Livneh, Hanoch; Wilson, Lisa M.; Pullo, Robert E.
Group counseling has been used with a wide range of people who have physical disorders including psychosomatic conditions, sensory (visual and auditory) disabilities, neuromuscular and orthopedic impairments, and life-threatening diseases. The needs and concerns of these people can be generally delineated as physical, psychological, social,…
Carpenter, Christine; Readman, Tim
The purpose of this qualitative study was to explore the literacy difficulties experienced by people with physical disabilities, and the factors that prevent them from improving their literacy skills. Semistructured interviews were conducted with 25 individuals with physical disabilities who defined themselves as having literacy difficulties. Four…
van der Ploeg, Hidde P; van der Beek, Allard J; van der Woude, Luc H V; van Mechelen, Willem
The promotion of a physically active lifestyle has become an important issue in health policy in first-world countries. A physically active lifestyle is accompanied by several fitness and health benefits. Individuals with a disability can particularly benefit from an active lifestyle: not only does it reduce the risk for secondary health problems, but all levels of functioning can be influenced positively. The objective of this article is to propose a conceptual model that describes the relationships between physical activity behaviour, its determinants and functioning of people with a disability. The literature was systematically searched for articles considering physical activity and disability, and models relating both topics were looked for in particular. No models were found relating physical activity behaviour, its determinants and functioning in people with a disability. Consequently, a new model, the Physical Activity for people with a Disability (PAD) model, was constructed based on existing models of disability and models of determinants of physical activity behaviour. The starting point was the new WHO Model of Functioning and Disability, part of the International Classification of Functioning, Disability and Health (ICF), which describes the multidimensional aspects of functioning and disability. Physical activity behaviour and its determinants were integrated into the ICF model. The factors determining physical activity were based mainly on those used in the Attitude, Social influence and self-Efficacy (ASE) model. The proposed model can be used as a theoretical framework for future interventions and research on physical activity promotion in the population of people with a disability. The model currently forms the theoretical basis for a large physical activity promotion trial in ten Dutch rehabilitation centres.
de Guzman, Allan B.; Shim, Hye-Eun; Sia, Charmin Kathleen M.; Siazon, Wilbart Harvey S.; Sibal, Mary Joyce Ann P.; Siglos, Joanna Brigitte Lorraine C.; Simeon, Francis Marlo C.
Ego integrity, the last developmental task in Erikson's psychological theory, develops naturally among older people. However, the presence of loss-like physical disability-can considerably affect the quality of life, interactions, and well being of older adults. Hence, older people with physical disabilities need more assistance in accomplishing…
Nguyen, Toan; Garrett, Rob; Downing, Andrew; Walker, Lloyd; Hobbs, David
People with a disability do not have equitable access to the modern telecommunication medium. Many experience difficulty typing, handling the phone, dialing, or answering calls. For those who are unable to speak, the only option is to type messages using whatever functional control site exists on their body. The provision of accessible mobile phones for people with disabilities can significantly improve their quality of life through an increased range of accessible activities, and mobile phones can improve their independence, safety, security and self-esteem. This research was aimed at providing practical ways for people with a disability to participate in the extensive community of home and mobile phone users. The outcomes of 10 participants taking part in the evaluation and trial of off-the-shelf telecommunication options are presented. Nine out of 10 participants showed high to very high results in terms of their overall performance and satisfaction with the use of the telecommunication equipment provided. With the processes and support covering equipment matching, education, training, and delivery, current off-the-shelf solutions can help people with disabilities to effectively communicate with other members of our society and to access the same range of information systems and services enjoyed by able-bodied members of the community.
Nguyen, Toan; Garrett, Rob; Downing, Andrew; Walker, Lloyd; Hobbs, David
People with a disability do not have equitable access to the modern telecommunication medium. Many experience difficulty typing, handling the phone, dialing, or answering calls. For those who are unable to speak, the only option is to type messages using whatever functional control site exists on their body. The provision of accessible mobile…
Jaarsma, E A; Dijkstra, P U; Geertzen, J H B; Dekker, R
Most people with physical disabilities do not participate in sports regularly, which could increase the chances of developing secondary health conditions. Therefore, knowledge about barriers to and facilitators of sports participation is needed. Barriers and facilitators for people with physical disabilities other than amputation or spinal cord injuries (SCI) are unknown. The aim of this study was to provide an overview of the literature focusing on barriers to and facilitators of sports participation for all people with various physical disabilities. Four databases were searched using MeSH terms and free texts up to April 2012. The inclusion criteria were articles focusing on people with physical disabilities, sports and barriers and/or facilitators. The exclusion criteria were articles solely focusing on people with cognitive disabilities, sensory impairments or disabilities related to a recent organ transplant or similar condition. Fifty-two articles were included in this review, with 27 focusing on people with SCI. Personal barriers were disability and health; environmental barriers were lack of facilities, transport and difficulties with accessibility. Personal facilitators were fun and health, and the environmental facilitator was social contacts. Experiencing barriers to and facilitators of sports participation depends on age and type of disability and should be considered when advising people about sports. The extent of sports participation for people with physical disabilities also increases with the selection of the most appropriate sport.
Mulligan, Hilda; Fjellman-Wiklund, Anncristine; Hale, Leigh; Thomas, David; Häger-Ross, Charlotte
Both New Zealand and Sweden have health and disability policies that promote recreational exercise within society for people with disability. Despite these policies, levels of physical activity by people with disability in these countries are low. Physiotherapists are equipped to assist people with disabling conditions into physical activity. This qualitative study explored the perspectives and experiences of physiotherapists in New Zealand and Sweden toward promoting physically active recreation for adults with chronic neurological conditions. Nine physiotherapists who worked with adults with neurological disability in a range of long-term rehabilitation and community (home) health services were interviewed and the data analysed for themes. The physiotherapists described innovative and resourceful expertise to assist patients to be physically active. However, they perceived a lack of support for their work from within the health system and a lack of knowledge of disability issues within the recreational arena, both of which they perceived hindered their promotion of physical activity for people with neurological disability. Physiotherapists feel unable to fully support health and disability policies for the promotion of physically active recreation for people with neurological conditions, because of perceived constraints from within the recreational arena and their own health systems. If these constraints were addressed, then physiotherapists could be better agents to promote physical activity for people with neurological conditions.
Jalayondeja, Chutima; Jalayondeja, Wattana; Suttiwong, Jattuporn; Sullivan, Patricia E; Nilanthi, Deepika L H K
Physical activity (PA) can improve health and quality of life (QOL) of healthy people. However, the association between PA and QOL among people with physical disability (PWPD) is inconclusive. This study was conducted to determine the relationships between factors including intensity of PA, activitiy in daily living (ADL), stress, and self-esteem that influences self-reported QOL among PWPD. The relationships were further explored using the in-depth interview method to find out whether the intensity of PA, stress, and self-esteem are related to QOL perception in PWPD. One hundred sixty PWPD aged 18-48 years who studied at a vocational school were enrolled. A mixed method case study was conducted: cross-sectional survey and in-depth interview. Five questionnaires, including the Barthel Index, Perceived Stress Scale (PSS), Rosenberg Self-Esteem Scale (RSES), and Physical Activity Scale for Individuals with Physical Disabilities (PASIPD) were distributed. QOL was measured using the WHOQOL_BREF. Multiple linear regression was used to determine factors for QOL prediction. For in-depth interview, ten persons from each group (poor-to-fair and good QOL) volunteered to explore further about life satisfaction related to physical disability. One hundred forty-six (91%) subjects completed all questionnaires. One hundred fourteen (77%) reported poor-to-fair QOL. QOL was explained by self-esteem and ADL (adjusted R² 34.7%, p < 0.001) after adjusted for age, stress, and PA. Although PA could not explain QOL in PWPD, good QOL reported high activities (28.40 ± 30.20 MET hour/day) compared to poor and fair QOL (17.94 ± 22.06 and 21.70 ± 17.75 MET hour/day). Those who had good QOL reported that they were proud to be independent and did not feel inferior. PA participation among people with disabilities should therefore be encouraged.
Rimmer, James H.; Braddock, David
Very little effort has been devoted to developing health promotion programs for people with physical, cognitive, and sensory disabilities. Such programs must be developed with full recognition of limitations caused by both the primary and secondary disabilities. The paper describes three major areas of health promotion and their relationship to…
Escobar-Viera, César G; Jones, Patrice D; Schumacher, Jessica R; Hall, Allyson G
People with disability may be at risk of developing diseases due to physical inactivity; social support from family and friends is positively related to engaging in regular physical activity. We compared the association between living alone and engagement in physical activity among people with and without disability in Florida. We used multivariate logistical regression to analyze 2009 Florida Behavioral Risk Factor Surveillance System data (n = 10,902) to assess differences in physical activity in disability levels for respondents who lived alone versus those who did not. Respondents with a disability were less likely to engage in physical activity than were people without a disability, regardless of disability type, and the lowest rates of engaging in physical activity were found for people with disability who lived alone. Public health efforts should consider the role of household composition when targeting physical activity interventions among people with disability.
Wu, Chia-Ling; Lin, Jin-Ding; Hu, Jung; Yen, Chia-Feng; Yen, Cheng-Tung; Chou, Yu-Lan; Wu, Po-Hsun
Little information is available on the provision of physical fitness and intervention program among people with intellectual disabilities. The aim of this study is to provide information of examining the effectiveness of healthy physical fitness programs on people with intellectual disabilities living in a disability institution. There were 146…
de Winter, C. F.; Jansen, A. A. C.; Evenhuis, H. M.
Background: Challenging behaviour is a major problem among people with intellectual disabilities. Physical factors may be an important cause. The aim of the present systematic review was to determine the physical conditions associated with challenging behaviour. Methods: A literature search was conducted in PubMed and the Cochrane systematic…
People with intellectual disability can be supported by staff encouraging their skills in communication and in physical tasks. In a qualitative study, I used video evidence from a residential home and from 2 garden therapy services to argue that physical tasks are structurally more likely to result in successful performance (and corresponding…
People with intellectual disability can be supported by staff encouraging their skills in communication and in physical tasks. In a qualitative study, I used video evidence from a residential home and from 2 garden therapy services to argue that physical tasks are structurally more likely to result in successful performance (and corresponding positive assessment), whereas verbal tasks tend to result in failure (and corresponding correction and unsatisfactory interaction). I suggested 7 distinguishing characteristics of the 2 kinds of task and briefly discussed the policy implications for supporting people with intellectual disability.
Fawcett, S B; White, G W; Balcazar, F E; Suarez-Balcazar, Y; Mathews, R M; Paine-Andrews, A; Seekins, T; Smith, J F
When people with disabilities, ethnic minorities, older adults, women, and others lack power, they usually experience adverse conditions disproportionate to other members of society. Empowerment--the process by which people gain some control over valued events, outcomes, and resources--is an important construct for understanding and improving the lives of people of marginal status. This manuscript presents a contextual-behavioral model of empowerment and its application in collaborative research with people with physical disabilities. The eight case studies illustrate 18 tactics for promoting empowerment that flow from the model. The case studies show the use of different combinations of empowerment tactics in a variety of contexts: (a) setting improvement agendas from the perspective of people with disabilities, (b) enforcing ordinances that preserve access to parking spaces designated for people with disabilities, (c) enabling access to homes through housing modifications, (d) enhancing support available through mutual-aid groups, (e) developing skills for recruiting mentors, (f) promoting self-directed behavior change with personal and health concerns, (g) enhancing skills for personal self-advocacy, and (h) building the capacities of groups of people with disabilities for systems advocacy. Finally, we discuss issues that may contribute to research and action related to empowerment.
Smith, Ralph W.
Examines research on sport and physical activity for individuals with physical disabilities, focusing on psychosocial characteristics of participants, physiological impacts of participation, and performance enhancement. With the advent of the Americans with Disabilities Act (1990), such research has relevance for all recreation professionals. (SM)
Luiselli, James K.
Background: This review describes procedures to reduce and eliminate physical restraint of people with intellectual disability. One approach is to assess antecedent conditions associated with restraint and change them so that they no longer produce restraint-provoking behaviour. A second approach is to decrease the duration of restraint by…
Moran, Thomas Eugene; Taliaferro, Andrea R.; Pate, Joshua R.
Community-based physical activity programs for people with disabilities have barriers that are unique to their program leader qualifications and the population they serve. Moran and Block (2010) argued that there is a need for practical strategies that are easy for communities to implement, maximize resources, and minimize the impact of barriers…
McGill, Peter; Murphy, Glynis; Kelly-Pike, Amanda
Background: The use of physical intervention (PI) with people with intellectual disabilities continues to cause concern. This study sought to clarify the frequency and circumstances of PI use and gather data on the characteristics of individuals subject to PI. Method: Data on individuals subject to PI were gathered by postal questionnaire…
Borrelli, Belinda; Busch, Andrew M.; Trotter, David RM
Purpose/Objective People with mobility impairments (MIs) have higher smoking rates than the general population. We evaluated the use of psychosocial and pharmacological methods to quit smoking and readiness to quit smoking in this population in a cross-sectional study. Research Method/Design Current and former smokers with MIs who needed equipment to ambulate (e.g. cane, wheelchair; N=152, 53.3% female, 86.2% current smokers) were recruited from the community and interviewed by telephone regarding their lifetime use of various quit methods and readiness to quit smoking. Results Results indicated that 57.3% reported a quit attempt in the past year, and 62% and 88.4% were planning on quitting in the next 30 days and six months, respectively. A minority of smokers with MIs reported using any type of counseling (5.3%; 3.3% in person counseling and 2.6% phone counseling) or tablet medication (8.6%); 75% had made a “cold turkey” quit attempt (e.g., without any assistance). 36.8% and 19.7% reported using the nicotine patch and gum respectively. Regression analyses indicated that greater nicotine dependence was associated with lower use of psychosocial treatments (p<.05), greater education was associated with greater tablet medication use (p=.051), and higher income was associated with both greater nicotine replacement therapy (NRT) and tablet medication use (p<.05). Minorities with MIs were significantly less likely to use NRT than non-Hispanic whites (p<.05). Conclusions Individuals with MIs are motivated to quit smoking but under-utilize some empirically validated cessation treatment options. PMID:23437992
Boddy, Lynne M.; Downs, Samantha J.; Knowles, Zoe R.; Fairclough, Stuart J.
The benefits of physical activity and active play for children and young people are well established. However, there is a lack of physical activity research involving children and young people with intellectual disabilities. This study investigated habitual physical activity and recess play behaviour in 70 5- to 15-year-old participants with…
Wu, Chia-Ling; Lin, Jin-Ding; Hu, Jung; Yen, Chia-Feng; Yen, Cheng-Tung; Chou, Yu-Lan; Wu, Po-Hsun
Little information is available on the provision of physical fitness and intervention program among people with intellectual disabilities. The aim of this study is to provide information of examining the effectiveness of healthy physical fitness programs on people with intellectual disabilities living in a disability institution. There were 146 participants with intellectual disabilities (age 19-67 years) were recruited in the study. We collected information on disability condition (type and level), height, weight, BMI, and physical fitness status (includes V-shape sit and reach test, sit-up 30s, sit-up 60s, and shuttle run) at the beginning and 6 months later of the program intervention. The results show that there were statistical decreases in individual's weight, BMI score, BMI category, and positive improvement in V-shape sit and reach test, sit-up in 30s and 60s tests after 6-month interventions. However, the shuttle run test did not improve at the post-test among people with intellectual disabilities. The results also showed that the mild disability level group has the highest effectiveness on the healthy fitness program on decreasing body weight. Generally speaking, the preliminary study found the healthy exercise program has positive fitness effects on people with intellectual disabilities. To maximize the benefits of regular physical activity on people with ID, there is a need to evaluate the long-term effect of the intervention program and then to initiate the healthy exercise strategies in institution for this group of people.
Barlow, Julie; Wright, Chris; Cullen, Lesley
Study sought to develop and conduct preliminary testing of the psychometric properties of a job-seeking self-efficacy (JSS) scale that reflected the experiences of people with physical disabilities. Greater job seeking self-efficacy and perceived ability to manage disability at interview were associated with more positive psychological well-being.…
Pawłowska-Cyprysiak, Karolina; Konarska, Maria; Zołnierczyk-Zreda, Dorota
The aim of this study was to assess self-perceived quality of life of people with physical disabilities from the perspective of work. The following tools were used in the study: a personal questionnaire, an SF-36v2 questionnaire, an I-E Scale at Work and a Polish adaptation of the Ferrans and Powers Quality of Life Index. The study involved 426 disabled persons aged 18-65. It demonstrated that quality of life depends, to a large extent, on factors such as age and labour force participation. Duration of looking for work had a significant influence on the satisfaction from the psychological perspective and on the perception of general health. For the respondents who were unemployed and not looking for work, quality of life decreased with increased duration of professional inactivity.
Jamieson, Margaret; Peterson, John
For a number of years, studies have reported that people with disabilities have lower work force participation rates than the general public. One factor may be a lack of transitional, vocational programs for young people with disabilities. This digest describes "Thresholds," a career development program created with a basis on the unique…
Cartwright, Luke; Reid, Marie; Hammersley, Richard; Walley, Robert M.
Background: The prevalence of obesity, inactivity and related morbidity and mortality is higher amongst people with intellectual disabilities than in the population in general, an issue of global concern. This research examined the perspectives of people with intellectual disabilities and their carers, on exercise and activity. Materials and…
Holanda, Cristina Marques de Almeida; De Andrade, Fabienne Louise Juvêncio Paes; Bezerra, Maria Aparecida; Nascimento, João Paulo da Silva; Neves, Robson da Fonseca; Alves, Simone Bezerra; Ribeiro, Kátia Suely Queiroz Silva
This study seeks to identify the formation of social support networks of people with physical disabilities, and how these networks can help facilitate access to health services and promote social inclusion. It is a cross-sectional study, with data collected via a form applied to physically disabled persons over eighteen years of age registered with the Family Health Teams of the municipal district of João Pessoa in the state of Paraíba. It was observed that the support networks of these individuals predominantly consist of family members (parents, siblings, children, spouses) and people outside the family (friends and neighbors). However, 50% of the interviewees declared that they could not count on any support from outside the family. It was observed that the support network contributes to access to the services and participation in social groups. However, reduced social inclusion was detected, due to locomotion difficulties, this being the main barrier to social interaction. Among those individuals who began to interact in society, the part played by social support was fundamental.
Shih, Ching-Hsiang; Chen, Ling-Che; Shih, Ching-Tien
The latest researches have adopted software technology to modify the Nintendo Wii Balance Board functionality and used it to enable two people with developmental disabilities to actively perform physical activities. This study extended the latest research of the Wii Balance Board application to assess whether four people (two groups) with…
Jankowicz-Szymanska, A; Mikolajczyk, E; Wojtanowski, W
Intellectual disability affects all spheres of people's lives who suffer from it. It lowers the level of intellectual functioning, often stigmatizes, characteristically changing features, and decreases motor performance. Unfortunately, modern medicine cannot cure intellectual disability; however, there is a chance to improve the quality of life of people with mental retardation by means of physical exercises and by enhancing coordination, the quality of gait and efficiency in performing everyday activities. This paper deals with observations of static balance in 40 young females and males with mild Down syndrome, out of which 20 were subjected to a three-month sensorimotor training programme. The participants performed exercises with rehabilitation balls and air pillows twice a week, and the remaining persons constituted a control group. The balance platform test conducted at the beginning of the experiment revealed that the level of static one-legged balance was similar in both groups. A significant difference was noted in the length of the path of the general centre of gravity (COG) and the time frame in which the vertical projection of COG remained within the 13 mm radius circle, between the result of the test conducted under visual control and with the eyes closed, both in the group of the participants performing exercises and the ones who did not do them. After the training sessions the results of both tests improved in the group of the persons subjected to the training programme, however differences between the groups were not statistically significant, apart from the comparison of the time of keeping COG within the 13 mm radius circle at the beginning and at the end of the experiment by the participants who were physically active. Our results lead to a conclusion that exercises with the use of unstable surfaces improve deep sensibility in people with mild mental retardation.
Jankowicz-Szymanska, A.; Mikolajczyk, E.; Wojtanowski, W.
Intellectual disability affects all spheres of people's lives who suffer from it. It lowers the level of intellectual functioning, often stigmatizes, characteristically changing features, and decreases motor performance. Unfortunately, modern medicine cannot cure intellectual disability; however, there is a chance to improve the quality of life of…
Winkle, Melissa; Crowe, Terry K; Hendrix, Ingrid
Occupational therapists have recognized the benefits that service dogs can provide people with disabilities. There are many anecdotal publications extolling the benefits of working with service dogs, but few rigorous studies exist to provide the evidence of the usefulness of this type of assistive technology option. This systematic review evaluates the published research that supports the use of service dogs for people with mobility-related physical disabilities. Articles were identified by computerized search of PubMed, CINAHL, PsycINFO, OT Seeker, the Cochrane Database of Systematic Reviews, SportDiscus, Education Research Complete, Public Administration Abstracts, Web of Knowledge and Academic Search Premier databases with no date range specified. The keywords used in the search included disabled persons, assistance dogs or service dogs and mobility impairments. The reference lists of the research papers were checked as was the personal citation database of the lead author. Twelve studies met the inclusion criteria and whereas the findings are promising, they are inconclusive and limited because of the level of evidence, which included one Level I, six Level III, four Level IV and one Level V. All of the studies reviewed had research design quality concerns including small participant sizes, poor descriptions of the interventions, outcome measures with minimal psychometrics and lack of power calculations. Findings indicated three major themes including social/participation, functional and psychological outcomes; all of which are areas in the occupational therapy scope of practice. Occupational therapists may play a critical role in referral, assessment, assisting clients and consulting with training organizations before, during and after the service dog placement process. In order for health care professionals to have confidence in recommending this type of assistive technology, the evidence to support such decisions must be strengthened.
... more information, please see the U.S. Department of Justice's Commonly Asked Questions About Child Care Centers and ... land grant universities and various nonprofit disability services organizations. Assistance is available to people working on small ...
Nguyen, Toan; Garrett, Rob; Downing, Andrew; Walker, Lloyd; Hobbs, David
People with a disability do not have equitable access to the modern telecommunication medium. Many experience difficulty typing, handling the phone, dialling or answering calls. For those who are unable to speak, the only option is to type messages using whatever functional control site exists on their body. The provision of accessible mobile phones for people with disabilities can significantly improve their quality of life through an increased range of accessible activities, and can improve their independence, safety, security and self-esteem. This research was aimed at providing practical ways for people with a disability to participate in the extensive community of home and mobile phone users. The outcomes of ten participants taking part in the evaluation and trial of off-the-shelf telecommunication options are presented. Nine out of ten participants showed high to very high results in terms of their overall performance and satisfaction with the use of the telecommunication equipment provided. With the right policies, processes and support through equipment matching, education, training and delivery, current off-the-shelf solutions can help people with disabilities to effectively communicate with other members of our society and to access the same range of information systems and services enjoyed by able-bodied members of the community.
Antle, Beverley J.
Having a positive sense of self is associated with success for children and adults, with and without disabilities. This article reports on a cross-sectional study examining the correlates of global self-worth for 85 young people (ages eight to 23) with spina bifida (a condition present at birth) or spinal cord injury (an acquired condition).…
Gil-Monte, Pedro R; Olivares Faúndez, Víctor E
While the most commonly employed burnout measure has been the Maslach Burnout Inventory (MBI), researchers have been troubled by some of the psychometric limitations of this instrument. The aim of this study was to analyze the psychometric properties of the "Spanish Burnout Inventory" (SBI). The psychometric properties were analysed with data from a sample of 277 Chilean professionals working to physical disabled people. The psychometric properties of the SBI were examined through the following analyses: confirmatory factor analysis, reliability Cronbach's alpha, and concurrent validity with the MBI. The hypothesized four factor model obtained an adequate data fit for the sample (chi2(164) = 285.32, p < .001, GFI = .96, RMSEA = .052, NNFI .93, CFI = .94). Results confirmed the hypothesis formulated. The Cronbach's alpha coefficient was higher than .70 for the four scales of the instruments. Results supported the concurrent validity with the MBI. As a whole, the results of these study provided evidence on the adequate psychometric properties of the SBI for the study of burnout in the Chilean cultural context.
Hutzler, Yeshayahu; Chacham-Guber, Anat; Reiter, Shunit
The purpose of this study was to examine the impact of participation in different sport modalities on quality of life (QOL) and perceived social competence (PSC) in young people with physical disability. Ninety participants (33 females and 57 males) were monitored across four conditions: competitive separate physical activity (COSPA), recreational…
Shiloh, Shoshana; Heruti, Irit; Berkovitz, Tamar
This study examined differences in attitudes toward and reactions to individuals with comparable disabilities caused by injury or illness. Participants were students and healthcare professionals randomly assigned to read one of eight vignettes constructed in a between-subjects, full-factorial design: 2 (illness/injury)× 2 (male/female)× 2 (visible/not visible). Participants completed questionnaires measuring reactions to the target person and attitudes toward people with disabilities. We found that both students and healthcare professionals expressed more positive attitudes toward persons with injury-related compared with illness-related disabilities, but that these differences were typically not expressed in reported social encounters with individual disabled persons. The effects of the illness-injury distinction were moderated by sex only among students, with the highest distancing reported from a female with an illness-related disability. Visibility of the disability triggered more social distancing among students, regardless of the injury-illness distinction. We concluded that the illness-injury distinction is a socially and psychologically significant factor.
The role of quality of care and attitude towards disability in the relationship between severity of disability and quality of life: findings from a cross-sectional survey among people with physical disability in China
Background People with physical disability (PWPD) is the largest subgroup of people with disability (PWD) in China, but few studies have been conducted among this vulnerable population. The objective of this study was to investigate the level of quality of life (QoL), self-perceived quality of care and support (QOCS), severity of disability and personal attitude towards disability among people with physical disability in China, as well as to identify how QoL can be affected by severity of disability through QOCS and personal attitude towards disability among PWPD. Methods A cross-sectional study was conducted among 1,853 PWPD in Guangzhou, China. Data were collected on participants’ QoL, QOCS, personal attitude towards disability and severity of disability. Structural equation modeling was used to examine the effects of the other variables on QoL. Results Even with a mild disability (mean score:1.72), relatively low levels of QoL (mean score: 2.65- 3.22) and QOCS (mean score: 2.95 to 3.28), as well as unfavorable personal attitude towards disability (mean score: 2.75 to 3.36) were identified among PWPD. According to SEM, we found that the influence of severity of physical disability on QoL is not only exerted directly, but is also indirectly through QOCS and their personal attitudes towards disability, with QOCS playing a more important mediating role than PWPD’s attitudes towards their own disability. Conclusions Unfavorable health status was identified among PWPD in China. Focusing on improvement of assistance and care services has the potential to substantially improve PWPD’s QoL. Further research should focus on understanding the needs and their current state of health care of PWPD in China thus being able to develop better interventions for them. PMID:24559096
Jones, Peter; Kroese, Biza Stenfert
The appropriateness and justification of physical restraint procedures in secure learning disability settings is an emotive issue. This paper examines the views of service users (n = 10) from secure residential facilities who are restrained frequently. Using a semi-structured interview schedule, Service users were interviewed about their restraint…
Maring, Joyce R.; Costello, Ellen; Birkmeier, Marisa C.; Richards, Maggie; Alexander, Lisa M.
Unlike the aging population without intellectual and developmental disabilities (IDD), few standardized performance measures exist to assess physical function and risk for adverse outcomes such as nonfatal, unintentional injuries. We modified 3 selected standardized performance tools in the areas of general fitness (2-Minute Walk Test), balance…
Dagnan, Dave; Weston, Clive
Background: This study examines the relationship between the topography of challenging behaviour, subsequent attributions and emotional responses, with whether carers use physical intervention and their satisfaction with their intervention. Method: Thirty-seven carers described incidents where a person with an intellectual disability had exhibited…
Heller, Tamar; McCubbin, Jeffrey A.; Drum, Charles; Peterson, Jana
A scoping review of studies on physical activity and nutrition health promotion interventions for individuals with intellectual disabilities was conducted. Searches included MEDLINE, PsycINFO, and CINAHL databases from 1986 through July 2006. The final number included 11 articles comprising 12 studies. Generally, this review indicated some…
Kiernan, William E.; McGaughey, Martha J.; Cooperman, Paula J.; McNally, Lorraine C.
This report details the findings of a survey of supported employment directors in the 50 state vocational rehabilitation (VR) agencies, that sought to identify potential barriers to a variety of supported employment services for persons with severe physical disabilities. Key findings include: (1) 84 percent of the agencies provided services to…
Salehi, Mehrdad; Kharaz Tavakol, Hooman; Shabani, Maede; Ziaei, Tayebe
Background: Self-esteem is the value that the individuals give themselves, and sexual self-concept is also a part of individuality or sexual-self. Impairment or disability exists not only in the physical body of disabled people but also in their attitudes. Negative attitudes affect the mental health of disabled people, causing them to have lower self-esteem. Objectives: This study aimed to examine the relationship between self-esteem and sexual self-concept in people with physical-motor disabilities. Patients and Methods: This cross-sectional study was conducted on 200 random samples with physical-motor disabilities covered by Isfahan Welfare Organization in 2013. Data collection instruments were the Persian Eysenck self-esteem questionnaire, and five domains (sexual anxiety, sexual self-efficacy, sexual self-esteem, sexual fear and sexual depression) of the Persian multidimensional sexual self-concept questionnaire. Because of incomplete filling of the questionnaires, the data of 183 people were analyzed by the SPSS 16.0 software. Data were analyzed using the t-test, Man-Whitney and Kruskal-Wallis tests and Spearman correlation coefficient. Results: The mean age was 36.88 ± 8.94 years for women and 37.80 ± 10.13 for men. The mean scores of self-esteem among women and men were 15.80 ± 3.08 and 16.2 ± 2.90, respectively and there was no statistically significance difference. Comparison of the mean scores of sexual anxiety, sexual self-efficacy, sexual self-esteem, sexual fear and sexual depression among men and women showed that women scored higher than men in all domains. This difference was statistically significant in other domains except the sexual self-esteem (14.92 ± 3.61 vs. 13.56 ± 4.52) (P < 0.05). The Kruskal-Wallis test showed that except for sexual anxiety and sexual self-esteem, there was a statistical difference between other domains of people’s sexual self-concept and degree of disability (P < 0.05). Moreover, Spearman coefficient showed that
Nathanson, Jeanne H., Ed.
This newsletter issue offers six articles on employment of people with disabilities. "Employment and People with Disabilities: Challenges for the Nineties" (Frank Bowe) discusses the Americans with Disabilities Act, issues in unemployment and under-education, earnings, and implications for the Office of Special Education and Rehabilitative…
Hall, Ian; Shah, Amar; Thomson, Helen
Adherence with antipsychotic monitoring guidelines is notoriously low nationally. Without active monitoring and measures to improve metabolic abnormalities, more patients may develop related morbidity and mortality. An audit highlighted antipsychotic monitoring in this learning disability service in London did not match guideline recommendations. People with intellectual disability also experience health inequalities. Psychiatrists are well placed to provide advice and assistance that is suitable for those with complex communication, behaviour, and social needs. The QI team tested ideas to increase rates of antipsychotic reviews. The focus was the follow up monitoring of all universal measures recommended by NICE 2014, collected at 2-weekly intervals. We trialled interventions in four broad categories; Intervention 1: to make monitoring more structured and planned; Intervention 2: to increase staff and patient awareness of healthy eating and exercise programs; Intervention 3: to increase the collection of diet and exercise histories from patients; Intervention 4: to improve the uptake of blood tests. The interventions created an improvement in monitoring. There are lessons in the methodology for others carrying out similar projects. PMID:27335645
Lin, Jin-Ding; Lee, Tzong-Nan; Loh, Ching-Hui; Yen, Chia-Feng; Hsu, Shang-Wei; Wu, Jia-Ling; Tang, Chi-Chieh; Lin, Lan-Ping; Chu, Cordia M.; Wu, Sheng-Ru
Little explicit attention has been given to the generic health profile of staff working for people with intellectual disability in institutions. This study aimed to provide a profile of physical and mental health of staff working in disability welfare institutions, and to examine the possible demographic and organizational factors that explain an…
Kojima, Yoko, Ed.; And Others
The volume is intended to give readers a glimpse of the day-to-day life of disabled people in Japan. Eight brief papers present life experiences of a mentally retarded preschooler, severely disabled children, a child with muscular dystrophy, a young girl with polio living in the community, visually disabled and recovering mentally ill people…
Ortiz-Gil, Amelia; Blay, Pere; Gallego Calvente, A. Teresa; Gómez, Miquel; Guirado, José Carlos; Lanzara, Mariana; Martínez Núñez, Silvia
As we celebrate the International Year of Astronomy, we have been working on four different projects with the goal of making astronomy more accessible to people with special needs. These projects are 1) an astronomy book and web site for blind people, 2) an open source software for people with motor disabilities, 3) a planetarium program for the visually impaired and 4) educational material for intellectually disabled people.
Recreation can play an important role in the rehabilitation process for disabled persons by building self-esteem within the disabled and creating feelings of admiration and acceptance within a community. Because of the diversity of the disabled population, they have no collective identity. Participation in recreational activities can give the…
Gountromichou, C.; Kourou, A.; Kerpelis, P.
The problem of seismic safety for people with disabilities not only exists but is also urgent and of primary importance. Working towards disability equality, Earthquake Planning and Protection Organization of Greece (E.P.P.O.) has developed an educational scheme for people with disabilities in order to guide them to develop skills to protect themselves as well as to take the appropriate safety measures before, during and after an earthquake. The framework of this initiative includes a number of actions have been already undertaken, including the following: a. Recently, the main guidelines have been published to help people who have physical, cognitive, visual, or auditory disabilities to cope with a destructive earthquake. Of great importance, in case of people with disabilities, is to be prepared for the disaster, with several measures that must be taken starting today. In the pre-earthquake period, it is important that these people, in addition to other measures, do the following: - Create a Personal Support Network The Personal Support Network should be a group of at least three trustful people that can assist the disabled person to prepare for a disastrous event and to recover after it. - Complete a Personal Assessment The environment may change after a destructive earthquake. People with disabilities are encouraged to make a list of their personal needs and their resources for meeting them in a disaster environment. b. Lectures and training seminars on earthquake protection are given for students, teachers and educators in Special Schools for disabled people, mainly for informing and familiarizing them with earthquakes and with safety measures. c. Many earthquake drills have already taken place, for each disability, in order to share good practices and lessons learned to further disaster reduction and to identify gaps and challenges. The final aim of this action is all people with disabilities to be well informed and motivated towards a culture of earthquake
Beckett, Angharad E.
This article discusses findings from an Economic and Social Research Council-funded study exploring non-disabled children's ideas about disability. This represents the first in-depth sociological investigation of children's ideas about disabled people as members of wider society. Data are presented from focus group discussions with children aged…
Pérez-Cruzado, David; Cuesta-Vargas, Antonio I.
Background: People with intellectual disability have poor levels of physical activity, quality of life, fitness condition and self-efficacy and social support when they want to undertake physical activity so it is very important to improve these parameters in this population. Method: A prospective study was conducted. Data were measured before and…
Lund, Emily M.; Seekins, Tom
This study assessed the relationship between exposure to classmates with visible impairments in primary and secondary schools with later attitudes toward people with disabilities. Fifty college students (mean age = 20.28 years; 76% female) completed measures assessing the extent and quality of recalled exposure to classmates with disabilities in…
Knight, Kate Helen; Porcellato, Lorna; Tume, Lyvonne
Currently there appears to be few opportunities and little evidence of physically disabled children and young people (C&YP) participating in mainstream social activities. A qualitative review was undertaken to examine the factors affecting physically disabled C&YP (8-15 years) in the United Kingdom participating in out-of-school activities. Views and experiences were explored from the perspective of the service users and providers to assess current provision and to determine the need for future research into factors that may affect participation. Searches were conducted across eight databases, the references of the included studies were checked and the websites were searched. Studies that used a qualitative design that examined the views relating to out-of-school activities were included. Nine papers were identified, which included three peer-reviewed papers and six pieces of grey literature and pertinent government documents to include views and experiences of out-of-school activity provision. The main themes emerging from the review were the need for social inclusion, out-of-school activities run by volunteers and accessibility, with threads throughout, which require further research including parental influence, provision, training and attitudes. This review highlights the absence of the service user's voice and sheds light on the limited provision and barriers affecting participation in out-of-school activities.
Uehara, Hideyuki; Higa, Hiroki; Soken, Takashi; Namihira, Yoshinori
A mobile feeding assistive robotic arm for people with physical disabilities of the extremities has been developed in this paper. This system is composed of a robotic arm, microcontroller, and its interface. The main unit of the robotic arm can be contained in a laptop computer's briefcase. Its weight is 5kg, including two 12-V lead acid rechargeable batteries. This robotic arm can be also mounted on a wheelchair. To verify performance of the mobile robotic arm system, drinking tea task was experimentally performed by two able-bodied subjects as well as three persons suffering from muscular dystrophy. From the experimental results, it was clear that they could smoothly carry out the drinking task, and that the robotic arm could firmly grasp a commercially available 500-ml plastic bottle. The eating task was also performed by the two able-bodied subjects. The experimental results showed that they could eat porridge by using a spoon without any difficulty.
Silverman, Arielle M; Cohen, Geoffrey L
Stereotype threat, the concern about being judged in light of negative stereotypes, causes underperformance in evaluative situations. However, less is known about how coping with stereotypes can aggravate underperformance over time. We propose a model in which ongoing stereotype threat experiences threaten a person's sense of self-integrity, which in turn prompts defensive avoidance of stereotype-relevant situations, impeding growth, achievement, and well-being. We test this model in an important but understudied population: the physically disabled. In Study 1, blind adults reporting higher levels of stereotype threat reported lower self-integrity and well-being and were more likely to be unemployed and to report avoiding stereotype-threatening situations. In Study 2's field experiment, blind students in a compensatory skill-training program made more progress if they had completed a values-affirmation, an exercise that bolsters self-integrity. The findings suggest that stereotype threat poses a chronic threat to self-integrity and undermines life outcomes for people with disabilities.
Tilley, C. M.; Bruce, C. S.; Hallam, G.; Hills, A. P.
Introduction: This paper reports results of an investigation into the needs of persons with disabilities wanting to participate in the use of virtual communities. The aim was to investigate "how virtual communities for persons with long-term, severe physical disabilities can best be facilitated"? Method: A Grounded Theory approach was…
Gil, Amelia Ortiz
With this contribution we would like to share our experiences in organizing astronomical activities addressed to people with disabilities. The goal is twofold: we would like to invite all those with similar experiences to contribute to the compilation of a document to guide other astronomers who might be interested in carrying out these kind of activities aimed at groups of people with special needs. We also want to persuade public outreach officers that working with disabled people is not as difficult as it may seem at first, as long as they are provided with adequate educational material and guidelines about how to do it. The final goal is to build a repository that can be used by educators and public outreach officers as a guide when working with disabled people, specially during the International Year of Astronomy.
Enabling People with Developmental Disabilities to Actively Follow Simple Instructions and Perform Designated Physical Activities According to Simple Instructions with Nintendo Wii Balance Boards by Controlling Environmental Stimulation
Shih, Ching-Hsiang; Chung, Chiao-Chen; Shih, Ching-Tien; Chen, Ling-Che
The latest researches have adopted software technology turning the Nintendo Wii Balance Board into a high performance standing location detector. This study extended Wii Balance Board functionality to assess whether two people with developmental disabilities would be able to actively perform designated physical activities according to simple…
Standen, P. J.; Camm, C.; Battersby, S.; Brown, D. J.; Harrison, M.
Many people with intellectual disabilities also have physical difficulties which prevent them from using standard computer control devices. Custom made alternative devices for those with special needs can be expensive and the low unit turnover makes the prospect unattractive to potential manufacturers. One solution is to explore the potential of…
This study evaluated whether two people with developmental disabilities would be able to actively perform simple physical activities by controlling their favorite environmental stimulation using Nintendo Wii Balance Boards with a newly developed standing location detection program (SLDP, i.e., a new software program turning a Nintendo Wii Balance…
Ezeugwu, Victor; Klaren, Rachel E.; A. Hubbard, Elizabeth; Manns, Patricia (Trish); Motl, Robert W.
Objective Low physical activity and high sedentary behavior levels are major concerns in persons with multiple sclerosis (MS) and these differ depending on the level of mobility disability. However, the manner in which daily activity is accumulated is currently unknown in this population. Methods A secondary analysis was performed on a combined data set of persons with MS from two previous investigations of physical activity and symptomatic or quality of life outcomes in the United States over a two year period (2007–2009). Mobility disability status was determined using the Patient Determined Disease Steps (PDDS) while activity behavior was objectively monitored using an ActiGraph accelerometer for 7 days. Results Persons with MS who have mobility disability were involved in sedentary behavior, light and moderate intensity activity for 65%, 34% and 1% of the day, respectively compared to 60%, 37%, and 3%, respectively in those without mobility disability (p < 0.05). Breaks in sedentary time did not differ by mobility disability status. Compared to those without mobility disability, the average number of sedentary bouts longer than 30 min was greater in those with mobility disability (p = 0.016). Conclusion Persons with MS with mobility disability are less active, engage in more sedentary behavior and accumulate prolonged sedentary bouts. PMID:26844077
Foster, Liam; Boxall, Kathy
Background: People (with and without learning disabilities) are living longer. Demographic ageing creates challenges and the leading policy response to these challenges is "active ageing". "Active" does not just refer to the ability to be physically and economically active, but also includes ongoing social and civic engagement…
Trowsdale, Jo; Hayhow, Richard
In a dominant Western tradition that reveres cerebral learning, embodied learning approaches have received limited research attention--and less in education than other disciplines. This paper draws on previously reported empirical data from a five-year Creative Partnerships study to argue that psycho-physical theatre practice can promote embodied…
Koester, Heidi Horstmann; Arthanat, Sajay
This study systematically reviewed the research on assistive technology (AT) access interfaces used for text entry, and conducted a quantitative synthesis of text entry rates (TER) associated with common interfaces. We searched 10 databases and included studies in which: typing speed was reported in words per minute (WPM) or equivalent; the access interface was available for public use; and individuals with physical impairments were in the study population. For quantitative synthesis, we used only the TER reported for individuals with physical impairments. Studies also had to report the sample size, and the average and standard deviation for the TER data. Thirty-nine studies met the criteria for quantitative synthesis. Studies involved seven interface types: standard keyboard typing, on-screen keyboard (OSK) with cursor selection, OSK with scanning selection, automatic speech recognition (ASR), Morse code, brain-computer interface (BCI), and other. ASR, standard keyboard, cursor OSK, and scanning OSK had at least four studies and 30 subjects, with TER averaging 15.4, 12.5, 4.2, and 1.7 WPM, respectively. When combined with measurements of a particular client's text entry performance, the TER from this review can be used within an evidence-based decision-making process for selecting control interfaces.
Hutzler, Yeshayahu; Chacham-Guber, Anat; Reiter, Shunit
The purpose of this study was to examine the impact of participation in different sport modalities on quality of life (QOL) and perceived social competence (PSC) in young people with physical disability. Ninety participants (33 females and 57 males) were monitored across four conditions: competitive separate physical activity (COSPA), recreational separate physical activity (RESPA), reverse-integrated basketball activity (RIBA), and no physical activity (NOPA). QOL and PSC questionnaires were administered at the beginning and the end of the study's duration of six months. ANCOVA corrected for functional independence and gender revealed significant group effects for pre to post change values of QOL and PSC, with greater positive change in the RIBA compared to all other groups. In addition, one-way ANOVA on pre to post change values with LSD post hoc revealed significant differences. RIBA change values for QOL with 8.77%, and for PSC with 9.98% change were significantly higher (p<.001) than in all other groups (ranges -0.18 through 1.36% for QOL, and -2.31 through 2.34% for PSC). These outcomes demonstrate a favorable outcome of the RIBA on participants. Low functional ability did not constrain the effects of sport participation.
Motivating the physically handicapped individual to assist in his own rehabilitation is a complex problem. Difficulties in motivation are often based on disturbances in body image, which in turn are related both to the premorbid personality and the handicap. Treatment must be directed at the body image as well as the physical disability. Emotional disturbance following body injury should be expected and its absence is abnormal. Adequate rehabilitation entails a consideration of the effect of the rehabilitation process on the disabled person. The patient's basic abilities must be used to improve motivation. Rehabilitation procedures must focus on practical ways of coping with everyday life. Physical disability can mobilize underlying inferiority feelings and increase the need for dependency. Judicious use must be made of success and frustration in the rehabilitation program. PMID:14296008
Enabling people with developmental disabilities to actively follow simple instructions and perform designated physical activities according to simple instructions with Nintendo Wii Balance Boards by controlling environmental stimulation.
Shih, Ching-Hsiang; Chung, Chiao-Chen; Shih, Ching-Tien; Chen, Ling-Che
The latest researches have adopted software technology turning the Nintendo Wii Balance Board into a high performance standing location detector. This study extended Wii Balance Board functionality to assess whether two people with developmental disabilities would be able to actively perform designated physical activities according to simple instructions by controlling their favorite environmental stimulation using Nintendo Wii Balance Boards. This study was carried out according to an A-B-A-B design. Data showed that both participants significantly increased their target response (performing a designated physical activity) by activating the control system to produce their preferred environmental stimulation during the intervention phases.
de Vries McClintock, Heather F.; Barg, Frances K.; Katz, Sam P.; Stineman, Margaret G.; Krueger, Alice; Colletti, Patrice M.; Boellstorff, Tom; Bogner, Hillary R.
BACKGROUND Little is known about healthcare experiences among people with and without disabilities. OBJECTIVE We sought to explore perceptions of people with and without disabilities related to their healthcare experiences. METHODS Nineteen persons with and without disabilities participated in one of four focus groups. Focus groups were conducted in the physical world in Milwaukee, WI and in the virtual world in Second Life® with Virtual Ability, a well-established community designed by and for people with a wide range of disabilities. A grounded theory methodology was employed to analyze focus group data. Inclusion of physical and virtual world focus groups enabled people with a wide range of disabilities to participate. RESULTS While some participants described instances of receiving good care, many discussed numerous barriers. The main themes that emerged in focus groups among both persons with and without disabilities related to their healthcare experiences including poor coordination among providers; difficulties with insurance, finances, transportation and facilities; short duration of visits with physicians; inadequate information provision; feelings of being diminished and deflated; and self-advocacy as a tool. Transportation was a major concern for persons with disabilities influencing mobility. Persons with disabilities described particularly poignant experiences wherein they felt invisible or were viewed as incompetent. CONCLUSIONS Both persons with and without disabilities experienced challenges in obtaining high quality healthcare. However, persons with disabilities experienced specific challenges often related to their type of disability. Participants stressed the need for improving healthcare coordination and the importance of self-advocacy. PMID:26482010
Oliver, Mike; Barnes, Colin
This paper traces the relationship between the emergence of disability studies and the struggle for meaningful inclusion for disabled people with particular reference to the work of a pivotal figure in these developments: Len Barton. It is argued that the links between disability activism and the academy were responsible for the emergence of…
World Health Organization, Copenhagen (Denmark). Regional Office for Europe.
The report summarizes a meeting of the World Health Organization's Working Group on Systems for Provision of Aids for Disabled Persons. The meeting was convened to discuss technical aids and ergonomic measures to bring greater independence to disabled people and the need to systematize services for the disabled in their own environments. Following…
McDermott, Suzanne; Martin, Kathy; Gardner, Jevettra Devlin
Emergency Preparedness for people with a disability has been a steadfast activity in the state of South Carolina. In October 2015, the state experienced a natural disaster termed "The 1000 Year Flood". The disability response to the disaster was swift due to the strong collaborative network. However, the disaster did present challenges that need to be further addressed. The retelling of South Carolina's response should be informative to other state programs that provide advocacy for people with disability. Agencies and organizations that respond to disasters can learn from South Carolina's experience to ensure that the needs of people with disabilities are addressed rapidly and efficiently.
The law of 11th February 2005 relating to the equality of the rights and opportunities, participation and citizenship of disabled people was a major step forward. Nevertheless, more progress is needed to ensure more consideration is given to disabled people.
Background The number of people with disabilities in Brazil and worldwide has grown substantially in recent decades. Cross-cultural quality of life instruments can be helpful in the development of interventions designed to meet the needs of this population and contribute to rational allocation of resources. This study sought to provide evidence of validity and reliability the Brazilian Portuguese version of WHOQOL-Dis-D (a cross-cultural, multicentre instrument developed by the WHOQOL-Group for the assessment of quality of life in persons with physical disability – PD) and WHOQOL-Dis-ID (for persons with intellectual disability – ID). Methods Classical psychometric methods were used to conduct independent analyses of the PD and ID samples. Criterion groups were established for analysis of construct validity. Concurrent validity was assessed in relation to SWLS and BDI-II scores; discriminant validity, in relation to WHODAS-II. Cronbach alpha was used to test the instrument scales and subscales for reliability. The ID subgroup was retested, and test-retest reliability assessed by means of intraclass correlation coefficients and paired Student’s t-test. Results A total of 162 (98 females) people with PD and 156 (55 females) people with ID participated in the study. Cronbach alpha was satisfactory across practically all domains and factors in the PD subsample. In IDs, most factors or domains had coefficients higher than 0.70, but four subscales exhibited less satisfactory performance. Evidence of construct and concurrent validity and reliability were obtained. Conclusions The analyses presented herein provide satisfactory evidence of the validity and reliability of the instrument and corroborated the factor structure revealed during cross-cultural research. Further studies with larger sample sizes are required to obtain additional evidence of validity and reliability. PMID:24886102
People who live at the margins of society--those living with physical, psychological or cognitive disability, low literacy, low income, domestic violence, or discrimination--inhabit a large but often disempowered part of US society. Several fields, including social work, nursing, and adult education serve people living at these societal margins.…
Corr McEvoy, Sandra; Keenan, Emer
Attitudes towards people with intellectual disabilities have traditionally been very negative, resulting in people with intellectual disabilities being treated badly by other. This claim was explored by conducting focus groups with adults who have an intellectual disability to find out about their everyday experiences in different places and using…
People with learning disabilities have poorer health than the general population and experience health inequalities - partly as a result of problems with accessing health services. Health services have a duty to address health inequalities, by making reasonable adjustments to their services so they are more accessible to people with learning disabilities, but this does not always happen. Failure to make reasonable adjustments can have significant adverse effects for people with learning disabilities and their families. Nurses are well placed to implement reasonable adjustments, many of which are simple to do and can save lives.
The purpose of this paper is to examine the status of employment of people with disabilities in the Federal Government and to make recommendations for improving federal hiring and advancement of employees with disabilities. The paper summarizes the legal authorities and policy guidance, the responsibilities of various federal agencies charged with…
Heslop, Pauline; Lauer, Emily; Hoghton, Matt
This paper reviews why an understanding of mortality data in general, and in relation to people with intellectual disabilities in particular, is an important area of concern, and introduces the papers in this Special Edition.
... you worked long enough and paid Social Security taxes. Supplemental Security Income pays benefits based on financial ... Education Benefits For Children With Disabilities Professional Relations Green Book - Consultative Examinations: Guide For Health Professionals Blue ...
Relatively little work has been carried out upon the effect of educational environment upon the sporting involvement of children with disabilities. This paper is concerned with the educational experiences of a group of athletes who competed in the Sydney 2000 Paralympic Games. It highlights the major influence that the impact of the educational…
Koritsas, Stella; Iacono, Teresa
The authors investigated secondary conditions in people with developmental disabilities in terms of (a) the average number of conditions experienced and overall health and independence, (b) their degree and nature, and (c) gender differences. Information was obtained by a questionnaire completed by the caregivers for 659 people with developmental…
Esses, Victoria M.; And Others
This study examined the applicability of a multicomponent model to understanding the bases of attitudes toward people with disabilities. The 108 students (65 females, 43 males) reported their attitudes toward three groups -- amputees, people with AIDS (Acquired Immune Deficiency Syndrome), and the chronically depressed. They also completed…
Xavier de França, Inacia Sátiro; Freitag Pagliuca, Lorita Marlena
This study aims to analyze the influences of human development factors in the experience of disabled people based on social scenarios of inequality. The data collected were standardized and allocated in thematic categories. The analysis was based on liberal utilitarianism. The conclusion is that there is legislation in Brazil that guarantees the disabled people's development in areas such as health, education and work. However despite the attempts of decision makers in combating discriminatory behaviors and the theory based on equity, these people still face difficulties in breaking the barrier of poverty and achieving all humans rights deserved.
Capewell, Carmel; Ralph, Sue; Bonnett, Liz
Western society places high value on physical beauty and grace of movement, and tends to shun those who do not have these qualities. Disability hate crime highlights the modern form of this violence. This paper uses the high-profile case of Fiona Pilkington to examine how disability hate crime can be dismissed until it results in tragic…
Public Works Canada, Ottawa (Ontario).
The manual describes, for people with physical disabilities, a building standard of accessibility and the policy for its application. Policies address both new construction and renovation work based on principles of building accessibility to a broad range of users, public service accessibility, and equality of access to employment opportunities.…
Bartfai, Aniko; Boman, Inga-Lill
The purpose of this paper is to describe policies, laws and regulations regarding the procurement of assistive technology and home modifications for individuals with disabilities in Sweden. Children up to ages 17-21 are entitled to free access to assistive technology. For adults the access is substantially subsidized with public funding. We will discuss the issues and implications of new technology, with an emphasis on assistive technology for cognitive impairment. Today, the social security system is financially burdened due to increasing demands and limited economic growth. However, the basic doctrine of the "Swedish model" remains, evoking structural and ethical issues.
McColl, Mary Ann; Ascough, Richard S
According to some authors, the healing narratives in the New Testament have fuelled destructive attitudes toward disability among Christians. The purpose of this paper is to explore a subset of Jesus' miracle healings for more constructive messages, and for guidance about pastoral care for people with disabilities. Of twenty-nine miracle accounts found in the four gospels, five were selected for this study that deal with physical disability in individual persons. Using the socio-rhetorical interpretive method, the stories are mined for themes regarding spiritual aspects of healing, identity, faith, sin and touch.
Harrison, Scott; Berry, Liz
People with a learning disability have spent decades being excluded from mainstream society and remain almost invisible in our communities, workplaces and in family life. As a result, the health of people with a learning disability is significantly poorer than that of the general population. Despite the many reports and policy recommendations about how to improve the situation, little has been done to address the social exclusion of this group, and their health and wellbeing continue to decline. In a joint effort to challenge exclusion and address the agenda of 'Valuing People: A New Strategy for Learning Disability for the 21st Century', Warrington Primary Care Trust and Five Boroughs Partnership NHS Trust joined forces at a practical level. Two health visitors have developed a comprehensive programme of socially inclusive health care aimed at engaging people with learning disabilities more fully in their health care and their choices in leading healthy lives. The paper discusses Access All Areas--a comprehensive programme using a public health model of health care where people with learning disabilities are being supported to make healthy choices and, often for the first time, given information in accessible formats to support those choices. Led by health visitors, staff from all agencies involved in the care and support of people with learning disabilities are being trained and engaged in order to raise the standards across organisations and prioritise the health and wellbeing of this marginalised group. Health visitors are leading locally in the implementation of both health improvement and long-term condition strategies.
Fruchterman, James R.
Document recognition advances have improved the lives of people with print disabilities, by providing accessible documents. This invited paper provides perspectives on the author's career progression from document recognition professional to social entrepreneur applying this technology to help people with disabilities. Starting with initial thoughts about optical character recognition in college, it continues with the creation of accurate omnifont character recognition that did not require training. It was difficult to make a reading machine for the blind in a commercial setting, which led to the creation of a nonprofit social enterprise to deliver these devices around the world. This network of people with disabilities scanning books drove the creation of Bookshare.org, an online library of scanned books. Looking forward, the needs for improved document recognition technology to further lower the barriers to reading are discussed. Document recognition professionals should be proud of the positive impact their work has had on some of society's most disadvantaged communities.
Kim, Kyung Mee; Shin, Yu Ri; Yu, Dong Chul; Kim, Dong Ki
This study sets out to examine and understand the meaning of social inclusion for people with disabilities, as constructed by people with disabilities themselves. Focus group interviews with 34 people who have physical impairments, cerebral palsy, or hearing or visual impairments were conducted for the study. Using the data obtained from these…
Hall, Edward; Wilton, Robert
Western governments have emphasized paid work as a key route to social inclusion for disabled people. Although the proportion of disabled people in "mainstream" employment has increased in recent decades, rates remain significantly below those for non-disabled people. Moreover, disabled workers continue to face discrimination and a lack of…
Strassnig, M.; Signorile, J.; Gonzalez, C.
Despite 50 years of pharmacological and psychosocial interventions, schizophrenia remains one of the leading causes of disability. Schizophrenia is also a life-shortening illness, caused mainly by poor physical health and its complications. The end result is a considerably reduced lifespan that is marred by reduced levels of independence, with few novel treatment options available. Disability is a multidimensional construct that results from different, and often interacting, factors associated with specific types and levels of impairment. In schizophrenia, the most poignant and well characterized determinants of disability are symptoms, cognitive and related skills deficits, but there is limited understanding of other relevant factors that contribute to disability. Here we conceptualize how reduced physical performance interacts with aging, neurobiological, treatment-emergent, and cognitive and skills deficits to exacerbate ADL disability and worsen physical health. We argue that clearly defined physical performance components represent underappreciated variables that, as in mentally healthy people, offer accessible targets for exercise interventions to improve ADLs in schizophrenia, alone or in combination with improvements in cognition and health. And, finally, due to the accelerated aging pattern inherent in this disease – lifespans are reduced by 25 years on average – we present a training model based on proven training interventions successfully used in older persons. This model is designed to target the physical and psychological declines associated with decreased independence, coupled with the cardiovascular risk factors and components of the metabolic syndrome seen in schizophrenia due to their excess prevalence of obesity and low fitness levels. PMID:25254158
Rimmer, James H.; Riley, Barth B.; Rubin, Stephen S.
Assessed the psychometric properties of the Physical Activity and Disability Survey (PADS), which measures physical activity for people with disabilities and chronic health conditions. Cross-sectional and pre-post designs were employed with 103 people who had disabilities and chronic health conditions. Results supported the PADS' reliability and…
Iezzoni, Lisa I
Fifty-four million people in the United States are now living with disabilities. That number will grow substantially in the next thirty years, as the "baby-boom" generation ages and many of today's children and young adults mature and experience complications related to overweight and obesity. This reality poses a major challenge to the health care and policy communities. People with disabilities confront disadvantages from social and environmental determinants of health, including lower educational levels, lower incomes, and higher unemployment, than people without disabilities. Those with disabilities are also much more likely to report being in fair or poor health; to use tobacco; to forgo physical activity; and to be overweight or obese. People with disabilities also experience health care disparities, such as lower rates of screening and more difficulty accessing services, compared to people without disabilities. Eliminating these multifaceted disadvantages among people with disabilities should be a critical national priority.
An increase in interest in crimes against people with developmental disabilities (PWDD) has been observed in the past decade. However, little attention has been given to intrafamilial homicides of PWDD. This paper provides a preliminary description of these types of homicides as they affect PWDD. Content analysis of media accounts of intrafamilial…
Haihambo, Cynthy; Lightfoot, Elizabeth
Namibia is a southern African country with national level policies promoting community inclusion and inclusive education. Despite these policies, people with disabilities are often excluded from schools and community life. This study explores the nuanced cultural beliefs about the causes of disability in Namibia, and the impacts of such beliefs on…
... want to appear uninformed or insensitive. Tips for Speaking or Writing about People with Disabilities A key ... transmit it. Positive language empowers. When writing or speaking about people with disabilities, it is important to ...
Garbutt, Ruth; Tattersall, John; Dunn, Jo; Boycott-Garnett, Rachel
This is an article that talks about our research about sex and relationships for people with learning disabilities. It talks about how people with learning disabilities have been fully involved in the research. (Contains 2 footnotes.)
Cooperative State Research, Education, and Extension Service (USDA), Washington, DC.
The AgrAbility Project offers education and assistance to farmers, ranchers, and other agricultural workers with physical and mental disabilities. The project also eliminates barriers and creates a favorable climate among rural service providers for people with disabilities. Disabilities and conditions covered are listed. Examples of the project's…
Against the backdrop of severe austerity measures sweeping across Europe, in this article I report upon the resurgence of activism among disabled people in the United Kingdom. My starting point is the creation of a new campaigning group called Disabled People Against Cuts (DPAC) formed by disabled people with and without a history of engagement…
Eichinger, Joanne; And Others
A survey of 162 adult members of the general public evaluated their attitudes toward people with disabilities. Among results was that the number of movies viewed about people with disabilities was positively associated with number of discussions and with positive attitudes toward people with disabilities. Gender was also significantly related to…
Stewart, Stephanie; Hansen, Terri S; Carey, Timothy A
The virtual world of Second Life (SL) offers people with disabilities a chance to explore new worlds without being limited by their disabilities. Many people with disabilities use SL for information, support, and entertainment. SL is a computer-based simulated environment in which participants are represented by a human-like avatar. The avatar can move through the environment, manipulate objects, and participate in day-to-day activities that most people take for granted, such as walking, dancing, and communicating. In this article, the authors focus on the benefits that information, socialization, and community membership can offer people with disabilities and some of the resources that are available for them in SL. SL communities, groups, and activities also help increase self-worth and empower people with disabilities. Participating in a virtual world enriches the overall quality of life of people with disabilities and may enhance their physical, emotional, and social adjustment.
Robertson, Janet; Emerson, Eric
Background: Participation in sports has been linked to a range of physical, social and mental health benefits. Little is known about the extent to which people with intellectual disabilities take part in sports. This study looks at participation in sports and factors associated with participation by people with intellectual disabilities in…
Mithen, Johanna; Aitken, Zoe; Ziersch, Anne; Kavanagh, Anne M
The poor mental and physical health of people with disabilities has been well documented and there is evidence to suggest that inequalities in health between people with and without disabilities may be at least partly explained by the socioeconomic disadvantage (e.g. low education, unemployment) experienced by people with disabilities. Although there are fewer studies documenting inequalities in social capital, the evidence suggests that people with disabilities are also disadvantaged in this regard. We drew on Bourdieu's conceptualisation of social capital as the resources that flow to individuals from their membership of social networks. Using data from the General Social Survey 2010 of 15,028 adults living in private dwellings across non-remote areas of Australia, we measured social capital across three domains: informal networks (contact with family and friends); formal networks (group membership and contacts in influential organisations) and social support (financial, practical and emotional). We compared levels of social capital and self-rated health for people with and without disabilities and for people with different types of impairments (sensory and speech, physical, psychological and intellectual). Further, we assessed whether differences in levels of social capital contributed to inequalities in health between people with and without disabilities. We found that people with disabilities were worse off than people without disabilities in regard to informal and formal networks, social support and self-rated health status, and that inequalities were greatest for people with intellectual and psychological impairments. Differences in social capital did not explain the association between disability and health. These findings underscore the importance of developing social policies which promote the inclusion of people with disabilities, according to the varying needs of people with different impairments types. Given the changing policy environment, ongoing
Lundquist Wanneberg, Pia
Semi-structured face-to-face interviews were used to examine the influence of riding on the identity construction of people with disabilities. The 15 participants, three men and 12 women, were between 15 and 65 years old and have various physical disabilities. The data analysis derives from identity theory, a social-psychological theory that…
Ortiz-Gil, A.; Blay, P.; Gallego Calvente, A. T.; Gómez Collado, M.; Guirado, J. C.; Lanzara, M.; Martínez Núñez, S.
Here we give a brief outline of the activities developed during the International Year of Astronomy specifically addressed to people with various disabilities, both physical and/or intellectual. Among the different activities that we carried out we wish to highlight the publication of an astronomy book in Braille, astronomy talks for the intellectually disabled, a software for people with motor disabilities, and a planetarium show for the blind and visually impaired
Lucas-Carrasco, Ramona; Eser, Erhan; Hao, Yuantao; McPherson, Kathryn M.; Green, Ann; Kullmann, Lajos
This paper describes the development of a Quality of Care and Support (QOCS) scale for use with adult persons with physical and intellectual disabilities. In the pilot phase of the study, 12 centers from around the world carried out focus groups with people with physical and disabilities, their carers, and with professionals in order to identify…
Echenique, AM; Graffigna, JP; Pérez, E.; López, N.; Piccinini, D.; Fernández, H.; Garcés, A.
The conventional educational environment imposes barriers to education for people with disabilities, limiting their rights, which is a non-discriminative education. In turn, hampers their access to other rights and creates huge obstacles to realize their potential and participate effectively in their communities. In this sense Assistive Technology provides alternative solutions, in order to compensate for a lost or diminished ability. Thus the necessary assistance is provided to perform tasks, including those related to education, improving the inclusion. In this paper some researches had been made in the Gabinete de TecnologiaMedica, in the Facultad de Ingenieria of the Universidad Nacional de San Juan in order to solve this problem. The researchers are classified by type of disability; sensory (visual and auditory) or motor. They have been designed, developed and experienced through various prototypes that have given satisfactory results. It had been published in national and international congresses of high relevance.
Tronconi, A.; Billi, M.; Boscaleri, A.; Graziani, P.; Susini, C.
Some physically impaired persons are unable to use standard drawing tools (pencil, eraser, paper, etc.). An effective way to deal with the problem is to create a graphic environment with features that motor disabled can control. A motor disabled person can use some commercial graphic program by means the special interface (working as mouse emulator), that we developed. Special software oriented to provide mentally impaired children with some computer graphic capabilities can be developed. This software can be useful when the commercial available software is unsuitable. We are developing special software that provide physically impaired children with the capability of graphical represention of three-dimensional scenes. This software can be controlled by means some different special input interface including a speech recognition system.
Breslin, Mary Lou; Yee, Silvia
The National Council on Disabilities (NCD) undertook this study in 2007 to focus the nation's attention on the health care disparities experienced by people with disabilities, and to provide information and recommendations that can help to eliminate health care inequities for people with disabilities. Among the key findings were that: (1) People…
Siblings of people with disabilities have more exposure to people with disabilities than most nondisabled people, uniquely positioning them toward disability, yet less is known about how this might impact their attitudes. This study examined siblings' disability attitudes by determining siblings' explicit and implicit disability bias, mapping their 2-dimensional prejudice, and examining theoretical variables that might be relevant to their attitudes. To do so, the Disability Attitudes Implicit Association Test, the Symbolic Ableism Scale, and survey questions were administered to 48 siblings. Findings revealed the majority of the siblings implicitly preferred nondisabled people, despite reporting low levels of explicit attitudes.
Northway, Ruth; Melsome, Melissa; Flood, Samantha; Bennett, Davey; Howarth, Joyce; Thomas, Becki
People with intellectual disabilities have a higher risk of being abused than other people, but to date research has not explored their views regarding abuse. This article reports the findings relating to one question within a participatory research study concerning the abuse of people with intellectual disabilities. This question asked what…
The Disabled Children and Young Peoples Participation Project (DCYPPP) was established by Barnardos (Northern Ireland) in 2002 to explore ways of involving children and young people with disabilities in decision-making processes within Children's Services Planning of the Health and Social Services Board. Over 200 young people have participated in…
Srikanth, R.; Cassidy, G.; Joiner, C.; Teeluckdharry, S.
Background: The population of people with intellectual disabilities (ID) is increasing and their health needs impact on primary and secondary healthcare specialities. One important aspect of their physical health is bone health as people with ID have increased risk factors associated with osteoporosis. It has been identified that this population…
Cullinan, John; Gannon, Brenda; O'Shea, Eamon
Recent data analysed for Ireland suggest a strong link between disability status and household poverty, while there exists substantial evidence to suggest that disability is highly prevalent among persons of older age. Within this context, this paper estimates the welfare implications of disability for older people in Ireland. We define and estimate models of the private costs borne by households with older persons who have a disability in Ireland, both in general and by severity of illness or condition. Our modelling framework is based on the standard of living approach to estimating the cost of disability. The model quantifies the extra costs of living associated with disability and is estimated by comparing the standard of living of households with and without disabled members at a given income, controlling for other sources of variation. The analysis suggests that the estimated economic cost of disability for older people in Ireland is significant and varies by severity of disability, as well as by household type. The results also suggest that the cost of disability increases in proportionate terms as the number of people in the household decreases. Our results are important when considering the effectiveness of policies that aim to address the economic problems associated with disability for older people, suggesting that current policy in Ireland does not go far enough. They indicate that older people face a double jeopardy through age and disability, which is not reflected in official poverty rates and support the case for the introduction of disability-adjusted poverty payments.
Many people with learning disabilities are frequently excluded from active involvement in research and, as a result, along with researchers, have questioned research processes. These discussions have influenced how research is undertaken by, and with, people who have learning disabilities. Learning disability research is now increasingly framed as inclusive. This article explores the development of inclusive learning disability research by tracing its background and influences, identifying key characteristics and highlighting some of the challenges in its application. It demonstrates how inclusive research can give people with learning disabilities a voice that will help to inform practice.
Menear, Kristi Sayers; Shapiro, Deborah R.
Roughly 39% of children and youth with disabilities are physically active (Longmuir & Bar-Or, 2000). Increasing the number of individuals with disabilities who are physically active is a public health priority (Kosma, Cardinal & Rintala, 2002). This paper will highlight the current status of physical activity for persons with a disability by…
This article gives a short overview of some basic facts about people with learning disabilities. The prevalence (1-3% worldwide) and stability of the incidence are described, as well as the causes and possible medical comorbidities.- People with learning disabilities are at significantly greater risk of developing cognitive and medical problems compared with the average population. Lastly, an overview of actual chronic care costs is given, as well as actual participation possibilities for people with learning disabilities.
Engelbrecht, L.; de Beer, J. J.
Current developments in government law and policies have created the hope that people living with a disability will enjoy the same rights and privileges as the non-disabled. Unfortunately, only 2.8% of disabled persons have access to higher education. The aim of this study was to determine if a group of students, living with a physical disability,…
Huang, Ying-Ying; Kung, Pei-Tseng; Chiu, Li-Ting; Tsai, Wen-Chen
Cardiovascular disease has always been a leading cause of death worldwide. Because the mobility of people with disability is relatively decreased, their risk of cardiovascular disease is increased. This study investigated the risks and relevant factors of acute myocardial infarction (AMI) among people with disability. This is a retrospective cohort study based on secondary data analysis. This study focused on 798,328 people with disability who were aged 35 and above during 2002-2008 and were registered in the National Disability Registration Database; the relevant medical data from 2000 to 2011 were acquired from the National Health Insurance Research Database. A Cox proportional hazards model was adopted for analyzing the relative AMI risks among different disability types and finding latent risk factors. The results indicated that the AMI incidence rate (per 1000 patient-years) among people with disability was 2.48. Men had an AMI incidence rate of 2.68 per 1000 patient-years, which was significantly higher than that of women (2.21; p<.05). The AMI risk for people with mental disabilities was 0.76 times the risk for people with physical disabilities (95% confidence interval [CI]=0.71-0.82). The AMI risk for people with profound disabilities was 2.04 times (95% CI=1.93-2.16) the risk for people with mild disabilities. AMI risk increased with age. People with disability aged 65 and above had an AMI risk that was 5.01-6.03 times the risk for people with disability aged below 45. Disabled indigenous people had a relatively higher AMI risk (HR=1.35, 95% CI=1.19-1.52). The AMI risk for people with disability with a Charlson comorbidity index (CCI) of 4 and above was 5.89 times (95% CI=5.56-6.25) the risk for those with a CCI of 0. Compared with people with physical disabilities, people with visual impairment and people with dysfunctional primary organs had significantly higher AMI risks (HR=1.15; HR=1.66). This study found that people with disability who were male
Lin, Jin-Ding; Lin, Pei-Ying; Lin, Lan-Ping; Chang, Yu-Yu; Wu, Sheng-Ru; Wu, Jia-Ling
Physical inactivity is a global public health problem, and it has been linked to many of the most serious illnesses facing many industrialized nations. There is little evidence examining the physical activity profile and determinants for the vulnerable population such as people with intellectual disabilities (ID). The present paper aims to…
Seaman, Janet A.; Corbin, Chuck, Ed.; Pangrazi, Bob
Historically, the approach to physical activity for people with disabilities has been couched in medical rationale and focused on rehabilitation. This does not account for physical activity for the joy of it as in play, exercise to improve or maintain fitness, or activity required in employment. The new paradigm of healthy, active lifestyles for…
Bane, Geraldine; Deely, Marie; Donohoe, Brian; Dooher, Martin; Flaherty, Josephine; Iriarte, Edurne Garcia; Hopkins, Rob; Mahon, Ann; Minogue, Ger; Mc Donagh, Padraig; O'Doherty, Siobhain; Curry, Martin; Shannon, Stephen; Tierney, Edel; Wolfe, Marie
This study explored the perspectives of people with learning disabilities on relationships and supports in the Republic of Ireland. A national research network consisting of 21 researchers with learning disabilities, 12 supporters, and 7 university researchers conducted the study. Researchers with learning disabilities and their supporters ran 16…
Marriott, Anna; Turner, Sue; Giraud-Saunders, Alison
People with learning disabilities have poorer health than their non-disabled peers, and are less likely to access screening services than the general population. The National Development Team for Inclusion and the Norah Fry Research Centre developed a toolkit and guidance to improve uptake of five national (English) screening programmes (one of which is delivered through local programmes), based on work to improve access by people with learning disabilities in the south west peninsula of the UK. This article describes the findings in relation to the five English screening programmes and suggests ways to improve uptake of cancer screening by people with learning disabilities.
Equal Employment Opportunity Commission, Washington, DC.
This manual provides guidelines to offices of the Equal Employment Opportunity Commission for effective interaction and communication with people who have disabilities. Each chapter provides suggestions for interacting with people with a specific disability. In addition to general suggestions for fostering courteous interactions, chapters include…
Azzopardi-Lane, Claire; Callus, Anne-Marie
This paper presented research undertaken in collaboration with a self-advocacy group using inclusive research methods and puts forward the views of people with intellectual disability on the topics of sexuality and relationships. The paper presents the perceptions of sexuality of the people with intellectual disability and how these are influenced…
Inge, Katherine J., Ed.
This newsletter issue provides rehabilitation professionals with various information pieces concerning transition from school to adulthood for young people with disabilities. An introduction identifies specific challenges in transition programming and stresses the goal of fully integrating young people with disabilities as interdependent parts of…
Sams, Kathryn; Collins, Suzanne; Reynolds, Shirley
Background: There is a need to develop and adapt therapies for use with people with learning disabilities who have mental health problems. Aims: To examine the performance of people with learning disabilities on two cognitive therapy tasks (emotion recognition and discrimination among thoughts, feelings and behaviours). We hypothesized that…
Fujiura, Glenn T.
Self-reported health is an important outcome in the evaluation of health care but is largely ignored in favor of proxy-based reporting for people with an intellectual disability. This study briefly reviews the role of self-report in health assessment of people with intellectual disability and the challenges and recommendations that have emerged…
Nota, Laura; Santilli, Sara; Ginevra, Maria C.; Soresi, Salvatore
Background: This study examines the importance of work in life of people with disability and then focuses on employer attitudes towards these people. In the light of Stone and Colella's model, the study examines the employer attitudes and the role of variables such as type of disability, employer experience in the hiring of persons with…
Arnold, Catherine K.; Heller, Tamar; Kramer, John
This qualitative study examines the support needs of adult siblings of people with developmental disabilities. A survey completed by 139 siblings of people with developmental disabilities captured the needs of adult siblings through 2 open-ended questions. A grounded theory approach was used, and the sibling responses anchored the analysis,…
Williams, Val; Ponting, Lisa; Ford, Kerrie; Rudge, Philippa
For people with learning disabilities to have control over their lives, the quality of their support staff matters. This paper reports on an inclusive research study, which used video analysis to study the communication skills of personal assistants (PAs) who worked with people with learning disabilities. The findings reveal some of the fine…
Nelson, P P
The Americans with Disabilities Act (ADA), enacted in 1990, has had a significant impact on the way many institutions, including libraries, do business. The Association of Research Libraries surveyed its members in 1991 to determine the effect of this legislation, and the author conducted a similar survey in 1995 to learn what progress academic health sciences libraries have made in serving the needs of people with disablities. A questionnaire was mailed to 131 members of the Association of Academic Health Sciences Library Directors. Nearly three-quarters of respondents reported elimination of physical barriers. The most common services provided are retrieval of materials from the stacks and photocopy assistance. Much less attention has been paid to the use of adaptive technology that allows disabled users to search a library's online catalog and databases; special technology is often provided by another unit on campus but there seems to be little coordination with library services Few libraries have assigned responsibility for disability services to a specific staff member and even fewer have done a formal assessment of the need for special services. The issues identified by the survey should challenge academic health sciences libraries to examine their status regarding compliance with ADA legislation. PMID:8883988
Nelson, P P
The Americans with Disabilities Act (ADA), enacted in 1990, has had a significant impact on the way many institutions, including libraries, do business. The Association of Research Libraries surveyed its members in 1991 to determine the effect of this legislation, and the author conducted a similar survey in 1995 to learn what progress academic health sciences libraries have made in serving the needs of people with disablities. A questionnaire was mailed to 131 members of the Association of Academic Health Sciences Library Directors. Nearly three-quarters of respondents reported elimination of physical barriers. The most common services provided are retrieval of materials from the stacks and photocopy assistance. Much less attention has been paid to the use of adaptive technology that allows disabled users to search a library's online catalog and databases; special technology is often provided by another unit on campus but there seems to be little coordination with library services Few libraries have assigned responsibility for disability services to a specific staff member and even fewer have done a formal assessment of the need for special services. The issues identified by the survey should challenge academic health sciences libraries to examine their status regarding compliance with ADA legislation.
Rhodes, Penny J; Small, Neil A; Ismail, Hanif; Wright, John P
This paper reports on a study of Pakistani people with epilepsy. It explores their attitudes towards their condition, others' attitudes, its impact on their lives, and the extent to which they considered themselves as disabled. Epilepsy was variously interpreted within biomedical, folk and religious paradigms. In line with popular understandings, participants associated disability with stable, permanent and visible physical impairments and did not consider themselves as disabled. However, they also recognised a social dimension to their experience. Much of the distress and disadvantage they experienced was socially determined, both through direct prejudice and discrimination, and indirectly through a fear of others' negative reactions. However, the invisible and unpredictable nature of epilepsy meant that they could conceal their condition and thereby mitigate its social effects. 'Disability' was not experienced as a static and permanent state but as a potential identity that was both contingent and contested. The literature portrays people moving from biomedical to social interpretations of disability. However, the tensions experienced by people in the study were more between competing religious interpretations of their condition and, to some extent, between religious and medical approaches. Conceptions of disability, which are presented in the literature as antagonistic and mutually exclusive, were experienced as different dimensions reflecting the complexity of experience. The paper concludes by suggesting that for many people, for whom disability is an ambiguous, contingent and contested identity, public self-identification as disabled is an unrealistic goal. Rather than conceiving of disability as primarily physical or primarily social, it would be better construed as a complex interweaving of multiple factors--physical, environmental, socio-cultural and psychological factors.
Wall, A. E.
This article shares some current thoughts, actions, and plans to foster physical activity among Canadians with disabilities. Topics include mainstreaming physically disabled students, impact of the Jasper Talks Symposium, a national action plan (Blueprint for Action), and recent initiatives that reflect Canadian commitment to adapted physical…
Physical disability is an enormous psychosocio-economic-medical problem that affects over 24 million Americans. Public policy endorses a multi-disciplinary approach in analyzing this issue. Legislation has broadened the meaning of physical disability to include persons with mental and emotional disorders. Some of the costs associated with physical…
Burbach, Harold J.; Babbitt, Charles E.
Interview and questionnaire data derived from 93 physically disabled college students were used to examine: personal background and self concept; student academic orientation; orientation to physical environment; orientation to extracurricular life; and interpersonal relations. (DB)
... Committee for People With Intellectual Disabilities (PCPID) AGENCY: President's Committee for People with Intellectual Disabilities, ACF, HHS. ACTION: Notice of Committee Meetings. DATES: Friday, April 6, 2012, from 1... Taylor Roach, Senior Advisor, President's Committee for People with Intellectual Disabilities,...
In this study we attempt to bring attention to the situation of people with disabilities in the developing world by focusing on the labor market of Nepal. Utilizing a unique dataset collected from people with hearing, physical, and visual impairments through questionnaire-based interview methods, we compare across employment based on type of…
Hayes, S.; McGuire, B.; O'Neill, M.; Oliver, C.; Morrison, T.
Background: We investigated the relationship between low mood and challenging behaviour in people in the severe and profound range of intellectual disability, while controlling for the presence of potentially confounding variables such as diagnosis of autism, physical and sensory problems and ill health. Methods: The key workers of 52 people with…
The use of ICT in education is becoming increasingly important and has potential advantages to disabled learners if the technologies are appropriately designed, including for accessibility and usability, and used. This paper presents the first sets of recommendations for learning technologies for disabled people aimed at disabled learners, teachers, developers and educational institutions respectively. They were developed as part of the work of the Enable Network for ICT Learning for Disabled People and involved input from both experts and end-users. The concise format facilitates production in a variety of formats and languages for accessibility and wide distribution. The paper discusses the recommendations and their relationship to existing guidelines.
Young people with disabilities have more opportunities and more challenges than at any other time in our nation's history. With the Americans with Disabilities Act, they have unprecedented opportunities to fully develop as constructive, contributing members of our society. However, many need encouragement to develop as leaders in their communities. Our forum enables them to learn from each other and from successful adults with disabilities who are recognized leaders and role models. Such a forum benefits not only the participants, but all young people with disabilities, our communities in general, and the adults who assist in producing the forum.
Chiu, Chung-Yi; An, Ruopeng
Purpose: To characterize physical activity patterns among people with disabilities using data from a nationally representative health survey. Method: Individual-level data came from the Behavioral Risk Factor Surveillance System 2011 survey. Pearson's chi-squared tests were conducted to assess the difference in the proportion distribution of…
McKenzie, Judith Anne
Disability is emerging as a human rights issue of public concern, rather than an individual tragedy requiring medical attention. The issue of sexuality remains relatively neglected in this agenda, particularly as regards the exploration of the complexities of sexuality encountered by disabled people themselves. This paper focuses on the experiences of sexuality of disabled people and parents of disabled children in settings of poverty in the Eastern Cape Province of South Africa. Three individual interviews and two focus groups were conducted with disabled adults and parents of disabled children. Thematic analysis of the interviews identified three principal themes (1) sexuality development in the family of origin, (2) sexuality in the community and (3) adult sexuality and creating families. Each of these larger themes encompasses various sub-themes that are discussed in the findings. The paper concludes that while sexuality is a very difficult aspect of life for a disabled person due to myths and discrimination against disabled people, it is also an important arena for affirmation and establishing self-worth. It is therefore critical to consider the development of a healthy sexuality amongst disabled people and the promotion of their sexual rights.
Officer, Alana; Shakespeare, Tom
The "World Report on Disability" was requested by the World Health Assembly, the governing body of the World Health Organization (WHO). Because disability is broader than health, WHO partnered with the World Bank. The "World Report" was published in 2011 and provides a comprehensive scientific analysis on the global situation…
May, Michael E; Kennedy, Craig H
Good health significantly improves a person's quality of life. However, people with intellectual disabilities disproportionately have more health problems than the general population. Further complicating the matter is that people with more severe disabilities often cannot verbalize health complications they are experiencing, which leads to health problems being undiagnosed and untreated. It is plausible these conditions can interact with reinforcement contingencies to maintain problem behavior because of the increased incidence of health problems among people with intellectual disabilities. This paper reviews common health problems influencing problem behavior and reinforcement processes. A clear implication of this review is the need for comprehensive functional assessments of problem behavior involving behavior analysts and health professionals.
Goldberg, Daniel; Goldberg, Marge
The Americans with Disabilities Act (ADA) of 1990 outlaws discrimination against people with disabilities. It is a bold and comprehensive law affecting employment, transportation, services provided by state and local government, services and accommodations offered by private businesses, and telecommunication access for people with communication…
The study examined the relationships between demographic, personality, and disability-specific variables and membership in a political action organization among the physically disabled. Thirty-nine disabled members of a political organization an 40 disabled nonmembers were interviewed. Educational and occupational status were found to be related to membership. Disability-specific variables, including diagnosis, length of time disabled, degree and etiology of disability, were found to be unrelated to membership in a political action organization. Degree of general political activity accounted for the greatest amount of variance in distinguishing members from nonmembers. Scores obtained on scales measuring degree of emotional stability, responsibility, and sociability were not significantly related to membership. Members, however, were found to be more assertive, more independent, and less conforming than nonmembers. Transportation difficulty was the main reason given for nonmembership by 50% of the nonmembers. Statistically significant differences between members and nonmembers were found concerning the goals of transportation and political action.
Kingston, Karen; Bailey, Carol
This article highlights the inequalities in health-care provision experienced by people with a learning disability, particularly the issue of pain and the barriers people with a learning disability face when trying to have their pain properly recognized and managed. The authors describe the process followed by their learning disability service in producing a pain protocol that attempted to overcome these barriers. They also examine the pain assessment tool that is now used in the authors learning disability service. Lastly, the article considers why a specially designed pain assessment tool was deemed more appropriate than any of the standardized assessment tools available and looks at the reasons why assessment tools should be presented in an accessible format that enables people with a learning disability to alert healthcare professionals to their pain and receive appropriate treatment.
Redjati, Abdelghani; Bousbia-Salah, Mounir
The recent development in rehabilitation technology allows to significantly broaden the range of possible applications that support handicapped people in their daily lives. This paper presents a moral and physical support for the disabled. It consists in the development of a verbal guidance system based on a speech recognition development kit `VD364'. This aid is intended to control a wheelchair and a manipulator arm for people with severe disabilities and who can speak. The study and design, conducted in the framework of this contribution have enabled an adaptation for a possible application and maximum exploitation of words that can be generated by a vocal module. The problem addressed is to allow a manipulator arm to compensate mechanically arm movements to give the handicapped satisfaction of his needs (for instance, drinking a glass of water). The objective is then to put forward a vocal command system that allows the arm to move in a well determined area to accomplish tasks that must be given by the user in addition to the displacement of the wheelchair.
Fittipaldi-Wert, Jeanine; Brock, Sheri J.
Physical activity is important in maintaining and improving overall health for all. Students with disabilities tend to have lower fitness levels due to the lack of participation in physical activities, therefore, progressions and modifications to physical activities are needed. Assessing the physical activity levels of students with disabilities…
Coles, Sarah; Scior, Katrina
Background: National and international polices promote the acceptance, integration and inclusion of people with intellectual disabilities into mainstream society. However, there is little systematic research into general population attitudes towards people with intellectual disabilities, and even less research, which considers the impact of…
von Schrader, Sarah; Malzer, Valerie; Erickson, William; Bruyere, Susanne
People with disabilities are employed at less than half the rate of their non-disabled peers; and the current economic climate is making it even harder for people with disabilities to obtain employment. During the summer and fall of 2011, Cornell University's Employment and Disability Institute and the American Association of People with…
van Schrojenstein Lantman-de Valk, Henny M. J.
Background: The health needs of people with intellectual disabilities have recently received increasing attention. Method: Based on a review of the 2003 literature, this paper presents an overview of our knowledge on physical, mental and social well-being in this group. Results: Physical well-being is threatened by handicap-related conditions,…
Epidemiological studies have consistently reported a significant association between poverty and the prevalence of intellectual disabilities. The available evidence suggests that this association reflects two distinct processes. First, poverty causes intellectual disabilities, an effect mediated through the association between poverty and exposure…
Yousafzai, Aisha K; Dlamini, Phindile J; Groce, Nora; Wirz, Sheila
Although there has been research focused on the disabling consequences of HIV/AIDS, there has been very little documented information about HIV/AIDS for individuals with disability prior to infection. There is evidence to suggest that people with disabilities face inequalities in accessing health information and services. The aim of this study was to explore whether disabled and non-disabled young adults in Swaziland perceive HIV/AIDS similarly. A qualitative study using focus-group discussions was conducted. Four focus groups were conducted with a total of 56 non-disabled adults (aged 16-29 years) and four focus groups were conducted with a total of 32 adults with either a physical or hearing disability (aged 18-32 years). The focus-group schedule explored knowledge about HIV/AIDS, personal risk and experiences of health-seeking practices. Information and awareness about HIV/AIDS was good in both rural and urban areas among the non-disabled participants, who obtained their information from a wide range of sources. In contrast, participants with disability, who obtained information about HIV/AIDS from a limited range of sources, lacked knowledge about HIV/AIDS and were misinformed about modes of transmission. Women with disabilities described experiences of sexual exploitation and abuse, which was perceived to be higher among disabled women than their non-disabled peers; they felt this was because disabled women were perceived to be 'free' from the HIV virus by non-disabled men. Further research is necessary to enable HIV/AIDS programmes to address the specific needs of people with disabilities.
Laws, Jason; Parish, Susan L.; Scheyett, Anna M.; Egan, Christopher
We examine how well schools of social work prepare students to work with people with developmental disabilities (DD). Using websites of 50 U.S. schools of social work, we examine their curricula to determine the number and nature of disability studies courses. We examine tenure-line faculty to identify potential for current staff to expand DD…
Kuh, D.; And Others
The study compared the past and current work and work alternatives experienced by 383 disabled young people (aged 16-25 years) and 152 able-bodied controls in East Devon, United Kingdom. Also compared were the aspirations and expectations of the disabled with those of their families and service providers. (Author/DB)
de Winter, C. F.; Bastiaanse, L. P.; Hilgenkamp, T. I. M.; Evenhuis, H. M.; Echteld, M. A.
Overweight and obesity are major health problems associated with increased cardiovascular disease risk, which is not sufficiently studied in people with intellectual disability yet. The present study was part of the Healthy Ageing in Intellectual Disability (HA-ID) study. The aim of this study was to establish (1) the prevalence of overweight,…
Franssen, Janine J. L.; Maaskant, Marian A.; van Schrojenstein Lantman-de Valk, Henny M. J.
The prevalence of underweight status is relatively high in persons with intellectual disabilities. However, it is not clear whether this is due to malnourishment. The authors sought to examine the awareness and knowledge of physicians, dieticians, and direct care staff regarding malnutrition in people with intellectual disabilities. They also…
... Trials Resources and Publications How does rehabilitative & assistive technology benefit people with disabilities? Skip sharing on social ... Content Deciding which type of rehabilitative or assistive technology would be most helpful for a person with ...
A well-educated and trained workforce is undoubtedly crucial to the development of quality care for people with learning disabilities. Notwithstanding this, and unsure as to the need to continue to commission educational programmes for one part of this workforce-pre-registration learning disability nursing-South Central Strategic Health Authority commissioned the Valued People Project to undertake a detailed strategic review of educational commissioning, along with a review of the specialist learning disability health workforce more generally. This project has recently been completed, and provides a unique evidence-based expert evaluation of the future strategic direction of education commissioning and leadership for workforce issues in specialist learning disability services, as well as the wider NHS workforce. This is the first in a series of articles that reports on one aspect of the project: the focus group work undertaken with parents and relatives of people with learning disabilities, and people with learning disabilities themselves, as to the need and type of health workforce needed to support them in the future. The article concludes by identifying the key messages of importance from parents and people with learning disabilities concerning the future specialist and wider NHS workforce.
People with learning disabilities may have additional healthcare needs compared to the general population, and the NHS faces challenges in addressing these needs. Scotland has many remote and rural communities, and residents of these communities can encounter difficulties in accessing healthcare resources. This article considers Scotland's healthcare policy in relation to remote and rural areas, and how effective it is in meeting the needs of people with learning disabilities in these communities.
Presented is evidence on the increasing need to plan for the accommodation of the physically handicapped in the design and construction of present and future public buildings and transportation facilities in Canada. Terms such as "architectural barriers" and "disability" are defined. Statistics on disability incidence in Canada…
Jones, Martyn C.; Walley, Robert M.; Leech, Amanda; Paterson, Marion; Common, Stephanie; Metcalf, Charlotte
People with profound intellectual disabilities rarely experience a physically active lifestyle, and their long-term physical inactivity likely contributes to poor health. The authors developed and implemented a pilot exercise program for persons with a profound intellectual disability and conducted a study to evaluate the effort. The development…
Bredemeier, Juliana; Agranonik, Marilyn; Perez, Tatiana Spalding; Fleck, Marcelo Pio de Almeida
OBJECTIVE To analyze evidence of the validity and reliability of a Brazilian Portuguese version of the Quality of Care Scale from the perspective of people with physical and intellectual disabilities. METHODS There were 162 people with physical disabilities and 156 with intellectual disabilities from Porto Alegre and metropolitan region, who participated in the study in 2008. Classical psychometrics was used to independently analyze the two samples. Hypotheses for evidence of criterion validity (concurrent type) were tested with the Mann-Whitney test for non-normal distributions. Principal components analysis was used to explore factorial models. Evidence of reliability was calculated with Cronbach alpha for the scales and subscales. Test-retest reliability was analyzed for individuals with intellectual disabilities through intra-class correlation coefficient and the Willcoxon test. RESULTS The principal components in the group with physical disabilities replicated the original model presented as a solution to the international project data. Evidence of discriminant validity and test-retest reliability was found. CONCLUSIONS The transcultural factor model found within the international sample project seems appropriate for the samples investigated in this study, especially the physical disabilities group. Depression, pain, satisfaction with life and disability may play a mediating role in the evaluation of quality of care. Additional research is needed to add to evidence of the validity of the instruments. PMID:25210817
Being victims of racial prejudice, religious intolerance, poverty, disempowerment and language loss it could be expected that indigenous people would be supportive of the Inclusion Movement with its philosophy of valuing and acceptance of all people. This supposition is examined for Maori, the indigenous people of Aotearoa/New Zealand. In…
Foley, Alan; Ferri, Beth A.
The potential of technology to connect people and provide access to education, commerce, employment and entertainment has never been greater or more rapidly changing. Communication technologies and new media promise to "revolutionize our lives" by breaking down barriers and expanding access for disabled people. Yet, it is also true that technology…
Aims: Cognitive therapies are increasingly being offered by clinical psychologists to people with intellectual disabilities. This paper reviews some of the factors that influence people's readiness to engage in cognitive therapy. Literature review: Limited verbal ability, psychological-mindedness (particularly in relation to the understanding of…
Taggart, L.; McLaughlin, D.; Quinn, B.; Milligan, V.
Background: Little is known about the characteristics of people with intellectual disabilities (IDs) who misuse substances and how such problems impinge upon their well-being. The aim of this paper is to describe how alcohol and drugs affect the health of people with IDs. Methods: A questionnaire was forwarded to all the community ID teams and…
Hall, Sarah A.
The voice of people with intellectual disabilities (ID) is needed in the literature to best understand their unique experiences and perspectives. Researchers face challenges in conducting interviews with people with ID who are limited in conceptual and verbal language skills. It can also be difficult to obtain participants with ID because of…
Lin, Lan-Ping; Hsieh, Molly; Chen, Si-Fan; Wu, Chia-Ling; Hsu, Shang-Wei; Lin, Jin-Ding
This paper aims to identify self-report data for hysterectomy prevalence and to explore its correlated factors among women with physical and mobility disabilities in Taiwan. This paper was part of a larger study, "Survey on Preventive Health Utilizations of People with Physical and Mobility Disability in Taiwan," which is a…
Lin, Jin-Ding; Chen, Shih-Fan; Lin, Lan-Ping; Sung, Chang-Lin
We collected self reported rate of cervical smear testing to examine the affecting factors in women with physical disabilities in the study, to define the reproductive health care for this group of people. The study population recruited 521 women with physical disabilities aged more than 15 years who were officially registered as having physical…
Shapiro, Deborah R.; Martin, Jeffrey J.
The purposes of this investigation were first to predict reported PA (physical activity) behavior and self-esteem using a multidimensional physical self-concept model and second to describe perceptions of multidimensional physical self-concept (e.g., strength, endurance, sport competence) among athletes with physical disabilities. Athletes (N =…
Lin, Jin-Ding; Lin, Pei-Ying; Lin, Lan-Ping; Chang, Yu-Yu; Wu, Sheng-Ru; Wu, Jia-Ling
Physical inactivity is a global public health problem, and it has been linked to many of the most serious illnesses facing many industrialized nations. There is little evidence examining the physical activity profile and determinants for the vulnerable population such as people with intellectual disabilities (ID). The present paper aims to describe the regular physical activity prevalence and to examine its determinants among adolescents with intellectual disabilities in Taiwan. Participants were recruited from 3 special education schools in Taiwan, with the entire response participants composed of 351 primary caregivers of adolescents with ID (age 16-18 years). There were 29.9% ID individuals had regular physical activity habits, and the main physical activities were walking, sports, and jogging. There were only 8% individuals with ID met the national physical activity recommendation in Taiwan which suggests at least exercise 3 times per week and 30 min per time. In a stepwise logistic regression analysis of regular physical activity habit, we found that the factors of caregiver's educational level and preference toward physical activity were variables that can significantly predict ID individuals who had regular physical activity habit in their daily livings after controlling other factors. To maximize the positive effect of physical activity on people with ID, the present study suggests that it is needed to initiate appropriate techniques used for motivation to participate in physical activity for this population.
Catlett, Susan M.; And Others
This study reviewed, over 2 years, all newspaper articles related to persons with disabilities in two major city newspapers with circulations of more than 500,000 (the Houston Post and the Los Angeles Times). The newspapers were reviewed to uncover trends and themes in the articles which reflected subtleties of views toward persons with…
van Nijnatten, Carolus; Heestermans, Marianne
Background: Personal narratives are conditional for victims of sexual abuse to overcome their trauma. Counsellors can help victims with intellectual disability to take an active position in conversations about sexuality and to co-construct a personal narrative. Method: Using discourse and conversational analysis, we studied 4 conversations between…
Organisation for Economic Cooperation and Development, Paris (France). Centre for Educational Research and Innovation.
This report presents findings of a 3-year study (1994-1997) of post-compulsory educational opportunities for adolescents and adults with disabilities in 10 European countries (Finland, France, Iceland, Ireland, Italy, the Netherlands, Norway, Spain, Sweden, United Kingdom), Australia, and the Canadian provinces of British Columbia and Quebec. It…
Eichinger, Joanne; And Others
This study investigated changes in attitudes toward persons with disabilities among students in an introductory special education class (n=49) and a control group of students (n=53) in a general education class. Intervention involved information, contact, and persuasive messages over 10 weeks. Experimental students reported that contact was the…
Popular socio-medical discourses surrounding the sexuality of disabled people have tended to subjugate young people with disabilities as de-gendered and asexual. As a result, very little attention has been given to how young people with disabilities in the African context construct their sexual identities. Based on findings from a participatory research study conducted amongst Zulu-speaking youth with physical and visual disabilities in KwaZulu-Natal, this paper argues that young people with disabilities are similar to other non-disabled youth in the way they construct their sexual identities. Using a post-structural framework, it outlines how the young participants construct discursive truths surrounding disability, culture and gender through their discussions of love and relationships. In this context, it is argued that the sexual identities' of young people with physical and visual disabilities actually emerges within the intersectionality of identity discourses.
Kattari, Shanna K; Turner, George
People with disabilities often experience the idea that those with disabilities are not, or should not be, sexual beings. This article examines how people with physical disabilities define sexual activity, their levels of sexual satisfaction, group differences in how people define different acts as sexual activities, and the differences in levels of sexual satisfaction. Additionally, this study (N = 450) looks at the correlations between levels of independence in multiple contexts. Levels of independence are also assessed in relationship to severity of disability and sexual satisfaction. Implications for social work and social service practice, education, and policy are discussed.
Priestley, Mark; Waddington, Lisa; Bessozi, Carlotta
This paper addresses the challenges of building capacity for collaborative participatory research with disabled people's organisations in European countries. The paper presents initial findings from the project "European Research Agendas for Disability Equality" (EuRADE), which seeks to build the capacity of civil society organisations…
Ontario Dept. of Education, Toronto.
This publication provides instructions and visual diagrams both for adapting existing structures and for building new facilities to meet the special needs of the disabled. Each of the two main sections is divided into two parts: "The Site" and "The Building." The first section, "Modification of Existing Schools,"…
The targeting of an UK extra-cost disability benefit for older people, Attendance Allowance, is analyzed using longitudinal data from the British Household Panel Survey. First, a binary model of benefit participation is used to investigate whether receipt is responsive to the onset of disability. Second, matching estimators are used to evaluate the consequences of missed participation on later financial wellbeing. Results indicate that participation is highly responsive to the onset of disability, although the chance of delays in receipt emerges. Personal characteristics unrelated to eligibility also appear to influence benefit receipt, translating into sizeable differences in the amount of cash support received. The comparison of recipients with observationally equivalent non-recipients confirms that timely participation reduces disabled older people's financial strain.
Björnsdóttir, Kristín; Stefánsdóttir, Guðrún V; Stefánsdóttir, Ástríður
This article discusses autonomy in the lives of adults with intellectual disabilities. The article draws on inclusive research in Iceland with 25 women and 16 men and employs ideas of relational autonomy from the perspectives of the Nordic relational approach to disability. In this article, we examine autonomy in relation to private life, that is, homes and daily activities. The article demonstrates how practices have improved with time and seem less paternalistic. However, the article also demonstrates that the assistance people with intellectual disabilities receive in their homes often has institutional qualities, and they are often met with belittling perspectives from staff and family members. Furthermore, many did not have access to important information needed to develop individual autonomy and independence, including making their own choices. The research findings suggest that people with intellectual disabilities can with appropriate support develop individual autonomy and make their own choices.
Sahlin, K Barbara; Lexell, Jan
Physical activity and exercise is the mainstay of chronic disease prevention and health maintenance for all people with and without a disability, and clear evidence exists of the benefits among various populations with neurologic disabilities. However, the potential benefits of organized sports for people with neurologic disabilities are not as well explored. In this narrative review, current evidence regarding the impact of organized sports on activity, participation, and quality of life in people with neurologic disabilities of all ages is summarized, and facilitators of and barriers to participation in sports for this population are discussed. The articles reviewed were divided into 2 sets: (1) children and adolescents and (2) adults. The subjects of almost all of the studies were persons with a spinal cord injury. Children and adolescents with a disability who engaged in sports reported self-concept scores close to those of able-bodied athletes, as well as higher levels of physical activity. Adults with a spinal cord injury who engaged in organized sports reported decreased depression and anxiety, increased life satisfaction, and increased opportunity for gainful employment compared with nonathletic persons with disabilities. General facilitators, regardless of age, were fitness, fun, health, competence, and social aspects, whereas overall barriers were lack of or inappropriate medical advice and facilities, decreased self-esteem, poor finances, dependency on others, and views held by others. The importance of this topic for further research is highlighted, and suggestions for future studies are proposed.
The study investigated vocational activities of 274 English young people between the ages of 15 and 21. Two-thirds entered occupational centers for disabled adults; only 5% found a job in open employment. The physically impaired experienced a more difficult transition but the mentally impaired faced a more limited range of vocational choices.…
Clarke, Zara Jane; Thompson, Andrew R.; Buchan, Linda; Combes, Helen
There are few measures of pain for people with limited ability to communicate. Eight parents of adults with a known learning disability and associated physical health complaint were interviewed to explore their experience of identifying and managing the pain felt by their children. The parents did not often perceive their son or daughter to be in…
Doughty, Adam H.; Kane, Lindsey M.
Lumley and Miltenberger (1997) noted the paucity of empirical investigations involving teaching sexual-abuse-protection skills to people with intellectual disabilities. We reviewed relevant empirical investigations since 1997. Six studies trained sexual-abuse-protection skills, and two also included protection skills related to physical and verbal…
Daly, Louise; Sharek, Danika; DeVries, Jan; Griffiths, Colin; Sheerin, Fintan; McBennett, Padraig; Higgins, Agnes
Background: This article reports on an evaluation of four family support programmes in Ireland for families of people with a physical or an intellectual disability or autism. The focus of the evaluation, which took place within a year of the programmes' completion, was on establishing whether the programmes had an impact on families' capacity to…
May, Michael E; Kennedy, Craig H
Good health significantly improves a person's quality of life. However, people with intellectual disabilities disproportionately have more health problems than the general population. Further complicating the matter is that people with more severe disabilities often cannot verbalize health complications they are experiencing, which leads to health problems being undiagnosed and untreated. It is plausible these conditions can interact with reinforcement contingencies to maintain problem behavior because of the increased incidence of health problems among people with intellectual disabilities. This paper reviews common health problems influencing problem behavior and reinforcement processes. A clear implication of this review is the need for comprehensive functional assessments of problem behavior involving behavior analysts and health professionals. PMID:22532888
This article considers the increased vulnerability of people with a learning disability to crime ranging from verbal abuse to physical or sexual assault. The difficulties faced by people with a learning disability in giving evidence, being treated as credible witnesses and ensuring that the alleged offender has to answer charges are explored. It is suggested that ways of remedying these difficulties must be pursued in order that all citizens have equal rights, including access to the processes of the civil and criminal justice system. Offences committed within service settings should be treated as they would in any other sphere of society and should be recorded, investigated and the appropriate action taken.
The sexual health of people with learning disabilities raises important management and practice issues for health services, and should be examined in the context of the current policy emphasis on advocacy, person-centred services and social inclusion (Department of Health, 2001). People with learning disabilities may have limited access to mainstream health services, and sexual health and genitourinary medicine (GUM) services are no exception (DoH, 2001; 1998). They are often excluded from society, either because they are 'segregated' within specialist support services in the community or because they live in isolation with carers, and health and social care models do not always join up locally to meet their needs.
Beckett, Angharad E.
In the United Kingdom, the introduction of the Disability Equality Duty 2006 has provided a new window of opportunity to promote the idea that education has a role to play in changing non-disabled children/young people's attitudes towards disabled people. This article explores the issues raised by the application of the Disability Equality Duty to…
Haycock, David; Smith, Andy
Writing over a decade ago, Penney and Harris examined extra-curricular physical education (ECPE) provision in state schools in England and Wales and focused, in particular, on issues of inclusion, equality and equity. They concluded, among other things, that ECPE provision was highly gendered, characterised by a disproportionate emphasis on…
Thompson, D. J.; Ryrie, I.; Wright, S.
Background: As part of a UK programme of work focusing on older people with intellectual disabilities, the circumstance of those who reside in generic services for older people were investigated. Materials and methods: Questionnaires were sent to 2570 residential and nursing homes in 53 local authorities across the UK. Results: Five hundred and…
Individuals' feelings, beliefs and attitudes toward people with disabilities have an influence on their willingness to engage in the social relationship with people with disabilities such as forming friendship at the workplace or romantic relationship with people with disabilities. This study explored the attitudes of students toward people with…
Severe motion impairments can result from non-progressive disorders, such as cerebral palsy, or degenerative neurological diseases, such as Amyotrophic Lateral Sclerosis (ALS), Multiple Sclerosis (MS), or muscular dystrophy (MD). They can be due to traumatic brain injuries, for example, due to a traffic accident, or to brainstem strokes [9, 84]. Worldwide, these disorders affect millions of individuals of all races and ethnic backgrounds [4, 75, 52]. Because disease onset of MS and ALS typically occurs in adulthood, afflicted people are usually computer literate. Intelligent interfaces can immensely improve their daily lives by allowing them to communicate and participate in the information society, for example, by browsing the web, posting messages, or emailing friends. However, people with advanced ALS, MS, or MD may reach a point when they cannot control the keyboard and mouse anymore and also cannot rely on automated voice recognition because their speech has become slurred.
Background: Growing numbers of people with learning disabilities are now living into older age. This study aims to examine the state of knowledge about their lives and the challenges that ageing has for both family carers and policymakers and practitioners. Materials and Methods: The article synthesises existing research in the fields of learning…
Peckham, Nicholas Guy
In his capacity as a Clinical Psychologist the author provides psychological support to people with learning disabilities living in hospital and in the community. Frequently, the problem behaviour highlighted in referral letters (such as sexualized behaviour, anger management or self-harm) is formulated as relating to a past history of abuse and…
Embregts, P.; van den Bogaard, K.; Hendriks, L.; Heestermans, M.; Schuitemaker, M.; van Wouwe, H.
Given that sexually offensive behavior on the part of people with intellectual disabilities has been identified as a significant problem, we developed a risk assessment questionnaire, that takes not only various static and dynamic factors into account but also environmental risk variables. Psychologists and staff members completed this Risk…
Aujla, Imogen J.; Redding, Emma
Dance is a viable and enjoyable activity -- and potential career -- for young people with disabilities, yet they face several barriers to participation and training. The aim of this article, by Imogen J. Aujla of the University of Bedfordshire and Emma Redding of Trinity Laban Conservatoire of Music and Dance, is to review the literature on…
Willner, P.; Bailey, R.; Parry, R.; Dymond, S.
Background: Executive functioning (EF) is an important concept in cognitive psychology that has rarely been studied in people with intellectual disabilities (IDs). The aim of this study was to examine the validity of two test batteries and the structure of EF in this client group. Methods: We administered the children's version of the Behavioural…
Chan, Jacob Yui-Chung; Keegan, John P.; Ditchman, Nicole; Gonzalez, Rene; Zheng, Lisa Xi; Chan, Fong
Objective: To determine whether employment outcomes of people with disabilities can be predicted by the social-cognitive/attribution theory of stigmatization. Design: Ex post facto design using data mining technique and logistic regression analysis. Participants: Data from 40,585 vocational rehabilitation (VR) consumers were extracted from the…
Lin, Jin-Ding; Lin, Lan-Ping; Lin, Pei-Ying; Wu, Jia-Lin; Li, Chien-De; Kuo, Fang-Yu
The present study analyzed national data from "Domestic Violence Report System" derived primarily from the Council of Domestic Violence and Sexual Assaults Prevention, Ministry of the Interior, Taiwan, to describe the reported prevalence of domestic violence in people with disabilities and to examine the time-effect on the prevalence…
Williams, John M.
The author of this article, a disability columnist, attended the Seventh Annual Assistive Technology Industry Association (ATIA) Conference, which was held in Orlando, Florida in January 2006. The author shares his impressions from the conference, and highlights new products and innovations that will help improve quality of life for people with…
Nesbitt, John A.
Based on a presentation given at the 1974 National Conference on Commercial Recreation for Disabled People, the paper examines the role of commercial recreation in the lives of the handicapped. Examples of commercial recreation enterprises are listed for equipment, goods and products; recreation centers, services, and schools; entertainment;…
Roatch, Mary A.
Describes tools that enable people with disabilities to access print information, including optical character recognition, synthetic voice output, other input devices, Braille access devices, large print displays, television and video, TDD (Telecommunications Devices for the Deaf), and Telebraille. Use of technology by libraries to meet mandates…
Bigby, Christine; Frawley, Patsie; Ramcharan, Paul
Background: The inclusion of people with intellectual disability in research is a common requirement of research funding. Little conceptual clarity is available to guide the conduct of inclusive research or judge its fidelity, there is minimal evidence of its impact, and questions remain about its feasibility and rigour. Method: A comprehensive…
Background: The topic of funerals within the life cycle approach to care in the UK remains largely absent. This small exploratory study sought to investigate how practitioners deal with this sensitive issue and to capture the views of older people with and without intellectual disabilities about funerals. Methods: A semi-structured questionnaire…
Bates, Claire; Terry, Louise; Popple, Keith
Background: Love is important aspect of life, including to people with learning disabilities both historically and more recently. Participants value the companionship, support and social status associated with a partner. Relationships are considered mechanisms to meet certain needs including feeling loved, company, intimacy and enabling…
May, Michael E.
From an applied behavior-analytic perspective, aggression in people with intellectual disabilities is mostly maintained by social reinforcement consequences. However, nonsocial consequences have also been identified in functional assessments on aggression. Behaviors producing their own reinforcement have been labeled "automatic" or "nonsocial" in…
This report gives an update on the status of planning and delivery of mental health services for people with intellectual disability who have psychiatric disorders in Australia and New Zealand. A number of innovative approaches in policy and planning, legislative support, education, consultation, and coordination among services are discussed.…
Bergman, Joan S.
This course is designed to help direct caregivers of people with severe disabilities to better their understanding of the process of positioning. The instructor's guide contains content notes and implementation notes, along with sheets for overhead projection, worksheets, and handouts. The course is organized into 15 sections, totaling about 8…
Health literacy research and scholarship has largely overlooked the experiences of people with intellectual disabilities (ID), though growing concern about the health inequalities they face has increasingly given rise to health promotion interventions for this group. However, these interventions reference a rather limited vision of health literacy…
Costa, Nilson do Rosário; Marcelino, Miguel Abud; Duarte, Cristina Maria Rabelais; Uhr, Deborah
The article analyzes the social protection policy for people with disabilities in Brazil. It describes the patterns of demand and eligibility for Continued Benefit of Social Assistance (Benefício de Prestação Continuada - BPC) in the 1996-2014 period. The article argues that BPC is a direct result of the social pact achieved by the Brazilian Federal Constitution of 1988. BPC is a social assistance benefit consisting in an unconditional and monthly transference of the equivalent of a minimum wage, to poor people with deficiency and elders with more than 65 years. Disabled person eligibility depends on means-test, and social and medical evaluation by public bureaucracy. The research strategy was based on time series, and cross-sectional data collection and analysis. Dummy qualitative variables were also used to describe the pattern of demand and eligibility. The article demonstrates that BPC has provided income to disabled and elder people. However, systematic barriers were identified to disabled people's access to BPC. The work suggests that the pattern of refusal could be associated to a means testing application by street-level-bureaucracy. In this sense, the work draws attention to the necessary revision of street-level-bureaucracy tools and procedures to increase BPC positive discrimination.
Gajewska, Urszula; Trigg, Richard
Background: Day and community learning centres aim to provide intellectually disabled (ID) people with social support, life skills and greater control over their lives. However, there is little research exploring the benefits of attendance from the perspective of attendees and whether these goals are met. Materials and methods: Unstructured…
Earp, Brian D; Moen, Ole Martin
Thomsen (2015) argues that people with disabilities should be granted an exception to a general prohibition on paying for sex. In this response, we argue that Thomsen's call for an exception does not withstand careful scrutiny. The concerns that appear to motivate his argument point instead, we argue, to a case for legalization of prostitution, coupled with sensible health and safety regulations.
Getzel, Elizabeth Evans, Ed.; Wehman, Paul, Ed.
A college education can open the door to greater participation in the workplace and community. With this urgently needed, research-based book, readers will learn what they can do to make this crucial opportunity available to young people with a wide range of disabilities. Professionals who work in high schools and colleges--including disability…
Mansell, Jim; Beadle-Brown, Julie; Macdonald, Susan; Ashman, Bev
The effects of functional grouping of 303 people with intellectual disabilities on care practices in English group homes were investigated. Residents who were non-ambulant were rated as receiving care with less interpersonal warmth and residents with severe challenging behavior were rated as receiving care with less interpersonal warmth and…
Dieckmann, Friedrich; Giovis, Christos; Offergeld, Jana
Background: This study presents age group-specific mortality rates and the average life expectancy of people with intellectual disabilities in Germany. Method: For two samples from Westphalia-Lippe and Baden-Wuerttemberg, person-related data for the years 2007-2009 were analysed. Age group-specific mortality rates were estimated by exponential…
Vanlint, S.; Nugent, M.
Background: People with intellectual disability (ID) are thought to be at an increased risk of fractures. The extent of this increase in risk has been incompletely documented in the literature, and the underlying reasons remain to be elucidated. Methods: The aims of our study were to document the vitamin D status and fracture incidence in an…
The Internet can be an excellent tool to help people with learning disabilities access relevant and appropriately written information. However, little work has been undertaken to ascertain web design or content preferences for this cohort. This paper examines methods to address this issue. Twenty five participants were presented with three web…
Randell, M.; Cumella, S.
Background: Hospital closure programmes in England have generally sought to attain a fulfilling life for people with an intellectual disability by locating them in domestic-style housing in urban settings. Few have been placed in intentional or "village" communities. Yet comparative studies of different housing types have found that…
Williams, Peter; Hennig, Christian
Much relevant internet-mediated information is inaccessible to people with learning disabilities because of difficulties in navigating the web. This paper reports on the methods undertaken to determine how information can be optimally presented for this cohort. Qualitative work is outlined where attributes relating to site layout affecting…
Motl, Robert W
Multiple sclerosis (MS) is a neurological disease that may result in the progressive worsening of disability. Recent research has identified physical activity as a behavioral correlate of disability in MS. The current review highlights that previous research has generally included samples with minimal disability and provides a rationale for considering physical activity as an influence of disability in the second stage of MS.
Barg, Carolyn J.; Armstrong, Brittany D.; Hetz, Samuel P.; Latimer, Amy E.
Using the stereotype content model as a guiding framework, this study explored whether the stigma that able-bodied adults have towards children with a physical disability is reduced when the child is portrayed as being active. In a 2 (physical activity status) x 2 (ability status) study design, 178 university students rated a child described in…
This paper addresses the differences between emotional and behavioral disorders, physical and health impairments and Traumatic brain Injury at the level of definitions, causes, and characteristics. It also describes specific and the most effective instructional strategies for students with these disabilities. It further suggests ways and means by…
Xiong, Nina; Yang, Li; Yu, Yang; Hou, Jiaxun; Li, Jia; Li, Yuanyuan; Liu, Hairong; Zhang, Ying; Jiao, Zhengang
The family economic burden of raising autistic children, physical disabled children and mental disabled children were evaluated in China. 227 parents of children with autism, children with physical disability, children with mental disability and normal children were interviewed for children's costs, family income and economic assistance, etc. The…
Kuper, Hannah; Itimu-Phiri, Ambumulire; Holm, Rochelle; Biran, Adam
Globally, millions of people lack access to improved water, sanitation and hygiene (WASH). Disabled people, disadvantaged both physically and socially, are likely to be among those facing the greatest inequities in WASH access. This study explores the WASH priorities of disabled people and uses the social model of disability and the World Health Organization’s International Classification of Functioning, Disability and Health (ICF) framework to look at the relationships between impairments, contextual factors and barriers to WASH access. 36 disabled people and 15 carers from urban and rural Malawi were purposively selected through key informants. The study employed a range of qualitative methods including interviews, emotion mapping, free-listing of priorities, ranking, photo voice, observation and WASH demonstrations. A thematic analysis was conducted using nVivo 10. WASH access affected all participants and comprised almost a third of the challenges of daily living identified by disabled people. Participants reported 50 barriers which related to water and sanitation access, personal and hand hygiene, social attitudes and participation in WASH programs. No two individuals reported facing the same set of barriers. This study found that being female, being from an urban area and having limited wealth and education were likely to increase the number and intensity of the barriers faced by an individual. The social model proved useful for classifying the majority of barriers. However, this model was weaker when applied to individuals who were more seriously disabled by their body function. This study found that body function limitations such as incontinence, pain and an inability to communicate WASH needs are in and of themselves significant barriers to adequate WASH access. Understanding these access barriers is important for the WASH sector at a time when there is a global push for equitable access. PMID:27171520
Martínez-Pérez, Jose; Porras Gallo, María Isabel
This paper aims to analyse the role played by Medicine, against a background of social reform in the first third of the 20th Century, in helping to shape the nature of disabilities in Spain. We look at the legislation passed to regulate occupational accidents and the institutions set up to look after accident victims with physical or functional disabilities from the perspective developed in the new academic field of disability studies and using scientific and professional journals as well as documentation from Spain's legislative chambers as our main sources. We attempt to examine the extent to which these developments helped to transform the existing social perception of people with disabilities.
Mulligan, Hilda F.; Hale, Leigh A.; Whitehead, Lisa; Baxter, G. David
People with disability are insufficiently physically active for health. This study identified the volume, quality, and findings of research that exposes environmental and personal barriers of physical activity participation for people with neurological conditions. CINAHL, Sport Discus, EMBASE, Medline, and AMED were systematically searched between…
Mollaoğlu, Mukadder; Tuncay, Fatma Özkan; Fertelli, Tülay Kars
The objective of this descriptive and analytical study is to examine mobility disability and life satisfaction in elderly people living in nursing home residences and analyze the relationship between them. The study was conducted over 78 elderly people in two nursing home residences. The data of this study were obtained through a personal information form (PIF), the Rivermead mobility index (RMI) and the life satisfaction scale (LSS). It was detected that life satisfaction levels of elderly people were average, a great majority of them went through mobility disability and there was a significant correlation between mobility and life satisfaction. It was established that in elderly people mobility was affected by the age, gender and chronic diseases while life satisfaction was related to age, education level and health perception level. Disability is a factor that has a significant effect on the life satisfaction of elderly people. The findings of this study will be useful for planning interventions to improve mobility and satisfaction with life among nursing home elders in Turkey.
Rimmer, James H; Lai, Byron; Young, Hui-Ju
Most of the published research on exercise and disability has focused on short-term efficacy studies targeting specific disability groups. These studies often use grant-related or other financial resources to temporarily remove the many barriers that people with physical/mobility disability experience when attempting to become physically active. In this commentary, we explore how technology can be used to promote more sustainable physical activity outcomes in the home and community using a set of 4 overlapping domains: Access, Usability, Adherence, and Health and Function. In addition, we describe how the order in which these domains should be addressed will vary depending on the needs of the target group and the context of their environment. Finally, we provide examples of various types of technologies (eg, hardware and software) that can support the "afterlife" of successful short-term exercise and rehabilitation trials in people with physical/mobility disability who desire to self-manage their own health and maintain a regular and sustainable pattern of physical activity across their life span.
Leutar, Zdravka; Vitlov, Josipa; Leutar, Ivan
This article presents a qualitative study designed to gain insight into personal experience and perception of abuse in people with intellectual disabilities. Ten members of the organization for people with intellectual disabilities in Zadar, Croatia, who have a diagnosis of light or moderate intellectual disability, were included in the research. Analysis of responses showed that most participants had experienced psychological, physical and financial abuse. The most frequent perpetrators of abuse were identified by participants as friends, acquaintances and volunteer carers. Typical sites for the experience of abuse were school, social clubs/support institutions, the street and the urban environment. Most participants seek assistance and support in cases of abuse through discussion with their loved ones, mostly their parents and friends. In addition to such informal relationships, some participants mentioned the importance of formal forms of support.
Mcloughlin, Leigh; Fryazinov, Oleg; Moseley, Mark; Sanchez, Mathieu; Adzhiev, Valery; Comninos, Peter; Pasko, Alexander
The SHIVA project was designed to provide virtual sculpting tools for young people with complex disabilities, allowing them to engage with artistic and creative activities that they might otherwise never be able to access. Their creations are then physically built using 3D printing. To achieve this, the authors built a generic, accessible GUI and a suitable geometric modeling system and used these to produce two prototype modeling exercises. These tools were deployed in a school for students with complex disabilities and are now being used for a variety of educational and developmental purposes. This article presents the project's motivations, approach, and implementation details together with initial results, including 3D printed objects designed by young people with disabilities.
Coates, Janine; Vickerman, Philip B
The London 2012 Olympic and Paralympic Games aimed to deliver a legacy to citizens of the United Kingdom, which included inspiring a generation of young people to participate in sport. This study aimed to understand the legacy of the Paralympic Games for children with disabilities. Eight adolescents (11-16 yr) with physical disabilities were interviewed about their perceptions of the Paralympic Games. Thematic analysis found 3 key themes that further our understanding of the Paralympic legacy. These were Paralympians as role models, changing perceptions of disability, and the motivating nature of the Paralympics. Findings demonstrate that the Games were inspirational for children with disabilities, improving their self-perceptions. This is discussed in relation to previous literature, and core recommendations are made.
Bond, Bradley J.
Research Findings: Media representations of physical disability can influence the attitudes of child audiences. In the current study, the depiction of physical disability was analyzed in more than 400 episodes of children's television programming to better understand how media depict physical disability to children and, in turn, how exposure may…
Book of Renovations. A Compilation of Drawings Depicting the Most Common Problems and Solutions to Renovating Existing Buildings and Facilities to Make Them Accessible to and Usable by People with Physical Disabilities.
Scott, Bruce H., Ed.
This booklet presents a compilation of ideas and illustrations intended to solve many accessibility problems of physically handicapped persons using older buildings and facilities which were built before legislation and regulations mandating accessibility for disabled persons were passed. The solutions pictured in the booklet are intended to meet…
McKeon, Michael; Slevin, Eamonn; Taggart, Laurence
People with intellectual disability (ID) are reported as a sedentary population with increased risks of poor health due to an inactive and sedentary lifestyle. As the benefits of physical activity are acknowledged, measuring physical activity accurately is important to help identify reasons for low and high physical activity in order to assist and…
Kleinitz, Pauline; Calina, Liezel; Alcido, Ma Rowena; Gohy, Bérengère; Hall, Julie Lyn
Introduction It is estimated that 15% of the world’s population has a disability, and disasters increase their risk and vulnerability. Rehabilitation services were limited in the area of the Philippines that was affected by Typhoon Haiyan. This study describes the initial rehabilitation needs assessment and activities to increase rehabilitation services conducted in Leyte province of Region 8 after Haiyan. Method A rehabilitation needs assessment for people with disabilities and injuries needing physical and functional rehabilitation care and assistive devices was conducted in health facilities, evacuation centres and selected municipalities in Leyte province between 9 November 2013 and 30 April 2014 by a consortium of agencies. Improvements to service delivery and referrals were documented. Results Rehabilitation services were reduced immediately after Haiyan, but they increased in the following months and peaked four months after Haiyan. There were 2998 individuals needing medicine and rehabilitation management, functional care and assistive devices. These included persons with pre-existing disabilities whose situations had worsened and people who had sustained injuries in the typhoon. Additional improvements included rehabilitation services with provision of assistive devices at the regional hospital, development of a directory of disability services in the region and advocacy through community-based rehabilitation. Discussion Information services and community knowledge for people with disabilities improved in Region 8 after Typhoon Haiyan, demonstrating that strengthening rehabilitation systems is a realistic goal after disasters. PMID:26767137
Background: It is now expected that projects addressing the lives of people with learning disabilities include people with learning disabilities in the research process. In the past, such research often excluded people with learning disabilities, favouring the opinions of family members, carers and professionals. The inclusion of the voices of…
Bentley, Sarah; Nicholls, Rickie; Price, Maxine; Wilkinson, Aaron; Purcell, Matthew; Woodhall, Martin; Walmsley, Jan
We are five young people with learning disabilities who found out about the history of hospitals for people with learning disabilities in our area, and made a film about the project. The project taught us what life had been like for some people with learning disabilities only 30 years ago. It was very different to our lives; we have more choice,…
Dagnan, Dave; Jahoda, Andrew
Background: Distinct cognitive models and treatments have been developed for people without intellectual disability with a wide range of anxiety disorders. However, these have not been reported as applied to people with intellectual disabilities. In fact, much of the cognitive therapy literature for people with intellectual disabilities does not…
Wadensten, Barbro; Ahlström, Gerd
The aim of this study was to investigate the experiences of persons with severe functional disabilities who receive personal assistance in their homes, the focus being on their daily life in relation to the ethical principles represented in the Swedish Disability Act: autonomy, integrity, influence and participation. Qualitative interviews were performed with 26 persons and thereafter subjected to qualitative latent content analysis. The experiences of personal assistance were very much in accordance with the said principles, the most important factor being that one is met with understanding. The participants described situations in which their integrity was violated in that they were not treated as competent adults. This indicates the importance of future efforts in nursing to support personal assistants with ethical knowledge and supervision so that they can empower people with disabilities and thereby enable them to maintain their self-esteem and dignity.
Kazi, Zunaid; Beitler, Matthew; Salganicoff, Marcos; Chen, Shoupu; Chester, Daniel; Foulds, Richard
The development of an assistive telerobotic system which integrates human-computer interaction with reactive planning is the goal of our research. The system is intended to operate in an unstructured environment, rather than in a structured workcell, allowing the user considerably freedom and flexibility in terms of control and operating ease. Our approach is based on the assumption that while the user's world is unstructured, objects within are reasonably predictable. We reflect this arrangement by providing a means of determining the superquadric shape representation of the scene, and an object-oriented knowledge base and reactive planner which superimposes information about common objects in the world. A multimodal user interface interprets deictic gesture and speech inputs with the goal of identifying the object that is of interest to the user. The multimodal interface performs a critical disambiguation function by binding the spoken words to a locus in the physical work space. The spoken input is also used to supplant the need for general purpose object recognition. Instead, 3D shape information is augmented by the users spoken word which may also invoke the appropriate inheritance of object properties using the adopted hierarchical object-oriented representation scheme. The underlying planning mechanism results in a reactive, intelligent and `instructible' telerobot. We describe our approach for an intelligent assistive telerobotic system (MUSIIC) for unstructured environments: speech-deictic gesture control integrated with a knowledge-driven reactive planner and a stereo-vision system.
Nasuti, Gabriella; Temple, Viviene A
Snow sports are popular pastimes with therapeutic potential. The aim of this review is to evaluate the risk of injury and evidence of benefits of alpine skiing (including sit-skiing), Nordic skiing, and snowboarding for people with disabilities. Ten studies met the inclusion criteria from 357 citations. Research in this area is still in its infancy, but the risks of engaging in snow sports appear no greater than those of the general population, and there is some evidence that skiing can positively influence self-esteem, physical self-worth, standing balance, and gross motor function among individuals with a disability.
Morris, John T.; Mueller, James L.; Jones, Michael L.
Introduction: People with disabilities are generally more vulnerable during disasters and public emergencies than the general population. Physical, sensory and cognitive impairments may result in greater difficulty in receiving and understanding emergency alert information, and greater difficulty in taking appropriate action. The use of social media in the United States has grown considerably in recent years. This has generated increasing interest on the part of national, state and local jurisdictions in leveraging these channels to communicate public health and safety information. How and to what extent people with disabilities use social and other communications media during public emergencies can help public safety organizations understand the communication needs of the citizens in their jurisdictions, and plan their social media and other communications strategies accordingly. Methods: This article presents data from a survey on the use of social media and other communications media during public emergencies by people with disabilities conducted from November 1, 2012 through March 30, 2013. Results: The data presented here show four key results. First, levels of use of social media in general are high for people with disabilities, as well as for the general population. Second, use of social media during emergencies is still low for both groups. Third, levels of use of social media are not associated with income levels, but are significantly and strongly associated with age: younger people use social media at higher rates than older people in both groups (p<0.001). Fourth, differences in the use of social media during emergencies across disability types are slight, with the exception of deaf and hard-of-hearing respondents, the former more likely to have used social media to receive (p=0.002), verify (p=0.092) and share (p=0.007) emergency information. Conclusion: These last two results suggest that effective emergency communications strategies need to rely on
González, Marta; Luis Fernández, José
Purpose: the purpose of this paper is to show that reporting the corporate commitment to labor exclusion of people with disability correlates with the increase of consumer loyalty. Methodology: It is a theoretical revision that will relate consumer loyalty to three main topics: disability and labor exclusion, responsible consumerism toward disability, and corporate communication to increase loyalty of those consumers that are concerned about this problem. Findings: • Disability is an invisible phenomenon that concerns the whole of human society. So, the exclusion of the collective appears as a great social problem that might be dealt by the companies to be perceived as responsible. • Responsible companies are awarded with the loyalty of the consumers. • Clear corporate information about the commitment with this problem will reinforce the loyalty toward the brand. • This information can be given in an informal way or by following a certification process. The impact of those methods will depend on how disability is understood by each consumer. Originality/value: This paper focuses on a topic usually neglected by companies and even by literature. However, the fact that more and more companies are paying attention to this problem allows us to think that we are facing a social change that will challenge companies. PMID:27445880
Trupin, Laura; Rice, Dorothy P.; Max, Wendy
This statistical abstract presents data on the sources of payment for medical care for people with disabilities in different age groups. All estimates come from the National Medical Expenditures Survey, a nationally representative survey of the civilian non-institutionalized population of the U.S. conducted in 1987. Six categories of payment…
Lucas-Carrasco, Ramona; Eser, Erhan; Hao, Yuantao; McPherson, Kathryn M; Green, Ann; Kullmann, Lajos
This paper describes the development of a Quality of Care and Support (QOCS) scale for use with adult persons with physical and intellectual disabilities. In the pilot phase of the study, 12 centers from around the world carried out focus groups with people with physical and disabilities, their carers, and with professionals in order to identify themes that were relevant for their quality of care. Items generated from the focus groups were then tested in a pilot study with 1400 respondents from 15 different centers worldwide, with items being tested and reduced using both classical and modern psychometric methods. A field trial study was then carried out with 3772 respondents, again with the use of both classical and modern psychometric methods. The outcome of the two rounds of data collection and analysis is a 17-item module for assessment of quality of care in physically or intellectually disabled people. Further modifications are also proposed for the use of the QOCS with adults with intellectual disabilities, including simplification of wording of some of the items, the use of a three-point response scale, and the inclusion of smiley faces.
Bezyak, Jill L.; Chan, Fong; Chiu, Chung-Yi; Kaya, Cahit; Huck, Garrett
Purpose: To evaluate the measurement structure of the "Physical Activity Scale for Individuals With Physical Disabilities" (PASIPD) as an assessment tool of lifestyle physical activities for people with severe mental illness. Method: A quantitative descriptive research design using factor analysis was employed. A sample of 72 individuals…
Jones, Isla; Marshall, Julie; Lawthom, Rebecca; Read, Jennifer
The World Report on Disability recommends more involvement of people with disabilities in research. However, the lead article by Wylie, McAllister, Davidson, and Marshall (2013) has not addressed issues relating specifically to the involvement of people with communication disabilities in research. This deserves careful consideration. Involving people with communication difficulties in research forefronts discussion and collaboration, and requires researchers to focus on the priorities and needs of people with communication disabilities in their locality. Taking a participatory approach to research can develop a rich, context-specific understanding of communication disabilities. This paper uses the first author's experience preparing for a participatory research project in Uganda, to outline, particularly with reference to the Majority World, the benefits and challenges of engaging people with communication disabilities in research.
Across South Africa there is a growing body of work that explores gender dynamics in heterosexual relationships between young people aged 15-24 years. This is mainly influenced by the high prevalence of HIV and the incidence of intimate partner violence in this age group. Most studies to date have been based upon non-disabled young people, with limited focus on young disabled people. In an attempt to address this gap, this paper describes findings from a study conducted with 22 Zulu-speaking young people with visual and physical disabilities in KwaZulu-Natal. Throughout the findings, young disabled participants appeared to downplay their disability with respect to intimate relationships and accentuated the interweaving of complementary and contentious discourses of gender and cultural identity. Taking cognisance of the intersectionality of gender and cultural discourses, the paper extend constructs of disabled sexualities beyond an exclusive gaze on disability in the South African context.
This paper is focused on three basic questions: The first concerns when specific disabilities first appeared during human evolution. The second question has to do with causes of disabilities. The third question concerns social responses to people with disabilities. Discussions on each of the issues are presented.
Malone, Laurie A.; Fidopiastis, Cali M.; Padalabalanarayanan, Sangeetha; Thirumalai, Mohanraj; Rimmer, James H.
This perspective article explores the utility of active video gaming as a means of reducing sedentary behavior and increasing physical activity among youth with physical disabilities and limitations in lower extremity function who typically are excluded from mainstream exercise options. Youth with physical disabilities are disproportionately affected by health problems that result from sedentary behavior, lack of physical activity, and low fitness levels. Physical, programmatic, and attitudinal barriers have a synergistic and compounded impact on youths' ability to participate in physical activity. A recent health and wellness task force recommendation from the American Physical Therapy Association's Section on Pediatrics supports analyzing individualized health behaviors and preferences that are designed to improve fitness, physical activity, and participation in pediatric rehabilitation. This recommendation represents an opportunity to explore nontraditional options to maximize effectiveness and sustainability of pediatric rehabilitation techniques for youth with disabilities who could best benefit from customized programming. One new frontier in promoting physical activity and addressing common physical activity barriers for youth with physical disabilities is active video games (AVGs), which have received growing attention as a promising strategy for promoting health and fitness in children with and without disabilities. The purpose of this article is to discuss the potential for AVGs as an accessible option to increase physical activity participation for youth with physical disabilities and limitations in lower extremity function. A conceptual model on the use of AVGs to increase physical activity participation for youth with physical disabilities is introduced, and future research potential is discussed, including a development project for game controller adaptations within the Rehabilitation Engineering Research Center on Interactive Exercise Technologies
Rowland, Jennifer L; Malone, Laurie A; Fidopiastis, Cali M; Padalabalanarayanan, Sangeetha; Thirumalai, Mohanraj; Rimmer, James H
This perspective article explores the utility of active video gaming as a means of reducing sedentary behavior and increasing physical activity among youth with physical disabilities and limitations in lower extremity function who typically are excluded from mainstream exercise options. Youth with physical disabilities are disproportionately affected by health problems that result from sedentary behavior, lack of physical activity, and low fitness levels. Physical, programmatic, and attitudinal barriers have a synergistic and compounded impact on youths' ability to participate in physical activity. A recent health and wellness task force recommendation from the American Physical Therapy Association's Section on Pediatrics supports analyzing individualized health behaviors and preferences that are designed to improve fitness, physical activity, and participation in pediatric rehabilitation. This recommendation represents an opportunity to explore nontraditional options to maximize effectiveness and sustainability of pediatric rehabilitation techniques for youth with disabilities who could best benefit from customized programming. One new frontier in promoting physical activity and addressing common physical activity barriers for youth with physical disabilities is active video games (AVGs), which have received growing attention as a promising strategy for promoting health and fitness in children with and without disabilities. The purpose of this article is to discuss the potential for AVGs as an accessible option to increase physical activity participation for youth with physical disabilities and limitations in lower extremity function. A conceptual model on the use of AVGs to increase physical activity participation for youth with physical disabilities is introduced, and future research potential is discussed, including a development project for game controller adaptations within the Rehabilitation Engineering Research Center on Interactive Exercise Technologies
Saebu, M; Sørensen, M
The purpose of this study was to examine: (1) total physical activity and (2) the relative importance of functioning and disability, environmental and personal factors for total physical activity among young adults with a disability. The International Classification of Functioning, Disability and Health developed by the World Health Organization was used as a structural framework for a cross-sectional survey, based on a questionnaire. The population studied was 327 young adults (age 18-30) with a disability who were members of interest organizations for persons with disabilities. Using an adapted version of the self-administered short form of International Physical Activity Questionnaire (IPAQ), the sample reported some differences in physical activity related to the type and the onset of disability. Linear regression analyses revealed that personal factors demonstrated more power in explaining the variance in physical activity than both the environmental factors and factors related to functioning and disability. As for the able-bodied, intrinsic motivation and identity as an active person were the factors most strongly associated with physical activity behavior. This should have important consequences for how professionals try to motivate people with disabilities for physical activity, and how they plan and implement rehabilitation.
Frawley, Patsie; Bigby, Christine
Background: Civil and political participation lies at the core of citizenship. Increasingly, people with intellectual disability are members of disability advisory bodies. This study investigated the political orientations of advisory body members with intellectual disability, their participatory experiences, and the types of support they…
McColl, Mary Ann; Aiken, Alice; Schaub, Michael
Primary care has been ideally characterized as the medical home for all citizens, and yet recent data shows that approximately 6% do not have a family physician, and only 17.5% of family practices are open to new patients. Given acknowledged shortages of family physicians, this research asks the question: Do people with disabilities have particular difficulty finding a family physician? Health Care Connect (HCC) is a government-funded agency in Ontario Canada, designed to "help Ontarians who are without a family health care provider to find one". Using data from HCC, supplemented by interviews with HCC staff, the study explores the average wait time for patients with disabilities to be linked with a primary care physician, and the challenges faced by agency staff in doing so. The study found that disabled registrants with the program are only slightly disadvantaged in terms of wait times to find a family physician, and success rates are ultimately comparable; however, agency staff report that there are a number of significant challenges associated with placing disabled patients.
Bozkir, Çiğdem; Özer, Ali; Pehlivan, Erkan
Objective The purpose of this study was to investigate the prevalence of obesity, and the risk factors associated with it, in physically disabled adults living in the city centre of Malatya, Turkey. Method This research was designed as a cross-sectional study conducted on physically disabled people aged 20–65 years living in the city centre of Malatya. The prevalence of obesity in disabled people was within 95% CIs, the power was calculated as 80%, and the sample size of our population was calculated as 258 individuals. Results The prevalence of obesity was found to be 13.2%. The relationship between disability type and obesity status was found to be significant. The prevalence of obesity was 21.3% in visually impaired people, 17.9% in speech-impaired people, 17.8% in hearing-impaired people and 6.5% in orthopaedically disabled people. Conclusions Educational interventions on nutrition and lifestyle can be effective considering the high prevalence of obesity in visually impaired people, the prevalence of weakness in orthopaedically disabled people and the risk related to the area in which body fat is localised even when body mass index is within the normal range. Training disabled people in sports appropriate to their disability type and building appropriate facilities for those sports might have a positive effect. PMID:27609842
Human Resources Center, Albertson, NY.
In order to determine ways in which disabled and non-disabled people react to low levels of stress, the reliability of heart and respiratory measures under different conditions was studied. Eighty-five subjects (paraplegics, cardiacs, and physically normal controls) were given a variety of tests with the following results: over a 1-week interval…
Mac Giolla Phadraig, Caoimhin; Dougall, Alison; Stapleton, Siobhan; McGeown, Danielle; Nunn, June; Guerin, Suzanne
Background: In Ireland, people with learning disabilities have poor oral health. This is in part due to inappropriate oral health services. Recognising the value of inclusive approaches to research and healthcare planning, this study sought to include a group of people with learning disabilities in priority setting for oral health services in…
Performers with disabilities in the entertainment industry of Southern California work together as a cohesive force for change, challenging common misconceptions about disability reflected in television and movies. This qualitative study was based on videotaped interviews with a cohort of actors and media activists with physical disabilities working in television and film. Narratives, field notes, and reflexive journal entries were coded, analyzed, and interpreted using qualitative methods. Ethnography and grounded theory approaches were combined, offering a conceptual framework suggesting that, for the participants in this study, performance is a transformative occupation or of such primary importance as to substantially organize their lives. A love of acting appears to inspire the creativity, adaptiveness, and motivation necessary to advance their careers despite significant personal challenges and social barriers inhibiting participation within the industry. This study provides evidence of the potential for occupational engagement to change people's lives while also changing society.
Parmenter, Trevor R.
From a Westerner's perspective of the place of people with a disability in Asian society, there are similarities and differences between the two societies. A major problem for the Asian countries is their lack of reliable disability prevalence data. The stigmatization of people with a disability remains an international problem and is not confined…
Mitchell, Judith M.; Adkins, Rodney H.; Kemp, Bryan J.
A cross-sectional study investigated the role of both aging and disability on employment status over the life span. Current employment rates of 262 people with a disability and 115 people without a disability were compared. Impairments were polio, cerebral palsy, spinal cord injury, rheumatoid arthritis, stroke, and miscellaneous. Ages ranged from…
Based on ethnographic research conducted in north-west Cambodia in 2000-2001, this paper examines why disabled people experience systematic marginalisation in the labour market. Although there are no official data on the relationship between disability and employment status in Cambodia, this research suggests that disabled people are more likely…
... a period of disability. 404.250 Section 404.250 Employees' Benefits SOCIAL SECURITY ADMINISTRATION... Computation Rules for People Who Had A Period of Disability § 404.250 Special computation rules for people who... disability insurance benefits or die. (For purposes of §§ 404.250 through 404.252, we use the term...
Leutar, Zdravka; Vitlov, Josipa; Leutar, Ivan
This article presents a qualitative study designed to gain insight into personal experience and perception of abuse in people with intellectual disabilities. Ten members of the organization for people with intellectual disabilities in Zadar, Croatia, who have a diagnosis of light or moderate intellectual disability, were included in the research.…
Agran, Martin; MacLean, William; Andren, Katherine Anne Kitchen
Despite an increasing commitment in promoting the full inclusion of people with intellectual disability in their communities, it appears that few adults with intellectual disability participate in elections as registered voters. We surveyed a variety of stakeholders about voting by people with intellectual disability using quantitative and…
Brown, Jessica; Beail, Nigel
Background: Research into self-harm among people with intellectual disabilities has focused predominantly on high frequency internally maladaptive behaviour among people whose disability is severe or profound. Research into different forms of self-harm, such as cutting or burning the skin, found in those with mild intellectual disabilities;…
Momm, Willi; Koenig, Andreas
Community-based rehabilitation for disabled people has proved to have serious shortcomings, especially in terms of vocational training. The broader concept of community integration programs involves disabled people and local institutions in training and employment efforts to integrate the disabled into normal community life. (SK)
Background: Social inclusion is central to disability policies internationally. The high risk of social exclusion for people with intellectual disability is compounded for those with challenging behaviour. Method: A systematic literature review examined how social inclusion of people with intellectual disability and challenging behaviour has been…
Cuesta-Vargas, Antonio Ignacio; Paz-Lourido, Berta; Rodriguez, Alejandro
Neuromuscular and aerobic capacity can be reduced in people with intellectual disabilities (ID). Previous studies suggest these individuals might be particularly susceptible to losing basic functions because of poor physical fitness. The aim of this study is to describe the physical fitness profile of adult athletes with ID and identify whether…
van Schijndel-Speet, Marieke; Evenhuis, Heleen M.; van Wijck, Ruud; van Empelen, Pepijn; Echteld, Michael A.
Older people with intellectual disability (ID) are characterized by low physical activity (PA) levels. PA is important for reducing health risks and maintaining adequate fitness levels for performing activities of daily living. The aim of this study was to explore preferences of older adults with ID for specific physical activities, and to gain…
There has long been an "us" and "them" mentality when it comes to the production of disability narratives on screen, driven by an assumption that non-disabled people cannot accurately interpret the disabled experience. Given the appalling history of representations by non-disabled filmmakers, it is easy to understand why many academics and members…
Young, Anita F; Chesson, Rosemary A
What works and how do we know? These are recurring questions for health and social care professionals, although mediated through differing philosophies and historical perspectives. The aims of the study reported here were to discover views of managers and commissioners of services for people with learning disabilities in Scotland regarding (a) current approaches to service evaluation (as an indication of what is to be measured) and (b) healthcare outcome measurement (as an indication of preferences regarding how this should be measured). A postal questionnaire was used to survey 94 stakeholders from the NHS, Local Authorities, and non-statutory organisations across Scotland. Respondents' views were sought on current approaches to service evaluation within learning disabilities; outcome measurement; appropriateness of specified methods of measuring health outcomes; desired future methods of outcome measurement within learning disabilities; and service user involvement in care. A 77% (73/94) response rate to the questionnaire was achieved. Different methods of service evaluation were used by different stakeholders. Staff appraisal was the most frequently identified method (used by 85% of respondents). Specific outcome measures were used by 32% of respondents although there were differences of opinion as to what constitutes specific outcome measures. Overall there was strong support for goal-setting and reviewing (83%) and individualised outcome measures (75%) as appropriate methods for use with people with learning disabilities. The hypothetical question asking what outcome measures should be introduced for this client group had by far the lowest response rate (51/73). The overwhelming majority of all respondents, 68 (92%), reported user involvement in their service. Staff ambivalence to outcome measurement was evident in the research and respondents highlighted the complexity and multidimensional nature of outcomes for this service user group. Managers recognised
... it isn't a sickness. Most people with disabilities can - and do - work, play, learn, and enjoy full, healthy lives. Mobility aids and assistive devices can make daily tasks easier. About one in every five people in the United States has a disability. Some people are born with one. Others have ...
Shapiro, Deborah R; Martin, Jeffrey J
The purposes of this investigation were first to predict reported PA (physical activity) behavior and self-esteem using a multidimensional physical self-concept model and second to describe perceptions of multidimensional physical self-concept (e.g., strength, endurance, sport competence) among athletes with physical disabilities. Athletes (N = 36, M age = 16.11, SD age = 2.8) completed the Physical Self-Description Questionnaire. Participants reported mostly positive perceptions of self-esteem, global physical self-concept, endurance, body fat, sport competence, strength, flexibility, and physical activity (Ms ranging from 3.9 to 5.6 out of 6). Correlations indicated a number of significant relationships among self-esteem and reported PA and various dimensions of physical self-concept. Using physical self-concept, strength, endurance, and flexibility in the first regression equation and sport competence and endurance simultaneously in the second equation, 47 and 31% of the variance was accounted for in self-esteem and reported PA, respectively. The findings support the value of examining multidimensional physical self-concept as different aspects of the physical self appear to have different influences on reported PA engagement versus self-esteem.
Neely-Barnes, Susan Louise; Elswick, Susan E
The philosophy of inclusion for people with intellectual and developmental disabilities (IDD) has evolved over the last 50 years. Over time, inclusion research has shifted from a focus on deinstitutionalization to understanding the extent to which individuals with IDD are meaningfully involved in the community and social relationships. Yet, there has been no agreed on way to measure inclusion. Many different measurement and data collection techniques have been used in the literature. This study proposes a brief measure of inclusion that can be used with family members and on survey instruments.
Mental health in the workplace today are ubiquitous and cause significant dysfunction in organizations (turnover, absenteeism, presenteeism, early retirement, long sick…). Statements of professional unfitness for depression is of particular concern. The human and financial costs associated with the support of mental disability is important, in France it is estimated to 14 billion euros. Mental disorder in the workplace also has a significant impact on the individual. If not always leads to actual inability to work, it usually causes, from the disclosure of the disorder, professional inequalities related to perceived environmental work disability. Therefore, this type of public remains largely on the sidelines of a stable occupation and all forms of recognition and undergo disqualifications and some forms of exclusion. Instead of saving, the workplace can promote relapse and even constitute a real obstacle to improving health. These exclusionary behavior result in persistent employment resistance in France and elsewhere, especially because of the prejudice of employers. These resistances persist despite legal obligations in this regard (e.g. in France: Law of 11 February 2005 on Equal Rights and Opportunities). To address the issue of sustainable professional inclusion (recruitment, integration and job preservation) of people with mental disabilities, studies are especially developed for the rehabilitation in the workplace of this public or accompanying us in their professional reintegration into protected workplaces. We propose a reflection on the adaptation of knowledge about psychological processes of hiring discrimination in the particular employment situation of people with mental disabilities in ordinary workplaces. Researches on social representations, stereotypes and prejudices applied in the workplace help to understand the negative attitudes and resistance to the hiring of people with mental disabilities despite regulations. Representations of
... From the Federal Register Online via the Government Publishing Office DEPARTMENT OF HEALTH AND... Intellectual Disabilities; Notice of Committee Meeting via Conference Call AGENCY: President's Committee for People with Intellectual Disabilities (PCPID), HHS. ACTION: Notice of committee meeting via...
... From the Federal Register Online via the Government Publishing Office DEPARTMENT OF HEALTH AND... Intellectual Disabilities: Committee Meeting via Conference Call AGENCY: President's Committee for People with Intellectual Disabilities (PCPID). ACTION: Notice of committee meeting via conference call. DATES:...
Block, Martin E.; Taliaferro, Andrea; Moran, Tom
Physical activity and active use of leisure time is important for everyone but particularly important for youth with disabilities. Unfortunately, youth with disabilities often have a difficult time or are even excluded from participating in physical activity due to limited physical and cognitive skills, attitudinal barriers in the community, lack…
Sable, Janet R.
This study examined the effect of three physically integrated camping programs (physical integration alone or with disability awareness or inclusionary adventure programs) on adolescents' acceptance of peers with disabilities. Pretests and posttests indicated that physical integration did not make significant attitudinal changes, but both other…
Dalbudak, Ibrahim; Gürkan, Alper C.; Yigit, Sih Mehmet; Kargun, Mehmet; Hazar, Gürkan; Dorak, Feridun
This study aims to investigate visually disabled students', who study in the level of primary education, high school, university, attitudes about physical education and sport in terms of different variables. Totally 100 visually disabled students who are individual and team athletes and study in Izmir, (8 visually disabled athletes study in…
Evett, Lindsay; Ridley, Allan; Keating, Liz; Merritt, Liz; Merritt, Patrick; Shopland, Nick; Brown, David
Serious games are effective and engaging learning resources for people with disabilities, and guidelines exist to make games accessible to people with disabilities. During research into designing accessible interfaces and games, it was noted that people who are blind often report enjoying playing Wii Sports. These games are pick-upand- play games…
Ryan, Travis A.; Scior, Katrina
Background: People with intellectual disabilities experience serious health inequalities (e.g. they die younger than people without intellectual disabilities). Medical students' attitudes towards health care for this population warrant empirical attention because, as tomorrow's doctors, they will affect the health inequalities that people with…
Morin, Diane; Merineau-Cote, Julie; Ouellette-Kuntz, Helene; Tasse, Marc J.; Kerr, Michael
Some studies have reported the presence of health disparities in people with intellectual disability. This study compared the prevalence of chronic health conditions between people with and without intellectual disability (ID). Health-related data for 791 people with ID were collected through a province-wide mail survey in Quebec, Canada. The…
Davidson, Terence; Smith, Hilary; Burns, Jan
Researchers and clinicians have hypothesised that cognitive assessments have the power to influence the self-identity of people with learning disabilities. This research aimed to explore the experience of a sample of people who had been given a cognitive assessment by a psychologist based in a team for people with learning disabilities. Five…
The primary purpose was to extend Rizzo's research and identify the variables which contribute significantly to physical educators' positive beliefs about teaching children with disabilities. The second purpose was to structure physical educators' beliefs by conditions of disability. Participants were a stratified random sample of 168 physical educators, 79 men and 89 women from eastern USA. Responses to Rizzo's Physical Educators' Attitudes Toward Teaching Individuals with Disabilities-III indicated that teachers' beliefs were generally positive but varied by type of disability. Beliefs were more positive about teaching children with specific learning disabilities and less positive about teaching children with emotional and behavioral disorders. Significant predictors of positive beliefs were perceived competence, positive teaching experience with children with disabilities, and course work in adapted physical education. The study has important implications for programs of preparing students to teach.
May, Michael E
From an applied behavior-analytic perspective, aggression in people with intellectual disabilities is mostly maintained by social reinforcement consequences. However, nonsocial consequences have also been identified in functional assessments on aggression. Behaviors producing their own reinforcement have been labeled "automatic" or "nonsocial" in the behavior-analytic literature, a label that bares a striking resemblance to biobehavioral explanations of reward-seeking behaviors. Biobehavioral studies have revealed that aggression activates the same endogenous brain mechanisms as primary reinforcers like food. Therefore, integrating brain-environment explanations would result in a better understanding of the functional mechanisms associated with nonsocial aggression. The purpose of this paper was to explore aggression as a reinforcing consequence for reinforcement-seeking behaviors in people with intellectual disabilities. First, the literature establishing aggression as reinforcement for arbitrary responding will be reviewed. Next, the reward-related biological process associated with aggression was described. Finally, the paper discusses what might be done to assess and treat aggression maintained by nonsocial reinforcement.
Kazi, Zunaid; Chen, Shoupu; Beitler, Matthew; Chester, Daniel; Foulds, Richard
This paper reports on the current status of the multimodal user supervised interface and intelligent control (MUSIIC) project, which is working towards the development of an intelligent assistive telemanipulative system for people with motor disabilities. Our MUSIIC strategy overcomes the limitations of previous approaches by integrating a multimodal RUI (robot user interface) and a semi-autonomous reactive planner that will allow users with severe motor disabilities to manipulate objects in an unstructured domain. The multimodal user interface is a speech and deictic (pointing) gesture based control that guides the operation of a semi-autonomous planner controlling the assistive telerobot. MUSIIC uses a vision system to determine the three-dimensional shape, pose and color of objects and surfaces which are in the environment, and as well as an object-oriented knowledge base and planning system which superimposes information about common objects in the three-dimensional world. This approach allows the users to identify objects and tasks via a multimodal user interface which interprets their deictic gestures and a restricted natural language like speech input. The multimodal interface eliminates the need for general purpose object recognition by binding the users speech and gesture input to a locus in the domain of interest. The underlying knowledge-driven planner, combines information obtained from the user, the stereo vision mechanism as well as the knowledge bases to adapt previously learned plans to perform new tasks and also to manipulate newly introduced objects into the workspace. Therefore, what we have is a flexible and intelligent telemanipulative system that functions as an assistive robot for people with motor disabilities.
Grenier, Michelle; Collins, Karen; Wright, Steven; Kearns, Catherine
The purpose of this qualitative study was to assess the effectiveness of a disability sport unit in shaping perceptions of disability. Data from interviews, observations, and documents were collected on 87 elementary-aged students, one physical education teacher, and one teaching intern. Comparisons were drawn between fifth graders engaged in a five-week disability sport unit to fourth graders participating in their standard physical education curriculum. Findings revealed differences in the way fourth and fifth graders came to view individuals with disabilities. The results support an analysis of curriculum development that underscores the significance of the social model in positively impacting constructions of disability. Recommendations include the use of disability sports in physical education as an effective strategy for educating students in game play, knowledge of the Paralympics, and the inclusion of individuals with disabilities in a variety of sporting venues.
Hinman, Martha R.; Peterson, Cathryn A.; Gibbs, Karen A.
Most research on graduate students with disabilities (SWDs) has focused on medical education. The purposes of this study were to: (1) estimate the prevalence of students with physical disabilities (SWPDs) in physical therapy programs, (2) identify common types of physical disabilities, (3) document the types of accommodations requested by SWPDs,…
Lorenzo, Theresa; Joubert, Robin
This paper focuses on the reciprocal capacity building that occurred through collaborative research between occupational therapy departments from six higher education institutions in South Africa, community-based organizations and a disabled people's organization on disabled youth and their livelihoods. The authors aimed to identify principles for collaboration and capacity building from the pilot phase and first phase of the main study. Occupational therapy departments place students in communities for service learning experience, but little collaboration with disabled people's organizations and communities in research processes occurs that could enrich such partnerships and inform relevant curriculum development. Secondary data from different sources including a transcript of a focus-group interview with the researchers in the pilot phase, workshop reports, and transcripts of free-writing exercises done by researchers were analysed thematically, both inductively and deductively. Two themes are explored: first, reciprocal building of organizational capacity and, second, generating collaborative relationships. The principles that were identified are integral to the strengths and challenges faced when multiple organizations work together over a wide geographical area on a complex research topic that also builds capacity reciprocally.
Paudel, Yuba Raj; Dariang, Maureen; Keeling, Stephen J; Mehata, Suresh
Health planners and policy makers often overlook the needs of people with disability (PWDs) in less developed countries such as Nepal. The aftermath of conflict and earthquake has further escalated the need of people with disability in Nepal. While the country is preparing for the implementation of a national health sector strategy for the next five years and when the health system is being restructured, we believe that this is the right time to address needs of people with disability by strengthening the health system and operationalizing community based rehabilitation. Furthermore, there is a need of a standard database and monitoring system to regularly assess social inclusion of people with disability.
Stoffelen, J.; Kok, G.; Hospers, H.; Curfs, L. M. G.
Background: Empirical research on homosexuality among people with an intellectual disability (ID) is limited and, to date, very little is known regarding the personal experiences of gay and lesbian people with an ID. This study set out to answer the question: "What are the lived experiences of a specific cohort of homosexual people with an…
Powell, Robyn; Gilbert, Sheldon
This paper focuses on the effects of the hurricanes on people with all types of disabilities. The National Council on Disability (NCD) released another report that addressed in detail the specific challenges for people with psychiatric disabilities. Please refer to "The Needs of People with Psychiatric Disabilities During and After Hurricanes…
This article discusses the main advances and challenges for understanding and evaluating disability as a restriction for social participation. This new understanding has its origins in the 2006 WHO International Classification of Functioning, Disability, and Health - ICF, the 2001 UN Convention on the Rights of Persons with Disabilities, and more recently, the July 2015 Brazilian Inclusion of People with Disabilities Act (IPDA), also known as the Statute on Persons with Disabilities. The change in the understanding of disability from a merely biomedical perspective, to an understanding that is based on oppression and social inequality reinforces the idea that disability is not an individual attribute, but the result of a society that is not prepared for human diversity. Based on a legislative analysis of the many documents on policies regarding persons with disabilities, notably the IPDA and the evaluations of disability that the ICF already uses in Brazil, the main contention proposed is that classifying and valuing disability is challenging for professional evaluators as well as for Brazilian public policy. This is mainly due to the challenges of recognizing the barriers and environmental factors that hamper the full participation in society of people with disabilities.
Same, Anne; Lee, Elinda Ai Lim; McNamara, Beverley; Rosenwax, Lorna
Little is known about the significance of gardening services for frail elderly people. This study explored the value of a gardening service for frail older people and people with a disability living in the community. Using qualitative and quantitative data collected from pre-gardening (n = 38) and post-gardening service delivery interviews (n = 35) and the Housing Enabler, the value of a gardening service was examined. Findings suggest that the service had a positive impact on the independence and emotional well-being of frail aged people and younger people with a functional disability, with little impact on physical health. Results indicate that gardening services should be fundamental to planning for these populations to remain or return to living in the community. PMID:27746669
Same, Anne; Lee, Elinda Ai Lim; McNamara, Beverley; Rosenwax, Lorna
Little is known about the significance of gardening services for frail elderly people. This study explored the value of a gardening service for frail older people and people with a disability living in the community. Using qualitative and quantitative data collected from pre-gardening (n = 38) and post-gardening service delivery interviews (n = 35) and the Housing Enabler, the value of a gardening service was examined. Findings suggest that the service had a positive impact on the independence and emotional well-being of frail aged people and younger people with a functional disability, with little impact on physical health. Results indicate that gardening services should be fundamental to planning for these populations to remain or return to living in the community.
Mansell, Jim; Beadle-Brown, Julie; Macdonald, Susan; Ashman, Bev
The effects of functional grouping of people with intellectual disabilities on care practices in small residential homes in the community were investigated. A group comparison and a matched-pairs comparison were carried out in settings where less than or more than 75% residents were non-verbal, non-ambulant, had severe challenging behaviour, severe social impairment or were verbal and ambulant. Further analysis, focused on those with challenging behaviour was carried out using ordinal regression. In the group-comparison study, no significant differences were found for three of the five groups. Residents who were non-ambulant were rated as receiving care with less interpersonal warmth in grouped settings; residents with severe challenging behaviour were rated as receiving less good care practices in four respects (interpersonal warmth, assistance from staff, level of speech and staff teamwork) in grouped settings. The matched-pairs comparison found significant differences only for people with challenging behaviour, where grouped settings achieved less good results in terms of interpersonal warmth and staff teamwork. Higher adaptive behaviour and mixed settings were predictive of better care practices on 13 of 14 items of the Active Support Measure (ASM), with some setting variables also predictive for some items. Care practices only appear to vary for people with challenging behaviour, where grouped settings appear to offer less good results in some respects.
Kulik, Barbara J., Ed.
These two journal issues discuss topics relating to the physical and health disabilities of children and adults. The first issue contains the following articles: (1) "Position Statement on Specialized Health Care Procedures," by the Council for Exceptional Children's Division on Physical and Health Disabilities that calls for all…
Kulik, Barbara J., Ed.
This volume of "Physical Disabilities: Education and Related Services" contains the following featured articles: (1) "The Value of Standards-Based Curricula for Students with Physical and Health Disabilities" (Catherine L. Keating), which discusses how a standards-based evidence-based curriculum can provide a basis of consistency for all children…
Pagliuca, Lorita Marlena Freitag; Maia, Evanira Rodrigues
This study addresses the Cross-Cultural Nursing Theory, which develops foundations for care delivery, as the essence of nursing work, based on anthropology, which supports and explains culture and care aspects. This reflexive study was based on the Theory Analysis method to study the concepts aimed at constructing a Self-Assessment Instrument of Competencies for Cross-Cultural Care to Disabled People. After analyzing the main concepts, Culturally Competent Care and Cultural Communication, were analyzed, as well as the sub-concepts: assessment, values, bio-cultural diversity, skill, knowledge, identity, code and cultural empathy. The analysis cycle of cultural values supporting self-assessment was summarized. The Self-Assessment Instrument of Competencies for Cross-Cultural Nursing Care to Disabled People was constructed, specifically deafness, blindness or low sight, physical impairment and mental impairment, regarding greeting, accepting, helping, knowing and advocating. It is concluded that the theory joins characteristics for care delivery to disabled people.
We investigated the effects of age on muscle atrophy and the relationship of locomotor ability with the sarcopenia in trunk and lower-limb muscle using ultrasound. Age-related muscle atrophy in elderly women was greatest for the psoas major and internal oblique muscles among the trunk and lower limb muscles. The age-related decline in gluteus medius muscle was closely associated with daily physical activity. Physical disability influenced muscle atrophy in the trunk and lower limbs, especially in the quadriceps femoris, soleus, transversus abdominis and lumbar multifidus muscles among elderly women. These findings may be a useful guideline for muscle strength training to prevent physical disability in the elderly people.
Geonea, Ionut Daniel; Dumitru, Nicolae; Margine, Alexandru
In this paper is presented the design solution and experimental prototype of a wheelchair for disabled people. Design solution proposed to be implemented uses two reduction gears motors and a mechanical transmission with chains. It's developed a motion controller based on a PWM technology, which allows the user to control the wheelchair motion. The wheelchair has the ability of forward - backward motion and steering. The design solution is developed in Solid Works, and it's implemented to a wheelchair prototype model. Wheelchair design and motion makes him suitable especially for indoor use. It is made a study of the wheelchair kinematics, first using a kinematic simulation in Adams. Are presented the wheelchair motion trajectory and kinematics parameters. The experimental prototype is tested with a motion analysis system based on ultra high speed video cameras recording. The obtained results from simulation and experimentally tests, demonstrate the efficiency of wheelchair proposed solution.
Martínez-Zaragoza, Fermín; Campillo-Martínez, José M.; Ato-García, Manuel
Background: Overweight and obesity are major health risk factors in people with intellectual disabilities. The aim of this study was to test the effectiveness of a multicomponent programme (physical activity, diet and motivation) for overweight and obesity in adults with intellectual disabilities. Material and Methods: A quasi-experimental design…
Phillips, Louise; Wilson, Linda; Wilson, Erin
Background: This study sought to elucidate the extent to which behaviour support plans for people with intellectual disability are inclusive of best practice criteria, with a comparison made prior to and following proclamation of the Disability Act (2006) in Victoria, Australia. Method: This study used a data collection instrument developed by the…
Karl, Renee; McGuigan, Denise; Withiam-Leitch, Matthew L.; Akl, Elie A.; Symons, Andrew B.
There is evidence that early and frequent encounters with people with disabilities can improve medical students' knowledge, skills, and attitudes about disability. As part of a 4-year integrated curriculum in caring for patients with disabilities, third-year medical students ("n" ?=? 144) in a Family Medicine clerkship participated…
Patka, Mazna; Keys, Christopher B.; Henry, David B.; McDonald, Katherine E.
The acceptance and inclusion of persons with intellectual disability can vary across cultures, and understanding attitudes can provide insight into such variation. To our knowledge, no previous study has explored attitudes toward people with intellectual disability among Pakistani community members and disability service providers. We administered…
Exceptional Parent, 2011
This article is the third of a 4-part series on "Health Promotion and Wellness" from the American Association on Health and Disability (AAHD). It focuses on health disparities and people with disabilities. Health disparities are differences in health outcomes between groups that reflect social inequalities. Disability rates vary by ethnicity, age,…
National Council on Disability, Washington, DC.
This report is based upon testimony submitted by mental health professionals; lawyers; advocates; people with psychiatric disabilities and their families at the National Council of Disability (NCD) hearing about the problems of those with psychiatric disabilities. Many reported of routine use and overuse of psychiatric drugs, often administered…
Solovieva, Tatiana I.; Bock, Jeremy M.
Under the Americans with Disabilities Act (ADA), people with disabilities are guaranteed access to all postsecondary programs and services. The purpose of this study, conducted by the Center for Excellence in Disabilities, was to evaluate the current status of a major university's web accessibility. The results indicated that in 2011 only 51% of…
Herron, Daniel; Priest, Helena M.; Read, Sue
Background: There has been an increase in inclusive research in the learning disability field; however, this has not been reflected within learning disability and dementia research, where little is known from the perspective of people with learning disabilities. This paper will define inclusive research, explore reasons for the dearth of inclusive…
Ward, Michael J.; Meyer, Roger N.
Traces the history of civil rights, disability rights, and self advocacy of people with developmental disabilities and autism. The need for future self-determination efforts to develop effective leadership from the ranks of self-advocates and for the accentuation of the positives of having a disability is discussed. (Author/CR)
Mizanin, Gregory, Ed.
This volume provides a quick reference to services available in New Jersey for people with developmental disabilities and their families. The guide begins with a brief overview of New Jersey's definition of developmental disabilities, a description of the work of the New Jersey Developmental Disabilities Council, and an outline of civil rights…
This paper is about mothering, young learning disabled people, their sexualised and relationship lives and normalisation--not through the lens of the disabled person, but via a mothers perspective and theoretical discussion. As a mother who has a learning disabled daughter, a feminist and an academic my own mothering experience, my Ph.D. research…
This research examined whether preschool-aged children show less trust in physically disabled or obese informants. In Study 1, when learning about novel physical activities and facts, 4- and 5-year-olds preferred to endorse the testimony of a physically abled, non-obese informant rather than a physically disabled or obese one. In Study 2, after seeing that the physically disabled or obese informant was previously reliable whereas the physically abled, non-obese one was unreliable, 4- and 5-year-olds did not show a significant preference for either informant. We conclude that in line with the literature on children’s negative stereotypes of physically disabled or obese others, preschoolers are biased against these individuals as potential sources of new knowledge. This bias is robust in that past reliability might undermine its effect on children, but cannot reverse it. PMID:25610413
Zołnierczyk-Zreda, Dorota; Majewski, Tadeusz
The occupational activity index among people with disabilities in Poland is still one of the lowest in Europe. Employers' resistance to employ these people is considered to be one of its major reasons. It stems from employers' fear of their low productivity and the need to adapt the work environment to their psychophysical capacities. In addition, the existing system of medical certification of disability does not motivate employers strong enough to adjust the work environment. This paper attempts to specify the main principles of the work environment adaptation to psychophysical capacities of two categories of workers with disabilities: those with motor function disabilities and those with intellectual or mental disability. For the former group of workers, the work environment adaptation may involve modifications of its physical aspects and entail some outlays, while for the latter group, the work environment adaptation is mainly based on the provision of workers with social support (both instrumental and emotional) by their supervisors and co-workers. Efforts associated with the work environment adaptation to the needs of workers with disabilities should, therefore, be considered not only in terms of outlays and enterprise productivity but also in terms of preventing social exclusion of people with disabilities.
LUBORSKY, MARK R.
Adversities facing people with disabilities include barriers to meeting daily needs and to social life. Yet, too, fundamental social devaluation erodes an individual’s capacity to retain title to the cultural category of a full person. These cultural adversities are important components in the disablement process. The cultural meanings for physical dependency convey images of childlike, dependent, incomplete persons near death. Using interviews with middle aged and elderly polio survivors, the author identifies key cultural categories, the expectations and values linked with disability and describe the strategies people use to confront, or not, the erosion of personhood. The importance of understanding the category of the person, its historical setting, and evolution are highlighted. Finally, the inversion of traditional cultural logics for defining the personhood of individuals with disabilities is illustrated. PMID:25360062
Babbitt, Charles E.; Burbach, Harold J.
Surveyed 121 physically disabled college students to examine their perceptions of their occupational future. Results indicated that, although majority of students held high career aspirations, many sensed their career goals may be unattainable. Additional findings showed that most respondents preferred careers that involved working with people and…
Marcus, Bess H.; Forsyth, LeighAnn H.
This book describes proven methods for helping people change from inactive to active living. The behavior change methods are useful for healthy adults as well as individuals with chronic physical and psychological conditions. The book describes intervention programs for individuals and groups and for workplace and community settings. Part 1,…
Health promotion and screening tests are important in persons with disability to avert secondary conditions that can lead to suboptimal functioning or premature death. Conversely, the existence of a primary disability can increase a person's susceptibility to secondary conditions. Cardiovascular disease (CVD) is the major cause of death in the United States, and its prevalence has been underinvestigated in persons with disability. This descriptive study used survey research to compare the risk of CVD in samples of 100 physically disabled women with 50 nondisabled women in the community. Participants, recruited from health fairs, completed questionnaires that explored the participants' knowledge of CVD risk factors, possession of specific CVD risk factors, and experience with CVD preventive screening procedures. Data revealed that compared with women without disability, women with disability were less knowledgeable about CVD risk factors and experienced marked deficiencies in CVD preventive screening. Body weight measurement, baseline electrocardiograms, family history, and smoking queries were performed less often in women with disabilities than in women without disabilities of similar age. Physical inactivity and postmenopausal status were specific CVD risk factors found to be more prevalent in the sample of women with disability. These findings suggest that risk of CVD is underrecognized and underassessed in women with a physical disability.
Black, Pat; Hyde, Christine
Longevity in people with learning disabilities has increased substantially over recent years and as life expectancy increases for this population so does the risk of colorectal cancer. Today, with the transition from institution to the community for people with learning disabilities, conscientious and competent medical and nursing care is a necessity. This article examines autonomy, consent, treatment, palliative care and death relating to people with profound learning disabilities and challenging behaviour, who also have colorectal cancer and stomas. Lack of written information, knowledge, and organizational planning need to be addressed to bring cancer services for the patient with learning disabilities to the level that it is for the general population.
Patka, Mazna; Keys, Christopher B; Henry, David B; McDonald, Katherine E
The acceptance and inclusion of persons with intellectual disability can vary across cultures, and understanding attitudes can provide insight into such variation. To our knowledge, no previous study has explored attitudes toward people with intellectual disability among Pakistani community members and disability service providers. We administered the Community Living Attitudes Scale (Henry et al., 1996), a measure of attitudes toward people with intellectual disability developed in the United States, to 262 community members and 190 disability service providers in Pakistan. Confirmatory factor analysis found a 4-factor solution (empowerment, similarity, exclusion, and sheltering) fit the Pakistani sample. More positive attitudes were observed in staff serving people with intellectual disability, females, Christians, Hindus, Sunnis, and people with greater education. We discuss implications for research, theory, and practice.
Ruddick, Loraine; Oliver, Chris
Background: Health status is an important domain of quality of life of people with intellectual disabilities. This paper describes the development of a self-report health status measure for use with people with intellectual disabilities living in staffed community-based accommodation, and reports preliminary reliability data for the schedule.…
Chadwick, Darren D.; Quinn, Sally; Fullwood, Chris
Background: Information and communication technologies, with the Internet at the forefront, have the potential to enhance the knowledge, service, employment, development and social interactional opportunities available to people with intellectual disabilities. Despite this, people with intellectual disabilities are not accessing the Internet to…
Coppus, A. M. W.
Increases in the life expectancy of people with Intellectual Disability have followed similar trends to those found in the general population. With the exception of people with severe and multiple disabilities or Down syndrome, the life expectancy of this group now closely approximates with that of the general population. Middle and old age, which…
Chen, Chih-Hsuan; Shu, Bih-Ching
Background: There is a dearth of studies about the causes of stigmatization in people with intellectual disability. This study is aimed at gaining an understanding of how feelings of stigmatization are formed and perceived among young people with intellectual disability in Taiwanese cultural and social contexts. Materials and Methods: Fourteen…
Ali, Afia; Hassiotis, Angela; Strydom, Andre; King, Michael
People with intellectual disability are one of the most stigmatised groups in society. Despite this, research in this area has been limited. This paper provides a review of studies examining self stigma in people with intellectual disability, and courtesy and affiliate stigma in family carers. An electronic search of studies published between 1990…
Lee, Youngkhill; McCormick, Bryan P.
Presents a sense-making process in defining health, particularly as related to people with chronic illness and disabilities, reviewing existing concepts of health, examining how people make sense of their disability and illness from an existential perspective, offering two concepts (life story and sense of coherence) relevant to this existential…
Almond, Louise; Giles, Susan
The study examines 102 young people with Learning Disabilities (n = 51) and without a learning disability (NLD; n = 51) to explore ways in which LD young people with harmful sexual behaviours (HSB) should be recognized as a subgroup requiring specialized treatment and intervention. Throughout this comparison of perpetrator, victim and abuse…
Shier, Michael; Graham, John R.; Jones, Marion E.
Public policies stress greater inclusion of disabled people in the labour market and suggest ways to implement accommodative measures to these ends. Often missing from this literature is the experiences of disabled people in labour markets. This article reports results from a qualitative study conducted in 2005 and 2006 consisting of one-to-one…
Prangnell, Simon J.; Green, Karen
Dental anxiety is a common form of anxiety problem, and research suggests that more people with learning disabilities experience dental anxiety than in the general population. Very little work has been done to investigate effective non-medical approaches for supporting people with a learning disability and dental anxiety to access dental care.…
Chaplin, Eddie; O'Hara, Jean; Holt, Geraldine; Bouras, Nick
The commissioning and provision of mental health services for people with intellectual disability is often complex and characterised by different service delivery models. This paper looks at the current situation 7 years after the White Paper, Valuing People (From words into action: London learning disabilities strategic framework, Department of…
Mason, Paul; Timms, Ken; Hayburn, Tracey; Watters, Camilla
Background: For many people with learning disabilities, friendships can be limited or restricted, with loneliness being a significant problem. Although much research has been undertaken exploring these issues, little attention has been given to what people with learning disabilities themselves have to say about friendship. The aim of this study is…
Ryan, Karen; Guerin, Suzanne; Dodd, Philip; McEvoy, John
Research is lacking on the effect of the deaths of fellow service users on people with intellectual disabilities. This qualitative study formed part of a project which aimed to describe the provision of palliative care to people with intellectual disabilities in Ireland and to assess the population's palliative care needs. We report on findings…
Background: Many authors have expressed concern regarding the efficacy of psychotherapy, including psychotherapy for people with intellectual disabilities. Materials and Methods: Recently, many authors have made claims for the effectiveness of cognitive therapy for treating people with intellectual disabilities. During this debate, applied…
Vos, Pieter; De Cock, Paul; Munde, Vera; Neerinckx, Heleen; Petry, Katja; Van Den Noortgate, Wim; Maes, Bea
Although it is shown that attention plays an important role both in the onset and in the regulation of emotions in people without disabilities there is no information about how attention is related to emotions in people with severe or profound intellectual disability (ID). Therefore, in our study, we investigated the role of attention in the onset…
Lennox, Nicholas; Van Driel, Mieke L.; van Dooren, Kate
Background: The vast health inequities experienced by people with intellectual disability remain indisputable. Persistent and contemporary challenges exist for primary healthcare providers and researchers working to contribute to improvements to the health and well-being of people with intellectual disability. Over two decades after the only…
Bullock, Charles C.; Mahon, Michael J.; Killingsworth, Charles L.
Ultimately, all successful recreation programs center around its participants wants and needs. Serving people with disabilities is no exception. "Introduction to Recreation Services for People with Disabilities" is intended to be an introductory book for anyone planning or working in the parks, recreation, and leisure service industry. Through…
Wigham, Sarah; Hatton, Chris; Taylor, John L.
This article systematically reviews the literature on the effects of adverse life events or trauma on people with intellectual disabilities. It is important to systematically examine empirical evidence of the effects of trauma in people with intellectual disabilities as to date the number of studies in this area is not substantial, and the effects…
Conroy, James W.; Ferris, Charles S.; Irvine, Ron
Opportunities for community employment of people with intellectual and developmental disabilities are limited, and have not improved over the past quarter century of interest and effort. This report provides the findings from an outcome study of this issue. Twenty-seven people with intellectual and developmental disability, residents in Kent…
Young, Anita F.; Chesson, Rosemary A.
Despite the rhetoric of involvement of people with learning disabilities in health care there is a dearth of research which examines the extent to which service users are included in evaluating their own care. This paper describes a study of methods for enabling people with learning disabilities and complex health needs to comment on the…
Symons, Andrew B.; Fish, Reva; McGuigan, Denise; Fox, Jeffery; Akl, Elie A.
As curricula to improve medical students' attitudes toward people with disabilities are developed, instruments are needed to guide the process and evaluate effectiveness. The authors developed an instrument to measure medical students' attitudes toward people with disabilities. A pilot instrument with 30 items in four sections was administered to…
Jones, Amelia; Tuffrey-Wijne, Irene; Bernal, Jane; Butler, Gary; Hollins, Sheila
This paper reports on one of the findings of a small study that aimed to explore how people with learning disabilities accessed and were supported to use a pictorial cancer information book. Five people with learning disabilities who were affected by cancer and their paid carers participated in the study. Support staff in the study were the people…
Bjornsdottir, Kristin; Johannesson, Ingolfur Asgeir
There are many barriers to social participation in Iceland for people with intellectual disabilities. This article builds on qualitative research with young adults with intellectual disabilities. The purpose of this article is to develop an approach where the struggles over the meaning of social participation of people with intellectual…
Hampton, Nan Zhang; Xiao, Fei
The purpose of the study was to explore relationships between traditional Chinese values and attitudes toward people with intellectual disabilities. A total of 534 college students in China participated in the study. Two instruments that measure Chinese values and attitudes toward people with intellectual disabilities were used. Results indicated…
Bermejo, Belen G.; Mateos, Pedro M.; Sanchez-Mateos, Juan Degado
The present study provides information on the emotional experience of people with intellectual disability. To evaluate this emotional experience, we have used the International Affective Pictures System (IAPS). The most important result from this study is that the emotional reaction of people with intellectual disability to affective stimuli is…
Although sexual abuse of people with intellectual disabilities has emerged as a major issue in the West over recent years, few researchers have examined this issue in Taiwan. The prevalence and current state of sexual abuse for people with intellectual disabilities in Taiwan were investigated here. Results of face-to-face interviews with 336…
Cory, Rebecca, Comp.; Taylor, Steve, Comp.; Walker, Pamela, Comp.; White, Julia, Comp.
People with disabilities are present and visible at universities and postsecondary institutions as never before. This reflects changes in societal attitudes, law, public policy, and government programs, and, perhaps most important, the views disabled people have of themselves. The growing presence of this new "minority" on campus poses…
Karpur, Arun; Vanlooy, Sara A.; Bruyère, M.
Purpose: Research on employment for people with disabilities has focused on the perspectives of people with disabilities and service providers. Empirical evidence about employer practices and their outcomes would inform the development of more targeted interventions. Method: Scoping review was conducted of literature discussing employer-focused…
Heslop, Pauline; Glover, Gyles
Background: At present, there is limited statistical information about mortality of people with intellectual disabilities in England. This study explores the data that are currently available. Materials and Methods: Four recent sources of data about mortality of people with intellectual disabilities in England are reviewed: the Confidential…
Walker, Brigid; MacBryer, Shona; Jones, Alan; Law, Jim
Because of difficulties with neuropsychological assessments for dementia in people with learning disabilities, professionals in clinical practice have relied heavily on carer interviews, one of the most widely used being the "Dementia Questionnaire for People with Learning Disabilities" (DLD-Evenhuis et al. 2006 "Dementia…
O'Brien, Patricia; McConkey, Roy; García-Iriarte, Edurne
Background: Inclusive research with people with intellectual disabilities is growing internationally but with few studies examining its feasibility. Methods: In undertaking a national study exploring what life was like in Ireland for people with intellectual disabilities, a community of practice was developed involving a core group of…
Murphy, Joan; Cameron, Lois
People with intellectual disability have significant difficulties in ensuring their voice is heard. Talking Mats is a low tech communication resource which helps understanding and supports expression. This study examined the effectiveness of the resource for people with intellectual disability. A mixed method quantitative and qualitative study…
Doyle, David Michael
This paper differentiates between sexual offending behaviour and challenging behaviour in people with an intellectual disability. There is growing awareness that people with an intellectual disability can perform both classes of behaviour. The definitions of sexual offending and challenging behaviour are almost interchangeable, due to the poor…
Hall, Sarah A.
Though social inclusion is essential to enhancing a person's quality of life, people with disabilities continue to face many barriers. The purpose of this qualitative meta-analysis was to describe the elements and experiences of social inclusion for people with disabilities. The study analyzed data from 15 primary research reports through thematic…
People with learning disabilities have talents and skills, but rarely do they get the chance to start their own business. In Business was designed to challenge this and to make self employment a realistic option for some by setting out to support and capture the journey to business for people with a learning disability and those who support them.…
Marwood, Hayley; Hewitt, Olivia
The effectiveness of group therapy for people with learning disabilities and anxiety management issues is reviewed. People with learning disabilities face increased levels of psychological distress compared to the general population, yet are often faced with a lack of social support and poor coping techniques to manage their distress. A 6-week…
Newberry, Gayle; Martin, Carol; Robbins, Lorna
Background: Not enough is currently known about how people with learning disabilities experience and understand the ageing process. This is particularly important as the population of older people with learning disabilities is growing due to increased life expectancy. This article draws on the first author's doctoral research study, which aimed to…
This paper introduces key debates in the contemporary practice of disability research and examines how these apply to conceptualising, designing and conducting research with people with intellectual disability. Specifically, it describes a collaborative action-oriented reflexive approach to researching the lived experience of people with…
Baker, Peter A.
Background: The aim was to evaluate the effect of the closure of a small intellectual disability hospital on the community use of those people involved. In addition, the study sought to identify those factors that might influence the community use of people with intellectual disabilities. Methods: The impact of resettlement was investigated using…
Wehbi, Samantha; El-Lahib, Y.
This article presents the findings of a study on the employment situation of people with disabilities in a rural region in Lebanon. The study was conducted as one of the activities of a community development project that saw the establishment of a job centre for people with disabilities. The majority of the study's 200 participants were…
Sharby, Nancy; Martire, Katharine; Iversen, Maura D
Factors influencing access to health care among people with disabilities (PWD) include: attitudes of health care providers and the public, physical barriers, miscommunication, income level, ethnic/minority status, insurance coverage, and lack of information tailored to PWD. Reducing health care disparities in a population with complex needs requires implementation at the primary, secondary and tertiary levels. This review article discusses common barriers to health care access from the patient and provider perspective, particularly focusing on communication barriers and how to address and ameliorate them. Articles utilized in this review were published from 2005 to present in MEDLINE and CINAHL and written in English that focused on people with disabilities. Topics searched for in the literature include: disparities and health outcomes, health care dissatisfaction, patient-provider communication and access issues. Ineffective communication has significant impacts for PWD. They frequently believe that providers are not interested in, or sensitive to their particular needs and are less likely to seek care or to follow up with recommendations. Various strategies for successful improvement of health outcomes for PWD were identified including changing the way health care professionals are educated regarding disabilities, improving access to health care services, and enhancing the capacity for patient centered care.
Gibson, Barbara E; King, Gillian; Teachman, Gail; Mistry, Bhavnita; Hamdani, Yani
Rehabilitation research investigating activity participation has been largely conducted in a realist tradition that under-theorises the relationship between persons, technologies, and socio-material places. In this Canadian study we used a post-critical approach to explore activity/setting participation with 19 young people aged 14 to 23 years with complex communication and/or mobility impairments. Methods included integrated photo-elicitation, interviews, and participant observations of community-based activities. We present our results using the conceptual lens of assemblages to surface how different combinations of bodies, social meanings, and technologies enabled or constrained particular activities. Assemblages were analysed in terms of how they organised what was possible and practical for participants and their families in different contexts. The results illuminate how young people negotiated activity needs and desires in particular 'spacings' each with its own material, temporal, and social constraints and affordances. The focus on assemblages provides a dynamic analysis of how dis/abilities are enacted in and across geotemporal spaces, and avoids a reductive focus on evaluating the accessibility of static environmental features. In doing so the study reveals possible 'lines of flight' for healthcare, rehabilitation, and social care practices.
Grenier, Michelle A; Horrell, Andrew; Genovese, Bryan
Having a disability and being a teacher can be a critical site for examining practices associated with ability, competence, and pedagogy. While there is a growing literature base that examines the experiences of students with disabilities in physical education, there is virtually no research that examines the experiences of physical education teachers with disabilities. Using the capability approach, this article explores the experiences of a physical education teaching intern with a physical disability, significant school members, and the students he interacted with through interviews and documents. The results yielded 3 primary themes. The first, "the fluid nature of the disability discourse," demonstrated the complexity of disability and explored the contrast between static tendencies that stereotype disability and the disability experience. The second theme, "doing things my way," reflected the intern's need to distinguish himself as a teacher by defining contexts for experiencing competence. The third and final theme, "agent of change," explored how the intern's experiences as a teacher with a disability informed his educational narrative.
Kulow, Marianne DelPo
Disability employment discrimination is often treated summarily in legal environment courses. This is actually a topic with significant practical application in the workplace since managers are often those who are confronted with accommodation requests. It is therefore desirable to include a class with hands-on exercises for students to begin to…
Kabel, Allison; Dimka, Jessica; McBee-Black, Kerri
Clothing-related issues can create barriers to social participation and other desired activities for people living with disabilities and their families. The purpose of this study was to identify clothing-related barriers people living with disabilities and their families are facing. An online survey was administered to people living with disabilities and parents/caregivers, resulting in a sample of 113 participants indicating mobility impairments. Survey results indicated that the clothing needs of people living with disabilities and impairments are not being met, the lack of appropriate clothing prevented individuals from fully engaging in social activities and relationships, employment or everyday life events. The design fields and apparel industry could play a vital role in helping people with mobility disabilities navigate these barriers.
Bandini, Linda; Danielson, Melissa; Esposito, Layla E; Foley, John T; Fox, Michael H; Frey, Georgia C; Fleming, Richard K; Krahn, Gloria; Must, Aviva; Porretta, David L; Rodgers, Anne Brown; Stanish, Heidi; Urv, Tiina; Vogel, Lawrence C; Humphries, Kathleen
Children with developmental or physical disabilities, many of whom face serious health-related conditions, also are affected by the current obesity crisis. Although evidence indicates that children with disabilities have a higher prevalence of obesity than do children without disabilities, little is known of the actual magnitude of the problem in this population. To address this concern, the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) held a conference on obesity in children with intellectual, developmental, or physical disabilities, bringing together scientists and practitioners in the fields of obesity and disability to foster collaboration, identify barriers to healthy weight status in populations with disabilities, propose avenues to solutions through research and practice, and develop a research agenda to address the problem. This article describes current knowledge about prevalence of obesity in this population, discusses factors influencing obesity risk, and summarizes recommendations for research presented at the conference.
Ishizaki, T; Watanabe, S; Suzuki, T; Shibata, H; Yoshida, H; Yasumura, S; Niino, N
This study observed the status of independence in behavioral competence among older people who have any disability in basic activities of daily living (BADL) living in a rural community in Japan. Study participants (N = 76) who were regarded as bedridden were surveyed by means of a questionnaire in July to August 1996. The independence variables were age, sex, BADL status, hearing impairment, visual impairment, history of stroke, and cognitive impairment. The dependent variable was each item of the Tokyo Metropolitan Institute of Gerontology (TMIG) Index of Competence, which is a multidimensional 13-item index of behavioral competence. Percentages of subjects who were independent in each item of the TMIG Index of Competence varied from 1% to 36%. Multiple logistic regression analyses revealed that BADL status was independently associated with independence in using a telephone, being interested in news stories or programs dealing with health, being called on for advice, and initiating conversations with young people, after adjustment for age, sex, hearing impairment, visual impairment, history of stroke, and cognitive impairment. These findings suggest that programs for preventing decline in behavioral competence of older people with BADL disability might be important as well as physical therapy for them.
Jackson, Nancy Beth
Computers, depending on how they are used, can be both a boon and a menace to health and performance. With the increasing presence of computers on campus, journalism educators must make sure they are not creating a new class of disabled persons among their students and disabling themselves in the process. Journalism schools across the United…
Kamalinasab, Z; Mahdavi, A; Ebrahimi, M; Vahidi Nekoo, M; Aghaei, M; Ebrahimi, F
Objective: Psychological interventions for enhancing mental health in those with somatomotor-physical disabilities are vital. The existing research aimed to examine the effect of teaching stress management skills on self-esteem and behavioral adjustment in individuals with somatomotor-physical disabilities. Methodology: The method of the survey was semi-experimental with a pre-test post-test design and a control group. Hence, in Tehran, 40 girls with somatomotor-physical disabilities were selected by using convenience sampling, and they were divided into two groups: control and experiment. Both groups were tested by using a demography questionnaire, Rozenberg’s self-esteem scale, and a behavioral adjustment questionnaire. Afterwards, the test group received lessons on stress management within ten sessions, but the control group received no interventions. Then both groups were post-tested, and the collected data were analyzed by using descriptive and inferential statistics methods through SPSS software. Findings: Findings showed that teaching stress management skills significantly increased self-esteem and behavioral adjustment in girls with somatomotor-physical disabilities (p < 0.001). Conclusion: According to the study, it could be concluded that teaching stress management skills is an effective way to help endangered individuals such as girls who have somatomotor-physical disabilities because it is highly efficient especially when it is performed in groups, it is cheap, and acceptable by different people. PMID:28316725
Salaun, Laureline; Berthouze-Aranda, Sophie E.
Background: This study investigated health-related fitness in adolescents with intellectual disabilities and analysed the various performances in physical fitness tests according to degrees of obesity. Materials and Methods: Eighty-seven French intellectual disabilities adolescents (14.24 [plus or minus] 1.48 years) performed the EUROFIT physical…
Isaac, Rebecca; Raja, B. William Dharma; Ravanan, M. P.
A full understanding of disability recognizes that it has a powerful human rights dimension and is often associated with social exclusion, and increased exposure and vulnerability to poverty. Disability is a human rights issue. The World Bank (1999) report points out that one in five of the world's poorest are disabled, for whom access to basic…
Australian Schools Commission, Canberra.
Ten papers address issues in preparing disabled students for life after school. The Education Standing Committee of the New South Wales Advisory Council on the Handicapped collected the papers as a way of contributing to the International Year of Disabled Persons. "The Parent's Role in the Life of a Child with a Disability" (N. Rigby)…
Aderemi, Toyin Janet; Mac-Seing, Muriel; Woreta, Seblewangel Ayalew; Mati, Komi Agbemavi
The study investigated HIV testing prevalence and factors associated with the utilization of voluntary HIV counselling and testing (VCT) services among individuals with disabilities in Addis Ababa. The analysis was based on a survey of 209 men and 203 women with disabilities, aged 15-49, who had ever heard about HIV and AIDS in four sub-cities in Addis Ababa. HIV testing prevalence was 53.2%, with no significant difference between males and females. Comprehensive HIV knowledge, living with spouse, and religious affiliations positively predicted utilization of VCT services among participants. Living with both parents and having physical or mental/intellectual disabilities were negative predictors of VCT services utilization. More research on the predictors of utilization of VCT services by gender and urban/rural divides are needed among people with disabilities.
Findings from needs assessments and abandonment studies point to issues with health care providers, particularly in their ability to listen to the needs of the consumer and important others regarding AT-EI. Professionals need to listen to what people are telling them or, in many cases, what they are not telling them. Actions and nonverbal messages can speak very loudly. Strategies to communicate and collaborate with consumers need to be developed. Regardless of ability to communicate or the severity of the impairments the person may be experiencing, it is important to withhold judgments that may underestimate a person's potential or desire to be in control of life decisions. AT-EI service have often seen people labeled with severe or profound intellectual disabilities challenge that diagnosis after accessing a communication or access system. Likewise, a person with a severe disability has the right to supportive resources and to the same level of respect, dignity, and quality of life as any other member of society. Using the technology and adapting the environment to provide opportunities for consumers to "voice" their wishes and control their lives can be an effective strategy to collaborate. When focusing on a rights-based philosophy, recognizing the difference between physical independence (e.g., physical and/or cognitive ability to do a task by oneself) and self-care management (e.g., access to and power to manage the supportive resources to live in the community regardless of level of physical ability) is important. We all rely on supports in our lives, whether it be tools or technology to help us do a job or another person, yet when we evaluate people with disabilities, the expectation is for people to function independently [23,24]. They even receive lower scores on functional assessments if they are using a piece of technology to do an activity. By shifting the focus to management of and access to resources versus level of physical dependence or burden
Kim, Eun Yi
An intelligent wheelchair (IW) system is developed in order to support safe mobility for disabled or elderly people with various impairments. The proposed IW offers two main functions: obstacle detection and avoidance, and situation recognition. First, through a combination of a vision sensor and eight ultrasonic ones, it detects diverse obstacles and produces occupancy grid maps (OGMs) that describe environmental information, including the positions and sizes of obstacles, which is then given to the learning-based algorithm. By learning the common patterns among OGMs assigned to the same directions, the IW can automatically find paths to prevent collisions with obstacles. Second, it distinguishes a situation whereby the user is standing on a sidewalk, traffic intersection, or roadway through analyzing the texture and shape of the images, which aids in preventing any accidents that would result in fatal injuries to the user, such as collisions with vehicles. From the experiments that were performed in various environments, we can prove the following: (1) the proposed system can recognize different types of outdoor places with 98.3% accuracy; and (2) it can produce paths that avoid obstacles with 92.0% accuracy. PMID:27801852
Williams, Peter; Hennig, Christian
Much relevant internet-mediated information is inaccessible to people with learning disabilities because of difficulties in navigating the web. This paper reports on the methods undertaken to determine how information can be optimally presented for this cohort. Qualitative work is outlined where attributes relating to site layout affecting usability were elicited. A study comparing web sites of different design layouts exhibiting these attributes is discussed, with the emphasis on methodology. Eight interfaces were compared using various combinations of menu position (vertical or horizontal), text size and the absence or presence of images to determine which attributes of a site have the greatest performance impact. Study participants were also asked for their preferences, via a 'smiley-face' rating scale and simple interviews. 'Acquiescence bias' was minimised by avoiding polar ('yes/no') interrogatives, achieved by asking participants to compare layouts (such as horizontal versus vertical menu), with reasons coaxed from those able to articulate them. Preferred designs were for large text and images. This was the reverse of those facilitating fastest retrieval times, a discrepancy due to preferences being judged on aesthetic considerations. Design recommendations that reconcile preference and performance findings are offered. These include using a horizontal menu, juxtaposing images and text, and reducing text from sentences to phrases, thus facilitating preferred large text without increasing task times.
Sit, Cindy H. P.; Lau, Caren H. L.; Vertinsky, Patricia
This study investigated the association between physical activity and self-perceptions such as body image, physical self-concept, and self-esteem among persons with an acquired physical disability in a non-Western population. Other personal variables such as gender and time of onset of disability were also examined. A convenience sample of 66 Hong…
Marsden, Daniel; Giles, Rachel
Background People with learning disabilities experience significant inequalities in accessing healthcare. Legal frameworks, such as the Equality Act 2010, are intended to reduce such disparities in care, and require organisations to make 'reasonable adjustments' for people with disabilities, including learning disabilities. However, reasonable adjustments are often not clearly defined or adequately implemented in clinical practice. Aim To examine and synthesise the challenges in caring for people with learning disabilities to develop a framework for making reasonable adjustments for people with learning disabilities in hospital. This framework would assist ward staff in identifying and managing the challenges of delivering person-centred, safe and effective healthcare to people with learning disabilities in this setting. Method Fourth-generation evaluation, collaborative thematic analysis, reflection and a secondary analysis were used to develop a framework for making reasonable adjustments in the hospital setting. The authors attended ward manager and matron group meetings to collect their claims, concerns and issues, then conducted a collaborative thematic analysis with the group members to identify the main themes. Findings Four main themes were identified from the ward manager and matron group meetings: communication, choice-making, collaboration and coordination. These were used to develop the 4C framework for making reasonable adjustments for people with learning disabilities in hospital. Discussion The 4C framework has provided a basis for delivering person-centred care for people with learning disabilities. It has been used to inform training needs analyses, develop audit tools to review delivery of care that is adjusted appropriately to the individual patient; and to develop competencies for learning disability champions. The most significant benefit of the 4C framework has been in helping to evaluate and resolve practice-based scenarios. Conclusion Use of
Ono, Lariane Mortean; Schneider, Ione Jayce Ceola; Confortin, Susana Cararo; d’Orsi, Eleonora
Objective: To investigate the prevalence and association between functional disability and health conditions in elderly people. Method: A cross-sectional, population-based study with 1,705 elderly residents in urban region of Florianópolis, Brazil, from September 2009 to July 2010. The functional disability was classified according to the difficulty in accomplishing six basic activities of daily living. The crude and adjusted multinomial logistic regression was used to identify the associated factors. Results: The prevalence of mild functional disability was 38.9%, and it was positively associated with being female, older age, reporting four or more chronic diseases, overweight, and negative self-perception of health. High education and income, having paid work, and being physically active in leisure activities reduced the chance of presenting it. The prevalence of moderate/severe disability was 11.7% and positively associated with older age, presence of depressive symptoms, four or more chronic diseases, and negative self-perception of health. High education, paid work, and being physically active in leisure activities also reduced the chance of presenting moderate/severe disability. Conclusion: Being gainfully employed, having a high level of education, and being physically active in their leisure time reduced the chance of presenting disability. The negative self-perception of health was the factor that most increased the chance of presenting functional disability. PMID:28138470
Totsika, Vasiliki; Hastings, Richard P; Vagenas, Dimitrios
There is wide variation in reported impact of caring on caregiver well-being, and often a negative appraisal of caregiving. Researchers are beginning to question the robustness of the evidence base on which negative appraisals are based. The present study aimed to draw on data from a population-representative sample to describe the health, quality of life and impact of caring of informal caregivers of people with an intellectual disability. Informal carers of people with intellectual disability (N = 260) were identified among 2199 carers in the English Survey of Carers in Households 2009/10. Generalised estimating equations explored the association between socio-demographic and caring profile with quality of life, physical health status, and impact on psychological health and personal life. Compared to other caregivers, providing care to a person with intellectual disability was not associated with reduced quality of life. There was an 82% increased risk of reporting poorer health status, even though poorer health was not likely to be attributed to care-giving. A higher risk of negative impact on personal life was seen in comparison with the wider group of caregivers, but not in comparison with more similar-sized caregiver groups (mental health or dementia). Carers of people with intellectual disability were more likely to be struggling financially and have a high caring load. These factors were systematically related to lower well-being. A uniformly negative appraisal of caring for people with intellectual disability was not supported by these English population-representative data. Poverty and long care-giving hours may make caregivers more susceptible to negative well-being. Support for caregivers of people with intellectual disability should focus on alleviating those two factors.
The increasing life expectancy of people with learning disabilities makes it imperative that families plan for the future. The number of people with learning disabilities over the age of 65 is predicted to double over the next two decades. The greatest increase in life expectancy will be amongst people with mild learning disabilities who will have…
Williams, Don E; Grossett, Deborah L
We used an organizational behavior management (OBM) approach to increase behavior intervention plans and decrease the use of mechanical restraint. First, recipients were tracked as a member of the priority group if they engaged in frequent self-injurious behavior or physical aggression toward others and/or if they had been placed in mechanical restraint as a result of the problem behaviors. Second, a behavior data monitoring and feedback system was put in place. Third, organizational contingencies for the use of mechanical restraint or the occurrence of frequent self-injurious behavior or physical aggression toward others were initiated. Over the course of 17 months, behavior intervention plans were more than doubled to 124 and mechanical restraints decreased by almost 80%. This study represents the first to use an organizational behavior management (OBM) to reduce restraint with people who have intellectual disabilities.
Motl, Robert W; McAuley, Edward
This article provides an overview of physical activity and its association with function, disability, and quality of life (QOL) outcomes among older adults. The rationale and the associated onset of chronic disease conditions that influence function, disability, and QOL is embedded in the "Graying of America". The literature reviewed in this article yielded 3 general conclusions: (1) there is an alarming rate of physical inactivity among older adults, particularly those aging with a disability; (2) there is strong evidence for the beneficial effects of physical activity on impairment, function, and health-related aspects of QOL among older adults, but there is less conclusive evidence for positive effects of physical activity on disability and global QOL; and (3) there is emerging support for self-efficacy as a mediator of the association between physical activity and disability, and QOL outcomes in older adults. Researchers should consider designing and testing programs that incorporate strategies for enhancing self-efficacy along with the promotion of physical activity as a means of preventing disablement and improving QOL among older adults. Such work will go a long way in identifying practical approaches that can be applied for improving the later years of life and is critical because many Americans will soon be affected by the aging of adults in the United States.
Eisenberg, Yochai; Vanderbom, Kerri A; Vasudevan, Vijay
The relationship between the built environment and physical activity has been well documented. However, little is known about how the built environment affects physical activity among people with disabilities, who have disproportionately higher rates of physical inactivity and obesity. This study is the first systematic review to examine the role of the built environment as a moderator of the relationship between having a disability (physical, sensory or cognitive) and lower levels of physical activity. After conducting an extensive search of the literature published between 1990 and 2015, 2039 articles were screened, 126 were evaluated by abstract and 66 by full text for eligibility in the review. Data were abstracted using a predefined coding guide and synthesized from both qualitative and quantitative studies to examine evidence of moderation. Nine quantitative and six qualitative articles met the inclusion criteria. Results showed that most research to date has been on older adults with physical disabilities. People with disabilities described how aspects of the built environment affect neighborhood walking, suggesting a positive moderating role of features related to safety and aesthetic qualities, such as benches, lighting and stop light timing. There were mixed results among studies that examined the relationship quantitatively. Most of the studies were not designed to appropriately examine moderation. Future research should utilize valid and reliable built environment measures that are more specific to disability and should include people with and without disabilities to allow for testing of moderation of the built environment.
Nicholson, L.; Cooper, S.-A.
Background: Research suggests that social exclusion is a problem both for people with intellectual disabilities (ID) and for people living in rural areas. This may give rise to a double disadvantage for people with ID living in rural areas. Conversely, aspects of rural life such as community spirit and social support may protect against social…
Robertson, J.; Roberts, H.; Emerson, E.; Turner, S.; Greig, R.
Background: Health checks for people with intellectual disabilities (ID) have been recommended as one component of health policy responses to the poorer health of people with ID. This review summarises evidence on the impact of health checks on the health and well-being of people with ID. Methods: Electronic literature searches and email contacts…
Cardol, M.; Rijken, M.; van Schrojenstein Lantman-de Valk, H.
Background: The prevalence of diabetes is relatively high in people with intellectual disability (ID). However, little is known about how people with ID experience having diabetes and how they manage the condition. Method: Seventeen people with mild to moderate ID who have diabetes were interviewed. A framework on illness perceptions having an…
Wullink, M.; Widdershoven, G.; van Schrojenstein Lantman-de Valk, H.; Metsemakers, J.; Dinant, G. -J.
Background: Since the 1990s, individualisation, participation, normalisation and inclusion have been the main principles of care for people with intellectual disability (ID). Autonomy has become an important issue for these people. This review of the literature tried to answer the question: how do people with ID exercise autonomy in relation to…
Martínez, R.; de Ipiña, K. López; Irigoyen, E.; Asla, N.
People with intellectual disabilities and elderly need physical and intellectual support to ensuring independent living. This is one of the main issues in applying Information and Communication Technology (ICT) into Assistive Technology field. In this sense the development of appropriated Intelligent Systems (ISs) offers new perspectives to this community. In our project a new IS system (LAGUNTXO) which adds user affective information oriented to people with intellectual disabilities has been developed. The system integrates a Human Emotion Analysis System (HEAS) which attempts to solve critical situations for this community as block stages. In the development of the HEAS one of the critical issues was to create appropriated databases to train the system due to the difficulty to simulate pre-block stages in laboratory. Finally a films and real sequences based emotion elicitation database was created. The elicitation material was categorized with more actual features based on discrete emotions and dimensional terms (pleasant, unpleasant). Classically the evaluation is carried out by a specialist (psychologist). In this work we present a hybrid approach for Automatic Evaluation of Emotion Elicitation databases based on Machine Learning classifiers and K-means clustering. The new categorization and the automatic evaluation show a high level of accuracy with respect to others methodologies presented in the literature.
Björnsdóttir, Kristín; Stefánsdóttir, Guðrún V; Stefánsdóttir, Ástríður
This article discusses autonomy in the lives of adults with intellectual disabilities. The article draws on inclusive research in Iceland with 25 women and 16 men and employs ideas of relational autonomy from the perspectives of the Nordic relational approach to disability. In this article, we examine autonomy in relation to private life, that is,…
Foster, Andrea L.
Demands from students with disabilities and regulations from the federal government are prompting colleges to seek new designs in software and hardware. Many colleges are buying computer workstations and designing Web sites that meet the needs of students with disabilities. The university's attitude and organization tends to be the main stumbling…
National Council on Disability, 2008
Two reports of the National Council on Disability (NCD), Livable Communities for Adults with Disabilities and Creating Livable Communities, set forth a livable community framework. These reports propose necessary changes in public policies regarding housing; transportation that is reliable and accessible; environments that are physically…
According to Swedish legislation as well as laws pertaining to disabled citizens, Swedish schools are to be accessible for all children and adolescents. This implies that disabilities of any type must not be allowed to prevent students from completing their schooling on their own terms. The purpose of this research was to study the degree to which…
Stock, Steven E; Davies, Daniel K; Wehmeyer, Michael L; Lachapelle, Yves
The concept of community access is a multidimensional term, which may involve issues related to physical access, knowledge and information, power and control, relationships and communications, advocacy, participation and quality of life . This paper discusses historical and emerging practices and interventions related to physical access to community and community based information for individuals with cognitive disabilities such as intellectual disability, autism or traumatic brain injury. While much societal attention has been paid to features of independent community access for populations such as individuals with hearing, vision or physical disabilities, less attention has focused on independent community access for people with intellectual and other significant cognitive disabilities. Attitudes and actions by families and professional service communities are often mixed for some individuals in this population. The somewhat limited research base in these areas is explored, including a case study review and results from several promising feasibility studies. The paper concludes with comments concerning future prospects and recommendations for improving independent community access for persons with significant cognitive disabilities.
Palmer, Michael; Groce, Nora; Mont, Daniel; Nguyen, Oanh Hong; Mitra, Sophie
Through a series of focus group discussions conducted in northern and central Vietnam, this study gives voice to the lived economic experience of families with disabilities and how they manage the economic challenges associated with disability. The dynamic of low and unstable income combined with on-going health care and other disability-related costs gives rise to a range of coping mechanisms (borrowing, reducing and foregoing expenditures, drawing upon savings and substituting labour) that helps to maintain living standards in the short-run yet threatens the longer-term welfare of both the individual with disability and their household. Current social protection programs were reported as not accessible to all and while addressing some immediate economic costs of disability, do not successfully meet current needs nor accommodate wider barriers to availing benefits. PMID:26197034
Dörscheln, Iris; Lachetta, Raphael; Schulz, Michael; Tacke, Doris
People with learning and physical disabilities require special attention and nursing care during hospitalisation. A systematic literature research in the databases PUBMED, CINAHL and Cochrane Library (1990-2011) was conducted, 17 relevant publications could be found. The following problems were identified. The situation of people with learning disabilities in hospital is characterised by communication barriers between patients and health care professionals. Furthermore, the emotional situation of patients has to be emphasised. In the foreign environment of a hospital, they suffer from fear and uncertainty. Both phenomena interact with each other and are influenced by conditions such as time, continuity of care, professional competence, and attitudes towards disabled people. Family members are able to calm the patients. They take on the task of translating. Clinical Nurse Specialists are familiar with these problems. They improve the situation of learning disabled patients in the hospital. The studies show small samples and the results need further verification. Results out of Germany, Austria and Switzerland are not available. Therefore, in these countries further empirical research on this topic is strongly recommended. The results indicate the importance of obtaining comprehensive information about needs of disabled patients before their hospital stay. Family members should be involved in nursing care during a hospital stay.
This paper addresses an increasing concern within physical education and sports research to engage with young people to find out more about their experiences of physical education and school sport. In particular, I centre my concerns on the experiences of five young disabled pupils. I use the conceptual tools offered by Bourdieu to extend…
People with intellectual disabilities have poorer health than their non-disabled peers. They are also more likely to be exposed to a wide range of environmental adversities in childhood. Research undertaken in the general population has demonstrated that exposure to environmental adversity in childhood can have an adverse impact on health and…
McGillivray, Jane A.; McCabe, Marita P.
There is a pressing need for the development of programs for the early identification and treatment of depression in individuals with mild intellectual disability. The aim of this study was to ascertain the perspective of 64 key stakeholders (people with intellectual disability, healthcare professionals, family/caregivers & support workers)…
Tsiouris, John; Mann, Rachel; Patti, Paul; Sturmey, Peter
Clinicians need to know the likelihood of a condition given a positive or negative diagnostic test. In this study a Bayesian analysis of the Clinical Behavior Checklist for Persons with Intellectual Disabilities (CBCPID) to predict depression in people with intellectual disability was conducted. The CBCPID was administered to 92 adults with…
Pan, Lu; Ye, Jingzhong
Background: Welfare for the disabled is becoming an important issue in China and care for people with intellectual disability is challenging because of the inadequacies in formal support and the social service system. Material and Method: Based on ethnographic research in two villages in North China, this paper analyses the dilemmas of family care…
Rasaratnam, R.; Crouch, K.; Regan, A.
To investigate the influence of attitudes of carers of people with intellectual disability (ID) towards giving medication. Ninety-three carers of service users who are currently attending outpatients clinic (Harrow Learning Disability service) were interviewed, using the RAMS (Rating of Attitude to Medication Scale) interview schedule. A…
There has been limited attention paid to the link between conflict and disability and even less recognition for the importance of facilitating inclusion of children and young people with disabilities in post-conflict societies. The end of a civil conflict provides an opportunity for social and political change, and progressive education policies…
Badia, Marta; Orgaz, María Begoña; Verdugo, Miguel Á.; Ullán, Ana M.; Martínez, Magdalena
Background: Studies of people with developmental disabilities suggest that participation in leisure activities might be a key factor for good quality of life. This study explores the relationships between objective and subjective quality of life and leisure participation of adults with developmental disabilities. Materials and Methods: A…
Singal, Nidhi; Mahama Salifu, Edward; Iddrisu, Khadijatu; Casely-Hayford, Leslie; Lundebye, Helen
There is increasing recognition of the importance of focusing on people with disabilities (PWDs) in international efforts aimed at poverty alleviation. While universal education has been central to these efforts, the specific and additional needs of children with disabilities are often overlooked in policies and programmes. In order to gain a…
Jahoda, A.; Markova, I.
Social stigma and its impact on the life opportunities and emotional well-being of people with intellectual disabilities (IDs) are a subject of both practical and theoretical importance. The disability movement and evolving theories of self, now point to individuals ability to develop positive identities and to challenge stigmatizing views and…
Written from the perspective of a disability practitioner and equity manager working in the Australian tertiary education sector for over twenty-five years, this paper reviews some of the significant social, equity, and education policy developments and associated legislation, which have influenced the inclusion of people with disabilities in…
Wong, Gary C. T.; Chan, Zenobia C. Y.
People with intellectual disabilities require training to improve independence, and carers are important partners in the process. Studies show that carers are able to motivate family members with intellectual disabilities to participate in training. In addition, family members may serve as cotrainers. To increase carers' participation, it is…
Reich, Christine A.
This study examined organizational change in science museums toward practices that are inclusive of people with disabilities. Guided by two overarching frameworks, organizational learning and the social model of disability, this study sought to answer the following: What are the contexts and processes that facilitate, sustain, or impede a science…
This study describes public special services, support, and health care provided to an administratively defined county sample of people with intellectual disabilities from early childhood to adult age. Comparisons were made on the variables year of birth, sex, and assessed level of intellectual disabilities in 1974. Information was obtained from…
Macleod, Fiona J.; Morrison, Fred; Swanston, Michael; Lindsay, William
A study examined relocation effects on challenging and communicative behaviors of four individuals with severe learning disabilities who moved from a hospital for people with learning disabilities into a community project home. There was an overall decrease in adaptive behaviors and inactivity levels and increases in communicative and challenging…
Scheifes, Arlette; Egberts, Toine C. G.; Stolker, Joost Jan; Nijman, Henk. L. I.; Heerdink, Eibert R.
Background: Polypharmacy and chronic drug use are common in people with intellectual disability and behavioural problems, although evidence of effectiveness and safety in this population is lacking. This study examined the effects of a structured medication review and aimed to improve pharmacotherapy in inpatients with intellectual disability.…
Yanos, Philip T.; Stefanic, Ana; Tsemberis, Sam
This study examined individual and neighborhood predictors of the psychological community integration of people with psychiatric disabilities and nondisabled community members. One hundred twenty-three adults (60 psychiatrically disabled, 63 general community residents), completed measures of sense of community, life satisfaction, psychiatric…
Ryan, Karen; Guerin, Suzanne; Dodd, Philip; McEvoy, John
Background: Little is known of paid carers' perspectives when caring for people with intellectual disabilities at the end-of-life. Materials and methods: Sixty four individuals from intellectual disability services took part in 12 focus groups. Interviews were analysed using framework analysis. Results: Participants wanted to provide palliative…
Csorba, Janos; Radvanyi, Katalin; Regenyi, Eniko; Dinya, Elek
The authors investigated the behavioural dimensions of 269 intellectually disabled (ID) people in residential care in specialized institutions in Tolna county (South-West Hungary) with the aim of screening the frequency and severity of the relevant behavioural symptoms associated with intellectual disability and depending on the level of…
Nind, Melanie; Chapman, Rohhss; Seale, Jane; Tilley, Liz
Background: This study explores the training involved when people with learning disabilities take their place in the community as researchers. This was a theme in a recent UK seminar series where a network of researchers explored pushing the boundaries of participatory research. Method: Academics, researchers with learning disabilities, supporters…
Gagliardi, Cristina; Mazzarini, Giulia; Papa, Roberta; Giuli, Cinzia; Marcellini, Fiorella
A best practice guide for improving the computer skills of the elderly and disabled is presented. A set of user devices was made available to old and disabled people attending computer science courses and a Web site specifically designed for such users was presented. The analysis targeted the learners' perception of organizational and didactical…
Moorhouse, Michael D.; Pomeranz, Jamie L.; Barnett, Tracey E.; Yu, Nami S.; Curbow, Barbara A.
People with disabilities (PWD) are 50% more likely to smoke compared with the general population, yet interventions tailored to the needs of PWD remain limited. The authors surveyed directors from a leading disability service organization to assess their delivery of tobacco cessation interventions. Although tobacco cessation was identified as a…
Exceptional Parent, 1991
National toll-free numbers of organizations that provide assistance to people with disabilities and their families are listed. The list, which includes approximately 100 organizations and government agencies, is categorized by specific disabilities and also by such topics as computers, career counseling, second opinions, and travel. (JDD)
Stevens, Karen A.; Folchman, Ruth
This article discusses challenges in using participatory action research (PAR) in the evaluation of programs that provide services and supports to people with severe disabilities. Challenges include the need for modification of the model, time constraints, issues around power and position, and inclusion of individuals with severe disabilities.…
Wahlström, Lina; Bergström, Helena; Marttila, Anneli
Deinstitutionalisation has influenced the life situation for people with intellectual disabilities, whilst the experiences of health promotion in group homes now are limited. This study aimed to explore aspects important to consider when promoting health amongst persons with intellectual disabilities in group homes, from the perspective of…
Pluta, David J.; Accordino, Michael P.
This investigation was a baseline study to determine if the speed of return to work could be predicted for people with psychiatric disabilities in a private sector setting. Participants with psychiatric disability claims who returned to work (N = 300) were obtained from a nationwide "Fortune 500" insurance company. The authors compared the speed…
Batterbury, Sarah C. E.
Sign Language Peoples (SLPs) across the world have developed their own languages and visuo-gestural-tactile cultures embodying their collective sense of Deafhood (Ladd 2003). Despite this, most nation-states treat their respective SLPs as disabled individuals, favoring disability benefits, cochlear implants, and mainstream education over language…
The number of employed disabled people decreased in 2008-2009 while there has been an increase in the number of temporary contracts and employed disabled women. The work admission of foreign disabled workers has decreased whereas admission of people with psychic problems has been positively assessed. The ASL (Local Health Service) occupational physicians face some difficulties in the Civil Disability Boards for the excessive number of patients and because of the conflict between their inspective role in institutional activity and their task of checking working conditions of disabled workers. Often company physicians do not follow disabled people from recruitment or when not subjected to health surveillance. In addition they face difficulties when companies intend to fire a disabled person or ask for unsuitable work performances. Generally speaking, specialists working in INAIL (Italian Workers' Compensation Authority) are not adequately integrated with subjects/agencies/organizations working in the specific sector of targeted employment and their forensic physicians are not allowed to monitor disabled people conditions within the company.
Ferrara, Kate; Burns, Jan; Mills, Hayley
Despite some changes to the way that people with intellectual disabilities (ID) are viewed in society, negative attitudes prevail. One of the aspirations of the 2012 Paralympic games was to influence the public's attitudes toward people with disabilities. The aim of this study was to investigate whether stimuli depicting people with ID performing at Paralympic level of competition change attitudes toward ID. A mixed randomized comparison design was employed comparing 2 groups: those who viewed Paralympic-level ID sport footage and information and those who viewed Olympic footage and information. One hundred fourteen students, mean age 25 yr, were administered measures of implicit (subconscious) attitudes toward disability and explicit (belief-based) attitudes toward ID. Implicit attitudes significantly changed in a positive direction for both groups. The findings provide evidence that both Paralympic (ID) and Olympic media coverage may have at least a short-term effect on attitudes toward people with disabilities.
Salomone, Paul R.; O'Connell, Kathryn R.
Interviews with 12 people with multiple sclerosis explored the meaning of career and work in their lives and the implications of living with a disability, as well as barriers they faced, particularly environmental barriers and societal attitudes. (SK)
... From the Federal Register Online via the Government Publishing Office DEPARTMENT OF HEALTH AND HUMAN SERVICES Administration for Children and Families President's Committee for People With Intellectual Disabilities Meeting, Via Conference Call, Cancellation AGENCY: President's Committee for...
Kerr, M P; Evans, S; Nolan, M; Fraser, W I
This paper describes the development of a scale for assessing clinicians' communication with people with profound learning disability. Four psychiatrists and four nurses were assessed completing three simple non-invasive clinical procedures--blood pressure, pulse and axillary temperature--with people with profound learning disability. Videotaped assessment of consultations was performed by three experienced speech and language therapists using a previously designed scale for analysing encounters with people with mild learning disability. This led to the production of a new scale specifically for people with profound learning disability. A significant inter-rater reliability was found between the three speech therapists for total scores (rater a-b, corr = 0.654, P = 0.006; rater a-c, corr = 0.795, P = 0.0001: rater b-c, corr = 0.673, P = 0.004). Significant reliability between raters was also found for the subsections of verbal behaviour and non-verbal behaviour.
Despite the theoretical linkages between household composition and social integration, relatively limited research has considered how living arrangements affect risk for loneliness in later life. Prior work has also failed to consider whether physical disability moderates this potentially important relationship. Using data from a sample of older adults with and without a physical disability (N = 868), this study aims to (1) document variations in loneliness across living arrangements, (2) assess whether any observed association varies by physical disability status, and (3) evaluate the mediating role of social integration and social support. Results reveal that those living alone or with people other than a spouse (children, extended family members) report greater loneliness than those living with a spouse. However the magnitude of these differences is greater for older adults with a physical disability. Measures of social integration and social support attenuated, but did not fully explain, inter-household variations in loneliness. These findings point to the independent significance of living arrangements for experiences of loneliness in later life among both disabled and nondisabled adults.
Lippold, T.; Burns, J.
Background: Social support has been identified as a major protective factor in preventing mental health problems and also as a major contributor to quality of life. People with intellectual disabilities (ID) have been identified as having limited social support structures. Interventions have been focused on promoting their social presence and…
van Asselt-Goverts, A. E.; Embregts, P. J. C. M.; Hendriks, A. H. C.; Wegman, K. M.; Teunisse, J. P.
The aim of this study was to determine the similarities and differences in social network characteristics, satisfaction and wishes with respect to the social network between people with mild or borderline intellectual disabilities (ID), people with autism spectrum disorders (ASD) and a reference group. Data were gathered from 105 young adults…
Heaslip, Vanessa; Hewitt-Taylor, Jaqui
Children are identified as a vulnerable group in need of a degree of safeguarding. About 6% of children in the UK have a disability, which can increase their level of vulnerability. How disability is perceived by others may affect the way they work with these young people in coping with life's risks, which may be increased due to the disability. Each individual's perception of the risks and benefits of a given venture varies. Children's nurses work with these young people and their families, aiming to give them maximum autonomy, self-reliance, empowerment and independence in adulthood. This involves risk-taking, as every young person needs to learn from graduated exposure to new experiences, environments, associations and hazards; the chance of harm must be balanced with the disadvantages of over-protection.
The world of disability theory is currently divided between those who insist it reflects a physical fact affecting life quality and those who believe disability is defined by social prejudice. Despite a dialogue spanning bioethical, medical and social scientific literatures the differences between opposing views remains persistent. The result is similar to a figure-ground paradox in which one can see only part of a picture at any moment. This paper attempts to find areas of commonality between the opposing camps, and thus to rearrange the figures of the paradox at a fundamental level. The purpose is first to identify areas in which common ground can be achieved, and secondarily, to clarify the areas in which disagreement continues. While a general and unified theory of physical difference/disability is beyond the scope of this paper the result may advance that general goal. Key Words: Bioethics • disability • eugenics • paradox • social construction theory PMID:11731598
Antonsson, H; Aström, S; Lundström, M; Graneheim, U H
Communicative difficulties affect interactions between people with learning disabilities and their carers. Despite such difficulties, however, some carers seem to interact successfully with people who have limited ability to communicate verbally and exhibit challenging behaviour. This study aims to illuminate skilled interaction among carers working in special accommodations for people with learning disabilities. Interactions between 16 caregivers and 11 residents with learning disabilities were recorded on video. Verbal and non-verbal interaction skills among the carers were identified. Four caring situations with people with learning disabilities were chosen to illuminate skilled interaction. The transcribed text was subjected to qualitative content analysis and core stories were created. The results show that skilled interaction between the carers and the people with learning disabilities is based upon being confirming, sharing daily life experience, giving time and space, and using congruent and distinct language. In this paper we present examples that offer concrete suggestions of how to promote successful interaction and create meaning in the shared day-to-day life in special accommodations for people with learning disabilities.
Kulik, Barbara J., Ed.
Two issues of this journal on education and related services for students with physical disabilities contain the following major articles or reviews: "Environmental Effects on Education" (Harold F. Perla); "Using Touch Math for Students with Physical Impairments To Teach and Enhance Beginning Math Skills" (Adrienne L. Duris); "Traumatic Brain…
Michigan State Dept. of Education, Lansing.
This document is designed to assist physical education teachers to design curricula which can help students with learning disabilities, emotional impairments, and educable mental impairments achieve Michigan's essential goals and objectives for physical education. Chapter I discusses legal mandates, terminology, movement characteristics of the…
Missouri State Dept. of Education, Jefferson City. School Building Services.
Criteria are presented for implementation in the design and construction of school buildings and facilities so as to obviate hazards to individuals with physical disabilities. Accommodations for the physically handicapped are considered for the following--(1) public walks, (2) parking lots, (3) ramps with gradients and handrails, (4) entrances,…
Tomlins, Rose; Cawley, James
Group work for people who experience voice hearing in the mainstream population has been shown to have various benefits; however, there is little research describing hearing voices groups for people with learning disabilities. This study describes perceptions of a new hearing voices group for people with mild learning disabilities. Semi-structured…
van Dooren, Kate; Lennox, Nick; Stewart, Madeline
People with intellectual disability represent ~2-3% of the Australian population and experience elevated rates of mortality and morbidity compared with the general population. People with intellectual disability, and their families and carers, must keep track of extensive medical information while also managing turnover of paid staff, general practitioners and other health professionals, making them beneficiaries of Australia's new eHealth record system. Although they are key users, there is a lack of knowledge about the accessibility of the system for individuals with intellectual disability, or those responsible for managing their health information. This is a missed opportunity to improve the lives of an already overlooked group. This study aimed to identify the facilitators and barriers to registering for an eHealth record network for people with intellectual disability and those supporting them to manage their health information. We interviewed potential users of eHealth records, including four people with intellectual disability, three family members and two residential support workers. Our findings suggest that decision-makers involved in the roll-out of the eHealth record networks should incorporate 'reasonable accommodations' to improve accessibility for people with intellectual disability and those who support them to manage their health information. This includes identifying and eliminating the barriers to accessibility of eHealth records and taking appropriate measures to promote access to individuals with intellectual disability. People with intellectual disability and the people who support them are a diverse group with a range of abilities. The translation of their views into practice will help to improve the eHealth system for this and other vulnerable population groups.
Siebelink, Eline M; de Jong, Menno D T; Taal, Erik; Roelvink, Leo
The topic of sexuality and romantic relationships of people with mild to moderate intellectual disabilities was examined. We developed a questionnaire to investigate the 76 respondents' sexual knowledge, attitudes, experience, and needs. During the interviews, observational data were gathered to check the validity of the instrument. Results show that sexuality and romantic relationships are important aspects in the lives of many persons with intellectual disabilities. Male respondents generally reported more sexual needs than did females. Correlations were found between sexual knowledge and attitudes and between attitudes and experience or needs, suggesting that general behavioral models may be fruitfully used to further explore the topic of sexuality among people with intellectual disabilities.
Drew, Natalie; Funk, Michelle; Tang, Stephen; Lamichhane, Jagannath; Chávez, Elena; Katontoka, Sylvester; Pathare, Soumitra; Lewis, Oliver; Gostin, Lawrence; Saraceno, Benedetto
This report reviews the evidence for the types of human rights violations experienced by people with mental and psychosocial disabilities in low-income and middle-income countries as well as strategies to prevent these violations and promote human rights in line with the UN Convention on the Rights of Persons with Disabilities (CRPD). The article draws on the views, expertise, and experience of 51 people with mental and psychosocial disabilities from 18 low-income and middle-income countries as well as a review of English language literature including from UN publications, non-governmental organisation reports, press reports, and the academic literature.
O'Doherty, Siobhain; Linehan, Christine; Tatlow-Golden, Mimi; Craig, Sarah; Kerr, Mike; Lynch, Christy; Staines, Anthony
Aim: To document the views of family members of people with an intellectual disability regarding implementation of a personalized model of social support in Ireland. Method: Forty family members participated in six focus groups. Data were thematically analysed. Results: Family members' preference for particular types of living arrangements were…
Elliott, Timothy R.; Berry, Jack W.; Shewchuk, Richard M.; Oswald, Kimberly D.; Grant, Joan
Cross-sectional, correlational analyses of data from two separate studies were conducted to examine the correlates of adjustment among family caregivers of women with disabilities. Participants included 40 caregivers of women with spinal cord injuries in the first study and 53 caregivers of women with cerebral palsy, traumatic brain injury, and other neuromuscular disabilities in the second study. It was hypothesized that a negative problem-solving style would be associated with greater caregiver distress in both studies, and that caregiver adjustment would be associated with care recipient depression in the second study. As expected, results indicated that a higher negative orientation toward solving problems was associated with caregiver depression and lower well-being. However, in the second study, caregiver characteristics were not associated with care recipient depression. These data indicate that considerable variability exists in caregiver adjustment. Methodological limitations and the implications for research, service, and policy formation are! discussed. PMID:18716670
Background Although the number of elderly people needing care is increasing rapidly in the home setting in Japan, family size and ability to provide such support are declining. The purpose of this study was to identify the risk factors of functional disability by household composition among community-dwelling elderly people. Methods A total of 1347 elderly people aged 70 years and over participated in a baseline geriatric health examination for this prospective cohort study. In the health examination, we conducted an interview survey using a questionnaire in July 2004 and July 2005. Questionnaire items covered the following: age, sex, household, medical history, instrumental activities of daily living, intellectual activity, social role, Motor Fitness Scale, falls experienced during the past year, Dietary Variety Score, frequency of going outdoors, cognitive impairment, and depressive status. We defined the occurrence of functional disability as certification for long-term care needs of the subjects. The certification process started with a home visit for an initial assessment to evaluate nursing care needs using a questionnaire on current physical and mental status. The onset of functional disability was followed from July 2004 to March 2011. Cox proportional hazard regression analysis was used to estimate the risk factors related to the onset of functional disability, adjusted for age and sex. Results Of the 1084 participants, 433 were male (39.9%), and the average age was 77.8 (standard deviation, 5.4). Up to March 2011, functional disabilities occurred in 226 participants (20.9%). Elderly people living only with their children demonstrated a significantly higher risk for functional disability than the three-generation household group (hazard ratio, 1.61; 95% confidence interval, 1.08–2.40). The risk factors for functional disability varied according to household group. Conclusions In Japan, the number of vulnerable households with elderly people in need of
Ravesloot, C H; Seekins, T; Cahill, T; Lindgren, S; Nary, D E; White, G
People with disabilities can benefit from health promotion opportunities to reduce the incidence and severity of secondary conditions that further limit their participation in society. This paper describes participatory action research (PAR) methods we used to develop, implement and evaluate the Living Well with a Disability program. Community-based agencies that provide information and referral services to people with disabilities (independent living centers funded under Title VII, Rehabilitation Act) recruited a convenience sample of 246 people with mobility impairments to participate in a randomly assigned, wait-list control health promotion intervention study. Paper-and-pencil outcome measures included the secondary conditions surveillance instrument, unhealthy days and health care utilization. Logistic regression on outcomes controlling for demographic variables and pre-test measures indicated reductions in all three outcome variables. People with mobility impairments who participated in the Living Well with a Disability program reported less limitation from secondary conditions, fewer unhealthy days and less health care utilization. PAR methods are particularly important to design useful interventions for this population.
Lauer, Emily; McCallion, Philip
Background: Monitoring population trends including mortality within subgroups such as people with intellectual and developmental disabilities and between countries provides crucial information about the population's health and insights into underlying health concerns and the need for and effectiveness of public health efforts. Methods: Data from…
State and other social service agencies as well as service providers are governed by laws that often provide unclear guidance regarding the rights of people with disabilities. Although some standards can be, and have been, developed to protect the rights of people with disabilities, all people with disabilities are not the same and therefore, each can require very different types of accommodations. Some aspects of disability rights must be individually based, including the requirement that people with disabilities receive educational services in the least restrictive environment and care in the most inclusive setting. The current interpretation of these mandates suggests that agency decisions rely on professional judgments. Unless professionals work with their clients, this reliance can serve to disempower those whom the law was intended to protect. Though much debated, the legal definition of a person with a disability is unclear. This article examines the concept of disability and that of the least restrictive environment as well as that of the "most inclusive setting," explains to whom they apply, discusses how they have been defined both in statutes and case law, and elaborates on the role of social workers as a result of the law's reliance on professional judgment in ascertaining client rights.
Tuffrey‐Wijne, Irene; Butler, Gary
Abstract Background People with learning disabilities have been included in research as co‐researchers since the 1990s. However, there is limited literature about the processes of involving people with learning disabilities in the more intellectual and analytical stages of the research process. Aims To examine the potential contribution of people with learning disabilities to data analysis in qualitative research. Methods This article is a reflection on one research experience. The two authors include one researcher with and one without learning disabilities. They each describe their experience and understanding of user involvement in analysing the data of an ethnographic study of people with learning disabilities who had cancer. The researcher with learning disabilities was given extensive vignettes and extracts from the research field notes, and was supported to extract themes, which were cross‐compared with the analysis of other members of the research team. Results The researcher with learning disabilities coped well with the emotive content of the data and with the additional support provided, he was able to extract themes that added validity to the overall analysis. His contribution complemented those of the other members of the research team. There were unexpected benefits, in particular, in terms of a more reciprocal and supportive relationship between the two researchers. Conclusion It is possible and valuable to extend involvement to data analysis, but to avoid tokenism and maintain academic rigour, there must be a clear rationale for such involvement. Extra support, time and costs must be planned for. PMID:19737315
Moone, Rajean Paul; Lightfoot, Elizabeth
Centers for independent living (CILs) provide critical supports, services, and advocacy for assisting people with disabilities in living independently. As there is a rapidly increasing population of older people with disabilities, many CILs are now considering how to actively engage older adults in their organizations. This study utilized a survey of older people with disabilities to help identify social marketing techniques that community organizations like CILs can use to effectively reach older people with disabilities. Utilizing the components of the social marketing mix in designing outreach efforts, including a critical examination of product, place, price, participants, and partnering, CILs and other community agencies can better reach older adults with disabilities.
Banda-Chalwe, Martha; Nitz, Jennifer C.; de Jonge, Desleigh
This paper explores the accessibility situation in a developing country such as Zambia. The global view of accessibility for disabled people is provided to examine the accessibility situation in developed and developing countries, highlighting the role of the environment in achieving rights for disabled people. Recognition of disability rights…
Monteleone, Rebecca; Forrester-Jones, Rachel
Background: There has been little qualitative analysis of the experience of stigma, social comparisons and conception of identity among adults with intellectual disabilities (ID). This study aimed to develop an understanding of how adults with intellectual disabilities experience their own disability, and any implications relating to self-esteem,…
Orlin, Margo N; Cicirello, Nancy A; O'Donnell, Anne E; Doty, Antonette K
Many individuals with lifelong disabilities (LLDs) of childhood onset are living longer, participating in adult roles, and seeking comprehensive health care services, including physical therapy, with greater frequency than in the past. Individuals with LLDs have the same goals of health and wellness as those without disabilities. Aging with a chronic LLD is not yet well understood; however, impairments such as pain, fatigue, and osteoporosis often present earlier than in adults who are aging typically. People with LLDs, especially those living with developmental disabilities such as cerebral palsy, myelomeningocele, Down syndrome, and intellectual disabilities, frequently have complex and multiple body system impairments and functional limitations that can: (1) be the cause of numerous and varied secondary conditions, (2) limit overall earning power, (3) diminish insurance coverage, and (4) create unique challenges for accessing health care. Collaboration between adult and pediatric practitioners is encouraged to facilitate smooth transitions to health practitioners, including physical therapists. A collaborative client-centered emphasis to support the transition to adult-oriented facilities and promote strategies to increase accessibility should become standard parts of examination, goal setting, and intervention. This perspective article identifies barriers individuals with selected LLDs experience in accessing health care, including physical therapy. Strategies are suggested, including establishment of niche practices, physical accessibility improvement, and inclusion of more specific curriculum content in professional (entry-level) doctorate physical therapy schools.
For some, community inclusion facilitates access to alcohol and drugs and, therefore, the potential for developing substance abuse disorders. However, little is known about substance abuse treatment use among people with intellectual disabilities. Using standardized performance measures, substance abuse treatment utilization was examined for Medicaid-covered people with intellectual disabilities and substance abuse (N=9,484) versus people without intellectual disabilities (N=915,070). The sociobehavioral model of healthcare use guides multivariate logistic regression analyses of substance abuse treatment utilization patterns, revealing disability-related disparities. Factors associated with utilization included being non-White, living in a nonurban area, having a serious mental illness, and living in a state with a generous Medicaid plan for substance abuse treatment. Implications relate to health policy, service delivery patterns, and the need for cross-system collaboration in the use of integrated treatment approaches.
Codling, Mary; Knowles, Jane; Vevers, Ann
People with learning disabilities are living longer lives. Over the past few years, research has explored the needs of people with learning disabilities, their families and learning disability professionals in relation to end-of-life care and death. However, little is known about the needs of paid carers and their experience of end-of-life care. This article discusses the development, implementation and evaluation of a study day about end-of-life care that was delivered to paid carers on two separate occasions in Berkshire Healthcare NHS Foundation Trust. A total of 43 paid carers attended and the days were well evaluated. The need for further training for paid carers who work with people with learning disabilities at the end of life was highlighted.
Bailey, S; Boddy, K; Briscoe, S; Morris, C
Children and young people can be valuable partners in research, giving their unique perspectives on what and how research should be done. However, disabled children are less commonly involved in research than their non-disabled peers. This review investigated how disabled children have been involved as research partners; specifically how they have been recruited, the practicalities and challenges of involvement and how these have been overcome, and impacts of involvement for research, and disabled children and young people. The INVOLVE definition of involvement and the Equality and Human Rights Commission definition of disability were used. Relevant bibliographic databases were searched. Websites were searched for grey literature. Included studies had involved disabled children and young people aged 5-25 years in any study design. Reviews, guidelines, reports and other documents from the grey literature were eligible for inclusion. Twenty-two papers were included: seven reviews, eight original research papers, three reports, three guidelines and one webpage. Nine examples of involvement were identified. Recommendations included developing effective communication techniques, using flexible methods that can be adapted to needs and preferences, and ensuring that sufficient support and funding is available for researchers undertaking involvement. Positive impacts of involvement for disabled children included increased confidence, self-esteem and independence. Positive impacts for research were identified. Involving disabled children in research can present challenges; many of these can be overcome with sufficient time, planning and resources. More needs to be done to find ways to involve those with non-verbal communication. Generally, few details were reported about disabled children and young people's involvement in studies, and the quality of evidence was low. Although a range of positive impacts were identified, the majority of these were authors' opinions rather
Smith, Diane L.; Iezzoni, Lisa I.
OBJECTIVE. This study describes how women with physical disability experience caregiving for a new infant and how they adapt their home environment and care tasks. METHOD. In 2013, we conducted 2-hr telephone interviews with 22 women with significant physical disability who had delivered babies within the previous 10 yr. The semistructured, open-ended interview protocol addressed wide-ranging pregnancy-related topics. NVivo was used to sort the texts for content analysis. RESULTS. Night care, bathing, and carrying the baby were identified as the biggest challenges. Typical adaptations (with and without occupational therapy consultation) included use of a wrap for carrying the infant, furniture adaptations for mothers using wheelchairs, and assistance from caregivers. CONCLUSION. Women with physical disability can be fully capable of caring for an infant and can find ways to adapt their environment. Further research may determine the role of occupation therapy. PMID:27767945
Lai, Hsien-Tang; Kung, Pei-Tseng; Su, Hsun-Pi; Tsai, Wen-Chen
Limited studies with large samples have been conducted on the utilization of dental calculus scaling among people with physical or mental disabilities. This study aimed to investigate the utilization of dental calculus scaling among the national disabled population. This study analyzed the utilization of dental calculus scaling among the disabled people, using the nationwide data between 2006 and 2008. Descriptive analysis and logistic regression were performed to analyze related influential factors for dental calculus scaling utilization. The dental calculus scaling utilization rate among people with physical or mental disabilities was 16.39%, and the annual utilization frequency was 0.2 times. Utilization rate was higher among the female and non-aboriginal samples. Utilization rate decreased with increased age and disability severity while utilization rate increased with income, education level, urbanization of residential area and number of chronic illnesses. Related influential factors for dental calculus scaling utilization rate were gender, age, ethnicity (aboriginal or non-aboriginal), education level, urbanization of residence area, income, catastrophic illnesses, chronic illnesses, disability types, and disability severity significantly influenced the dental calculus scaling utilization rate.
Gillespie, Alex; Moore, Helen
This article examines how the Disability Living Allowance claim form, used in the United Kingdom to allocate £13 billion of disability benefits, translates and transforms disability and care. Twenty-two people with acquired brain injury and their main informal caregivers (n = 44) were video-recorded filling in the disability claim form. Participants disagreed on 26% of the questions, revealing two types of problems. Translation problems arose as participants struggled to provide categorical responses to ambiguous questions and were unable to report contextual variability in care needs or divergences of perception. Transformation problems arose as participants resisted the way in which the form positioned them, forcing them to conceptualize their relationship in terms of dependency and burden. The disability claim form co-opts claimants to translate care and disability into bureaucratically predefined categories, and it transforms the care relationship that it purports to document.
Wolff, C; Müller, S V
No empirical data about the topic "Mental Disability and Dementia" in Germany exist. The aim of this survey was to obtain current data about mentally disabled people with dementia. Therefore, the following questions need to be clarified: how many mentally disabled people are affected with dementia, which difficulties occur regarding the diagnosis of dementia and what challenges have to be solved in upcoming years. In all, 45 organisations for the mentally disabled took part in the survey, showing that dementia amongst people with mental disabilities appeared largely starting at the age of 50. Standardized diagnostics are seldom used by these organisations. Instead, observation of behaviour by care attendants plays a central role, due to the fact that speaking and introspection are not possible for a majority of the patients. In general, institutions for people with mental disabilities do not have specific offers for people with dementia, occasionally there are offers regarding their living situation and free time activities.
Di Marco, Mark; Iacono, Teresa
This paper addresses the issues of assessment and psychological interventions of mental health in people with complex communication needs of people with intellectual disability and/or cerebral palsy. The literature indicates that research data have been lacking in this area, with a dearth of appropriate assessment tools and information on how to…
Jahoda, Andrew; Dagnan, Dave; Jarvie, Pamela; Kerr, Wendy
Background: It is striking that although cognitive behavioural therapy was developed to treat depression in the general population, there remains a paucity of research concerning its application to people with intellectual disabilities. Recent research points to the importance of understanding people's distress in the context of their particular…
Young, Rhea; Gore, Nick; McCarthy, Michelle
Background: Research has found staff attitudes regarding the sexuality of people with intellectual disability (ID) to be negative but influenced by several factors. The current study aimed to examine whether gender of people with ID affects such attitudes. Method: Semistructured interviews were completed with 10 staff members and analysed using…
Bigby, C.; Webber, R.; Bowers, B.; McKenzie-Green, B.
Background: Australia's national ageing policy recognises that people ageing with intellectual disability (ID) require particular attention, yet there is no policy framework concerning this population. This study describes the distribution and characteristics of people with ID in residential aged care in Victoria, provides insights into the…
Maes, Bea; Van Puyenbroeck, Joris
The authors attempted to find out to what extent and in which ways, in Belgium, have Flemish services for people with intellectual disability adapted to the specific needs of aging people. A study was undertaken and a questionnaire was developed to address the following research topics: (1) accommodations and personnel, (2) staff working methods,…
Kiddle, Hannah; Drew, Neil; Crabbe, Paul; Wigmore, Jonathan
Memory cafés have been found to normalise experiences of dementia and provide access to an accepting social network. People with learning disabilities are at increased risk of developing dementia, but the possible benefits of attending a memory café are not known. This study evaluates a 12-week pilot memory café for people with learning…
Griffiths, Colin; Smith, Martine
Background: People with severe and profound intellectual disability typically demonstrate a limited ability to communicate effectively. Most of their communications are non-verbal, often idiosyncratic and ambiguous. This article aims to identify the process that regulates communications of this group of people with others and to describe the…
Lucardie, Richard; Sobsey, Dick
Over the past decade, there has been increased interest in crimes against people with developmental disabilities (PWDD). While national and international information has been available on homicides of people in general, little attention has been given to homicides of PWDD specifically. This paper provides a preliminary description of homicides as…
Meaney-Tavares, Rebecca; Gavidia-Payne, Susana
Background: The identification of individual staff characteristics that have a relationship with specific attitudes of staff caring for people with intellectual disability (ID) may enable targeted training and better support. Method: Sixty-six participants from services for people with ID in metropolitan Melbourne, Australia, completed a survey,…
Rome, Aidan; Hardy, Jessica; Richardson, Jamie; Shenton, Felicity
At the beginning of the 2000s there was little evidence of outcomes from the participation of disabled children and young people in decision-making within public services. In the 15 years that have followed, advances have been made in participatory research and in outcome-led research. This paper, written with young people, will present evidence…
McGillivray, Jane A.; McCabe, Marita P.; Kershaw, Mavis M.
The prevalence of co-morbid depression in people with intellectual disability (ID) provides a strong rationale for the early identification and treatment of individuals at risk. The aim of this study was to evaluate a staff-administered group CBT program for the treatment of depression in people with mild ID. A sample of 13 staff employed at two…
Parkes, Georgina; Hall, Ian; Wilson, Daniel
We aimed to determine the characteristics of people with learning disability who cross-dress or who have gender dysphoria. Using a retrospective review of anonymised data from clinical records about people referred to a specialist service. All 13 participants cross-dressed and 12 were biological males. Only one person was in a core transsexual…
Stratford, Brian; Ng, Hannah
This article describes the variety and complexities of the problems facing the People's Republic of China in relation to people with disabilities. It discusses ways China is trying to deal with the problems and gives a realistic appraisal of the difficulties faced by academic, clinical, and social welfare authorities. (Contains references.)…
Slayter, Elspeth M.
People with intellectual disabilities (ID) have experienced increasing levels of community participation since deinstitutionalization. This freedom has facilitated community inclusion, access to alcohol and drugs, and the potential for developing substance abuse (SA) disorders. People with ID, who are known to have high rates of co-occurring…
Mansell, Jim; Ritchie, Fiona; Dyer, Ricinda
Background: As institutions for people with intellectual disabilities have been replaced with community services, health care provision has developed to provide assessment and treatment, low and medium secure units for people with challenging behaviour or mental health problems. These include both public and private sector provision. Little is…
Myrbakk, Even; Von Tetzchner, Stephen
With the desegregation processes of services for people with intellectual disability (ID) that is taking place in most Western countries there is a need for more knowledge related to the prevalence of behavior problems among people living in community settings. This study investigates the prevalence of behavior problems among 140 adolescents and…
Young, Anita F.; Chesson, Rosemary A.
Here we describe the process by which research questions were developed for reducing health risks for people with learning disabilities. A participatory approach was used to give service users and carers a clear voice in "deciding" questions, thereby setting the research agenda. Audio-taped interviews and focus groups were used. Forty people (20…
Shaw, K.; Cartwright, C.; Craig, J.
Background: People with intellectual disabilities (IDs) are growing older as a population cohort. Many live at home with family members who are their carers but who are also becoming older and less able to provide care. The housing and support preferences of people with IDs and their carers into older age are poorly characterised in the…
Scheifes, A.; Stolker, J. J.; Egberts, A. C. G.; Nijman, H. L. I.; Heerdink, E. R.
Background: Behavioural problems are common in people with intellectual disability (ID) and are often treated with antipsychotics. Aim: To establish the frequency and characteristics of people with ID included in randomised controlled trials (RCTs) on antipsychotic treatment for behavioural problems, and to investigate the quality of these RCTs.…
Crossley, Rachel; Withers, Paul
Background: Antipsychotics are the most frequently prescribed psychotropic medication for people with intellectual disabilities. Many people are prescribed this medication for "challenging behaviours" without having had a formal diagnosis of a psychiatric disorder. Antipsychotics have been reported to have severe side-effect profiles, which can…
Dick, Katie; Gleeson, Kate; Johnstone, Lucy; Weston, Clive
Staff beliefs about self-harm can influence staff responses to the behaviour. Existing research into staff beliefs about self-harm by people with learning disabilities is limited, with qualitative research restricted to forensic services. The aim of this study was to use Q-methodology to explore staff beliefs about why people with learning…
Henshaw, M.; Thomas, S.
Background: This study investigated the experiences and perceptions of operational members of Victoria Police in relation to their contacts with people with intellectual disability (ID). Key interests for exploration included how frequently and in what context police reported coming into contact with people with ID, how they made this…
Ghajarieh, Amir Biglar Beigi
This current issue piece aims to address the harmful exclusion of people with disabilities in the Iranian media. In a case study, this author collected news related to statistics of HIV-positive people covered by popular news websites written in the Persian language between June 2011 and June 2012. Within the analysed electronic texts, no…
Murphy, Elizabeth; Clegg, Jennifer; Almack, Kathryn
Background: This study examines how those planning futures for young people with moderate-profound intellectual disabilities invoke, deploy and interpret contrasting definitions of adulthood and perceived capacity for autonomy and self-determination. Methods: Twenty-eight young people were followed through transition from children: s to adult…
Wagemans, A.; van Schrojenstein Lantman-de-Valk, H.; Tuffrey-Wijne, I.; Widdershoven, G.; Curfs, L.
Background: While end-of-life decisions in the general population have received attention in several countries, not much is known about this in people with intellectual disabilities (IDs). Therefore, the prevalence and nature of end-of-life decisions were investigated in a Dutch centre providing residential care for 335 people with IDs. Method: A…
Wickline, Virginia B.; Neu, Tricia; Dodge, Chad P.; Shriver, Edwin R.
Previous research suggests that high quality contact between people from different groups is a relatively consistent way of decreasing stereotypes and prejudices. The authors determined that a very short-term, service-learning project with people with developmental disabilities (DD) could reduce college students' fear of this population. In…
Tellevik, Jon Magne; Elmerskog, Bengt
The article describes assessment, planning and training for people with multiple disabilities and visual impairment (MDVI). The ImPAct MDVI project, an EU Comenius programme, addressed concerns expressed by teachers of children and young people with MDVI as to how they are expected to integrate the diverse curriculum elements and particular skills…
Gawrylowicz, Julie; Gabbert, Fiona; Carson, Derek; Lindsay, William R.; Hancock, Peter J. B.
Background: People with intellectual disabilities (ID) are as likely as the general population to find themselves in the situation of having to identify and/or describe a perpetrator's face to the police. However, limited verbal and memory abilities in people with ID might prevent them to engage in standard police procedures. Method: Two…
Kramer, John; Hall, Allison; Heller, Tamar
Sibling relationships are some of the longest-lasting relationships people experience, providing ample opportunities to build connections across the life span. For siblings and people with intellectual and developmental disabilities (IDD), these connections take on an increased significance as their families age and parents can no longer provide…
Pfaffinger, Kathleen M.; Nelson, Richard P.
Starting with the premise that all people have a right to quality health care, this guide emphasizes that assisting people with developmental disabilities to obtain health care and maintain healthy life styles will enhance the quality of their lives at home and in the community. The guide consists of four sections. A section on obtaining care…
Jansen, D. E. M. C.; Krol, B.; Groothoff, J. W.; Post, D.
The transition of people with intellectual disability (ID) from care institutions to the community according to Western policy results in a shift of responsibility towards primary health care services. In order to provide optimal care to people with ID living in the community, general practitioners need to be aware of the specific health problems…