabilities: A Private Sector Perspective

ERIC Educational Resources Information Center

Pluta, David J.; Accordino, Michael P.

2006-01-01

This investigation was a baseline study to determine if the speed of return to work could be predicted for people with psychiatric disabilities in a private sector setting. Participants with psychiatric disability claims who returned to work (N = 300) were obtained from a nationwide "Fortune 500" insurance company. The authors compared the speed…

School Social Workers' Needs in Supporting Adolescents with Disabilities toward Dating and Sexual Health: A Qualitative Study

ERIC Educational Resources Information Center

Adams Rueda, Heidi; Linton, Kristen F.; Williams, Lela Rankin

2014-01-01

School social workers approach their direct practice from ecological systems and justice-oriented perspectives. As such, they may hold a critical role in providing needed sexual health and dating education and services to adolescents with disabilities. Thirteen high school social workers who work closely with adolescents with disabilities were…

The Parent Perspective: Disabilities and Jewish Day Schools

ERIC Educational Resources Information Center

Uhrman, Abigail L.

2017-01-01

The following study describes the experiences of parents with a child with a disability in Jewish day schools. The findings suggest marked differences in the experiences of parents whose child was able to remain in the day school and those who left as a result of their child's disability. In the latter group, the themes of loneliness and…

A Family Perspective of the Value of a Diagnosis for Intellectual Disability: Experiences from a Genetic Research Study

ERIC Educational Resources Information Center

Statham, Helen; Ponder, Maggie; Richards, Martin; Hallowell, Nina; Raymond, Frances Lucy

2011-01-01

Many professionals working with individuals with intellectual disability are unconcerned with why someone has the impairment. Genetic aspects may be viewed as, at best irrelevant, but more often, potentially negative. However, where the intellectual disability may be inherited, there are implications for family members and the individual. The data…

"It's Different, but It's the Same": Perspectives of Young Adults with Siblings with Intellectual Disabilities in Residential Care

ERIC Educational Resources Information Center

Jacobs, Paula; MacMahon, Ken

2017-01-01

Background: Siblings often play significant roles in the lives of people with intellectual disabilities. This study aimed to give voice to young adults whose siblings have an intellectual disability and are in residential care. Materials and Methods: Six participants were interviewed, with interpretative phenomenological analysis methodology…

Family Care for Persons with Developmental Disabilities: A Growing Commitment.

ERIC Educational Resources Information Center

Agosta, J. M., Ed.; Bradley, V. J., Ed.

The report presents findings from a study of family-based care for persons with developmental disabilities. The first of four parts introduces the problems of family-based care and presents perspectives of parents and of persons with developmental disabilities. Part 2, on responding to the needs of families, includes a review of historical and…

Seeing the person? Disability theories and speech and language therapy.

PubMed

Jordan, L; Bryan, K

2001-01-01

The potential value of a framework enabling practitioners to conceptualise speech and language therapy from a range of perspectives engendered by different theories about disability is explored. Four disability research paradigms are used to categorise professional activities, whilst the 'individual' and 'social' models of disability are considered as alternative value systems. Challenges facing speech and language therapists in developing roles and services to embrace different perspectives are outlined.

Planning for outdoor play: Government and family decision-making.

PubMed

Sterman, Julia J; Naughton, Geraldine A; Bundy, Anita C; Froude, Elspeth; Villeneuve, Michelle A

2018-03-08

Despite indisputable developmental benefits of outdoor play, children with disabilities can experience play inequity. Play decisions are multifactorial; influenced by children's skills and their familial and community environments. Government agencies have responsibilities for equity and inclusion of people with disabilities; including in play. This multiple-perspective case study aimed to understand outdoor play decision-making for children with disabilities from the perspectives and interactions of: local government and families of primary school-aged children with disabilities. Five mothers, four local government employees, and two not-for-profit organization representatives participated in semi-structured interviews. Inductive and iterative analyzes involved first understanding perspectives of individuals, then stakeholders (local government and families), and finally similarities and differences through cross-case analysis. Local government focused more on physical access, than social inclusion. Local government met only minimal requirements and had little engagement with families. This resulted in poor understanding and action around family needs and preferences when designing public outdoor play spaces. To increase meaningful choice and participation in outdoor play, government understanding of family values and agency around engagement with local government needs to improve. Supporting familial collective capabilities requires understanding interactions between individuals, play, disability, and outdoor play environments.

Art Education and Disability Studies Perspectives on Mental Illness Discourses

ERIC Educational Resources Information Center

Derby, John K.

2009-01-01

This dissertation critically examines mental illness discourses through the intersecting disciplinary lenses of art education and disability studies. Research from multiple disciplines is compared and theorized to uncover the ways in which discourses, or language systems, have oppressively constructed and represented "mental illness." To establish…

The Importance of Teaching Social-Emotional Learning to Intellectually Disabled Students

ERIC Educational Resources Information Center

Anderson, Vanna

2017-01-01

This study examined the difference between parents, teachers, and administrators' perspectives of intellectually disabled students' academic and social performance. The study's importance comes from the performance of students with exceptional needs who were unable to effectively communicate their social and emotional needs. The population…

End-of-Life Care for People with Intellectual Disabilities: Paid Carer Perspectives

ERIC Educational Resources Information Center

Ryan, Karen; Guerin, Suzanne; Dodd, Philip; McEvoy, John

2011-01-01

Background: Little is known of paid carers' perspectives when caring for people with intellectual disabilities at the end-of-life. Materials and methods: Sixty four individuals from intellectual disability services took part in 12 focus groups. Interviews were analysed using framework analysis. Results: Participants wanted to provide palliative…

Examining School Psychologists' Perspectives about Specific Learning Disabilities: Implications for Practice

ERIC Educational Resources Information Center

Cottrell, Joseph M.; Barrett, Courtenay A.

2017-01-01

Debate regarding the causes of specific learning disabilities (SLDs), precise definitions of SLDs, and the most effective identification methods has persisted for over 50 years. Two prominent schools of thought regarding SLDs exist: (1) biological perspectives and (2) environmental perspectives. Three identification methods are outlined in the…

Students with Learning Disabilities Perspective on Reading Comprehension Instruction: A Qualitative Inquiry

ERIC Educational Resources Information Center

Rose, Dale Rennard

2017-01-01

The three article dissertation was a presentation of students' with learning disabilities perspectives on reading comprehension instruction. Article 1 set out to provide an historical perspective of reading and reading comprehension instruction. Topics covered in this research review included: reading comprehension, reading and learning…

Forensic Psychiatric Perspective on Criminality Associated with Intellectual Disability: A Nationwide Register-Based Study

ERIC Educational Resources Information Center

Mannynsalo, L.; Putkonen, H.; Lindberg, N.; Kotilainen, I.

2009-01-01

Background: Contrasting views exist over the association of intellectual disability (ID) and criminal offending. This nationwide study attempts to shed further light to expand understanding to substantiate the relation between socio-demographic characteristics, psychiatric co-morbidity and criminal behaviour among the Finnish forensic population…

End-of-life ethics and disability: differing perspectives on case-based teaching.

PubMed

Kaufert, Joseph; Wiebe, Rhonda; Schwartz, Karen; Labine, Lisa; Lutfiyya, Zana Marie; Pearse, Catherine

2010-05-01

The way in which medical professionals engage in bioethical issues ultimately reflects the type of care such patients are likely to receive. It is therefore critical for doctors and other health care professionals to have a broad understanding of disability. Our purpose in this paper is to explore ways of teaching bioethical issues to first year medical students by integrating alternative approaches. Such approaches include (a) the use of the narrative format, (b) the inclusion of a disability perspective, and (c) the presentation and facilitation of classes by people with disabilities. We consider how these new kinds of presentations are evaluated by students, faculty, people with disabilities and professional ethicists. We hope new knowledge may provide health care professionals with a greater understanding of the perspectives of patients with disabilities, who are confronted by conflicting ethical values and frameworks for decision-making in their interaction with such professionals.

The Unintended Side Effects of Inclusion for Students with Learning Disabilities: The Perspectives of School Administrators

ERIC Educational Resources Information Center

Crockett, Jean B.; Myers, Susan T.; Griffin, Amy; Hollandsworth, Barry

2007-01-01

In this study focus group interviews were conducted with educational administrators to examine how the inclusion of students with learning disabilities has changed their professional lives in ways they did not expect, and how inclusion has changed the lives of students with learning disabilities and the lives of other students in their schools in…

Teacher Perspectives on the Impact of High-Stakes Testing on Students with Disabilities: A Grounded Theory Study

ERIC Educational Resources Information Center

Mayer, Tammy Marie

2017-01-01

The Individuals with Disabilities Education Act 1997 (IDEA), No Child Left Behind Act 2001 (NCLB), and Every Child Succeeds Act 2015 (ESSA) has changed how public schools adapt to standards and accountability systems for all students, including students with mild-to-significant cognitive disabilities. Federal legislation has changed the focus of…

Meeting the Challenge of Interpretation: Hearing the Voices of People with Intellectual and Developmental Disability through I-Poems

ERIC Educational Resources Information Center

Corby, Deirdre; Taggart, Laurence; Cousins, Wendy

2018-01-01

Including the inner perspectives of people who have intellectual disability can pose methodological challenges to qualitative researchers. This article explains how the Listening Guide was applied as an additional step in the analysis during a study which used hermeneutic interviews with people with intellectual disability as the sole method of…

Domains of Quality of Life of People with Profound Multiple Disabilities: The Perspective of Parents and Direct Support Staff

ERIC Educational Resources Information Center

Petry, Katja; Maes, Bea; Vlaskamp, Carla

2005-01-01

Background: This study considered the general validity of the basic domains of quality of life that appear in theoretical models, in relation to people with profound multiple disabilities. The authors examined how parents and direct support staff operationalized these basic domains for people with profound multiple disabilities. They investigated…

High School-Aged Youths' Attitudes Toward Their Peers with Disabilities: The Role of School and Student Interpersonal Factors

ERIC Educational Resources Information Center

McDougall, Janette; DeWit, David J.; King, Gillian; Miller, Linda T.; Killip, Steve

2004-01-01

Negative peer attitudes are generally recognised as being a major barrier to full social inclusion at school for children and youth with disabilities. The present study examined the attitudes of 1,872 grade nine high school students in Ontario, Canada toward their peers with disabilities. A bioecological perspective and a structural equation…

High School-Aged Youths' Attitudes toward Their Peers with Disabilities: The Role of School and Student Interpersonal Factors

ERIC Educational Resources Information Center

McDougall, Janette; DeWit, David J.; King, Gillian; Miller, Linda T.; Killip, Steve

2004-01-01

Negative peer attitudes are generally recognised as being a major barrier to full social inclusion at school for children and youth with disabilities. The present study examined the attitudes of 1,872 grade nine high school students in Ontario, Canada toward their peers with disabilities. A bioecological perspective and a structural equation…

Exploring participatory behaviour of disability benefit claimants from an insurance physician's perspective.

PubMed

Sjobbema, Christiaan; van der Mei, Sijrike; Cornelius, Bert; van der Klink, Jac; Brouwer, Sandra

2018-08-01

In the Dutch social security system, insurance physicians (IPs) assess participatory behaviour as part of the overall disability claim assessment. This study aims to explore the views and opinions of IPs regarding participatory behaviour as well as factors related to inadequate participatory behaviour, and to incorporate these factors in the International Classification of Functioning, Disability and Health (ICF) biopsychosocial framework. This qualitative study collected data by means of open-ended questions in 10 meetings of local peer review groups (PRGs) which included a total of 78 IPs of the Dutch Social Security Institute. In addition, a concluding discussion meeting with 8 IPs was organized. After qualitative data analyses, four major themes emerged: (1) participation as an outcome, (2) efforts of disability benefit claimants in the process of participatory behaviour, (3) beliefs of disability benefit claimants concerning participation, and (4) recovery behaviour. Identified factors of inadequate participatory behaviour covered all ICF domains, including activities, environmental, and personal factors, next to factors related to health condition and body functions or structures. Outcomes of the discussion meeting indicated the impossibility of formulating general applicable criteria for quantifying and qualifying participatory behaviour. Views of IPs on disability benefit claimants' (in)adequate participatory behaviour reflect a broad biopsychosocial perspective. IPs adopt a nuanced tailor-made approach during assessment of individual disability benefit claimants' participatory behaviour and related expected activities aimed at recovery of health and RTW. Implications for Rehabilitation Within a biopsychosocial perspective, it is not possible to formulate general criteria for the assessment of participatory behaviour for each unique case. Individual disability benefit claimant characteristics and circumstances are taken into account. To optimize the return-to-work (RTW) process, insurance physicians (IPs) assess participatory behaviour according to the International Classification of Functioning, Disability and Health, including medical, personal, and environmental factors. Some aspects within the concept of participatory behaviour extend beyond the boundaries of the domain where IPs operate because opinions in society on personal and societal responsibility influence participatory behaviour.

‘It’s my home and your work’: the views of a filmed vignette describing a challenging everyday situation from the perspective of people with intellectual disabilities

PubMed Central

Hellzen, Ove; Haugenes, Marit; Østby, May

2018-01-01

ABSTRACT Purpose: Examining everyday challenges in the interactions between people with intellectual disabilities and their staff, as seen from the user’s perspective, is an important perspective in health care research. Involving people with intellectual disabilities as so-called co-researchers is a relatively unexplored research strategy. In this paper, co-researchers participated in all the steps of the research process, from planning to reporting, in addition to the written reporting of the findings. The aim of this study was to explore how people with intellectual disabilities experienced a filmed vignette of an everyday situation. Method: Based on audio-recorded and transcribed individual and focus-group interviews with people with intellectual disabilities, performed by co-researchers with intellectual disabilities together with researchers, qualitative content analysis was used. Results: The analysis reveals three themes: “being emotionally touched”, “being aware of the other”, and “being unclear”. Conclusions: The results are discussed in light of normalization and participation in society with independence and one’s own decision-making. Regarding the care of people with intellectual disabilities, the main finding is the need to focus not only on greater involvement of this population in their own daily lives, but also to teach self-determination skills. Another finding is the importance of involving people with intellectual impairment as co-researchers. PMID:29733261

Issues Using the Life History Calendar in Disability Research

PubMed Central

Scott, Tiffany N.; Harrison, Tracie

2011-01-01

Background Overall, there is a dearth of research reporting mixed-method data collection procedures using the LHC within disability research. Objective This report provides practical knowledge on use of the life history calendar (LHC) from the perspective of a mixed-method life history study of mobility impairment situated within a qualitative paradigm. Methods In this paper the method related literature referring to the LHC was reviewed along with its epistemological underpinnings. Further, the uses of the LHC in disability research were illustrated using preliminary data from reports of disablement in Mexican American and Non-Hispanic White women with permanent mobility impairment. Results From our perspective, the LHC was most useful when approached from an interpretive paradigm when gathering data from women of varied ethnic and socioeconomic strata. While we found the LHC the most useful tool currently available for studying disablement over the life course, there were challenges associated with its use. The LHC required extensive interviewer training. In addition, large segments of time were needed for completion depending on the type of participant responses. Conclusions Researchers planning to conduct a disability study may find our experience using the LHC valuable for anticipating issues that may arise when the LHC is used in mixed-method research. PMID:22014674

Encouraging the Development of Disability Allies

ERIC Educational Resources Information Center

Evans, Nancy J.; Assadi, Jennifer L.; Herriott, Todd K.

2005-01-01

The authors advocate for a constructionist interpretation of disability, grounded in a social justice perspective, by discussing disability paradigms, factors that influence attitudes and attitude change regarding disability, and disability ally development and behaviors.

Same law-same rights? Analyzing why Sweden's disability legislation failed to create equal rights in mental health.

PubMed

Maycraft Kall, Wendy

2014-01-01

This article analyzed the apparent paradox of disability rights in Sweden. Despite strong welfare state traditions and stated Government ambitions to create generous statutory entitlements for all disabled people using a single, comprehensive Disability Act, psychiatric disabilities were principally excluded from the Disability Act's rights and provisions. The study focused on Sweden's Mental Health Reform and Disability Reform using governance perspectives that traced and analyzed the policy-processes of both reforms. Theoretically guided analytical frameworks were developed to help understand the divergent reform outcomes. The first focused on legislative arguments of regulatory specificity and legal enforcement mechanisms to consider whether the Disability Act was formulated in a manner that was easier to apply to certain disabilities. The second analyzed ideological arguments and the influence of Government political beliefs that signaled specific reform 'visions' to implementers and thereby influenced policy implementation. The main findings are that both perspectives matter as the dual influences of legislative and ideological differences tended to exclude mental health service users from the Act's generous disability rights. The overall conclusion was that while legislation was an important regulatory mechanism, the Government's underlying ideological reform vision was also an essential governance instrument that signaled Government intentions to implementing agencies and thus influenced the creation of enduring disability rights. Copyright © 2014 Elsevier Ltd. All rights reserved.

Advocacy for Children with Social-Communication Needs: Perspectives from Parents and School Professionals

ERIC Educational Resources Information Center

Burke, Meghan M.; Meadan-Kaplansky, Hedda; Patton, Kimberly A.; Pearson, Jamie N.; Cummings, Katrina P.; Lee, Chung eun

2018-01-01

Although parents of children with disabilities often advocate for special education services, most research has only examined advocacy from the perspectives of parents. Given that advocacy is an interpersonal exchange, it is crucial to understand the perspectives of parents and school professionals. In this study, focus groups were conducted with…

Qualities in Friendship--Within an Outside Perspective--Definitions Expressed by Adolescents with Mild Intellectual Disabilities

ERIC Educational Resources Information Center

Sigstad, Hanne Marie Høybråten

2017-01-01

Background: This study examined how adolescents with mild intellectual disabilities define qualities of friendship and discussed the extent to which these definitions adhere to established definitions of close friendship. Materials and Methods: The study was based on qualitative interviews with 11 adolescents in secondary school. The interviews…

Deciding about Sterilisation: Perspectives from Women with an Intellectual Disability and Their Families in Taiwan

ERIC Educational Resources Information Center

Chou, Y-C.; Lu, Z-Y.

2011-01-01

Background: This qualitative study explores decision-making regarding sterilisation for women with intellectual disabilities (ID) living with their families, including how such decisions are made and who is involved in the decision-making. Methods: Eleven families including sterilised women with ID participated in the study. Semi-structured…

Literacy Education and Disability Studies: Reenvisioning Struggling Students

ERIC Educational Resources Information Center

Collins, Kathleen; Ferri, Beth

2016-01-01

In this commentary, the authors present disability studies in education (DSE) as an alternative way to reframe, understand, and teach students who are positioned as struggling in literacy classrooms. As the authors detail, a DSE perspective changes the relationship between teachers and students to a more reciprocal one, and in doing so, it…

Career Development Factors for Minority Disability and Health Research Leaders: A Key Informant Study

ERIC Educational Resources Information Center

Manyibe, Edward O.; Moore, Corey L.; Wang, Ningning; Davis, Dytisha; Aref, Fariborz; Washington, Andre L.; Johnson, Jean; Eugene-Cross, Kenyotta; Muhammad, Atashia; Lewis, Allen

2017-01-01

Purpose: This study examined and documented minority disability and health research leaders' experiences and perspectives on career development challenges and success strategies. Methods: A sample of 15 African American, American Indian or Alaskan Native, Latino, and Asian research leaders as key informants participated in the inquiry. Research…

What Disability? I Am a Leader! Understanding Leadership in HE from a Disability Perspective

ERIC Educational Resources Information Center

Emira, Mahmoud; Brewster, Stephanie; Duncan, Neil; Clifford, Angela

2018-01-01

This article is based on the findings of an externally funded, mixed-methods research project conducted at one English university. This small-scale project aimed to examine leadership, barriers to becoming a leader and the support needed to overcome them, from the perspectives of disabled staff. An online questionnaire was sent to all 66 members…

Why Educators Support Self-Determination for Students with Disabilities [and] Why Families Support Self-Determination for Students with Disabilities.

ERIC Educational Resources Information Center

Minnesota Univ., Minneapolis. Inst. on Community Integration.

Two brief papers provide reasons to support self-determination for students with disabilities, with one paper written from the perspective of educators and one written from the parents' perspective. Each paper discusses 11 benefits of self-determination, including: (1) personal control, (2) motivation, (3) prosocial behaviors, (4) self-awareness,…

Improving Services for People with Learning Disabilities and Dementia: Findings from a Service Evaluation Exploring the Perspectives of Health and Social Care Professionals

ERIC Educational Resources Information Center

Chapman, Melanie; Lacey, Huma; Jervis, Nicola

2018-01-01

Background: Dementia prevalence rates are higher amongst people with learning disabilities than the general population. People with Down's syndrome are at even greater risk of developing dementia and of developing dementia at an earlier age. This study, conducted as part of a wider service evaluation, explored community learning disability team…

Play-Based Interview Methods for Exploring Young Children's Perspectives on Inclusion

ERIC Educational Resources Information Center

Koller, Donna; San Juan, Valerie

2015-01-01

Inclusive education provides learning opportunities for children with disabilities in regular settings with other children. Despite the prevalence of inclusive education, few qualitative studies have adequately explored young children's perspectives on inclusion. This paper reviews the findings of a preliminary qualitative study where play-based…

Public Attitudes towards Intellectual Disability: A Multidimensional Perspective

ERIC Educational Resources Information Center

Morin, D.; Rivard, M.; Crocker, A. G.; Boursier, C. P.; Caron, J.

2013-01-01

Background: Public attitudes towards persons with intellectual disabilities (IDs) have a significant effect on potential community integration. A better understanding of these can help target service provision and public awareness programmes. Objectives: The objective of the present study is threefold: (1) describe public attitudes towards persons…

Barriers and Facilitators of Physical Education Participation for Students with Disabilities: An Exploratory Study

ERIC Educational Resources Information Center

Haegele, Justin; Zhu, Xihe; Davis, Summer

2018-01-01

The purpose of this study was to explore the barriers and facilitators to participation in physical education (PE) for students with disabilities (SWD) from the perspectives of in-service physical educators. A convenience sample of 168 physical educators (72% female, 94% Caucasian) from the United States completed a short questionnaire. After data…

A Case Study of a Volunteer-Based Literacy Class with Adults with Developmental Disabilities

ERIC Educational Resources Information Center

Lynch, Jacqueline

2013-01-01

The purpose of this study was to examine participants' perspectives on how a volunteer-based adult literacy class supports the learning of adults with developmental/intellectual disabilities. Interviews were conducted with four tutors, three adult learners, and two coordinators and observations of the class occurred over a 6-month period during…

Putting episodic disability into context: a qualitative study exploring factors that influence disability experienced by adults living with HIV/AIDS

PubMed Central

2009-01-01

Background An increasing number of individuals may be living with the health-related consequences of HIV and its associated treatments, a concept we term disability. However, the context in which disability is experienced from the HIV perspective is not well understood. The purpose of this paper is to describe the contextual factors that influence the experiences of disability from the perspective of adults living with HIV. Methods We conducted four focus groups and 15 face-to-face interviews with 38 men and women living with HIV. We asked participants to describe their health-related challenges, the physical, social and psychological areas of their life affected, and the impact of these challenges on their overall health. We also conducted two validity check focus groups with seven returning participants. We analyzed data using grounded theory techniques to develop a conceptual framework of disability for adults living with HIV, called the Episodic Disability Framework. Results Contextual factors that influenced disability were integral to participants' experiences and emerged as a key component of the framework. Extrinsic contextual factors included social support (support from friends, family, partners, pets and community, support from health care services and personnel, and programme and policy support) and stigma. Intrinsic contextual factors included living strategies (seeking social interaction with others, maintaining a sense of control over life and the illness, "blocking HIV out of the mind", and adopting attitudes and beliefs to help manage living with HIV) and personal attributes (gender and aging). These factors may exacerbate or alleviate dimensions of HIV disability. Conclusion This framework is the first to consider the contextual factors that influence experiences of disability from the perspective of adults living with HIV. Extrinsic factors (level of social support and stigma) and intrinsic factors (living strategies and personal attributes) may exacerbate or alleviate episodes of HIV-related disability. These factors offer a broader understanding of the disability experience and may suggest ways to prevent or reduce disability for adults living with HIV. PMID:19900284

Disability and recovery in schizophrenia: a systematic review of cognitive behavioral therapy interventions.

PubMed

Nowak, Izabela; Sabariego, Carla; Świtaj, Piotr; Anczewska, Marta

2016-07-11

Schizophrenia is a disabling disease that impacts all major life areas. There is a growing need for meeting the challenge of disability from a perspective that extends symptomatic reduction. Therefore, this study aimed to systematically review the extent to which traditional and "third wave" cognitive - behavioral (CBT) interventions address the whole scope of disabilities experienced by people with lived experience of schizophrenia using the WHO's International Classification of Functioning, Disability and Health (ICF) as a frame of reference. It also explores if current CBT interventions focus on recovery and what is their impact on disability domains. Medline and PsycINFO databases were searched for studies published in English between January 2009 and December 2015. Abstracts and full papers were screened against pre-defined selection criteria by two reviewers. Methodological quality of included studies was assessed by two independent raters using the Effective Public Health Practice Project Quality assessment tool for quantitative studies (EPHPP) guidelines. A total of 50 studies were included, 35 studies evaluating traditional CBT interventions and 15 evaluating "third wave" approaches. Overall, traditional CBT interventions addressed more disability domains than "third wave" approaches and mostly focused on mental functions reflecting schizophrenia psychopathology. Seven studies met the inclusion criteria of recovery-oriented interventions. The majority of studies evaluating these interventions had however a high risk of bias, therefore evidence on their effectiveness is inconclusive. Traditional CBT interventions address more disability domains than "third wave" therapies, however both approaches focus mostly on mental functions that reflect schizophrenia psychopathology. There are also few interventions that focus on recovery. These results indicate that CBT interventions going beyond symptom reduction are still needed. Recovery-focused CBT interventions seem to be a promising treatment approach as they target disability from a broader perspective including activity and participation domains. Although their effectiveness is inconclusive, they reflect users' views of recovery and trends towards improvement of mood, negative symptoms and functioning are shown.

Sexual Harassment among Students with Educational Disabilities: Perspectives of Special Educators

ERIC Educational Resources Information Center

Young, Ellie L.; Heath, Melissa Allen; Ashbaker, Betty Y.; Smith, Barbara

2008-01-01

This study investigated the perceptions of special education teachers about the prevalence and characteristics of sexual harassment among students identified with educational disabilities. Utah special education teachers (250) were randomly selected from the state's database. Fifty-two percent (n = 129) of the surveys were returned. Approximately…

Review of Parent Training Interventions for Parents with Intellectual Disability

ERIC Educational Resources Information Center

Wade, Catherine; Llewellyn, Gwynnyth; Matthews, Jan

2008-01-01

Background: This paper reviews recent research to provide an updated perspective on the effectiveness of parent training interventions for parents with intellectual disability. The degree to which these studies meet previous recommendations for future research is explored, particularly with regard to the influence of context on intervention…

Parental Perspectives and Challenges in Inclusive Education in Singapore

ERIC Educational Resources Information Center

Wong, Meng Ee; Poon, Kenneth K.; Kaur, Sarinajit; Ng, Zi Jia

2015-01-01

Relatively little work has focused on inclusive education in Singapore. This study examines the experiences and perceptions of parents whose children with disabilities are attending mainstream secondary schools in Singapore. Data was drawn from interviews with 13 parents of children with mild disabilities. Our findings reveal that parental…

Caring for a Daughter with Intellectual Disabilities in Managing Menstruation: A Mother's Perspective

ERIC Educational Resources Information Center

Chou, Yueh-Ching; Lu, Zxy-Yann Jane

2012-01-01

Background: The concerns of mothers and their experiences while providing help to their daughters with intellectual disability (ID) and considerable support needs during menstruation have rarely been addressed. This qualitative study explored mothers' experiences and perceptions of managing their daughters' menstruation. Method: Twelve Taiwanese…

Impact of Disability on Families: Grandparents' Perspectives

ERIC Educational Resources Information Center

Miller, E.; Buys, L.; Woodbridge, S.

2012-01-01

Background: Caring for a child with a disability can be a unique and challenging experience, with families often relying on informal networks for support. Often, grandparents are key support resources, yet little is known about their roles and experiences. Reporting on data collected in a larger Australian study, this article explores…

Teacher Perceptions of Two Multi-Component Interventions: Disability Awareness and Science

ERIC Educational Resources Information Center

Dorsey, Emily A.; Mouzourou, Chryso; Park, Hyejin; Ostrosky, Michaelene M.; Favazza, Paddy C.

2016-01-01

This study investigated teachers' perspectives about two interventions designed to promote kindergarteners' attitudes toward peers with disabilities. Interviews with teachers were conducted following the 6-week interventions. Teachers shared views on the best and most difficult aspects of the interventions, perceived benefits for teachers and…

Students with Disabilities and Clinical Placement: Understanding the Perspective of Healthcare Organisations

ERIC Educational Resources Information Center

Rankin, Elaine Ruth; Nayda, Robyn; Cocks, Susan; Smith, Morgan

2010-01-01

The Australian Disability Discrimination Act (1992) has challenged higher education to meet the increasing needs of students with different abilities. This may be more so in programmes that have practice components where students must demonstrate competency, regardless of their situation. This qualitative exploratory study undertaken at the…

Driving in unheard silence: Disability and the politics of shutting up.

PubMed

Lourens, Heidi

2018-03-01

The politics of silence is central to disability experience and the field of disability studies. In this analytical autoethnography, I write about my silences as a visually impaired woman. I explore and make sense of personal life stories through a theoretical perspective. The analysis of these personal experiences lead me to argue that disability-related silences are mostly created through the confluence of inaccessible physical and social environments and the psychological internalisation of these worlds. I also discuss the ways in which I am currently regaining my voice. Further research on resistance by disabled persons is recommended.

Inclusion understood from the perspectives of children with disability.

PubMed

Spencer-Cavaliere, Nancy; Watkinson, E Jane

2010-10-01

This study explored the perspectives of children with disabilities regarding the concept of inclusion in physical activity. Participants were children (two girls, nine boys, Mage = 10 years, five months, age range: 8-12 years) with disabilities, including cerebral palsy, fine and gross motor delays, developmental coordination disorder, muscular dystrophy, nemaline myopathy, brachial plexus injury, and severe asthma. Children's perspectives on inclusion in physical activity (e.g., sports, games, and play) were explored through semistructured interviews. Interviews were digitally audio taped and transcribed verbatim. Data were analyzed through content analysis. Three themes emerged from the data: gaining entry to play, feeling like a legitimate participant, and having friends. These themes were associated with feeling included to varying degrees in sports, games, and play. In essence, it was the actions of others that were the prominent features identified by children that contributed to feeling more or less included in physical activity contexts. These results are discussed in relation to inclusion in physical education, recreation, and unstructured free play.

A Cuban NGO perspective on disabilities: José Blanch MD MPH, National Association of Blind Persons. Interview by Gail Reed.

PubMed

Blanch, José

2011-01-01

Dual specialties in epidemiology and labor medicine, as well as an advanced degree in public health, gave Dr José Blanch expertise on disabilities in Cuba from a population health perspective. However, when he began losing his sight due to a diabetic retinopathy while serving in Africa, he also began a difficult journey that would transform his life and career, giving him new personal and professional perspectives on disability and the potential of disabled persons. Active for the past several years in the National Association of Blind Persons (ANCI, its Spanish acronym), in 2010 Dr Blanch was elected President of the non-governmental organization. He spoke with MEDICC Review about ANCI's role and challenges in the context of Cuba today.

Cross-Cultural Issues in Parent-Professional Interactions: A Qualitative Study of Perceptions of Asian American Mothers of Children with Developmental Disabilities

ERIC Educational Resources Information Center

Jegatheesan, Brinda

2009-01-01

This study investigated the perspectives of 23 first-generation Asian American mothers of children with developmental disabilities. The intent was to explore the working relationships between the mothers and professionals in health care and special education in the United States. The participants in this study were from China, Taiwan, Vietnam,…

For the Record: The Lived Experience of Parents with a Learning Disability--A Pilot Study Examining the Scottish Perspective

ERIC Educational Resources Information Center

MacIntyre, Gillian; Stewart, Ailsa

2012-01-01

There are increasing numbers of parents with a learning disability living in the community although the exact numbers are unknown. Existing research suggests that this group of parents faces disadvantage and discrimination on a number of levels. This study reports on the findings of a small pilot study that examined the lived experience of five…

The Factors Affecting End-of-Life Decision-Making by Physicians of Patients with Intellectual Disabilities in the Netherlands: A Qualitative Study

ERIC Educational Resources Information Center

Wagemans, A.; van Schrojenstein Lantman-de Valk, H.; Proot, I.; Metsemakers, J.; Tuffrey-Wijne, I.; Curfs, L.

2013-01-01

Background: The aim of this study was to investigate the process of end-of-life decision-making regarding people with intellectual disabilities (ID) in the Netherlands, from the perspective of physicians. Methods: This qualitative study involved nine semi-structured interviews with ID physicians in the Netherlands after the deaths of patients with…

Knowledge and Attitudes regarding Cervical Cancer Screening among Women with Physical Disabilities Living in the Community

ERIC Educational Resources Information Center

Wu, Li-Wei; Lin, Lan-Ping; Chen, Si-Fan; Hsu, Shang-Wei; Loh, Ching-Hui; Wu, Chia-Ling; Lin, Jin-Ding

2012-01-01

The study aims to explore knowledge and attitudeSs regarding cervical cancer screening and to examine its determinants based on the perspectives of Taiwanese women with physical disabilities living in the community. A cross-sectional survey was employed in the study, and we recruited 498 women aged more than 15 years who were officially registered…

A Phenomenological Study of Homework from the Perspectives of Elementary Special Education Teachers of Students with Learning Disabilities

ERIC Educational Resources Information Center

Bennis, Candace L.

2011-01-01

Research has shown that students with learning disabilities often do not complete or submit their homework, which may lead to failing grades. The intent of this research was to examine the perceptions of elementary special teachers on assigning appropriate homework for these students. The purpose of this phenomenological study was to investigate…

Migration, Disability and Education: Reflections from a Special School in the East of England

ERIC Educational Resources Information Center

Oliver, Caroline; Singal, Nidhi

2017-01-01

Studies of migrant pupils in schools have paid little attention to people with special educational needs and/or disabilities, reflecting a broader normative ableism of existing scholarship. This article, based on a case study of a special school in the east of England, explores the perspectives of staff and new migrants on their experiences. The…

Stakeholders' Perspectives towards the Use of the Comprehensive Health Assessment Program (CHAP) for Adults with Intellectual Disabilities in Manitoba

ERIC Educational Resources Information Center

Shooshtari, Shahin; Temple, Beverley; Waldman, Celeste; Abraham, Sneha; Ouellette-Kuntz, Héléne; Lennox, Nicholas

2017-01-01

Background: No standardized tool is used in Canada for comprehensive health assessments of adults with intellectual disabilities. This study was conducted to determine the feasibility of implementing the Comprehensive Health Assessment Program (CHAP) in Manitoba, Canada. Method: This was a qualitative study using a purposive sample of physicians,…

An integrative conceptual framework of disability. New directions for research.

PubMed

Tate, Denise G; Pledger, Constance

2003-04-01

Advances in research on disability and rehabilitation are essential to creating equal opportunity, economic self-sufficiency, and full participation for persons with disabilities. Historically, such initiatives have focused on separate and specific areas, including neuroscience, molecular biology and genetics, gerontology, engineering and physical sciences, and social and behavioral sciences. Research on persons with disabilities should examine the broader context and trends of society that affect the total environment of persons with disabilities. This article examines the various disability paradigms across time, assessing the relative contribution of the socioecological perspective in guiding research designed to improve the lives of persons with disabilities. The authors recommend new research directions that include a focus on life span issues, biomedicine, biotechnology, the efficacy and effectiveness of current interventions, an emphasis on consumer-driven investigations within a socioecological perspective of disability, and the implications for research and practice.

Disabilities of Arithmetic and Mathematical Reasoning: Perspectives from Neurology and Neuropsychology.

ERIC Educational Resources Information Center

Rourke, Byron P.; Conway, James A.

1997-01-01

Reviews current research on brain-behavior relationships in disabilities of arithmetic and mathematical reasoning from both a neurological and a neuropsychological perspective. Defines developmental dyscalculia and the developmental importance of right versus left hemisphere integrity for the mediation of arithmetic learning and explores…

Understanding the Parent's Perspective

ERIC Educational Resources Information Center

Tilley, Kim

2010-01-01

Sally Smith's contribution to the world of children with learning disabilities is well documented, particularly by the other contributors to this journal. An area deserving attention, but one usually overlooked, is Smith's understanding of the parent's perspective--the challenges of parenting a child with learning disabilities. It was a priceless…

Disability Policy Implementation from a Cross-Cultural Perspective

ERIC Educational Resources Information Center

Verdugo, Miguel A.; Jenaro, Cristina; Calvo, Isabel; Navas, Patricia

2017-01-01

Implementation of disability policy is influenced by social, political, and cultural factors. Based on published work, this article discusses four guidelines considered critical for successful policy implementation from a cross-cultural perspective. These guidelines are to: (a) base policy implementation on a contextual analysis, (b) employ a…

Bad Bedfellows: Disability Sex Rights and Viagra

ERIC Educational Resources Information Center

Wentzell, Emily

2006-01-01

The disability rights movement grounds material critiques of the treatment of people with disabilities in a social constructionist perspective, locating disability in the social rather than physical realm, and demedicalizing the concept of disability. However, this conceptualization is threatened by the medicalization of non-normative erections as…

(Social) Cognitive Skills and Social Information Processing in Children with Mild to Borderline Intellectual Disabilities

ERIC Educational Resources Information Center

van Nieuwenhuijzen, M.; Vriens, A.

2012-01-01

The purpose of this study was to examine the unique contributions of (social) cognitive skills such as inhibition, working memory, perspective taking, facial emotion recognition, and interpretation of situations to the variance in social information processing in children with mild to borderline intellectual disabilities. Respondents were 79…

Facilitating Academic and Mental Health Resilience in Students with a Learning Disability

ERIC Educational Resources Information Center

Piers, Lisa; Duquette, Cheryll A.

2016-01-01

This qualitative study explored the educational journeys of five postsecondary students with learning disabilities (LD) from the perspective of the students and their families. Using a resilience lens, it examined the challenges that they faced and the capacities and resources that facilitated their resilience and helped them achieve their current…

The Perspectives of Students with and without Disabilities on Inclusive Schools

ERIC Educational Resources Information Center

Shogren, Karrie A.; Gross, Judith M. S.; Forber-Pratt, Anjali J.; Francis, Grace L.; Satter, Allyson L.; Blue-Banning, Martha; Hill, Cokethea

2015-01-01

The purpose of this study was to examine the experiences of students with and without disabilities being educated in inclusive schools, documenting their perceptions of the culture of their school, inclusion, and the practices that were implemented to support all students. Focus groups were conducted with 86 students with and without disabilities…

Transition for Teenagers with Intellectual Disability: Carers' Perspectives

ERIC Educational Resources Information Center

Bhaumik, Sabyasachi; Watson, Joanna; Barrett, Mary; Raju, Bala; Burton, Tracey; Forte, Jane

2011-01-01

Teenagers with intellectual disabilities (ID) have significantly more health problems than the rest of the population and many encounter difficulties accessing the services they need during the transition from children's to adult services. A multidisciplinary, interagency study was carried out in one area of the UK with the intent to estimate the…

Perspectives of Physicians, Families, and Case Managers Concerning Access to Health Care by Individuals with Developmental Disabilities

ERIC Educational Resources Information Center

Reichard, Amanda; Turnbull, H. Rutherford, III

2004-01-01

This study of the status of medical care for Kansans with developmental disabilities consists of reports from physicians, service providers, and family members. Overall, these three groups indicated satisfaction with medical care across the four criteria of availability, accessibility, appropriateness, and affordability. The bases for these…

Friendship at Any Cost: Parent Perspectives on Cyberbullying Children with Intellectual and Developmental Disabilities

ERIC Educational Resources Information Center

McHugh, Meaghan C.; Howard, Donna E.

2017-01-01

Bullying affects approximately 40% of individuals with intellectual and developmental disabilities (IDD). Cyberbullying, a type of bullying facilitated by electronic devices, may be particularly worrisome for parents of children with IDD as constant monitoring is difficult. In this study, ten parents of Special Olympics Maryland athletes completed…

Working with Learning Disabled Writers: Some Perspectives. Research to Practice.

ERIC Educational Resources Information Center

Bardine, Bryan

Although most learning disabled (LD) adult learners have a strong desire to enhance their writing skills, many obstacles hinder their success. Characteristics of LD students found in their writing or actions include the following: frustration; poor study/note taking skills; test anxiety; lack of social skills; a difficult time following oral…

Parent-Professional Partnerships in Early Education: Relationships for Effective Inclusion of Students with Disabilities

ERIC Educational Resources Information Center

Cummings, Katrina P.; Sills-Busio, Dionne; Barker, A. Fain; Dobbins, Nicole

2015-01-01

The increasing enrollment of children with disabilities and developmental delays in inclusive settings requires reconsiderations of the scope and depth of early childhood professional development. In this study, a phenomenological research design was used to gain the perspectives of 13 parents and child care providers about their participation in…

Transition in Physical Recreation and Students with Cognitive Disabilities: Graduate and Parent Perspectives

ERIC Educational Resources Information Center

Roth, Kristi; Pyfer, Jean; Huettig, Carol

2007-01-01

The purpose of this study was to investigate the perceived impact of physical recreation transition programming on individuals with cognitive disabilities and generate strategies for improved transition. Interviews were completed with 17 young adults who were one to three years post graduation. Interviews determined graduate's perception of their…

The Roles of Nondisabled Peers in Promoting the Social Competence of Students with Intellectual Disabilities in Inclusive Classrooms.

ERIC Educational Resources Information Center

Cozzul, Marilyn Challis; Freeze, Rick; Lutfiyya, Zana Marie; Van Walleghem, John

2004-01-01

Educators often expect students with intellectual disabilities in inclusive elementary school classrooms to develop social competence through interactions with their peers. In this qualitative study, semi structured indepth interviews were used to investigate elementary school teachers' perspectives on student social competence, the quality of…

Emergency Psychiatric Services for Individuals with Intellectual Disabilities: Caregivers' Perspectives

ERIC Educational Resources Information Center

Weiss, Jonathan A.; Lunsky, Yona; Gracey, Carolyn; Canrinus, Maaike; Morris, Susan

2009-01-01

Background: Strains on the mental health system and inaccessible services for individuals with intellectual disabilities (ID) often force caregivers to bring individuals with ID to the emergency department (ED) when in psychiatric crisis. The purpose of this study was to understand the experience of caregivers and adults with ID and mental health…

An Exploratory Investigation into Family Perspectives after the Family Employment Awareness Training

ERIC Educational Resources Information Center

Francis, Grace L.; Gross, Judith M. S.; Turnbull, Ann P.; Turnbull, H. Rutherford, III

2015-01-01

Competitive employment (i.e., employment in community settings among people without disabilities for minimum wage or higher) improves quality of life for people with disabilities who have individualized support needs (ISN). However, attaining competitive employment can be challenging for people with ISN. This study used a mixed methods design to…

Children's Voices: Perspectives on Using Assistive Technology

ERIC Educational Resources Information Center

Schock, Robin E.; Lee, Elizabeth A.

2016-01-01

Rarely are the views of children with learning disabilities elicited. In this study, we used focus groups involving eight students with learning disabilities to explore their self-perceptions as learners and writers using assistive technology (AT). Three groups of two to three Grade 4-8 students and their parents participated in the qualitative…

Ubiquitous Yet Unique: Perspectives of People With Disabilities on Stress

ERIC Educational Resources Information Center

Iwasaki, Yoshitaka; Mactavish, Jennifer B.

2005-01-01

This exploratory study was grounded in a qualitative framework and used a focus group method to examine the meanings that individuals with disabilities (e.g., permanent mobility impairments, sensory impairments) attach to their experiences of stress, as well as major sources or causes of stress in these individuals' lives. Overall, the data showed…

Post-School Visions and Expectations of Latino Students with Learning Disabilities, Their Parents, and Teachers

ERIC Educational Resources Information Center

Keel, Joanna Mossmond; Cushing, Lisa Sharon; Awsumb, Jessica M.

2018-01-01

This study explored perspectives about the desired components of adult life for 12th-grade Latino students with learning disabilities, their parents, and special education teachers. Focus groups and individual interviews were used to understand the similarities and differences in post-school visions and expectations among participants. Five…

Thinking on Your Feet: Understanding the Immediate Responses of Staff to Adults Who Challenge Intellectual Disability Services

ERIC Educational Resources Information Center

Ravoux, Peggy; Baker, Peter; Brown, Hilary

2012-01-01

Background: A gap prevails between the conceptualization of good practice in challenging behaviour management and its implementation in intellectual disability services. This study aimed to investigate staff members' perspectives of managing clients with challenging behaviours in residential services. Materials and Methods: Semi-structured…

"The Most Defining Experience": Undergraduate University Students' Experiences Mentoring Students with Intellectual and Developmental Disabilities

ERIC Educational Resources Information Center

Ryan, Susan M.; Nauheimer, Jeanne M.; George, Cassandra L.; Dague, E. Bryan

2017-01-01

In this three-year qualitative study we investigated the experiences and perspectives of university undergraduate students who were peer mentors for students with intellectual and developmental disabilities (ID/DD) in a postsecondary education certificate program at a public university in the northeastern United States. The findings were…

Utility of the International Classification of Functioning, Disability and Health (ICF) for Educational Psychologists' Work

ERIC Educational Resources Information Center

Aljunied, Mariam; Frederickson, Norah

2014-01-01

Despite embracing a bio-psycho-social perspective, the World Health Organization's International Classification of Functioning, Disability and Health (ICF) assessment framework has had limited application to date with children who have special educational needs (SEN). This study examines its utility for educational psychologists' work with…

"Measuring up"? Assessment and Students with Disabilities in the Modern University

ERIC Educational Resources Information Center

Bessant, Judith

2012-01-01

In this article, I ask how university students with disabilities negotiate with staff arrangements for alternative assessment practices. I draw on three case studies using a personal pronoun perspective to challenge the conventional view that educational policy and teaching practice are forms of rational action. I demonstrate how the lives of…

Healthy Lifestyle Behaviours for People with Intellectual Disabilities: An Exploration of Organizational Barriers and Enablers

ERIC Educational Resources Information Center

O'Leary, Lisa; Taggart, Laurence; Cousins, Wendy

2018-01-01

Background: The health-related behaviours of people with intellectual disabilities may be determined by organisational influences. This innovative study aimed to explore managers' and staffs' perspectives on organisational influences on the promotion of healthy behaviours for this population. Method: A qualitative methodology was employed. Four…

What's the Harm? Harms in Research with Adults with Intellectual Disability

ERIC Educational Resources Information Center

McDonald, Katherine E.; Conroy, Nicole E.; Olick, Robert S.

2017-01-01

Scientific advances can improve the lives of adults with intellectual disability, yet concerns that research participation may impose harm impede scientific progress. What counts as harmful can be subjective and perceptions of harm may vary among stakeholders. We studied perspectives on the harmfulness of research events among adults with…

Understanding Impulsivity among Children with Specific Learning Disabilities in Inclusion Schools

ERIC Educational Resources Information Center

Al-Dababneh, Kholoud Adeeb; Al-Zboon, Eman K.

2018-01-01

Impulsive behavior is a characteristic of children with specific learning disabilities (SLD), and is related to learning ability. The present study aims to identify impulsivity behavior in children with SLD who attend inclusion schools, from their resource room teachers' perspectives. A 31-item questionnaire that addressed four subscales was…

Non-fatal disease burden for subtypes of depressive disorder: population-based epidemiological study.

PubMed

Biesheuvel-Leliefeld, Karolien E M; Kok, Gemma D; Bockting, Claudi L H; de Graaf, Ron; Ten Have, Margreet; van der Horst, Henriette E; van Schaik, Anneke; van Marwijk, Harm W J; Smit, Filip

2016-05-12

Major depression is the leading cause of non-fatal disease burden. Because major depression is not a homogeneous condition, this study estimated the non-fatal disease burden for mild, moderate and severe depression in both single episode and recurrent depression. All estimates were assessed from an individual and a population perspective and presented as unadjusted, raw estimates and as estimates adjusted for comorbidity. We used data from the first wave of the second Netherlands-Mental-Health-Survey-and-Incidence-Study (NEMESIS-2, n = 6646; single episode Diagnostic and Statistical Manual (DSM)-IV depression, n = 115; recurrent depression, n = 246). Disease burden from an individual perspective was assessed as 'disability weight * time spent in depression' for each person in the dataset. From a population perspective it was assessed as 'disability weight * time spent in depression *number of people affected'. The presence of mental disorders was assessed with the Composite International Diagnostic Interview (CIDI) 3.0. Single depressive episodes emerged as a key driver of disease burden from an individual perspective. From a population perspective, recurrent depressions emerged as a key driver. These findings remained unaltered after adjusting for comorbidity. The burden of disease differs between the subtype of depression and depends much on the choice of perspective. The distinction between an individual and a population perspective may help to avoid misunderstandings between policy makers and clinicians.

Models of Intellectual Disability: Towards a Perspective of (Poss)ability

ERIC Educational Resources Information Center

Mckenzie, J. A.

2013-01-01

Background: The social and medical models of disability configure the relationship between disability and impairment differently. Neither of these models has provided a comprehensive theoretical or practical basis for talking about intellectual disability (ID). Models that emphasise the interactive nature of disability appear to be more promising.…

Family Perspectives on a Successful Transition to Adulthood for Individuals with Disabilities

ERIC Educational Resources Information Center

Henninger, Natalie A.; Taylor, Julie Lounds

2014-01-01

When researchers evaluate adult outcomes for individuals with intellectual and/or developmental disabilities (IDD), the perspective of families is not always considered. Parents of individuals with IDD ("N" = 198) answered an online survey about their definition of a successful transition to adulthood. Content analysis was used to…

Middle School Boys' Perspectives on Social Relationships with Peers with Disabilities

ERIC Educational Resources Information Center

Kalymon, Kristen; Gettinger, Maribeth; Hanley-Maxwell, Cheryl

2010-01-01

Factors that contribute to the development of positive peer relationships between middle-school students with and without disabilities are investigated. Eight typically developing, seventh-grade boys participate in semi-structured interviews to discern their perspectives of the personal benefits or challenges associated with having social…

Changing Canadian Schools: Perspectives on Disability and Inclusion.

ERIC Educational Resources Information Center

Porter, Gordon L., Ed.; Richler, Diane, Ed.

The 15 papers in this collection present a Canadian perspective on providing services to children with disabilities in regular classes and schools. The papers are grouped into three sections: Philosophical, Legal and Historical Overview; Parent and Self-Advocacy; and Innovations and Practical Applications. Chapters have the following titles and…

Representations of disability and normality in rehabilitation technology promotional materials.

PubMed

Phelan, Shanon K; Wright, Virginia; Gibson, Barbara E

2014-01-01

To explore the ways in which promotional materials for two rehabilitation technologies reproduce commonly held perspectives about disability and rehabilitation. Our analysis was informed by critical disability studies using techniques from discourse analysis to examine texts (words and images) and their relation to social practices and power. Using this approach, promotional materials for (a) hearing aid and (b) robotic gait training technologies were interrogated using three central questions: (1) Who are represented? (2) What is promised? and (3) Who has authority? Messages of normalization pervaded representations of disabled children and their families, and the promises offered by the technologies. The latter included efficiency and effectiveness, progress and improvement, success and inclusion, and opportunities for a normal life. Normalization discourses construct childhood disability through texts and images. These discourses reinforce pervasive negative messages about disability that are taken up by children and families and have ethical implications for clinical practice. Rehabilitation has largely focused on "fixing" the individual, whereas broadening the clinical gaze to the social dimensions of disablement may lead to a more sensitive and informed approach within family-clinician discussions surrounding these advanced technologies and the use they make of promotional materials. Implications for Rehabilitation Awareness of the potential effects of implicit and explicit messages about disability in promotional materials may lead to a more sensitive and informed approach within family-clinician discussions surrounding rehabilitation technologies. In practice, it is important for rehabilitation professionals to remember that parents' and children's values and beliefs are shaped over time, and parents' and professionals' perspectives on disability strongly influence how disabled children internalize what disability means to them.

Toy Libraries and Lekotek in an International Perspective. Handicap Research Group Report No. 11.

ERIC Educational Resources Information Center

Bjorck-Akesson, Eva; Brodin, Jane

This study surveyed knowledgeable persons in 37 countries in order to describe, from an international perspective, toy libraries and lekoteks serving children with disabilities. The study showed that there are more than 4,500 toy libraries or lekoteks in 31 countries, with preliminary planning activities taking place in still more countries. Three…

Learning Disabilities: A Piagetian Perspective.

ERIC Educational Resources Information Center

Fakouri, M. E.

1991-01-01

Superimposes findings of research in learning disabilities on Piagetian stages of cognitive development. Results suggest that during sensorimotor stage, diagnosis of learning disabilities is difficult. Findings suggest delay exists in cognitive development of learning-disabled children during elementary school years, which corresponds to…

"If you can't do it now, you're out the door:" employees with traumatic brain injury - a case study.

PubMed

Sabatello, Maya

2014-01-01

This study considers the employment of persons with traumatic brain injury (TBI) from a disability-rights perspective. This approach calls for a shift from a focus on one's (in)capacity towards one's capability, incorporating both factors of impairment and of appropriate accommodation and supports to create inclusion. To give a voice to persons with TBI, the discussion is based on interviews with Tracey (pseudonym), a woman who incurred the injury at a young age and carried its implications as she entered the workforce. It illustrates the discrimination and prejudice encountered by such individuals in procuring employment and gaining acceptance in workplaces and the accommodation-related challenges. The case study discusses the complexities involved as a way for developing a better understanding what must be considered, from a disability-rights perspective, regarding employment and workplace of persons with TBI. The 2006 Convention on the Rights of Persons with Disabilities (CRPD) provides a legal reference for the discussion.

Hospitalisation Rates for Ambulatory Care Sensitive Conditions for Persons with and without an Intellectual Disability--A Population Perspective

ERIC Educational Resources Information Center

Balogh, R.; Brownell, M.; Ouellette-Kuntz, H.; Colantonio, A.

2010-01-01

Background: There is evidence that persons with an intellectual disability (ID) face barriers to primary care; however, this has not been extensively studied at the population level. Rates of hospitalisation for ambulatory care sensitive conditions are used as an indicator of access to, and quality of, primary care. The objective of the study was…

Issues in the Medication Management Process in People Who Have Intellectual and Developmental Disabilities: A Qualitative Study of the Caregivers' Perspective

ERIC Educational Resources Information Center

Erickson, Steven R.; Salgado, Teresa M.; Tian, Xi

2016-01-01

People who have intellectual and developmental disabilities (IDD) often rely on caregivers to assist in the medication management process. The aim of this study was to learn from caregivers, who are either family or support staff, what major issues arise throughout the process of managing medication and how these might be addressed. Problems…

When Inclusion Is Innovation: An Examination of Administrator Perspectives on Inclusion in China

ERIC Educational Resources Information Center

Hu, Bi Ying; Roberts, Sherron Killingsworth

2011-01-01

This article examines administrator perspectives of innovative services for the inclusion of young children with disabilities in regular preschool classrooms in China. Twelve directors from 12 pilot inclusion preschools in Beijing participated in this study. Qualitative interview results revealed the following subthemes: definition, advocacy,…

Negotiating 'positive' aging in the presence of age-related vision loss (ARVL): The shaping and perpetuation of disability.

PubMed

McGrath, Colleen; Laliberte Rudman, Debbie; Polgar, Jan; Spafford, Marlee M; Trentham, Barry

2016-12-01

While previous research has explored the meaning of positive aging discourses from the perspective of older adults, the perspective of older adults aging with a disability has not been studied. In fact the intersection of aging and disability has been largely underexplored in both social gerontology and disability studies. This critical ethnography engaged ten older adults aging with vision loss in narrative interviews, participant observation sessions, and semi-structured in-depth interviews. The overarching objective was to understand those attributes that older adults with age-related vision loss perceive as being the markers of a 'good old age.' The authors critically examined how these markers, and their disabling effects, are situated in ageist and disablist social assumptions regarding what it means to 'age well'. The participants' descriptions of the markers of a 'good old age' were organized into five main themes: 1) maintaining independence while negotiating help; 2) responding positively to vision loss; 3) remaining active while managing risk; 4) managing expectations to be compliant, complicit, and cooperative and; 5) striving to maintain efficiency. The study findings have provided helpful insights into how the ideas and assumptions that operate in relation to disability and impairment in late life are re-produced among older adults with age-related vision loss and how older adults take on an identity that is consistent with socially embedded norms regarding what it means to 'age well'. Copyright © 2016 Elsevier Inc. All rights reserved.

A Capability Approach for Online Primary and Secondary Students with Disabilities

ERIC Educational Resources Information Center

Stella, Julie; Corry, Michael

2017-01-01

A capability approach was used to identify and synthesise research studies about online students with disabilities in primary and secondary school (aged five to 18 years) in an attempt to describe the experience from an empirical perspective. A capability approach is intended to maximise agency and can be used to describe the extent to which…

Pre-Service Teachers' Attitudes towards Children with Disabilities: An Irish Perspective

ERIC Educational Resources Information Center

Tindall, Daniel; MacDonald, Whitney; Carroll, Edith; Moody, Brigitte

2015-01-01

The purpose of this study was to examine the impact of a 10-week adapted physical activity programme on the attitudes and perceptions of 64 Irish pre-service teachers (aged 19-25) towards teaching children and young people with physical, intellectual, and learning disabilities. Data were collected through written pre-programme expectations, weekly…

Sexuality and Personal Relationships for People with an Intellectual Disability. Part I: Service-User Perspectives

ERIC Educational Resources Information Center

Healy, E.; McGuire, B. E.; Evans, D. S.; Carley, S. N.

2009-01-01

Background: Despite a recent ideological shift towards the recognition of sexual autonomy for people with an intellectual disability (ID), there are continuing social and cultural barriers to sexual expression. Part I of the current two-part study assessed the sexual knowledge, experiences and aspirations of service users through focus groups and…

Sexual Understanding and Development of Young People with Intellectual Disabilities: Mothers' Perspectives of Within-Family Context

ERIC Educational Resources Information Center

Pownall, Jaycee D.; Jahoda, Andrew; Hastings, Richard; Kerr, Linda

2011-01-01

The sexual development of young people with intellectual disabilities is a marker of their transition to adulthood and affects their sense of well being and identity. Cognitive impairments and a socially marginalized position increase dependence on their families to assist with sexual matters. In this study, the authors adopted a novel…

Universal Design for Learning and Instruction: Perspectives of Students with Disabilities in Higher Education

ERIC Educational Resources Information Center

Black, Robert D.; Weinberg, Lois A.; Brodwin, Martin G.

2015-01-01

Universal design in education is a framework of instruction that aims to be inclusive of different learning preferences and learners, and helps to reduce barriers for students with disabilities. The principles of Universal Design for Learning (UDL) and Universal Design for Instruction (UDI) were used as the framework for this study. The purposes…

Effectiveness of a Stress-Relief Initiative for Primary Caregivers of Adolescents with Intellectual Disability

ERIC Educational Resources Information Center

Hu, Jung; Lin, Jin-Ding; Yen, Chia-Feng; Loh, Ching-Hui; Hsu, Shang-Wei; Lin, Lan-Ping; Wu, Sheng-Ru

2010-01-01

Background: This study provides a perspective on the mental health status and analyses the effectiveness of a stress-relief program for primary caregivers of adolescents with intellectual disability (ID). Method: Seventy-seven primary caregivers of people with ID were recruited (intervention group, n = 31; non-intervention group, n = 46) to the…

Perspectives of Parent-Child Interaction in Filipino Mothers of Very Young Children with and without Disabilities

ERIC Educational Resources Information Center

Santos, Rosa Milagros; McCollum, Jeanette A.

2007-01-01

This study was designed to expand understandings about Filipino mothers' daily interactions with their infants and toddlers with and without disabilities. Qualitative procedures were used to analyze transcripts from structured, open-ended interviews with mothers of 10- to 26-month-old children. Three themes were used to characterize and compare…

The Perspectives of Urban Single Mothers on Raising Adolescents with Aggressive Behaviors Associated with Emotional Disabilities

ERIC Educational Resources Information Center

Adewuyi, Olubade

2012-01-01

Single mothers of adolescents with emotional disabilities (ED) have a unique and sometimes difficult childrearing task. Researchers in some studies concluded that these children have a significantly higher incidence of school aggression than their peers from two-parent families. A substantive body of research explores parenting in families of…

Perceived Barriers and Facilitators to Positive Therapeutic Change for People with Intellectual Disabilities: Client, Carer and Clinical Psychologist Perspectives

ERIC Educational Resources Information Center

Ramsden, Sarah; Tickle, Anna; Dawson, David L.; Harris, Samantha

2016-01-01

Studies have highlighted successful outcomes of psychological therapies for people with intellectual disabilities. However, processes underlying these outcomes are uncertain. Thematic analysis was used to explore the perceptions of three clinical psychologists, six clients and six carers of barriers and facilitators to therapeutic change for…

Self-Determination among Transition-Age Youth with Autism or Intellectual Disability: Parent Perspectives

ERIC Educational Resources Information Center

Carter, Erik W.; Lane, Kathleen Lynne; Cooney, Molly; Weir, Katherine; Moss, Colleen K.; Machalicek, Wendy

2013-01-01

This study examined 68 parents' views of the self-determination skills and capacities of their young adult children with autism spectrum disorders and intellectual disability (ages 19-21 years). Results indicated parents placed a high value on the importance of all seven component skills (i.e., choice-making skills, decision-making skills,…

Expanding Access, Knowledge, and Participation for Learning Disabled Young Adults with Low Literacy

ERIC Educational Resources Information Center

Shaw, Donita Massengill; Disney, Laurel

2012-01-01

The purpose of this study is to provide a deeper understanding of learning disabled young adults who struggle with low literacy skills in order to learn more about their literacy profiles and, from an emic perspective, understand the affective factors that may have influenced their attendance and persistence in a post-secondary residential…

A National Perspective of Competencies for Teachers of Individuals with Physical and Health Disabilities.

ERIC Educational Resources Information Center

Heller, Kathryn Wolff; Fredrick, Laura D.; Dykes, Mary Kay; Best, Sherwood; Cohen, Elisabeth Tucker

1999-01-01

A national study involving 59 teachers instructing students with physical and health disabilities, 26 universities, 36 local school system directors, and 29 state departments of education, found over 40% of the teachers did not feel well trained in half of the competencies. Concerns regarding the effects of generic teacher certification are…

Community Involvement of Young Adults with Intellectual Disabilities: Their Experiences and Perspectives on Inclusion

ERIC Educational Resources Information Center

Hall, Sarah A.

2017-01-01

Background: Inclusion in the community is essential to enhancing a person's quality of life. Although people with intellectual disabilities have a desire to be more involved in activities, they experience barriers that limit their inclusion. Methods: The purpose of this study was to describe the community involvement of young adults with…

Understanding the Implementation Process of a Multi-Component Health Promotion Intervention for Adults with Intellectual Disabilities in Sweden

ERIC Educational Resources Information Center

Sundblom, Elinor; Bergström, Helena; Ellinder, Liselotte Schäfer

2015-01-01

Background: There is a need to better understand implementation processes of health interventions. This study describes the implementation of a multicomponent intervention to improve diet and physical activity among adults with intellectual disabilities, viewed from the perspectives of staff and managers. Materials and Methods: All health…

Karma and Human Rights: Bhutanese Teachers' Perspectives on Inclusion and Disability

ERIC Educational Resources Information Center

Kamenopoulou, Leda; Dukpa, Dawa

2018-01-01

The Sustainable Development Goals call on countries to ensure that all children, especially the most vulnerable, are included in education. The small kingdom of Bhutan has made attempts to embrace inclusion in education at the policy level. However, research on inclusion and disability in this context is limited, and there are few studies focusing…

Reading Achievement, Mastery, and Performance Goal Structures among Students with Learning Disabilities: A Nonlinear Perspective

ERIC Educational Resources Information Center

Sideridis, Georgios D.; Stamovlasis, Dimitrios; Antoniou, Faye

2016-01-01

The purpose of the present study was to examine the hypothesis that a nonlinear relationship exists between a performance-classroom climate and the reading achievement of adolescent students with learning disabilities (LD). Participants were 62 students with LD (Grades 5-9) from public elementary schools in northern Greece. Classroom climate was…

Self-Reported Psychological Wellbeing in Adolescents: The Role of Intellectual/Developmental Disability and Gender

ERIC Educational Resources Information Center

Boström, P.; Åsberg Johnels, J.; Broberg, M.

2018-01-01

Background: The Wellbeing in Special Education Questionnaire was developed to assess subjective wellbeing in young persons with intellectual and developmental disabilities (ID/DD) as this perspective is rarely included in research. The present study explored how ID/DD and gender are related to self-reported wellbeing among adolescents. Method:…

Motor Neurone Disease: Disability Profile and Service Needs in an Australian Cohort

ERIC Educational Resources Information Center

Ng, Louisa; Talman, Paul; Khan, Fary

2011-01-01

Motor neurone disease (MND) places considerable burden upon patients and caregivers. This is the first study, which describes the disability profile and healthcare needs for persons with MND (pwMND) in an Australian sample from the perspective of the patients and caregivers to identify current gaps in the knowledge and service provision. A…

A Multiple Perspective Case Study of a Young Adult with Intellectual Disabilities Participating in a Pre-Service Teacher Education Class

ERIC Educational Resources Information Center

Wintle, James

2012-01-01

For adults with intellectual disabilities, the opportunity to attend a postsecondary institution is increasingly becoming reality. Although there is a growing body of literature documenting examples of inclusive postsecondary education, there is a lack of information detailing the experiences of pre-service teacher candidates (TCs) who are…

Infinite Diversity in Infinite Combinations: Portraits of Individuals with Disabilities in Star Trek

ERIC Educational Resources Information Center

Shepherd, Terry L.

2007-01-01

Weekly television series have more influence on American society than any other form of media, and with many of these series available on DVDs, television series are readily accessible to most consumers. Studying television series provides a unique perspective on society's view of individuals with disabilities and influences how teachers and peers…

Challenging the Achievement Gap by Disrupting Concepts of "Normalcy." The Complete Essays

ERIC Educational Resources Information Center

Draxton, Shawna; Radley, Kirstee; Murphy, Joanne; Nevin, Ann; Nishimura, Trisha; Hagge, Darla; Taniform, Lawrence

2011-01-01

We propose that Disability Studies in Education (DSE) offers a framework that (a) grounds policy and practice in the experiences and perspectives of people with disabilities, (c) challenges practices/ policy that isolate, de-humanize individuals, and (c) leads to new questions to pose. In this session, we describe the pedagogy that we used to…

Community Connections: Supporting Rural Youth with Disabilities Who Are Work-Bound

ERIC Educational Resources Information Center

Mahiko, Joy

2017-01-01

Although many public schools in the United States are located in rural areas, the literature on rural youth is extremely limited, and the literature on rural youth with disabilities is practically absent. The purpose of this study was to gather the perspectives of community partners regarding rural school-community partnerships and provide an…

Sexuality education and adolescents with developmental disabilities: assessment, policy, and advocacy.

PubMed

Tice, Carolyn J; Hall, Diane M Harnek

2008-01-01

People with disabilities are sexual beings who, like all of us, benefit from sexuality education that examines relationship skills and knowledge, attitudes, behaviors, and values that promote healthy sexuality within those relationships. This article provides an overview of landmark policies relevant to persons with disabilities, defines the strengths perspective in the context of curriculum development, and describes a survey built on this perspective that evaluates sexuality education curricula on the strengths rather than the deficits of people.

Social determinants of disability-based disadvantage in Solomon islands.

PubMed

Gartrell, Alexandra; Jennaway, Megan; Manderson, Lenore; Fangalasuu, Judy; Dolaiano, Simon

2018-04-01

Development discourse widely recognises that disability is the result of economic and social processes and structures that fail to accommodate persons with disabilities. Empirical work on the relationship between disability and poverty however, conceptualize poverty through an economic resource lens in high-income countries. To address this conceptual gap this article uses a social determinants of health perspective to examine how socio-cultural, economic and political contexts shape disability-based disadvantage. This article draws upon ethnographic research and supplementary data collected using rapid assessment techniques in Solomon Islands. Findings suggest that the disability-poverty nexus and inequalities in health, wellbeing and quality of life must be understood within broader patterns of social vulnerability that are institutionalised in landownership and patterns of descent, gendered power relations and disability specific stigmas that preclude social and productive engagement . This article demonstrates how a social determinant of health perspective that closely examines lived experiences of disability provides critical analytical insights into the structural mechanisms that constitute disability-based disadvantage. This article provides foundation knowledge on which policies and further research to promote disability-inclusion and equity can be based.

Introducing disability studies to occupational therapy students.

PubMed

Block, Pamela; Ricafrente-Biazon, Melissa; Russo, Ann; Chu, Ke Yun; Sud, Suman; Koerner, Lori; Vittoria, Karen; Landgrover, Alyssa; Olowu, Tosin

2005-01-01

This article is a work of collaborative ethnography about teaching and learning disability studies within the context of an occupational therapy graduate program. In spring 2004,14 occupational therapy students were introduced to disability studies by their cultural anthropologist (nonoccupational therapist) course instructor. During the one-credit course, they were expected to complete readings, watch films, attend guest lectures, and make a site visit. The occupational therapy students were required to write a journal to record personal reactions and new insights gained from these experiences. This article focuses on a thematic analysis of the students' journaled responses to the film "Dance Me to My Song," and a site visit to a local Independent Living Center. Students were expected to analyze these experiences from both disability studies and occupational therapy perspectives. The article addresses philosophical and practical differences between occupational therapy and disability studies and identifies opportunities for collaboration between occupational therapists and independent living specialists.

Service Provision for Young People with Intellectual Disabilities and Additional Mental Health Needs: Service-Providers' Perspectives

ERIC Educational Resources Information Center

Scior, Katrina; Grierson, Kate

2004-01-01

Background: Very little is known about young people with intellectual disabilities who experience additional mental health problems. The perspective of service providers has been highlighted as one unresearched area. Method: Semi-structured interviews were completed with senior service providers. Aims: (1) to explore experiences of working with…

As If Children Matter: Perspectives on Children, Rights and Disability.

ERIC Educational Resources Information Center

Roeher Inst., North York (Ontario).

This collection of 16 papers attempts to provide a comprehensive overview of the state of children in the nations of the Americas. The collection's five sections examine children's rights, perspectives of five parents from five different nations, children with disabilities in the legal system, promoting the rights of children through social…

Perspectives of Students with Disabilities toward Physical Education: A Qualitative Inquiry Review

ERIC Educational Resources Information Center

Haegele, Justin A.; Sutherland, Sue

2015-01-01

The purpose of this article is to review published qualitative inquiries that examine the perspective of students with disabilities toward experiences in physical education. Keyword searches were used to identify articles from electronic databases published from 1995 to 2014. Thirteen articles met all inclusion criteria, and findings were…

A Holistic Theoretical Approach to Intellectual Disability: Going beyond the Four Current Perspectives

ERIC Educational Resources Information Center

Schalock, Robert L.; Luckasson, Ruth; Tassé, Marc J.; Verdugo, Miguel Angel

2018-01-01

This article describes a holistic theoretical framework that can be used to explain intellectual disability (ID) and organize relevant information into a usable roadmap to guide understanding and application. Developing the framework involved analyzing the four current perspectives on ID and synthesizing this information into a holistic…

Barriers to providing maternity care to women with physical disabilities: Perspectives from health care practitioners.

PubMed

Mitra, Monika; Smith, Lauren D; Smeltzer, Suzanne C; Long-Bellil, Linda M; Sammet Moring, Nechama; Iezzoni, Lisa I

2017-07-01

Women with physical disabilities are known to experience disparities in maternity care access and quality, and communication gaps with maternity care providers, however there is little research exploring the maternity care experiences of women with physical disabilities from the perspective of their health care practitioners. This study explored health care practitioners' experiences and needs around providing perinatal care to women with physical disabilities in order to identify potential drivers of these disparities. We conducted semi-structured telephone interviews with 14 health care practitioners in the United States who provide maternity care to women with physical disabilities, as identified by affiliation with disability-related organizations, publications and snowball sampling. Descriptive coding and content analysis techniques were used to develop an iterative code book related to barriers to caring for this population. Public health theory regarding levels of barriers was applied to generate broad barrier categories, which were then analyzed using content analysis. Participant-reported barriers to providing optimal maternity care to women with physical disabilities were grouped into four levels: practitioner level (e.g., unwillingness to provide care), clinical practice level (e.g., accessible office equipment like adjustable exam tables), system level (e.g., time limits, reimbursement policies), and barriers relating to lack of scientific evidence (e.g., lack of disability-specific clinical data). Participants endorsed barriers to providing optimal maternity care to women with physical disabilities. Our findings highlight the needs for maternity care practice guidelines for women with physical disabilities, and for training and education regarding the maternity care needs of this population. Copyright © 2016 Elsevier Inc. All rights reserved.

In their own words: the place of faith in the lives of young people with autism and intellectual disability.

PubMed

Liu, Eleanor X; Carter, Erik W; Boehm, Thomas L; Annandale, Naomi H; Taylor, Courtney E

2014-10-01

Abstract Although the prominence of spirituality and religious connections among the people of the United States is well documented, little is known about the place of faith in the lives of youth with developmental disabilities. In this qualitative interview study, we examined the perspectives of 20 young people with intellectual disability or autism on their faith, spiritual expressions, and disability. Participants identified key spiritual expressions and themes reflecting the importance of faith in their lives. They also shared perceptions of their disability in the context of their faith, highlighting affirmation and acceptance of their disability. We offer recommendations to families, faith communities, and service systems for supporting the spiritual formation, expression, and connections of young people with disabilities.

Disability, human rights, and the International Classification of Functioning, Disability, and Health: systematic review.

PubMed

Aluas, Maria; Colombetti, Elena; Osimani, Barbara; Musio, Alessio; Pessina, Adriano

2012-02-01

This literature review focuses on the literature on disability from the ethical and human rights perspective in the light of the International Classification of Functioning, Disability, and Health in the period from January 1, 2008, to June 30, 2010. This article identifies and examines studies that deal with the subject of disability with reference to rights, ethical issues, and justice. A total of 42 articles and 33 books were selected. The subject most frequently dealt with in studies on disability is that of human rights (76% of the articles and 79% of the books examined), followed by topics relating to welfare (52% of articles and 64% of books), International Classification of Functioning, Disability, and Health (38% of articles and 45% of books), justice (24% of articles and 48% of books), education (21% of articles and 61% of books), and work (19% of articles and 39% of books). The subject of disability is dealt with in various fields of study and various disciplines. Most of the studies are based on the legal approach. It is to be hoped that there will be an increase in the philosophical and ethical study of disability, which has only recently entered the European debate.

A household perspective on access to health care in the context of HIV and disability: a qualitative case study from Malawi.

PubMed

Braathen, Stine Hellum; Sanudi, Lifah; Swartz, Leslie; Jürgens, Thomas; Banda, Hastings T; Eide, Arne Henning

2016-04-01

Equitable access to health care is a challenge in many low-income countries. The most vulnerable segments of any population face increased challenges, as their vulnerability amplifies problems of the general population. This implies a heavy burden on informal care-givers in their immediate and extended households. However, research falls short of explaining the particular challenges experienced by these individuals and households. To build an evidence base from the ground, we present a single case study to explore and understand the individual experience, to honour what is distinctive about the story, but also to use the individual story to raise questions about the larger context. We use a single qualitative case study approach to provide an in-depth, contextual and household perspective on barriers, facilitators, and consequences of care provided to persons with disability and HIV. The results from this study emphasise the burden that caring for an HIV positive and disabled family member places on an already impoverished household, and the need for support, not just for the HIV positive and disabled person, but for the entire household. Disability and HIV do not only affect the individual, but the whole household, immediate and extended. It is crucial to consider the interconnectedness of the challenges faced by an individual and a household. Issues of health (physical and mental), disability, employment, education, infrastructure (transport/terrain) and poverty are all related and interconnected, and should be addressed as a whole in order to secure equity in health.

What's the Harm? Harms in Research With Adults With Intellectual Disability.

PubMed

McDonald, Katherine E; Conroy, Nicole E; Olick, Robert S; Panel, The Project Ethics Expert

2017-01-01

Scientific advances can improve the lives of adults with intellectual disability, yet concerns that research participation may impose harm impede scientific progress. What counts as harmful can be subjective and perceptions of harm may vary among stakeholders. We studied perspectives on the harmfulness of research events among adults with intellectual disability, family members and friends, disability service providers, researchers, and Institutional Review Board members. We found considerable variance. For example, adults with intellectual disability see exclusion from research as more harmful, but most psychosocial harms as less significant than others. All stakeholders agree that having someone else make the participation decision is harmful. Findings provide insights into the concept of harm and ethical research with adults with intellectual disability.

What’s the Harm? Harms in Research with Adults with Intellectual Disability

PubMed Central

McDonald, Katherine E.; Conroy, Nicole E.; Olick, Robert S.

2017-01-01

Scientific advances can improve the lives of adults with intellectual disability, yet concerns that research participation may impose harm impede scientific progress. What counts as harmful can be subjective and perceptions of harm may vary among stakeholders. We studied perspectives on the harmfulness of research events among adults with intellectual disability, family members and friends, disability service providers, researchers, and Institutional Review Board members. We found considerable variance. For example, adults with intellectual disability see exclusion from research as more harmful, but most psychosocial harms as less significant than others. All stakeholders agree that having someone else make the participation decision is harmful. Findings provide insights into the concept of harm and ethical research with adults with intellectual disability. PMID:28095059

Building Employer Capacity to Support Meaningful Employment for Persons with Developmental Disabilities: A Grounded Theory Study of Employment Support Perspectives

ERIC Educational Resources Information Center

Rashid, Marghalara; Hodgetts, Sandra; Nicholas, David

2017-01-01

To explore strategies to build employer capacity to support people with DD in meaningful employment from perspective of employment support workers. A grounded theory study was conducted with 34 employment support individuals. A theoretical sampling approach was used to identify and recruit participants from multiple sites in Ontario and Alberta.…

Using assistive technology for schoolwork: the experience of children with physical disabilities.

PubMed

Murchland, Sonya; Parkyn, Helen

2010-01-01

This study explored the experience of children with physical disabilities using assistive technology for participation with schoolwork to gain a greater understanding of their perspectives and subjective experiences. A qualitative study involving thematic analysis of in-depth interviews of the child with a parent or significant adult. Purposeful sampling from a larger study recruited five children aged between 10 and 14 years, with differing physical disabilities who attended mainstream schools. All children used computer-based assistive technology. All of the children recognised that assistive technology enabled them to participate and reduced the impact of their physical disability, allowing independent participation, and facilitated higher learning outcomes. Issues related to ease of use, social implications and assistive technology systems are discussed.

Validation of the Episodic Disability Framework with adults living with HIV.

PubMed

O'Brien, Kelly K; Hanna, Steven; Gardner, Sandra; Bayoumi, Ahmed M; Rueda, Sergio; Hart, Trevor A; Cooper, Curtis; Solomon, Patricia; Rourke, Sean B; Davis, Aileen M

2014-01-01

To assess the validity of dimensions of disability in the Episodic Disability Framework, a conceptual framework derived from the perspective of adults living with HIV. We conducted confirmatory factor analyses with 913 adults living with HIV in an observational cohort study called the Ontario HIV Treatment Network Cohort Study (OCS). We tested hypotheses that dimensions of disability in the Episodic Disability Framework were represented by a group of measured variables in the observational database. A model comprised of four latent variables and 43 indicator variables with one cross-loading was superior to models with fewer latent variables and more indicator variables and supported the validity of disability dimensions: physical health symptoms (represented by 21 indicator variables), mental health symptoms (10 variables), difficulties with day-to-day activities (5 variables) and challenges to social inclusion (8 variables). Overall goodness of fit statistics were χ(2 )= 2621.50 (p < 0.001), Comparative Fit Index = 0.912, Tucker Lewis Index = 0.907 and root mean square error of approximation = 0.048. Dimensions of disability correlated with each other ranging from r = 0.44 (between physical symptoms and challenges to social inclusion) to r = 0.81 (between physical symptoms and difficulties with day-to-day activities). This study supports the validity of four disability dimensions in the Episodic Disability Framework. This framework provides a new way to conceptualize disability and can lay the foundation for developing a future HIV disability measure for clinical and health services research. The Episodic Disability Framework is the first known conceptual framework of disability developed from the perspective of adults living with HIV. Results from this confirmatory factor analysis support the validity of four dimensions of disability experienced by adults living with HIV in the Episodic Disability Framework including: physical symptoms and impairments, mental health symptoms and impairments, difficulties carrying out day-to-day activities, and challenges to social inclusion. The Episodic Disability Framework provides a new way to conceptualize disability experienced by adults living with HIV. Clinicians can use this Framework to better understand episodic disability experienced by adults living with HIV. Clinicians can frame their assessments of disability to include physical and mental health symptoms and impairments as well as consider a patient's ability to participate in society, and indicate areas to apply interventions or strategies to prevent or mitigate disability experienced by adults living with HIV.

Teacher Perspectives of School-Level Implementation of Alternate Assessments for Students with Significant Cognitive Disabilities. A Report from the National Study on Alternate Assessments. NCSER 2010-3007

ERIC Educational Resources Information Center

Cameto, Renee; Bergland, Frances; Knokey, Anne-Marie; Nagle, Katherine M.; Sanford, Christopher; Kalb, Sara C.; Blackorby, Jose; Sinclair, Beth; Riley, Derek L.; Ortega, Moreica

2010-01-01

The report is organized to provide information on the school-level implementation of alternate assessments for students with significant cognitive disabilities. Following the Introduction in Chapter 1, Chapter 2 describes the study design and methods, including the development of the teacher survey and data collection procedures and analyses.…

Toward Authentic IEPs and Transition Plans: Student, Parent, and Teacher Perspectives

ERIC Educational Resources Information Center

Cavendish, Wendy; Connor, David

2018-01-01

This mixed-methods study examined perspectives on factors that influence meaningful student and parent involvement in Individualized Education Program (IEP) transition planning. Survey data and open-ended qualitative interviews with urban high school students with a learning disability (LD; n = 16), their parents (n = 9), and their teachers (n =…

Culture in Inclusive Schools: Parental Perspectives on Trusting Family-Professional Partnerships

ERIC Educational Resources Information Center

Francis, Grace L.; Blue-Banning, Martha; Turnbull, Ann P.; Hill, Cokethea; Haines, Shana J.; Gross, Judith M. S.

2016-01-01

This qualitative study improves understanding of parent perspectives about the factors that facilitate family-professional partnerships in schools recognized for inclusive practices. Five themes emerged from 11 focus groups consisting of parents of students with and without disabilities and with varying levels of involvement with the school: (a)…

Key Informant Perspectives on Federal Research Agency Policy and Systems and Scientific Workforce Diversity Development: A Companion Study

ERIC Educational Resources Information Center

Moore, Corey L.; Wang, Ningning; Davis, Dytisha; Aref, Fariborz; Manyibe, Edward O.; Washington, Andre L.; Johnson, Jean; Eugene-Cross, Kenyotta; Muhammad, Atashia; Jennings-Jones, Desiree

2017-01-01

Purpose: In the previous analysis of key informant perspectives on minority research leaders' career development factors, we identified individual and sociocultural, institutional, and federal research agency (i.e., National Institute on Disability, Independent Living, and Rehabilitation Research; National Institutes of Health; Agency for…

Cross-Cultural Perspectives on the Classification of Children with Disabilities: Part I. Issues in the Classification of Children with Disabilities

ERIC Educational Resources Information Center

Florian, Lani; Hollenweger, Judith; Simeonsson, Rune J.; Wedell, Klaus; Riddell, Sheila; Terzi, Lorella; Holland, Anthony

2006-01-01

This article is the first of a 2-part synthesis of an international seminar on the classification of children with disabilities. It synthesizes 6 papers that address broad questions relating to disability classification and categorization, cross-national comparisons on disability in education, the World Health Organization's "International…

Perceptions of Disability and Special Education Services: The Perspectives of Korean-American Parents of Children with Disabilities

ERIC Educational Resources Information Center

Choi, Nari; Ostendorf, Raymond

2015-01-01

Parents' perception of disabilities and special education services can impact the way they interact with professionals providing services for their children with disabilities. In addition, the cultural background of parents plays an important role in their perception of disabilities, as well as how they communicate with professionals. Thus, it is…

"My view that disability is okay sometimes clashes": experiences of two disabled occupational therapists.

PubMed

Chacala, Aneta; McCormack, Cathy; Collins, Bethan; Beagan, Brenda L

2014-03-01

While disability is the focus of much attention in occupational therapy, there has been little attention paid to disability within the profession. Disabled therapists not only bring valuable perspectives on disability, but also pose important challenges to taken-for-granted assumptions about impairment and disability within the profession. At the same time, their cultural beliefs and values may clash with core assumptions of the profession. This study analyses interview data from two disabled occupational therapists, part of a larger study with cultural minority therapists. Semi-structured interviews explored their experiences of professional practice in the context of societal belief in the superiority of non-disabled and "normal" ways of doing and being. Some cultural values of participants clashed with the values and beliefs of their profession, particularly concerning independence. Negative attitudes of colleagues and managers were the key barriers to practice. The responsibility for bridging the disabled/non-disabled cultural divide rested with the disabled therapists, exacerbating inequity. Nonetheless, these therapists believed their disability experiences had advantages for practice. Disabled therapists may be required to engage in invisible work to communicate across cultural differences, and to educate others. Respectful openness to difference could enhance the practice competence of both disabled therapists and their non-disabled colleagues. This demands critical reflexive attention to ableism within the profession.

The Impact of the Birth of a Child with Intellectual Disabilities on Pre-Existing Parental Christian Faith from the Perspective of Parents Who Have Parented Their Child to Adulthood.

PubMed

Baines, Susannah; Hatton, Chris

2015-11-01

Faith in the lives of UK families with an adult with intellectual disabilities is an under-researched area with little existing literature. Research in the United States with Christian parents suggests that they draw on their faith for coping (Rogers-Dulan 1998) and for understanding (Skinner et al. 1999). In this study, grounded theory methodology has been used to examine the impact on pre-existing parental faith of the birth of a child with intellectual disabilities from the perspective of parents who have parented their children to adulthood. Seventeen parents or couples took part in semistructured qualitative interviews about their faith. The majority of parents after their child were diagnosed with intellectual disabilities went through a period of flux when they questioned the role of God in the disability. The positive or negative connotations of the attempts at meaning-making did not impact on the eventual outcome for the parents. They eventually put such existential questions aside, accepted their child, and continued in their faith. The implications of the research for health professionals, church organizations and researchers are considered. © 2015 John Wiley & Sons Ltd.

Model of Providing Assistive Technologies in Special Education Schools.

PubMed

Lersilp, Suchitporn; Putthinoi, Supawadee; Chakpitak, Nopasit

2015-05-14

Most students diagnosed with disabilities in Thai special education schools received assistive technologies, but this did not guarantee the greatest benefits. The purpose of this study was to survey the provision, use and needs of assistive technologies, as well as the perspectives of key informants regarding a model of providing them in special education schools. The participants were selected by the purposive sampling method, and they comprised 120 students with visual, physical, hearing or intellectual disabilities from four special education schools in Chiang Mai, Thailand; and 24 key informants such as parents or caregivers, teachers, school principals and school therapists. The instruments consisted of an assistive technology checklist and a semi-structured interview. Results showed that a category of assistive technologies was provided for students with disabilities, with the highest being "services", followed by "media" and then "facilities". Furthermore, mostly students with physical disabilities were provided with assistive technologies, but those with visual disabilities needed it more. Finally, the model of providing assistive technologies was composed of 5 components: Collaboration; Holistic perspective; Independent management of schools; Learning systems and a production manual for users; and Development of an assistive technology center, driven by 3 major sources such as Government and Private organizations, and Schools.

Denial of Chronic Illness and Disability: Part I. Theoretical, Functional, and Dynamic Perspectives

ERIC Educational Resources Information Center

Livneh, Hanoch

2009-01-01

Denial has been an integral part of the psychological and disability literature for more than 100 years. Yet, denial is an elusive concept and has been associated with mixed, indeed conflicting, theoretical perspectives, clinical strategies, and empirical findings. In this two-part article, the author provides an overview of the existing…

Life Transitions of Learning Disabled Adults: Perspectives from Several Countries. Monograph Number Thirty-Two.

ERIC Educational Resources Information Center

Garnett, Katherine, Ed.; Gerber, Paul, Ed.

The collection presents six articles giving international perspectives on learning disabled (LD) adults. G. Gray begins with an analysis of "Vocational Guidance for Dyslexic School Leavers and Adults in Great Britain," in which he notes coping strategies to be used in the workplace and describes the evolution of societal attitudes to LD…

Independent Living and Attendant Care in Sweden: A Consumer Perspective. Monograph Number Thirty-Four.

ERIC Educational Resources Information Center

Ratzka, Adolf D.

The monograph presents, from the disabled consumer's perspective, a description and critique of independent living and attendant care services in Sweden. First, a brief description of Swedish welfare policy as it applies to the population as a whole is presented. Next, services available to people with disabilities are described with emphasis on…

Preparing for Disability Awareness Sunday: An Educational Exercise Drawing on Psychological Perspectives for Biblical Hermeneutics

ERIC Educational Resources Information Center

Francis, Leslie J.; Jones, Susan H.

2015-01-01

Some of the Gospel passages proposed for Disability Awareness Sunday raise challenges as well as opportunities for preachers. This paper reports findings from an educational exercise, drawing on insights from the SIFT approach to biblical hermeneutics, in which 23 Anglican clergy studied Mark 2: 1-12 and Mark 10: 46-52 in groups structured…

Functional Literacy for Students with Visual Impairments and Significant Cognitive Disabilities: The Perspective of Teachers of Students with Visual Impairments

ERIC Educational Resources Information Center

Zebehazy, Kim T.

2014-01-01

This study reports opinions and practices of teachers of students with visual impairments (TSVIs) in 34 states regarding functional literacy for students with visual impairments (VIs) and significant cognitive disabilities (SCDs). The survey asked TSVIs to select a definition of functional literacy, indicate agreement with a series of literacy…

Case in Point: A Statewide Blended Learning Initiative for Students with Disabilities: What Makes It Work? A Director's Perspective

ERIC Educational Resources Information Center

Bell, Sherry D.; Smith, Sean J.; Basham, James D.

2016-01-01

When the North Carolina Virtual Public School (NCVPS) began their experiment with a blended statewide Occupational Course of Study (OCS) (see http://ncvps.org/ocs-blended-learning) program for high school students with intellectual and other developmental disabilities, it was with great ambition and optimism. Born of necessity to address highly…

Living Conditions of Adults with Intellectual Disabilities from a Gender Perspective

ERIC Educational Resources Information Center

Umb-Carlsson, O.; Sonnander, K.

2006-01-01

Background: The role of gender has been a neglected issue in research on intellectual disability (ID). People with ID are generally treated as a homogenous group that are largely categorized by their level of ID. This study compared living conditions of women and men with ID and related the results to similarities and differences among the general…

Spirituality: A Coping Mechanism in the Lives of Adults with Congenital Disabilities

ERIC Educational Resources Information Center

Specht, Jacqueline A.; King, Gillian A.; Willoughby, Colleen; Brown, Elizabeth G.; Smith, Linda

2005-01-01

The purpose of this study was to gain insight into the perspective of individuals with congenital disabilities about spirituality as a coping mechanism during crucial times in their lives, Qualitative analysis of interviews assessing turning points in the lives of 15 adults (6 women and 9 men; M = 37 years) with spina bifida, cerebral palsy, or…

Initial Validation of the Chinese Quality of Life Questionnaire-Intellectual Disabilities (CQOL-ID): A Cultural Perspective

ERIC Educational Resources Information Center

Wong, P. K. S.; Wong, D. F. K.; Schalock, R. L.; Chou, Y-C.

2011-01-01

Background: In the field of intellectual disabilities (ID), the quality of life concept has been developing rapidly in Chinese societies including Hong Kong, mainland China and Taiwan. However, there is a lack of locally validated instruments to measure the quality of life of people with ID. The study reported in this paper attempted to validate…

Cyber Charter Schools and Students with Dis/abilities: Rebooting the IDEA to Address Equity, Access, and Compliance

ERIC Educational Resources Information Center

Collins, Kathleen M.; Green, Preston C., III; Nelson, Steven L.; Madahar, Santosh

2015-01-01

This article takes up the question of equity, access, and cyber charter schools from the perspective of disability studies in education (DSE). DSE positions inclusion and educational access as social justice concerns. In doing so, we assert the importance of making visible the social justice implications of the current laws that impact cyber…

The Impact of Having a Sibling with an Intellectual Disability: Parental Perspectives in Two Disorders

ERIC Educational Resources Information Center

Mulroy, S.; Robertson, L.; Aiberti, K.; Leonard, H.; Bower, C.

2008-01-01

Background: The potential effects on other children when there is a child with intellectual disability (ID) in the family are being increasingly recognized. This study describes the impact of having a sibling with Down syndrome or Rett syndrome using a questionnaire completed by parents. Methods: The parents of 186 Western Australian children with…

Coping experience of health concerns and physical disability for older Chinese people: A qualitative, descriptive study.

PubMed

Mei, He; Turale, Sue

2017-12-01

In this qualitative, descriptive study, we explored the perspectives of older, community-dwelling Chinese people regarding their experiences of coping with a physical disability and their health concerns. Twenty participants were interviewed in-depth, and data were analyzed using content analysis. Five themes with 13 subthemes emerged that described older people's experiences of coping with health concerns and disability: (i) ignoring health concerns; (ii) managing self; (iii) seeking medical help; (iv) living with physical disability; and (v) relying on limited resources. Most participants did not have sufficient access to health services due to physical disability and financial deficits, so they tended to ignore their health conditions or tackle them independently before seeking medical help. At the same time, they were impacted on by social and cultural factors. Policies are required that offer more resources to community-dwelling people with disabilities in China. © 2017 John Wiley & Sons Australia, Ltd.

The Mental Health Needs of Physically Disabled Persons: Their Perspective.

ERIC Educational Resources Information Center

Thurer, Shari; Rogers, E. Sally

The physically disabled are at high risk for psychological problems, yet these issues are not adequately addressed in the professional literature. To assess disabled persons' perceptions of the types of problems they experience, and their need for psychological services, 145 severly disabled persons responded to mailed surveys. Subjects completed…

Counsellors' Attitudes towards Disability Equality Training (DET)

ERIC Educational Resources Information Center

Parkinson, Gill

2006-01-01

This paper explores the attitudes and conceptions held by trainee and practising counsellors towards people with disabilities. Awareness of counsellors' own views of disability and impairment can complicate the counsellor-client relationship when the latter is seen primarily from a deficiency model perspective or self-defined model of disability,…

Nursing Perspectives on Cancer Screening in Adults with Intellectual and Other Developmental Disabilities

ERIC Educational Resources Information Center

Tyler, Carl V.; Zyzanski, Stephen J.; Panaite, Vanessa; Council, Linda

2010-01-01

Health care disparities have been documented in cancer screenings of adults with intellectual and other developmental disabilities. Developmental disabilities nurses were surveyed to better understand and improve this deficiency. Two thirds of respondents believed that adults with intellectual and developmental disabilities received fewer cancer…

Perspectives of North American Postsecondary Students with Learning Disabilities: A Scoping Review

ERIC Educational Resources Information Center

Lightfoot, Amy; Janemi, Roya; Rudman, Debbie Laliberte

2018-01-01

Despite the existence of policies aimed at ensuring equitable opportunities for individuals with disabilities, at the postsecondary level, students with learning disabilities and/or attention deficit/hyperactivity disorder have lower enrollment and completion rates than those without disabilities. To optimize policies and practices to support…

[10 theses of the disabled persons' organizations - why participation research with a social perspective is needed].

PubMed

Hinz, T

2012-12-01

The 5 professional associations for the disabled and the self-help organisations of disabled people state that in Germany a general concept for "participation research" is needed. This concept should address expectations and processes in developing aid services and improve self-determined participation of people with disabilities according to the human rights postulated in the UN Convention on the Rights of People with Disabilities (2006). A concept of "participation research" will go beyond the objectives and methods of i. e., disability studies - it is a focus in the context of which the social and equal participation of the disabled (especially those with multiple and/or intellectual handicaps) has to be addressed. In this context the 5 professional associations for the disabled have drafted 10 theses which are presented in the following article. © Georg Thieme Verlag KG Stuttgart · New York.

Parents with Intellectual Disability in a Population Context.

PubMed

Llewellyn, Gwynnyth; Hindmarsh, Gabrielle

Parenting by people with intellectual disability continues to confront societal sensibilities. On the one hand, parents with intellectual disability engage in the valued social role of raising children; on the other, their parenting attracts (typically negative) attention based on an expectation of their limited capacities to parent. The literature primarily addresses the question of whether or not parents with intellectual disability can be adequate parents or reports on methods for improving their parenting skills. An emerging trend in the literature over the last decade takes a different perspective. Rather than concentrating exclusively on parents with intellectual disability, this perspective focuses on their parenting situation compared to that of other parents more generally. This paper reviews the current state of knowledge about parents and parenting with intellectual disability in this broader population context. The focus of the paper is on the use of larger scale datasets to understand the situation of parents with intellectual disability compared with other parents and to examine the contextual variables that influence their parenting.

The Need for Future Alternatives: An Investigation of the Experiences and Future of Older Parents Caring for Offspring with Learning Disabilities over a Prolonged Period of Time

ERIC Educational Resources Information Center

Cairns, Deborah; Tolson, Debbie; Brown, Jayne; Darbyshire, Chris

2013-01-01

This article reports on the results of a qualitative study (in-depth interviews) carried out in the United Kingdom as part of a larger (two-phased) study investigating the experiences, health and future perspectives of older parent carers (six mothers and two fathers) of offspring with learning disabilities over a prolonged period of time. The…

Psychosocial Adaptation to Chronic Illness and Disability: A Virtue Based Model.

PubMed

Kim, Jeong Han; McMahon, Brian T; Hawley, Carolyn; Brickham, Dana; Gonzalez, Rene; Lee, Dong-Hun

2016-03-01

Psychosocial adaptation to chronic illness and disability (CID) is an area of study where a positive psychology perspective, especially the study of virtues and character strengths, can be implemented within the rehabilitation framework. A carefully developed theory to guide future interdisciplinary research is now timely. A traditional literature review between philosophy and rehabilitation psychology was conducted in order to develop a virtue-based psychosocial adaptation theory, merging important perspectives from the fields of rehabilitation and positive psychology. The virtue-based psychosocial adaptation model (V-PAM) to CID is proposed in the present study. The model involves five qualities or constructs: courage, practical wisdom, commitment to action, integrity and emotional transcendence. Each of these components of virtue contributes to an understanding of psychosocial adaptation. The present study addresses the implications and applications of V-PAM that will advance this understanding.

The challenges of providing palliative care for people with intellectual disabilities: a literature review.

PubMed

Dunkley, Susie; Sales, Rachel

2014-06-01

People with intellectual disabilities are often marginalised from mainstream health-care services because of the complexities of their disability. They are under-referred to specialist palliative care owing to a limited understanding of its role and little collaborative working. Furthermore, professionals caring for people with intellectual disabilities and palliative care services often lack knowledge about and confidence in their ability to meet the needs of people with an intellectual disability who require palliative care. This literature review explores the challenges of providing palliative care for people with intellectual disability. It highlights that training requirements need to be effectively identified, referrals between professional groups made, and the perspectives of patients understood to overcome the marginalisation of people with intellectual disability. There is a need for ongoing staff development focusing on staff confidence, collaborative working between professionals, and the empowerment of people with intellectual disability to be involved in decisions about their end-of-life care. Further research is needed to examine the most effective way of capturing the perspectives of those with intellectual disability and of enabling people with intellectual disability to access and engage with health surveillance, cancer screening, and palliative care services.

Friendships and Intimate Relationships among People with Intellectual Disabilities: A Thematic Synthesis.

PubMed

Fulford, Casey; Cobigo, Virginie

2018-01-01

The purpose of this thematic synthesis was to review qualitative studies on perspectives of persons with intellectual disabilities regarding friendships and intimate relationships. A literature search was conducted, including studies published between 2004 and 2014, involving participants 14 years of age or older, who had intellectual disabilities, and participated in focus groups or interviews. Eighteen studies were included. Three master themes were identified: (i) How do I know someone is my friend? (ii) How do I know someone is my boyfriend or girlfriend? and (iii) What helps and hinders relationships? Understanding how people with intellectual disabilities describe relationships, and being aware of factors that support and impede relationships, will aid stakeholders in developing training, policies, programmes and services. Knowledge translation of research that focuses on strategies aimed at supporting relationships is crucial to affect change in applied settings and improve quality of life for persons with intellectual disabilities. © 2016 John Wiley & Sons Ltd.

Longitudinal perspectives of child positive impact on families: relationship to disability and culture.

PubMed

Blacher, Jan; Begum, Gazi F; Marcoulides, George A; Baker, Bruce L

2013-03-01

This study examined mothers' perceptions of the positive impact of having a child with an intellectual disability. Trajectories of positive impact from 7 time points were developed using latent growth modeling and 2 predictors: culture (Anglo, Latino) and child disability status (intellectual disability, typical development). Data were from 219 mothers of children from age 3 to 9 years. Growth trajectories reflected a general decline in positive impact on Anglo mothers. On average, at age 3, Anglo mothers reported significantly lower initial values on positive impact when their children had an intellectual disability, but Latino mothers did not. Across all time points, Latino mothers had higher scores on the positive impact, regardless of whether they had a child with an intellectual disability or a typically developing child.

Using the International Classification of Functioning, Disability, and Health to identify outcome domains for a core outcome set for aphasia: a comparison of stakeholder perspectives.

PubMed

Wallace, Sarah J; Worrall, Linda; Rose, Tanya; Le Dorze, Guylaine

2017-11-12

This study synthesised the findings of three separate consensus processes exploring the perspectives of key stakeholder groups about important aphasia treatment outcomes. This process was conducted to generate recommendations for outcome domains to be included in a core outcome set for aphasia treatment trials. International Classification of Functioning, Disability, and Health codes were examined to identify where the groups of: (1) people with aphasia, (2) family members, (3) aphasia researchers, and (4) aphasia clinicians/managers, demonstrated congruence in their perspectives regarding important treatment outcomes. Codes were contextualized using qualitative data. Congruence across three or more stakeholder groups was evident for ICF chapters: Mental functions; Communication; and Services, systems, and policies. Quality of life was explicitly identified by clinicians/managers and researchers, while people with aphasia and their families identified outcomes known to be determinants of quality of life. Core aphasia outcomes include: language, emotional wellbeing, communication, patient-reported satisfaction with treatment and impact of treatment, and quality of life. International Classification of Functioning, Disability, and Health coding can be used to compare stakeholder perspectives and identify domains for core outcome sets. Pairing coding with qualitative data may ensure important nuances of meaning are retained. Implications for rehabilitation The outcomes measured in treatment research should be relevant to stakeholders and support health care decision making. Core outcome sets (agreed, minimum set of outcomes, and outcome measures) are increasingly being used to ensure the relevancy and consistency of the outcomes measured in treatment studies. Important aphasia treatment outcomes span all components of the International Classification of Functioning, Disability, and Health. Stakeholders demonstrated congruence in the identification of important outcomes which related Mental functions; Communication; Services, systems, and policies; and Quality of life. A core outcome set for aphasia treatment research should include measures relating to: language, emotional wellbeing, communication, patient-reported satisfaction with treatment and impact of treatment, and quality of life. Coding using the International Classification of Functioning, Disability, and Health, presents a novel methodology for the comparison of stakeholder perspectives to inform recommendations for outcome constructs to be included in a core outcome set. Coding can be paired with qualitative data to ensure nuances of meaning are retained.

Applying the Developmental Perspective in the Psychiatric Assessment and Diagnosis of Persons with Intellectual Disability: Part I - Assessment

ERIC Educational Resources Information Center

Dosen, A.

2005-01-01

In generic psychiatry there has been increasing interest among scientists for the developmental perspective. However, professionals active in the mental health care of people with intellectual disability (ID) have not shown the same degree of interest. The author of this article, who has had a liberal amount of rewarding experiences with the…

Advances in Learning and Behavioral Disabilities. Volume 10. Part A: Theoretical Perspectives [and] Part B: Intervention Research.

ERIC Educational Resources Information Center

Scruggs, Thomas E., Ed.; Mastropieri, Margo A., Ed.

This two-volume set presents 11 papers on the state of the art in learning and behavioral disabilities, the first volume, Part A, includes 6 papers providing theoretical perspectives and, the second volume, Part B, includes 5 papers on intervention research. The theoretical papers are: "Defining Emotional or Behavioral Disorders: Divergence…

Functioning and Disability Analysis of Patients with Traumatic Brain Injury and Spinal Cord Injury by Using the World Health Organization Disability Assessment Schedule 2.0

PubMed Central

Kuo, Chia-Ying; Liou, Tsan-Hon; Chang, Kwang-Hwa; Chi, Wen-Chou; Escorpizo, Reuben; Yen, Chia-Feng; Liao, Hua-Fang; Chiou, Hung-Yi; Chiu, Wen-Ta; Tsai, Jo-Ting

2015-01-01

The purpose of this study is to compare traumatic brain injuries (TBI) and spinal cord injuries (SCI) patients’ function and disability by using the World Health Organization Disability Assessment Schedule 2.0 (WHODAS 2.0); and to clarify the factors that contribute to disability. We analyzed data available between September 2012 and August 2013 from Taiwan’s national disability registry which is based on the International Classification of Functioning, Disability, and Health (ICF) framework. Of the 2664 cases selected for the study, 1316 pertained to TBI and 1348 to SCI. A larger percentage of patients with TBI compared with those with SCI exhibited poor cognition, self-care, relationships, life activities, and participation in society (all p < 0.001). Age, sex, injury type, socioeconomic status, place of residence, and severity of impairment were determined as factors that independently contribute to disability (all p < 0.05). The WHODAS 2.0 is a generic assessment instrument which is appropriate for assessing the complex and multifaceted disability associated with TBI and SCI. Further studies are needed to validate the WHODAS 2.0 for TBI and SCI from a multidisciplinary perspective. PMID:25874682

Family Quality of Life from the Perspective of Older Parents

ERIC Educational Resources Information Center

Jokinen, N. S.; Brown, R. I.

2005-01-01

Background: Family quality of life is a relatively new field of study. Research has primarily concentrated on families of children and young adults with intellectual disability (ID). Method: This project explored the concept of family quality of life from the perspective of older parents who had adult children with ID aged 40. Focus groups,…

Schooling through the Eyes of a Student with Vision Impairment

ERIC Educational Resources Information Center

Opie, Jill; Southcott, Jane

2015-01-01

This article focuses on the school experience of a year 12 student with vision impairment. Few studies have looked at school experiences from a student's perspective, although the belief is that through research focusing on listening to students with disabilities their perspectives will become part of the solution to provide equity and quality in…

The Importance of Motor Functional Levels from the Activity Limitation Perspective of ICF in Children with Cerebral Palsy

ERIC Educational Resources Information Center

Mutlu, Akmer

2010-01-01

Our purpose in this study was to evaluate performance and capacity as defined by Gross Motor Function Classification System (GMFCS) and Manual Ability Classification System (MACS) from the "activity limitation" perspective of International Classification of Functioning, Disability, and Health (ICF) and to investigate the relationship between the…

Emergency psychiatric services for individuals with intellectual disabilities: perspectives of hospital staff.

PubMed

Lunsky, Yona; Gracey, Carolyn; Gelfand, Sara

2008-12-01

Strains on the mainstream mental health system can result in inaccessible services that force individuals with intellectual disabilities into the emergency room (ER) when in psychiatric crisis. The purpose of this study was to identify clinical and systemic issues surrounding emergency psychiatry services for people with intellectual disabilities, from the perspective of hospital staff. Focus groups were conducted with emergency psychiatry staff from 6 hospitals in Toronto, Canada. Hospital staff reported a lack of knowledge regarding intellectual disabilities and a shortage of available community resources. Hospital staff argued that caregivers need more community and respite support to feel better equipped to deal with the crisis before it escalates to the ER and that hospital staff feel ill prepared to provide the necessary care when the ER is the last resort. Input from hospital staff pointed to deficiencies in the system that lead caregivers to use the ER when other options have been exhausted. Both staff and caregivers need support and access to appropriate services if the system is to become more effective at serving the psychiatric needs of this complex population.

Moving Home: The Experiences of Women with Severe Intellectual Disabilities in Transition from a Locked Ward

ERIC Educational Resources Information Center

Owen, Katherine; Hubert, Jane; Hollins, Sheila

2008-01-01

Previous research into deinstitutionalization has largely ignored the perspective of people with intellectual disabilities, especially those with severe intellectual disabilities. This research aimed first to understand how women with severe intellectual disabilities experienced transition from a locked ward of an old long-stay hospital into other…

Exploring British Pakistani Mothers' Perception of Their Child with Disability: Insights from a UK Context

ERIC Educational Resources Information Center

Rizvi, Sana

2017-01-01

This research lends insight into disabling discourses on South Asian families of children with disabilities. It explores immigrant Pakistani maternal understanding of their children's disability, uniquely through an educational perspective, highlighting maternal roles which schools must acknowledge to improve outcomes for children. The findings of…

The Accomplishments of Disabled Women's Advocacy Organizations and Their Future in Korea

ERIC Educational Resources Information Center

Kim, Kyung Mee

2010-01-01

Since the late 1990s disabled women's advocacy organizations have fought against oppression and have made great strides in Korea. This paper aims to describe the accomplishments, challenges and future directions of disabled women's advocacy organizations in Korea. A qualitative design was employed to explore disabled women's perspectives.…

Saving Children at Risk: Poverty and Disabilities. A SAGE Focus Edition.

ERIC Educational Resources Information Center

Thompson, Travis, Ed.; Hupp, Susan C., Ed.

The contributions in this volume grew out of a conference at the University of Minnesota in the fall of 1989. They examine issues that promote a longer range perspective on preventing disabling conditions and intervening early in the lives of children with disabilities. The range of preventable disabling conditions, perinatal influences on…

Why We Need Reliable, Valid, and Appropriate Learning Disability Assessments: The Perspective of a Postsecondary Disability Service Provider

ERIC Educational Resources Information Center

Wolforth, Joan

2012-01-01

This paper discusses issues regarding the validity and reliability of psychoeducational assessments provided to Disability Services Offices at Canadian Universities. Several vignettes illustrate some current issues and the potential consequences when university students are given less than thorough disability evaluations and ascribed diagnoses.…

Romanian Approach to Media Portrayals of Disability

ERIC Educational Resources Information Center

Ciot, Melania-Gabriela; Van Hove, Geert

2010-01-01

There is a wide range of media representations of disability, but not just because of the societal stigma. They are a function of norms of journalism as well as biases among people with disabilities themselves. This article is a contribution to the issue of social representation of persons with disabilities from a Romanian perspective, which will…

Transforming Support for Students with Disabilities in UK Higher Education

ERIC Educational Resources Information Center

Taylor, Mark; Turnbull, Yvonne; Bleasdale, Jo; Francis, Hulya; Forsyth, Henry

2016-01-01

Intended UK government changes to the Disabled Students' Allowance will have a significant impact on the support that UK universities provide for students with disabilities. In this article we examine the types of transformation that may be needed to support for university students with disabilities, from a socio-technical perspective. The…

No, we don't think our doctors are out to get us: responding to the straw man distortions of disability rights arguments against assisted suicide.

PubMed

Gill, Carol J

2010-01-01

The arguments that disability rights advocates present in opposition to legalized assisted suicide are frequently misconstrued in public debate. The goal of this paper is to identify and analyze key "straw man" fallacies about the disability rights opposition in order to clarify this position and the factors that contribute to its distortion. The author adopts a first-person perspective as a disability scholar/activist who has participated in "right to die" debates for over two decades. Three possible barriers that potentially impede comprehension of disability rights arguments are discussed. Prominent fallacies that assisted suicide proponents attribute to disability rights opponents are analyzed in relation to the dynamics of the assisted suicide debate, social views of disability and incurable illness, and available evidence. The author's position is that disability rights arguments against legalized assisted suicide contribute a complex intellectual and experience-based perspective to the debate that can illuminate immediate and distal consequences of altering public policy. Copyright © 2010 Elsevier Inc. All rights reserved.

European validation of The Comprehensive International Classification of Functioning, Disability and Health Core Set for Osteoarthritis from the perspective of patients with osteoarthritis of the knee or hip.

PubMed

Weigl, Martin; Wild, Heike

2017-09-15

To validate the International Classification of Functioning, Disability and Health Comprehensive Core Set for Osteoarthritis from the patient perspective in Europe. This multicenter cross-sectional study involved 375 patients with knee or hip osteoarthritis. Trained health professionals completed the Comprehensive Core Set, and patients completed the Short-Form 36 questionnaire. Content validity was evaluated by calculating prevalences of impairments in body function and structures, limitations in activities and participation and environmental factors, which were either barriers or facilitators. Convergent construct validity was evaluated by correlating the International Classification of Functioning, Disability and Health categories with the Short-Form 36 Physical Component Score and the SF-36 Mental Component Score in a subgroup of 259 patients. The prevalences of all body function, body structure and activities and participation categories were >40%, >32% and >20%, respectively, and all environmental factors were relevant for >16% of patients. Few categories showed relevant differences between knee and hip osteoarthritis. All body function categories and all but two activities and participation categories showed significant correlations with the Physical Component Score. Body functions from the ICF chapter Mental Functions showed higher correlations with the Mental Component Score than with the Physical Component Score. This study supports the validity of the International Classification of Functioning, Disability and Health Comprehensive Core Set for Osteoarthritis. Implications for Rehabilitation Comprehensive International Classification of Functioning, Disability and Health Core Sets were developed as practical tools for application in multidisciplinary assessments. The validity of the Comprehensive International Classification of Functioning, Disability and Health Core Set for Osteoarthritis in this study supports its application in European patients with osteoarthritis. The differences in results between this Europe validation study and a previous Singaporean validation study underscore the need to validate the International Classification of Functioning, Disability and Health Core Sets in different regions of the world.

Unhappy (and Happy) in Their Own Way: A Developmental Psychopathology Perspective on Quality of Life for Families Living with Developmental Disability with and without Autism

ERIC Educational Resources Information Center

Gardiner, Emily; Iarocci, Grace

2012-01-01

Research on families living with developmental disability generally and autism specifically is dominated by a deficit view that elicits an elaborate representation of problems and risks without the benefit of considering families' potential for adaptation and resilience. A central tenet of developmental psychopathology is that the study of…

Perspectives of US Direct Care Workers on the Grief Process of Persons with Intellectual and Developmental Disabilities: Implications for Practice

ERIC Educational Resources Information Center

Gray, Jennifer A.; Abendroth, Maryann

2016-01-01

Background: The study explored the grief process of persons with intellectual and developmental disabilities (PWIDDs) as perceived by direct care workers (DCWs) and how such workers can guide and support PWIDDs experiencing grief. Materials and Methods: A thematic analysis approach was used to examine data from nine focus groups with 60 DCWs from…

The US and South Korean Pre-K through 6 Teachers' Beliefs about Inclusion Practices in Their Countries: Cross Cultural Perspectives

ERIC Educational Resources Information Center

Hyunjeong, Jeong; Tyler-Wood, Tandra L.; Kinnison, Lloyd; Morrison, George

2014-01-01

South Korea and the United States of America (US) both have procedures in place for identifying and serving individuals with disabilities in inclusive classrooms. This current study examined the differences in identification practices for students with disabilities in the US and South Korea. In South Korea, fewer students were identified as having…

Religious Coping, Meaning-Making and Stress: Perspective of Support Staff of Children with Disabilities in Residential Disability Centres in Oman

ERIC Educational Resources Information Center

Emam, Mahmoud; Al-Bahrani, Muna

2016-01-01

Staff providing support to children with disabilities in residential disability centres in Oman are exposed to stressful work environments which may put them at an increased risk of burnout. Previous research has examined predictors of stress in disability support staff, but there is little consensus as the findings are inconclusive. Using a…

[Work disability in public press professions].

PubMed

Akermann, S

2002-09-01

In this study more than 1,000 cases of long-term disability among members of the press and media were evaluated. Mental disorders were the main cause of disability in almost every fourth case. In women psychiatric illnesses were even more important. The most common diagnosis was that of a depressive disorder which accounted for more than half of all psychiatric cases. The causes of disability of other insurance systems such as the German social security scheme and the pension and disability plan for the medical profession were compared. Mental illnesses are the leading cause of disability in white collar workers and orthopaedic illnesses, especially disorders of the vertebral column, are the leading cause in blue collar workers, as one might have expected. In females mental disorders are even more common than in men whereas men tend to have more cardiovascular problems than women. In this study also some interesting features regarding disability caused by various illnesses after long-term follow-up were found. This opens unknown perspectives allowing new assessment of diseases and eventually will enable the actuary to price medical diagnoses for disability insurance.

Perspectives on the International Classification of Functioning, Disability, and Health: Child and Youth Version (ICF-CY) and Occupational Therapy Practice

ERIC Educational Resources Information Center

Cramm, Heidi; Aiken, Alice B.; Stewart, Debra

2012-01-01

Classifying disability for children and youth has typically meant describing a diagnosis or developmental lag. The publication of the "International Classification of Functioning, Disability and Health: Child & Youth" version (ICF-CY) marks a global paradigm shift in the conceptualization and classification of childhood disability. Knowledge and…

Working Alongside Older People with a Learning Disability: Informing and Shaping Research Design

ERIC Educational Resources Information Center

Herron, Daniel; Priest, Helena M.; Read, Sue

2015-01-01

Background: There has been an increase in inclusive research in the learning disability field; however, this has not been reflected within learning disability and dementia research, where little is known from the perspective of people with learning disabilities. This paper will define inclusive research, explore reasons for the dearth of inclusive…

The National Disability Insurance Scheme and Access to Education: Progressive or Coercive Policy Discourse?

ERIC Educational Resources Information Center

Whitburn, Ben; Moss, Julianne; O'Mara, Joanne

2017-01-01

This paper explores the experiences of a small group of families in Australia in relation to recent reform to disability policy by way of the National Disability Insurance Scheme (NDIS). Framed in critical disability perspectives of policy implementation research, the paper focuses on the extent to which the scheme articulates inclusive…

Perspectives on “Disease” and “Disability” in Child Health: The Case of Childhood Neurodisability

PubMed Central

Miller, Anton Rodney; Rosenbaum, Peter

2016-01-01

Chronic health conditions are often associated with what is termed disability. Traditional thinking has focused on diagnosis and treatment of chronic diseases and disorders, with less attention to people’s functional abilities and their contextual determinants. Understanding all of these factors is integral to addressing the predicaments and needs of persons with chronic conditions. However, these complementary yet distinct “worldviews” reflected in what we call disease and disability perspectives often remain, at best, only vaguely articulated. In this paper, we explore and expand on these perspectives in light of conceptual advances, specifically the framework of the World Health Organization’s International Classification of Functioning, Disability and Health, and their epistemic underpinnings with reference to Wilhelm Windelband’s notions of nomothetic and idiographic types of knowledge. Our primary focus is the children with neurodisability – life-long conditions that onset early in life and have functional consequences that impact developmental trajectories. We critically review and analyze conceptual material, along with clinical and research evidence relevant to the experiential and clinical realities of this population, to demonstrate the limitations of a biomedically based diagnostic–therapeutic paradigm at the expense of a developmental and disability-oriented perspective. Our main aim in this paper is to argue for an explicit recognition of both disease and disability perspectives, and a more balanced and appropriate deployment of these concepts across the continuum of clinical services, research, policy-making and professional and public education in relation to children with neurodisability; we also provide concrete recommendations to advance this progressive strategy. The relevance of these aims and strategies, however, extends beyond this particular population. PMID:27833905

Fortifying the Foundation: Tools for Addressing Disability within the Multicultural Classroom

ERIC Educational Resources Information Center

Bialka, Christa S.

2017-01-01

In a 2007 issue of "Multicultural Perspectives," Johnson and Nieto highlighted the need for more deliberate, robust, and balanced conversations regarding disability, especially within the context of multicultural education. Although researchers echo the importance of disability-based discussions and related curriculum, disability…

Sheep or Goats? Learning Disabilities and Educational Services for Children with Special Needs: A Canadian Perspective

ERIC Educational Resources Information Center

Kendall, David

1977-01-01

Presented at the First National Conference on Learning Disabilities in Ottawa, Canada in October, 1977, the article discusses learning disabilities and their appropriate special educational services in Canada, focusing on the processes of categorization and labeling. (DLS)

The experience of adult children of mothers with intellectual disability: A qualitative retrospective study from Poland.

PubMed

Wołowicz-Ruszkowska, Agnieszka; McConnell, David

2017-05-01

Little is known about the experience of growing up with a mother with intellectual disability. The aim of this study was to explore this experience from the perspective of adult children. In-depth interviews with 23 adult children brought up by mothers with moderate-to-severe intellectual disability. The interview data were analysed using grounded theory methods. The childhood experiences of the interviewees and the role their mothers played in their upbringing varied, depending in part on the involvement of extended family. It was the stigma of maternal intellectual disability, rather than their mother's functional limitations, that posed the greatest challenge. Interviewees characterized their mothers and childhoods as different, yet ordinary. Understanding the social context, including but not limited to the availability of informal support, is critical to understanding the experience of children growing up with mothers with intellectual disability. © 2017 John Wiley & Sons Ltd.

Parents’ Education Shapes, but Does Not Originate, the Disability Representations of Their Children

PubMed Central

Meloni, Fabio; Federici, Stefano; Dennis, John Lawrence

2015-01-01

The present research tested whether children’s disability representations are influenced by cultural variables (e.g., social activities, parent education, custom complex variables) or by cognitive constraints. Four questionnaires were administered to a sample of 76 primary school aged children and one of their parents (n = 152). Questionnaires included both open-ended and closed-ended questions. The open-ended questions were created to collect uncensored personal explanations of disability, whereas the closed-ended questions were designed to elicit a response of agreement for statements built on the basis of the three most widespread disability models: individual, social, and biopsychosocial. For youngest children (6–8 years old), people with disabilities are thought of as being sick. This early disability representation of children is consistent with the individual model of disability and independent from parents’ disability explanations and representations. As children grow older (9–11 years old), knowledge regarding disability increases and stereotypical beliefs about disability decrease, by tending to espouse their parents representations. The individual model remains in the background for the adults too, emerging when the respondents rely on their most immediately available mental representation of disability such as when they respond to an open-ended question. These findings support that the youngest children are not completely permeable to social representations of disability likely due to cognitive constraints. Nevertheless, as the age grows, children appear educable on perspectives of disability adhering to a model of disability representation integral with social context and parent perspective. PMID:26053585

'It's my life': autonomy and people with intellectual disabilities.

PubMed

Björnsdóttir, Kristín; Stefánsdóttir, Guðrún V; Stefánsdóttir, Ástríður

2015-03-01

This article discusses autonomy in the lives of adults with intellectual disabilities. The article draws on inclusive research in Iceland with 25 women and 16 men and employs ideas of relational autonomy from the perspectives of the Nordic relational approach to disability. In this article, we examine autonomy in relation to private life, that is, homes and daily activities. The article demonstrates how practices have improved with time and seem less paternalistic. However, the article also demonstrates that the assistance people with intellectual disabilities receive in their homes often has institutional qualities, and they are often met with belittling perspectives from staff and family members. Furthermore, many did not have access to important information needed to develop individual autonomy and independence, including making their own choices. The research findings suggest that people with intellectual disabilities can with appropriate support develop individual autonomy and make their own choices. © The Author(s) 2014.

Entangled ethnography: imagining a future for young adults with learning disabilities.

PubMed

Ginsburg, Faye; Rapp, Rayna

2013-12-01

Our article draws on one aspect of our multi-sited long-term ethnographic research in New York City on cultural innovation and Learning Disabilities (LD). We focus on our efforts to help create two innovative transition programs that also became sites for our study when we discovered that young adults with disabilities were too often "transitioning to nowhere" as they left high school. Because of our stakes in this process as parents of children with learning disabilities as well as anthropologists, we have come to think of our method as entangled ethnography, bringing the insights of both insider and outsider perspectives into productive dialog, tailoring a longstanding approach in critical anthropology to research demedicalizing the experience of disability. Copyright © 2013 Elsevier Ltd. All rights reserved.

The Experiences of Latino Siblings of Children with Developmental Disabilities

PubMed Central

Kao, Barbara; Romero-Bosch, Lilia; Plante, Wendy; Lobato, Debra

2011-01-01

Objective This qualitative study explored the experiences of Latino siblings of children with developmental disabilities. Methods Parents and typically developing siblings from 15 Latino families with a child with a developmental disability participated in separate interviews. Results Using Consensual Qualitative Research methodology (Hill, Thompson, & Williams, 1997), domains reflecting siblings’ relationships, emotional experiences, and communication about the disability were identified. The child’s need for caregiving was a prominent topic in the sibling and parent narratives. Parents reported concerns about siblings’ experience of differential treatment whereas siblings reported concerns about restricted social activities because of their brother/sister. Conclusions Including multiple informants revealed commonalities and differences in parents’ and siblings’ perspectives on the impact of a child’s disability. The importance of considering sibling adaptation in sociocultural context is discussed. PMID:21651613

Disability Rights: A Perspective on Advocacy.

ERIC Educational Resources Information Center

Goldman, Charles D.

1985-01-01

Reviews Federal legislation since 1968 affecting disabled people and discusses political and bureaucratic inaction that compromised implementation. Suggests that the remainder of the 1980's will be a period when disabled persons must assert their rights, supposedly guaranteed by Federal and State laws, to participate fully in society. (SA)

Employability Skills for Individuals with Intellectual Disabilities: Supervisors' versus Teachers' Perspectives

ERIC Educational Resources Information Center

Bonner, Vint K. H.

2017-01-01

Employability skills are important for employment access, success, and excellence, regardless of disability status. Importantly, employability skills are essential to the employment success of individuals with intellectual disabilities. Unfortunately, there are differences between the employability skills valued by employers, and the employability…

Collective Perspectives on Issues Affecting Learning Disabilities. Position Papers and Statements.

ERIC Educational Resources Information Center

National Joint Committee on Learning Disabilities, Baltimore, MD.

Position papers of the National Joint Committee on Learning Disabilities during 1981-1994 and information about this committee's history, mission, and operational procedures are presented. The position papers and statements are as follows: "Learning Disabilities: Issues on Definition" (1981); "In-service Programs in Learning…

Parental and Teacher Perspectives on Assistive Technology

ERIC Educational Resources Information Center

Peterson, Darrell Howard

2017-01-01

The Individuals with Disabilities in Education Act (IDEA) of 1997 demands that assistive technology be considered for all students with disabilities, yet it is vastly underutilized amongst people with mental retardation (Arc, 1993; Wehmeyer, 1995), learning disabilities (Jeffs, Behrmann, & Bannan-Ritland, 2006; Lewis, 1998; Raskind, Higgins,…

Introducing ZORA to Children with Severe Physical Disabilities.

PubMed

van den Heuvel, Renée; Lexis, Monique; de Witte, Luc

2017-01-01

The aim of the present study was to explore the potential of a ZORA-robot based intervention in rehabilitation and special education for children with (severe) physical disabilities from the professionals perspective. The qualitative results of this study will be presented. Professionals indicated meaningful application possibilities for ZORA. Overall, ZORA was able to improve motivation, concentration, taking initiative and attention span. Three domains could be identified to be most promising for application of ZORA: (re)learning of movement skills, cognitive skills and communication/social interaction skills.

"We Can't Make Him Fit into the System": Parental Reflections on the Reasons Why Home Education Is the Only Option for Their Child Who Has Special Educational Needs

ERIC Educational Resources Information Center

Kendall, Lynne; Taylor, Elizabeth

2016-01-01

This small-scale study investigates the perspectives of parents whose children have special educational needs/disabilities and who have elected to withdraw their children from the state-maintained education system in England and educate them at home. The study draws on data gathered from seven parents and their perspectives of home education…

A Westerner's Impression of the Place of People with a Disability in Asian Society

ERIC Educational Resources Information Center

Parmenter, Trevor R.

2014-01-01

From a Westerner's perspective of the place of people with a disability in Asian society, there are similarities and differences between the two societies. A major problem for the Asian countries is their lack of reliable disability prevalence data. The stigmatization of people with a disability remains an international problem and is not confined…

The complexity of rural contexts experienced by community disability workers in three southern African countries

PubMed Central

van Pletzen, Ermien; Lorenzo, Theresa

2015-01-01

An understanding of rural communities is fundamental to effective community-based rehabilitation work with persons with disabilities. By removing barriers to community participation, persons with disabilities are enabled to satisfy their fundamental human needs. However, insufficient attention has been paid to the challenges that rural community disability workers (CDWs) face in trying to realise these objectives. This qualitative interpretive study, involving in-depth interviews with 16 community disability workers in Botswana, Malawi and South Africa, revealed the complex ways in which poverty, inappropriately used power and negative attitudes of service providers and communities combine to create formidable barriers to the inclusion of persons with disabilities in families and rural communities. The paper highlights the importance of understanding and working with the concept of ‘disability’ from a social justice and development perspective. It stresses that by targeting attitudes, actions and relationships, community disability workers can bring about social change in the lives of persons with disabilities and the communities in which they live. PMID:28730029

Perspectives of rural carers on benefits and barriers of receiving occupational therapy via Information and Communication Technologies.

PubMed

Gardner, Kate; Bundy, Anita; Dew, Angela

2016-04-01

People with a disability living in rural areas commonly experience difficulty in accessing therapy services. Information and Communication Technologies (ICT) may have the potential to provide occupational therapy services remotely through two-way visual interactions. The aim of this qualitative study was to understand the perspectives of carers of a person with a disability living in rural New South Wales (NSW) on the use of ICT for occupational therapy service delivery. Individual semi-structured telephone interviews were conducted with 11 carers of persons with a disability living in rural NSW. Participants were asked about their use of technology, therapy experiences and their attitudes towards using ICT to receive occupational therapy for their son/daughter. Data were analysed via constant comparison and thematic analysis. Participants were willing to use ICT to enhance their current access to therapy based on their in-depth knowledge of their son or daughter and their prior experiences with therapy and technology. For ICT to work for occupational therapy, participants identified the need for support and access prior to, during and between ICT sessions. From the carers' perspectives, ICT has the potential to increase access to occupational therapy services for people with a disability who live in rural NSW. Occupational therapists could benefit from eliciting the experiences, knowledge and willingness of rural carers to deliver therapy via ICT, thereby supplementing and enhancing in-person service delivery. © 2016 Occupational Therapy Australia.

Disability Policy Implementation From a Cross-Cultural Perspective.

PubMed

Verdugo, Miguel A; Jenaro, Cristina; Calvo, Isabel; Navas, Patricia

2017-07-01

Implementation of disability policy is influenced by social, political, and cultural factors. Based on published work, this article discusses four guidelines considered critical for successful policy implementation from a cross-cultural perspective. These guidelines are to: (a) base policy implementation on a contextual analysis, (b) employ a value-based approach, (c) align the service delivery system both vertically and horizontally, and (d) engage in a partnership in policy implementation. Public policy should be understood from a systems perspective that includes cross-cultural issues, such as how different stakeholders are acting and the way they plan and implement policy.

Twenty years of multidisciplinary research and practice: the Journal of Occupational Rehabilitation then and now.

PubMed

Shaw, William S; Findley, Patricia A; Feuerstein, Michael

2011-12-01

Early research of work disability in the 1980s showed a complexity of factors influencing pain and health-related functional limitation at work; hence, multidisciplinary perspectives were necessary to understand the complex interplay between biomechanical, organizational, social, and psychological factors impacting work disability. To address this need, the Journal of Occupational Rehabilitation was founded in 1991 with the goal of providing a scientific, yet practical forum for presenting multidisciplinary research and practice in work disability. Now, the 20-year collection of articles in the Journal reflects important trends and directions in the field of occupational rehabilitation. We conducted a retrospective summary of the past 20 years of the Journal of Occupational Rehabilitation, including its inaugural goals and intent, rates of submission and acceptance, trends in the types of articles published, study topics, global distribution of authors, and future directions. The original goal of providing a multidisciplinary scientific and practical forum has been met, but current trends reflect a maturing scientific evidence base, with less representation of employer-based case studies and practical innovations. There has been a dramatic increase in the international representation of studies, authors, and peer reviewers outside of the US. Also, published studies now address work disability for a larger number of health concerns. Contributions to the Journal continue to reflect a multidisciplinary perspective, but the Journal has seen significant changes with respect to international representation, the expanding study of non-musculoskeletal sources of work disability, and the maturing scientific evidence base in the field of occupational rehabilitation. Future volumes of the Journal will likely reflect continuing changes in the global economy, workforce fitness, and job demands.

Specific learning disability in mathematics: a comprehensive review.

PubMed

Soares, Neelkamal; Evans, Teresa; Patel, Dilip R

2018-01-01

Math skills are necessary for success in the childhood educational and future adult work environment. This article reviews the changing terminology for specific learning disabilities (SLD) in math and describes the emerging genetics and neuroimaging studies that relate to individuals with math disability (MD). It is important to maintain a developmental perspective on MD, as presentation changes with age, instruction, and the different models (educational and medical) of identification. Intervention requires a systematic approach to screening and remediation that has evolved with more evidence-based literature. Newer directions in behavioral, educational and novel interventions are described.

Specific learning disability in mathematics: a comprehensive review

PubMed Central

Evans, Teresa; Patel, Dilip R.

2018-01-01

Math skills are necessary for success in the childhood educational and future adult work environment. This article reviews the changing terminology for specific learning disabilities (SLD) in math and describes the emerging genetics and neuroimaging studies that relate to individuals with math disability (MD). It is important to maintain a developmental perspective on MD, as presentation changes with age, instruction, and the different models (educational and medical) of identification. Intervention requires a systematic approach to screening and remediation that has evolved with more evidence-based literature. Newer directions in behavioral, educational and novel interventions are described. PMID:29441282

Identification of aspects of functioning, disability and health relevant to patients experiencing vertigo: a qualitative study using the international classification of functioning, disability and health

PubMed Central

2012-01-01

Purpose Aims of this study were to identify aspects of functioning and health relevant to patients with vertigo expressed by ICF categories and to explore the potential of the ICF to describe the patient perspective in vertigo. Methods We conducted a series of qualitative semi-structured face-to-face interviews using a descriptive approach. Data was analyzed using the meaning condensation procedure and then linked to categories of the International Classification of Functioning, Disability and Health (ICF). Results From May to July 2010 12 interviews were carried out until saturation was reached. Four hundred and seventy-one single concepts were extracted which were linked to 142 different ICF categories. 40 of those belonged to the component body functions, 62 to the component activity and participation, and 40 to the component environmental factors. Besides the most prominent aspect “dizziness” most participants reported problems within “Emotional functions (b152), problems related to mobility and carrying out the daily routine. Almost all participants reported “Immediate family (e310)” as a relevant modifying environmental factor. Conclusions From the patients’ perspective, vertigo has impact on multifaceted aspects of functioning and disability, mainly body functions and activities and participation. Modifying contextual factors have to be taken into account to cover the complex interaction between the health condition of vertigo on the individuals’ daily life. The results of this study will contribute to developing standards for the measurement of functioning, disability and health relevant for patients suffering from vertigo. PMID:22738067

“It means you are grounded” – caregivers’ perspectives on the rehabilitation of children with neurodisability in Malawi

PubMed Central

Paget, Amelia; Mallewa, Macpherson; Chinguo, Dorothy; Mahebere-Chirambo, Chawanangwa; Gladstone, Melissa

2016-01-01

Abstract Purpose: Rates of childhood disability are estimated to be high in African settings; however, services to provide information and support are limited. This study aims to explore perspectives and experiences of caregivers of children with disabilities (CWD) from acquired brain injury to inform the development of training packages for health-workers (HW) in hospital settings. Methods: The study was conducted in a tertiary hospital using qualitative methods. Fourteen in-depth interviews (IDIs) were conducted with parents/carers (PC), and 10 IDIs and 4 focus-group discussions (FGDs) with HW. Data were audio-recorded, transcribed, translated and analysed using thematic approaches. Results: HWs and PCs held varying perspectives on aetiology and prognosis for CWD. HWs raised concerns about impact on families, risks of neglect and abuse. Barriers to care and support included prioritisation of acute illness, lack of HW knowledge and confidence, stigma, poor communication, focus on physical disability, and poor availability of services. Among ideas for improvement, good communication and counselling was seen as a priority but not often achieved. Conclusion: A range of family, health service and wider contextual factors affect care for CWD. Training for HW should emphasise disability rights, access to services, a range of disabilities and specific training on counselling.Implications for RehabilitationTo create good training programmes for workers who manage children with neurodisability, workers’ views on their training needs, as well parents’ views of what feel they need to know most, must be taken into account.The need for training regarding communication skills is a priority for health-workers (HW), who manage children with neurodisability in Malawi and confidence in this area is likely to be vital in providing support for these families.Disability rights and inclusion should be imperative in any training programme for managing children with neurodisability in hospital settings.Even in low-resource settings such as Malawi, it is vital that the links between hospital management and the limited resources in the community are updated and maintained.

Teaching Students with Intellectual Disabilities: Constructivism or Behaviorism?

ERIC Educational Resources Information Center

Algahtani, Faris

2017-01-01

Many teaching strategies have been postulated over the past years by various scholars in an effort to enhance the education system among students with intellectual disabilities. There is much debate on the application of constructivist and behaviorist perspectives for teaching students with intellectual disabilities as addressed in this paper.…

Spirituality, Loss and Recovery in Children with Disabilities

ERIC Educational Resources Information Center

Erickson, David V.

2008-01-01

This article focuses on loss, recovery and spiritual dimensions of trauma in spinal cord injury (SCI) during adolescence. From a clinical perspective, while there are physical characteristics in common with congenital childhood disabilities such as spina bifida, life adjustment issues associated with acquired disabilities can be quite different,…

Youth with Disabilities and Chronic Illnesses: International Issues. CYDLINE Reviews.

ERIC Educational Resources Information Center

Minnesota Univ., Minneapolis. National Center for Youth with Disabilities.

This annotated bibliography offers an international perspective on attitudes toward adolescents and young adults with disabilities, and policies and service delivery systems impacting these adolescents and young adults. The bibliography provides the author, title, source, and abstract for 19 resources on attitudes toward people with disabilities,…

An Integrative Conceptual Framework of Disability: New Directions for Research.

ERIC Educational Resources Information Center

Tate, Denise G.; Pledger, Constance

2003-01-01

Examines various disability paradigms across time, assessing the relative contribution of the socioecological perspective in guiding research designed to improve the lives of people with disabilities. Recommends new research directions that include a focus on life span issues, biomedicine, biotechnology, the efficacy and effectiveness of current…

Employer Perspectives on Disability Nondiscrimination Practices.

ERIC Educational Resources Information Center

Bruyere, Susanne M.

Over the past 3 to 4 years, Cornell University has been involved in research to explore how disability discrimination legislation impacts employer policies and practices regarding hiring, retaining, and accommodating applicants and employees with disabilities. The purpose of this paper is to describe the process by which Cornell conducted this…

Employer Practices for Employment of People with Disabilities: A Literature Scoping Review

ERIC Educational Resources Information Center

Karpur, Arun; Vanlooy, Sara A.; Bruyère, M.

2014-01-01

Purpose: Research on employment for people with disabilities has focused on the perspectives of people with disabilities and service providers. Empirical evidence about employer practices and their outcomes would inform the development of more targeted interventions. Method: Scoping review was conducted of literature discussing employer-focused…

Sexuality and Developmental Disability: Obstacles to Healthy Sexuality throughout the Lifespan

ERIC Educational Resources Information Center

Richards, Deborah; Miodrag, Nancy; Watson, Shelley L.

2006-01-01

This paper presents a lifespan perspective of sexuality issues for individuals with developmental disabilities. Individuals with developmental disabilities are human beings who have historically been denied the right to express their sexuality or engage in sexual relationships due to misconceptions or negative attitudes. Using a hypothetical case…

Barriers to Increasing the Physical Activity of People with Intellectual Disabilities

ERIC Educational Resources Information Center

Cartwright, Luke; Reid, Marie; Hammersley, Richard; Walley, Robert M.

2017-01-01

Background: The prevalence of obesity, inactivity and related morbidity and mortality is higher amongst people with intellectual disabilities than in the population in general, an issue of global concern. This research examined the perspectives of people with intellectual disabilities and their carers, on exercise and activity. Materials and…

Learning Disabilities: A Neurobiological Perspective in Humans.

ERIC Educational Resources Information Center

Bonnet, Kenneth A.

1989-01-01

The mechanisms of both language-based and non-language-based learning disabilities are presented within the framework of central nervous system development and the compromises to that development that arise from genetic, hormonal, antibody, medication, and postnatal compromises. Also reviewed is the need for a taxonomy of learning disabilities.…

The State of the States in Developmental Disabilities. Fifth Edition.

ERIC Educational Resources Information Center

Braddock, David; Hemp, Richard; Parish, Susan; Westrich, James

This volume reports on the fifth nationwide survey of trends in mental retardation (MR) and developmental disabilities (DD). It begins with four chapters summarizing trends in the nation as a whole. The first chapter is "Mental Retardation and Developmental Disabilities: Historical and Contemporary Perspectives" (David Braddock). This…

Meanings of Sisterhood and Developmental Disability: Narratives from White Nondisabled Sisters

ERIC Educational Resources Information Center

McGraw, Lori A.; Walker, Alexis J.

2007-01-01

Integrating thought from critical feminist and disability theorists via a strategic social constructionist perspective, the authors analyzed 10 in-depth qualitative interviews to begin to understand the dialogue between (a) how nondisabled sisters understand themselves and their siblings with developmental disabilities and (b) wider systems of…

Community Involvement of Young Adults with Intellectual Disabilities: Their Experiences and Perspectives on Inclusion.

PubMed

Hall, Sarah A

2017-09-01

Inclusion in the community is essential to enhancing a person's quality of life. Although people with intellectual disabilities have a desire to be more involved in activities, they experience barriers that limit their inclusion. The purpose of this study was to describe the community involvement of young adults with intellectual disability. I interviewed fourteen young adults with intellectual disability to explore their involvement in work, recreation and leisure activities. Four themes emerged from the data: vocational endeavours, leisure pursuits, social inclusion and supports. The contexts of their experiences either facilitated or hindered their community involvement. The community involvement of young adults with intellectual disability varies depending on the opportunities and supports available to them. Their inclusion in the community may be enhanced by additional transportation options, continuing education in vocational and social skills, personalized guidance from group members and environments that are welcoming to people with disabilities. © 2016 John Wiley & Sons Ltd.

Crafting and retelling everyday lives--disabled people's contribution to bioethical concerns.

PubMed

Matthews, Nicole; Ellem, Kathleen; Chenoweth, Lesley

2013-01-01

This commentary draws out themes from the narrative symposium on "living with the label "disability" from the perspective of auto/biography and critical disability studies in the humanities. It notes the disconnect between the experiences discussed in the stories and the preoccupations of bioethicists. Referencing Rosemarie Garland-Thompson's recent work, it suggests that life stories by people usually described as "disabled" offer narrative, epistemic and ethical resources for bioethics. The commentary suggests that the symposium offers valuable conceptual tools and critiques of taken-for-granted terms like "dependency". It notes that these narrators do not un-problematically embrace the term "disability", but emphasize the need to redefine, strategically deploy or reject this term. Some accounts are explicitly critical of medical practitioners while others redefine health and wellbeing, emphasizing the need for reciprocity and respect for the knowledge of people with disability, including knowledge from their experience of "the variant body" (Leach Scully, 2008).

An exploratory study of how sports and recreation industry personnel perceive the barriers and facilitators of physical activity in children with disability.

PubMed

Shields, Nora; Synnot, Anneliese J

2014-01-01

To explore the perceived barriers and facilitators to participation in physical activity among children with disability in physical activity and community sports from the perspective of sports and recreation industry personnel. A convenient sample of 24 participants was recruited from delegates attending a symposium on physical activity for organisations in the sport and recreation sector in Victoria, Australia. The participants completed a brief questionnaire. Data were analysed by content analysis using an inductive approach. The participants reported 25 facilitators and 20 barriers to participation for children with disability. The top five reported facilitators were: welcoming providers, support and encouragement from parents or others, inclusive providers, adaptable approaches and accessibility of facilities. The top five reported barriers were: inaccessible facilities, non-inclusive providers, transport, lack of relevant opportunities and cost. Sports industry personnel share a similar perspective to families of potential barriers and facilitators to engagement by children with disability in physical activity and community sports. Policy change was not considered as a facilitator of physical activity, even though four of the top five facilitators identified could be implemented through local policy change. Implications for Rehabilitation There are multiple factors that interact with each other which influence the participation by children with disability in physical activity and community sports. The sports and recreation industry should consider policy change as a relevant way to facilitate participation by children with disability in physical activity. More professional development and disability engagement opportunities for sports and recreation industry personnel may help address some of the barriers to participation for children with disability experience.

Expectations from different perspectives on future work outcome of young adults with intellectual and developmental disabilities.

PubMed

Holwerda, Anja; Brouwer, Sandra; de Boer, Michiel R; Groothoff, Johan W; van der Klink, Jac J L

2015-03-01

Expectations strongly influence future employment outcomes and social networks seem to mediate employment success of young adults with intellectual and developmental disabilities. The aim of this study is to examine the expectations of young adults with intellectual and developmental disabilities from special needs education, their parents and their school teachers regarding future work and the extent to which these expectations predict work outcome. Data on 341 young adults with intellectual or developmental disabilities, coming from special needs education, aged 17-20 years, and with an ability to work according to the Social Security Institute were examined. The school teacher's expectation was the only perspective that significantly predicted entering competitive employment, with a complementary effect of the expectation of parents and a small additional effect of the expectation of the young adult. Expectations of school teachers and parents are valuable in predicting work outcome. Therefore, it is important for professionals working with the young adult in the transition from school to work to incorporate the knowledge of school teachers and parents regarding the abilities of the young adult to enter competitive employment as a valuable source of information.

Paradigms for investigating rehabilitation and adaptation to childhood disability and chronic illness.

PubMed

Harper, D C

1991-10-01

Significant research perspectives in investigating chronic illness and disability are presented. Historical research conceptualizations in childhood disability are reviewed and newer contexts for evaluating disorder are presented. Future research in childhood illness and disability is directed toward basing investigations on theoretical models and promoting prospective longitudinal programs. Pediatric psychologists are encouraged to consider more collaborative efforts to move the field forward systematically.

What Would It Take? Employer Perspectives on Employing People with a Disability. A National Vocational Education and Training Research and Evaluation Program Report

ERIC Educational Resources Information Center

Waterhouse, Peter; Kimberley, Helen; Jonas, Pam; Glover, John

2010-01-01

One focus of the Australian Government's social inclusion agenda is to help people with a disability into work. The government's new National Mental Health and Disability Employment Strategy acknowledges that a considerable barrier to employment for people with a disability is the lack of information for employers. It is therefore timely to…

"So Often They Do Not Get Recruited": Exploring Service User and Staff Perspectives on Participation in Learning Disability Research and the Barriers That Inhibit It

ERIC Educational Resources Information Center

Crook, Bradley; Tomlins, Rose; Bancroft, Ann; Ogi, Laura

2016-01-01

The importance of making research participation accessible for people with learning disabilities is emphasised in government and NHS research strategies. This evaluation explored the realities of this goal from the perceptions of people with learning disabilities and clinicians within an NHS learning disability service. People with learning…

Inclusion in political and public life: the experiences of people with intellectual disability on government disability advisory bodies in Australia.

PubMed

Frawley, Patsie; Bigby, Christine

2011-03-01

Civil and political participation lies at the core of citizenship. Increasingly, people with intellectual disability are members of disability advisory bodies. This study investigated the political orientations of advisory body members with intellectual disability, their participatory experiences, and the types of support they received. The 9 people with intellectual disability who in 2005 were members of disability advisory bodies at a state, national, and Victorian local government level were interviewed, together with 12 other members or secretariat staff of these bodies. Observations were also conducted of advisory body meetings. The political perspective of members with intellectual disability varied, but all had a background in self-advocacy. They found the work hard but rewarding and encountered both practical and intangible obstacles to participation. Members received varying types of practical support, but a supportive collegial milieu was characteristic among members who felt most confident about their participation. The milieu, structures, and processes of advisory bodies must all be adjusted to accommodate people with intellectual disability if they are to participate meaningfully.

The ICF: International Classification of Functioning, Disability and Health (ICF)--a Swiss army knife? Accessibility and disability in a Scandinavian disability magazine (SDM)--a quantitative content analysis.

PubMed

Lundälv, Jörgen; Larsson, Per-Olof; Törnbom, Marie; Sunnerhagen, Katharina Stibrant

2012-11-01

The study describes the extent to which the concept of accessibility and accessibility issues has been reported in a national Scandinavian disability magazine. In this study particular attention is paid to how the compatibility between the various domains of the international classification - International Classification of Functioning, Disability and Health (ICF) - has been covered in the magazine over a decade. Furthermore, other types of descriptions that the magazine has made of accessibility for people with physical disabilities are considered. The study is based on a quantitative content analysis of a total of 326 articles from the Swedish disability magazine (SDM); 450 text pages published during the years 2000-2009. The magazine's coverage has been comprehensive. More than half of the studied texts were news items about various accessibility issues. Every third article can be characterised as a news article or feature article. The most frequently reported of the ICF domains consist of two perspectives: environmental accessibility and civil rights. Public opinion articles in the form of letters to editors and editorials focused on accessibility have a low frequency. Likewise, research reports are few. The study has included a review of illustrations and photographs. The illustrations are generally of high quality, reinforcing the disability message of the article. Crown Copyright © 2012. Published by Elsevier Ireland Ltd. All rights reserved.

Increasing Understanding and Social Acceptance of Individuals with Disabilities through Exploration of Comics Literature

ERIC Educational Resources Information Center

McGrail, Ewa; Rieger, Alicja

2016-01-01

Research supports the inclusion of children with disabilities in general education classrooms as a way to boost academic and social development, not only for children with disabilities, but also for typically developing children. A wide variety of perspectives and abilities in the classroom builds empathy, understanding, and creativity--all…

Model Centers Program for Learning Disabled Children: Historical Perspective.

ERIC Educational Resources Information Center

Senf, Gerald M.

This document describes the present federal effort on behalf of learning disabled children, beginning with its recent history. It traces the field of learning disabilities as a subspecialty within education from 1963, when a steering committee was appointed to organize a symposium on "The Child with Minimal Brain Dysfunction," through the Learning…

Ordinary Families, Special Children: A Systems Approach to Childhood Disability. Third Edition

ERIC Educational Resources Information Center

Seligman, Milton; Darling, Rosalyn Benjamin

2007-01-01

Now in a revised and expanded third edition, this popular clinical reference and text provides a multisystems perspective on childhood disability and its effects on family life. The volume examines how child, family, ecological, and sociocultural variables intertwine to shape the ways families respond to disability, and how professionals can…

Making Sense of Bereavement in People with Profound Intellectual and Multiple Disabilities: Carer Perspectives

ERIC Educational Resources Information Center

Young, Hannah; Hogg, James; Garrard, Brenda

2017-01-01

Background: People with intellectual disabilities are thought to have a reduced capacity for understanding death. Drawing on cognitive theory, researchers have suggested that those with profound intellectual and multiple disabilities mainly perceive loss as a mismatch between past and present experiences. However, very little research has…

Poverty, Disability, and Employment: Global Perspectives from the National Centre for Promotion of Employment for Disabled People

ERIC Educational Resources Information Center

Abidi, Javed; Sharma, Dorodi

2014-01-01

The worldwide problems of disability, poverty, and unemployment stem out of the interaction of multiple factors including social stigma, stereotypes, lack of access to physical infrastructure, information, and enabling environments. Given this, a singular approach toward tackling these interrelated issues falls short. This article attempts to…

Objects of Protection, Enduring Nodes of Difference: Disability Intersections with "Other" Differences, 1916 to 2016

ERIC Educational Resources Information Center

Artiles, Alfredo J.; Dorn, Sherman; Bal, Aydin

2016-01-01

The purpose of this chapter is to contribute a cultural-historical analytical perspective on disability and its intersections. We assume that disability is socially, historically, and spatially constructed. This standpoint enables us to understand and disrupt disparities in education that affect students living at the intersection of disability…

Australian Higher Education Policy and Inclusion of People with Disabilities: A Review

ERIC Educational Resources Information Center

Hartley, Judy

2015-01-01

Written from the perspective of a disability practitioner and equity manager working in the Australian tertiary education sector for over twenty-five years, this paper reviews some of the significant social, equity, and education policy developments and associated legislation, which have influenced the inclusion of people with disabilities in…

Children with Disabilities in the Context of Disaster: A Social Vulnerability Perspective

ERIC Educational Resources Information Center

Peek, Lori; Stough, Laura M.

2010-01-01

An estimated 200 million children worldwide experience various forms of disability. This critical review extrapolates from existing literature in 2 distinct areas of scholarship: one on individuals with disabilities in disaster, and the other on children in disaster. The extant literature suggests that various factors may contribute to the…

Communication and Language in Learners Who Are Deaf and Hard of Hearing with Disabilities: Theories, Research, and Practice

ERIC Educational Resources Information Center

Bruce, Susan M.; Borders, Christy

2015-01-01

Findings are presented from communication intervention research in three areas related to deafness with disability (DWD): D/deaf and hard of hearing (DHH) with (a) intellectual disability, (b) autism spectrum disorders, (c) deafblindness. Early identification, prevalence, theoretical perspectives, and evidence-based practices are discussed.…

Adults with Learning Disabilities Experiences of Using Community Dental Services: Service User and Carer Perspectives

ERIC Educational Resources Information Center

Lees, Carolyn; Poole, Helen; Brennan, Michelle; Irvine, Fiona

2017-01-01

Background: The government alongside other health and social care organisation have identified the need to improve the care provided for people with learning disabilities. Materials and Methods: This service evaluation aimed to explore the experiences of people with learning disabilities and their carers who accessed community dental services…

Transition and Students with Learning Disabilities: Facilitating the Movement from School to Adult Life.

ERIC Educational Resources Information Center

Patton, James R., Ed.; Blalock, Ginger, Ed.

Eleven chapters provide in-depth perspectives on outcomes and issues of youth with learning disabilities as they move from high school to adulthood. Stressed throughout is the importance of comprehensive transition planning and the educational, employment, social, and living options available to persons with learning disabilities. Chapter titles…

Health Disparities by Type of Disability: Health Examination Results of Adults (18-64 Years) with Disabilities in Shanghai, China

PubMed Central

Chen, Gang; Lu, Jun; Yu, Huijiong

2016-01-01

Aims There have been few studies on the disparities within the population with disabilities, especially in China. The aim of this study was to evaluate the differences in some health conditions among people with different types of disabilities in Shanghai. Methods This study was conducted using data from the Shanghai Disabled Persons’ Rehabilitation Comprehensive Information Platform. The records of 31,082 persons with disabilities who had undergone professional health examination were analyzed, and the prevalence and number of five diseases and five risk factors were examined. Logistic regression was used to explore disparities from two perspectives: 1) basic differences, unadjusted for other factors, and 2) differences after adjusting for key demographic covariates. A p-value < 0.05 was considered significant. Results Individuals with visual disability had a high rate of refractive error (60.0%), and averaged 1.75 diseases of interest, which was the highest value among all disability types. The mean number of risk factors we measured was greatest (1.96) in the population with mental disability. There were significant differences (p < 0.05) between the hearing and speech impairment group and the other groups with respect to most health outcomes, except chronic pharyngitis, hepatic cysts, and high blood pressure. Conclusion Significant differences of selected health outcomes between groups with different types of disabilities remained after controlling for key demographic indicators. Further research is needed to explore the relationships between health conditions and disability types. PMID:27196419

Bringing the (disabled) body to personality psychology: A case study of Samantha.

PubMed

Adler, Jonathan M

2017-12-09

Personality psychology has largely ignored the experiences of people with disabilities. This article strives to bring the thriving, interdisciplinary field of disability studies to personality psychology via a case study of Samantha (N = 1). Samantha feels that she grew up as a hearing person who could not hear and is now a deaf person who can hear. Narrative identity provides the theoretical, methodological, and analytical framework for the rich, qualitative examination of Samantha's life story, interwoven with approaches from disability studies and intersectionality theory. Two Life Story Interviews (McAdams, 2008), conducted 2 weeks prior to Samantha's cochlear implant surgery and again 7 weeks after the surgery, provide the foundation for this case study and are interpreted alongside additional self-report measures. Grounded theory methods were used to interpret Samantha's narrative identity. Samantha's story demonstrates the ways in which narrative identity can serve as a foundation for meaning and psychological well-being, as well as a demonstration of the ways in which the study of identity can be enriched by perspectives from disability studies. As an initial effort at integrating personality psychology and disability studies, this article sought to approach this task by privileging ethical representation over generalizability. © 2017 Wiley Periodicals, Inc.

Genetic counseling and the disabled: feminism examines the stance of those who stand at the gate.

PubMed

Patterson, Annette; Satz, Martha

2002-01-01

This essay examines the possible systematic bias against the disabled in the structure and practice of genetic counseling. Finding that the profession's "nondirective" imperative remains problematic, the authors recommend that methodology developed by feminist standpoint epistemology be used to incorporate the perspective of disabled individuals in genetic counselors' education and practice, thereby reforming society's view of the disabled and preventing possible negative effects of genetic counseling on the self-concept and material circumstance of disabled individuals.

The Impact of the Birth of a Child with Intellectual Disabilities on Pre-Existing Parental Christian Faith from the Perspective of Parents Who Have Parented Their Child to Adulthood

ERIC Educational Resources Information Center

Baines, Susannah; Hatton, Chris

2015-01-01

Background: Faith in the lives of UK families with an adult with intellectual disabilities is an under-researched area with little existing literature. Research in the United States with Christian parents suggests that they draw on their faith for coping (Rogers-Dulan 1998) and for understanding (Skinner et al. 1999). Methods: In this study,…

Self-reported psychological wellbeing in adolescents: the role of intellectual/developmental disability and gender.

PubMed

Boström, P; Åsberg Johnels, J; Broberg, M

2018-02-01

The Wellbeing in Special Education Questionnaire was developed to assess subjective wellbeing in young persons with intellectual and developmental disabilities (ID/DD) as this perspective is rarely included in research. The present study explored how ID/DD and gender are related to self-reported wellbeing among adolescents. Students with (n = 110) or without (n = 110) ID/DD, aged 12-16 years, completed the Wellbeing in Special Education Questionnaire. Analyses of the effects of gender and disability status on peer relations and conflict, mental health, mental ill-health, school environment and family relations were carried out. The experiences of the school environment and of positive mental health aspects did not differ between students with and without ID/DD, but those with ID/DD reported more mental health problems and less positive experiences of peer relations and family. Generally, boys reported more positive experiences of school and less mental health problems than girls. Including the subjective perspective of young persons with ID/DD through self-reports can provide essential information about wellbeing that cannot be gained from proxy ratings. The results suggest both differences and similarities in self-reported wellbeing between boys and girls with and without ID/DD and potentially also in how they perceived the concepts measured. © 2017 MENCAP and International Association of the Scientific Study of Intellectual and Developmental Disabilities and John Wiley & Sons Ltd.

Expectations of and reactions to disability and normality experienced by parents of children with intellectual disability in Sweden.

PubMed

Broberg, M

2011-05-01

Much research has been devoted to the emotional burdens of having a child with intellectual disability (ID), but very little of this has focused on the burdens imposed by negative public attitudes towards disability. Adjustment has primarily been thought of as adjustment to the actual disability rather than adjustment to attitudes or prejudices towards disability. The aim of the present study was to study expectations of and reactions to disability and normality experienced by parents of children with ID in their everyday life in Sweden. Do the parents relate to the tragedy discourse and, if so, how? Do parents relate to other expectations and disability discourses and, if so, how? What subject positions do the discourses offer? The analysis was based on 17 semi-structured interviews with nine fathers and eight mothers of nine children with different IDs. The children were newly diagnosed and were from 6 months to 5 years of age. Four discourses (tragedy and the lived experience, tragedy and the outsider perspective, the clinical gaze and the super-parent ideal) and subject positions relating to these discourses are discussed. The results of this study show that parents of young children with disabilities relate to a wide range of social processes and practices, which could be thought to affect their emotional well-being and parental identity negatively. © 2011 Blackwell Publishing Ltd.

Associations between disability prevalence and local-area characteristics in a general community-living population.

PubMed

Philibert, M D; Pampalon, R; Hamel, D; Daniel, M

2013-10-01

Disability is understood to arise from person-environment interactions. Hence, heterogeneity in local-area characteristics should be associated with local-area variation in disability prevalence. This study evaluated the associations of disability prevalence with local-area socioeconomic status and contextual features. Disability prevalence was obtained from the Canada census of 2001 for the entire province of Québec at the level of dissemination areas (617 individuals on average) based on responses from 20% of the population. Data on local-area characteristics were urban-rural denomination, social and material deprivation, active and collective commuting, residential stability, and housing quality. Associations between local-area characteristics and disability prevalence were assessed using multilevel logistic regressions. Disability was associated with local-area socioeconomic status and contextual characteristics, and heterogeneity in these factors accounted for urban-rural differences in disability prevalence. Associations between contextual features and disability prevalence were confounded by local-area socioeconomic status. Some associations between local-area socioeconomic status and disability prevalence were moderated by contextual characteristics. The importance of this effect modification is greater when expressed in terms of the absolute magnitude of disability than in the relative likelihood of disability. Explanation of rural-urban differences by the contribution of other local-area characteristics is consistent with the conceptualization of urban-rural categories as the reflection of spatially varying ensembles of compositional and contextual factors. Although local-area socioeconomic status explains most variability in disability prevalence, this study shows that contextual characteristics are relevant to analyses of the spatial patterning of disability as they predict spatial variations of disability, sometimes in interaction with socioeconomic status. This study demonstrates that absolute and relative perspectives on effect modification may lead to differing conclusions. Copyright © 2013 Elsevier Masson SAS. All rights reserved.

Model of Intellectual Disability and the Relationship of Attitudes Towards the Sexuality of Persons with an Intellectual Disability.

PubMed

Parchomiuk, Monika

2013-06-01

The following article discusses the relationship between the model of intellectual disability and the attitudes towards sexuality of people with disabilities. This correlation has been verified during the author's own research conducted on students of several medical faculties such as nursing, public health, emergency medical services and physiotherapy. Tools of the author's design have been used in the research. Likert-type scale "Perspective of intellectual disability" has been used to determine the model of disability seen from the medical (individual) or social perspective. To examine the attitudes towards sexuality two tools of the author's own design have been used: a Likert-type scale "The essence of sexuality in persons with an intellectual disability" which has been used to analyze the cognitive aspect of the attitudes, and a semantic differential with notions concerning physical and psychosocial aspects of sexuality including the affective-evaluative aspect. As expected, significant correlations have been found between the model and the attitudes both in the cognitive and the affective-evaluative aspect. Higher scores for the individual model correlated with: (a) lover scores for most aspects of sexuality of people with intellectual disability, (b) perceiving them as asexual, (c) biological determinism in the sexual sphere. The social model concurred with positive values given to sexuality of people with intellectual disability and its normalization in the sphere of its determinants and symptoms.

Therapy or human right? The meaning of recreation for children and youth with disabilities in the "Krembo Wings" youth movement.

PubMed

Soffer, Michal; Almog-Bar, Michal

2016-07-01

Research shows that leisure or recreation promotes health, quality of life and wellbeing. Participation in leisure is also a fundamental right of people with disabilities. Studies report disparities in leisure participation between children and youth with and without disabilities. Youth movements are a form of leisure activity, and are of particular importance in Israeli society. In this study we set out to explore how the youth movement Krembo Wings (KW) outlines the meanings of recreation for children and youth with disabilities. Our theoretical framework centers on the critical perspective of a disability study committed to disability rights. We conducted a qualitative study of KW. Data were drawn from multiple sources: published and unpublished documents, website materials, and semi-structured interviews with various key people in the movement. Data were analyzed through directed content analysis and were categorized into either the biomedical model or the social model of disability. Most of our findings show that KW adopts a biomedical understanding of disability. Nonetheless, indicators of the social model, though few, were also evident. Although the biomedical model was found to be dominant in Israel, there are promising indicators of change. Our somewhat mixed findings might suggest that KW is at a transitional phase between biomedical thinking and a more rights-based approach. Copyright © 2016 Elsevier Inc. All rights reserved.

Deconstructing barriers: perceptions of students labeled with learning disabilities in higher education.

PubMed

Denhart, Hazel

2008-01-01

This phenomenological study investigated barriers to higher education faced by 11 college students labeled with learning disabilities (LD) using their voice as the primary data. Data were analyzed and interpreted through a disability theory perspective revealing barriers stemmed largely from external social causes rather than individual pathology. Barriers included being misunderstood by faculty, being reluctant to request accommodations for fear of invoking stigma, and having to work considerably longer hours than nonlabeled peers. Findings indicated barriers could be overcome through raising faculty awareness about LD issues, engaging the assistance of the college LD specialist, and participation in a LD democratic empowerment community on campus.

[The Brazilian Functionality Index: perceptions of professionals and persons with disabilities in the context of Complementary Law 142/2013].

PubMed

Pereira, Éverton Luís; Barbosa, Livia

2016-10-01

This article derives from a study conducted on the validation of the Brazilian Functionality Index (IF-BrA) applied to the granting of retirement benefits to disabled persons. The retirement of persons with disabilities is regulated by Complementary Law 142 of May 8, 2013. The aim is to discuss how the individuals involved in application of the instrument perceive the concept of disability and the possible implications for ensuring the right to retirement. Eleven agencies of the National Social Security Institute (INSS) were visited and 16 physicians, 16 social workers and 40 persons with disabilities were interviewed. The evaluation and assessment process was also observed. The results indicate that there are conceptual tensions between the perspective on disability of the professionals and the IF-BrA concepts. Social workers and physicians are challenged in their technical specialties in the application of the instrument. Persons with disabilities do not always consider themselves to be disabled in their daily lives. Disability is either presented as a political description of the body in accordance with the social model of disability, or it is described as a specific difficulty justifying the right to seek retirement.

Expenditures and use of wraparound health insurance for employed people with disabilities.

PubMed

Gettens, John; Hoffman, Denise; Henry, Alexis D

2016-04-01

The Affordable Care Act (ACA) provides health insurance to many working-age adults with disabilities, but we do not expect the new coverage or existing insurance options to fully meet their employment-related health care needs. Wraparound services have the potential to foster employment among people with disabilities. We use Massachusetts, which implemented health care reform in 2006, as a case study to estimate the wraparound health care expenditures and use for workers with disabilities. We identified a group of employed, working-age people with disabilities whose primary health insurance is Medicare or private insurance and who use the Medicaid Buy-In Program for wraparound coverage. We analyzed claims to estimate expenditures and use. Wraparound expenditures averaged $427 per member per month. Community-based services for both mental and non-mental health, which are generally not covered by Medicare or private insurance, accounted for 63% of all expenditures. The number who used community-based services was low, but the expenditures were high. The majority of the remaining expenditures were for services usually covered by primary insurance including: inpatient and outpatient, pharmacy and professional services. Expenditures were higher for people with Medicare compared to private insurance. This case study suggests that, from a total program cost perspective, wraparound demand is greatest for community-based services. From a member utilization perspective, the demand is greatest for coverage that alleviates out-of-pocket costs for services provided by primary insurance. Additional analysis is needed to further assess the design options for wraparound programs and their feasibility. Copyright © 2016 Elsevier Inc. All rights reserved.

End-of-life decisions for people with intellectual disabilities, an interview study with patient representatives.

PubMed

Wagemans, Annemieke M A; Van Schrojenstein Lantman-de Valk, Henny M J; Proot, Ireen M; Metsemakers, Job; Tuffrey-Wijne, Irene; Curfs, Leopold M G

2013-09-01

Not much is known about the process of end-of-life decision-making for people with intellectual disabilities. To clarify the process of end-of-life decision-making for people with intellectual disabilities from the perspective of patient representatives. A qualitative study based on semi-structured interviews, recorded digitally and transcribed verbatim. Data were analysed using Grounded Theory procedures. We interviewed 16 patient representatives after the deaths of 10 people with intellectual disabilities in the Netherlands. The core category 'Deciding for someone else' describes the context in which patient representatives took end-of-life decisions. The patient representatives felt highly responsible for the outcomes. They had not involved the patients in the end-of-life decision-making process, nor any professionals other than the doctor. The categories of 'Motives' and 'Support' were connected to the core category of 'Deciding for someone else'. 'Motives' refers to the patient representatives' ideas about quality of life, prevention from suffering, patients who cannot understand the burden of interventions and emotional reasons reported by patient representatives. 'Support' refers to the support that patient representatives wanted the doctors to give to them in the decision-making process. From the perspective of the patient representatives, the process of end-of-life decision-making can be improved by ensuring clear roles and an explicit description of the tasks and responsibilities of all participants. Regular discussion between everyone involved including people with intellectual disabilities themselves can improve knowledge about each other's motives for end-of-decisions and can clarify expectations towards each other.

How Accessible Are the Geosciences? a Study of Professionally Held Perceptions and What They Mean for the Future of Geoscience Workforce Development

NASA Astrophysics Data System (ADS)

Atchison, C.; Libarkin, J. C.

2014-12-01

Individuals with disabilities are not entering pathways leading to the geoscience workforce; the reasons for which continue to elude access-focused geoscience educators. While research has focused on barriers individuals face entering into STEM disciplines, very little research has considered the role that practitioner perceptions play in limiting access and accommodation to scientific disciplines. The authors argue that changing the perceptions within the geoscience community is an important step to removing barriers to entry into the myriad fields that make up the geosciences. This paper reports on an investigation of the perceptions that geoscientist practitioners hold about opportunities for engagement in geoscience careers for people with disabilities. These perspectives were collected through three separate iterations of surveys at three professional geoscience meetings in the US and Australia between 2011 and 2012. Respondents were asked to indicate the extent to which individuals with specific types of disabilities would be able to perform various geoscientific tasks. The information obtained from these surveys provides an initial step in engaging the larger geoscience community in a necessary discussion of minimizing the barriers of access to include students and professionals with disabilities. The results imply that a majority of the geoscience community believes that accessible opportunities exist for inclusion regardless of disability. This and other findings suggest that people with disabilities are viewed as viable professionals once in the geosciences, but the pathways into the discipline are prohibitive. Perceptions of how individuals gain entry into the field are at odds with perceptions of accessibility. This presentation will discuss the common geoscientist perspectives of access and inclusion in the geoscience discipline and how these results might impact the future of the geoscience workforce pathway for individuals with disabilities.

[Impairment - disability - participation for all : New federal reporting in light of the UN Convention on the Rights of Persons with Disabilities].

PubMed

Wacker, Elisabeth

2016-09-01

The new Federal Government's Report on Participation explores the contexts in which impairments become disabilities for those individuals who experience them. In parallel, it outlines the factors that foster inclusion and opportunities to act for everyone in society - despite existing impairments.From a sociopolitical and health policy perspective, disability refers to unequal opportunities based on impairment. Hence, the focus here is on the equalisation of these participation opportunities to match those of the entire population - but always from differentiated perspectives on the various social arenas. The human rights approach stresses protection against discrimination as well as dignity and self-determination for all. From a human resources angle, the emphasis is on the performance of individuals in favourable conditions and the attainment of personal goals within their actual everyday circumstances.The new reporting concept is indebted to these perspectives and thus focuses on individual life circumstances, while referring to the WHO's International Classification of Functioning, Disability and Health (ICF) - an approach now validated on a global scale. Therefore, it does not only report on measures provided by services for persons with disabilities but, more crucially, investigates determinants on the personal and environmental levels, unequal opportunities and the interdependency between context and competence for particular sections of the population. Two groups are singled out in the process: elderly persons and individuals with mental health impairments.The participation report is part of the National Action Plan to implement the UN Convention on the Rights of Persons with Disabilities (UNCRPD). An independent scientific committee conceptualises the design of the report while accompanying and commenting upon its realisation. Currently, a second federal report on participation is emerging from the new concept.

Healthy Ageing in People with Intellectual Disabilities from Managers' Perspective: A Qualitative Study.

PubMed

Johansson, Maria; Björne, Petra; Runesson, Ingrid; Ahlström, Gerd

2017-08-18

An increasing number of people with intellectual disability (ID) are reaching older ages today although they experience more health problems than the older population without ID. Leaders in intellectual disability services can greatly influence the conditions for a healthy ageing, and the aim of the present study was to explore healthy ageing in this group from the perspective of the leaders. Interviews with 20 leaders were subjected to qualitative content analysis. The findings gave rise to the overall theme ageing in dependence, which emerged from the following six categories: Supporting self-determination; Inaccessible activities after retirement; Signs of decline; Increased and specific needs for support and care; A non-question of gender; Aspects concerning the end of life and death. A prerequisite for healthy ageing in the case of people with ID is, according to the leaders, that they can live the life according to their preferences and make independent choices whilst at the same time receiving adequate support. With the shrinking of their social network after retirement, they become increasingly dependent on staff and leaders in the group home, who need to know what healthy ageing implies.

Healthy Ageing in People with Intellectual Disabilities from Managers’ Perspective: A Qualitative Study

PubMed Central

Björne, Petra; Runesson, Ingrid

2017-01-01

An increasing number of people with intellectual disability (ID) are reaching older ages today although they experience more health problems than the older population without ID. Leaders in intellectual disability services can greatly influence the conditions for a healthy ageing, and the aim of the present study was to explore healthy ageing in this group from the perspective of the leaders. Interviews with 20 leaders were subjected to qualitative content analysis. The findings gave rise to the overall theme ageing in dependence, which emerged from the following six categories: Supporting self-determination; Inaccessible activities after retirement; Signs of decline; Increased and specific needs for support and care; A non-question of gender; Aspects concerning the end of life and death. A prerequisite for healthy ageing in the case of people with ID is, according to the leaders, that they can live the life according to their preferences and make independent choices whilst at the same time receiving adequate support. With the shrinking of their social network after retirement, they become increasingly dependent on staff and leaders in the group home, who need to know what healthy ageing implies. PMID:28820435

Perspective view of east entrance from northeast National Home ...

Library of Congress Historic Buildings Survey, Historic Engineering Record, Historic Landscapes Survey

Perspective view of east entrance from northeast - National Home for Disabled Volunteer Soldiers, Pacific Branch, Mental Health Building, 11301 Wilshire Boulevard, West Los Angeles, Los Angeles County, CA

Perspective view of south facade from southeast National Home ...

Library of Congress Historic Buildings Survey, Historic Engineering Record, Historic Landscapes Survey

Perspective view of south facade from southeast - National Home for Disabled Volunteer Soldiers, Pacific Branch, Mental Health Buildings, 11301 Wilshire Boulevard, West Los Angeles, Los Angeles County, CA

"It's My Life": Autonomy and People with Intellectual Disabilities

ERIC Educational Resources Information Center

Björnsdóttir, Kristín; Stefánsdóttir, Guðrún V; Stefánsdóttir, Ástríður

2015-01-01

This article discusses autonomy in the lives of adults with intellectual disabilities. The article draws on inclusive research in Iceland with 25 women and 16 men and employs ideas of relational autonomy from the perspectives of the Nordic relational approach to disability. In this article, we examine autonomy in relation to private life, that is,…

Development of a Scale for Measuring Parental Satisfaction with Services Available for Disabled Children in Jordan

ERIC Educational Resources Information Center

Hyassat, Mizyed A.; Akhayat, Majed M.; Alzyoud, Nwaf

2015-01-01

Undoubtedly, parents of children with disabilities are better knowing than anyone else about their children's development and progress. Therefore, considering their perspectives on the services may lead to enhancing service delivery to their disabled children. In this paper, we described the procedure of developing an instrument for measuring…

Self- and Proxy-Rated Needs in Adults with Mild to Moderate Intellectual Disabilities: Perspective Matters

ERIC Educational Resources Information Center

Schützwohl, Matthias; Voß, Elke; Salize, Hans Joachim; Stiawa, Maja; Puschner, Bernd; Koch, Andrea

2018-01-01

Background: Adults with an intellectual disability should be supported according to their individual needs. The perception of need, however, is influenced by the values and expectations of the judging person. Method: Using the Camberwell Assessment of Need for Adults with Developmental and Intellectual Disabilities, self- and proxy-rated needs of…

A Masculine Perspective of Gendered Topics in the Research Literature on Males and Females with Intellectual Disability

ERIC Educational Resources Information Center

Wilson, Nathan J.; Parmenter, Trevor R.; Stancliffe, Roger J.; Shuttleworth, Russell P.; Parker, Desrae

2010-01-01

Background: A focus on male social pathologies may have evolved within parts of the intellectual disability research literature. This article explores this notion and makes some connections between mainstream gender theory about hegemonic masculinity and the current gendered discourse in intellectual disability research. Method: We conducted a…

The Developmental Benefits of Parent-Child Interaction: Perspectives of Filipino Mothers of Children with and without Disabilities

ERIC Educational Resources Information Center

Santos, Rosa Milagros; Jeans, Laurie M.; Corr, Catherine

2016-01-01

In this article, the authors explored mothers' descriptions of the benefits of interacting with their infants and toddlers with and without diagnosed disabilities. Interview data from 40 Filipino mothers, 20 mothers of children with a diagnosed disability, and 20 mothers of typically developing children were analyzed. Using qualitative methods,…

Reading and Writing Disabilities among Inmates in Correctional Settings. A Swedish Perspective

ERIC Educational Resources Information Center

Svensson, Idor

2011-01-01

An abundance of research has shown that there is an extensive overrepresentation of reading and writing disabilities among inmates in juvenile institutions and prisons. The aim of this paper is to review publications from the Nordic countries, especially Sweden in the last decade regarding the prevalence of reading and writing disabilities and…

Healthy Lifestyles for Adults with Intellectual Disability: Knowledge, Barriers, and Facilitators

ERIC Educational Resources Information Center

Caton, Sue; Chadwick, Darren; Chapman, Melanie; Turnbull, Sue; Mitchell, Duncan; Stansfield, Jois

2012-01-01

Background: People with intellectual disability (ID) are more likely to have health problems than people without disability. Little previous research has investigated health from the perspective of the people with ID themselves. We aimed to focus on what people with ID understand being healthy to mean and what their experiences are of healthy…

Active Adult Lives for Persons with Learning Disabilities--The Perspectives of Professionals

ERIC Educational Resources Information Center

Witsø, Aud Elisabeth; Kittelsaa, Anna M.

2018-01-01

Background: Living active adult lives is both a value and a right, but the right to do so is associated with restrictions among adults with learning disabilities. This research aimed to capture professionals' understanding and perception of active adult living for people with learning disabilities living in clustered housing in a Norwegian…

"Seeing Another/Seeing Oneself": Nondisabled Audiences' Perspectives on Disability in Two South Korean Films, "Oasis" (2002) and "Malaton" (2005)

ERIC Educational Resources Information Center

Woo, Chung Wan

2012-01-01

Using qualitative research methods, this dissertation closely examines discourses and representations of disability from the cinematic images of disabled characters and their families in two South Korean films, "Oasis" (C. Lee, 2002) and "Malaton" (Y. Jung, 2005) as well as from the responses of nineteen Korean graduate…

Breaking through Barriers. Workers Who Are Disabled.

ERIC Educational Resources Information Center

Christian, Mary

These 12 profiles show the successes of workers with various handicaps who can serve as role models for people with disabilities and personalize knowledge for the non-disabled. Each profile begins with a brief remark by the individual on barriers and continues with his or her perspective on the work world and a discussion of his or her experiences…

Sociocultural studies of families of children with intellectual disabilities.

PubMed

Skinner, Debra; Weisner, Thomas S

2007-01-01

This article reviews recent sociocultural studies of families of children with intellectual disabilities to introduce the range of research conducted from this perspective and to highlight the methodological, conceptual, and theoretical contributions of this approach to the study of mental retardation. Sociocultural studies examine families within their cultural, historical, and sociopolitical contexts. This type of research is comparative across different cultural groups, but is not limited to such comparisons. Sociocultural studies use varied theories and methods, but they share a focus on families' coproduction of meanings and practices related to intellectual disability; families' responses and adaptations to disability; and how their understandings and experiences are shaped within larger social institutions and inequities. Sociocultural approaches take into account community contexts that matter to families with members with mental retardation or developmental delay, and they examine the broader systems that define and position individuals with disabilities and their families. As a whole, these studies provide a more experiential and holistic view of families' beliefs and adaptations within sociopolitical worlds, and offer new tools by which to study the families of children with developmental delays within and across different cultural groups. (c) 2007 Wiley-Liss, Inc.

A content analysis of peripheral arterial disease patient-reported outcome measures using the International Classification of Functioning, Disability and Health.

PubMed

Osborne, Candice Lee; Kauvar, David Seth

2017-10-17

The purpose of this study was to link, classify and describe the content of peripheral arterial disease (PAD)-specific patient-reported outcome measures using the International Classification of Functioning. The results were then analyzed to determine if these assessments provide clinicians and researchers with a comprehensive understanding of the lived experience of patients with PAD. Each meaningful concept in identified PAD assessments was linked to the International Classification of Functioning, Disability and Health to determine included and excluded content areas. An overall perspective was assigned to each assessment item. Inter-rater reliability was established using a kappa statistic. The body functions component is most frequently addressed overall followed by the activities and participation component. International Classification of Functioning chapter and category distribution vary greatly between assessments and no assessment comprehensively examines community participation and relationships. The majority of the assessment items are of the health status-disability and quality of life perspectives. The results of this study suggest the need for the development of a comprehensive PAD assessment that includes a more even distribution of International Classification of Functioning topics and subtopics. A more comprehensive assessment would better capture the lived experience of this patient population. Implications for Rehabilitation A better understanding of the data collected using the current peripheral arterial disease-specific patient-reported outcome measures may contribute to the development of more comprehensive assessment tools that will ultimately lead to improved patient care. This study contributes to the preliminary foundation for the development of a peripheral arterial disease International Classification of Functioning, Disability and Health Core Set. Clinicians and researchers interested in using peripheral arterial disease-specific patient-reported outcome measures for clinical and research purposes can better understand what topics are included and excluded in the collection and what perspectives are addressed.

The Health Hazards of Marriage. A cohort study of work related disability within 12,500 Norwegian couples - the HUNT Study.

PubMed

Vie, Gunnhild Åberge; Krokstad, Steinar; Johnsen, Roar; Bjørngaard, Johan Håkon

2013-07-01

Work disability and sickness absence increase following partner's retirement, which similarities in spouses' health could explain. We therefore studied the risk of work disability within couples, taking account of baseline health, lifestyle and socioeconomic factors. A cohort of 12,511 couples from the HUNT Study (aged 20-67 years in HUNT2, 1995-1997) was linked to national registries, identifying all new cases of disability pension up until December 2007. Data were analysed with discrete time multilevel logistic regression and Cox regression models. Partners' disability pension was included as a time-varying covariate. Follow-up time was split to examine the association dependent of time. Analyses were adjusted for age only, adjusted for health, and for lifestyle and education along with health. About 15% of an individual's propensity to receive a disability pension could be attributed couple similarity. There was an increased risk of work disability following the spouse's disability retirement [HR (hazard ratio) 1.43 (95% confidence interval 1.20-1.71) for men, HR 1.49 (95% confidence interval 1.28-1.74) for women]. The association was somewhat attenuated after adjustments for health, lifestyle and education. There was a substantial clustering of disability pensions within couples, which cannot be explained by similarities in health, lifestyle and education. This suggests partners influence each other's work ability. From a clinical perspective, the family situation needs to be taken into account when addressing health promotion and work participation.

The inclusion of disabled persons in the labor market in Belo horizonte, Brazil: scenario and perspective.

PubMed

Neves-Silva, Priscila; Prais, Fabiana Gomes; Silveira, Andréa Maria

2015-08-01

Even after the publication of Law 8213 in 1991, which established quotas for employing disabled persons, their inclusion in the workplace still presents a challenge for Brazilian society. In order to understand the main barriers that hamper this process a qualitative research study was conducted in the municipality of Belo Horizon-te. This study included interviews with important actors involved in the process of inclusion; and focus groups including disabled persons and members of their families. The main barriers encountered were: preconceived ideas and discrimination; family relationships; the Continuous Cash Benefit (BPC) program; the low level of qualifi-cation among disabled person; lack of access; and the unpreparedness of companies. It was concluded that drafting laws is not sufficient to guarantee inclusion in the labor market and that governments should implement public policies to assist in this process.

Breast cancer treatment and work disability: patient perspectives.

PubMed

Tiedtke, Corine; Dierckx de Casterlé, Bernadette; de Rijk, Angelique; Christiaens, Marie-Rose; Donceel, Peter

2011-12-01

Most female breast cancer patients are forced to interrupt their professional activities during treatment. Qualitative research was carried out to assess women's experiences of being work disabled because of breast cancer. In-depth interviews were analyzed to understand patient's experiences and to gain more insight in their perspectives on living with breast cancer. We identified a 'three-experience model': (1) disruption, with the feeling of irreparable loss, despair and no hope for the future; (2) episode, an unpleasant and inconvenient period, after which life continues as before; and/or (3) meaningful period, during which new life priorities' are set. The different experiences will require different types of support, especially concerning communication around disability and returning to work. Our findings highlight the need of an individual approach of the management of work disability for breast cancer patients. Copyright © 2011 Elsevier Ltd. All rights reserved.

[Medical treatment of NANBYO from patients' perspective].

PubMed

Ito, Tateo

2013-01-01

NANBYO policy which has practiced since 1972 has been discussing for making fundamental reform. As a part of a plan to reform, "Total Supports for Persons with Disabilities Act" executed. The target of this act is included with NANBYO patients. Regarding to the enforcement of the act, there are major changes as follows; 1) Regional government has a responsibility to set up the support project for NANBYO patients, 2) Welfare policy will be altered by a change in the definition of disability (the target of welfare for the disabled is not only patients who have fixed disabilities but have changed (e.g. NANBYO), 3) NANBYO patients will be regarded as a target for job assistance under the act. In this abstract, the author raises the fundamental issues as "Society where NANBYO patients can live is equal to that where all people can live", from patient's perspective.

Work status and disability trajectories over 12 months after injury among workers in New Zealand.

PubMed

Langley, John; Lilley, Rebbecca; Samaranayaka, Ari; Derrett, Sarah

2014-03-07

To describe work and disability trajectories over 12 months following injury among workers. Workers injured at work or elsewhere (n=2626) were sourced from the Prospective Outcomes of Injury Study, a longitudinal cohort study in New Zealand, with the primary objective of identifying factors associated with disability following injury. Work and disability status was assessed at 3- and 12-months post injury. The measure of disability was the brief WHODAS II 12-item instrument. Participants were dichotomised into 'disability' or 'no disability' groups based on whether their WHODAS score was greater than, or equal to, 10. In terms of 12-month work status, there are 16 different scenarios. These were grouped into 4 categories: sustained work (SW), delayed return to work (RTW), non-sustained RTW, and sustained off-work. We had complete information for 1975 workers. The largest group (68%) was SW, 32% of which had disability at either time point. The second largest group consisted of 17% of workers who were classified as delayed RTW, 76% of whom were disabled at either time point. Among the non-sustained RTW group (7%), 52% had disability at either time point. Of the sustained off-work group (8%), 80% were disabled at either 3- or 12-months. Although return to work is a useful provider performance indicator of injury compensation and rehabilitation it is inadequate from a wider societal perspective and needs to be complemented by other important outcome measures such as disability status.

Refractive errors and ocular findings in children with intellectual disability: A controlled study

PubMed Central

Akinci, Arsen; Oner, Ozgur; Bozkurt, Ozlem Hekim; Guven, Alev; Degerliyurt, Aydan; Munir, Kerim

2015-01-01

PURPOSE To evaluate the ocular findings and refractive errors in children with intellectual disability and in controls of average intellectual development of similar socioeconomic backgrounds. METHODS The study was conducted at Diskapi Children’s Hospital in Ankara, Turkey: 724 subjects with intellectual disability and 151 control subjects were evaluated. The subjects with intellectual disability were subdivided into mild (IQ 50–69, n = 490), moderate (IQ 35–49, n = 164), and severe (IQ <34, n = 70) groups, and syndromic (n = 138) versus nonsyndromic (n = 586) disability. All children underwent cycloplegic autorefraction or retinoscopy, slit-lamp biomicroscopy, and dilated fundus examination. Ocular alignment was assessed by Hirschberg, Krimsky, or prism cover test. The main outcome measure was the prevalence of refractive errors and ocular findings. RESULTS Seventy-seven percent of subjects with intellectual disability, and 42.4% of controls, had ocular findings. The children with intellectual disability had significantly more nystagmus, strabismus, astigmatism, and hypermetropia than controls. Children with syndromic intellectual disability had significantly more nystagmus, strabismus, astigmatism, and hypermetropia than subjects with nonsyndromic intellectual disability. Increasing severity of intellectual disability was related to higher prevalence of nystagmus, strabismus, astigmatism, hypermetropia, and anisometropia. CONCLUSIONS From a public health perspective, evaluation and treatment of ocular and refractive findings in children with moderate, severe, and syndromic intellectual disability categories is urgently needed and likely to be highly effective in alleviating future health and social care costs, as well as improving the productive lives of individuals with intellectual disability. PMID:18595752

Perspective view of east facade from northeast National Home ...

Library of Congress Historic Buildings Survey, Historic Engineering Record, Historic Landscapes Survey

Perspective view of east facade from northeast - National Home for Disabled Volunteer Soldiers, Pacific Branch, Main Mental Health Building, 11301 Wilshire Boulevard, West Los Angeles, Los Angeles County, CA

Perspective view of #158 east facade from southeast National ...

Library of Congress Historic Buildings Survey, Historic Engineering Record, Historic Landscapes Survey

Perspective view of #158 east facade from southeast - National Home for Disabled Volunteer Soldiers, Pacific Branch, Mental Health Buildings, 11301 Wilshire Boulevard, West Los Angeles, Los Angeles County, CA

Content validity of the Comprehensive ICF Core Set for multiple sclerosis from the perspective of speech and language therapists.

PubMed

Renom, Marta; Conrad, Andrea; Bascuñana, Helena; Cieza, Alarcos; Galán, Ingrid; Kesselring, Jürg; Coenen, Michaela

2014-11-01

The Comprehensive International Classification of Functioning, Disability and Health (ICF) Core Set for Multiple Sclerosis (MS) is a comprehensive framework to structure the information obtained in multidisciplinary clinical settings according to the biopsychosocial perspective of the International Classification of Functioning, Disability and Health (ICF) and to guide the treatment and rehabilitation process accordingly. It is now undergoing validation from the user perspective for which it has been developed in the first place. To validate the content of the Comprehensive ICF Core Set for MS from the perspective of speech and language therapists (SLTs) involved in the treatment of persons with MS (PwMS). Within a three-round e-mail-based Delphi Study 34 SLTs were asked about PwMS' problems, resources and aspects of the environment treated by SLTs. Responses were linked to ICF categories. Identified ICF categories were compared with those included in the Comprehensive ICF Core Set for MS to examine its content validity. Thirty-four SLTs named 524 problems and resources, as well as aspects of environment. Statements were linked to 129 ICF categories (60 Body-functions categories, two Body-structures categories, 42 Activities-&-participation categories, and 25 Environmental-factors categories). SLTs confirmed 46 categories in the Comprehensive ICF Core Set. Twenty-one ICF categories were identified as not-yet-included categories. This study contributes to the content validity of the Comprehensive ICF Core Set for MS from the perspective of SLTs. Study participants agreed on a few not-yet-included categories that should be further discussed for inclusion in a revised version of the Comprehensive ICF Core Set to strengthen SLTs' perspective in PwMS' neurorehabilitation. © 2014 Royal College of Speech and Language Therapists.

Teachers' and parents' views on the Internet and social media usage by pupils with intellectual disabilities.

PubMed

Molin, Martin; Sorbring, Emma; Löfgren-Mårtenson, Lotta

2015-03-01

This article reports experiences from a Swedish study, discussing teachers' and parents' views on how young people with intellectual disabilities use the Internet and social media. Five semi-structured focus group interviews were conducted with teachers (n = 8) in special programmes in upper secondary schools for pupils with intellectual disabilities and parents (n = 5) of pupils in the same form of schooling, and they were analysed with thematic analysis. Teachers more strongly emphasize a pupil's use of the Internet for interactive purposes. Parents had expectations that the Internet could be a tool for gaining more awareness of one's own disability and a way to meet other peer group pupils. Teachers' and parents' perspectives on the Internet and social media usage are important since it is imperative to show how support can be provided for young people with intellectual disabilities. © The Author(s) 2014.

Perspectives of intellectual disability in Latin American countries: epidemiology, policy, and services for children and adults.

PubMed

Mercadante, Marcos T; Evans-Lacko, Sara; Paula, Cristiane S

2009-09-01

The prevalence of intellectual disability is an estimated 1-4% worldwide. Etiological factors such as malnutrition, lack of perinatal care, and exposure to toxic and infectious agents, which are more common in low-income and middle-income (LAMI) countries, may contribute to a higher prevalence of intellectual disability in Latin America. This review summarizes the data on intellectual disability coming from Latin America, which is published in scientific journals and is available from official websites and discusses potential health policy and services implications of these studies. Methodologically rigorous studies on intellectual disability in Latin America are lacking. This paucity of basic epidemiological information is a barrier to policy and services development and evaluation around intellectual disability. Only two studies, one from Chile and another from Jamaica, allow for adequate population estimates of intellectual disability. Interestingly, the countries with the highest scientific production in Latin America, Brazil and Mexico, did not produce the most informative research in epidemiology, policy or services related to intellectual disability. The main conclusion of this review is that a lack of scientific evidence makes it difficult to properly characterize the context of intellectual disability in Latin America. Insufficient data is also a barrier to policy and services development for governments in Latin America. Although recently there have been efforts to develop government programs to meet the needs of the intellectual disability population in Latin America, the effectiveness of these programs is questionable without proper evaluation. There is a need for studies that characterize the needs of people with intellectual disability specifically in Latin America, and future research in this area should emphasize how it can inform current and future policies and services for people with intellectual disability.

Resuscitation of neonates at 23 weeks' gestational age: a cost-effectiveness analysis.

PubMed

Partridge, J Colin; Robertson, Kathryn R; Rogers, Elizabeth E; Landman, Geri Ottaviano; Allen, Allison J; Caughey, Aaron B

2015-01-01

Resuscitation of infants at 23 weeks' gestation remains controversial; clinical practices vary. We sought to investigate the cost effectiveness of resuscitation of infants born 23 0/7-23 6/7 weeks' gestation. Decision-analytic modeling comparing universal and selective resuscitation to non-resuscitation for 5176 live births at 23 weeks in a theoretic U.S. cohort. Estimates of death (77%) and disability (64-86%) were taken from the literature. Maternal and combined maternal-neonatal utilities were applied to discounted life expectancy to generate QALYs. Incremental cost-effectiveness ratios were calculated, discounting costs and QALYs. Main outcomes included number of survivors, their outcome status and incremental cost-effectiveness ratios for the three strategies. A cost-effectiveness threshold of $100 000/QALY was utilized. Universal resuscitation would save 1059 infants: 138 severely disabled, 413 moderately impaired and 508 without significant sequelae. Selective resuscitation would save 717 infants: 93 severely disabled, 279 moderately impaired and 343 without significant sequelae. For mothers, non-resuscitation is less expensive ($19.9 million) and more effective (127 844 mQALYs) than universal resuscitation ($1.2 billion; 126 574 mQALYs) or selective resuscitation ($845 million; 125 966 mQALYs). For neonates, both universal and selective resuscitation were cost-effective, resulting in 22 256 and 15 134 nQALYS, respectively, versus 247 nQALYs for non-resuscitation. In sensitivity analyses, universal resuscitation was cost-effective from a maternal perspective only at utilities for neonatal death <0.42. When analyzed from a maternal-neonatal perspective, universal resuscitation was cost-effective when the probability of neonatal death was <0.95. Over wide ranges of probabilities for survival and disability, universal and selective resuscitation strategies were not cost-effective from a maternal perspective. Both strategies were cost-effective from a maternal-neonatal perspective. This study offers a metric for counseling and decision-making for extreme prematurity. Our results could support a more permissive response to parental requests for aggressive intervention at 23 weeks' gestation.

The View Finder: International Perspectives on Special Education Technology. Volume 3.

ERIC Educational Resources Information Center

Edyburn, Dave L.; And Others

The four articles in this monograph present issues in the application of technology to special education from an international perspective. In the first chapter, "Augmentative and Alternative Communication Systems--Computer Applications for Individuals with Disabilities: An International Perspective," Richard Cardinali and George McMurdo…

Just and Realistic Expectations for Persons with Disabilities Practicing Nursing.

PubMed

Davidson, Patricia M; Rushton, Cynda Hylton; Dotzenrod, Jennifer; Godack, Christina A; Baker, Deborah; Nolan, Marie N

2016-10-01

The Americans with Disabilities Act prohibits discrimination on the basis of disability and requires schools to provide reasonable accommodations for persons with disabilities. The profession of nursing is striving for diversity and inclusion, but barriers still exist to realizing accommodations for people with disabilities. Promoting disclosure, a supportive and enabling environment, resilience, and realistic expectations are important considerations if we are to include among our ranks health professionals who can understand, based on similar life experiences of disability, a fuller range of perspectives of the patients we care for. © 2016 American Medical Association. All Rights Reserved.

Perspectives on the Meaning of "Disability".

PubMed

Francis, Leslie; Silvers, Anita

2016-10-01

The meaning of "disability" has shifted with changes in public policy. Half a century ago, Congress was convinced that narrow determinations of disability are easy for physicians to make. But with the advent of universal civil rights protection against disability discrimination in the US, deciding whether particular individuals are disabled became increasingly contentious, until Congress intervened. What should now be addressed in each case is not whether the functionally compromised person is severely disabled enough to exercise a right, but whether mitigating interventions and reasonable accommodations can together achieve equitable access for that person. © 2016 American Medical Association. All Rights Reserved.

Sexual understanding and development of young people with intellectual disabilities: mothers' perspectives of within-family context.

PubMed

Pownall, Jaycee D; Jahoda, Andrew; Hastings, Richard; Kerr, Linda

2011-05-01

The sexual development of young people with intellectual disabilities is a marker of their transition to adulthood and affects their sense of well being and identity. Cognitive impairments and a socially marginalized position increase dependence on their families to assist with sexual matters. In this study, the authors adopted a novel interpretive phenomenological analysis approach, asking 8 mothers to contrast their experience of supporting similarly aged siblings with and without intellectual disabilities. Acknowledgment of their nondisabled offspring's sexuality was demanded by increasing autonomy, whereas continuing dependence of the offspring with intellectual disabilities hindered mothers who were addressing this intensely private and sensitive issue with them. The topic of sexuality brought to the forefront mothers' fears about their offspring's ability to cope with the challenges of adulthood.

The proposed changes for DSM-5 for SLD and ADHD: international perspectives--Australia, Germany, Greece, India, Israel, Italy, Spain, Taiwan, United Kingdom, and United States.

PubMed

Al-Yagon, Michal; Cavendish, Wendy; Cornoldi, Cesare; Fawcett, Angela J; Grünke, Matthias; Hung, Li-Yu; Jiménez, Juan E; Karande, Sunil; van Kraayenoord, Christina E; Lucangeli, Daniela; Margalit, Malka; Montague, Marjorie; Sholapurwala, Rukhshana; Sideridis, Georgios; Tressoldi, Patrizio E; Vio, Claudio

2013-01-01

This article presents an international perspective of the proposed changes to the DSM-5 for learning disabilities (LD) and attention-deficit/hyperactivity disorders (ADHD) across ten countries: Australia, Germany, Greece, India, Israel, Italy, Spain, Taiwan, the United Kingdom, and the United States. We provide perspectives of the present situation for youth with LD and youth with ADHD and describe the legislation, prevalence rates, and educational systems that serve students with disabilities in the respective countries. We also present a discussion of the expected impact of the proposed changes for the diagnosis of LD and ADHD in each country.

Attitudes Toward Nursing Students With Disabilities: Promoting Social Inclusion.

PubMed

Shpigelman, Carmit-Noa; Zlotnick, Cheryl; Brand, Rachel

2016-08-01

Nursing education programs rarely refer to individuals with disabilities as potential nursing students; more often, the assumption is that they are patients. Thus, this study aimed to capture nursing students' perspectives of social inclusion through examination of their attitudes toward nursing student colleagues with disabilities. Paper-and-pencil structured surveys containing two validated scales were collected from Israeli nursing students (N = 270). Analyses included measuring associations using Pearson's correlation coefficient and general linear regression models. Nursing students held relatively negative attitudes toward colleagues with disabilities, and these negative attitudes were correlated to attitudes toward people with disabilities in general, even after adjusting for noted confounders. Nurse educators and nursing students should be aware of prejudicial attitudes with their respective communities toward nursing student colleagues with disabilities, and they should work toward a better understanding that cultural competence and awareness extends not only to patients but also to one's colleagues. [J Nurs Educ. 2016;55(8):441-449.]. Copyright 2016, SLACK Incorporated.

A caring partnership: expectations of ageing persons with disabilities for their primary care doctors.

PubMed

Shapiro, Johanna; Mosqueda, Laura; Botros, Danny

2003-12-01

The population of individuals who are ageing with a disability is growing rapidly, yet we know little about their views of their primary care and family physicians. In this qualitative study using a modified form of life history interviewing, 30 older respondents with a variety of disabilities discussed their past and current relationships with physicians. Data analysis identified as the primary theme of these interviews the importance of establishing a caring partnership between patient and physician. Important subthemes included physician avoidance of assumptions and stereotypes about persons with disabilities, physician commitment to patient well-being balanced by a capacity for keeping the disability in perspective, and the relationship between the need for physician specialized knowledge and the necessity of acknowledging patient expertise. Certain patient characteristics such as self-reliance and assertiveness also emerged as significant influences. A partnership with primary care/family physicians that communicates concern while avoiding stereotyping and recognizing patient expertise is important for many patients ageing with a disability.

Medically necessary sterilization of a minor with intellectual disability: a case report and historical perspective.

PubMed

Sowa, Nathaniel A; Rosenstein, Donald L

2015-01-01

Medical necessity may lead to secondary sterilization of individuals with intellectual disabilities, but legal statutes mandate that certain procedures be followed in these cases. In this article, we present a case of medically necessary sterilization of an individual with intellectual disability, and we discuss important legal statutes that guide this practice in North Carolina.

Perceptions of Disability and Special Education among East Asian Parents: U.S. Immigrants and Non-Immigrants

ERIC Educational Resources Information Center

Yan, Min-Chi; Kim, Sunyoung; Kang, Hyun-Ju; Wilkerson, Kimber L.

2017-01-01

The purpose of the current literature review is to understand how East Asian American (EAA) parents of students with disabilities perceive disabilities and special education. These parental perspectives are compared to those of their East Asian (EA) parents to better understand whether EAA parents adjust their perceptions in the U.S. Findings from…

Estate Planning for Parents of a Learning Disabled Child.

ERIC Educational Resources Information Center

Whitman, Robert

Considerations in estate planning for learning disabled children are presented from the perspective of an individual who is both a lawyer and the parent of a learning disabled child. It is suggested that an important goal for parents is to train the child to be able to deal with his/her financial situation. Early training in the habit of saving…

What Qualities Are Valued in Residential Direct Care Workers from the Perspective of People with an Intellectual Disability and Managers of Accommodation Services?

ERIC Educational Resources Information Center

Dodevska, G. A.; Vassos, M. V.

2013-01-01

Background: To date, the descriptions of a 'good' direct care worker used to recruit workers for disability services have largely been drawn up by managerial professionals in charge of hiring supports for people with disabilities. However, previous research highlights that these professionals conceptualise a "good" direct care worker…

The Use and Usefulness of a Parent Questionnaire to Help Schools Identify Disability

ERIC Educational Resources Information Center

Feiler, Anthony; Porter, Jill; Daniels, Harry; Georgeson, Jan; Hacker, Jane; Martin, Sue

2012-01-01

The Equality Act 2010 will be implemented in full in 2011, and schools in the UK will have to provide special aids or services for children with disabilities where this provision is considered reasonable. This paper reports on staff perspectives on the use and usefulness of a parental questionnaire on disability from a sample of 49 schools…

Multiple Perspectives on Integrated Education for Children with Disabilities in the Context of Early Childhood Centres in Hong Kong

ERIC Educational Resources Information Center

Lai, Yuk Ching; Gill, Judith

2014-01-01

The integration of children with disabilities in mainstream early childhood settings is a common practice in many developed and developing countries world-wide. A number of key points have been raised concerning such integration, including the increased attention to civil education about the rights of persons with disabilities, training for…

Workforce Development for People with Intellectual Disabilities: The Perspective from People with Intellectual Disabilities

ERIC Educational Resources Information Center

Davies, Jill; Burke, Christine

2016-01-01

Health Education England working across Kent, Surrey and Sussex (HEE KSS) have been developing a project over the last few years with the single aim to create a sustainable and secure workforce supply, for people that have intellectual disabilities who require support from and/ or access to services across Kent, Surrey and Sussex. Their report,…

History at the intersection of disability and public health: the case of John Galsworthy and disabled soldiers of the First World War.

PubMed

Reznick, Jeffrey S

2011-01-01

The author presented an earlier version of this historical article to the Disability Section of the American Public Health Association (November 2009). It is part of his ongoing research in the social and cultural history of medicine as the field intersects with the history of disability, veterans, and public health, as well as current issues that touch all of these areas. This article introduces readers to perspectives on disability held by the British novelist John Galsworthy (1867-1933), which he developed primarily through his philanthropic support for and his compositions about rehabilitation programs for British and American soldiers disabled in the First World War (1914-1918). Readers will learn that Galsworthy's perspectives are as much about his identity as an individual with disabilities as they are about men disabled in the "war to end all wars." The rediscovery of Galsworthy's experiences and words more than 90 years after the end of World War I reveals how history is present today at the intersection of disability and public health. Indeed, the story of Galsworthy ultimately seeking to forget his own experiences during the "Great War," as well as the very physical and psychological disability caused by that conflict, can inspire public health professionals and disability rights advocates today to remember-indeed, to advocate for-men and women who served in battle and have returned home to realize renewed health and social participation despite permanent physical and psychological wounds. Readers will note that language used throughout this article to describe disability is period-specific and therefore not keeping with current conventions. Published by Elsevier Inc.

An international qualitative study of ability and disability in ADHD using the WHO-ICF framework.

PubMed

Mahdi, Soheil; Viljoen, Marisa; Massuti, Rafael; Selb, Melissa; Almodayfer, Omar; Karande, Sunil; de Vries, Petrus J; Rohde, Luis; Bölte, Sven

2017-10-01

This is the third in a series of four cross-cultural empirical studies designed to develop International Classification of Functioning, Disability and Health (ICF, and Children and Youth version, ICF(-CY) Core Sets for Attention-Deficit Hyperactivity Disorder (ADHD). To explore the perspectives of individuals diagnosed with ADHD, self-advocates, immediate family members and professional caregivers on relevant areas of impairment and functional abilities typical for ADHD across the lifespan as operationalized by the ICF(-CY). A qualitative study using focus group discussions or semi-structured interviews of 76 participants, divided into 16 stakeholder groups. Participants from five countries (Brazil, India, Saudi Arabia, South Africa and Sweden) were included. A deductive qualitative content analysis was conducted to extract meaningful functioning and disability concepts from verbatim material. Extracted concepts were then linked to ICF(-CY) categories by independent researchers using a standardized linking procedure. In total, 82 ICF(-CY) categories were identified, of which 32 were related to activities and participation, 25 to environmental factors, 23 to body functions and 2 to body structures. Participants also provided opinions on experienced positive sides to ADHD. A high level of energy and drive, creativity, hyper-focus, agreeableness, empathy, and willingness to assist others were the most consistently reported strengths associated with ADHD. Stakeholder perspectives highlighted the need to appraise ADHD in a broader context, extending beyond diagnostic criteria into many areas of ability and disability as well as environmental facilitators and barriers. This qualitative study, along with three other studies (comprehensive scoping review, expert survey and clinical study), will provide the scientific basis to define ICF(-CY) Core Sets for ADHD, from which assessment tools can be derived for use in clinical and research setting, as well as in health care administration.

Perspectives of US Direct Care Workers on the Grief Process of Persons with Intellectual and Developmental Disabilities: Implications for Practice.

PubMed

Gray, Jennifer A; Abendroth, Maryann

2016-09-01

The study explored the grief process of persons with intellectual and developmental disabilities (PWIDDs) as perceived by direct care workers (DCWs) and how such workers can guide and support PWIDDs experiencing grief. A thematic analysis approach was used to examine data from nine focus groups with 60 DCWs from five community-based organizations. Findings were supported in the context of seminal grief and bereavement theories. Three themes (i.e. reactions to loss, processing the loss and incorporating the loss) and related subthemes emerged from the data. PWIDDs are susceptible to traumatic grief, and DCWs are often key witnesses to such experiences. DCWs' perspectives can guide the development of grief and bereavement training which can lead to more tailored support systems. © 2015 John Wiley & Sons Ltd.

Psychological well-being of adolescents with physical disabilities in Zimbabwean inclusive community settings: An exploratory study

PubMed Central

Maree, Jacobus G.

2017-01-01

Background The purpose of this study was to explore the psychological well-being of adolescents with physical disabilities living in inclusive community settings of Makonde Urban in Zimbabwe. An inclusive community is one that aims to remove exclusionary practices within the community and promote community systems that accept all people irrespective of their difference. Inclusive communities on their own are not uniquely designed for people with disabilities, but most developing countries have adopted them as a basic strategy to influence and enhance psychological well-being of people with disabilities. Methods A constructivist lived experience perspective underpinned this research, in which multiple case studies were used to interact with the participants on inclusion and psychological well-being of adolescents with physical disabilities. Purposive sampling was used to select 14 participants (9 males and 5 females). Data were collected through face-to-face interviews and transcribed verbatim. Four themes emerged from the thematic analysis of data sources. Results It was found that participants who were adolescents with physical disabilities living in inclusive community settings of Makonde Urban in Zimbabwe were having high levels of autonomy and choice, purpose in life, positive relations with others and good personal growth and self-acceptance. Conclusion The findings of this study should enable inclusive communities’ policy-makers and researchers to better understand the psychological well-being of adolescents with physical disabilities living in inclusive communities. PMID:29134179

Making "ethical safe space" in the translation of contested knowledge: the role of community debate in defining end-of-life decision ethics.

PubMed

Kaufert, Joseph; Schwartz, Karen; Wiebe, Rhonda; Derksen, Jim; Lutfiyya, Zana M; Richert, Dean

2013-04-01

The objectives of this article are, first, to document a unique process of research knowledge translation (KT), which the authors describe as the creation of "ethical safe space," and, second, to document the narratives of forum participants and describe their interaction in a dialogue about vulnerability, the authority of physicians, and the perspective of people with disabilities on the policy. Narrative data from qualitative interviews with individual key informants and focus groups were used to identify speakers with specific expertise on policy, disability perspectives, and bioethical issues, who were invited to participate in the Forum on Ethical Safe Space. The planning workgroup adopted a model for enabling representative participation in the public forum designed to reduce the impact of physical, sensory, financial, language, and professional status barriers. Using the transcripts and keynote speakers' printed texts, primary themes and patterns of interaction were identified reflecting the alternative perspectives. Through the development of a workshop on ethical, legal, and disability-related implications of professional policy guidelines developed by the College of Physicians and Surgeons of Manitoba, we provided a qualitative analysis of the discourse involving experts and disability community members supporting alternative positions on the impact of the policy statement, and discuss ethical, legal, and disability rights issues identified in the public debate. Contested policy and ethical frameworks for making decisions about withdrawing and withholding life supporting treatment may influence both the perspectives of palliative care providers and patients referred to palliative care facilities. An innovative model for KT using a public forum that enabled stakeholders with conflicting perspectives to engage with ethical and professional policy issues asserting the physician's authority in contested decisions involving withdrawing or withholding life-supporting treatment, was a successful way to engage stakeholders supporting alternative positions on the impact of the policy statement and to discuss ethical, legal, and disability rights issues identified in the public debate. Discussion during the forum revealed several benefits of creating ethical safe space. This model of workshop allows space for participation of stakeholders, who might not otherwise be able to interact in the same forum, to articulate their perspectives and debate with other presenters and audience members. Participants at the forum spoke of the creation of ethical safe space as a starting point for more dialogue on the issues raised by the policy statement. The forum was, therefore, seen as a potential starting point for building conversation that would facilitate revising the policy with broader consultation on its legal and ethical validity.

Capturing the psychologic-personal perspective in spinal cord injury.

PubMed

Geyh, Szilvia; Müller, Rachel; Peter, Claudio; Bickenbach, Jerome E; Post, Marcel W M; Stucki, Gerold; Cieza, Alarcos

2011-11-01

The overall objective of this study was to illustrate a systematic approach for capturing the psychologic-personal perspective in International Classification of Functioning, Disability and Health-based comprehensive research on spinal cord injury (SCI) in terms of what and how to measure. The specific aims were to identify (1) relevant areas of research for capturing the psychologic-personal factors in a study that is planned and conceptualized according to the comprehensive context of the International Classification of Functioning, Disability and Health, using SCI as a case in point; (2) a set of domains relevant for SCI research from a psychologic-personal perspective; and (3) suitable measurement instruments that can be considered for the assessment of those identified domains based on a set of predefined guiding principles. The psychologic-personal factor structure was developed based on an item pool of 1246 entries from secondary analyses of available data from SCI studies. The domain set for psychologic-personal factors was identified through reviewing the scientific literature in PubMed and PsycInfo. The set of measurement instruments was collected using available measurement reviews, searches in the literature, instrument databases, and further sources and was selected using guiding principles. Forty specific psychologic-personal factors, subdivided into seven areas of research, were identified: (1) sociodemographic personal characteristics, (2) the position in the immediate social and physical context, (3) personal history and biography, (4) feelings, (5) thoughts and beliefs, (6) motives, and (7) patterns of experience and behavior. The psychologic-personal factors domain set contains both cross-cutting outcome domains, namely quality-of-life, life satisfaction, subjective well-being, and sociodemographic personal characteristics, life events, positive and negative affect, perceived stress, locus of control, self-efficacy, purpose in life, coping, lifestyle, and personality. For each of the identified domains, a pool of measurement instruments was listed, and the application of predefined guiding principles for measurement instrument selection was exemplified for self-efficacy. It resulted in the selection of the General Self-Efficacy Scale by Schwarzer and Jerusalem (Measures in Health Psychology: A User's Portfolio. Causal and Control Beliefs. pp. 35-37; 1995). The results of the current article contributed to creating a transparent protocol for the Swiss Spinal Cord Injury Cohort study, coordinated by the Swiss Paraplegic Research in Nottwil, Switzerland. This article also stresses the relevance of the comprehensive approach to SCI and the consideration of the psychologic-personal perspective in this approach. The study, therefore, hopes to encourage scientists to use the International Classification of Functioning, Disability and Health and the psychologic-personal perspective as a frame of reference for their research. Furthermore, the research reported in this article can inform the World Health Organization's future development of the personal factors classification in the International Classification of Functioning, Disability and Health.

Perspectives of intellectual disability in Asia: epidemiology, policy, and services for children and adults.

PubMed

Jeevanandam, Lohsnah

2009-09-01

Given the scarcity of Asian literature on intellectual disability, the aim of this review article is to shed light on the epidemiology, policy, and services for children and adults with intellectual disability in Asia. The prevalence of intellectual disability across Asia appears to be consistent with western estimates at 0.06-1.3%, with the exception being China at 6.68%. In the only two studies of mental health conducted in Asia, the prevalence ranged from 4.4 to 48.3%. Some of the common physical health problems among Singaporean adults with intellectual disability are obesity, high blood pressure, and high blood cholesterol. All Asian countries/territories have at least one law or policy that promotes the well being of persons with disabilities, with Japan being the only country that has a law specifically enacted for persons with intellectual disability. Although there is an array of services being offered for children and adults with intellectual disability across south-east Asia, there is also a variation in the proportion of countries that offer these services. Overall, the challenge for Asia will be to develop a localized base of knowledge by conducting epidemiological studies, modeling after evidence-based practices, and evaluating its effectiveness. By adopting a scientific approach and formal publication of data, intellectual disability standards can be evaluated, managed, and improved in a systematic manner.

Meeting the challenge of interpretation: Hearing the voices of people with intellectual and developmental disability through I-Poems.

PubMed

Corby, Deirdre; Taggart, Laurence; Cousins, Wendy

2018-06-01

Including the inner perspectives of people who have intellectual disability can pose methodological challenges to qualitative researchers. This article explains how the Listening Guide was applied as an additional step in the analysis during a study which used hermeneutic interviews with people with intellectual disability as the sole method of data collection. An argument is made for the systematic application of the guide with a focus on the use of I-Poems. This article advances qualitative methodological approaches and concludes that this method of drawing attention to the participants' own voices provides a unique basis for interpreting interviews and tasks researchers to examine the use of the Listening Guide.

Differences in Experiences of Discrimination in Accessing Social Services Among Transgender/Gender Nonconforming Individuals by (Dis)Ability.

PubMed

Kattari, Shanna K; Walls, N Eugene; Speer, Stephanie Rachel

2017-01-01

Transgender and gender nonconforming (GNC) individuals frequently experience discrimination and potentially a lack of respect from service providers, suggesting they have decreased access to professionals with cultural competency. Similarly, people with disabilities experience higher levels of discrimination in social services than their nondisabled counterparts. From an intersectional perspective, this study examines rates of discrimination in accessing social services faced by transgender and GNC people, comparing across ability. Data indicate that although transgender and GNC individuals of all abilities experience gender-based discrimination when accessing social services, those with disabilities experience higher levels of antitransgender discrimination in mental health centers, rape crisis centers, and domestic violence shelters.

Telecommunications, computers and other complementary communication means on behalf of the disabled.

PubMed

Puig de la Bellacasa, R

1980-01-01

It took the author eleven months (1-3-1979 to 31-1-1980) to carry out the first part of a study and coordinate a number of working sessions in which he examined the state of the arts and put forward a program for the application of telecommunications, computers and other complementary communication means to the welfare of the disabled. The five areas of study are described in the present article: blindness, deaf-blindness and visual impairment; disability in the family; home-boundness due to disability, chronic illness or advanced age; speech impairments due to non-auditory causes; mental illness and related disorders. The study was carried out as a part of the activities of the "Foundation for the Development of the Social Function of Communications" (Fundacion para el Desarrollo de la Funcion Social de las Comunicaciones) and tries to open up a new perspective in Spain on technological applications for the handicapped. The main feature of the study is the proposal of Rehabilitation Engineering and Technical Aids Centre for the Disabled which starting from the telecommunications area, intends to make available to the handicapped the possibilities offered by technology.

Individuals' perceptions of employment accommodation decisions and solutions: lessons for social workers.

PubMed

Hartnett, Helen P; Thurman, Hanna; Cordingly, Kim

2010-01-01

Disability rights advocates in social work have claimed that employment opportunities for people with disabilities are an important part of personal empowerment and social inclusion. Title I of the Americans with Disabilities Act is aimed at ensuring meaningful employment opportunities are available. Hahn and Raske (2005) state that social work needs to develop a research paradigm that values the inclusion of people with disabilities. This article examines these efforts by incorporating the voices of individuals with disabilities who accessed services at the Job Accommodation Network. Understanding individuals' perspectives could contribute to better accommodation outcomes for people with disabilities, employers, and advocacy professionals alike.

The Invisible Elves of the Inclusive School - Paraprofessionals.

ERIC Educational Resources Information Center

Goessling, Deborah Peters

This microethnographic study examined the perspectives of paraprofessionals assisting students with disabilities in inclusive educational settings. Extensive open-ended individual interviews were conducted with 10 educational technicians from 10 different schools in Maine. Demographic data on paraprofessionals in Maine were also analyzed. The…

A Holistic Theoretical Approach to Intellectual Disability: Going Beyond the Four Current Perspectives.

PubMed

Schalock, Robert L; Luckasson, Ruth; Tassé, Marc J; Verdugo, Miguel Angel

2018-04-01

This article describes a holistic theoretical framework that can be used to explain intellectual disability (ID) and organize relevant information into a usable roadmap to guide understanding and application. Developing the framework involved analyzing the four current perspectives on ID and synthesizing this information into a holistic theoretical framework. Practices consistent with the framework are described, and examples are provided of how multiple stakeholders can apply the framework. The article concludes with a discussion of the advantages and implications of a holistic theoretical approach to ID.

[The personal budget--a new system of benefits for disabled people].

PubMed

Wacker, E

2009-02-01

Instead of non-cash benefits, disabled people are to receive personal payments to help them to better manage their own support. This "tailor made support" has become a legal basis for a claim in 2008. It is aimed to pave the way for a new design of assistance: more ambulant services and a stronger position for the recipient of support. Initial results within the scope of pilot projects, evaluations from various perspectives and the discernible effects of personal budgets are reported in national and international perspectives.

Economics and Equity in Employment of People with Disabilities: International Policies and Practices. Proceedings from the Symposium (East Lansing, Michigan, April 28-May 2, 1984).

ERIC Educational Resources Information Center

Habeck, Rochelle V., Ed.; And Others

This volume contains the following presentations: "An Overview of Policy Issues," by Donald Galvin; "Policies for the Employment of Disabled People,' by Norman Acton; "A Corporate Perspective," by Jane Belau; "The Future of Work for People with Disabilities--A View from Great Britain," by Paul Cornes; "A…

Perspectives of Family Members of People with an Intellectual Disability to a Major Reconfiguration of Living Arrangements for People with Intellectual Disability in Ireland

ERIC Educational Resources Information Center

O'Doherty, Siobhain; Linehan, Christine; Tatlow-Golden, Mimi; Craig, Sarah; Kerr, Mike; Lynch, Christy; Staines, Anthony

2016-01-01

Aim: To document the views of family members of people with an intellectual disability regarding implementation of a personalized model of social support in Ireland. Method: Forty family members participated in six focus groups. Data were thematically analysed. Results: Family members' preference for particular types of living arrangements were…

Comparative Perspectives of Direct Support Professionals Working with Adults with Intellectual Disabilities Regarding Standard Competencies

ERIC Educational Resources Information Center

Bayes, Cynthia Anne

2010-01-01

There is a growing shortage of Direct Support Professionals (DSPs) in the field of intellectual and developmental disabilities. This shortage is at a crisis now and will continue to become more of a crisis unless changes are made. This is a crisis for many community employers and even more of a crisis for the people with disabilities who are faced…

Participation of People with Disabilities: An International Perspective. Selected Papers from the 1980 World Congress of Rehabilitation International (Winnipeg, Canada, June 22-27, 1980).

ERIC Educational Resources Information Center

Miller, Kathleen S., Ed.; And Others

Selected papers from the 1980 World Congress of Rehabilitation International Meeting on the participation of disabled people are presented. The papers address the rights of the disabled, the organization and functions of consumer groups, the impact of consumer involvement on rehabilitation and related services, social implications of the consumer…

Parents' Views of an Optimal School Life: Using Social Role Valorization to Explore Differences in Parental Perspectives When Children Have Intellectual Disability

ERIC Educational Resources Information Center

Mann, Glenys; Moni, Karen; Cuskelly, Monica

2016-01-01

Children with disability continue to experience disadvantage in their school lives; thus, the question of what makes up an optimal school life, and whether this is different for children with disability, becomes critical. This paper reports on research into parental views about an optimal school life and the usefulness of Social Role Valorization…

Assessments of adolescent language.

PubMed

Wiig, E H

1995-02-01

I have stressed that language and learning disabilities that are exhibited in the preschool or elementary school years often persist into adolescence but that the characteristics and implications of these disabilities change with the preadolescent and adolescent transitions to metalinguistic maturity. As the student with language disabilities matures and as educational demands increase in complexity and in level of abstractness, the interactions between language and cognition become more apparent. Language disabilities of adolescents are often described in relation to observed deficits in the acquisition of content (semantics), form (morphology and syntax), and use (pragmatics). I have broadened this perspective to consider identification of metalinguistic strengths and/or deficits, deficits in the integration and organization of communication, reasoning and problem solving, and in conceptualization and creativity. Several assessment options were discussed, among them, norm-and criterion- referenced testing, language sample analysis, portfolio assessments of integrated communication, observational checklists and interviews, classroom language probes, and self-assessments. The perspectives taken for assessment have been that no single assessment option can satisfy all assessment objectives and/or constraints. I have also stressed that all tests are subject to measurement error and how to account for this error. Last, but not least, I have shared some of the voices of adolescents which express their perspectives and priorities.

Measuring preparedness for mammography in women with intellectual disabilities: a validation study of the Mammography Preparedness Measure.

PubMed

Wang, Claire Tienwey; Greenwood, Nechama; White, Laura F; Wilkinson, Joanne

2015-05-01

Women with intellectual disabilities have similar breast cancer rates as the general population, but lower rates of regular mammography and higher breast cancer mortality rates. Although prior qualitative work demonstrates that women with intellectual disabilities face unique, disability-specific barriers to mammography, the present authors lack standardized, validated instruments for measuring knowledge of breast cancer screening in this population. In addition, much research related to adults with intellectual disabilities focuses on family or carer perspectives, rather than involving women with intellectual disabilities, themselves. The present authors first pilot tested a general population instrument measuring breast cancer knowledge, and found that it did not perform adequately in women with intellectual disabilities. In response, the present authors developed the Mammography Preparedness Measure (MPM), a direct short interview tool to measure knowledge and preparedness in women with intellectual disabilities, themselves, rather than relying on caregiver or other reports, and using inclusive methodology. The present authors validated the MPM by assessing test-retest reliability. Average test-retest per cent agreement of 84%, ranging from 74 to 91% agreement per item, with an overall kappa of 0.59. The MPM appears to be a valid instrument appropriate for measuring mammography preparedness in women with intellectual disabilities. The success of this innovative tool suggests that direct, rather than informant-directed tools can be developed to measure health knowledge and cancer screening readiness in adults with intellectual disabilities, an important measure in studying and reducing disparities. © 2014 John Wiley & Sons Ltd.

24. Perspective view of central tower from roof of main ...

Library of Congress Historic Buildings Survey, Historic Engineering Record, Historic Landscapes Survey

24. Perspective view of central tower from roof of main block, looking northeast, with HABS team - National Home for Disabled Volunteer Soldiers, Northwestern Branch, Main Building, 5000 West National Avenue, Milwaukee, Milwaukee County, WI

Disability on campus: a perspective from faculty and staff.

PubMed

Shigaki, Cheryl L; Anderson, Kim M; Howald, Carol L; Henson, Lee; Gregg, Bonnie E

2012-01-01

To identify employee perceptions regarding disability-related workplace issues in Institutions of Higher Education (IHE). Faculty and staff (N=1,144) at a large, Midwestern university. A voluntary on-line survey of disability-related employment issues was developed by the university's Chancellor's Committee of Persons with Disabilities. Item responses were analyzed using descriptive and Pearson chi-square statistical methods. Fifteen percent of faculty and staff respondents were found to have disabilities, with 26% reporting experience of job discrimination, and 20% reporting harassment because of their disability. Results indicated significant differences on gender, employment standing (i.e., faculty or staff) and disability status (i.e., with or without a disability), in regard to perceptions of disability acceptance, campus accessibility, disability awareness, ADA policy, and knowledge of work accommodation procedures. Recommendations for IHEs are provided to promote a welcoming and inclusive campus that ultimately supports work success for persons with a disability.

Mixed-reality exercise effects on participation of individuals with spinal cord injuries and developmental disabilities: a pilot study.

PubMed

Heyn, Patricia C; Baumgardner, Chad A; McLachlan, Leslie; Bodine, Cathy

2014-01-01

The purpose of this pilot study was to investigate the effectiveness of a mixed-reality (MR) exercise environment on engagement and enjoyment levels of individuals with spinal cord injury (SCI) and intellectual and developmental disabilities (IDD). Six people participated in this cross-sectional, observational pilot study involving one MR exercise trial. The augmented reality environment was based on a first-person perspective video of a scenic biking/walking trail in Colorado. Males and females (mean age, 43.3 ± 13.7 years) were recruited from a research database for their participation in previous clinical studies. Of the 6 participants, 2 had SCI, 2 had IDD, and 2 were without disability. The primary outcome measurement of this pilot study was the self-reported engagement and enjoyment level of each participant after the exercise trial. All participants reported increased levels of engagement, enjoyment, and immersion involving the MR exercise environment as well as positive feedback recommending this type of exercise approach to peers with similar disabilities. All the participants reported higher than normal levels of enjoyment and 66.7% reported higher than normal levels of being on a real trail. Participants' feedback suggested that the MR environment could be entertaining, motivating, and engaging for users with disabilities, resulting in a foundation for further development of this technology for use in individuals with cognitive and physical disabilities.

Social Inclusion: A Student Board Member's Perspective

ERIC Educational Resources Information Center

Friedman, Josh

2013-01-01

Frustration, anxiety, and loneliness define too many high school experiences. For students with mental illness or other disabilities, this characterization is almost universal. Students with disabilities begin their high school careers immediately labeled as "special" and soon are ostracized from the larger student community. In high…

Sustaining Friendships, Relationships, and Rights at School

ERIC Educational Resources Information Center

MacArthur, Jude

2013-01-01

Research that highlights disabled students' perspectives often describes experiences of exclusion, isolation, loneliness, and bullying, and difficulties finding friends. Within this broader social context, students' rights are placed at risk. Using examples from New Zealand research, this paper explores the social experiences of disabled students…

An Exploration of Community Learning Disability Nurses' Therapeutic Role

ERIC Educational Resources Information Center

Marsham, Marian

2012-01-01

This literature review and primary qualitative research explores therapeutic role from the perspective of Community Learning Disability Nurses. Semi-structured interviews, based on Critical Incident Technique ("Psychol Bull", 51, 1954, 327), and descriptive phenomenological methodology were adopted to elicit data amenable to systematic…

Aggression as Positive Reinforcement in People with Intellectual Disabilities

ERIC Educational Resources Information Center

May, Michael E.

2011-01-01

From an applied behavior-analytic perspective, aggression in people with intellectual disabilities is mostly maintained by social reinforcement consequences. However, nonsocial consequences have also been identified in functional assessments on aggression. Behaviors producing their own reinforcement have been labeled "automatic" or "nonsocial" in…

Culturally Diverse Parents' Perspectives on Self-Determination

ERIC Educational Resources Information Center

Zhang, Dalun; Landmark, Leena; Grenwelge, Cheryl; Montoya, Linda

2010-01-01

Current research examining self-determination in cultural contexts has yielded mixed findings. This qualitative interview study collected rich information from parents of four major cultures about their understanding of self-determination and their daily engagement in self-determination related activities with their children with disabilities.…

Determinants of health and disability in ageing population: the COURAGE in Europe Project (collaborative research on ageing in Europe).

PubMed

Leonardi, Matilde; Chatterji, Somnath; Koskinen, Seppo; Ayuso-Mateos, Jose Luis; Haro, Josep Maria; Frisoni, Giovanni; Frattura, Lucilla; Martinuzzi, Andrea; Tobiasz-Adamczyk, Beata; Gmurek, Michal; Serrano, Ramon; Finocchiaro, Carla

2014-01-01

COURAGE in Europe was a 3-year project involving 12 partners from four European countries and the World Health Organization. It was inspired by the pressing need to integrate international studies on disability and ageing in light of an innovative perspective based on a validated data-collection protocol. COURAGE in Europe Project collected data on the determinants of health and disability in an ageing population, with specific tools for the evaluation of the role of the built environment and social networks on health, disability, quality of life and well-being. The main survey was conducted by partners in Finland, Poland and Spain where the survey has been administered to a sample of 10,800 persons, which was completed in March 2012. The newly developed and validated COURAGE Protocol for Ageing Studies has proven to be a valid tool for collecting comparable data in ageing population, and the COURAGE in Europe Project has created valid and reliable scientific evidence, demonstrating cross-country comparability, for disability and ageing research and policy development. It is therefore recommended that future studies exploring determinants of health and disability in ageing use the COURAGE-derived methodology. COURAGE in Europe Project collected data on the determinants of health and disability in an ageing population, with specific tools for the evaluation of the role of built environment and social networks on health, disability quality of life and well-being. The COURAGE Protocol for Ageing Studies has proven to be a valid tool for collecting comparable data in the ageing population. The COURAGE in Europe Consortium recommends that future studies exploring determinants of health and disability in ageing use COURAGE-derived methodology. Copyright © 2013 John Wiley & Sons, Ltd.

Exploring Parental Perspectives of Participation in Children with Down Syndrome

ERIC Educational Resources Information Center

Lyons, Rena; Brennan, Sara; Carroll, Clare

2016-01-01

The everyday lives of children with disabilities are not well understood, with few studies exploring how participation in everyday life is conceptualized and given meaning. The overall aims of this study were, first, to explore parental views of their children's participation and, second, to identify barriers and facilitators in relation to…

Special Education Advocacy in the Juvenile Justice System: Perspectives from Probation Officers

ERIC Educational Resources Information Center

Burke, Meghan M.; Dalmage, Heather

2016-01-01

Although students with disabilities are over-represented in the juvenile justice system and frequently receive poor educational services, few studies have examined strategies to increase compliance with student needs and individualized education programs. In this study, we conducted interviews with eight probation officers in the Advocacy Unit of…

Language Learning Disabilities: The Ultimate Foreign Language Challenge

ERIC Educational Resources Information Center

DiFino, Sharon M.; Lombardino, Linda J.

2004-01-01

In today's world where great value is placed on global understanding, the acquisition of languages is essential. Academics would agree that the study of other languages provides students access to the cultural and intellectual heritage of cultures other than their own. Additionally, such study gives new and different perspectives on the structure…

Socioeconomic determinants of disability in Chile.

PubMed

Zitko Melo, Pedro; Cabieses Valdes, Báltica

2011-10-01

Disability is a worldwide public health priority. A shift from a biomedical perspective of dysfunction to a broader social understanding of disability has been proposed. Among many different social factors described in the past, socioeconomic position remains as a key multidimensional determinant of health. The study goal was to analyze the relationship between disability and different domains of socioeconomic position in Chile. Cross-sectional analysis of an anonymized population-based survey conducted in Chile in 2006. Any disability (dichotomous variable) and 6 different types of disability were analyzed on the bases of their relationship with income quintiles, occupational status, educational level, and material living standards (quality of the housing, overcrowding rate and sanitary conditions). Confounding and interaction effects were explored using R statistical program. Income, education, occupation, and material measures of socioeconomic position, along with some sociodemographic characteristics of the population, were independently associated with the chance of being disabled in Chile. Interestingly, classic measures of socioeconomic position (income, education, and occupation) were consistently associated with any disability in Chile, whereas material living conditions were partially confounded by these classic measures. In addition to this, each type of disability showed a particular pattern of related social determinants, which also varied by age group. This study contributed to the understanding of disability in Chile and how different domains of socioeconomic position might be associated with this prevalent condition. Disability remains a complex multidimensional public health problem in Chile that requires the inclusion of a wide range of risk factors, of which socioeconomic position is particularly relevant. Copyright © 2011 Elsevier Inc. All rights reserved.

Subjectivity in Education and Health: Research Notes on School Learning Area and Physical Education in Mental Health

ERIC Educational Resources Information Center

Bezerra, Marilia; da Costa, Jonatas Maia

2016-01-01

This paper presents the results of two studies researching the theory of subjectivity from a cultural-historical perspective. The studies are situated in the fields of education and health and are conducted using Qualitative Epistemology. The first study discusses the pathological movement problems of learning disabilities in Brazilian schools and…

Just What Is the Disability Perspective on Disability?

PubMed

Shakespeare, Tom

2016-05-01

In the helpful article "Why Bioethics Needs a Disability Moral Psychology," Joseph Stramondo adds to the critique of actually existing bioethics and explains why disability activists and scholars so often find fault with the arguments of bioethicists. He is careful not to stereotype either community-rightly, given that bioethicists endorse positions as disparate as utilitarianism, deontology, virtue ethics, and feminist ethics, among others. Although Stramondo never explicitly mentions utilitarians or liberals, it seems probable that these are the main targets of his discontent. The disability community, as he concedes, is also a broad church. Yet for this reason, I do not believe that you can read off positions on bioethics questions from either disability embodiment or disability organization affiliation. © 2016 The Hastings Center.

"I'm still here": Exploring what matters to people with intellectual disability during advance care planning.

PubMed

McKenzie, Nicola; Mirfin-Veitch, Brigit; Conder, Jennifer; Brandford, Sharon

2017-11-01

This study sought to identify, from the perspective of people with intellectual disabilities and life limiting conditions, the factors that strengthened and inhibited their Advance Care Planning. This in depth qualitative study explored the experiences of four people with intellectual disability and life limiting conditions, through interviews and documentation reviews. There was strong agreement across all participants about what positively influenced Advance Care Planning, namely; going at my pace; supporting me to make my own choices; adapting the process to suit me, and, most importantly; continuing to support and plan the life I'm still living. With the exception of being comfortable/skilled in end-of-life support, the skills required of facilitators were similar to those required for all forms of person-centred planning. The findings are encouraging and demonstrate that Advance Care Planning is a useful tool in ensuring that people with intellectual disability have control and choice over their lives, right to the end. © 2017 John Wiley & Sons Ltd.

Being a valuable contributor on the frontline: The self-perception of staff in group homes for people with intellectual disability.

PubMed

Quilliam, Claire; Bigby, Christine; Douglas, Jacinta

2018-05-01

Group home frontline staff have a critical role in implementing service policies, yet research typically examines implementation issues from an organisational perspective. The aim of this study was to explore the self-perception of frontline staff about their role in group homes for people with intellectual disability. Constructivist grounded theory methodology guided the study. Data were collected with frontline staff through semistructured interviews and participant observations. Coding and sorting methods were used to analyse participants' self-perception. Frontline staff felt they were valuable contributors who knew the service setting and residents well. Despite this staff felt powerless in their roles, excluded from organisational dialogue, stressed and exhausted. Frontline staff have critical insight into service implementation although disability service organisations may limit their capacity to contribute to this. Further action could explore new ways to better nurture frontline staff engagement in organisational dialogue. © 2017 The Authors Journal of Applied Research in Intellectual Disabilities Published by John Wiley & Sons Ltd.

The politics of cinematic representation of disability: "the psychiatric gaze".

PubMed

Dawn, Ranjita

2014-01-01

Social representations as cultural products rooted in praxis are considered to play dominant role in the structuring of identities or self representations. It is a common belief that people with disabilities analyze their experiences in light of the existing meanings and practices prevalent in society. The paper addresses the matrices of recurring themes in representation of disability and discourses of "normalcy" in films in the nineteenth and twentieth century invoking reductionistic attitude, whereby "disability" becomes a condition subject to neurotypical display and narrative coding in the films in question in the context of India. It will especially seek to analyze the theoretical outlook based on the social model of disability, a perspective that includes specific analyses of the representation of people like themselves in popular culture. A systematic and thorough review of 26 Hindi films ranging from the 1960s to 2010 and six English movies. Apart from these, several books and articles have also been critically reviewed. The paper concludes with the argument that the idea of disability in mainstream contemporary cinema has been created and perceived as a speculative fantasy and for public consumption, thus reflecting the current status of people with disabilities as the present preferred "enigmatic" condition. Implications for Rehabilitation Films play significant role in communicating characters which have deep impact on peoples' perspective of persons with disabilities. Filmmakers need to adopt more intensely researched and more sensitized approach in creating movies centering on people with disabilities. Films need to focus more on the potentialities rather than the shortcomings of people with disabilities. Filmmakers need adequate training in order to recognize the needs of the concerned population and adopt appropriate resources and interventions to address various issues for their rehabilitation into the mainstream society.

Research Ethics and Intellectual Disability: Broadening the Debates

PubMed Central

Carlson, Licia

2013-01-01

This article examines the ethical issues surrounding the inclusion of people with intellectual disabilities as research subjects. It explores subject selection, competence, risk and benefits, and authority through three tensions that emerge when considering these concepts in the context of the Disability Rights Movement and critical disability scholarship. These tensions are defined as the double dangers of inclusion and exclusion; the challenges of defining competence and risk in terms of individuals vs. groups; and the conflicts that arise when pursuing the dual goals of amelioration and elimination of disabilities. Though these tensions are not resolved, they underscore the importance of researchers engaging with critical disability perspectives in order to navigate these complex ethical questions. PMID:24058305

Everyday Inclusive Web Design: An Activity Perspective

ERIC Educational Resources Information Center

Kane, Shaun K.

2007-01-01

Introduction: Website accessibility is a problem that affects millions of people with disabilities. While most current accessibility initiatives target government or commercial sites, a growing segment of online content is being created by non-professionals. This content is often inaccessible to users with disabilities. Everyday inclusive Web…

Understanding the Americans with Disabilities Act.

ERIC Educational Resources Information Center

Hatherleigh Co., Ltd., New York, NY.

The enactment of the Americans with Disabilities Act (ADA) in July, 1990 created the need for rehabilitationists to have a thorough knowledge of the provisions of this complex legislation. This document, divided into five lessons, examines issues from the perspective of the rehabilitation professional. Lesson 1, "Introduction and…

The Impact of Cultural Diversity on Special Education Provision in the United States

ERIC Educational Resources Information Center

Palawat, Manisara; May, Michael E.

2012-01-01

Cultural background influences one's understanding of intellectual and/or developmental disabilities. More specifically, the cultural perspectives of parents and special education professionals may affect decision-making in providing appropriate services for children with disabilities. Therefore, cultural distinctions may present a unique…

A Realistic Approach to a School for All.

ERIC Educational Resources Information Center

Skov-Jorgensen, I.

The literature review describes the ideal of "a school for all" which integrates children with and without disabilities from a European perspective. Topics covered include a historical review of discrimination against the disabled, the establishment of private special schools, the increasing role of public educational authorities in…

Neurodevelopmental Disorders in Low- and Middle-Income Countries

ERIC Educational Resources Information Center

Newton, Charles R.

2012-01-01

In "Global Perspective on Early Diagnosis and Intervention for Children with Developmental Delays and Disabilities" (p1079-1084, this issue), Scherzer et al. highlighted the potential increase in neurodevelopmental impairments and disabilities affecting an increasing number of children in low- and middle-income countries (LMIC). In this…

Reading Disabilities: An International Perspective.

ERIC Educational Resources Information Center

Tarnopol, Lester, Ed.; Tarnopol, Muriel, Ed.

This volume includes essays on reading disabilities in such places as Argentina, Austria, Belgium, China, Canada, Denmark, Czechoslovakia, Finland, Germany, Great Britain, Hungary, Ireland, Norway, The Netherlands, Rhodesia, Republic of South Africa, and the United States. Most of the 20 essays include the background of special education in the…

Experiences of visually impaired students in higher education: Bodily perspectives on inclusive education.

PubMed

Lourens, Heidi; Swartz, Leslie

Although previous literature sheds light on the experiences of visually impaired students on tertiary grounds, these studies failed to provide an embodied understanding of their lives. In-depth interviews with 15 visually impaired students at one university demonstrated the ways in which they experienced their disability and the built environment in their bodies. At the same time, lost, fearful, shameful and aching bodies revealed prevailing gaps in provision for disabled students. Through this research it becomes clear how the environment is acutely felt within fleshly worlds, while bodies do not fail to tell of disabling societal structures. Based on the bodily stories, we thus make recommendations to improve the lives of visually impaired students on tertiary campuses.

Experiences of visually impaired students in higher education: Bodily perspectives on inclusive education

PubMed Central

Lourens, Heidi; Swartz, Leslie

2016-01-01

Although previous literature sheds light on the experiences of visually impaired students on tertiary grounds, these studies failed to provide an embodied understanding of their lives. In-depth interviews with 15 visually impaired students at one university demonstrated the ways in which they experienced their disability and the built environment in their bodies. At the same time, lost, fearful, shameful and aching bodies revealed prevailing gaps in provision for disabled students. Through this research it becomes clear how the environment is acutely felt within fleshly worlds, while bodies do not fail to tell of disabling societal structures. Based on the bodily stories, we thus make recommendations to improve the lives of visually impaired students on tertiary campuses. PMID:27917028

Conducting participatory photography with children with disabilities: a literature review.

PubMed

Eisen, Isabel; Cunningham, Barbara Jane; Campbell, Wenonah

2018-03-28

This review summarized studies that used participatory photography with children with disabilities, including those with communication impairments, and described modifications made to the methodology to facilitate their participation in qualitative research. In the fall of 2016, we searched Psycinfo (OVID), ERIC, CINAHL and Web of Science to identify studies that used participatory photography with children with disabilities. The search was repeated in January 2018 to retrieve any new publications. The first author extracted data that described the characteristics of each study and the modifications used. Of the 258 articles identified, 19 met inclusion criteria. Participants ranged from 4-21 years old and had a variety of disabilities. Study topics included education, leisure activities and adulthood. Researchers modified participatory photography to enhance accessibility by: modifying cameras; providing individual training; teaching consent through role play; allowing children to direct adults to take photographs; including additional forms of media; using diaries and questionnaires; providing individual interviews with simplified questions; using multiple forms of communication; and modifying how photographs are shared. Participatory photography can be an effective method for studying the lived experiences of children with disabilities, particularly those with communication impairments. Methodological modifications can enhance the accessibility of this approach for this population. Implications for Rehabilitation Participatory photography may be an effective qualitative research method for learning about the perspectives and experiences of children with disabilities on a wide array of topics. There are many specific modifications that researchers can use to support the inclusion of children with disabilities in participatory photography research. The findings of studies that use participatory photography methodology may provide rehabilitation professionals with important insights into the lives of children with disabilities.

Old-Age Disability and Wealth among Return Mexican Migrants from the United States

PubMed Central

Wong, Rebeca; Gonzalez-Gonzalez, Cesar

2012-01-01

Objective To examine the old-age consequences of international migration with a focus on disability and wealth from the perspective of the origin country. Methods Analysis sample includes persons aged 60+ from the Mexican Health and Aging Study, a national survey of older-adults in Mexico in 2001. Univariate methods are used to present a comparative profile of return migrants. Multivariate models are estimated for physical disability and wealth. Results Gender differences are profound. Return migrant women are more likely to be disabled while men are wealthier than comparable older adults in Mexico. Discussion Compared to current older adults, younger cohorts of Mexico-U.S. migrants increasingly include women, and more migrants seem likely to remain in the United States rather than return, thus more research will be needed on the old-age conditions of migrants in both countries. PMID:20876848

Sensors: Views of Staff of a Disability Service Organization

PubMed Central

Wolbring, Gregor; Leopatra, Verlyn

2013-01-01

Sensors have become ubiquitous in their reach and scope of application. They are a technological cornerstone for various modes of health surveillance and participatory medicine—such as quantifying oneself; they are also employed to track people with certain as impairments perceived ability differences. This paper presents quantitative and qualitative data of an exploratory, non-generalizable study into the perceptions, attitudes and concerns of staff of a disability service organization, that mostly serve people with intellectual disabilities, towards the use of various types of sensor technologies that might be used by and with their clients. In addition, perspectives of various types of privacy issues linked to sensors, as well data regarding the concept of quantified self were obtained. Our results highlight the need to involve disabled people and their support networks in sensor and quantified-self discourses, in order to prevent undue disadvantages. PMID:25562409

Raising awareness of learning disability needs in acute sector care: a reflective account of a workshop from the guest facilitator perspective.

PubMed

Marsham, Marian

2009-10-01

Nurse education has an essential role to play in reducing health inequality for people with learning disability [Michael, J., 2008. Healthcare for All: Report of the Independent Inquiry into Access to Healthcare for People with Learning Disabilities. Aldridge Press, London]. Many nurse education providers will need to use guest facilitators in order to raise awareness of best practice in caring for this client group for non learning disability branch students and their experiences as nurse educators will be of growing interest. This article critically reflects on an educational session for pre-registration adult branch nursing students which used a variety of teaching methods to facilitate a reflective, student centred, experiential learning approach. Self assessment based on the change between two self rating scales was used to assess learning, the session itself was evaluated by students using a feedback form and through the formal assessment of teaching by a nurse tutor. This article critically evaluates the preparation, delivery and evaluation of the session, emphasising the perspective of the guest facilitator - a practicing community learning disability nurse. The conclusion reflects on key learning from the teaching experience.

Disparities in chronic conditions and health status by type of disability

PubMed Central

Horner-Johnson, Willi; Dobbertin, Konrad; Lee, Jae Chul; Andresen, Elena M.

2013-01-01

Background Prior research has established health disparities between people with and without disabilities. However, disparities within the disability population, such as those related to type of disability, have been much less studied. Objective To examine differences in chronic conditions and health status between subgroups of people with different types of disability. Methods We analyzed Medical Expenditure Panel Survey annual data files from 2002-2008. Logistic regression analyses considered disparity from three perspectives: 1) basic differences, unadjusted for other factors; 2) controlling for key demographic and health covariates; and 3) controlling for a larger set of demographic variables and socioeconomic status as well as health and access to healthcare. Results Individuals with vision, physical, cognitive, or multiple disability types fared worse than people with hearing impairment on most health outcomes. This was most consistently true for people with multiple disabilities. Even when all covariates were accounted for, people with multiple types of disability were significantly more likely (p < 0.05) than those with hearing impairment (reference group) to report every poor health outcome with the exception of BMI ≥ 25 and lung disease. Conclusions While many of the differences between disability types were reduced when controlling for other factors, some differences remained significant. This argues for a more individualized approach to understanding and preventing chronic conditions and poor health in specific disability groups. PMID:24060250

Social Perception in Children with Intellectual Disabilities: The Interpretation of Benign and Hostile Intentions

ERIC Educational Resources Information Center

Leffert, J. S.; Siperstein, G. N.; Widaman, K. F.

2010-01-01

Background: A key aspect of social perception is the interpretation of others' intentions. Children with intellectual disabilities (IDs) have difficulty interpreting benign intentions when a negative event occurs. From a cognitive processing perspective, interpreting benign intentions can be challenging because it requires integration of…

Disabled Youth: From School to Work.

ERIC Educational Resources Information Center

Organisation for Economic Cooperation and Development, Paris (France). Centre for Educational Research and Innovation.

This monograph offers an international perspective on the period of transition from school to adult and working life for young people who are disabled. It examines practices which appear to be effective in facilitating a successful transition and looks at ways in which important features of those practices might be incorporated into professional…

Portfolios as a Tool for Attitude Change.

ERIC Educational Resources Information Center

Winzer, Margret; Altieri, Elizabeth; Larsson, Victoria

2000-01-01

A course at the University of Lethbridge (Alberta) uses student portfolios of social and cultural perspectives on disabilities to challenge rural preservice teachers' attitudes toward disabilities and the philosophy of inclusion. Elements of the portfolio are described. The particular value of this method for rural preservice teachers and the…

Online Learning and Students with Disabilities: Parent Perspectives

ERIC Educational Resources Information Center

Burdette, Paula J.; Greer, Diana L.

2014-01-01

While research has been conducted on parental involvement in K-12 online learning, none of this research relates specifically to the parents of students with disabilities. Thus, researchers developed a survey around the following constructs: parental roles, instruction and assessment, communication and support from the school, and parental…

Research Productivity in Rehabilitation, Disability, and Allied Health Programs: A Focus Group Perspective on Minority-Serving Institutions

ERIC Educational Resources Information Center

Aref, Fariborz; Manyibe, Edward O.; Washington, Andre L.; Johnson, Jean; Davis, Dytisha; Eugene-Cross, Kenyotta; Moore, Cayla A.

2017-01-01

Purpose: The article outlines select individual and institutional factors that could contribute to rehabilitation, disability, and health research productivity among minority-serving institutions (MSIs; i.e., historically Black colleges/universities, Hispanic-serving institutions, and American Indian tribal colleges/universities). Method: We…

Advocacy, a Role for DD Councils.

ERIC Educational Resources Information Center

Paul, James, L., Ed.; And Others

The advocacy role of state developmental disabilities councils is examined in the monograph. It is explained that the material was gathered from a 1974 conference in Winter Park, Colorado. Topics addressed include the potential for advocacy, a personal perspective on developmental disabilities from a cerebral palsied adult, planning and evaluating…

Teaching Students with Learning Disabilities: Constructivism or Behaviorism?

ERIC Educational Resources Information Center

Steele, Marcee M.

2005-01-01

There is much controversy concerning the use of constructivist and behaviorist principles for teaching children with learning disabilities. Although many educators support the use of one paradigm exclusively, the author recommends combining ideas from both perspectives for the most effective instruction. This article includes a brief discussion of…

Disability and Diversity: New Leadership for a New Era.

ERIC Educational Resources Information Center

Walker, Sylvia, Ed.; And Others

The 21 papers in this monograph on rehabilitation of minority persons with disabilities are organized into four sections which focus on: (1) perspectives of policy and practice; (2) challenges and opportunities in rehabilitation of diverse individuals; (3) cultural diversity's challenges to service delivery; and (4) strategies for empowerment.…

Diversity, Severe Disability, and Family: A Systematic Review of the Literature

ERIC Educational Resources Information Center

Shurr, Jordan; Hollingshead, Aleksandra

2017-01-01

Understanding family challenges and perspectives are critical to effective programming and services for individuals with severe disabilities. Equally central, yet often overlooked, is the relationship between family challenges and diversity. This systematic review examined a set of peer reviewed literature published between 2002-2015 at the…

Disabilities and Inclusive Practices within Toronto Preschools

ERIC Educational Resources Information Center

Killoran, Isabel; Tymon, Dorothy; Frempong, George

2007-01-01

A current objective in Canada is a provision of childcare services for all children. This objective has not been achieved as many children, especially those with disabilities, are often denied services from publicly funded daycare centres. The authors argue that policy discussions framed from an inclusive perspective provide a better understanding…

Students with Intellectual Disability in Higher Education: Adult Service Provider Perspectives

ERIC Educational Resources Information Center

Sheppard-Jones, Kathleen; Kleinert, Harold Lawrence; Druckemiller, Wendy; Ray, Megan Kovacevich

2015-01-01

Postsecondary education (PSE) is increasingly becoming an option for students with intellectual disability (ID; Grigal & Hart, 2012). Postsecondary education offers the promise of pursuing a valued social role (that of college student), enhanced social networks, and, most significantly, increased employment options. To date, research and…

Transitions for Students with Intellectual Disability and/or Autism Spectrum Disorder: Carer and Teacher Perspectives

ERIC Educational Resources Information Center

Strnadova, Iva; Cumming, Therese M.; Danker, Joanne

2016-01-01

Schooling transitions are often challenging experiences for students with intellectual disability and/or autism spectrum disorder (ID/ASD), their families, and their teachers. Transition processes, particularly planning, can facilitate successful transitions from primary to secondary schools, and to postschool settings. Bronfenbrenner's ecological…

Family Perspectives on Integrated Employment for Adults with Intellectual and Developmental Disabilities

ERIC Educational Resources Information Center

Gilson, Carly B.; Carter, Erik W.; Bumble, Jennifer L.; McMillan, Elise D.

2018-01-01

Families are essential partners in efforts to elevate the employment outcomes of adults with intellectual and developmental disabilities (IDD). We examined the employment-related expectations, preferences, and concerns of 673 parents and other family members of adults with IDD. Participants prioritized paid integrated employment over sheltered…

A Quality Framework for Personalised Residential Supports for Adults with Developmental Disabilities

ERIC Educational Resources Information Center

Cocks, E.; Boaden, R.

2011-01-01

Background: The Personalised Residential Supports (PRS) Project provided detailed information about the nature, purposes and outcomes of PRS from the perspectives of key stakeholder groups including people with developmental disabilities, family members and service providers. Although these forms of support have developed over the past two…

Psychological Perspectives in Assessing Mathematics Learning Needs

ERIC Educational Resources Information Center

Augustyniak, Kristine; Murphy, Jacqueline; Phillips, Donna Kester

2005-01-01

While the definition of learning disabilities has been the subject of controversy for decades, the current federal classification system identifies three specific areas of deficit: reading, written language, and mathematics and maintains the presumption that the disabilities are a result of a central nervous system dysfunction. In contrast to the…

Cancer Screening in Women with Intellectual Disabilities: An Irish perspective

ERIC Educational Resources Information Center

Reidy, Mary; Denieffe, Suzanne; Foran, Sinéad

2014-01-01

In the Republic of Ireland, more than 8000 women with intellectual disabilities (IDs), aged 20 years and over, are registered for service provision. Their health needs challenge preventative health services including breast and cervical cancer screening programmes. This review explores the literature about cancer screening participation rates and…

Centres for People with Intellectual Disabilities: Attendees' Perceptions of Benefit

ERIC Educational Resources Information Center

Gajewska, Urszula; Trigg, Richard

2016-01-01

Background: Day and community learning centres aim to provide intellectually disabled (ID) people with social support, life skills and greater control over their lives. However, there is little research exploring the benefits of attendance from the perspective of attendees and whether these goals are met. Materials and methods: Unstructured…

Disability within the African Culture

ERIC Educational Resources Information Center

Eskay, M.; Onu, V. C.; Igbo, J. N.; Obiyo, N.; Ugwuanyi, L.

2012-01-01

For a long time, children with special needs were educated along with other regular children in schools. The notion of special education was a Western phenomenon and concept in Nigeria. How were children with special needs educated without special education programs? This article will provide cultural perspectives on issues of disability and care…

Using Curriculum-Based Measurements to Assess Reading: The Cultural Connections of Diverse Students with Learning Disabilities

ERIC Educational Resources Information Center

Blue, Elfreda V.; Alexander, Tammy

2009-01-01

Students with learning disabilities face real reading challenges. Research into the reading performance of culturally diverse students indicates improved reading performance for culturally diverse students when text matches students' cultural perspective. This quasiexperimental research investigates whether Caucasian and African American students…

Perceived barriers and facilitators to participation in physical activity for children with disability: a qualitative study.

PubMed

Shields, Nora; Synnot, Anneliese

2016-01-19

Children with disability engage in less physical activity compared to their typically developing peers. Our aim was to explore the barriers and facilitators to participation in physical activity for this group. Ten focus groups, involving 63 participants (23 children with disability, 20 parents of children with disability and 20 sport and recreation staff), were held to explore factors perceived as barriers and facilitators to participation in physical activity by children with disability. Data were analysed thematically by two researchers. Four themes were identified: (1) similarities and differences, (2) people make the difference, (3) one size does not fit all, and (4) communication and connections. Key facilitators identified were the need for inclusive pathways that encourage ongoing participation as children grow or as their skills develop, and for better partnerships between key stakeholders from the disability, sport, education and government sectors. Children with disabilities' need for the early attainment of motor and social skills and the integral role of their families in supporting them were considered to influence their participation in physical activity. Children with disability were thought to face additional barriers to participation compared to children with typical development including a lack of instructor skills and unwillingness to be inclusive, negative societal attitudes towards disability, and a lack of local opportunities. The perspectives gathered in this study are relevant to the many stakeholders involved in the design and implementation of effective interventions, strategies and policies to promote participation in physical activity for children with disability. We outline ten strategies for facilitating participation.

Content validation of the international classification of functioning, disability and health core set for stroke from gender perspective using a qualitative approach.

PubMed

Glässel, A; Coenen, M; Kollerits, B; Cieza, A

2014-06-01

The extended ICF Core Set for stroke is an application of the International Classification of Functioning, Disability and Health (ICF) of the World Health Organisation (WHO) with the purpose to represent the typical spectrum of functioning of persons with stroke. The objective of the study is to add evidence to the content validity of the extended ICF Core Set for stroke from persons after stroke taking into account gender perspective. A qualitative study design was conducted by using individual interviews with women and men after stroke in an in- and outpatient rehabilitation setting. The sampling followed the maximum variation strategy. Sample size was determined by saturation. Concepts from qualitative data analysis were linked to ICF categories and compared to the extended ICF Core Set for stroke. Twelve women and 12 men participated in 24 individual interviews. In total, 143 out of 166 ICF categories included in the extended ICF Core Set for stroke were confirmed (women: N.=13; men: N.=17; both genders: N.=113). Thirty-eight additional categories that are not yet included in the extended ICF Core Set for stroke were raised by women and men. This study confirms that the experience of functioning and disability after stroke shows communalities and differences for women and men. The validity of the extended ICF Core Set for stroke could be mostly confirmed, since it does not only include those areas of functioning and disability relevant to both genders but also those exclusively relevant to either women or men. Further research is needed on ICF categories not yet included in the extended ICF Core Set for stroke.

Adolescence: A Period of Transition

ERIC Educational Resources Information Center

Landmark, Leena Jo; Geye, Trina

2014-01-01

Because of the important role secondary special educators have in the transition to adulthood of adolescents with disabilities, it behooves educators to have an understanding of human development. The lifespan perspective on human development is particularly relevant to transition planning. Individuals with a lifespan perspective believe…

Parent Perspectives on Home-Based Intervention for Young Children with Developmental Disabilities: The Parent-Implemented Communication Strategies (PiCS) Project in Illinois, USA

ERIC Educational Resources Information Center

Meadan, Hedda; Stoner, Julia B.; Angell, Maureen E.

2015-01-01

Parents' perspectives on a home-based, parent-implemented social-pragmatic communication intervention for young children aged 37 to 60 months with limited expressive language are presented in this report. The researchers analyzed the perspectives of seven parent participants in the Institute of Education Sciences-funded Parent-Implemented…

Parents' Perspectives on Surf Therapy for Children with Disabilities

ERIC Educational Resources Information Center

Moore, Adam M.; Clapham, Emily D.; Deeney, Theresa A.

2018-01-01

This qualitative study was designed to understand parents' perceptions of their children's participation in an inclusive surf therapy programme in the United States. Ten parents and one caregiver were interviewed about theirs and their children's experience in the surf programme. Parent discussions centred on the child, parent/caregiver,…

Special Educators' Perceptions of State Standards in a Large, Urban School District

ERIC Educational Resources Information Center

Cramer, Elizabeth D.; Gallo, Rosalia F.

2017-01-01

The implementation of Common Core State Standards raises challenges for teachers, particularly those in urban settings and those who work with students with unique learning challenges, particularly students with disabilities. This article provides the results of a study that surveyed special education teachers' perspectives related to the…

Compromise in Collaborating with Families: Perspectives of Beginning Special Education Teachers

ERIC Educational Resources Information Center

Hansuvadha, Nat

2009-01-01

This qualitative study evaluated the belief systems and professional practice of program graduates of an early childhood special education teacher preparation program regarding collaboration with families of children with disabilities. Eleven graduates were interviewed over the course of a school year to identify perceived challenges to their…

Oral Histories of Four Urban Youth Affected by Disproportionality in Special Education

ERIC Educational Resources Information Center

Wright, Shalene R.

2012-01-01

This study uncovered some experiences and perspectives of four students of color during their educational journey through K-12 public schools as students identified with high incidence disabilities in school systems that exhibited ethnic disproportionality in special education. The participants reflected on their experiences to provide detailed…

Preschool Inclusion in the United States: A Review of Research from an Ecological Systems Perspective

ERIC Educational Resources Information Center

Odom, Samuel L.; Vitztum, Joann; Wolery, Ruth; Lieber, Joan; Sandall, Susan; Hanson, Marci J.; Beckman, Paula; Schwartz, Ilene; Horn, Eva

2004-01-01

Using an ecological systems conceptual framework proposed by Bronfenbrenner, research on the inclusion of preschool children with disabilities in programs with typically developing children was reviewed. Drawing mainly from studies conducted in the United States, research on child characteristics (biosystem), classroom practices (microsystem),…

The Impact of Coteaching on End-of-Course Test Scores

ERIC Educational Resources Information Center

Johnson, Beverly N.

2013-01-01

Coteaching is an instructional strategy that improves the achievement of students with disabilities, but few researchers examined the impact of coteaching on general-education students. Vygotsky's social-constructivist perspective of learning, the zone of proximal development, was the theoretical framework used in this research study. The…

The Closing of Laconia: From the Inside Out.

ERIC Educational Resources Information Center

Racino, Julie Ann

This case study shares the perspectives of two individuals who worked from within Laconia Developmental Services (a state institution in New Hampshire for people with developmental disabilities) to close it. One individual was institutional superintendent and the other served as a liaison officer among the state government offices, Laconia…

Disconnected Expectations: Staff, Family, and Supported Employee Perspectives about Retirement

ERIC Educational Resources Information Center

Bigby, Christine; Wilson, Nathan J.; Balandin, Susan; Stancliffe, Roger J.

2011-01-01

Background: Australia has few policies to support the transition of older people with intellectual disability from employment to retirement. This study aimed to identify the possibilities and barriers to retirement for older employees in supported employment services. Method: Five distinct participant groups discussed retirement in 6 separate…

The Transition to Kindergarten for Children with and without Disabilities: An Investigation of Parent and Teacher Concerns and Involvement

ERIC Educational Resources Information Center

Welchons, Leah Wildenger; McIntyre, Laura Lee

2015-01-01

The transition to kindergarten is regarded as a critical early childhood developmental milestone with important implications for later school outcomes. Despite its importance, few empirical studies examine kindergarten transition and fewer examine transition from the perspective of multiple stakeholders. The goal of the current study was to…

"Special Educational Needs" of the Elderly: A Trap for the Unwary? Research Study.

ERIC Educational Resources Information Center

Ageing International, 1989

1989-01-01

A British study of mainstreamed and special needs classes for older adults found that the special education approach encourages a narrow perspective of aging and an emphasis on disability. At Simon Fraser University, a certificate program for senior citizens determined that seniors like age-integrated classes and instructors need training in…

Access Issues in Adult Vocational Guidance and Counselling for People at Risk of Social Exclusion. Perspectives from Two Qualitative Research Projects.

ERIC Educational Resources Information Center

Clayton, Pamela; McGill, Paul

2000-01-01

Two studies (of 105 Scottish adults returning to study and of social exclusion and lifelong learning) identified structural barriers in adult access to guidance services: rural location, disability, single parenthood, eldercare, homelessness, criminal record, and refugee status. Solutions include publicity, partnerships, outreach, and supportive…

Exploring the Relationship between Inclusive Education and Achievement: New Perspectives

ERIC Educational Resources Information Center

Cosier, Meghan

2010-01-01

This study used Multilevel Modeling (MLM) with a sample of over 1300 students with disabilities between the ages of six and nine years old nested within 180 school districts. A sample from the Pre-Elementary Education Longitudinal Study (PEELS) dataset (Institute of Education Sciences) was used to explore the relationship between hours in general…

Curing "moral disability": brain trauma and self-control in Victorian science and fiction.

PubMed

Schillace, Brandy L

2013-12-01

While, historically, the disabled body has appeared in literature as "monstrous," burgeoning psychological theories of the Victorian period predicated an unusual shift. In a culture of sexual anxiety and fears of devolution and moral decay, the physically disabled and "weak" are portrayed as strangely free from moral corruption. Unlike the cultural link between deviance and disability witnessed in the medical literature and eugenic approach to generation, authors of narrative fiction-particularly Charles Dickens, but Wilkie Collins, Charlotte Yonge, and others as well-portray disabled characters as "purified," and trauma itself as potentially sanitizing. This present paper argues that such constructions were made possible by developments in the treatment of insanity. "Curing 'Moral Disability': Brain Trauma and Self-Control in Victorian Fiction," examines the concept of trauma-as-cure. Throughout the Victorian period, case studies on brain trauma appeared in widely circulated journals like the Lancet, concurrently with burgeoning theories about psychological disturbance and "moral insanity." While not widely practiced until the early twentieth century, attempts at surgical "cures" aroused curiosity and speculation-the traumatic event that could free sufferers from deviance. This work provides a unique perspective on representations of disability as cure in the nineteenth century as a means of giving voice to the marginalized, disabled, and disempowered.

Perspectives on Active Video Gaming as a New Frontier in Accessible Physical Activity for Youth With Physical Disabilities

PubMed Central

Malone, Laurie A.; Fidopiastis, Cali M.; Padalabalanarayanan, Sangeetha; Thirumalai, Mohanraj; Rimmer, James H.

2016-01-01

This perspective article explores the utility of active video gaming as a means of reducing sedentary behavior and increasing physical activity among youth with physical disabilities and limitations in lower extremity function who typically are excluded from mainstream exercise options. Youth with physical disabilities are disproportionately affected by health problems that result from sedentary behavior, lack of physical activity, and low fitness levels. Physical, programmatic, and attitudinal barriers have a synergistic and compounded impact on youths' ability to participate in physical activity. A recent health and wellness task force recommendation from the American Physical Therapy Association's Section on Pediatrics supports analyzing individualized health behaviors and preferences that are designed to improve fitness, physical activity, and participation in pediatric rehabilitation. This recommendation represents an opportunity to explore nontraditional options to maximize effectiveness and sustainability of pediatric rehabilitation techniques for youth with disabilities who could best benefit from customized programming. One new frontier in promoting physical activity and addressing common physical activity barriers for youth with physical disabilities is active video games (AVGs), which have received growing attention as a promising strategy for promoting health and fitness in children with and without disabilities. The purpose of this article is to discuss the potential for AVGs as an accessible option to increase physical activity participation for youth with physical disabilities and limitations in lower extremity function. A conceptual model on the use of AVGs to increase physical activity participation for youth with physical disabilities is introduced, and future research potential is discussed, including a development project for game controller adaptations within the Rehabilitation Engineering Research Center on Interactive Exercise Technologies and Exercise Physiology for People With Disabilities (RERC RecTech) at the University of Alabama at Birmingham (UAB)/Lakeshore Foundation Research Collaborative. PMID:26316530

Longitudinal changes in sickness absence and disability pension, and associations between disability pension and disease-specific and contextual factors and functioning, in people with multiple sclerosis.

PubMed

Chruzander, Charlotte; Tinghög, Petter; Ytterberg, Charlotte; Widén Holmqvist, Lotta; Alexanderson, Kristina; Hillert, Jan; Johansson, Sverker

2016-08-15

Even though it is well known that disability due to MS is highly associated with employment status, the long-term longitudinal perspective on sickness absence and disability pension over the MS trajectory is lacking. In addition, further knowledge of risk factors for future disability pension is needed. To explore long-term longitudinal changes in the prevalence of sickness absence and disability pension in people with MS (PwMS), as well as to explore associations between disease-specific factors, contextual factors and functioning, and the outcome of future full-time disability pension. A prospective, population-based survival cohort study, with a nine year follow-up, including 114 PwMS was conducted by combining face-to-face collected data and register-based data. The prevalence of full-time disability pension increased from 20% to 50%, however 24% of the PwMS had no disability pension at all at end of follow-up. Sex, age, disease severity and impaired manual dexterity were associated with future full-time disability pension. The large increase in prevalence of PwMS on full-time disability pension during the MS trajectory, calls for the development and implementation of evidence-based interventions, aiming at keeping PwMS in the work force. Modifiable factors, such as manual dexterity should be targeted in such interventions. Copyright © 2016 Elsevier B.V. All rights reserved.

Methodological and clinical implications of a three-in-one Russian doll design for tracking health trajectories and improving health and function through innovative exercise treatments in adults with disability.

PubMed

Rimmer, James H; Herman, Cassandra; Wingo, Brooks; Fontaine, Kevin; Mehta, Tapan

2018-03-14

Hybrid research designs targeting adults with neurologic disability are critical for improving the efficiency of models that can identify, track and intervene on identified health issues. Our Russian doll framework encompasses three study phases. Phase 1 involves prospectively following a cohort of participants with disability to examine the relationships between rates of health and functional deficits (e.g., pain, fatigue, deconditioning), functional measures (e.g., cardiorespiratory endurance, strength, balance), and environmental and sociocultural factors. In Phase 2, eligible participants with neurologic disability from Phase 1 (in our example, individuals with multiple sclerosis) are screened and randomized to a clinical exercise efficacy trial. In Phase 3, study participants are enrolled in a home-based teleexercise trial to test the feasibility and replicability of delivering the clinical exercise study in the home. This unique three-in-one Russian doll framework serves as a foundation for informing and guiding researchers and clinicians in treating certain health and functional deficits in people with neurologic disability using exercise as a primary treatment modality in both the clinical and home settings. It offers a unique perspective for understanding the critical issues of functioning, health maintenance and quality of life for people with neurologic disability across a longitudinal framework. Study 2 ClinicalTrials.gov identifier NCT02533882 (retroactively registered 03/06/2015). Study 3 ClinicalTrials.gov identifier NCT03108950 (retroactively registered 04/05/2017).

EXETRA Perspectives: Concepts in Therapeutic Recreation.

ERIC Educational Resources Information Center

Neal, Larry L.; Edginton, Christopher R.

Fifteen papers address issues in therapeutic recreation for disabled persons from the perspectives of practitioners, educators, and students. The following papers are presented. "Therapeutic Recreation Service: The Past and Challenging Present" (H. Sessoms); "Therapeutic Recreatiion in an Era of Limits: A Crisis...A Challenge... An Opportunity"…

Moving from reclusion to partial freedom: the experience of family caregivers for disabled elderly persons assisted in a day care center.

PubMed

Bocchi, Silvia Cristina Mangini; Cano, Karen Cristina Urtado; Baltieri, Lilian; Godoy, Daniele Cristina; Spiri, Wilza Carla; Juliani, Carmen Maria Casquel Monti

2010-09-01

This study aimed at understanding the interactional experience between family caregivers and disabled elderly persons supported in a Day Care Center according to the caregiver's perspective. It also aimed at developing a representative theoretical model for the events experienced by such caregiver. The Grounded Theory was used as methodological framework whereas Interactional Symbolism served as the theoretical framework. Observation and interviews were used for data collection. The following phenomenon arose from the results: feeling of support by the Day Care Center, by the strength of the bond with the elderly and by spirituality in order to continue playing the challenging role of a family caregiver for a disabled elderly person. The study made possible to understand that, among these three supporting cornerstones for coping with the burden generated by the family caregiver role, the care model promoted by the Day Care Center was the intervenient variable in the process of improving the quality of life of the family caregiver-disabled elderly person binomial. This allowed the identification of the main category--moving from reclusion to partial freedom: the experience of family caregivers for disabled elderly persons assisted in a Day Care Center.

Who Needs to Fit In? Who Gets to Stand Out? Communication Technologies Including Brain-Machine Interfaces Revealed from the Perspectives of Special Education School Teachers through an Ableism Lens

ERIC Educational Resources Information Center

Diep, Lucy; Wolbring, Gregor

2013-01-01

Some new and envisioned technologies such as brain machine interfaces (BMI) that are being developed initially for people with disabilities, but whose use can also be expanded to the general public have the potential to change body ability expectations of disabled and non-disabled people beyond the species-typical. The ways in which this dynamic…

Work stress and cardiovascular disease: a life course perspective.

PubMed

Li, Jian; Loerbroks, Adrian; Bosma, Hans; Angerer, Peter

2016-05-25

Individuals in employment experience stress at work, and numerous epidemiological studies have documented its negative health effects, particularly on cardiovascular disease (CVD). Although evidence on the various interrelationships between work stress and CVD has been accumulated, those observations have not yet been conceptualized in terms of a life course perspective. Using the chain of risk model, we would like to propose a theoretical model incorporating six steps: (1) work stress increases the risk of incident CVD in healthy workers. (2) Among those whose work ability is not fully and permanently damaged, work stress acts as a determinant of the process of return to work after CVD onset. (3) CVD patients experience higher work stress after return to work. (4) Work stress increases the risk of recurrent CVD in workers with prior CVD. (5) CVD patients who fully lose their work ability transit to disability retirement. (6) Disability retirees due to CVD have an elevated risk of CVD mortality. The life course perspective might facilitate an in-depth understanding of the diverse interrelationships between work stress and CVD, thereby leading to work stress management interventions at each period of the lifespan and three-level prevention of CVD.

Compression of morbidity 1980-2011: a focused review of paradigms and progress.

PubMed

Fries, James F; Bruce, Bonnie; Chakravarty, Eliza

2011-01-01

The Compression of Morbidity hypothesis-positing that the age of onset of chronic illness may be postponed more than the age at death and squeezing most of the morbidity in life into a shorter period with less lifetime disability-was introduced by our group in 1980. This paper is focused upon the evolution of the concept, the controversies and responses, the supportive multidisciplinary science, and the evolving lines of evidence that establish proof of concept. We summarize data from 20-year prospective longitudinal studies of lifestyle progression of disability, national population studies of trends in disability, and randomized controlled trials of risk factor reduction with life-style-based "healthy aging" interventions. From the perspective of this influential and broadly cited paradigm, we review its current history, the development of a theoretical structure for healthy aging, and the challenges to develop coherent health policies directed at reduction in morbidity.

Perspectives on Applications of Technology in the Field of Learning Disabilities

ERIC Educational Resources Information Center

Blackhurst, A. Edward

2005-01-01

This article describes how concepts related to the use of technology in education have evolved with particular emphasis on their implications for people with learning disabilities (LD). The article reflects the personal perceptions of the author as a "participant observer" in a variety of activities related to technology applications in special…

Evaluation and Information in the Field of Technical Aids for Disabled Persons: An European Perspective. Monograph Number Thirty-Five.

ERIC Educational Resources Information Center

Pedotti, Antonio, Ed.; Andrich, Renzo, Ed.

The monograph provides information on evaluation of technical aids, wheelchairs, and computerized information systems for disabled persons. The first chapter provides a general overview of actions of the European Community concerning technical aids evaluation, information on the "Concerted Action" program called "Evaluation of…

Early Childhood Intervention in China from the Families' Perspective

ERIC Educational Resources Information Center

Zheng, Yuzhu; Maude, Susan P.; Brotherson, Mary Jane; Merritts, Ashley

2016-01-01

Research highlights the importance of early childhood intervention (ECI) for children with disabilities, and there is an increasing interest in China with respect to research on ECI. However, little research exists exploring the experience of families of young children with disabilities receiving ECI services and supports in China. The purpose of…

Students with Disabilities' Perspectives of STEM Content and Careers

ERIC Educational Resources Information Center

Davis, Kimberly E. Bryant

2014-01-01

The current global economy has led to an increase in the need for workers in the fields of science, technology, engineering, and mathematics (STEM). Underrepresented populations, such as students with disabilities, are being considered as one way meet the STEM workforce shortages. In order to increase students' participation in STEM careers, it…