Sample records for young disabled children

  1. Supporting Young Children with Disabilities

    ERIC Educational Resources Information Center

    Hebbeler, Kathleen; Spiker, Donna

    2016-01-01

    What do we know about young children with delays and disabilities, and how can we help them succeed in prekindergarten through third grade? To begin with, Kathleen Hebbeler and Donna Spiker write, identifying children with delays and disabilities to receive specialized services under the Individuals with Disabilities Education Act poses several…

  2. Sixth Sense: The Disabled Children and Young People's Participation Project

    ERIC Educational Resources Information Center

    Murray, Rosemary

    2012-01-01

    The Disabled Children and Young Peoples Participation Project (DCYPPP) was established by Barnardos (Northern Ireland) in 2002 to explore ways of involving children and young people with disabilities in decision-making processes within Children's Services Planning of the Health and Social Services Board. Over 200 young people have participated in…

  3. Integrating Mathematics and Children's Literature for Young Children with Disabilities

    ERIC Educational Resources Information Center

    Green, Katherine B.; Gallagher, Peggy A.; Hart, Lynn

    2018-01-01

    Math skills are critical for children's future success in school, as school-entry math knowledge is the strongest predictor of later academic achievement. Although there is a recent increase of literature on math with young children, there is a scarcity of research related to young children with disabilities. This quasi-experimental study with 50…

  4. Play Behaviors of Parents and Their Young Children with Disabilities

    ERIC Educational Resources Information Center

    Childress, Dana C.

    2011-01-01

    Learning to explore, communicate, and interact with others and the environment through play can be problematic for young children with disabilities, but with parental support, children can learn and interact successfully during play activities. To determine how parents engage their preschool children with disabilities in play and what behaviors…

  5. Involving disabled children and young people as partners in research: a systematic review.

    PubMed

    Bailey, S; Boddy, K; Briscoe, S; Morris, C

    2015-07-01

    Children and young people can be valuable partners in research, giving their unique perspectives on what and how research should be done. However, disabled children are less commonly involved in research than their non-disabled peers. This review investigated how disabled children have been involved as research partners; specifically how they have been recruited, the practicalities and challenges of involvement and how these have been overcome, and impacts of involvement for research, and disabled children and young people. The INVOLVE definition of involvement and the Equality and Human Rights Commission definition of disability were used. Relevant bibliographic databases were searched. Websites were searched for grey literature. Included studies had involved disabled children and young people aged 5-25 years in any study design. Reviews, guidelines, reports and other documents from the grey literature were eligible for inclusion. Twenty-two papers were included: seven reviews, eight original research papers, three reports, three guidelines and one webpage. Nine examples of involvement were identified. Recommendations included developing effective communication techniques, using flexible methods that can be adapted to needs and preferences, and ensuring that sufficient support and funding is available for researchers undertaking involvement. Positive impacts of involvement for disabled children included increased confidence, self-esteem and independence. Positive impacts for research were identified. Involving disabled children in research can present challenges; many of these can be overcome with sufficient time, planning and resources. More needs to be done to find ways to involve those with non-verbal communication. Generally, few details were reported about disabled children and young people's involvement in studies, and the quality of evidence was low. Although a range of positive impacts were identified, the majority of these were authors' opinions rather

  6. Preventing Problem Behaviors in Young Children with Disabilities

    ERIC Educational Resources Information Center

    Jolivette, Kristine; Gallagher, Peggy A.; Morrier, Michael J.; Lambert, Richard

    2008-01-01

    Young children with disabilities acquire behavior problems as a result of many factors. When planning interventions, it is important to remember that all children may display stages of inappropriate behaviors at various times during their early development. In most cases, the problems are short-lived and typically improve with guidance and age.…

  7. Assessment and Accountability for Programs Serving Young Children with Disabilities

    ERIC Educational Resources Information Center

    Hebbeler, Kathleen; Barton, Lauren R.; Mallik, Sangeeta

    2008-01-01

    States currently are in the process of developing child and family outcome measurement systems for young children with disabilities to meet federal data reporting requirements for the Part C (Infants and Toddlers with Disabilities) and Part B Preschool Grants program supported through the Individuals with Disabilities Education Act. This article…

  8. Financial Well-Being of Young Children with Disabilities and Their Families

    ERIC Educational Resources Information Center

    Parish, Susan L.; Cloud, Jennifer M.

    2006-01-01

    Young children with disabilities are significantly more likely to live in poverty than their peers without disabilities. Exposure to poverty creates additional risk of adverse outcomes for these vulnerable children. In this article, the following key circumstances contributing to this increased risk of impoverishment are analyzed: elevated costs…

  9. Measuring and Promoting Acceptance of Young Children with Disabilities.

    ERIC Educational Resources Information Center

    Favazza, Paddy C.; Phillipsen, Leslie; Kumar, Poonam

    2000-01-01

    Results of two studies indicate the Acceptance Scale for Kindergartners was reliable with a sample of minority, low socioeconomic status children and that children exposed to all of the components of an intervention designed to promote acceptance of young children with disabilities had short-term and long-term gains in acceptance. (Contains…

  10. Financial well-being of young children with disabilities and their families.

    PubMed

    Parish, Susan L; Cloud, Jennifer M

    2006-07-01

    Young children with disabilities are significantly more likely to live in poverty than their peers without disabilities. Exposure to poverty creates additional risk of adverse outcomes for these vulnerable children. In this article, the following key circumstances contributing to this increased risk of impoverishment are analyzed: elevated costs of raising children with disabilities, low levels of public income transfer benefits, difficulty balancing parental employment and caregiving responsibilities, unavailable or high-cost child care, and inadequate leave time to permit parents to meet their children's episodic care needs. The implications of these issues for social work practice and advocacy needs are discussed.

  11. Strategies for Promoting Social Relationships among Young Children with and without Disabilities. Final Report.

    ERIC Educational Resources Information Center

    Favazza, Paddy C.

    This report details the activities and accomplishments of a 4-year federally supported project concerned with: (1) validating a new strategy designed to promote the social relationships among young children with and without disabilities; (2) creating a training manual for use by teachers to promote acceptance of young children with disabilities;…

  12. Learning Disabilities and Young Children: Identification and Intervention

    ERIC Educational Resources Information Center

    Learning Disability Quarterly, 2007

    2007-01-01

    This paper addresses early identification, services, supports, and intervention for young children, birth through 4 years, who demonstrate delays in development that may place them at risk for later identification as having a learning disability (LD). Such delays include atypical patterns of development in cognition, communication, emergent…

  13. Pain Assessment and Management in Infants and Young Children with Developmental Disabilities.

    ERIC Educational Resources Information Center

    Oberlander, Tim F.

    2001-01-01

    This article reviews the nature and source of pain in young children with disabilities, challenges facing the clinician, and approaches for assessing and managing pain in infants and young children with significant neurologic impairments. The need for continued research to improve professional awareness and establish practice guidelines is urged.…

  14. Perceptions of Parents of Young Children with and without Disabilities Attending Inclusive Preschool Programs

    ERIC Educational Resources Information Center

    Hilbert, Dana

    2014-01-01

    This study aimed to identify the characteristics of parents of children with and without disabilities whose young children attend an inclusive, early childhood education program that influence their perceptions of inclusion and inclusive preschool programs. Participants included parents of preschool children without disabilities (n=64) and parents…

  15. Young Children with Disabilities in Natural Environments: Methods and Procedures

    ERIC Educational Resources Information Center

    Noonan, Mary Jo; McCormick, Linda

    2006-01-01

    With its comprehensive coverage of instruction and intervention practices in natural environments, this is the essential methods textbook for preservice educators and therapists preparing to work with young children who have disabilities. Focusing on children from birth to age 5, this text gives future professionals a wealth of specific, practical…

  16. A Second Look at the Play of Young Children with Disabilities

    ERIC Educational Resources Information Center

    Buchanan, Michelle; Johnson, Tricia Giovacco

    2009-01-01

    The authors investigate the nature of child play for young children with disabilities using two different research models--the traditional psychoeducational research paradigm and the more recent interdisciplinary approach of the childhood studies paradigm. They base their discussion on a research study of toddlers with disabilities, and they…

  17. Abuse and Young Children with Disabilities: A Review of the Literature

    ERIC Educational Resources Information Center

    Corr, Catherine; Santos, Rosa Milagros

    2017-01-01

    Legislation in the United States, such as the Child Abuse Prevention and Treatment Act and the Individuals With Disabilities Education Improvement Act, mandates service system collaboration to meet the complex needs of young children with disabilities who have experienced abuse. This literature review examines extant literature related to young…

  18. Computer-Based Reading Instruction for Young Children with Disabilities

    ERIC Educational Resources Information Center

    Lee, Yeunjoo; Vail, Cynthia O.

    2005-01-01

    This investigation examined the effectiveness of a computer program in teaching sight word recognition to four young children with developmental disabilities. The intervention program was developed through a formative evaluation process. It embedded a constant-time-delay procedure and involved sounds, video, text, and animations. Dependent…

  19. A Functional Analysis of Gestural Behaviors Emitted by Young Children with Severe Developmental Disabilities

    ERIC Educational Resources Information Center

    Ferreri, Summer J.; Plavnick, Joshua B.

    2011-01-01

    Many children with severe developmental disabilities emit idiosyncratic gestures that may function as verbal operants (Sigafoos et al., 2000). This study examined the effectiveness of a functional analysis methodology to identify the variables responsible for gestures emitted by 2 young children with severe developmental disabilities. Potential…

  20. Indicators of Intellectual Disabilities in Young Children with Autism Spectrum Disorders

    ERIC Educational Resources Information Center

    Rivard, Mélina; Terroux, Amélie; Mercier, Céline; Parent-Boursier, Claudel

    2015-01-01

    No agreement has been reached yet on the co-occurrence of Intellectual Disability (ID) and Autism Spectrum Disorders (ASD) in young children. This study describes the clinical profiles of 253 children with ASD between 30 and 65 months old, on IQ and adaptive behaviors, prior to their entry in an early behavioral intervention program. Results…

  1. Relations of Early Motor Skills on Age and Socialization, Communication, and Daily Living in Young Children With Developmental Disabilities.

    PubMed

    MacDonald, Megan; Ross, Samantha; McIntyre, Laura Lee; Tepfer, Amanda

    2017-04-01

    Young children with developmental disabilities experience known deficits in salient child behaviors, such as social behaviors, communication, and aspects of daily living, behaviors that generally improve with chronological age. The purpose of this study was to examine the mediating effects of motor skills on relations of age and salient child behaviors in a group of young children with developmental disabilities, thus tapping into the potential influences of motor skills in the development of salient child behaviors. One hundred thirteen young children with developmental disabilities participated in this study. Independent mediation analysis, with gender as a moderator between the mediating and outcome variable, indicated that motor skills meditated relations between age and socialization, communication, and daily living skills in young male children with developmental disabilities, but not female participants. Findings suggest motor skill content needs to be considered in combination with other child behaviors commonly focused on in early intervention.

  2. Peer-Mediated AAC Instruction for Young Children with Autism and other Developmental Disabilities

    PubMed Central

    Thiemann-Bourque, Kathy

    2013-01-01

    Many young children with developmental disabilities (DD) have significant delays in social, communication, and play skills. For those children learning to use augmentative and alternative communication (.AAC% successful social interactions with peers will require explicit instruction on the same system for both communication partners. Peer-mediated (PM) interventions are recommended best practice based on more than 30 years of research with young children with autism and other DDs. Integrating direct AAC instruction within PM programs to advance social reciprocity in typical preschool routines is a necessary and important next step for young AAC users. In this article, I will summarize the design and outcomes of two PM AAC studies documenting positive social outcomes for preschool children with severe autism. I will also teach} peer partners how to use AAC highlight strategies to recruit peers without disabilities systems (e.g., Picture Exchange Communication System [PECS], Speech Generating Devices [SGDs]), and engineer the preschool classroom for successful AAC communication. I will describe data collection procedures for measuring changes in reciprocal child and peer social communication interactions. PMID:24392179

  3. Peer-Mediated AAC Instruction for Young Children with Autism and other Developmental Disabilities.

    PubMed

    Thiemann-Bourque, Kathy

    2012-12-01

    Many young children with developmental disabilities (DD) have significant delays in social, communication, and play skills. For those children learning to use augmentative and alternative communication (.AAC% successful social interactions with peers will require explicit instruction on the same system for both communication partners. Peer-mediated (PM) interventions are recommended best practice based on more than 30 years of research with young children with autism and other DDs. Integrating direct AAC instruction within PM programs to advance social reciprocity in typical preschool routines is a necessary and important next step for young AAC users. In this article, I will summarize the design and outcomes of two PM AAC studies documenting positive social outcomes for preschool children with severe autism. I will also teach } peer partners how to use AAC highlight strategies to recruit peers without disabilities systems (e.g., Picture Exchange Communication System [PECS], Speech Generating Devices [SGDs]), and engineer the preschool classroom for successful AAC communication. I will describe data collection procedures for measuring changes in reciprocal child and peer social communication interactions.

  4. Engagement Behaviors of Young Children with Disabilities: Relationships with Preschool Teachers' Implementation of Embedded Instruction

    ERIC Educational Resources Information Center

    Rakap, Salih

    2013-01-01

    Engagement is hypothesized to be an important mediating factor in young children's development and learning. A major purpose of early intervention for young children with disabilities is to promote child engagement. While child engagement and related factors have been descriptively investigated since the 1970s, few studies have systematically…

  5. Validating Dynamic Assessment of Triadic Gaze for Young Children with Severe Disabilities

    ERIC Educational Resources Information Center

    Olswang, Lesley B.; Feuerstein, Julie L.; Pinder, Gay Lloyd; Dowden, Patricia

    2013-01-01

    Purpose: This research investigated the use of a dynamic assessment (DA) to identify differences among young children with severe disabilities, which would predict progress in learning behaviors indicating coordinated joint attention (CJA). Method: Six children 10-24 months of age were enrolled in a 16-week treatment for behaviors indicating CJA,…

  6. Family Voices: Promoting Foundation Skills of Self-Determination for Young Children with Disabilities in Taiwan

    ERIC Educational Resources Information Center

    Chu, Szu-Yin

    2018-01-01

    The purpose of this study was to investigate the perspectives of Taiwanese families regarding promoting foundations of self-determination for young children with disabilities. Twenty-one families of children with disabilities between 3 and 6 years of age in Taiwan were recruited for this study. Interviews were used to capture their perspectives.…

  7. Expressive Arts Project for Young Children with Disabilities. Final Report.

    ERIC Educational Resources Information Center

    Hutinger, Patricia L.

    This final report describes activities and accomplishments of the Expressive Arts Project for Young Children with Disabilities, which developed and evaluated a CD-ROM, ArtSpace. The program, developed on a Macintosh platform, allows the child to either view or make art. It offers real time video, music especially produced to accompany images,…

  8. Communication-based assessment of developmental age for young children with developmental disabilities.

    PubMed

    DeVeney, Shari L; Hoffman, Lesa; Cress, Cynthia J

    2012-06-01

    In this study, the authors compared a multiple-domain strategy for assessing developmental age of young children with developmental disabilities who were at risk for long-term reliance on augmentative and alternative communication (AAC) with a communication-based strategy composed of receptive language and communication indices that may be less affected by physically challenging tasks than traditional developmental age scores. Participants were 42 children (age 9-27 months) with developmental disabilities and who were at risk for long-term reliance on AAC. Children were assessed longitudinally in their homes at 3 occasions over 18 months using multiple-domain and communication-based measures. Confirmatory factor analysis examined dimensionality across the measures, and age-equivalence scores under each strategy were compared, where possible. The communication-based latent factor of developmental age demonstrated good reliability and was almost perfectly correlated with the multiple-domain latent factor. However, the mean age-equivalence score of the communication-based assessment significantly exceeded that of the multiple-domain assessment by 5.3 months across ages. Clinicians working with young children with developmental disabilities should consider a communication-based approach as an alternative developmental age assessment strategy for characterizing children's capabilities, identifying challenges, and developing interventions. A communication-based developmental age estimation is sufficiently reliable and may result in more valid inferences about developmental age for children whose developmental or cognitive age scores may otherwise be limited by their physical capabilities.

  9. Doubly Disadvantaged? Bullying Experiences among Disabled Children and Young People in England

    PubMed Central

    Chatzitheochari, Stella; Parsons, Samantha; Platt, Lucinda

    2015-01-01

    Bullying among school-aged children and adolescents is recognised as an important social problem, and the adverse consequences for victims are well established. However, despite growing interest in the socio-demographic profile of victims, there is limited evidence on the relationship between bullying victimisation and childhood disability. This article enhances our understanding of bullying experiences among disabled children in both early and later childhood, drawing on nationally representative longitudinal data from the Millennium Cohort Study and the Longitudinal Study of Young People in England. We model the association of disability measured in two different ways with the probability of being bullied at ages seven and 15, controlling for a wide range of known risk factors that vary with childhood disability. Results reveal an independent association of disability with bullying victimisation, suggesting a potential pathway to cumulative disability-related disadvantage, and drawing attention to the school as a site of reproduction of social inequalities. PMID:27546915

  10. Doubly Disadvantaged? Bullying Experiences among Disabled Children and Young People in England.

    PubMed

    Chatzitheochari, Stella; Parsons, Samantha; Platt, Lucinda

    2016-08-01

    Bullying among school-aged children and adolescents is recognised as an important social problem, and the adverse consequences for victims are well established. However, despite growing interest in the socio-demographic profile of victims, there is limited evidence on the relationship between bullying victimisation and childhood disability. This article enhances our understanding of bullying experiences among disabled children in both early and later childhood, drawing on nationally representative longitudinal data from the Millennium Cohort Study and the Longitudinal Study of Young People in England. We model the association of disability measured in two different ways with the probability of being bullied at ages seven and 15, controlling for a wide range of known risk factors that vary with childhood disability. Results reveal an independent association of disability with bullying victimisation, suggesting a potential pathway to cumulative disability-related disadvantage, and drawing attention to the school as a site of reproduction of social inequalities.

  11. A Review of Intervention Programs to Prevent and Treat Behavioral Problems in Young Children with Developmental Disabilities

    PubMed Central

    Petrenko, Christie L. M.

    2013-01-01

    Children with developmental disabilities are at higher risk for internalizing and externalizing behavioral problems than children in the general population. Effective prevention and treatment programs are necessary to reduce the burden of behavioral problems in this population. The current review identified 17 controlled trials of nine intervention programs for young children with developmental disabilities, with parent training the most common type of intervention in this population. Nearly all studies demonstrated medium to large intervention effects on child behavior post-intervention. Preliminary evidence suggests interventions developed for the general population can be effective for children with developmental disabilities and their families. A greater emphasis on the prevention of behavior problems in young children with developmental disabilities prior to the onset of significant symptoms or clinical disorders is needed. Multi-component interventions may be more efficacious for child behavior problems and yield greater benefits for parent and family adjustment. Recommendations for future research directions are provided. PMID:24222982

  12. Key Workers and Schools: Meeting the Needs of Children and Young People with Disabilities

    ERIC Educational Resources Information Center

    Webb, Rosemary; Greco, Veronica; Sloper, Patricia; Beecham, Jennifer

    2008-01-01

    Across the world countries are advocating the education of children and young people with disabilities in mainstream schools. There is also increasing interest in developing effective coordination of the specialist services pupils with disabilities receive from different agencies. This is accompanied by growing recognition that such care…

  13. Enhancing Outcomes in Early Literacy for Young Children with Disabilities: Strategies for Success

    ERIC Educational Resources Information Center

    Johnston, Susan S.; McDonnell, Andrea P.; Hawken, Leanne S.

    2008-01-01

    Emerging literacy has been defined as the "reading and writing knowledge and behavior of children who are not yet conventionally literate" (Justice & Kaderavek, 2002, p. 8). This article provides readers with strategies for meeting the emerging literacy needs of young children with disabilities. Ideas for creating a literacy-rich environment as…

  14. Conceptualisations of Disability and Inclusion: Perspectives of Educators of Young Children

    ERIC Educational Resources Information Center

    Thornton, Colleen; Underwood, Kathryn

    2013-01-01

    This grounded theory study explores beliefs about disability and inclusion from the perspectives of educators of young children in their respective roles as elementary school teachers and early childhood educators, in Ontario, Canada. The social relational model described by Reindal is used as a theoretical framework for interviews with four…

  15. The Voice of Jordanian Parents of Young Children with Disabilities on Involvement in Their Children's Educational Services

    ERIC Educational Resources Information Center

    Hyassat, Mizyed A.

    2016-01-01

    Since the literature in the field of special education supports the argument that involving parents in the educational process is more likely to positively influence children's educational outcomes, this research aims at exploring the position of Jordanian parents of young children with disabilities in terms of their involvement. A qualitative…

  16. Needs Expressed by Mothers and Fathers of Young Children with Disabilities.

    ERIC Educational Resources Information Center

    Bailey, Donald B., Jr.; And Others

    1992-01-01

    Expressed needs of mothers and fathers (n=422 parents) of young children with disabilities were compared and related to child and family characteristics. Mothers expressed more needs than did fathers, primarily in "Family and Social Support,""Explaining to Others," and "Child Care." Birth order, age, and race were not determinants of expressed…

  17. Homeless and Disabled: Rights, Responsibilities, and Recommendations for Serving Young Children with Special Needs

    ERIC Educational Resources Information Center

    Gargiulo, Richard M.

    2006-01-01

    Homelessness is a growing social problem in the United States. Especially vulnerable to this phenomenon are young children because homelessness is viewed as a breeding ground for disabilities. Despite federal legislation ensuring educational opportunities, the educational needs of children who are homeless are frequently unfulfilled. This article…

  18. Well-Being and Support Systems of Taiwanese Mothers of Young Children with Developmental Disabilities

    ERIC Educational Resources Information Center

    Ho, Tzu-Hua

    2013-01-01

    This study investigated the influences of children's adaptive skills, problem behaviors, and parent support systems (informal support and formal professional support) on maternal well-being (health and stress) in Taiwanese mothers of young children with developmental disabilities. The study examined the moderating effects of formal support and…

  19. Communication-Based Assessment of Developmental Age for Young Children with Developmental Disabilities

    ERIC Educational Resources Information Center

    DeVeney, Shari L.; Hoffman, Lesa; Cress, Cynthia J.

    2012-01-01

    Purpose: In this study, the authors compared a multiple-domain strategy for assessing developmental age of young children with developmental disabilities who were at risk for long-term reliance on augmentative and alternative communication (AAC) with a communication-based strategy composed of receptive language and communication indices that may…

  20. The Effects of Smart Start on Young Children with Disabilities & Their Families. Final Report.

    ERIC Educational Resources Information Center

    Porter, Patricia; Munn, Duncan; Buysse, Virginia; Tyndall, Sabrina

    Smart Start, North Carolina's early childhood initiative, seeks to improve early childhood programs and ensure that all North Carolina children enter school healthy and ready to learn. This study evaluated outcomes related to Smart Start program inclusion of young children with disabilities: (1) access to inclusive programming; (2) quality of…

  1. Shortages in Professions Working with Young Children with Disabilities and Their Families.

    ERIC Educational Resources Information Center

    Hebbeler, Kathleen

    This paper synthesizes information about shortages among the professions working with young children with disabilities, birth through age 5, and their families. The paper begins with a look at national data on personnel working in early intervention and preschool special education. Distinctions between the work force in early intervention (Part H…

  2. Young Children with Disabilities in Israel: System of Early Intervention Service Delivery

    ERIC Educational Resources Information Center

    Shulman, Cory; Meadan, Hedda; Sandhaus, Yoram

    2012-01-01

    This article aims to analyze early intervention programs in Israel according to the Developmental Systems Model (Guralnick, 2001), in an attempt to identify strengths and areas for further development for service delivery for young children with disabilities in Israel. Early intervention in Israel is part of a comprehensive healthcare model…

  3. Supporting Families of Young Children with Disabilities: Examining the Role of Administrative Structures

    ERIC Educational Resources Information Center

    Epley, Pamela; Gotto, George S., IV; Summers, Jean Ann; Brotherson, Mary Jane; Turnbull, Ann P.; Friend, Anna

    2010-01-01

    This article presents findings from two early intervention agencies examining how administrative structures affect providers' ability to serve families of young children with disabilities. Based on previous research identifying three administrative structures (i.e., vision/leadership, organizational climate, and resources), this article…

  4. Prioritising the Inclusion of Children and Young People with Disabilities in Post-Conflict Education Reform

    ERIC Educational Resources Information Center

    Irvine, Rebecca

    2015-01-01

    There has been limited attention paid to the link between conflict and disability and even less recognition for the importance of facilitating inclusion of children and young people with disabilities in post-conflict societies. The end of a civil conflict provides an opportunity for social and political change, and progressive education policies…

  5. An Investigation of a Parenting Videotape Targeted to Parents of Young Children with Disabilities. Final Report, Phase I.

    ERIC Educational Resources Information Center

    McKinney, David D.

    This feasibility study examined the need and the appropriateness of developing a videotape targeted to parents of young children with disabilities. The study involved a review of the literature, interviews with experts and practitioners, a focus group discussion to elicit the opinions and suggestions of parents of children with disabilities,…

  6. Peer Victimization among Young Children with Disabilities: Early Risk and Protective Factors

    ERIC Educational Resources Information Center

    Son, Esther; Peterson, N. Andrew; Pottick, Kathleen J.; Zippay, Allison; Parish, Susan L.; Lohrmann, Sharon

    2014-01-01

    The purpose of this study was to examine the risk and protective factors of peer victimization among young children with disabilities. This study analyzed data from the Pre-Elementary Education Longitudinal Study (n =1,130) to test a path model that included child, family, and school characteristics at Year 1 and peer-relation difficulties and…

  7. Dental caries experience and barriers to care in young children with disabilities in Ireland.

    PubMed

    Sagheri, Darius; McLoughlin, Jacinta; Nunn, June H

    2013-02-01

    Dental caries among preschool children remains a significant dental public health problem. In Ireland, there are no national data available regarding dental caries levels in preschool children. Furthermore, the number of young children with disabilities and their dental caries levels remains unknown. The aim of the present study was to measure the dental caries levels in a sample of preschool children with disabilities. A team of trained and calibrated dentists examined a sample of all 0- to 6-year old preschool children with disabilities in two health service administrative areas under standardized conditions. Dental caries was recorded using WHO criteria. Of a total of 422 participants, 337 datasets were included in the study. Of these 337 examined children, approximately 75.1% had a cognitive disability and 12.9% had a noncognitive disability. In 12% of the children, a diagnosis had not yet been established. Dental caries at dentin level was detected from the age of 4 years. The overall mean decayed/missing/ filled teeth (dmft) was 0.49 (SD, 1.39). The analysis of mean dmft levels in children with positive (dmft > 0) scores revealed a mean dmft of 1.14. The evidence from this study demonstrated that dental caries levels in preschool children with disabilities in Ireland are low when compared with the general population. Furthermore, children aged 3 years or younger exhibited no dental caries at dentin level and therefore were not affected by early childhood caries. An adjustment of current oral health prevention practice may lead to a further reduction in dental caries levels in this section of the child population.

  8. Emotional Responsivity in Young Children with Williams Syndrome

    ERIC Educational Resources Information Center

    Fidler, Debbie J.; Hepburn, Susan L.; Most, David E.; Philofsky, Amy; Rogers, Sally J.

    2007-01-01

    The hypothesis that young children with Williams syndrome show higher rates of emotional responsivity relative to other children with developmental disabilities was explored. Performance of 23 young children with Williams syndrome and 30 MA-matched children with developmental disabilities of nonspecific etiologies was compared on an adaptation of…

  9. Annotation: Early Intervention and Prevention of Self-Injurious Behaviour Exhibited by Young Children with Developmental Disabilities

    ERIC Educational Resources Information Center

    Richman, D. M.

    2008-01-01

    The ontogeny of self-injurious behaviour exhibited by young children with developmental delays or disabilities is due to a complex interaction between neurobiological and environmental variables. In this manuscript, the literature on emerging self-injury in the developmental disability population is reviewed with a focus on an operant conceptual…

  10. Thai Preschool Teachers' Views about Inclusive Education for Young Children with Disabilities

    ERIC Educational Resources Information Center

    Sukbunpant, Sasipin; Arthur-Kelly, Michael; Dempsey, Ian

    2013-01-01

    It is generally assumed that preschool teachers play a crucial daily role in the inclusion of young children with a disability in education settings. In many countries, however, there are little available data to inform such a view. Part of a larger project with 528 preschool teachers from northern Thailand, the aim of the study reported here was…

  11. Supporting Young Children with Multiple Disabilities: What Do We Know and What Do We Still Need to Learn?

    ERIC Educational Resources Information Center

    Horn, Eva; Kang, Jean

    2012-01-01

    Young children with multiple disabilities have unique needs and challenges. Many of these young children struggle to communicate their wants and needs, to freely move their body to access and engage their world, and to learn abstract concepts and ideas. Professionals and families working together must identify the individual supports each child…

  12. Physical Activity and Play Behaviours in Children and Young People with Intellectual Disabilities: A Cross-Sectional Observational Study

    ERIC Educational Resources Information Center

    Boddy, Lynne M.; Downs, Samantha J.; Knowles, Zoe R.; Fairclough, Stuart J.

    2015-01-01

    The benefits of physical activity and active play for children and young people are well established. However, there is a lack of physical activity research involving children and young people with intellectual disabilities. This study investigated habitual physical activity and recess play behaviour in 70 5- to 15-year-old participants with…

  13. Modified Ride-On Cars and Young Children with Disabilities: Effects of Combining Mobility and Social Training.

    PubMed

    Huang, Hsiang-Han; Chen, Yi-Mei; Huang, Hsuan-Wen; Shih, Ming-Ke; Hsieh, Yu-Hsin; Chen, Chia-Ling

    2017-01-01

    Research has shown that the use of power mobility devices is safe and beneficial for motor and cognitive development in children with motor disabilities; nevertheless, strong evidence of the benefits for social skill development is limited. This study aimed to examine the effects of combining ride-on car training with an adult-directed, social interaction program in a hospital-based environment on mobility and social functions in young children with motor disabilities. This study used a prospective, nonequivalent pretest-posttest control group design. Twenty-nine young children with motor disabilities, aged between 1 and 3 years, were recruited from local hospitals in Taiwan. The treatment group ( n  = 15) underwent 2-h ride-on car training sessions twice per week for a total of 9 weeks in the hospital environment. The control group ( n  = 14) underwent a 9-week home education program (mean: 200 min/week) focusing on mobility and social skills training. The Chinese version of the Pediatric Evaluation of Disability Inventory, Parenting Stress Index, and Goal Attainment Scaling were administered to all participants before and after the intervention, and at the end of the 9-week follow-up phase. Mobility and social functions significantly improved in both groups after the 9-week intervention, but this improvement was not maintained at the follow-up phase. The treatment group showed significantly better improvement in social function, parenting stress levels, and goal achievement than the control group at posttest. This two-group design study showed the benefits of combining a ride-on car use with a family-centered, structured, social interaction program for positive impacts on mobility, social function, and parenting stress levels. The combination of a modified ride-on car and a social training program has the potential to enhance socialization in young children with motor disabilities. www.ClinicalTrials.gov, identifier NCT02527499.

  14. Exploring the Facilitation of Young Children with Disabilities in Research about Their Early Intervention Service

    ERIC Educational Resources Information Center

    Carroll, Clare; Sixsmith, Jane

    2016-01-01

    While participatory research approaches are being developed and applied within speech and language therapy practice it is not clear that all children are afforded the opportunity to participate in such activities. This study aimed to explore the involvement of young children, aged between two and four years, with developmental disabilities in the…

  15. Internet-Based Intervention Training for Parents of Young Children with Disabilities: A Promising Service-Delivery Model

    ERIC Educational Resources Information Center

    Meadan, Hedda; Daczewitz, Marcus E.

    2015-01-01

    Efficient early intervention (EI) services are required to serve the needs of young children with disabilities and the needs of their families. Effective EI includes family-centred practices, evidence-based interventions, parent involvement/training, and delivery in children's natural environments. Due to the challenges of providing…

  16. Measuring the Friendships of Young Children with Disabilities: A Review of the Literature

    ERIC Educational Resources Information Center

    Meyer, Lori E.; Ostrosky, Michaelene M.

    2014-01-01

    The purpose of this article is to describe what has been learned over the past 35+ years of research on the friendships of young children with disabilities. An extensive literature review was conducted to critically examine the purposes that guided the friendship studies, the methods used to measure friendships, and the major findings of these…

  17. Assistive Technology for Infants, Toddlers, and Young Children with Disabilities. Alliance Action Information Sheets

    ERIC Educational Resources Information Center

    Technical Assistance ALLIANCE for Parent Centers, 2006

    2006-01-01

    Research shows that assistive technology (AT) can help young children with disabilities to learn developmental skills. Its use may help infants and toddlers to improve in many areas: (1) social skills including sharing and taking turns; (2) communication skills; (3) attention span; (4) fine and gross motor skills; and (5) self confidence and…

  18. Otitis Media in Young Children with Disabilities.

    ERIC Educational Resources Information Center

    Zeisel, Susan A.; Roberts, Joanne E.

    2003-01-01

    This study examined the prevalence of otitis media with effusion (OME) in 14 children (ages 8-66 months) with developmental disabilities attending center-based childcare. Although younger children had more OME than older children, children with Down syndrome had the highest incidence of OME regardless of age. Implications of OME for fluctuating…

  19. Helping Parents of Young Children with Disabilities Become Consumers of Early Intervention: A Marketing Approach.

    ERIC Educational Resources Information Center

    Fugate, Douglas L.; Fugate, Janet M.

    1995-01-01

    This article suggests the use of marketing techniques to disseminate information products to parents of young children with disabilities. A marketing plan might include the following steps: determination of market needs, market segmentation and target marketing, marketing goals and objectives, marketing strategy, marketing mix tactics, and control…

  20. Food Preferences in Young Dutch Children and Recommendations for Feeding Intervention in Developmental Disabilities

    ERIC Educational Resources Information Center

    Deckers, Stijn R. J. M.; De Moor, Jan M. H.; Van der Burg, Jan J. W.

    2011-01-01

    Total and chronic food refusal (i.e., the refusal of all types of food during a prolonged period) in young children with developmental disabilities can be treated effectively using a combination of environmental interventions. However, no guidelines for the selection of food items to offer the child in these interventions are available. The aim of…

  1. Young Children's Attitudes toward Orthopedic and Sensory Disabilities.

    ERIC Educational Resources Information Center

    DeGrella, Lanier H.; Green, Virginia P.

    1984-01-01

    Attitudes of 64 nondisabled children (three to seven years old) toward orthopedic and sensory disabilities were examined via the Test of Early Attitudes toward Disability. Responses indicated that bias against orthopedic and sensory disabilities increases with age but is not present among three-year-olds. (Author/CL)

  2. Compounding the Challenge: Young Deaf Children and Learning Disabilities.

    ERIC Educational Resources Information Center

    Mauk, Gary W.; Mauk, Pamela P.

    1993-01-01

    This paper presents a definition of deaf and hard of hearing children with learning disabilities; notes the incidence of children with both disabilities; outlines roadblocks to learning; describes screening, diagnosis, and assessment practices; and offers suggestions for educational programming. (JDD)

  3. Effects of Child-Robot Interactions on the Vocalization Production of Young Children with Disabilities. Social Robots. Research Reports, Number 4

    ERIC Educational Resources Information Center

    Dunst, Carl J.; Trivette, Carol M.; Hamby, Deborah W.; Prior, Jeremy; Derryberry, Graham

    2013-01-01

    Findings from two studies investigating the effects of a socially interactive robot on the vocalization production of young children with disabilities are reported. The two studies included seven children with autism, two children with Down syndrome, and two children with attention deficit disorders. The Language ENvironment Analysis (LENA)…

  4. Young Children's Exposure to Community Violence.

    ERIC Educational Resources Information Center

    Vig, Susan

    1996-01-01

    Explores the impact of community violence on the development of young children, especially those with developmental disabilities. Characteristics of young children's responses to stress and trauma are reviewed and child, family, and community factors which contribute to resilience are identified. Intervention approaches are suggested. (Author/DB)

  5. A Framework for Understanding Young Children with Severe Multiple Disabilities: The van Dijk Approach to Assessment.

    ERIC Educational Resources Information Center

    Nelson, Catherine; van Dijk, Jan; McDonnell, Andrea P.; Thompson, Kristina

    2002-01-01

    This article describes a framework for assessing young children with severe multiple disabilities. The assessment is child-led and examines underlying processes of learning, including biobehavioral state, orienting response, learning channels, approach-withdrawal, memory, interactions, communication, and problem solving. Case studies and a sample…

  6. Vestibulo-Ocular Response and Balance Control in Children and Young Adults with Mild-to-Moderate Intellectual and Developmental Disability: A Pilot Study

    ERIC Educational Resources Information Center

    Zur, Oz; Ronen, Ayelet; Melzer, Itshak; Carmeli, Eli

    2013-01-01

    The vestibulo-ocular response (VOR) may not be fully developed in children with an intellectual and developmental disability (IDD). This study aimed to identify the presence of VOR deficit in children and young adults with unspecified mild-to-moderate intellectual and developmental disability and its effect on balance control. Twenty-one children…

  7. Locus of control and utilization of social support among mothers of young children with physical disabilities.

    PubMed

    Rimmerman, A; Stanger, V

    1992-01-01

    Sixty mothers of young children with physical disabilities were studied with respect to the effect of the mothers' locus of control on the utilization of social support. The initial findings failed to support the thesis that mothers with an 'internally' focused locus of control would demonstrate greater utilization of their support system, both in terms of descriptive and functional measures. A secondary analysis showed that the mothers' age, the children's level of functioning, and the existence of additional members of the family with a disability served as intervening variables. Only among older mothers, who perceived their children's functioning as severe, was there significant association between the locus of control ('internal') and greater use of their social support system. 'Internal' mothers who had no additional extended family members with a disability reported higher levels of functional social support, as compared to 'external' mothers. Findings are interpreted with respect to social support theory and its implications to applied research.

  8. Exploring Elementary Students' Perceptions of Disabilities Using Children's Literature

    ERIC Educational Resources Information Center

    Wilkins, Julia; Howe, Kathryn; Seiloff, Maddie; Rowan, Shelly; Lilly, Elizabeth

    2016-01-01

    The portrayal of characters in children's literature can be a very powerful influence on young children. Teachers have a responsibility to expose children to characters of all types, including those with disabilities. The goal of this study was to explore how third and fourth grade students responded to characters with disabilities in children's…

  9. The Use of Play Expansions to Increase the Diversity and Complexity of Object Play in Young Children with Disabilities

    ERIC Educational Resources Information Center

    Frey, Jennifer R.; Kaiser, Ann P.

    2011-01-01

    The purpose of this study was to determine if an intervention consisting of contingently imitating play, modeling expansions of play actions, and describing play actions increased the diversity of object play in young children with disabilities. The multicomponent intervention was introduced in a multiple-probe design across three young children…

  10. Factors Affecting Out-of-Home Placement of Young Children with Disabilities and High Support Needs.

    ERIC Educational Resources Information Center

    Llewellyn, Gwynnyth

    This paper reports on a portion of a study on community support and respite for families of children with disabilities in New South Wales (Australia). This part of the study focused on identification of factors influencing families when making decisions about caring for their young child at home or seeking an out-of-home placement. The study used…

  11. Improving Learning Outcomes: The iPad and Preschool Children with Disabilities

    PubMed Central

    Chmiliar, Linda

    2017-01-01

    The digital age has reached early childhood, and the use of touch screens by young children is common place. Research on the use of touch screen tablets with young children is becoming more prevalent; however, less information is available on the use of touch screen tablets to support young children with disabilities. Touch screen tablets may offer possibilities to preschool children with disabilities to participate in learning in a digital way. The iPad provides easy interaction on the touch screen and access to a multitude of engaging early learning applications. This paper summarizes a pilot study with 8 young children with disabilities included in a preschool classroom, who were given iPads to use in class and at home for a period of 21 weeks. Systematic observations, classroom assessments, and teacher and parent interviews documented the improvements in learning outcomes for each child in many areas including, but not limited to: shape and color recognition, letter recognition, and tracing letters throughout six research cycles. PMID:28529493

  12. Improving Learning Outcomes: The iPad and Preschool Children with Disabilities.

    PubMed

    Chmiliar, Linda

    2017-01-01

    The digital age has reached early childhood, and the use of touch screens by young children is common place. Research on the use of touch screen tablets with young children is becoming more prevalent; however, less information is available on the use of touch screen tablets to support young children with disabilities. Touch screen tablets may offer possibilities to preschool children with disabilities to participate in learning in a digital way. The iPad provides easy interaction on the touch screen and access to a multitude of engaging early learning applications. This paper summarizes a pilot study with 8 young children with disabilities included in a preschool classroom, who were given iPads to use in class and at home for a period of 21 weeks. Systematic observations, classroom assessments, and teacher and parent interviews documented the improvements in learning outcomes for each child in many areas including, but not limited to: shape and color recognition, letter recognition, and tracing letters throughout six research cycles.

  13. Key Working for Families with Young Disabled Children

    PubMed Central

    Carter, Bernie; Thomas, Megan

    2011-01-01

    For families with a disabled child, the usual challenges of family life can be further complicated by the need to access a wide range of services provided by a plethora of professionals and agencies. Key working aims to support children and their families in navigating these complexities ensuring easy access to relevant, high quality, and coordinated care. The aim of this paper is to explore the key worker role in relation to “being a key worker” and “having a key worker”. The data within this paper draw on a larger evaluation study of the Blackpool Early Support Pilot Programme. The qualitative study used an appreciative and narrative approach and utilised mixed methods (interviews, surveys and a nominal group workshop). Data were collected from 43 participants (parents, key workers, and other stakeholders). All stakeholders who had been involved with the service were invited to participate. In the paper we present and discuss the ways in which key working made a difference to the lives of children and their families. We also consider how key working transformed the perspectives of the key workers creating a deeper and richer understanding of family lives and the ways in which other disciplines and agencies worked. Key working contributed to the shift to a much more family-centred approach, and enhanced communication and information sharing between professionals and agencies improved. This resulted in families feeling more informed. Key workers acted in an entrepreneurial fashion, forging new relationships with families and between families and other stakeholders. Parents of young disabled children and their service providers benefited from key working. Much of the benefit accrued came from strong, relational, and social-professional networking which facilitated the embedding of new ways of working into everyday practice. Using an appreciative inquiry approach provided an effective and relevant way of engaging with parents, professionals, and other

  14. Vulnerability and risk in children living with a physical disability.

    PubMed

    Heaslip, Vanessa; Hewitt-Taylor, Jaqui

    2014-12-01

    Children are identified as a vulnerable group in need of a degree of safeguarding. About 6% of children in the UK have a disability, which can increase their level of vulnerability. How disability is perceived by others may affect the way they work with these young people in coping with life's risks, which may be increased due to the disability. Each individual's perception of the risks and benefits of a given venture varies. Children's nurses work with these young people and their families, aiming to give them maximum autonomy, self-reliance, empowerment and independence in adulthood. This involves risk-taking, as every young person needs to learn from graduated exposure to new experiences, environments, associations and hazards; the chance of harm must be balanced with the disadvantages of over-protection.

  15. Framing disability among young adults with disabilities and non-disabled young adults: an exploratory study.

    PubMed

    Soffer, Michal; Chew, Fiona

    2015-01-01

    To explore how young adults frame disability and to compare the meanings of disability between persons with and without disabilities. Snow ball sampling was used to recruit the participants. The sample comprised of 14 young adults from Upstate New York area; nine were non-disabled, five had a physical disability. Data were collected by semi-structured interviews. Qualitative content analysis was used to analyze the data. Five themes emerged from the analysis: disability as a deviation from "the norm", disability as inability, disability as something one needs to overcome, the role of the environment in disability, and disability as a negative phenomenon. The findings suggest that persons with disabilities hold somewhat different meanings of disability compared with non-disabled persons. While the biomedical frame of disability was somewhat challenged, disability is mainly understood via a biomedical lens. Disability should be framed as form of human diversity, not as a mark of Cain.

  16. The Effect of Activity Type on the Engagement and Interaction of Young Children with Disabilities in Inclusive Childcare Settings

    ERIC Educational Resources Information Center

    Kemp, Coral; Kishida, Yuriko; Carter, Mark; Sweller, Naomi

    2013-01-01

    The engagement and adult and peer interaction of 37 young children with a range of disabilities was measured in free play, group, and meal-routine activities in inclusive childcare settings. A significant effect for activity type was found for total engagement, active engagement, and passive engagement, with the children being more engaged in…

  17. Risk Factors for Self-Injury, Aggression, and Stereotyped Behavior among Young Children at Risk for Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    Schroeder, Stephen R.; Marquis, Janet G.; Reese, R. Matthew; Richman, David M.; Mayo-Ortega, Liliana; Oyama-Ganiko, Rosa; LeBlanc, Judith; Brady, Nancy; Butler, Merlin G.; Johnson, Tiffany; Lawrence, Linda

    2014-01-01

    Before the 1990s, research on the early identification and prevention of severe behavior disorders (SBDs), such as aggression, self-injury, and stereotyped behavior, among young children with intellectual and developmental disabilities (IDD), was mostly done with children 3 years or older. More recent work suggests that signs of SBDs may occur as…

  18. Analogical Matrices in Young Children and Students with Intellectual Disability: Reasoning by Analogy or Reasoning by Association?

    ERIC Educational Resources Information Center

    Denaes, Caroline

    2012-01-01

    Background: Analogical reasoning (AR) is renowned for being a complex activity. Young children tend to reason by association, rather by analogy, and people with intellectual disability present problems of memorization. Both these populations usually show low performances in AR. The present author investigated whether familiar material and external…

  19. Social Experiences of Children with Disabilities in Inclusive Portuguese Preschool Settings

    ERIC Educational Resources Information Center

    Ferreira, Milene; Aguiar, Cecília; Correia, Nadine; Fialho, Margarida; Pimentel, Júlia Serpa

    2017-01-01

    Based on peer sociometric reports, we examined how number of friendships, social acceptance, and characteristics of social networks vary as a function of disability profile. We also investigated teachers' awareness of the sociometric status of young children with disabilities. Participants were 86 children with disabilities (63 boys) enrolled in…

  20. Disability, Home Physical Environment and Non-Fatal Injuries among Young Children in China

    PubMed Central

    Xiang, Hui-yun; Yu, Chuan-hua; Du, Yu-kai

    2012-01-01

    Objectives We compared the patterns of medically attended injuries between children with and without disabilities and explored the residential environment risks in five counties of Hubei Province in the People's Republic of China by a 1∶1 matched case-control study based on the biopsychosocial model of the International Classification of Functioning, Disability and Health – ICF. Methods 1201 children aged 1–14 with disabilities and 1201 their healthy counterparts matched as having the same gender, same age, and lived in the same neighborhood were recruited in our study. Characteristics of injuries in the past 12 months were compared between children with and without disabilities. The associations among disability status, home environment factors and injuries were examined in logistic regression analysis taking into account sociodemographic factors. Results Children with disabilities had a significantly higher prevalence of injury than children without disabilities (10.2% vs. 4.4%; P<.001). The two groups differed significantly in terms of number of injury episodes, injury place and activity at time of injury. Falls were the leading mechanism of injury regardless of disability status. Most of the injury events happened inside the home and leisure activities were the most reported activity when injured for both groups. The univariate OR for injury was 4.46 (2.57–7.74) for the disabled children compared with the non-disabled children. Disabled children whose family raised cat/dog(s) were 76% more likely to be injured during the last 12 months (OR = 1.76; 95% CI = 1.02, 3.02),comparing with those whose family did not have any cat/dog. And for children without disabilities, those whose family had cat/dog(s) were over 3 times more likely to having injuries comparing with those whose family did not have any cat/dog. Conclusions Children with disabilities had a significantly increased risk for injury. Interventions to prevent residential injury are an

  1. Self-Concept of Children with Intellectual Disability in Mainstream Settings

    ERIC Educational Resources Information Center

    Huck, Sally; Kemp, Coral; Carter, Mark

    2010-01-01

    Background: Positive self-concept is an important educational outcome for individuals with disability. Method: Perceived competence and acceptance of 17 children with intellectual disability, included in mainstream classes, were assessed using the Pictorial Scale of Perceived Competence and Social Acceptance for Young Children (PSPCSA) and…

  2. Adaptive Behavior of Young Urban Children with Developmental Disabilities.

    ERIC Educational Resources Information Center

    Vig, Susan; Jedrysek, Eleonora

    1995-01-01

    Assessment of 497 urban preschool children with developmental disabilities using the Vineland Adaptive Behavior Scales indicated a strong positive relationship between adaptive behavior and intelligence if measured globally. When Vineland domains were assessed separately, this relationship varied across domains and disability groups. With…

  3. Investigation and Comparison of Turkish and American Preschool Teacher Candidates' Attitudes towards Inclusion of Young Children with Disabilities

    ERIC Educational Resources Information Center

    Rakap, Salih; Parlak-Rakap, Asiye; Aydin, Burak

    2016-01-01

    Inclusion of young children with disabilities into general education classrooms is a common practice that has been implemented for many years in developed countries around the world and many developing countries have been creating and implementing laws and regulations to support inclusive education in early years. Although extant literature…

  4. Health promotion for young people with profound and multiple learning disabilities.

    PubMed

    Davis, Kathy; Carter, Simone; Myers, Elizabeth; Rocca, Nicola

    2018-02-07

    Research confirms that children and young people with severe learning disabilities do not have the same level of access to high-quality care, health education and health promotion activities as children and young people without disabilities. This article discusses a quality improvement, action research project to investigate alternative approaches to health promotion that enhance the health and well-being of children and young people with complex neurodisabilities. The project involved assessment of school records and completion by staff of an eight-question survey. It found that the proactive approach of school nurses in raising awareness and understanding through questioning was positively received, and reinforced how meaningful and relevant information could be delivered to these young people. The project also had unexpected benefits, including more integrated team working, increased knowledge, greater awareness and understanding of the importance of health promotion participation, and student satisfaction. ©2018 RCN Publishing Company Ltd. All rights reserved. Not to be copied, transmitted or recorded in any way, in whole or part, without prior permission of the publishers.

  5. The Young Athletes Curriculum: Impact on Children with Disabilities in Kenya

    ERIC Educational Resources Information Center

    Favazza, Paddy C.; Siperstein, Gary N.; Ghio, Kathleen; Wairimu, Jane; Masila, Susan

    2016-01-01

    Research consistently demonstrates that children with developmental disabilities exhibit motor skill deficits, but motor skill interventions can positively affect motor abilities and other areas of development. These findings have particular relevance for children with disabilities in developing countries, where there is limited access to early…

  6. Teaching Imitation to Young Children with Disabilities: A Review of the Literature

    ERIC Educational Resources Information Center

    Ledford, Jennifer R.; Wolery, Mark

    2011-01-01

    Imitation is a primary means through which children learn new skills. Most children learn to imitate without being taught but some children with disabilities fail to develop or use imitation in the absence of direct instruction. The importance of teaching imitation to children with disabilities has been acknowledged, with studies appearing as…

  7. Self-Reported Participation in Sport/Exercise Among Adolescents and Young Adults With and Without Mild to Moderate Intellectual Disability.

    PubMed

    Robertson, Janet; Emerson, Eric; Baines, Susannah; Hatton, Chris

    2018-04-01

    Physical inactivity is a leading risk factor for mortality. Adults with intellectual disability are extremely inactive, but less is known about physical activity levels in children and youth with intellectual disability. This paper examines the participation by adolescents and young adults with and without mild to moderate intellectual disability in sport/exercise. Secondary analysis was undertaken of Next Steps, an annual panel study that followed a cohort from early adolescence into adulthood. Participants with mild to moderate intellectual disability were identified through data linkage with educational records. Sport/exercise participation rates were consistently lower for adolescents and young people with mild to moderate intellectual disability than for their peers without intellectual disability. Matching participants on between-group differences in exposure to extraneous risk factors did not impact on these between-group differences in participation in sport/exercise. The results support limited existing evidence regarding the low level of participation of children and young people with intellectual disability in sport/exercise compared with their peers. Future work on promoting sport/exercise and physical activity in children and young people with intellectual disability may play a role in helping to reduce the health inequalities experienced by people with intellectual disability.

  8. Differences in Child Care Quality for Children with and without Disabilities

    ERIC Educational Resources Information Center

    Grisham-Brown, Jennifer; Cox, Megan; Gravil, Meg; Missall, Kristen

    2010-01-01

    Research Findings: Federal, state, and local agencies legislate and support inclusive settings for the education of young children with disabilities. Recommended practices outline critical elements for meeting the educational and developmental needs of children with and without disabilities in inclusive settings, and minimal and essential quality…

  9. Health-Related Quality of Life Among Young Children With Cochlear Implants and Developmental Disabilities.

    PubMed

    Zaidman-Zait, Anat; Curle, Deirdre; Jamieson, Janet R; Chia, Ruth; Kozak, Frederick K

    The present study examined differences in health-related quality of life (HRQoL) between deaf children with cochlear implants (CI) with and without developmental disabilities (DD) and differences across HRQoL domains within both groups of children. Ninety-two parents of children with CI aged 3-7 years participated in this cross-sectional study. Of these children, 43 had DD (i.e., CI-DD group) and 49 had no DD or chronic illness, demonstrating overall typical development (i.e., CI-TD group). Parents of children in both groups completed the KINDL, a generic HRQoL questionnaire. Parents also provided anecdotal comments to open-ended questions, and parent comments were evaluated on a CI benefits scale to assess parent-perceived benefits of CI for the deaf children with and without disabilities. Children in the CI-DD group had significantly lower HRQoL compared to children in the CI-TD group, including lower scores on the self-esteem, friend, school, and family HRQoL subscales. No significant differences among groups were found on the physical well-being and emotional well-being subscales. For the CI-TD group, age at implantation correlated negatively with self-esteem and school HRQoL subscales. In the CI-DD group, children's current age correlated negatively with family and with the total HRQoL scores. Parent anecdotal comments and scores on the CI-benefits scale indicated strong parent perceptions of benefits of implantation for children in both groups. Based on parents' proxy report, findings suggest that having DD affects multiple domains of HRQoL among young children with CIs above and beyond that of the CI itself. Parents of deaf children with DD may need greater support through the CI process and follow-up than parents of deaf children without DD.

  10. Young children's attitudes toward peers with intellectual disabilities: effect of the type of school.

    PubMed

    Georgiadi, Maria; Kalyva, Efrosini; Kourkoutas, Elias; Tsakiris, Vlastaris

    2012-11-01

    This study explored typically developing children's attitudes towards peers with intellectual disabilities, with special reference to the type of school they attended. Two hundred and fifty-six Greek children aged 9-10 (135 in inclusive settings) completed a questionnaire and an adjective list by Gash (European Journal of Special Needs Education 1993; 8, 106) and drew a child with intellectual disabilities, commenting also on their drawings. Typically developing children expressed overall neutral attitudes towards peers with intellectual disabilities. Type of school differentiated their attitudes, with children from inclusive settings being more positive towards peers with intellectual disabilities and choosing less negative adjectives to describe them than children from non-inclusive settings. Girls and students who expressed more positive social, emotional and overall attitudes towards students with intellectual disabilities chose more positive adjectives to describe a child with intellectual disabilities. It was also found that children from inclusive settings drew children with intellectual disabilities as more similar to a child with Down syndrome in comparison with children from non-inclusive settings. Effective inclusive practices should be promoted to foster social acceptance of students with intellectual disabilities. © 2012 Blackwell Publishing Ltd.

  11. Assistive Technology for Infants, Toddlers, and Young Children with Disabilities. PACER Center ACTion Information Sheets: PHP-c212

    ERIC Educational Resources Information Center

    PACER Center, 2014

    2014-01-01

    Research shows that assistive technology (AT) can help young children with disabilities to learn developmental skills. Its use may help infants and toddlers to improve in many areas such as: (1) social skills including sharing and taking turns; (2) communication skills; (3) attention span; (4) fine and gross motor skills; and (5) self confidence…

  12. Social pedagogy as a model to provide support for siblings of children with intellectual disabilities: A report of the views of the children and young people using a sibling support group.

    PubMed

    Carter, Sid; Cook, James; Sutton-Boulton, Gary; Ward, Vicki; Clarke, Steve

    2016-03-01

    The experiences of non-disabled children growing up with a sibling with an intellectual disability vary considerably, with reported impact ranging from increased mental health problems through evaluations of life enhancement. However, there is evidence that the net impact is neutral to positive, which was supported by the findings of this report of a service evaluation survey. The value of providing support to those young siblings is however clear. An established method of support is within a group of peers who also have a sibling with an intellectual disability, though no specific method for running this type of group has yet been fully explored. This article reports the views of 39 children taking part in such a group, analysing their perspective through a proposed model for the operation of sibling groups: social pedagogy. It was found that the closer the group's activities were to social pedagogy, the more supported the children and young people felt. © The Author(s) 2015.

  13. Psychopathology in Young People With Intellectual Disability

    PubMed Central

    Einfeld, Stewart L.; Piccinin, Andrea M.; Mackinnon, Andrew; Hofer, Scott M.; Taffe, John; Gray, Kylie M.; Bontempo, Daniel E.; Hoffman, Lesa R.; Parmenter, Trevor; Tonge, Bruce J.

    2008-01-01

    Context Comorbid severe mental health problems complicating intellectual disability are a common and costly public health problem. Although these problems are known to begin in early childhood, little is known of how they evolve over time or whether they continue into adulthood. Objective To study the course of psychopathology in a representative population of children and adolescents with intellectual disability. Design, Setting, and Participants The participants of the Australian Child to Adult Development Study, an epidemiological cohort of 578 children and adolescents recruited in 1991 from health, education, and family agencies that provided services to children with intellectual disability aged 5 to 19.5 years in 6 rural and urban census regions in Australia, were followed up for 14 years with 4 time waves of data collection. Data were obtained from 507 participants, with 84% of wave 1 (1991-1992) participants being followed up at wave 4 (2002-2003). Main Outcome Measures The Developmental Behaviour Checklist (DBC), a validated measure of psychopathology in young people with intellectual disability, completed by parents or other caregivers. Changes over time in the Total Behaviour Problem Score and 5 subscale scores of the DBC scores were modeled using growth curve analysis. Results High initial levels of behavioral and emotional disturbance decreased only slowly over time, remaining high into young adulthood, declining by 1.05 per year on the DBC Total Behaviour Problem Score. Overall severity of psychopathology was similar across mild to severe ranges of intellectual disability (with mean Total Behaviour Problem Scores of approximately 44). Psychopathology decreased more in boys than girls over time (boys starting with scores 2.61 points higher at baseline and ending with scores 2.57 points lower at wave 4), and more so in participants with mild intellectual disability compared with those with severe or profound intellectual disability who diverged from

  14. An Evaluation of Key Working for Families of Children and Young People with Special Educational Needs and Disabilities

    ERIC Educational Resources Information Center

    Mengoni, Silvana; Bardsley, Janet; Oates, John

    2015-01-01

    Key working is a way of supporting children and young people with special educational needs and disabilities (SEND) and their families, and is highly regarded by families and practitioners. However, there is a lack of up-to-date research exploring key working in the current context of policy reforms in England. This article reports an evaluation…

  15. "Challenging Disabling Attitudes, Building an Inclusive Society": Considering the Role of Education in Encouraging Non-Disabled Children to Develop Positive Attitudes towards Disabled People

    ERIC Educational Resources Information Center

    Beckett, Angharad E.

    2009-01-01

    In the United Kingdom, the introduction of the Disability Equality Duty 2006 has provided a new window of opportunity to promote the idea that education has a role to play in changing non-disabled children/young people's attitudes towards disabled people. This article explores the issues raised by the application of the Disability Equality Duty to…

  16. Training Teachers to Enhance the Play Skills of Young Children with Developmental Disabilities during Outdoor Time by Embedding Instructional Interactions

    ERIC Educational Resources Information Center

    Martin, Christian A.; Drasgow, Erik; Halle, James W.

    2015-01-01

    We created and evaluated a professional development package for training four teachers to embed instructional interactions during outdoor time to enhance the play skills of young children with significant developmental disabilities. The instructional package included an initial 20-min session that consisted of providing written and verbal…

  17. Support Networks of Single Puerto Rican Mothers of Children with Disabilities

    ERIC Educational Resources Information Center

    Correa, Vivian I.; Bonilla, Zobeida E.; Reyes-MacPherson, Maria E.

    2011-01-01

    The social support networks of 25 Puerto Rican single mothers of young children with disabilities were examined and compared with current models of family support for children with disabilities. This study was designed to assess the support systems of Latino single mothers in light of dominant models of family support. The Family Support Scale,…

  18. Learning Disabilities

    MedlinePlus

    ... language, do mathematical calculations, coordinate movements, or direct attention. Although learning disabilities occur in very young children, ... language, do mathematical calculations, coordinate movements, or direct attention. Although learning disabilities occur in very young children, ...

  19. Young Children's Participation and Environment Measure: Swedish Cultural Adaptation.

    PubMed

    Åström, Frida Marie; Khetani, Mary; Axelsson, Anna Karin

    2018-08-01

    To culturally adapt and evaluate the psychometric properties of the Young Children's Participation and Environment Measure (YC-PEM) for use by caregivers of Swedish children with and without disabilities, aged 2-5 years. Thirteen cognitive interviews and two focus groups with caregivers of children with and without disabilities were conducted to evaluate the cultural relevance of YC-PEM content for use in Sweden. Per participant feedback, a revised version of the Swedish YC-PEM was created and pilot tested with caregivers of children with disabilities (n = 11) and children with typical development (n = 22). User feedback informed content revisions to 7% of items. Internal consistency estimates of the Swedish YC-PEM pilot version were acceptable and ranged from .70 to .92 for all but two of the YC-PEM scales. Mean percentage agreement between raters ranged from 47% to 93% across YC-PEM scales for inter-rater, and 44% to 86% for test-retest. One of twelve YC-PEM scales revealed significant group differences between young children with and without disabilities. This study contributes preliminary evidence for the use of some scales within a culturally adapted YC-PEM in Sweden. Further validation with larger samples will allow for parametric testing to evaluate its psychometric properties.

  20. Citizenship for All in the Literate Community: An Ethnography of Young Children with Significant Disabilities in Inclusive Early Childhood Settings

    ERIC Educational Resources Information Center

    Kliewer, Christopher; Fitzgerald, Linda May; Meyer-Mork, Jodi; Hartman, Patresa; English-Sand, Pat; Raschke, Donna

    2004-01-01

    In this study, Christopher Kliewer, Linda Fitzgerald, Jodi Meyer-Mork, Patresa Hartman, Pat English-Sand, and Donna Raschke use ethnographic methods to explore literacy development in young children considered to have significant disabilities. The study settings included nine preschool and kindergarten classrooms across five programs, all of which…

  1. An Exploration of Comfort and Discomfort amongst Children and Young People with Intellectual Disabilities Who Depend on Postural Management Equipment

    ERIC Educational Resources Information Center

    Lyons, Elizabeth A.; Jones, Diana E.; Swallow, Veronica M.; Chandler, Colin

    2017-01-01

    Background: The natural response to the intrusive bodily sensation is positional change. This study explored how children and young people (CYP) with intellectual disabilities had their comfort needs met when using adaptive positioning equipment. Methods: Thirteen qualitative case studies were undertaken. A parent, a teacher/key worker and a…

  2. Vestibulo-ocular response and balance control in children and young adults with mild-to-moderate intellectual and developmental disability: a pilot study.

    PubMed

    Zur, Oz; Ronen, Ayelet; Melzer, Itshak; Carmeli, Eli

    2013-06-01

    The vestibulo-ocular response (VOR) may not be fully developed in children with an intellectual and developmental disability (IDD). This study aimed to identify the presence of VOR deficit in children and young adults with unspecified mild-to-moderate intellectual and developmental disability and its effect on balance control. Twenty-one children and young adults with IDD ranging in age from 8 to 22 years (mean 17.5 ± 3.9 years) were included in the study. The VOR was evaluated with the Head Impulse Test and the Static and Dynamic Visual Acuity Test (S&D-VAT). Postural stability was measured in an upright standing position by the Clinical Test for Sensory Interaction in Balance (CTSIB), single leg stance (SLS) during eyes open and eyes closed, and Romberg stance under eyes open and eyes closed conditions using a force platform. Reduced vestibulo-ocular responses were found in 13 of 21 (62%) participants who were able to complete testing. In the fifth condition of the CTSIB (standing on foam with eyes closed), those without VOR deficit were able to maintain balance longer than those with VOR deficit (29 s [median 30] vs. 12s [median 7.3], respectively; p=0.03). The study demonstrates potential effects of VOR deficit in children and young adults with IDD and some significant differences in balance control between those with and without a VOR deficit. VOR function in children and young adults with IDD should be routinely tested to enable early detection of deficits. Copyright © 2013 Elsevier Ltd. All rights reserved.

  3. Health, education, work, and independence of young adults with disabilities.

    PubMed

    Blomquist, Kathleen B

    2006-01-01

    Healthy People 2010, the U.S. government's goal for a healthier nation, calls for improved data collection to understand the health status of relatively small population groups, such as young adults with disabilities. This study looks at the transition outcomes of graduates of pediatric systems of care for children with disabilities and chronic conditions. Young adult graduates of a state program for children with special healthcare needs and a specialty children's hospital were sent a mail survey that focused on their healthcare access and use, insurance status, health behaviors and perceptions, education, work, and markers of independent living. The survey was based on the , National Longitudinal Survey of Youth, Behavioral Risk Factor Surveillance System, the U.S. Census and other surveys done by the state and hospital programs. Experts in healthcare and school-to-work transition of youth with special needs, health and labor economists, independent living center counselors, program administrators, nurses, social workers, and physicians offered ideas on various versions of the instrument that were piloted on youth before mailing to graduates. A follow-up mailing was sent to all those who did not respond to the first mailing. Results from the surveys of these young people with special healthcare needs are compared with data on typical young adults to determine the disparities. Mail surveys were sent to all patients aged 18 years and older at the time of their discharge in the preceding fiscal (state program) or calendar (children's hospital) year. The response rate was 51%. Ninety-one percent of the respondents were Whites and 61% were women, with a median age of 21.1 years; 69% reported independence in activities of daily living. RESULTS AND DISCUSSION/CLINICAL RESULTS: Eighty percent of graduates reported having a usual source of care, but 42% used the emergency room compared with 25% of typical young adults. Twenty-nine percent had no health insurance and only

  4. Examining an Executive Function Battery for Use with Preschool Children with Disabilities

    ERIC Educational Resources Information Center

    Kuhn, Laura J.; Willoughby, Michael T.; Blair, Clancy B.; McKinnon, Rachel

    2017-01-01

    Performance-based assessments of EF for use with young children who have or are at risk for disabilities are lacking. The current study investigates the use of a computerized battery for children with subclinical behaviors (N = 846) across a variety of developmental disabilities and evaluates practical information about feasibility of task…

  5. Programs for Young Children with Disabilities under IDEA: Excerpts from the Twenty-Second Annual Report to Congress on the Implementation of the Individuals with Disabilities Education Act by the U.S. Department of Education (2000).

    ERIC Educational Resources Information Center

    Trohanis, Pascal

    This document reproduces selected information from the U.S. Department of Education's "Twenty-Second Annual Report to Congress on the Implementation of the Individuals with Disabilities Education Act" (2000). These selections consist of text and data tables related to programs for young children with disabilities and their families under…

  6. "We Could Kid on That This Is Going to Benefit the Kids but No, This Is about Funding": Cutbacks in Services to Disabled Children and Young People in Scotland

    ERIC Educational Resources Information Center

    Stalker, Kirsten; MacDonald, Charlotte; King, Caroline; McFaul, Francis; Young, Colin; Hawthorn, Moyra

    2015-01-01

    This paper presents research, commissioned by Scotland's Commissioner for Children and Young People, examining changes in the availability and accessibility of publicly funded services to disabled children, young people and their families between 2011 and 2013. Methods included a survey of voluntary-sector providers and focus groups with family…

  7. Representing Young Children with Disabilities in Classroom Environments.

    ERIC Educational Resources Information Center

    Favazza, Paddy C.; LaRoe, Joyce; Phillipsen, Leslie; Kumar, Poonam

    2000-01-01

    The "Inventory of Disability Representation" was administered to 92 teachers representing kindergarten, community child care, or preschool settings. Low scores across settings indicated that classrooms typically do not have materials that represent or depict children with diverse abilities. Reasons cited by teachers are noted as are benefits…

  8. Fact Sheet: Vulnerable Young Children

    ERIC Educational Resources Information Center

    Shaw, Evelyn, Comp.; Goode, Sue, Comp.

    2008-01-01

    This fact sheet provides data on infants, toddlers and young children who are experiencing high stress as a result of a number of risk factors specifically identified in the Individuals with Disabilities Education Improvement Act of 2004 (IDEA 2004), including substantiated abuse or neglect, foster care placement, homelessness, exposure to family…

  9. Increasing Social Reciprocity in Young Children with Autism

    ERIC Educational Resources Information Center

    Leach, Debra; LaRocque, Michelle

    2011-01-01

    Research and education law support the use of routines-based interventions for young children with disabilities in the children's natural environments. However, systematic training and practice can provide individuals with the strategies and skills that can enhance these interventions. This article provides guidance for implementing intervention…

  10. Verbal Interaction Structures and Repetition's Functions: A Comparison of Exchanges between Adults and Severely Disabled Adolescents or Young Children

    ERIC Educational Resources Information Center

    Bocéréan, Christine; Musiol, Michel

    2017-01-01

    This article describes a study in which conversation analysis was used to examine verbal interactions between caregivers and severely disabled adolescents or young children. It focused on the phenomenon of repetition, which seems to be the basis of the mutual-understanding process. We compared dialogue structures containing repetitions in the two…

  11. Non-Disabled Children's Ideas about Disability and Disabled People

    ERIC Educational Resources Information Center

    Beckett, Angharad E.

    2014-01-01

    This article discusses findings from an Economic and Social Research Council-funded study exploring non-disabled children's ideas about disability. This represents the first in-depth sociological investigation of children's ideas about disabled people as members of wider society. Data are presented from focus group discussions with children aged…

  12. International Human Rights to Early Intervention for Infants and Young Children with Disabilities: Tools for Global Advocacy

    PubMed Central

    Brown, Sharan E.; Guralnick, Michael J.

    2015-01-01

    With almost universal ratification of the Convention on the Rights of the Child and the growing number of States Parties that have signed or ratified the Convention on the Rights of Persons with Disabilities, the majority of countries in the world have now committed to implementing the human rights articulated in these treaties. In this article we first provide an overview of both Conventions, highlight the articles in the treaties that are relevant to early intervention for infants and young children with disabilities, and describe the specific duties required of States Parties to ensure compliance including international cooperation. Second, a series of early intervention action principles are put forward that can help States Parties translate the underlying values of the Conventions into practice. PMID:26213446

  13. Children with Disabilities Who Use Assistive Technology: Ethical Considerations.

    ERIC Educational Resources Information Center

    Holder-Brown, Loreta; Parette, Howard P. Jr.

    1992-01-01

    Discusses some of the ethical concerns that early childhood professionals should consider when identifying or adapting assistive technologies for young children with such disabilities as cerebral palsy, spina bifida, visual impairments, and hearing impairments. (BB)

  14. E-inclusion: Digital equality - young people with disabilities.

    PubMed

    Hemmingsson, H; Bolic-Baric, V; Lidström, H

    2015-01-01

    The United Nations' position is that digital access is a matter involving equality between groups of people, the securing of democratic rights, and equal opportunities for all citizens. This study investigates digital equality in school and leisure between young people with and without disabilities. A cross-sectional design with group comparisons was applied. Participants were young people (10-18 years of age) with disabilities (n=389) and a reference group in about the same ages. Data were collected by a survey focusing on access to and engagement in ICT activities in school and during leisure time. The results demonstrated young people with disabilities had restricted participation in computer use in educational activities, in comparison to young people in general. During leisure time young people with disabilities had a leading position compared to the reference group with respect to internet use in a variety of activities. Beneficial environmental conditions at home (and the reverse in schools) are discussed as parts of the explanation for the differing engagement levels at home and in school, and among young people with disabilities and young people in general. Schools need to prioritise use of ICT by young people with disabilities.

  15. Mothers with Physical Disabilities Caring for Young Children.

    PubMed

    Jacob, Jean; Kirshbaum, Megan; Preston, Paul

    2017-01-01

    Seventy-one U.S. mothers with a physical disability who had a child aged 0 to 3 years responded to a survey about the system of care used for their child. Results indicated that mothers participated in all different types of care (physical, comforting, playing, limit setting, and taking the child outside the home). Partners and participants' mothers provided the most assistance with care. Mothers were generally satisfied with assistance received from others. This article explores how mothers remain central to their children with others assisting with the child's care and the impact of such assistance on mothers' relationships with partners and children.

  16. Enabling participation for disabled young people: study protocol.

    PubMed

    Carroll, Penelope; Witten, Karen; Calder-Dawe, Octavia; Smith, Melody; Kearns, Robin; Asiasiga, Lanuola; Lin, Judy; Kayes, Nicola; Mavoa, Suzanne

    2018-06-08

    Participation in community life is vital for health and wellbeing, promoting a sense of belonging, networks of social support and opportunities for physical activity. Disabled young people have lower levels of mobility and participation in recreational activities (physical, social and cultural), education and employment, than their peers without disabilities. This has implications for their health and wellbeing and life course opportunities. Previous research on the participation levels of disabled young people has primarily relied on parent/caregiver reports and been oriented to home and school environments. This study investigates how physical and social environmental factors cohere to support or restrict the everyday mobility and participation of disabled young people. The study is located in Auckland, Aotearoa/New Zealand (NZ). Participants comprise 35 young people aged 12-25 years with mobility, vision or hearing impairments. A mixed-methods research design combines objective (global positioning systems, accelerometers, geographical information systems) and self-report measures (travel diaries, and questionnaires) to assess young people's mobility and levels of participation in leisure/educational and employment activities with in-depth interviews exploring their everyday experiences of inclusion/exclusion, and factors enabling or constraining community participation. Parents/caregivers and disability sector key informant viewpoints on the community participation of disabled young people have also been gathered through in-depth interviews. Follow-up workshops with young people and parents/caregivers will identify pathways to increase participation and challenge current disabling practices. This study looks beyond barriers in the physical environment to the interplay of personal, social and physical factors that enable or constrain the community participation of disabled young people. In keeping with the study's overarching goal of increasing opportunities for

  17. The Social Networks of Children With and Without Disabilities in Early Childhood Special Education Classrooms.

    PubMed

    Chen, Jing; Lin, Tzu-Jung; Justice, Laura; Sawyer, Brook

    2017-09-01

    Interaction with peers is an important contributor to young children's social and cognitive development. Yet, little is known about the nature of social networks within preschool inclusive classrooms. The current study applied a social network analysis to characterize children's peer interactions in inclusive classrooms and their relations with children's disability status. The participants were 485 preschoolers from 64 early childhood special education (ECSE) inclusive classrooms. Results from teachers' report of children's social networks showed that children with disabilities formed smaller play networks compared to their typically developing peers in the classroom, but no evidence indicated that children with disabilities engaged in more conflict networks than their counterparts. Children's play and conflict networks were segregated by children's disability status.

  18. Every Child Matters Outcomes: What Do They Mean for Disabled Children and Young People?

    ERIC Educational Resources Information Center

    Sloper, Patricia; Beresford, Bryony; Rabiee, Parvaneh

    2009-01-01

    To date, little attention has been paid to the appropriateness of the Every Child Matters (ECM) outcomes framework to disabled children. This article reports findings from a research project which sought the views of disabled children and their parents about their desired outcomes. Twenty-nine children and 90 parents were interviewed. The findings…

  19. Risk factors for self-injury, aggression, and stereotyped behavior among young children at risk for intellectual and developmental disabilities.

    PubMed

    Schroeder, Stephen R; Marquis, Janet G; Reese, R Matthew; Richman, David M; Mayo-Ortega, Liliana; Oyama-Ganiko, Rosa; LeBlanc, Judith; Brady, Nancy; Butler, Merlin G; Johnson, Tiffany; Lawrence, Linda

    2014-07-01

    Before the 1990s, research on the early identification and prevention of severe behavior disorders (SBDs), such as aggression, self-injury, and stereotyped behavior, among young children with intellectual and developmental disabilities (IDD), was mostly done with children 3 years or older. More recent work suggests that signs of SBDs may occur as early as 6 months in some infants. The present study combined a cross-sectional and longitudinal approach to examine SBDs in 180 young children aged 4-48 months recruited through mass screening, then receiving an interdisciplinary evaluation and six-month follow-ups for one year. Twelve potential risk factors related to SBDs were examined. Eight of these risk factors, including age, gender, diagnosis, intellectual and communication levels, visual impairment, parent education, family income, were differentially related to scores for Aggression, SIB, and Stereotyped Behavior subscales on the Behavior Problems Inventory (BPI-01) at initial interdisciplinary evaluation. BPI-01 scores decreased over the year for 57% of the children and increased for 43%. The amount of decrease on each BPI-01 subscale varied with age, gender, and diagnosis.

  20. Risk Factors for Self-Injury, Aggression, and Stereotyped Behavior Among Young Children At Risk for Intellectual and Developmental Disabilities

    PubMed Central

    Schroeder, Stephen R.; Marquis, Janet G.; Reese, R. Matthew; Richman, David M.; Mayo-Ortega, Liliana; Oyama-Ganiko, Rosa; LeBlanc, Judith; Brady, Nancy; Butler, Merlin G.; Johnson, Tiffany; Lawrence, Linda

    2016-01-01

    Before the 1990s, research on the early identification and prevention of severe behavior disorders (SBDs), such as aggression, self-injury, and stereotyped behavior, among young children with intellectual and developmental disabilities (IDD), was mostly done with children 3 years or older. More recent work suggests that signs of SBDs may occur as early as 6 months in some infants. The present study combined a cross-sectional and longitudinal approach to examine SBDs in 180 young children aged 4–48 months recruited through mass screening, then receiving an interdisciplinary evaluation and six-month follow-ups for one year. Twelve potential risk factors related to SBDs were examined. Eight of these risk factors, including age, gender, diagnosis, intellectual and communication levels, visual impairment, parent education, family income, were differentially related to scores for Aggression, SIB, and Stereotyped Behavior subscales on the Behavior Problems Inventory (BPI-01) at initial interdisciplinary evaluation. BPI-01 scores decreased over the year for 57% of the children and increased for 43%. The amount of decrease on each BPI-01 subscale varied with age, gender, and diagnosis. PMID:25007299

  1. Systematic Review of Studies Promoting the Use of Assistive Technology Devices by Young Children with Disabilities. Practical Evaluation Reports, Volume 5, Number 1

    ERIC Educational Resources Information Center

    Dunst, Carl J.; Trivette, Carol M.; Hamby, Deborah W.; Simkus, Andrew

    2013-01-01

    Findings from a meta-analysis of studies investigating the use of five different assistive technology devices (switch interfaces, powered mobility, computers, augmentative communication, weighted/pressure vests) with young children with disabilities are reported. One hundred and nine studies including 1,342 infants, toddlers, and preschoolers were…

  2. Young Children's Explorations: Young Children's Research?

    ERIC Educational Resources Information Center

    Murray, Jane

    2012-01-01

    "Exploration" is recognised as research behaviour; anecdotally, as an early years' teacher, I witnessed many young children exploring. However, young children's self-initiated explorations are rarely regarded as research by adult researchers and policy-makers. The exclusion of young children's autonomous explorations from recognition as…

  3. Exploring Transitions with Disabled Young People: Our Experiences, Our Rights and Our Views

    ERIC Educational Resources Information Center

    Rome, Aidan; Hardy, Jessica; Richardson, Jamie; Shenton, Felicity

    2015-01-01

    At the beginning of the 2000s there was little evidence of outcomes from the participation of disabled children and young people in decision-making within public services. In the 15 years that have followed, advances have been made in participatory research and in outcome-led research. This paper, written with young people, will present evidence…

  4. Using Visual Activity Schedules for Young Children with Challenging Behavior

    ERIC Educational Resources Information Center

    Zimmerman, Kathleen N.; Ledford, Jennifer R.; Barton, Erin E.

    2017-01-01

    Young children with challenging behavior may require individualized interventions to facilitate improved outcomes. Visual activity schedules (VAS) have been well documented for improving engagement, transition, and recreation behaviors with children with autism spectrum disorder (ASD) and intellectual disabilities (ID). However, children…

  5. Emplotting children's lives: developmental delay vs. disability.

    PubMed

    Landsman, Gail

    2003-05-01

    While it is increasingly possible to envision "perfect" babies, it is not always the case that reproduction actually proceeds according to individual will; for example, there has been no recent reduction in rates of childhood disability. Nevertheless, in most studies of new reproductive technologies, the birth of those children whom few would actively choose-"defective" or disabled infants-is presented only in hypothetical terms. This paper argues for expanding the domain of reproduction to include research on the parenting of children with disabilities. Based on a qualitative research project carried out at a hospital-based newborn follow-up program that serves as an evaluation site determining eligibility for early intervention services for infants and young children with disabilities, this paper focuses on a particular part of women's experience of acquiring new knowledge about personhood and disability, that is, on the period of time when a woman has recently had confirmed that reproduction has, in her case, gone awry. Disability in many cultures, including the United States, diminishes personhood. I suggest that American mothers' narratives, by utilizing the concept of developmental delay, can assert personhood, or rather, the potential for its future attainment; in doing so, they justify ongoing nurturance of a disabled child in spite of negative attitudes about disability. A particular case of one mother's emplotment of her child's life within a story of developmental delay, in competition with the physician's story of disability, is analyzed. The paper concludes with reflections on how stories of developmental delay told by mothers just encountering a diagnosis of disability may differ from the stories told by those who have experienced mothering a disabled child over time, and on the implications of these differences for the cultural construction of personhood in the United States.

  6. Examining Young Children's Perceptions of Handicaps.

    ERIC Educational Resources Information Center

    Ludlow, Barbara L.

    The purposes of this study were to assess the attitudes of preschoolers toward two types of handicapping conditions (mental retardation and physical disabilities), and to explore the underlying social reasoning used by young children to formulate/support their perceptions. Sixteen 3- and 4-year-old boys and girls were presented with two…

  7. Play-Based Interview Methods for Exploring Young Children's Perspectives on Inclusion

    ERIC Educational Resources Information Center

    Koller, Donna; San Juan, Valerie

    2015-01-01

    Inclusive education provides learning opportunities for children with disabilities in regular settings with other children. Despite the prevalence of inclusive education, few qualitative studies have adequately explored young children's perspectives on inclusion. This paper reviews the findings of a preliminary qualitative study where play-based…

  8. Access to Educational and Community Activities for Young Children with Disabilities: Selected Findings from the Pre-Elementary Education Longitudinal Study (PEELS). NCSER 2011-3000

    ERIC Educational Resources Information Center

    Carlson, Elaine; Bitterman, Amy; Daley, Tamara

    2010-01-01

    This report uses data from the Pre-Elementary Education Longitudinal Study (PEELS) to describe access for young children with disabilities in two specific domains: community activities, including extracurricular activities and family recreation, and kindergarten classroom experiences. While PEELS is a broad, descriptive study, the analyses…

  9. Prevalence and Patterns of Learning Disabilities in School Children.

    PubMed

    Padhy, Susanta Kumar; Goel, Sonu; Das, Shyam Sinder; Sarkar, Siddharth; Sharma, Vijaylaxmi; Panigrahi, Mahima

    2016-04-01

    To assess the prevalence and patterns of learning disabilities (LD) in school going children in a northern city of India. The present cross-sectional study comprised of three-staged screening procedure for assessing learning disabilities of 3rd and 4th grade students studying in government schools. The first stage comprised of the teacher identifying at-risk student. In the second stage, teachers assessed at-risk students using Specific Learning Disability-Screening Questionnaire (SLD-SQ). The third stage comprised of assessment of the screen positive students using Brigance Diagnostic Inventory (BDI) part of NIMHANS Index of Specific Learning Disabilities for identifying the cases of LD. A total of 1211 (33.6%) children out of the total screened (n = 3600) were identified as at-risk by the teachers at the first stage. Of them, 360 were found to screen positive on the second stage using SLD-SQ. The most common deficits were missing out words or sentences while reading, misplacing letters or words while reading or writing, and making frequent mistake in spelling while writing or reading. Of these, 108 children were confirmed to have learning disability on the third stage using BDI, which represented 3.08% of the total population. Learning disability is an important concern in young school aged children. Early identification of such students can help in early institution of intervention and suitable modifications in teaching techniques.

  10. Using Ipad Applications to Increase Literacy Skills for Children Prek to Grade 3 with Disabilities

    ERIC Educational Resources Information Center

    Stone-MacDonald, Angi

    2015-01-01

    This article, intended to inform educators on how to use iPad apps for literacy development for young children with developmental disabilities, briefly reviews the literature on iPad apps for literacy development, examines key apps for literacy development for children with developmental disabilities, and discusses how to incorporate iPad apps…

  11. Violence against primary school children with disabilities in Uganda: a cross-sectional study.

    PubMed

    Devries, Karen M; Kyegombe, Nambusi; Zuurmond, Maria; Parkes, Jenny; Child, Jennifer C; Walakira, Eddy J; Naker, Dipak

    2014-09-29

    150 million children live with disabilities globally, and a recent systematic review found 3 to 4 times the levels of violence versus non-disabled children in high income countries. However, almost nothing is known about violence against disabled children in lower income countries. We aim to explore the prevalence, patterns and risk factors for physical, sexual and emotional violence among disabled children attending primary school in Luwero District, Uganda. We performed a secondary analysis of data from the baseline survey of the Good Schools Study. 3706 children and young adolescents aged 11-14 were randomly sampled from 42 primary schools. Descriptive statistics were computed and logistic regression models fitted. 8.8% of boys and 7.6% of girls reported a disability. Levels of violence against both disabled and non-disabled children were extremely high. Disabled girls report slightly more physical (99.1% vs 94.6%, p = 0.010) and considerably more sexual violence (23.6% vs 12.3%, p = 0.002) than non-disabled girls; for disabled and non-disabled boys, levels are not statistically different. The school environment is one of the main venues at which violence is occurring, but patterns differ by sex. Risk factors for violence are similar between disabled and non-disabled students. In Uganda, disabled girls are at particular risk of violence, notably sexual violence. Schools may be a promising venue for intervention delivery. Further research on the epidemiology and prevention of violence against disabled and non-disabled children in low income countries is urgently needed.

  12. Dialogic Reading: Language and Preliteracy Outcomes for Young Children With Disabilities

    ERIC Educational Resources Information Center

    Towson, Jacqueline A.; Gallagher, Peggy A.; Bingham, Gary E.

    2016-01-01

    Dialogic reading is an evidence-based practice for preschool children who are typically developing or at-risk; yet there is limited research to evaluate if it has similar positive effects on the language and preliteracy skills of children with disabilities. This quasi-experimental study examined the effects of dialogic reading, with the…

  13. The Social Experience of Early Childhood for Children with Learning Disabilities: Inclusion, Competence and Agency

    ERIC Educational Resources Information Center

    Nind, Melanie; Flewitt, Rosie; Payler, Jane

    2010-01-01

    This paper tells of the social experiences of three four-year-old children with learning disabilities as they negotiate their daily lives in their homes and early education settings in England. We apply a social model of childhood disability to the relatively unexplored territory of young children and use vignettes drawn from video observation to…

  14. Effects of Structured Teaching on the Behavior of Young Children with Disabilities

    ERIC Educational Resources Information Center

    Bennett, Katherine; Reichow, Brian; Wolery, Mark

    2011-01-01

    The effects of structured work systems based on the principles of structured teaching were evaluated with 3 preschool-aged children with developmental disabilities (2 children had autism). A withdrawal design was used with 2 participants, and a multiple baseline across stimuli was used with the other. During baseline, children were given 3 tasks…

  15. Strategies for improving disability awareness and social inclusion of children and young people with cerebral palsy.

    PubMed

    Lindsay, S; McPherson, A C

    2012-11-01

    Children and youth with disabilities are at a higher risk of being socially excluded or bullied while at school compared with their typically developing peers. This study explored disabled children's suggestions for improving social inclusion. Fifteen children with cerebral palsy were interviewed or took part in a group discussion about social inclusion and bullying. All interviews and focus groups were audio-recorded and transcribed verbatim. The children and youth described several strategies to help improve social inclusion at school including: (1) disclosure of condition and creating awareness of disability; (2) awareness of bullying; (3) developing a peer support network and building self-confidence; and (4) suggestions on what teachers can do. It is recommended that children's suggestions be considered within the classroom context to enhance the social inclusion and participation of children with disabilities. © 2011 Blackwell Publishing Ltd.

  16. A Focus on Resiliency: Young Children with Disabilities

    ERIC Educational Resources Information Center

    Jones, Vita L.; Higgins, Kyle; Brandon, Regina R.; Cote, Debra L.; Dobbins, Nicole

    2013-01-01

    This article provides a compilation of 12 characteristics of resilient young children (Table 1) drawn from research, followed by nine global classroom intervention categories (Table 2) found to be effective in supporting students in developing resilience. In this article, the analysis of resilience research is presented to provide educators with…

  17. Entangled ethnography: imagining a future for young adults with learning disabilities.

    PubMed

    Ginsburg, Faye; Rapp, Rayna

    2013-12-01

    Our article draws on one aspect of our multi-sited long-term ethnographic research in New York City on cultural innovation and Learning Disabilities (LD). We focus on our efforts to help create two innovative transition programs that also became sites for our study when we discovered that young adults with disabilities were too often "transitioning to nowhere" as they left high school. Because of our stakes in this process as parents of children with learning disabilities as well as anthropologists, we have come to think of our method as entangled ethnography, bringing the insights of both insider and outsider perspectives into productive dialog, tailoring a longstanding approach in critical anthropology to research demedicalizing the experience of disability. Copyright © 2013 Elsevier Ltd. All rights reserved.

  18. Assessing Young Children in Inclusive Settings: The Blended Practices Approach

    ERIC Educational Resources Information Center

    Grisham-Brown, Jennifer; Pretti-Frontczak, Kristie

    2011-01-01

    To ensure the best possible outcomes for young children with and without disabilities, early childhood educators must enter the classroom ready to conduct all types of early childhood assessment--including determining if children need additional services, planning and monitoring instruction, and determining program effectiveness. They'll get the…

  19. Defining Success in Young Adults with Emotional Disabilities

    ERIC Educational Resources Information Center

    Carrescia, Susanne G.

    2012-01-01

    The purpose of this study is to develop a definition of success by constructing a portrait of successful young adults with emotional disabilities. Nine young adults with emotional disabilities were interviewed individually after graduating from high school. The research questions that guided the study centered on the young adults'…

  20. Communication Intervention for Young Children with Severe Neurodevelopmental Disabilities Via Telehealth.

    PubMed

    Simacek, Jessica; Dimian, Adele F; McComas, Jennifer J

    2017-03-01

    Young children with neurodevelopmental disorders such as autism spectrum disorders (ASD) and Rett syndrome often experience severe communication impairments. This study examined the efficacy of parent-implemented communication assessment and intervention with remote coaching via telehealth on the acquisition of early communication skills of three young children with ASD (2) and Rett syndrome (1). Efficacy of the intervention was evaluated using single-case experimental designs. First, functional assessment was used to identify idiosyncratic/potentially communicative responses and contexts for each child. Next, parents implemented functional communication training (FCT). All of the children acquired the targeted communication responses. The findings support the efficacy of telehealth as a service delivery model to coach parents on intervention strategies for their children's early communication skills.

  1. Factors Associated with Self-Worth in Young People with Physical Disabilities

    ERIC Educational Resources Information Center

    Antle, Beverley J.

    2004-01-01

    Having a positive sense of self is associated with success for children and adults, with and without disabilities. This article reports on a cross-sectional study examining the correlates of global self-worth for 85 young people (ages eight to 23) with spina bifida (a condition present at birth) or spinal cord injury (an acquired condition).…

  2. Examining the Quality of IEPs for Young Children with Autism

    ERIC Educational Resources Information Center

    Ruble, Lisa A.; McGrew, John; Dalrymple, Nancy; Jung, Lee Ann

    2010-01-01

    The purpose of this study was to develop an Individual Education Program (IEP) evaluation tool based on Individuals with Disabilities Education Act (IDEA) requirements and National Research Council recommendations for children with autism; determine the tool's reliability; test the tool on a pilot sample of IEPs of young children; and examine…

  3. The meaning of leisure for children and young people with physical disabilities: a systematic evidence synthesis.

    PubMed

    Powrie, Benita; Kolehmainen, Niina; Turpin, Merrill; Ziviani, Jenny; Copley, Jodie

    2015-11-01

    Participation in leisure has known health benefits. Children and young people (CYP) with physical disabilities demonstrate reduced participation in leisure. To facilitate their meaningful participation, one must understand what leisure means to CYP. The aim of this study was to systematically synthesize evidence from qualitative studies on the meaning of leisure for CYP with physical disabilities. CINAHL, MEDLINE, AMED, EMBASE, PsycINFO, and ERIC were searched periodically from January 2012 until May 2013. Qualitative studies reporting the views of CYP (0-18y) with physical disabilities on leisure participation were included. The analysis involved thematic syntheses, double coding, and established quality appraisal procedures. Twelve studies met inclusion criteria, addressing the leisure experiences of 146 CYP with disabilities. Four themes core to the meaning of leisure for these CYP were (1) 'fun': the enjoyment and pleasure experienced from leisure; (2) 'freedom' of choice and from constraints; (3) 'fulfilment': discovering, developing, and displaying potential; and (4) 'friendship': social connectedness and belonging. The identified themes resonate with the psychological needs outlined by self-determination theory: fun relates to satisfaction and intrinsic motivation; freedom relates to 'autonomy'; fulfilment relates to a belief in 'competence'; and friendship resonates with 'relatedness'. Social context had an impact on all of these themes, indicating that this is an important target for leisure participation interventions. © 2015 Mac Keith Press.

  4. Expectations of and reactions to disability and normality experienced by parents of children with intellectual disability in Sweden.

    PubMed

    Broberg, M

    2011-05-01

    Much research has been devoted to the emotional burdens of having a child with intellectual disability (ID), but very little of this has focused on the burdens imposed by negative public attitudes towards disability. Adjustment has primarily been thought of as adjustment to the actual disability rather than adjustment to attitudes or prejudices towards disability. The aim of the present study was to study expectations of and reactions to disability and normality experienced by parents of children with ID in their everyday life in Sweden. Do the parents relate to the tragedy discourse and, if so, how? Do parents relate to other expectations and disability discourses and, if so, how? What subject positions do the discourses offer? The analysis was based on 17 semi-structured interviews with nine fathers and eight mothers of nine children with different IDs. The children were newly diagnosed and were from 6 months to 5 years of age. Four discourses (tragedy and the lived experience, tragedy and the outsider perspective, the clinical gaze and the super-parent ideal) and subject positions relating to these discourses are discussed. The results of this study show that parents of young children with disabilities relate to a wide range of social processes and practices, which could be thought to affect their emotional well-being and parental identity negatively. © 2011 Blackwell Publishing Ltd.

  5. Effectiveness of Emotion Recognition Training for Young Children with Developmental Delays

    ERIC Educational Resources Information Center

    Downs, Andrew; Strand, Paul

    2008-01-01

    Emotion recognition is a basic skill that is thought to facilitate development of social and emotional competence. There is little research available examining whether therapeutic or instructional interventions can improve the emotion recognition skill of young children with various developmental disabilities. Sixteen preschool children with…

  6. Hearing Voices: Participatory Research with Preschool Children with and without Disabilities

    ERIC Educational Resources Information Center

    Gray, Colette; Winter, Eileen

    2011-01-01

    The present study seeks to extend current thinking on participatory research by actively engaging 36 young children with and without a known disability in all aspects of a research project. Matched according to age and gender, six dyads of children attending four early years settings in Northern Ireland chose the research question, selected the…

  7. Parents' Judgments of the Acceptability and Importance of Socially Interactive Robots for Intervening with Young Children with Disabilities. Social Robots Research Reports, Number 1

    ERIC Educational Resources Information Center

    Dunst, Carl J.; Trivette, Carol M.; Prior, Jeremy; Hamby, Deborah W.; Embler, Davon

    2013-01-01

    A number of different types of socially interactive robots are being used as part of interventions with young children with disabilities to promote their joint attention and language skills. Parents' judgments of two dimensions (acceptance and importance) of the social validity of four different social robots were the focus of the study described…

  8. Systematic review of interventions to promote social-emotional development in young children with or at risk for disability.

    PubMed

    Case-Smith, Jane

    2013-01-01

    This systematic review synthesized the research on interventions used by occupational therapy practitioners to promote social-emotional development in young children (birth-5 yr) with or at risk for disabilities. After a comprehensive search of the research literature, 23 studies were reviewed and then synthesized into five themes: (1) touch-based interventions to enhance calming and parent-infant bonding, (2) relationship-based interventions to promote positive caregiver-child interactions, (3) joint attention interventions, (4) naturalistic preschool interventions to promote peer-to-peer engagement, and (5) instruction-based interventions to teach children appropriate social behaviors. The interventions for infants primarily involved coaching parents in specific strategies to promote positive interactions; interventions for preschool-age children typically involved encouraging peer support, instructing children, and applying naturalistic behavioral techniques to develop higher-level social competence. The studies demonstrated low to moderate positive effects for interventions used by occupational therapy practitioners to improve social-emotional development across ages, diagnoses, and settings. Copyright © 2013 by the American Occupational Therapy Association, Inc.

  9. Family-Peer Linkages for Children with Intellectual Disability and Children with Learning Disabilities.

    PubMed

    Floyd, Frank J; Olsen, Darren L

    2017-09-01

    Family interactions are potential contexts for children with intellectual and learning disabilities to develop skillful social behaviors needed to relate effectively with peers. This study examined problem solving interactions within families of elementary school-age children (7-11 years) with intellectual disability (n = 37), specific learning disabilities (n =48), and without disabilities (n = 22). After accounting for group differences in children's behaviors and peer acceptance, across all groups, mothers' behaviors that encouraged egalitarian problem solving predicted more engaged and skillful problem solving by the children. However, mothers' controlling, directive behaviors predicted fewer of these behaviors by the children. Fathers' behaviors had mixed associations with the children's actions, possibly because they were reactive to children's unengaged and negative behaviors. For the children, greater involvement, more facilitative behaviors, and less negativity with their families were associated with greater acceptance from their peers, supporting family-peer linkages for children at risk for peer rejection.

  10. Young adults on disability benefits in 7 countries.

    PubMed

    Kaltenbrunner Bernitz, Brita; Grees, Nadja; Jakobsson Randers, Marie; Gerner, Ulla; Bergendorff, Sisko

    2013-11-01

    This article, based on a study by the Swedish Social Insurance Inspectorate, describes the development of young adults receiving disability benefits due to reduced working capability, and the disability benefit systems in seven European countries; Denmark, Finland, Iceland, Norway, the Netherlands, Sweden, and the UK. This comparative study mainly uses Sweden as a benchmark. Apart from a documentary and legal data collection and analysis, 26 semi-structured interviews were conducted with representatives of the responsible ministries and authorities in the studied countries. In addition, national and European data was collected. There is an increasing trend of young adults, aged 19-29, on disability benefits in all studied countries. The most common diagnosis group among young adults on disability benefits is mental and behavioural disorders, ranging from 58% in the UK to 80% in Denmark. The comparison of the different disability benefit systems shows that there are relatively large national differences in terms of rules and regulations, the handling of disability benefit cases, and offered rehabilitation activities and other measures to support young adults on disability benefits to strengthen their working capability, and hence enable them to approach the labour market in the future. However, it is clear that these countries face similar challenges, and therefore there could be a lot to learn from European exchange of experiences and expertise in this area. This article identifies a number of measures of special interest to study and discusses further with regard to the further development of the Swedish system for disability benefits for young adults.

  11. Adaptive Behavior and Problem Behavior in Young Children with Williams Syndrome

    ERIC Educational Resources Information Center

    Hahn, Laura J.; Fidler, Deborah J.; Hepburn, Susan L.

    2014-01-01

    The present study compares the adaptive behavior profile of 18 young children with Williams syndrome (WS) and a developmentally matched group of 19 children with developmental disabilities and examines the relationship between adaptive behavior and problem behaviors in WS. Parents completed the Vineland Adaptive Behavioral Scales--Interview…

  12. Parents' Appraisals of the Animacy and Likability of Socially Interactive Robots for Intervening with Young Children with Disabilities. Social Robots Research Reports, Number 2

    ERIC Educational Resources Information Center

    Dunst, Carl J.; Trivette, Carol M.; Prior, Jeremy; Hamby, Deborah W.; Embler, Davon

    2013-01-01

    Findings from a survey of parents' ratings of seven different human-like qualities of four socially interactive robots are reported. The four robots were Popchilla, Keepon, Kaspar, and CosmoBot. The participants were 96 parents and other primary caregivers of young children with disabilities 1 to 12 years of age. Results showed that Popchilla, a…

  13. Phonological Awareness of Young Children with Visual Impairments

    ERIC Educational Resources Information Center

    Hatton, Deborah D.; Erickson, Karen A.; Lee, Donna Brostek

    2010-01-01

    The findings from a sample of 22 young children with visual impairments and no additional disabilities suggest that potential readers of braille or dual media had better syllable-segmentation, sound-isolation, and sound-segmentation skills than potential readers of print. Potential readers of print seemed to have slightly better…

  14. The Picture Exchange Communication System: Communicative Outcomes for Young Children with Disabilities.

    ERIC Educational Resources Information Center

    Schwartz, Ilene S.; Garfinkle, Ann N.; Bauer, Janet

    1998-01-01

    Presents two studies documenting the use of the Picture Exchange Communication System (PECS) for 31 preschool children with severe disabilities. Initial findings indicated the children could learn to use PECS quickly and efficiently. The second study, which included 18 participants, found that PECS use generalized to untrained settings. (Author/CR)

  15. Meeting Needs of Young Children at Risk for or Having a Disability

    ERIC Educational Resources Information Center

    Peterson, Carla A.; Mayer, Lynn Milgram; Summers, Jean Ann; Luze, Gayle J.

    2010-01-01

    Poverty-related factors place children at higher risk for disabilities and also serve as barriers to families accessing services for their children and themselves. Early childhood practitioners can play a critical role in supporting families by providing services to overcome these obstacles and by working in partnership with specialized early…

  16. Teaching Generalized Pretend Play and Related Behaviors to Young Children with Disabilities

    ERIC Educational Resources Information Center

    Barton, Erin E.

    2015-01-01

    Children with disabilities play less often and demonstrate fewer varied pretend play behaviors than children with typical development. A multiple-probe design was used to examine the relation between teachers' use of the system of least prompts and contingent imitation and the acquisition, maintenance, and generalization of pretend play and…

  17. Examining the Down Syndrome Advantage: Mothers and Fathers of Young Children with Disabilities

    ERIC Educational Resources Information Center

    Stoneman, Z.

    2007-01-01

    Background: Across studies and across outcomes, parents of children with Down syndrome have been found to experience greater well-being than parents of children with other intellectual disabilities (ID). This study examined the extent to which differences in family income and child temperamental difficulty can explain why parents of children with…

  18. Emotion knowledge, emotion regulation, and psychosocial adjustment in children with nonverbal learning disabilities.

    PubMed

    Metsala, Jamie L; Galway, Tanya M; Ishaik, Galit; Barton, Veronica E

    2017-07-01

    Nonverbal learning disability is a childhood disorder with basic neuropsychological deficits in visuospatial processing and psychomotor coordination, and secondary impairments in academic and social-emotional functioning. This study examines emotion recognition, understanding, and regulation in a clinic-referred group of young children with nonverbal learning disabilities (NLD). These processes have been shown to be related to social competence and psychological adjustment in typically developing (TD) children. Psychosocial adjustment and social skills are also examined for this young group, and for a clinic-referred group of older children with NLD. The young children with NLD scored lower than the TD comparison group on tasks assessing recognition of happy and sad facial expressions and tasks assessing understanding of how emotions work. Children with NLD were also rated as having less adaptive regulation of their emotions. For both young and older children with NLD, internalizing and externalizing problem scales were rated higher than for the TD comparison groups, and the means of the internalizing, attention, and social problem scales were found to fall within clinically concerning ranges. Measures of attention and nonverbal intelligence did not account for the relationship between NLD and Social Problems. Social skills and NLD membership share mostly overlapping variance in accounting for internalizing problems across the sample. The results are discussed within a framework wherein social cognitive deficits, including emotion processes, have a negative impact on social competence, leading to clinically concerning levels of depression and withdrawal in this population.

  19. Paralympic Legacy: Exploring the Impact of the Games on the Perceptions of Young People With Disabilities.

    PubMed

    Coates, Janine; Vickerman, Philip B

    2016-10-01

    The London 2012 Olympic and Paralympic Games aimed to deliver a legacy to citizens of the United Kingdom, which included inspiring a generation of young people to participate in sport. This study aimed to understand the legacy of the Paralympic Games for children with disabilities. Eight adolescents (11-16 yr) with physical disabilities were interviewed about their perceptions of the Paralympic Games. Thematic analysis found 3 key themes that further our understanding of the Paralympic legacy. These were Paralympians as role models, changing perceptions of disability, and the motivating nature of the Paralympics. Findings demonstrate that the Games were inspirational for children with disabilities, improving their self-perceptions. This is discussed in relation to previous literature, and core recommendations are made.

  20. Disability impact and coping in mothers of children with intellectual disabilities and multiple disabilities.

    PubMed

    Kishore, M Thomas

    2011-12-01

    Understanding the disability impact on parenting and caregiving is important for intervention. The present study was designed to understand the differences in perceived disability impact and related coping in mothers having children with intellectual disabilities alone compared to those having children with intellectual disabilities and additional disabilities. Accordingly, 30 mothers of children with intellectual disabilities and 30 mothers of children with intellectual and additional disabilities were assessed for disability impact and coping. Group differences for disability impact were present in specific domains but not overall. Despite variations in coping pattern, both positive and negative coping strategies were observed in both groups. The results may imply that the impact of intellectual disability is so pervasive that except in certain domains mothers may not perceive the further impact of additional disabilities. Positive coping does not rule out negative coping strategies. These findings have specific relevance to service delivery in a cultural context.

  1. Dental care among young adults with intellectual disability

    PubMed Central

    Kancherla, Vijaya; Van Naarden Braun, Kim; Yeargin-Allsopp, Marshalyn

    2015-01-01

    Dental care among young adults with intellectual disability (ID) is poorly documented and largely unmet. By using population-based data from the Metropolitan Atlanta Developmental Disabilities Follow-Up Study, we assessed factors associated with at least one or two dental visits per year among young adults with and without ID. Significantly fewer young adults with ID (45%) visited a dentist at least once per year, compared with those without ID (58%). ID severity and the presence of co-occurring developmental disabilities predicted dental care use. Sociodemographics, daily functioning, societal participation, dental services, and dental health factors were examined as predictors of dental care frequency. Our findings can help focus efforts toward improving the frequency of dental care visits among young adults with ID. PMID:23501584

  2. Validation of environmental content in the Young Children's Participation and Environment Measure.

    PubMed

    Khetani, Mary A

    2015-02-01

    To evaluate the concurrent validity of the environment content in the newly developed Young Children's Participation and Environment Measure (YC-PEM). Cross-sectional study. Data were collected online. Convenience and snowball sampling methods were used to survey caregivers of children (N=381; 85 children with developmental disabilities and delays and 296 children without developmental disabilities and delays) aged 0 and 5 years (mean age, 36.49±20.18 mo). Not applicable. The YC-PEM includes an assessment of the effect of environment on children's participation for 3 settings: home, daycare/preschool, and community. Pearson and Spearman correlational analyses were used to examine the concurrent validity of the YC-PEM environmental content according to a criterion measure, the Craig Hospital Inventory of Environmental Factors-Child and Parent Version (CHIEF-CP). The YC-PEM and the CHIEF-CP items were first mapped to the International Classification of Functioning, Disability, and Health-Children and Youth Version to identify items for pairwise comparison. We found small to moderate negative associations for 51 of 66 pairwise comparisons involving CHIEF-CP and YC-PEM environment items (r=-.13 to -.39; P<.01). Significant associations were found for items in all 5 International Classification of Functioning, Disability and Health-Children and Youth Version environmental domains. Results lend further support for the use of the YC-PEM for valid caregiver assessment of the physical, social, attitudinal, and institutional features of environments in terms of their effect on young children's participation within the home, daycare/preschool, and community settings. Copyright © 2015 American Congress of Rehabilitation Medicine. Published by Elsevier Inc. All rights reserved.

  3. 77 FR 32952 - Applications for New Awards: Technology and Media Services for Individuals With Disabilities...

    Federal Register 2010, 2011, 2012, 2013, 2014

    2012-06-04

    ... With Disabilities--Models Promoting Young Children's Use of Assistive Technology AGENCY: Office of... Information: Technology and Media Services for Individuals with Disabilities--Models Promoting Young Children... Services for Individuals with Disabilities-- Models Promoting Young Children's Use of Assistive Technology...

  4. Dental Care among Young Adults with Intellectual Disability

    ERIC Educational Resources Information Center

    Kancherla, Vijaya; Van Naarden Braun, Kim; Yeargin-Allsopp, Marshalyn

    2013-01-01

    Dental care among young adults with intellectual disability (ID) is poorly documented and largely unmet. By using population-based data from the Metropolitan Atlanta Developmental Disabilities Follow-Up Study, we assessed factors associated with at least one or two dental visits per year among young adults with and without ID. Significantly fewer…

  5. A Systematic Review of the Clinimetric Properties of Habitual Physical Activity Measures in Young Children with a Motor Disability

    PubMed Central

    Oftedal, Stina; Bell, Kristie L.; Mitchell, Louise E.; Davies, Peter S. W.; Ware, Robert S.; Boyd, Roslyn N.

    2012-01-01

    Aim. To identify and systematically review the clinimetric properties of habitual physical activity (HPA) measures in young children with a motor disability. Method. Five databases were searched for measures of HPA including: children aged <6.0 years with a neuromuscular disorder, physical activity defined as “bodily movement produced by skeletal muscles causing caloric expenditure”, reported HPA as duration, frequency, intensity, mode or energy expenditure, and evaluated clinimetric properties. The quality of papers was assessed using the COSMIN-checklist. A targeted search of identified measures found additional studies of typically developing young children (TDC). Results. Seven papers assessing four activity monitors met inclusion criteria. Four studies were of good methodological quality. The Minimod had good ability to measure continuous walking but the demonstrated poor ability to measure steps during free-living activities. The Intelligent Device for Energy Expenditure and Activity and Ambulatory Monitoring Pod showed poor ability to measure activity during both continuous walking and free-living activities. The StepWatch showed good ability to measure steps during continuous walking in TDC. Interpretation. Studies assessing the clinimetric properties of measures of HPA in this population are urgently needed to allow assessment of the relationship between HPA and health outcomes in this group. PMID:22927865

  6. Transforming Disability Policy for Youth and Young Adults with Disabilities. Disability Policy Research Brief. Number 09-01

    ERIC Educational Resources Information Center

    O'Day, Bonnie; Stapleton, David

    2009-01-01

    The transition to adulthood can be difficult for youth, particularly those who have disabilities severe enough that they receive Supplemental Security Income (SSI), Social Security Disability Insurance (DI), or other disability program benefits. Besides the issues facing all transition-age youth, young people with disabilities face a host of…

  7. Influences on the Congruence between Parents' and Teachers' Ratings of Young Children's Social Skills and Problem Behaviors

    ERIC Educational Resources Information Center

    Dinnebeil, Laurie A.; Sawyer, Brook E.; Logan, Jessica; Dynia, Jaclyn M.; Cancio, Edward; Justice, Laura M.

    2013-01-01

    A comprehensive research base exists concerning the congruence between parents' and teachers' ratings of the behavior of typically developing young children. However, little research has been conducted regarding the degree to which parents' and teachers' behavioral ratings of young children with disabilities are congruent. Additionally, previous…

  8. What are the major drivers of prevalent disability burden in young Australians?

    PubMed

    Mathews, Rebecca R S; Hall, Wayne D; Vos, Theo; Patton, George C; Degenhardt, Louisa

    2011-03-07

    To examine age and sex differences in the leading causes of prevalent disability in young Australians. We analysed data from the 2003 Australian Burden of Disease and Injury Study, which estimated the prevalent disability burden attributable to 170 diseases and injuries, for younger adolescents (10-14 years), older adolescents (15-19 years) and young adults (20-24 years). The broad categories of disease and injury that are the main contributors to prevalent disability and the 10 leading disease and injury causes of prevalent disability, according to sex and age group. Total prevalent disability rates are lowest in younger adolescents and highest in young adults. Mental disorders are the largest "contributor" to disability in young Australians, and anxiety and depressive disorders are the leading single cause. In young males, autism and attention deficit hyperactivity disorder cause similar levels of disability as do anxiety and depression. In young females, eating disorders are the second leading cause of mental disorder disability. Alcohol use disorders and schizophrenia make important contributions to disability in young adult males. Asthma is the most prominent cause of physical disability in all three age groups. There are substantial changes in both the pattern and level of disability burden across the three age groups that we studied. The increase in total prevalent disability that occurs from early adolescence to young adulthood should focus attention on the delivery of accessible and youth friendly health care as well as the effectiveness of transitions from child health services to adult health services.

  9. Vocational Rehabilitation of Young Adults with Psychological Disabilities.

    PubMed

    Tophoven, Silke; Reims, Nancy; Tisch, Anita

    2018-05-10

    Objective Vocational rehabilitation measures support youth and young adults with disabilities to obtain vocational training and to enter the labor market. In Germany, a growing number of young people with psychological disabilities in vocational rehabilitation can be observed. The study at hand focuses on this group and examines their (un-)unemployment biographies before vocational rehabilitation, their access to vocational rehabilitation and identifies their individual challenges within the process of vocational rehabilitation. Methods Using a multi-methods approach, we analyze representative administrative data of the German Federal Employment Agency as well as biographical interviews conducted with young rehabilitants. We compare the population of young rehabilitants with psychological disorders to those with other disabilities in terms of vocational rehabilitation and initial labor market entry in order to get a representative picture about their school to work transitions. Since rehabilitants with psychological disabilities tend to be older than the remaining population, analyses are stratified by age groups. In addition, qualitative in-depth interviews provide an additional and deeper understanding of specific employment barriers youth with psychological disorders have to overcome. Furthermore, the individual perspective gives insight on how the crucial transition from school to work is perceived by the population under study. Results The pathway into vocational rehabilitation of youth with psychological disorders is often characterized by obstacles in their transition from school to work. During rehabilitation, it appears essential to provide psychological stabilization along with vocational training. Although their average level of education is higher than those of other rehabilitants, labor market transition after (often company-external) vocational training challenges many young people with psychological disabilities, leaving many of them with

  10. Relative Effects of Interventions Supporting the Social Competence of Young Children with Disabilities.

    ERIC Educational Resources Information Center

    Odom, Samuel L.; McConnell, Scott R.; McEvoy, Mary A.; Peterson, Carla; Ostrosky, Michaelene; Chandler, Lynette K.; Spicuzza, Richard J.; Skellenger, Annette; Creighton, Michelle; Favazza, Paddy C.

    1999-01-01

    A study compared the effects of different intervention approaches designed to promote peer-related social competence of 83 preschool children with disabilities. Analyses indicated that the peer-mediated condition had the greatest and most sustained effect on children's participation in social interaction and on the quality of interaction.…

  11. Investigation of raising burden of children with autism, physical disability and mental disability in China.

    PubMed

    Xiong, Nina; Yang, Li; Yu, Yang; Hou, Jiaxun; Li, Jia; Li, Yuanyuan; Liu, Hairong; Zhang, Ying; Jiao, Zhengang

    2011-01-01

    The family economic burden of raising autistic children, physical disabled children and mental disabled children were evaluated in China. 227 parents of children with autism, children with physical disability, children with mental disability and normal children were interviewed for children's costs, family income and economic assistance, etc. The medical cost and caring cost of disabled children were significantly more than those of normal children, and the education cost, clothes cost and amusement cost of disabled children were significantly less than those of normal children. Family income was only predicted by parents' education level. Families of disabled children received more economic assistance than families of normal children except families of autistic children. More children the family had, less economic assistance the family acquired. Compared with normal children, the raising burden of children with disabilities were as follows: children with autism (19582.4 RMB per year), children with physical disability (16410.1 RMB per year), children with mental disability (6391.0 RMB per year). Families of autistic children, physical disabled children and mental disabled children have heavier raising burden than families of normal children, they need more help from many aspects. Copyright © 2010 Elsevier Ltd. All rights reserved.

  12. The Impact of Disability on the Lives of Children; Cross-Sectional Data Including 8,900 Children with Disabilities and 898,834 Children without Disabilities across 30 Countries

    PubMed Central

    Kuper, Hannah; Monteath-van Dok, Adrienne; Wing, Kevin; Danquah, Lisa; Evans, Jenny; Zuurmond, Maria; Gallinetti, Jacqueline

    2014-01-01

    Background Children with disabilities are widely believed to be less likely to attend school or access health care, and more vulnerable to poverty. There is currently little large-scale or internationally comparable evidence to support these claims. The aim of this study was to investigate the impact of disability on the lives of children sponsored by Plan International across 30 countries. Methods and Findings We conducted a cross-sectional survey including 907,734 children aged 0–17 participating in the Plan International Sponsorship Programme across 30 countries in 2012. Parents/guardians were interviewed using standardised questionnaires including information on: age, sex, health, education, poverty, and water and sanitation facilities. Disability was assessed through a single question and information was collected on type of impairment. The dataset included 8,900 children with reported disabilities across 30 countries. The prevalence of disability ranged from 0.4%–3.0% and was higher in boys than girls in 22 of the 30 countries assessed – generally in the range of 1.3–1.4 fold higher. Children with disabilities were much less likely to attend formal education in comparison to children without disabilities in each of the 30 countries, with age-sex adjusted odds ratios exceeding 10 for nearly half of the countries. This relationship varied by impairment type. Among those attending school, children with disabilities were at a lower level of schooling for their age compared to children without disabilities. Children with disabilities were more likely to report experiencing a serious illness in the last 12 months, except in Niger. There was no clear relationship between disability and poverty. Conclusions Children with disabilities are at risk of not fulfilling their educational potential and are more vulnerable to serious illness. This exclusion is likely to have a long-term deleterious impact on their lives unless services are adapted to promote their

  13. Disability and Health: Exploring the Disablement Experience of Young Adult African Americans

    PubMed Central

    Harrison, Tracie

    2013-01-01

    Purpose The objective of this study was to examine disablement as experienced by young adult African American men and women with permanent mobility impairment. Methods This study included a sample of 5 male and 5 female participants ranging in age from 22 to 39. An exploratory descriptive design and qualitative methods, including interviews and fieldnotes, were used. Interview data was analyzed using the process of inductive qualitative content analysis. Results Basic desires for independence, shared intimacy, and psychological and physical health were not diminished by physical limitations. The disablement experience of this group is reflected in the themes of “Cumulative Losses” and “Sustained Desires.” The findings of this study describe the high level of motivation that young adult African American men and women with disabilities have to improve levels of health and well-being within the context of their impairments. Conclusion This study provides a better understanding of the contextual factors and experiences that may contribute to the development of further disability and subsequent health-related problems over time. Increased knowledge of the disablement experience of these young men and women may assist health care entities and social service providers in improving health care and rehabilitation efforts targeting this group. PMID:23745770

  14. Psychometric properties of the Young Children's Participation and Environment Measure.

    PubMed

    Khetani, Mary A; Graham, James E; Davies, Patricia L; Law, Mary C; Simeonsson, Rune J

    2015-02-01

    To evaluate the psychometric properties of the newly developed Young Children's Participation and Environment Measure (YC-PEM). Cross-sectional study. Data were collected online and by telephone. Convenience and snowball sampling methods were used to survey caregivers of children (N=395, comprising children with [n=93] and without [n=302] developmental disabilities and delays) between the ages of 0 and 5 years (mean age±SD, 35.33±20.29 mo) and residing in North America. Not applicable. The YC-PEM includes 3 participation scales and 1 environment scale. Each scale is assessed across 3 settings: home, daycare/preschool, and community. Data were analyzed to derive estimates of internal consistency, test-retest reliability, and construct validity. Internal consistency ranged from .68 to .96 and .92 to .96 for the participation and environment scales, respectively. Test-retest reliability (2-4 wk) ranged from .31 to .93 for participation scales and from .91 to .94 for the environment scale. One of 3 participation scales and the environment scale demonstrated significant group differences by disability status across all 3 settings, and all 4 scales discriminated between disability groups for the daycare/preschool setting. The participation scales exhibited small to moderate positive associations with functional performance scores. Results lend initial support for the use of the YC-PEM in research to assess the participation of young children with disabilities and delays in terms of (1) home, daycare/preschool, and community participation patterns; (2) perceived environmental supports and barriers to participation; and (3) activity-specific parent strategies to promote participation. Copyright © 2015 American Congress of Rehabilitation Medicine. Published by Elsevier Inc. All rights reserved.

  15. Internet-Based Parent-Implemented Intervention for Young Children with Autism: A Pilot Study

    ERIC Educational Resources Information Center

    Meadan, Hedda; Snodgrass, Melinda R.; Meyer, Lori E.; Fisher, Kim W.; Chung, Moon Y.; Halle, James W.

    2016-01-01

    Both naturalistic communication and parent-implemented interventions are evidence-based practices for young children with disabilities, but demonstrations of effective methods for teaching parents to implement naturalistic interventions successfully with their children are still warranted. The purpose of this study was to examine the effects of a…

  16. Assistive Technology for Young Children: Creating Inclusive Learning Environments

    ERIC Educational Resources Information Center

    Sadao, Kathleen C.; Robinson, Nancy B.

    2010-01-01

    Assistive technology (AT) can help young children with disabilities fully participate in natural, inclusive learning environments--but many early childhood professionals don't get the training they need to harness the power of AT. Fill that gap with this unintimidating, reader-friendly resource, the go-to guide to recommended AT practice for…

  17. Development of a robotic device for facilitating learning by children who have severe disabilities.

    PubMed

    Cook, Albert M; Meng, Max Q H; Gu, Jason J; Howery, Kathy

    2002-09-01

    This paper presents technical aspects of a robot manipulator developed to facilitate learning by young children who are generally unable to grasp objects or speak. The severity of these physical disabilities also limits assessment of their cognitive and language skills and abilities. The CRS robot manipulator was adapted for use by children who have disabilities. Our emphasis is on the technical control aspects of the development of an interface and communication environment between the child and the robot arm. The system is designed so that each child has user control and control procedures that are individually adapted. Control interfaces include large push buttons, keyboards, laser pointer, and head-controlled switches. Preliminary results have shown that young children who have severe disabilities can use the robotic arm system to complete functional play-related tasks. Developed software allows the child to accomplish a series of multistep tasks by activating one or more single switches. Through a single switch press the child can replay a series of preprogrammed movements that have a development sequence. Children using this system engaged in three-step sequential activities and were highly responsive to the robotic tasks. This was in marked contrast to other interventions using toys and computer games.

  18. Key health outcomes for children and young people with neurodisability: qualitative research with young people and parents

    PubMed Central

    Allard, Amanda; Fellowes, Andrew; Shilling, Valerie; Janssens, Astrid; Beresford, Bryony; Morris, Christopher

    2014-01-01

    Objectives To identify key health outcomes, beyond morbidity and mortality, regarded as important in children and young people with neurodisability, and their parents. Design Qualitative research incorporating a thematic analysis of the data supported by the Framework Approach; the International Classification of Functioning, Disability and Health (ICF) provided a theoretical foundation. Setting The study was conducted in community settings. Participants Participants were 54 children and young people with neurodisability: 50 participated in focus groups, and 4 in interviews; 53 parents participated: 47 in focus groups and 6 in interviews. Children/young people and parents were recruited through different networks, and were not related. Results Children/young people and parents viewed health outcomes as inter-related. Achievement in some outcomes appeared valued to the extent that it enabled or supported more valued domains of health. Health outcomes prioritised by both young people and parents were: communication, mobility, pain, self-care, temperament, interpersonal relationships and interactions, community and social life, emotional well-being and gaining independence/future aspirations. Parents also highlighted their child's sleep, behaviour and/or safety. Conclusions Those responsible for health services for children/young people with neurodisability should take account of the aspects of health identified by families. The aspects of health identified in this study provide a basis for selecting appropriate health indicators and outcome measures. PMID:24747792

  19. Young children's communication and literacy: a qualitative study of language in the inclusive preschool.

    PubMed

    Kliewer, C

    1995-06-01

    Interactive and literacy-based language use of young children within the context of an inclusive preschool classroom was explored. An interpretivist framework and qualitative research methods, including participant observation, were used to examine and analyze language in five preschool classes that were composed of children with and without disabilities. Children's language use included spoken, written, signed, and typed. Results showed complex communicative and literacy language use on the part of young children outside conventional adult perspectives. Also, children who used expressive methods other than speech were often left out of the contexts where spoken language was richest and most complex.

  20. Coaching Preservice Teachers to Teach Play Skills to Children with Disabilities

    ERIC Educational Resources Information Center

    Barton, Erin E.; Chen, Ching-I; Pribble, Lois; Pomes, Maria; Kim, Young-Ah

    2013-01-01

    The purpose of this article is to describe two studies that examined the effects of training and coaching on preservice teachers' implementation of an intervention focused on teaching play to young children with disabilities. A multiple-baseline across teachers single-case research design was used to systematically examine the relation between…

  1. Do chronic conditions increase young children's risk of being maltreated?

    PubMed

    Jaudes, Paula Kienberger; Mackey-Bilaver, Lucy

    2008-07-01

    agencies should be trained to identify behavioral/mental health conditions of children. Chronic behavioral/mental health conditions place young children at heightened risk of abuse or neglect. Early detection of mental or psychosocial health conditions is mandated by the Individuals with Disabilities Education Act (IDEA), a federal law that governs how state and public agencies provide services to children with disabilities. Given the higher risk of abuse and neglect among children with behavioral/mental health conditions, clinicians should give added scrutiny to these children. Child protection agencies should also be trained to identify behavioral/mental health conditions, and more states should record disability status in their abuse records.

  2. Stories about Physical Education from Young People with Disabilities

    ERIC Educational Resources Information Center

    Fitzgerald, Hayley; Stride, Annette

    2012-01-01

    This article focuses on young people with disabilities and mainstream physical education in England. Within this context there have been unprecedented levels of funding and resources directed towards physical education in order to support more inclusive physical education experiences for all young people, including those with disabilities.…

  3. Early Childhood Inclusion: A Joint Position Statement of the Division for Early Childhood (DEC) and the National Association for the Education of Young Children (NAEYC)

    ERIC Educational Resources Information Center

    Young Exceptional Children, 2009

    2009-01-01

    Today an ever-increasing number of infants and young children with and without disabilities play, develop, and learn together in a variety of places--homes, early childhood programs, neighborhoods, and other community-based settings. The notion that young children with disabilities and their families are full members of the community reflects…

  4. Technology Can Help Young Children Succeed. PACER Center ACTion Information Sheets: PHP-c70

    ERIC Educational Resources Information Center

    PACER Center, 2014

    2014-01-01

    Parents of young children with disabilities are discovering that carefully selected computer software and mobile apps can provide many benefits such as improved self-esteem, a longer attention span, and inclusion among family and other children that help their children succeed at home and in school. PACER's Simon Technology Center (STC) can help…

  5. Expecting the Worst: Observations of Reactivity to Sound in Young Children with Williams Syndrome

    ERIC Educational Resources Information Center

    Gallo, Frank J.; Klein-Tasman, Bonita P.; Gaffrey, Michael S.; Curran, Phillip

    2008-01-01

    The study examined behavioral reactions to sound, including startle eye blinks, in young children with Williams syndrome (WS) using video-based observational techniques. Participants were 21 children with WS and 20 children with other developmental disabilities of mixed etiology between the ages of 2.5 and 6. Groups were matched for chronological…

  6. Mental Health Services for Children and Adolescents with Learning Disabilities: A Review of Research on Experiences of Service Users and Providers

    ERIC Educational Resources Information Center

    Jacobs, Myrthe; Downie, Helen; Kidd, Gill; Fitzsimmons, Lorna; Gibbs, Susie; Melville, Craig

    2016-01-01

    Background: Children and young people with learning disabilities experience high rates of mental health problems. Methods: The present study reviewed the literature on mental health services for children with learning disabilities, to identify known models of service provision and what has been experienced as effective or challenging in providing…

  7. Pre-Service Teachers' Attitudes towards Children with Disabilities: An Irish Perspective

    ERIC Educational Resources Information Center

    Tindall, Daniel; MacDonald, Whitney; Carroll, Edith; Moody, Brigitte

    2015-01-01

    The purpose of this study was to examine the impact of a 10-week adapted physical activity programme on the attitudes and perceptions of 64 Irish pre-service teachers (aged 19-25) towards teaching children and young people with physical, intellectual, and learning disabilities. Data were collected through written pre-programme expectations, weekly…

  8. Agreement Among Traditional and RTI-based Definitions of Reading-Related Learning Disability with Preschool Children.

    PubMed

    Milburn, Trelani F; Lonigan, Christopher J; Allan, Darcey M; Phillips, Beth M

    2017-04-01

    To investigate approaches for identifying young children who may be at risk for later reading-related learning disabilities, this study compared the use of four contemporary methods of indexing learning disability (LD) with older children (i.e., IQ-achievement discrepancy, low achievement, low growth, and dual-discrepancy) to determine risk status with a large sample of 1,011 preschoolers. These children were classified as at risk or not using each method across three early-literacy skills (i.e., language, phonological awareness, print knowledge) and at three levels of severity (i.e., 5th, 10th, 25th percentiles). Chance-corrected affected-status agreement (CCASA) indicated poor agreement among methods with rates of agreement generally decreasing with greater levels of severity for both single- and two-measure classification, and agreement rates were lower for two-measure classification than for single-measure classification. These low rates of agreement between conventional methods of identifying children at risk for LD represent a significant impediment for identification and intervention for young children considered at-risk.

  9. Agreement Among Traditional and RTI-based Definitions of Reading-Related Learning Disability with Preschool Children

    PubMed Central

    Milburn, Trelani F.; Lonigan, Christopher J.; Allan, Darcey M.; Phillips, Beth M.

    2017-01-01

    To investigate approaches for identifying young children who may be at risk for later reading-related learning disabilities, this study compared the use of four contemporary methods of indexing learning disability (LD) with older children (i.e., IQ-achievement discrepancy, low achievement, low growth, and dual-discrepancy) to determine risk status with a large sample of 1,011 preschoolers. These children were classified as at risk or not using each method across three early-literacy skills (i.e., language, phonological awareness, print knowledge) and at three levels of severity (i.e., 5th, 10th, 25th percentiles). Chance-corrected affected-status agreement (CCASA) indicated poor agreement among methods with rates of agreement generally decreasing with greater levels of severity for both single- and two-measure classification, and agreement rates were lower for two-measure classification than for single-measure classification. These low rates of agreement between conventional methods of identifying children at risk for LD represent a significant impediment for identification and intervention for young children considered at-risk. PMID:28670102

  10. A Comparison of the Effects of Video Modeling Other and Peer-Implemented Pivotal Response Training to Video Modeling Other on Positive Social Interactions of Young Children with Developmental Disabilities

    ERIC Educational Resources Information Center

    Kucskar, Maryssa

    2017-01-01

    Young children with developmental disabilities (DD) frequently have delays in social play skills. Students with DD may require social skills instruction in order to be successful in playing cooperatively with others. These opportunities to practice social play skills learned from specialized interventions must be available throughout the school…

  11. Autism Spectrum Disorder and Young Children. AECA Research in Practice Series.

    ERIC Educational Resources Information Center

    Roe, Diana

    This booklet provides an overview of the characteristics and needs of young children with autism spectrum disorders or pervasive developmental disorders. It addresses: (1) different disabilities under the classification of autism spectrum disorders or pervasive developmental disorders; (2) characteristics of autism; (3) characteristics of children…

  12. Investigation of Raising Burden of Children with Autism, Physical Disability and Mental Disability in China

    ERIC Educational Resources Information Center

    Xiong, Nina; Yang, Li; Yu, Yang; Hou, Jiaxun; Li, Jia; Li, Yuanyuan; Liu, Hairong; Zhang, Ying; Jiao, Zhengang

    2011-01-01

    The family economic burden of raising autistic children, physical disabled children and mental disabled children were evaluated in China. 227 parents of children with autism, children with physical disability, children with mental disability and normal children were interviewed for children's costs, family income and economic assistance, etc. The…

  13. Evaluation of short term effects of the IROMEC robotic toy for children with developmental disabilities.

    PubMed

    Klein, Tanja; Gelderblom, Gert Jan; de Witte, Luc; Vanstipelen, Silvie

    2011-01-01

    Research shows a reduced playfulness in children with developmental disabilities. This is a barrier for participation and children's health and wellbeing. IROMEC is a purposely designed robot to support play in impaired children. The reported study evaluates short-term effects of the IROMEC robot toy supporting play in an occupational therapy intervention for children with developmental disabilities. Two types of play intervention (standard occupational therapy versus robot-facilitated play intervention) were compared regarding their effect on the level of playfulness, on children's general functional development, goal achievement as well as the therapist's evaluation of the added value of a robot-facilitated play intervention. Three young children took part in this single-subject design study. Evaluation was performed through Test of Playfulness (ToP), the IROMEC evaluation questionnaire and qualitative evaluation by the therapists. Results confirmed the IROMEC robot did partly meet the needs of the children and therapists, and positive impact on TOP results was found with two children. This suggests robotic toys can support children with developmental disabilities in enriching play. Long term effect evaluation should verify these positive indications resulting from use of this innovative social robot for children with developmental disabilities. But it also became clear further development of the robot is required. © 2011 IEEE

  14. The Individuals With Disabilities Education Act (IDEA) for Children With Special Educational Needs.

    PubMed

    Lipkin, Paul H; Okamoto, Jeffrey

    2015-12-01

    The pediatric health care provider has a critical role in supporting the health and well-being of children and adolescents in all settings, including early intervention (EI), preschool, and school environments. It is estimated that 15% of children in the United States have a disability. The Individuals with Disabilities Education Act entitles every affected child in the United States from infancy to young adulthood to a free appropriate public education through EI and special education services. These services bolster development and learning of children with various disabilities. This clinical report provides the pediatric health care provider with a summary of key components of the most recent version of this law. Guidance is also provided to ensure that every child in need receives the EI and special education services to which he or she is entitled. Copyright © 2015 by the American Academy of Pediatrics.

  15. Ensuring financial access to hearing AIDS for infants and young children.

    PubMed

    Limb, Stephanie J; McManus, Margaret A; Fox, Harriette B; White, Karl R; Forsman, Irene

    2010-08-01

    Many young children with permanent hearing loss do not receive hearing aids and related professional services, in part because of public and private financing limitations. In 2006 the Children's Audiology Financing Workgroup was convened by the National Center for Hearing Assessment and Management to evaluate and make recommendations about public and private financing of hearing aids and related professional services for 0- to 3-year-old children. The workgroup recommended 4 possible strategies for ensuring that all infants and young children with hearing loss have access to appropriate hearing aids and professional services: (1) clarify that the definition of assistive technology, which is a required service under Part C of the Individuals With Disabilities Education Act (IDEA), includes not only analog hearing aids but also digital hearing aids with appropriate features as needed by young children with hearing loss; (2) clarify for both state Medicaid and Children's Health Insurance Programs that digital hearing aids are almost always the medically necessary type of hearing aid required for infants and young children and should be covered under the Early and Periodic Screening, Diagnosis, and Treatment (EPSDT) program; (3) encourage the passage of private health insurance legislative mandates to require coverage of appropriate digital hearing aids and related professional services for infants and young children; and (4) establish hearing-aid loaner programs in every state. The costs of providing hearing aids to all 0- to 3-year old children in the United States are estimated here.

  16. Core vocabulary of young children with Down syndrome.

    PubMed

    Deckers, Stijn R J M; Van Zaalen, Yvonne; Van Balkom, Hans; Verhoeven, Ludo

    2017-06-01

    The aim of this study was to develop a core vocabulary list for young children with intellectual disabilities between 2 and 7 years of age because data from this population are lacking in core vocabulary literature. Children with Down syndrome are considered one of the most valid reference groups for researching developmental patterns in children with intellectual disabilities; therefore, spontaneous language samples of 30 Dutch children with Down syndrome were collected during three different activities with multiple communication partners (free play with parents, lunch- or snack-time at home or at school, and speech therapy sessions). Of these children, 19 used multimodal communication, primarily manual signs and speech. Functional word use in both modalities was transcribed. The 50 most frequently used core words accounted for 67.2% of total word use; 16 words comprised core vocabulary, based on commonality. These data are consistent with similar studies related to the core vocabularies of preschoolers and toddlers with typical development, although the number of nouns present on the core vocabulary list was higher for the children in the present study. This finding can be explained by manual sign use of the children with Down syndrome and is reflective of their expressive vocabulary ages.

  17. Too Late at Eight: Prevention and Intervention, Young Children's Learning Difficulties.

    ERIC Educational Resources Information Center

    Atkinson, Joan K., Ed.

    The report contains 15 papers given at a 1979 Australian conference on prevention and intervention with young children at risk of developmental and learning difficulties. Papers have the following titles and authors: "Prevention and Early Amelioration of Developmental and Learning Disabilities: Progress, Problems and Prospects" (W.…

  18. Exposure to Media Violence and Young Children with and without Disabilities: Powerful Opportunities for Family-Professional Partnerships

    ERIC Educational Resources Information Center

    Erwin, Elizabeth J.; Morton, Naomi

    2008-01-01

    There is growing concern regarding the amount and type of violence that young children are exposed to on a daily basis. Through media, popular toys and video games violent images are consistently present in children's lives starting at a very young age. This paper discusses (a) the growing presence of young children's exposure to media violence,…

  19. Young Children's Attitudes toward Peers with Intellectual Disabilities: Effect of the Type of School

    ERIC Educational Resources Information Center

    Georgiadi, Maria; Kalyva, Efrosini; Kourkoutas, Elias; Tsakiris, Vlastaris

    2012-01-01

    Background: This study explored typically developing children's attitudes towards peers with intellectual disabilities, with special reference to the type of school they attended. Materials and Methods: Two hundred and fifty-six Greek children aged 9-10 (135 in inclusive settings) completed a questionnaire and an adjective list by Gash ("European…

  20. Transition from School to Adulthood for Young People with Disabilities.

    ERIC Educational Resources Information Center

    Inge, Katherine J., Ed.

    1992-01-01

    This newsletter issue provides rehabilitation professionals with various information pieces concerning transition from school to adulthood for young people with disabilities. An introduction identifies specific challenges in transition programming and stresses the goal of fully integrating young people with disabilities as interdependent parts of…

  1. Maternal versus Professional Estimates of Developmental Status for Young Children with Handicaps: An Ecological Approach.

    ERIC Educational Resources Information Center

    Sexton, David; And Others

    1990-01-01

    The study compared maternal judgments about the development of their young disabled children with independently obtained developmental testing data for 53 children. Results indicated (1) maternal and professional estimates were highly correlated; (2) mothers systematically provided higher estimates across developmental domains; and (3) child IQ…

  2. Hoarding behaviors in children with learning disabilities.

    PubMed

    Testa, Renée; Pantelis, Christos; Fontenelle, Leonardo F

    2011-05-01

    Our objective was to describe the prevalence, comorbidity, and neuropsychological profiles of children with hoarding and learning disabilities. From 61 children with learning disabilities, 16.4% exhibited hoarding as a major clinical issue. Although children with learning disabilities and hoarding displayed greater rates of obsessive-compulsive disorder (30%) as compared to those with learning disabilities without hoarding (5.9%), the majority of patients belonging to the former group did not display obsessive-compulsive disorder diagnosis. When learning disability patients with hoarding were compared to age-, sex-, and IQ-matched learning disability subjects without hoarding, hoarders exhibited a slower learning curve on word list-learning task. In conclusion, salient hoarding behaviors were found to be relatively common in a sample of children with learning disabilities and not necessarily associated with obsessive-compulsive disorder, supporting its nosological independence. It is unclear whether underlying cognitive features may play a major role in the development of hoarding behaviors in children with learning disabilities.

  3. A Question of Assistive Technology and Services for Young Children with Physical Disabilities. Project TAARK.

    ERIC Educational Resources Information Center

    Parette, Howard P., Jr.

    A statewide survey of the technology needs of 104 children with physical disabilities aged 0-5 years was conducted in Arkansas as a component of the grant application process of Public Law 100-407 (the Technology-Related Assistance for Individuals with Disabilities Act of 1988). The survey analyzed satisfaction with assistive devices technology…

  4. Children and young people's preference of thematic design and colour for their hospital environment.

    PubMed

    Coad, Jane; Coad, Nigel

    2008-03-01

    In this innovative project, the views of children and young people were explored regarding their preference of thematic design and colour for their hospital environment in a new children's unit. The novelty of the approach was that it was driven by the preferred choices of children and young people through the use of 'child-friendly' interviews and questionnaires. Informing the study was the development of a group of children and young people who underwent research training, and with support, developed all data collection tools and helped to verify data analysis. A two-phased sequential study was undertaken. During phase 1, 40 interviews were performed with children and young people, including 10 with additional learning needs and physical disabilities while 140 questionnaires were analysed for phase 2 of the study. Notable issues emerged about preferred thematic designs of walls, doors and floors, while new findings were revealed regarding colour preferences for wards, entrances and outpatient areas.

  5. Toy Play in Infancy and Early Childhood: Normal Development and Special Considerations for Children with Disabilities.

    ERIC Educational Resources Information Center

    1994

    This paper presents a review of the literature on toy play in infancy and early childhood, with an emphasis on both normal development and special considerations for young children with disabilities. Specifically, it describes children's encounters with toys within a developmental framework, identifies characteristics of the child and aspects of…

  6. Meeting the Communication Support Needs of Children and Young People with Intellectual Disabilities in the Bolivian Andes

    ERIC Educational Resources Information Center

    Buell, Susan; Chadwick, Darren

    2017-01-01

    Services available for people with disabilities in Bolivia tend to be fragmented and costly. Children and adults with intellectual disabilities are more likely to have a related communication disability and are thus both literally and metaphorically excluded from having a voice. The following research aimed to explore the experiences of accessing…

  7. Environmental impact on young children's participation in home-based activities.

    PubMed

    Albrecht, Erin C; Khetani, Mary A

    2017-04-01

    To test the effect of child, family, and environmental factors on young children's participation in home-based activities. Caregivers of young children were recruited using convenience and snowball sampling. Participants were 395 caregivers of children (222 males, 173 females) aged from 1 month to 5 years and 11 months. Demographic items and the home section of the Young Children's Participation and Environment Measure were administered online, followed by completion of the daily activities, mobility, and social/cognitive domains of the Pediatric Evaluation of Disability Inventory Computer Adaptive Test by telephone interview. A structural equation model fitted the data well (comparative fit index=0.91) and explained 31.2% of the variance in perceived environmental support and 42.5% of the variance in home involvement. Functional limitations and performance had an indirect effect on young children's participation through their effect on perceived environmental support. Specifically, fewer functional limitations and higher task performance were associated with greater environmental support, which in turn predicted higher levels of home involvement. Results suggest the importance of a young child's functional abilities and task performance on caregiver perceptions of environmental support at home, and the impact of environmental support on a child's participation in home-based activities during the early childhood period. Results warrant replication with more diverse samples to evaluate model generalizability. © 2016 The Authors. Developmental Medicine & Child Neurology published by John Wiley & Sons Ltd on behalf of Mac Keith Press.

  8. Communication Intervention for Young Children with Severe Neurodevelopmental Disabilities via Telehealth

    ERIC Educational Resources Information Center

    Simacek, Jessica; Dimian, Adele F.; McComas, Jennifer J.

    2017-01-01

    Young children with neurodevelopmental disorders such as autism spectrum disorders (ASD) and Rett syndrome often experience severe communication impairments. This study examined the efficacy of parent-implemented communication assessment and intervention with remote coaching via telehealth on the acquisition of early communication skills of three…

  9. Shufflegolf: Teaching Golf Strategies and Etiquette to Young Children and Learners with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Kozub, Francis M.

    2010-01-01

    The purpose of this article is to share a unique curricular idea with physical educators interested about adding golf concepts to their curriculum. The focus is on a modified golf game that helps teach tactics, strategies, rules, and etiquette to young learners and those with intellectual disabilities. The specific content for this unit focuses on…

  10. Parental Stress in Families of Children with Disabilities

    ERIC Educational Resources Information Center

    Hsiao, Yun-Ju

    2018-01-01

    Parents of children with disabilities often experience a higher level of stress than parents of children without disabilities, regardless of categories of disabilities. Understanding parental stressors can lead to appropriate interventions and supports for these parents and their children with disabilities. This article discusses issues of…

  11. Early Numeracy Trajectories: Baseline Performance Levels and Growth Rates in Young Children by Disability Status

    ERIC Educational Resources Information Center

    Hojnoski, Robin L.; Caskie, Grace I. L.; Miller Young, Robin

    2018-01-01

    Data indicate that children with disabilities typically display lower levels of proficiency in mathematics than their nondisabled peers, with this difference remaining stable over time. Although literature exists regarding school-age children, few studies have examined early numeracy skills of preschoolers and child characteristics associated with…

  12. Everyday Life of Young Adults with Intellectual Disabilities: Inclusionary and Exclusionary Processes among Young Adults of Parents with Intellectual Disability

    ERIC Educational Resources Information Center

    Starke, Mikaela

    2013-01-01

    Ten young adults with an intellectual disability whose parents, too, have an intellectual disability were interviewed and completed questionnaires for this exploratory study aimed at charting their experiences of everyday life. Most of the participants reported high life satisfaction, especially with the domains of friends, leisure time, and…

  13. Prevalence and risk factors of maladaptive behaviour in young children with Autistic Disorder

    PubMed Central

    Hartley, S. L.; Sikora, D. M.; McCoy, R.

    2010-01-01

    Background Children with Autistic Disorder (AD) evidence more co-occurring maladaptive behaviours than their typically developing peers and peers with intellectual disability because of other aetiologies. The present study investigated the prevalence of Clinically Significant maladaptive behaviours during early childhood and identified at-risk subgroups of young children with AD. Method Parents rated their child’s maladaptive behaviours on the Child Behaviour Checklist (CBCL) in 169 children with AD aged 1.5 to 5.8 years. Results One-third of young children with AD had a CBCL Total Problems score in the Clinically Significant range. The highest percentage of Clinically Significant scores were in the Withdrawal, Attention, and Aggression CBCL syndrome scales. There was a high degree of co-morbidity of Clinically Significant maladaptive behaviours. Several subject characteristic risk factors for maladaptive behaviours were identified. Conclusions Findings highlight the need to include behavioural management strategies aimed at increasing social engagement, sustained attention and decreasing aggressive behaviour in comprehensive intervention programmes for young children with AD. PMID:18444989

  14. Children with intellectual disability in rural South Africa: prevalence and associated disability.

    PubMed

    Christianson, A L; Zwane, M E; Manga, P; Rosen, E; Venter, A; Downs, D; Kromberg, J G R

    2002-02-01

    The objective of the present study was to determine the prevalence of intellectual disability (ID) and its associated disabilities in rural South African children aged 2-9 years. It was undertaken in eight villages in the district of Bushbuckridge, Northern Province, South Africa. A two-phase design was utilized. The first phase involved screening children on a house-to-house basis by interviewing mothers or caregivers using an internationally validated questionnaire for detecting childhood disability in developing countries. The second phase consisted of a paediatric/neurodevelopmental assessment of the children who screened positive. A total of 6692 children were screened; 722 (10.8%) had a paediatric evaluation and 238 children were diagnosed with ID, giving a minimum observed prevalence of 35.6 per 1000 children in this population. The prevalence of severe and mild ID was 0.64 per 1000 and 29.1 per 1000 children, respectively. The male:female ratio of children with ID was 3:2. In the affected children, a congenital aetiology for the ID was determined in 49 subjects (20.6%), an acquired aetiology in 15 (6.3%) and the aetiology was undetermined in 174 children (73.1%). Epilepsy (15.5%) and cerebral palsy (8.4%) were the commonest associated disabilities. The present study represents the first data on the prevalence of ID and associated disabilities in rural South African children. The prevalence of ID was comparable with results from a study performed in one other African country (Zambia) as well as those from other developing countries. The data provide an initial factual insight into ID and its associated disabilities for healthcare, social service and educational policy planners. This study provides a basis for the initiation and development of appropriate and integrated services for the best possible care of individuals affected with these disabilities, and for their possible prevention.

  15. Nutritional Intake in Children with Disabilities Compared to Typical Children.

    ERIC Educational Resources Information Center

    Raddish, Michele; And Others

    Using interviews with parents and guardians, and the child where appropriate, this study compared feeding problems of children with disabilities in Kentucky with a sample of typical children. Subjects were 50 children ages 3-5; 25 children were without disabilities. In addition to interviews, data were collected from case records, medical…

  16. Children with intellectual disability and hospice utilization.

    PubMed

    Lindley, Lisa C; Colman, Mari Beth; Meadows, John T

    2017-02-01

    Over 42,000 children die each year in the United States, including those with intellectual disability (ID). Survival is often reduced when children with intellectual disability also suffer from significant motor dysfunction, progressive congenital conditions, and comorbidities. Yet, little is known about hospice care for children with intellectual disability. The purpose of this study was to explore the relationship between intellectual disability and hospice utilization. Additionally, we explored whether intellectual disability combined with motor dysfunction, progressive congenital conditions, and comorbidities influenced pediatric hospice utilization. Using a retrospective cohort design and data from the 2009 to 2010 California Medicaid claims files, we conducted a multivariate analysis of hospice utilization. This study shows that intellectual disability was negatively related to hospice enrollment and length of stay. We also found that when children had both intellectual disability and comorbidities, there was a positive association with enrolling in hospice care. A number of clinical implications can be drawn from the study findings that hospice and palliative care nurses use to improve their clinical practice of caring for children with ID and their families at end of life.

  17. Preschool Children's Perceptions of Orthopedic Disability

    ERIC Educational Resources Information Center

    Weinberg, Nancy

    1978-01-01

    Research investigates three- to five-year olders understanding of disability in other children. The results indicate that four- to five-year olds significantly favored the ablebodied children over the disabled child. (Author)

  18. Beliefs about feeding practices and nutrition for children with disabilities among families in Dharavi, Mumbai.

    PubMed

    Yousafzai, Aisha K; Pagedar, Sunita; Wirz, Sheila; Filteau, Suzanne

    2003-03-01

    Attitudes arise from specific experiences and emotions driven by cultural beliefs. An understanding of societal constructs regarding disability in a given culture contributes to developing strategies to meet the needs of children with disabilities by providing culturally competent services. In 1999, a series of focus-group discussions were conducted with families in a low-income community in Mumbai, India to collect qualitative information on the knowledge, skills and attitudes (KSA) regarding disability, feeding and nutrition to facilitate the development of an intervention to improve the nutritional well-being of children with disabilities. The KSA of this population of poor families has seldom been directly examined. The specific objectives of this study were (i) to describe the experiences of families with young disabled children in the local community; (ii) to identify the nutritional and feeding needs of children with disabilities; and (iii) to identify any service, environmental or attitudinal barriers to acquiring an adequate nutritional status. Content analysis of concepts in the focus groups identified four emerging themes: (i) acceptance of disability; (ii) services and needs; (iii) future; and (iv) food and nutrition. The focus-group findings enabled a broader understanding of attitudes towards disability within this population, which can have an impact on the care of the child. The findings provided insights into the content of the intervention to be helpful for local families incorporating an understanding of the cultural background of the local community that must be included alongside our understanding of the feeding impairment.

  19. Prevention of behavior problems in a selected population: Stepping stones triple P for parents of young children with disabilities.

    PubMed

    Shapiro, Cheri J; Kilburn, Janice; Hardin, James W

    2014-11-01

    Because young children with disabilities are at elevated risk for development of challenging behaviors, and caregivers of these children typically lack access to evidence-based parenting interventions, two randomized trials were conducted to examine the impact of an evidence-based parenting intervention, Stepping Stones Triple P (SSTP), as a selective preventive intervention. Both studies targeted parents of children under two with a variety of disabilities who were enrolled in the IDEA Part C Early Intervention (EI) system in one state. SSTP was delivered in family homes. In Study One, 49 families were randomly assigned to EI services as usual, with or without SSTP; a 52% attrition rate from treatment was seen. No significant between-group differences were seen aside from a trend toward reduced symptoms of parental depression at follow-up. Intervention group children demonstrated significant decline in behavior problems from post treatment to follow-up, and there was a trend toward improved parenting style in the intervention group during this same time frame. Study Two incorporated a separate workforce intervention for EI service coordinators; 40 families on their caseloads were then randomly assigned to receive EI services as usual with or without SSTP. Attrition from treatment was limited to 20%. No differential impact was seen on child behavior; a trend was noted post-treatment on parent symptoms of depression and on the observed parent-child relationship. At 12-month follow-up, there was a trend favoring improvement in the intervention group in parenting style; statistically significant impact was also seen on the observed quality of the parent-child relationship. SSTP shows promise as a selective preventive intervention for an early intervention population. Reasons for the differential findings between the two studies are explored and suggestions for future research are provided. Copyright © 2014 Elsevier Ltd. All rights reserved.

  20. Marriage, Separation and Beyond: A Longitudinal Study of Families of Children with Intellectual and Developmental Disabilities in a Norwegian Context.

    PubMed

    Tøssebro, Jan; Wendelborg, Christian

    2017-01-01

    This study addresses family structure in families raising a child with disabilities in Norway. The aims are to add to the literature on termination of parental relationships and to explore family research topics that are rarely discussed in disability research, such as cohabitation versus marriage and repartnering. Longitudinal survey data on families of children with intellectual and developmental disabilities who were born 1993-1995 were compared with register data on all families of same-aged children (five waves 1999-2012). Parents of children with disabilities had slightly lower termination rates and formalized their partnerships earlier. Furthermore, the rate of repartnering among divorced/separated mothers of young children with disabilities was similar to that of other mothers but decreases later in the child's life course. Results support the view that findings diverge and are most likely dependent on context. © 2015 The Authors. Journal of Applied Research in Intellectual Disabilities Published by John Wiley & Sons Ltd.

  1. Autism awareness in children and young people: surveys of two populations.

    PubMed

    Dillenburger, K; Jordan, J-A; McKerr, L; Lloyd, K; Schubotz, D

    2017-08-01

    Increasingly, pupils on the autism spectrum are educated in inclusive mainstream classrooms. However, they often experience social isolation and bullying, and raising the awareness of autism in peers has been suggested as a remedy. In order to assess autism awareness in peers, autism-related questions were included in two large-scale surveys: the Kids Life and Times survey for 11-year olds and the Young Life and Times survey for 16-year olds; a total of n = 3353 children and young people completed the surveys. Autism awareness was higher for the teenagers (80%) than for the younger children (50%). Many of the children knew someone with autism (50%) and generally reported positive and supportive attitudes. Self-reported prevalence of autism was 3.1% for teenagers and 2.7% for the younger children. Peers recognised bullying as a problem and were willing to help. Children and young people have good levels of awareness and knowledge about autism and reported positive attitudes towards peers with autism and are willing to help those who are bullied. A higher than expected number of children and young people self-reported being on the autism spectrum. These findings bode well for peer-mediated support strategies for inclusive education. © 2017 MENCAP and International Association of the Scientific Study of Intellectual and Developmental Disabilities and John Wiley & Sons Ltd.

  2. Perspectives of Young Adults with Disabilities on Leadership

    ERIC Educational Resources Information Center

    Carter, Erik W.; Swedeen, Beth; Walter, Martha J.; Moss, Colleen K.; Hsin, Ching-Ting

    2011-01-01

    Increasingly, researchers have linked greater self-determination capacities to improved postsecondary outcomes for youth with disabilities. Although leadership is one component of self-determination, little is known about how youth and young adults with disabilities define, develop, and demonstrate leadership. In this qualitative interview study,…

  3. School's Out: Pathways for Young People with Intellectual Disabilities from Out-of-Area Residential Schools or Colleges

    ERIC Educational Resources Information Center

    Heslop, P.; Abbott, D.

    2007-01-01

    Background: Previous research, and official guidance, has suggested that planning for the transition between children's and adults' services is failing young people with intellectual disabilities and their families in the UK. Youngsters placed away from home in residential schools or colleges are likely to be at even greater risk of poor…

  4. The prevalence of disability among children: paradigms and estimates.

    PubMed

    Mudrick, Nancy R

    2002-11-01

    Every examination of disability among children must first grapple with definition of disability. The challenges to identifying disability among children involve not only determining the appropriate paradigm for defining disability, but also applying that paradigm to children in a meaningful way. This discussion of the prevalence of disability among children starts by examining the various paradigms utilized to identify disability and how they are interpreted when applied to children. Estimates of the prevalence of childhood disability, under different definitions of disability are presented. The goal of the discussion is to illustrate the sensitivity of the estimates of disability prevalence to the particular definition and data set used. Finally, the potential influence of the choice of paradigm on further measurement and service delivery is outlined.

  5. Children with intellectual disability and hospice utilization

    PubMed Central

    Lindley, Lisa C.; Colman, Mari Beth; Meadows, John T.

    2016-01-01

    Over 42,000 children die each year in the United States, including those with intellectual disability (ID). Survival is often reduced when children with intellectual disability also suffer from significant motor dysfunction, progressive congenital conditions, and comorbidities. Yet, little is known about hospice care for children with intellectual disability. The purpose of this study was to explore the relationship between intellectual disability and hospice utilization. Additionally, we explored whether intellectual disability combined with motor dysfunction, progressive congenital conditions, and comorbidities influenced pediatric hospice utilization. Using a retrospective cohort design and data from the 2009 to 2010 California Medicaid claims files, we conducted a multivariate analysis of hospice utilization. This study shows that intellectual disability was negatively related to hospice enrollment and length of stay. We also found that when children had both intellectual disability and comorbidities, there was a positive association with enrolling in hospice care. A number of clinical implications can be drawn from the study findings that hospice and palliative care nurses use to improve their clinical practice of caring for children with ID and their families at end of life. PMID:28260997

  6. Long-term outcome after arterial ischemic stroke in children and young adults.

    PubMed

    Goeggel Simonetti, Barbara; Cavelti, Ariane; Arnold, Marcel; Bigi, Sandra; Regényi, Mária; Mattle, Heinrich P; Gralla, Jan; Fluss, Joel; Weber, Peter; Hackenberg, Annette; Steinlin, Maja; Fischer, Urs

    2015-05-12

    To compare long-term outcome of children and young adults with arterial ischemic stroke (AIS) from 2 large registries. Prospective cohort study comparing functional and psychosocial long-term outcome (≥2 years after AIS) in patients who had AIS during childhood (1 month-16 years) or young adulthood (16.1-45 years) between January 2000 and December 2008, who consented to follow-up. Data of children were collected prospectively in the Swiss Neuropediatric Stroke Registry, young adults in the Bernese stroke database. Follow-up information was available in 95/116 children and 154/187 young adults. Median follow-up of survivors was 6.9 years (interquartile range 4.7-9.4) and did not differ between the groups (p = 0.122). Long-term functional outcome was similar (p = 0.896): 53 (56%) children and 84 (55%) young adults had a favorable outcome (modified Rankin Scale 0-1). Mortality in children was 14% (13/95) and in young adults 7% (11/154) (p = 0.121) and recurrence rate did not differ (p = 0.759). Overall psychosocial impairment and quality of life did not differ, except for more behavioral problems among children (13% vs 5%, p = 0.040) and more frequent reports of an impact of AIS on everyday life among adults (27% vs 64%, p < 0.001). In a multivariate regression analysis, low Pediatric NIH Stroke Scale/NIH Stroke Scale score was the most important predictor of favorable outcome (p < 0.001). There were no major differences in long-term outcome after AIS in children and young adults for mortality, disability, quality of life, psychological, or social variables. © 2015 American Academy of Neurology.

  7. Violence exposure among children with disabilities.

    PubMed

    Sullivan, Patricia M

    2009-06-01

    The focus of this paper is children with disabilities exposed to a broad range of violence types including child maltreatment, domestic violence, community violence, and war and terrorism. Because disability research must be interpreted on the basis of the definitional paradigm employed, definitions of disability status and current prevalence estimates as a function of a given paradigm are initially considered. These disability paradigms include those used in federal, education, juvenile justice, and health care arenas. Current prevalence estimates of childhood disability in the U.S. are presented within the frameworks of these varying definitions of disability status in childhood. Summaries of research from 2000 to 2008 on the four types of violence victimization addressed among children with disabilities are presented and directions for future research suggested.

  8. Rasch analysis of the Pediatric Evaluation of Disability Inventory-computer adaptive test (PEDI-CAT) item bank for children and young adults with spinal muscular atrophy.

    PubMed

    Pasternak, Amy; Sideridis, Georgios; Fragala-Pinkham, Maria; Glanzman, Allan M; Montes, Jacqueline; Dunaway, Sally; Salazar, Rachel; Quigley, Janet; Pandya, Shree; O'Riley, Susan; Greenwood, Jonathan; Chiriboga, Claudia; Finkel, Richard; Tennekoon, Gihan; Martens, William B; McDermott, Michael P; Fournier, Heather Szelag; Madabusi, Lavanya; Harrington, Timothy; Cruz, Rosangel E; LaMarca, Nicole M; Videon, Nancy M; Vivo, Darryl C De; Darras, Basil T

    2016-12-01

    In this study we evaluated the suitability of a caregiver-reported functional measure, the Pediatric Evaluation of Disability Inventory-Computer Adaptive Test (PEDI-CAT), for children and young adults with spinal muscular atrophy (SMA). PEDI-CAT Mobility and Daily Activities domain item banks were administered to 58 caregivers of children and young adults with SMA. Rasch analysis was used to evaluate test properties across SMA types. Unidimensional content for each domain was confirmed. The PEDI-CAT was most informative for type III SMA, with ability levels distributed close to 0.0 logits in both domains. It was less informative for types I and II SMA, especially for mobility skills. Item and person abilities were not distributed evenly across all types. The PEDI-CAT may be used to measure functional performance in SMA, but additional items are needed to identify small changes in function and best represent the abilities of all types of SMA. Muscle Nerve 54: 1097-1107, 2016. © 2016 Wiley Periodicals, Inc.

  9. Long-term follow-up of young children with brain tumors after irradiation

    DOE Office of Scientific and Technical Information (OSTI.GOV)

    Syndikus, I.; Tait, D.; Ashley, S.

    1994-11-15

    Young children with brain tumors are at high risk of developing late sequelae after curative radiotherapy. A retrospective study was undertaken to determine the frequency and severity of neurological deficits, endocrine dysfunction, and intellectual disabilities. One hundred and fifty-six children age {ge} 3 years were treated between 1952 and 1986 with radiotherapy. Of the 57 survivors, 47 had surgery, 12 chemotherapy and 24 children received cranio-spinal radiotherapy. Late radiation side effects were assessed with a clinical examination, blood tests and an interview. The median follow-up was 13 years and the actuarial survival at 5 and 10 years was 49% andmore » 44%, respectively. No, or only a mild, handicap was noted in 24 patients, while 21 had moderately severe and 16 severe disabilities. Children with supratentorial tumors had more abnormal neurological findings compared to those with infratentorial malignancies (p<0.001). Eighty percent of children had endocrine abnormalities, which were more marked in children with parasellar tumors (p<0.001). Twenty-one children were mentally retarded. In a multivariate analysis epilepsy emerged as the only significant variable independently associated with poor cognitive function. Long-term morbidity was found to be disabling in 58% of the surviving children. These findings encourage the development of treatment strategies designed to reduce toxity. 34 refs., 3 figs., 5 tabs.« less

  10. Predictors of Work Participation of Young Adults with Mild Intellectual Disabilities

    ERIC Educational Resources Information Center

    Holwerda, Anja; van der Klink, Jac J. L.; de Boer, Michiel R.; Groothoff, Johan W.; Brouwer, Sandra

    2013-01-01

    Individuals with intellectual disabilities (ID) are three to four times less often employed compared to their non-disabled peers. Evidence for factors associated with work participation of young adults with ID is limited. Furthermore, studies on predictors for sustainable work participation among young adults with ID is lacking altogether.…

  11. Increasing Social Behaviors in Young Children with Social-Communication Delays in a Group Arrangement in Preschool

    ERIC Educational Resources Information Center

    Lane, Justin D.; Gast, David L.; Ledford, Jennifer R.; Shepley, Collin

    2017-01-01

    Young children with disabilities are less likely to display age-appropriate social behaviors than same-age peers with typical social development, especially children who display social-communication delays. In this study, two concurrently operating single case designs were used to evaluate the use of progressive time delay (PTD) to teach children…

  12. Gender differences in abused children with and without disabilities.

    PubMed

    Sobsey, D; Randall, W; Parrila, R K

    1997-08-01

    Two questions were posed: (1) What are the proportions of boys and girls in various categories of substantiated child abuse? (2) Do the gender proportions differ for children with and without disabilities? Data collected by previous researchers from a demographically representative sample of U.S. child abuse reporting districts was analyzed. This included 1,249 case files involving 1,834 children. The number of girls and boys who did and did not have disabilities was identified for three age categories and for several categories of abuse. Chi-square analyses were used to determine whether there was a relationship between disability and gender for the various age and abuse categories. More boys were physically abused and neglected, but more girls were sexually abused. Boys with disabilities, however, were over-represented in all categories of abuse. Moreover, gender proportions among abused children with disabilities differed significantly from those found among other abused children. Although slightly more than half of abused children without disabilities were girls, 65% of abused children with disabilities were boys. Boys represented a significantly larger proportion of physically abused, sexually abused, and neglected children with disabilities than would be expected from their respective proportion of abused and neglected children without disabilities. Several possible explanations for the observed gender and disability status interaction are discussed.

  13. The Effects of a Home-Based Intervention for Young Children with Intellectual Disabilities in Vietnam

    ERIC Educational Resources Information Center

    Shin, J. Y.; Nhan, N. V.; Lee, S. -B.; Crittenden, K. S.; Flory, M.; Hong, H. T. D.

    2009-01-01

    Background: This study was conducted to examine the impact of a 1-year intervention for children with intellectual disabilities (ID) in Vietnam. Method: Subjects were 30 preschool-aged children with ID (ages 3 to 6 years). Sixteen were assigned to an intervention group and 14 to a control group. Based on the Portage Curriculum (CESA 5 2003), the…

  14. The Effects of Relationship Focused Intervention on Korean Parents and Their Young Children with Disabilities

    ERIC Educational Resources Information Center

    Kim, Jeong Mee; Mahoney, Gerald

    2005-01-01

    This study was conducted to examine the impact of Relationship Focused Intervention (RFI) on a sample of Korean mothers and their preschool-aged children with disabilities. Subjects were 18 mothers of children with developmental problems (ages 3-8 years). Ten of these mothers were assigned to an RFI Treatment group and eight to a No RFI Control…

  15. Sleep and Cognitive Functioning in Children with Disabilities

    ERIC Educational Resources Information Center

    Buckhalt, Joseph A.

    2013-01-01

    Sleep disorders and sleep of insufficient duration and quality have been associated with impaired cognitive functioning in typically developing children and in children with a wide array of disabilities and medical conditions. Among children with disabilities, those with intellectual disability, attention deficit hyperactivity disorder, and autism…

  16. Openness and avoidance--a longitudinal study of fathers of children with intellectual disability.

    PubMed

    Boström, P K; Broberg, M

    2014-09-01

    Fathers' interactions with children who have intellectual disabilities (ID) or developmental delays (DD) have increased over the past few decades and may be expected to continue to increase as maternal and paternal roles, along with other gender roles, become more equal. The aim of the present study was to explore fathers' experiences of parenthood in relation to a child with ID/DD from the initial discovery of the disability to 5 years later. Fathers' experiences of parenting children with ID/DD were explored in a longitudinal framework. Seven Swedish fathers of young children with ID/DD participated in a series of semi-structured interviews from 2005 to 2010, and their accounts were subjected to interpretative phenomenological analysis. The analysis revealed three themes: (1) An interrupted path - no longer taking things for granted, which describes the fathers' reactions to their children's diagnosis; (2) Being a good father, which describes the fathers' overall perceptions of their parenting of a child with ID/DD; and (3) Dealing with the unexpected, which describes fathers' individual ways of integrating, managing, and living with the knowledge of their child's disability over the 5 years during which fathers were interviewed. Fathers' individual paths need to be taken into consideration when offering psychological support to families of children with ID/DD. © 2013 MENCAP and International Association of the Scientific Study of Intellectual and Developmental Disabilities and John Wiley & Sons Ltd.

  17. Mental Health Problems in Children and Young People with Learning Disabilities

    ERIC Educational Resources Information Center

    Moradi Sheykhjan, Tohid

    2015-01-01

    We all have mental health. Mental health relates to how we think, feel, behave and interact with other people. At its simplest, good mental health is the absence of a mental disorder or mental health problem. Adults, children and young people with good mental health are likely to have high levels of mental wellbeing. The World Health Organisation…

  18. Psychometric Evaluation of the Young Children's Participation and Environment Measure (YC-PEM) for use in Singapore.

    PubMed

    Lim, Chun Yi; Law, Mary; Khetani, Mary; Rosenbaum, Peter; Pollock, Nancy

    2018-08-01

    To estimate the psychometric properties of a culturally adapted version of the Young Children's Participation and Environment Measure (YC-PEM) for use among Singaporean families. This is a prospective cohort study. Caregivers of 151 Singaporean children with (n = 83) and without (n = 68) developmental disabilities, between 0 and 7 years, completed the YC-PEM (Singapore) questionnaire with 3 participation scales (frequency, involvement, and change desired) and 1 environment scale for three settings: home, childcare/preschool, and community. Setting-specific estimates of internal consistency, test-retest reliability, and construct validity were obtained. Internal consistency estimates varied from .59 to .92 for the participation scales and .73 to .79 for the environment scale. Test-retest reliability estimates from the YC-PEM conducted on two occasions, 2-3 weeks apart, varied from .39 to .89 for the participation scales and from .65 to .80 for the environment scale. Moderate to large differences were found in participation and perceived environmental support between children with and without a disability. YC-PEM (Singapore) scales have adequate psychometric properties except for low internal consistency for the childcare/preschool participation frequency scale and low test-retest reliability for home participation frequency scale. The YC-PEM (Singapore) may be used for population-level studies involving young children with and without developmental disabilities.

  19. Dental care in children with developmental disabilities: attention deficit disorder, intellectual disabilities, and autism.

    PubMed

    Charles, Jane M

    2010-01-01

    The Federal government reports that 13% of Americans between birth and 18 years of old meet the definition of a child with special health care needs. These children and young adults present unique challenges for both pediatric and general dentists to provide access to the oral health care system--establishing a treatment plan for those with unique medical, behavioral and dental needs and maintaining oral health over the lifetime. The purpose of this article was to describe the characteristics of 3 common developmental disabilities and the challenges these issues present to the oral health care practitioner.

  20. Communication Module. Technology in the Classroom, Applications and Strategies for the Education of Children with Severe Disabilities.

    ERIC Educational Resources Information Center

    Blackstone, Sarah W.

    This training module is part of a series that provides a basic introduction to using assistive technology with young children (ages 2 to 7) who have severe disabilities in more than one area of development. This module focuses on technology that gives children another way to communicate when speaking is difficult or impossible. The module presents…

  1. Career Interests and Self-Estimated Abilities of Young Adults with Disabilities

    ERIC Educational Resources Information Center

    Turner, Sherri; Unkefer, Lesley Craig; Cichy, Bryan Ervin; Peper, Christine; Juang, Ju-Ping

    2011-01-01

    The purpose of this study was to ascertain vocational interests and self-estimated work-relevant abilities of young adults with disabilities. Results showed that young adults with both low incidence and high incidence disabilities have a wide range of interests and self-estimated work-relevant abilities that are comparable to those in the general…

  2. Filicide-suicide involving children with disabilities.

    PubMed

    Coorg, Rohini; Tournay, Anne

    2013-06-01

    Filicide-suicide, or murder of a child by a parent followed by suicide, has an unknown incidence in both the general and disabled population. As there is no national database, the authors examined known associated factors and newspaper reports to characterize filicide-suicide victims and perpetrators involving children with disabilities. A newspaper search was conducted using LexisNexis and NewsBank: Access World News databases through the University of California, Irvine Library's Web site. Age, gender of child and parent, method used, and diagnoses of parent and child were recorded. Twenty-two news articles were found describing a total of 26 disabled children as victims of filicide-suicide between 1982 and 2010. Eighty-one percent of children killed were male, and 54% were autistic. Thirty percent of perpetrators had a reported mental illness. Male children or children with autism may be at risk for filicide-suicide, but accurate record keeping is needed to determine the incidence and risk factors and aid in its prevention in the disabled population.

  3. Maltreatment of children with disabilities: the breaking point.

    PubMed

    Murphy, Nancy

    2011-08-01

    The maltreatment of children with disabilities is a serious public health issue. Children with disabilities are 3 to 4 times more likely to be abused or neglected than are their typically developing peers. When maltreated, they are more likely to be seriously injured or harmed. As alarming as these numbers are, they likely underestimate the problem. Children with disabilities encounter all 4 types of abuse: physical, sexual, neglect, and emotional. Here, the author discusses risk factors associated with the maltreatment of children with disabilities, which, as expected, include both child and family factors.

  4. Meeting the Needs of Children with Disabilities

    ERIC Educational Resources Information Center

    Aron, Laudan Y.; Loprest, Pamela J.

    2007-01-01

    Seldom do the needs of children with disabilities divide neatly along program lines. Instead, children and their families navigate a large, complex, and fragmented array of programs with inconsistent eligibility standards, application procedures, and program goals. "Meeting the Needs of Children with Disabilities" examines these programs, focusing…

  5. 45 CFR 1310.22 - Children with disabilities.

    Code of Federal Regulations, 2011 CFR

    2011-10-01

    ... 45 Public Welfare 4 2011-10-01 2011-10-01 false Children with disabilities. 1310.22 Section 1310... SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES THE ADMINISTRATION FOR CHILDREN, YOUTH AND FAMILIES, HEAD START PROGRAM HEAD START TRANSPORTATION Special Requirements § 1310.22 Children with disabilities. (a...

  6. 45 CFR 1310.22 - Children with disabilities.

    Code of Federal Regulations, 2013 CFR

    2013-10-01

    ... 45 Public Welfare 4 2013-10-01 2013-10-01 false Children with disabilities. 1310.22 Section 1310... SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES THE ADMINISTRATION FOR CHILDREN, YOUTH AND FAMILIES, HEAD START PROGRAM HEAD START TRANSPORTATION Special Requirements § 1310.22 Children with disabilities. (a...

  7. 45 CFR 1310.22 - Children with disabilities.

    Code of Federal Regulations, 2014 CFR

    2014-10-01

    ... 45 Public Welfare 4 2014-10-01 2014-10-01 false Children with disabilities. 1310.22 Section 1310... SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES THE ADMINISTRATION FOR CHILDREN, YOUTH AND FAMILIES, HEAD START PROGRAM HEAD START TRANSPORTATION Special Requirements § 1310.22 Children with disabilities. (a...

  8. 45 CFR 1310.22 - Children with disabilities.

    Code of Federal Regulations, 2010 CFR

    2010-10-01

    ... 45 Public Welfare 4 2010-10-01 2010-10-01 false Children with disabilities. 1310.22 Section 1310... SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES THE ADMINISTRATION FOR CHILDREN, YOUTH AND FAMILIES, HEAD START PROGRAM HEAD START TRANSPORTATION Special Requirements § 1310.22 Children with disabilities. (a...

  9. 45 CFR 1310.22 - Children with disabilities.

    Code of Federal Regulations, 2012 CFR

    2012-10-01

    ... 45 Public Welfare 4 2012-10-01 2012-10-01 false Children with disabilities. 1310.22 Section 1310... SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES THE ADMINISTRATION FOR CHILDREN, YOUTH AND FAMILIES, HEAD START PROGRAM HEAD START TRANSPORTATION Special Requirements § 1310.22 Children with disabilities. (a...

  10. Common visual problems in children with disability

    PubMed Central

    Salt, Alison; Sargent, Jenefer

    2014-01-01

    Children with disability are at a substantially higher risk of visual impairment (VI) (10.5% compared with 0.16%) but also of ocular disorders of all types, including refractive errors and strabismus. The aetiology of VI in children with disability reflects that of the general population and includes cerebral VI, optic atrophy, as well as primary visual disorders such as retinal dystrophies and structural eye anomalies. VI and other potentially correctable ocular disorders may not be recognised without careful assessment and are frequently unidentified in children with complex needs. Although assessment may be more challenging than in other children, identifying these potential additional barriers to learning and development may be critical. There is a need to develop clearer guidelines, referral pathways and closer working between all professionals involved in the care of children with disability and visual disorders to improve our focus on the assessment of vision and outcomes for children with disability. PMID:25165073

  11. Using an Epidemiological Approach to Examine Outcomes Affecting Young Children with Down Syndrome and Their Families

    ERIC Educational Resources Information Center

    Hodapp, Robert M.; Urbano, Richard C.; So, Stephanie A.

    2006-01-01

    In this paper, we utilise an approach drawn from the field of epidemiology to explore what is known and unknown about young children with Down syndrome and their families. After describing what we mean by an epidemiological approach, we review basic findings for children with intellectual disabilities, as well as challenges to performing such…

  12. Child's Challenging Behaviour Scale, Version 2 (CCBS-2): Psychometric Evaluation With Young Children.

    PubMed

    Bourke-Taylor, Helen; Pallant, Julie; Cordier, Reinie

    In this article, we evaluate psychometric properties of the Child's Challenging Behaviour Scale, Version 2 (CCBS-2) with mothers of young, typically developing children. A cross-sectional mail survey with Australian mothers (N = 337) included the CCBS-2, the Depression Anxiety Stress Scales, and the Parents' Evaluation of Developmental Status scale. Internal consistency was good, and no gender differences in CCBS-2 scores were significant. Significant results included differences between CCBS-2 scores: among children grouped according to age, among children grouped according to pre- and post-school entry, among mothers grouped according to extent of any symptom type, and between this sample and a previously collected age-matched sample of children with disabilities. Of the properties tested, results support sound psychometrics. The CCBS-2 can be used to differentiate children according to age, school entry, and disability as well as to identify families for potential services in behavior management and mental health. Copyright © 2017 by the American Occupational Therapy Association, Inc.

  13. The Sydney playground project--levelling the playing field: a cluster trial of a primary school-based intervention aiming to promote manageable risk-taking in children with disability.

    PubMed

    Bundy, Anita C; Wyver, Shirley; Beetham, Kassia S; Ragen, Jo; Naughton, Geraldine; Tranter, Paul; Norman, Richard; Villeneuve, Michelle; Spencer, Grace; Honey, Anne; Simpson, Judith; Baur, Louise; Sterman, Julia

    2015-11-14

    Providing children and adults with opportunities to engage in manageable risk taking may be a stepping stone toward closing the gap in life conditions currently experienced by young people with disabilities. We aim to demonstrate the effectiveness of a simple, innovative program for 1) changing the way parents and teachers view manageable risk-taking for children with disabilities and 2) increasing the level of responsibility that children take for their own actions, as seen on the school playground. We will employ a cluster repeated measures trial with six Sydney-area primary-school-based programs for children with disabilities. The intervention comprises two arms. 1) Risk-reframing--teachers and parents will participate together in small group intervention sessions focusing on the benefits of manageable risk-taking; 2) Introduction of play materials--materials without a defined purpose and facilitative of social cooperation will be introduced to the school playground for children to use at all break times. A control period will be undertaken first for two school terms, followed by two terms of the intervention period. Outcome measures will include playground observations, The Coping Inventory, qualitative field notes, and The Tolerance of Risk in Play Scale. New national programs, such as Australia's National Disability Insurance Scheme, will place increasing demands on young people with disabilities to assume responsibility for difficult decisions regarding procuring services. Innovative approaches, commencing early in life, are required to prepare young people and their carers for this level of responsibility. This research offers innovative intervention strategies for promoting autonomy in children with disabilities and their carers. Australian and New Zealand Clinical Trials Registration Number ACTRN12614000549628 (registered 22/5/2014).

  14. Fathers of children with disabilities: stress and life satisfaction.

    PubMed

    Darling, Carol A; Senatore, Natalie; Strachan, John

    2012-10-01

    As the role of fathers within families continues to evolve, understanding how these changes impact life satisfaction is needed. This is especially relevant for fathers who have children with disabilities; therefore, this study sought to understand the group differences between fathers of children with and without disabilities. A survey design was used that involved 85 fathers of children with disabilities and 121 fathers of children without disabilities. Analyses indicated that fathers of children with disabilities experienced greater stress in daily parenting hassles, family life events and changes, parenting stress and health stress. In comparison, fathers with children who did not have disabilities had a higher level of coping and greater satisfaction with life. A path-analysis model based on family stress theory indicated that whether or not fathers had children who were disabled was a major contributor to life satisfaction followed by parenting stress and stress from family life events and changes. These findings provide implications for future research and practice. Copyright © 2011 John Wiley & Sons, Ltd.

  15. Triadic Gaze Intervention for Young Children with Physical Disabilities

    PubMed Central

    Olswang, Lesley B.; Dowden, Patricia; Feuerstein, Julie; Greenslade, Kathryn; Pinder, Gay Lloyd; Fleming, Kandace

    2018-01-01

    Purpose This randomized controlled study investigated whether a supplemental treatment designed to teach triadic gaze (TG) as a signal of coordinated joint attention (CJA) would yield a significantly greater increase in TG in the experimental versus control group. Method Eighteen 10- to 24-month-old children with severe motor impairments were randomly assigned to an experimental (n=9) or control group (n=9). For approximately 29 sessions over 17 weeks, experimental participants received TG treatment twice weekly with a speech-language pathologist (SLP) in addition to standard practice. Controls received only standard practice from birth-to-three therapists. Coders masked to group assignment coded TG productions with an unfamiliar SLP at baseline, every three weeks during the experimental phase, and at the final measurement session. Results TG increased across groups from baseline to final measurement, with the experimental group showing slightly greater change. Performance trends were examined using experimental phase moving averages. Comparisons revealed significant differences between groups at two time points (at 12 weeks, r= .30, a medium effect and at the end of the phase r=.50, large effect). Conclusion Results suggest the promise of a short-term, focused treatment to teach TG as a behavioral manifestation of CJA to children with severe physical disabilities. PMID:24686825

  16. Setting research priorities to improve the health of children and young people with neurodisability: a British Academy of Childhood Disability-James Lind Alliance Research Priority Setting Partnership

    PubMed Central

    Morris, Christopher; Simkiss, Doug; Busk, Mary; Morris, Maureen; Allard, Amanda; Denness, Jacob; Janssens, Astrid; Stimson, Anna; Coghill, Joanna; Robinson, Kelly; Fenton, Mark; Cowan, Katherine

    2015-01-01

    Objectives To engage young people, parent carers and clinicians in a systematic process to identify and prioritise research questions regarding ways to improve the health and well-being of children and young people with neurodisability. Design British Academy of Childhood Disability (BACD)-James Lind Alliance research priority setting partnership bringing together patients, carers and clinicians as equal stakeholders. Setting UK health service and community. Methods The BACD Strategic Research Group formed the partnership. A Steering Group was established; charity and professional partner organisations were recruited. Suggestions were gathered in an open survey and from research recommendations for statutory guidance. Items were aggregated to formulate indicative research questions and verified as uncertainties from research evidence. An interim survey was used to rank the questions to shortlist topics. A mixed group of stakeholders discussed the top 25 questions at the final priority setting workshop agreeing a final rank order and the top 10 research priorities. Participants Partner organisations were 13 charities and 8 professional societies. 369 people submitted suggestions (40% non-clinicians). 76 people participated in the interim prioritisation (26 parents, 1 young person, 10 charity representatives, 39 clinicians); 22 took part in the final workshop (3 young people, 7 parents, 3 charity representatives, 9 professionals). Results The top three research priorities related to (1) establishing the optimal frequency and intensity (dose) for mainstream therapies, (2) means for selecting and encouraging use of communication strategies and (3) ways to improve children's attitudes towards disability. The top 10 included evaluating interventions to promote mobility, self-efficacy, mental health, continence, physical fitness, educational inclusion and reduce impacts of sleep disturbance. Conclusions The methodology provided a systematic and transparent process to

  17. Injury prevention for children with disabilities.

    PubMed

    Gaebler-Spira, Deborah; Thornton, Lisa S

    2002-11-01

    Little injury data exists for children who have disabilities. There is an urgent need to address injury prevention and to improve safety standards for this group. Understanding the epidemiology of injuries will allow clinicians to accurately advise patients and their families on individual risks and counsel them in steps to take to reduce those risks. Safety information must be tailored to consider each child's functional impairments. All children who have disabilities are at risk for maltreatment. Open discussion of this problem is warranted given the immensity of the problem. Identifying parental concerns and supporting parents in the use of respite resources are appropriate. For children who have problems in mobility, falls are the number one concern. Collaboration with reliable vendors and therapists that adhere to standards for safe seating is essential for reducing the risk of wheelchair tips and falls. In addition, therapists should be directed to provide mobility training for activities from safe transfers to street crossing in a community setting. Parents should be counseled to approach their child's injury risk based on the child's cognitive and behavioral level rather than their chronological level. Knowledge of the child's developmental quotient or intelligence quotient will also allow the clinician to accurately formulate an injury prevention plan. Many children will always need supervision for tasks that put them in situations of injury risk (i.e., swimming, street crossing, bathing). Sensorineural deficits such as blindness or deafness create significant alterations in negotiating the environment and an increased risk of injury. Awareness of the special needs for fire risk reduction and street safety are critical in this population. The collection of injury data is critical to define the scope of the problem and to influence changes in policy and the development of technical standards. Educational efforts focused on safety should include

  18. Management of cervical spine injuries in young children: lessons learned.

    PubMed

    Smith, Jodi L; Ackerman, Laurie L

    2009-07-01

    Previous studies have shown that the correct use of car safety seats can protect infants and children from vehicular injury. Although child passenger devices are increasingly used in the US, motor vehicle crashes continue to be the leading cause of death and acquired disability in infants and children younger than 14 years of age. These events are likely related, at least in part, to the high percentage of children who are unrestrained or improperly restrained. The authors present 2 cases of severe cervical spine trauma in young children restrained in car safety seats during a motor vehicle crash: 1) a previously healthy 14-month-old girl who was improperly restrained in a forward-facing booster seat secured to the vehicle by a lap belt, and 2) a previously healthy 30-month-old girl who was a rear seat passenger restrained in a car safety seat. This study points out the unique challenges encountered in treating cervical spine injuries in infants and young children, as well as the lessons learned, and emphasizes the significance of continuing efforts to increase family and public awareness regarding the importance of appropriate child safety seat selection and use.

  19. Understanding Pervasive Language Impairment in Young Children: Exploring Patterns in Narrative Language and Functional Communication

    ERIC Educational Resources Information Center

    Waters, Anna Jeddeloh

    2013-01-01

    Research has identified language impairment as a pervasive disability (Bishop & Edmundson, 1987; Greenhalgh & Strong, 2001). Classroom communication behaviors have a role in the maintenance of special education eligibility and functional communication difficulties for young children with language impairment. This paper reviews the…

  20. Perceptions of disability, environmental risk factors and available services among local leaders and parents of young children with disabilities in West Timor, Indonesia.

    PubMed

    Kiling, Indra; Due, Clemence; Li, Dominggus; Turnbull, Deborah

    2018-05-04

    As an underdeveloped region of Indonesia, West Timor faces a significant challenge of childhood disability compounded by environmental risk factors such as poverty, discrimination and stigma, and limited access to basic services. However, very little is currently known about how this important social issue is viewed from the perspective of parents and local leaders, who play an influential role in local society. This research aimed to explore the views of these groups, towards childhood disability, within an environmental risk context. Data were collected via semi-structured interviews and photovoice with 23 parents and 15 local leaders such as a midwife, priest, headmaster and staff from international and local non-government organisations. The results of the study suggest that local culture, including religion has a strong influence on the perceptions of disability and environmental risk factors, while available services are seen by parents as being inaccessible. Implications of the results are presented together with multi-sectoral recommendations for best supporting parents raising children with disabilities in rural areas in low-income jurisdictions such as West Timor. Implications for Rehabilitation Grass-root healthcare providers, such as community health centres in Indonesia should work with community leaders to improve health literacy and awareness on disability Initiatives like inclusive village might eliminate barriers to services such as stigma and distance to health centres Decision-makers should aim to empower religious and cultural figures to provide social support for parents of children with disabilities.

  1. Music in the family: music making and music therapy with young children and their families.

    PubMed

    Wetherick, Donald

    2009-01-01

    Songs and singing games are a healthy part of young children's social, emotional and cognitive development. Such shared music making can facilitate and strengthen relationships between parents and children. Family health workers can encourage carers' informal uses of music with their children. In cases of developmental delay, disability, severe illness or family stress, music can continue to have a significant role in supporting children and parents. In some cases referral to specialist music therapy services may be appropriate for assessment and/or treatment.

  2. Home Literacy Environments of Young Children with Down Syndrome: Findings from a Web-based Survey.

    PubMed

    Al Otaiba, Stephanie; Lewis, Sandra; Whalon, Kelly; Dyrlund, Alison; McKenzie, Amy

    2009-03-01

    Early home literacy experiences, including parent-child book reading, account for a significant amount of childrens' later reading achievement. Yet, there is a very limited research base about the home literacy environments and experiences of children with cognitive disabilities. The purpose of this study is to describe findings from a web-based survey of home literacy environments of young children with Down syndrome. Respondents ( n = 107) were mostly mothers; a majority were well-educated. Findings suggest that respondents gave literacy a higher priority than reported in prior research on children with disabilities. Over 70% of respondents had 50 or more childrens' books and also had literacy materials including flashcards, magnetic letters, and educational videos or computer games. Most parents read to their children and used these literacy materials 10-30 minutes per day. Respondents reported that their children had reached many important early literacy milestones and they also described having relatively ambitious life-long literacy goals for their children. Important implications for research and practice are discussed.

  3. Screening for Autism in Young Children: The Modified Checklist for Autism in Toddlers (M-Chat) and Other Measures

    ERIC Educational Resources Information Center

    Dumont-Mathieu, Thyde; Fein, Deborah

    2005-01-01

    The literature on the importance of early identification and early intervention for children with developmental disabilities such as autism continues to grow. The increased prevalence of autistic spectrum disorders has fostered research efforts on the development and validation of autism-specific screening instruments for use with young children.…

  4. Internet and cell phone usage patterns among young adults with intellectual disabilities.

    PubMed

    Jenaro, Cristina; Flores, Noelia; Cruz, Maribel; Pérez, Ma Carmen; Vega, Vanessa; Torres, Víctor A

    2018-03-01

    The risks and opportunities associated with the use of technologies are of growing research interest. Patterns of technology usage illuminate these opportunities and risks. However, no studies have assessed the usage patterns (frequency, duration, and intensity) and related factors in young people with intellectual disabilities. Questionnaires on Internet and cell phone usage patterns, the Internet Over-Use Scale and the Cell-Phone Over-Use Scale, as well as the Beck Depression Inventory were filled out in one-on-one interviews of 216 youth with intellectual disabilities. Young people with disabilities make more social and recreational rather than educational use of these tools, and show higher rates of excessive use of both technologies than a comparison group of 410 young people without disabilities. Also, their overuse is associated with other unhealthy behaviors. The framework of support needs of people with disabilities should be considered to promote healthy Internet and cell phone use. © 2017 John Wiley & Sons Ltd.

  5. Disabled People in Japanese Community.

    ERIC Educational Resources Information Center

    Kojima, Yoko, Ed.; And Others

    The volume is intended to give readers a glimpse of the day-to-day life of disabled people in Japan. Eight brief papers present life experiences of a mentally retarded preschooler, severely disabled children, a child with muscular dystrophy, a young girl with polio living in the community, visually disabled and recovering mentally ill people…

  6. Young women with disabilities and access to HIV/AIDS interventions in Uganda.

    PubMed

    Nampewo, Zahara

    2017-05-01

    Sexual health and autonomy, and the often violent ways in which these are suppressed, are critical women's human rights issues. The process of ensuring that women enjoy their sexual and reproductive rights, including sexual health and freedom from HIV, is particularly challenging for persons with disabilities and most especially women with disabilities. This paper applies a human rights and gender lens to the sexuality and HIV-related vulnerabilities of young women with disabilities in Uganda. Widespread misperceptions about the sexual behaviours of women with disabilities, exposure to violence and exclusion from health promotion activities and health services, render women with disabilities, particularly young women with disabilities, disproportionately vulnerable to HIV and impede the full realisation of their sexual and reproductive health and rights. While limited protections exist for people with disabilities in Uganda, and some efforts have been made to provide appropriate services, the availability, accessibility, acceptability and quality of health services for this population group remains low, with a deleterious impact on their health and rights. This article calls for measures that strengthen the ability of young women with disabilities to prevent HIV infection and that promote responsiveness of the health system (as well as services in other sectors) to the sexual and reproductive health needs of this population.

  7. Common visual problems in children with disability.

    PubMed

    Salt, Alison; Sargent, Jenefer

    2014-12-01

    Children with disability are at a substantially higher risk of visual impairment (VI) (10.5% compared with 0.16%) but also of ocular disorders of all types, including refractive errors and strabismus. The aetiology of VI in children with disability reflects that of the general population and includes cerebral VI, optic atrophy, as well as primary visual disorders such as retinal dystrophies and structural eye anomalies. VI and other potentially correctable ocular disorders may not be recognised without careful assessment and are frequently unidentified in children with complex needs. Although assessment may be more challenging than in other children, identifying these potential additional barriers to learning and development may be critical. There is a need to develop clearer guidelines, referral pathways and closer working between all professionals involved in the care of children with disability and visual disorders to improve our focus on the assessment of vision and outcomes for children with disability. Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions.

  8. Negotiating Identities: The Lives of Pakistani and Bangladeshi Young Disabled People

    ERIC Educational Resources Information Center

    Islam, Zoebia

    2008-01-01

    Research has generally amalgamated minority ethnic (all called "Asian" or "black") disabled young people's experiences and failed to acknowledge the multiple aspects of Asian and black disabled identities, for example how the combined attributes of race, ethnicity, religion, gender, culture, class and disability shape their…

  9. The Participation of Disabled Children and Young People: A Social Justice Perspective

    ERIC Educational Resources Information Center

    McNeilly, Patricia; Macdonald, Geraldine; Kelly, Berni

    2015-01-01

    There is an increasing expectation that children, young people and their parents should participate in decisions that affect them. This includes decisions about their health and social care and collective or public decisions about the way in which such services are designed, delivered and evaluated. Indeed this has become a policy priority across…

  10. Including Children with Disabilities

    ERIC Educational Resources Information Center

    Mittler, Peter

    2004-01-01

    The inclusion of disabled children in their local schools and communities is part of the universal struggle of disabled people to claim their basic human rights to equality and participation, and to insist on the necessary changes in society and its institutions to make this possible. Although this movement is still in its infancy, reports from…

  11. Through Shared Windows: Outreach Project for Infants, Toddlers, and Children with Developmental Disabilities. Final Report.

    ERIC Educational Resources Information Center

    Harrison, Holly

    This final report describes activities and accomplishments of the Through Shared Windows (TSW) Outreach Project, a 4-year project at the University of New Mexico designed to improve services to young children with disabilities and their families. Three major outcomes were accomplished. First, a Web site was developed that focuses on observational…

  12. Forgotten children? An update on young children in institutions across Europe.

    PubMed

    Hamilton-Giachritsis, Catherine; Browne, Kevin

    2012-12-01

    The worst of institutional care was brought to public attention in Romania during the 1990s when pictures of severely deprived and malnourished children were shown around the world. However, many European countries have high rates of young children in institutions, where the physical care of the child predominates, with social/emotional needs a secondary concern. Yet institutional care is a very poor substitute for positive family care, increasing the risk of development delay, attachment difficulties, neural growth dysfunction and mental health disorders. This article provides an update on a series of projects that have highlighted this issue in Europe, arguing that babies and small children aged less than 3years old, with or without disability, should not be placed in residential care without a parent or primary caregiver. This principle has been discussed by the UN General Assembly (2009) and specific guidelines have been produced for all 193 member states. Copyright © 2012 Elsevier Ltd. All rights reserved.

  13. Factors Related to the Expression of Typical and Atypical Repetitive Movements of Young Children with Intellectual Disability.

    ERIC Educational Resources Information Center

    Wehmeyer, Michael L.

    1994-01-01

    This paper reviews research describing developmentally typical and atypical repetitive motor movements of children with and without disabilities. It then reports findings of a study of nine preschool-aged children with developmental delay and atypical stereotypies. Predictors of repetitive movements included level of functioning, age, ambulation,…

  14. Learning Experiences and Strategies of Parents of Young Children with Developmental Disabilities: Implications for Rehabilitation Professionals.

    PubMed

    Hurtubise, Karen; Carpenter, Christine

    2017-10-20

    To better understand the learning experiences of parents of children with developmental disabilities and the strategies they develop to support their caregiving role. A qualitative secondary analysis of in-depth interviews with parents of children with developmental disability was conducted to better understand parents' learning experiences and the strategies they developed to use this learning in supporting their children. A foundational thematic analysis process was used to identify the main themes, and the interpretive process was influenced by adult education theories. Findings suggest that participants are highly motivated to learn by a need to understand, to do, and to belong. They also demonstrated varying levels of cognitive, affective, and psychomotor learning. Learning style preferences are evident in participants' narratives and in their self-reported learning strategies. Conceptualizing parents, as adult learners, can be helpful in designing clinical interactions and education initiatives. Knowledge of adult learning principles may enable pediatric therapists to better meet the needs of parents and fulfill their information sharing responsibilities.

  15. Head Start Instructional Assistants and Teachers: Culturally Responsive Practice, Children with Disabilities and Ability to Address Each

    ERIC Educational Resources Information Center

    Assaf, Mona M.

    2012-01-01

    This qualitative study examined instructional assistants' (IAs) and teachers' perceptions of culturally responsive and quality instructional practices for young children, especially those from various cultural and linguistic backgrounds and those who might have disabilities from low socioeconomic families, in Head Start classrooms. In…

  16. Anxiety and Depression in Children with Nonverbal Learning Disabilities, Reading Disabilities, or Typical Development

    ERIC Educational Resources Information Center

    Mammarella, Irene C.; Ghisi, Marta; Bomba, Monica; Bottesi, Gioia; Caviola, Sara; Broggi, Fiorenza; Nacinovich, Renata

    2016-01-01

    The main goal of the present study was to shed further light on the psychological characteristics of children with different learning disability profiles aged between 8 and 11 years, attending from third to sixth grade. Specifically, children with nonverbal learning disabilities (NLD), reading disabilities (RD), or a typical development (TD) were…

  17. Working Memory in Children with Reading Disabilities and/or Mathematical Disabilities

    ERIC Educational Resources Information Center

    De Weerdt, Frauke; Desoete, Annemie; Roeyers, Herbert

    2013-01-01

    Elementary school children with reading disabilities (RD; "n" = 17), mathematical disabilities (MD; "n" = 22), or combined reading and mathematical disabilities (RD+MD; "n" = 28) were compared to average achieving (AA; "n" = 45) peers on working memory measures. On all working memory components, 2 (RD vs. no…

  18. Metacognitive reading strategies of children with learning disabilities.

    PubMed

    Nicolielo-Carrilho, Ana Paola; Hage, Simone Rocha de Vasconcellos

    2017-05-15

    to check the use of metacognitive reading strategies in children with learning disabilities and determine whether there is a relationship between their use and text comprehension. the study was conducted on 30 children, aged 8 to 12 years, of both genders, divided into experimental group (EG) - 15 children with learning disabilities; and control group (CG) - 15 children without disability. All children were submitted to the Reading Strategies Scale and Prolec text comprehension subtest. The sample was described in mean, median, minimum and maximum values. Comparative analysis was performed between the groups using the Mann-Whitney test. The degree of correlation between variables was verified by Spearman Correlation Analysis. The significance level was set at 5%. across the total scores of the scale, EG performance was lower in all descriptive measures, with a significant difference compared to CG. The EG achieved a performance close to children without difficulties only in global strategies. The correlation between the use of metacognitive strategies and reading comprehension was positive. children with learning disabilities showed deficits in the use of metacognitive reading strategies when compared to children without learning disabilities. The better the performance in reading strategies, the better textual comprehension was and vice versa, suggesting that metacognitive reading skills contribute to reading comprehension.

  19. Reactivity to stress and the cognitive components of math disability in grade 1 children.

    PubMed

    MacKinnon McQuarrie, Maureen A; Siegel, Linda S; Perry, Nancy E; Weinberg, Joanne

    2014-01-01

    This study investigated the relationship among working memory, processing speed, math performance, and reactivity to stress in 83 Grade 1 children. Specifically, 39 children with math disability (MD) were compared to 44 children who are typically achieving (TA) in mathematics. It is the first study to use a physiological index of stress (salivary cortisol levels) to measure children's reactivity while completing tasks that assess the core components of MD: working memory for numbers, working memory for words, digits backward, letter number sequence, digit span forward, processing speed for numbers and words, block rotation, and math tasks. Grade 1 children with MD obtained significantly lower scores on the letter number sequence and quantitative concepts tasks. Higher levels of reactivity significantly predicted poorer performance on the working memory for numbers, working memory for words, and quantitative concepts tasks for Grade 1 children, regardless of math ability. Grade 1 children with MD and higher reactivity had significantly lower scores on the letter number sequence task than the children with MD and low reactivity. The findings suggest that high reactivity impairs performance in working memory and math tasks in Grade 1 children, and young children with high reactivity may benefit from interventions aimed at lowering anxiety in stressful situations, which may improve learning. © Hammill Institute on Disabilities 2012.

  20. Self-Esteem of Greek Mothers of Children with Intellectual Disabilities.

    ERIC Educational Resources Information Center

    Argyrakouli, Effi; Zafiropoulou, Maria

    2003-01-01

    This study examined the self-esteem of 50 mothers of children with intellectual disabilities living in central Greece and 50 similar mothers of non-disabled children. Results indicated significantly lower self-esteem for mothers of children with intellectual disabilities. The best predictor of positive maternal self-esteem in the disabled group…

  1. The inhibition capacities of children with mathematical disabilities.

    PubMed

    Censabella, Sandrine; Noël, Marie-Pascale

    2008-01-01

    Several authors have argued that mathematical disabilities might result from difficulties in inhibiting irrelevant information. The present study addresses this issue by assessing three inhibition functions in 40 ten-year-old children: suppression of irrelevant information from working memory, inhibition of prepotent responses, and interference control. We found no significant differences between children with math disabilities and typically achieving controls, or between children with arithmetic facts disabilities and children with above-average arithmetic facts skills. These findings, along with other empirical evidence and with theoretical considerations, cast doubt on the inhibition deficit hypothesis.

  2. Transferring Young People with Profound Intellectual and Multiple Disabilities from Pediatric to Adult Medical Care: Parents' Experiences and Recommendations

    ERIC Educational Resources Information Center

    Bindels-de Heus, Karen G. C. B.; van Staa, AnneLoes; van Vliet, Ingeborg; Ewals, Frans V. P. M.; Hilberink, Sander R.

    2013-01-01

    Many children with profound intellectual and multiple disabilities (PIMD) now reach adulthood. The aim of this study was to elicit parents' experiences with the transfer from pediatric to adult medical care. A convenience sample of 131 Dutch parents of young people with PIMD (16--26 years) completed a web-based questionnaire. Twenty-two percent of…

  3. Multilevel linear modelling of the response-contingent learning of young children with significant developmental delays.

    PubMed

    Raab, Melinda; Dunst, Carl J; Hamby, Deborah W

    2018-02-27

    The purpose of the study was to isolate the sources of variations in the rates of response-contingent learning among young children with multiple disabilities and significant developmental delays randomly assigned to contrasting types of early childhood intervention. Multilevel, hierarchical linear growth curve modelling was used to analyze four different measures of child response-contingent learning where repeated child learning measures were nested within individual children (Level-1), children were nested within practitioners (Level-2), and practitioners were nested within the contrasting types of intervention (Level-3). Findings showed that sources of variations in rates of child response-contingent learning were associated almost entirely with type of intervention after the variance associated with differences in practitioners nested within groups were accounted for. Rates of child learning were greater among children whose existing behaviour were used as the building blocks for promoting child competence (asset-based practices) compared to children for whom the focus of intervention was promoting child acquisition of missing skills (needs-based practices). The methods of analysis illustrate a practical approach to clustered data analysis and the presentation of results in ways that highlight sources of variations in the rates of response-contingent learning among young children with multiple developmental disabilities and significant developmental delays. Copyright © 2018 The Author(s). Published by Elsevier Ltd.. All rights reserved.

  4. Understanding Parent Advocacy during the Transition to School of Children with Developmental Disabilities: Three Canadian Cases

    ERIC Educational Resources Information Center

    Hutchinson, Nancy L.; Pyle, Angela; Villeneuve, Michelle; Dods, Jennifer; Dalton, C. J.; Minnes, Patricia

    2014-01-01

    Research has shown the benefits of parent involvement for student participation in education. Parent advocacy is a critical form of involvement by parents for children who are young, have disabilities, and are making transitions. Studies have classified forms of parent advocacy but have not illuminated the components necessary for effective parent…

  5. Children with an Intellectual Disability

    MedlinePlus

    ... in areas such as neurology (the nervous system), psychology, psychiatry, special education, hearing, speech and vision, and ... may be victims of bullying in school and social settings. Adolescents and young adults with intellectual disabilities ...

  6. [The informational support of statistical observation related to children disability].

    PubMed

    Son, I M; Polikarpov, A V; Ogrizko, E V; Golubeva, T Yu

    2016-01-01

    Within the framework of the Convention on rights of the disabled the revision is specified concerning criteria of identification of disability of children and reformation of system of medical social expertise according international standards of indices of health and indices related to health. In connection with it, it is important to consider the relationship between alterations in forms of the Federal statistical monitoring in the part of registration of disabled children in the Russian Federation and classification of health indices and indices related to health applied at identification of disability. The article presents analysis of relationship between alterations in forms of the Federal statistical monitoring in the part of registration of disabled children in the Russian Federation and applied classifications used at identification of disability (International classification of impairments, disabilities and handicap (ICDH), international classification of functioning, disability and health (ICF), international classification of functioning, disability and health, version for children and youth (ICF-CY). The intersectorial interaction is considered within the framework of statistics of children disability.

  7. Training Adults with an Autism Spectrum Disorder to Conduct Discrete-Trial Training for Young Children with Autism: A Pilot Study

    ERIC Educational Resources Information Center

    Lerman, Dorothea C.; Hawkins, Lynn; Hoffman, Rachel; Caccavale, Mia

    2013-01-01

    We evaluated a behavioral skills training program for adults with autism spectrum disorder and mild or no intellectual disabilities who were interested in learning the skills used by behavior therapists to work with young children with autism and other developmental disabilities. Four adults, aged 21 to 30 years, participated. We trained each…

  8. [Community trajectories of mentally ill and intellectually disabled young people].

    PubMed

    Fleury, Marie-Josée; Grenier, Guy

    2013-01-01

    In the context of reforms in the field of disability, this study documents the trajectories and mechanisms of support for young people with mental illness or intellectual disability or pervasive developmental disorders, during the teen-adult life transition period; andfactorsfostering or impeding this transition for their maintenance in an everyday environment, particularly in SESSAD (special education and home care service) and the SAMSAH/ SPAC (medico-social support for adults with disabilities/support services in social life). This study was conducted in the French department of Seine-et-Marne. It was supported by a mixed call for tenders, in which 77 respondents (professionals, families and users), and 26 organizations were consulted. The study shows that few young adults in SAMSAH/SPAC programmes are derived from SESSAD, and they encounter major difficulties living in an everyday environment, particularly during the transition period. Clinical or socio-economic factors related to the profiles of users or healthcare service organization facilitate or hinder the inclusion of young people in an everyday environment. Support for users was also often limited to followup over a suboptimal period, and was hampered by insufficient networking within the regional healthcare system. On the other hand, empowerment of users and their optimal inclusion in an everyday environment, as founding principles of the reform, constitute major action priorities for healthcare structures. Strengthening services for young people (16-25 years), including integration strategies, is recommended in order to establish an integrated network of services in the field of disability.

  9. Stress among Mothers of Children with Intellectual Disabilities in Urban India: Role of Gender and Maternal Coping

    ERIC Educational Resources Information Center

    John, Aesha

    2012-01-01

    Background: The study assessed stress among mothers of young children with intellectual disabilities in urban India and examined the extent to which child functioning and maternal coping predict maternal stress. Through qualitative analyses, the study identified negative and positive dimensions of Indian mothers' caregiving experiences. Materials…

  10. Violence Exposure among Children with Disabilities

    ERIC Educational Resources Information Center

    Sullivan, Patricia M.

    2009-01-01

    The focus of this paper is children with disabilities exposed to a broad range of violence types including child maltreatment, domestic violence, community violence, and war and terrorism. Because disability research must be interpreted on the basis of the definitional paradigm employed, definitions of disability status and current prevalence…

  11. Environmental Design for Young Children.

    ERIC Educational Resources Information Center

    Frank, Mary, Ed.

    1977-01-01

    The special issue of the journal, Children in Contemporary Society, contains 17 brief articles on environmental design for young handicapped and normal children. Articles have the following titles: "Introduction", "Environmental Design and Architecture", "Why Is Environmental Design Important to Young Children", "Children's Hospital National…

  12. Variation at local government level in the support for families of severely disabled children and the factors that affect it.

    PubMed

    Forsyth, Rob; McNally, Richard; James, Peter; Crossland, Kevin; Woolley, Mark; Colver, Allan

    2010-11-01

    The aim of this study was to examine geographical variability in the support for families caring for children with severe disabilities as well as the relationships between this variability and local government social and educational performance indicators. Data were collected from a cross-sectional, self-completed postal survey of the families of 5862 children and young people (aged 0-24 y, mean 10 y 7 mo; 68% male) with severe disabilities resulting in a variety of impairments (21% with autism spectrum disorders, 16% with learning disabilities,* 13% with emotional and behavioural difficulties, and 13% with cerebral palsy [CP]). Data on the severity of intrinsic impairment were assessed using the Health Utilities Index, and the need for support was assessed from the results of a novel parent-completed questionnaire, the European Child Environment Questionnaire (ECEQ). These responses were related to data published by local authorities on educational and social policy. Higher levels of unmet need and lack of support, as reported by parents of children and young people with severe disabilities, are associated with greater impairment but not with socioeconomic deprivation. After controlling for impairment and diagnosis, variation at local government level is of the order of 1 to 1.5 ECEQ standard deviation scores. The best- and the worst-performing local authorities--in terms of the averages of the 'support' scores reported by their surveyed residents--cluster in urban areas. For children with CP, a positive correlation was found between the reported unmet educational support requirements in each local authority area and rates of mainstream school placement for children with special educational needs. This indicates that the placement of children with disabilities into mainstream schools is associated with reported unmet need (r=0.60; p=0.01). In the case of children with autism spectrum diagnoses, the provision of additional basic educational support in mainstream

  13. Identity Constructions and Transition to Adulthood for Young People with Mild Intellectual Disabilities

    ERIC Educational Resources Information Center

    Midjo, Turid; Aune, Karin Ellingsen

    2018-01-01

    This article explores the self-constructions of young adults with mild intellectual disabilities in talk about their everyday living and how parents and professionals construct young adults with disabilities in talk about their involvement in transition processes. The analysis is related to an interpretive tradition and conducted based on…

  14. List Memory in Young Adults with Language Learning Disability

    ERIC Educational Resources Information Center

    Sheng, Li; Byrd, Courtney T.; McGregor, Karla K.; Zimmerman, Hannah; Bludau, Kadee

    2015-01-01

    Purpose: The purpose of this study was to characterize the verbal memory limitations of young adults with language learning disability (LLD). Method: Sixteen young adults with LLD and 34 age- and education-matched controls with typical language participated in a Deese-Roediger-McDermott (DRM; Deese, 1959; Roediger & McDermott, 1995) list…

  15. Opportunities for Young Children to Make Choices in a Model Interdisciplinary and Inclusive Preschool Program

    ERIC Educational Resources Information Center

    Jolivette, Kristine; McCormick, Katherine; McLaren, Elizabeth; Steed, Elizabeth A.

    2009-01-01

    The provision of choice making is frequently cited as an indicator of developmentally appropriate practice for young children with and without disabilities; however, there is little empirical evidence regarding the rate of delivery of choices within the preschool classroom. The delivery of intervention strategies by a classroom-based…

  16. Children with Disabilities in Disability-Inclusive Disaster Risk Reduction: Focussing on School Settings

    ERIC Educational Resources Information Center

    Ronoh, Steve; Gaillard, J. C.; Marlowe, Jay

    2017-01-01

    Every year, worldwide, disasters affect approximately seven million children with disabilities, highlighting their potential vulnerability. Although there is a growing move internationally to promote the rights of children with disabilities, they still receive little attention from disaster risk reduction (DRR) researchers and policy makers. They…

  17. Effects of an Early Intervention Program on Stress and Teaching Ability of Single Mothers of Young Multiply Impaired Children.

    ERIC Educational Resources Information Center

    Brown, Nancy L.; Bhavnagri, Navaz

    This study examined effects of participation by single mothers (n=23) of young children with multiple disabilities in an early intervention program. It evaluated the mothers' perceived stress in child rearing, perceived ability to teach their children, and any correlation between parental stress and teaching capability. The mothers in the program…

  18. Transportation use patterns of U.S. children and teenagers with disabilities.

    PubMed

    Wheeler, Krista; Yang, Yan; Xiang, Huiyun

    2009-07-01

    Little is known about the differences in disabled and nondisabled children's travel patterns, means of transportation, and problems in getting needed transportation. Data from the 2002 Transportation Availability and Use Survey for Persons with Disabilities (NTAUSPD) were used to make comparisons between children (≤17 years) with disabilities and children without disabilities. Disability was defined as meeting the criteria of at least one of three disability measures: responding yes to any of the national disability questions from the 2000 U.S. Census, meeting provisions in the Americans with Disabilities Act (ADA), or receiving special education. Using χ(2) analysis, comparisons were made across the following variables: sex, age, race, number of days leaving home, residency, household income, and availability of transportation. Children with and without disabilities were also compared in terms of their modes of transportation and destinations. Both children with and without disabilities were included in logistic regression models that considered sociodemographics, disability severity, and types of disability and their associations with the problem of getting needed transportation. Disability severity and types of disability were considered as explanatory variables in separate models because of collinearity. Overall, 6.6% (95% confidence interval [CI], 3.9-10.6) of children with disabilities and 4.2% (95% CI, 2.6-6.7) of children without disabilities reported having trouble getting needed transportation. While they did not differ in their mode of transportation for medical visits, local travel, and long-distance travel, children with disabilities used a bus for school travel more frequently than did children without disabilities (P < .05). The availability of various modes of transportation (personal vehicle, bus, paratransit, train, and taxi) was similar when comparisons were made between the two groups of children. Disability severity was associated with the

  19. Disability Pensions Among Young Adults in Vocational Rehabilitation.

    PubMed

    Myhr, Arnhild; Haugan, Tommy; Espnes, Geir A; Lillefjell, Monica

    2016-03-01

    Lack of work-participation and early disability pensions (DP's) among young adults are increasing public health problems in most western European countries. The present study investigated determinants of early DP in young adults in vocational rehabilitation. Data from 928 young adults (aged 18-40 years) attending a vocational rehabilitation program was linked to DP's recorded in the Norwegian Labor and Welfare Organization registries (1992-2010) and later compared to a group of 65 employees (workers). We used logistic regression to estimate the odds ratio for entitlement to DP following rehabilitation, adjusting for socio-demographical, psychosocial and health-behavior factors. Significant differences in socio-demographical, psychosocial and health-behavior factors were found between the rehabilitation group and workers. A total of 60 individuals (6.5%) were granted a DP during follow-up. Increase in age, teenage parenthood, single status, as well as low education level and not being employed were found to be the strongest independent determinants of DP. Poor social relations (being lone), early childbearing and weak connection to working life contributed to increase in risk of DP's among young adults in vocational rehabilitation, also after adjusting for education level. These findings are important in the prevention of early disability retirements among young adults and should be considered in the development of targeted interventions aimed at individuals particularly at risk of not being integrated into future work lives.

  20. Living with disabled children in Malawi: Challenges and rewards

    PubMed Central

    Barlindhaug, Grete; Umar, Eric; Wazakili, Margaret

    2016-01-01

    Background Rehabilitation personnel need to be sensitive to the cultural aspects that constitute the environment of a disabled child’s family life. Objectives The aim of this study was to gain insight on how families experience parenting of disabled children and how the families experience the support provided by the rehabilitation system in Malawi. Method An anthropological field study combining interviews and observations was conducted in a rural district of Malawi in 2011. Permission was granted to follow four families, and this study presents the stories of two families, whose children have severe disabilities. We used phenomenological and narrative analyses to make sense of the stories. Results The findings indicate that families with disabled children invest time and emphasise care for their disabled children. They feel enriched by their experience despite challenging situations with little support from the rehabilitation services. High standards of care demonstrating positive and moral attitudes have earned these families respect in their communities. Storytelling has created an opportunity for the families to understand and interpret their challenging situation with inherent contextual meaning. Conclusion This study shows that families with disabled children draw on cultural and structural strengths that rehabilitation professionals should be aware of in their support to mothers and other caregivers of children with disabilities. PMID:28730057

  1. Vocal Production of Young Children with Disabilities during Child-Robot Interactions. Social Robots Research Reports, Number 5

    ERIC Educational Resources Information Center

    Dunst, Carl J.; Hamby, Deborah W.; Trivette, Carol M.; Prior, Jeremy; Derryberry, Graham

    2013-01-01

    The effects of a socially interactive robot on the vocalization production of five children with disabilities (4 with autism, 1 with a sensory processing disorder) were the focus of the intervention study described in this research report. The interventions with each child were conducted over 4 or 5 days in the children's homes and involved…

  2. Home Literacy Environments of Young Children with Down Syndrome: Findings from a Web-based Survey

    PubMed Central

    Al Otaiba, Stephanie; Lewis, Sandra; Whalon, Kelly; Dyrlund, Alison; McKenzie, Amy

    2014-01-01

    Early home literacy experiences, including parent-child book reading, account for a significant amount of childrens' later reading achievement. Yet, there is a very limited research base about the home literacy environments and experiences of children with cognitive disabilities. The purpose of this study is to describe findings from a web-based survey of home literacy environments of young children with Down syndrome. Respondents (n = 107) were mostly mothers; a majority were well-educated. Findings suggest that respondents gave literacy a higher priority than reported in prior research on children with disabilities. Over 70% of respondents had 50 or more childrens' books and also had literacy materials including flashcards, magnetic letters, and educational videos or computer games. Most parents read to their children and used these literacy materials 10–30 minutes per day. Respondents reported that their children had reached many important early literacy milestones and they also described having relatively ambitious life-long literacy goals for their children. Important implications for research and practice are discussed. PMID:25249712

  3. 20 CFR 416.906 - Basic definition of disability for children.

    Code of Federal Regulations, 2010 CFR

    2010-04-01

    ... 20 Employees' Benefits 2 2010-04-01 2010-04-01 false Basic definition of disability for children... INCOME FOR THE AGED, BLIND, AND DISABLED Determining Disability and Blindness Definition of Disability § 416.906 Basic definition of disability for children. If you are under age 18, we will consider you...

  4. 20 CFR 416.906 - Basic definition of disability for children.

    Code of Federal Regulations, 2014 CFR

    2014-04-01

    ... 20 Employees' Benefits 2 2014-04-01 2014-04-01 false Basic definition of disability for children... INCOME FOR THE AGED, BLIND, AND DISABLED Determining Disability and Blindness Definition of Disability § 416.906 Basic definition of disability for children. If you are under age 18, we will consider you...

  5. 20 CFR 416.906 - Basic definition of disability for children.

    Code of Federal Regulations, 2011 CFR

    2011-04-01

    ... 20 Employees' Benefits 2 2011-04-01 2011-04-01 false Basic definition of disability for children... INCOME FOR THE AGED, BLIND, AND DISABLED Determining Disability and Blindness Definition of Disability § 416.906 Basic definition of disability for children. If you are under age 18, we will consider you...

  6. 20 CFR 416.906 - Basic definition of disability for children.

    Code of Federal Regulations, 2013 CFR

    2013-04-01

    ... 20 Employees' Benefits 2 2013-04-01 2013-04-01 false Basic definition of disability for children... INCOME FOR THE AGED, BLIND, AND DISABLED Determining Disability and Blindness Definition of Disability § 416.906 Basic definition of disability for children. If you are under age 18, we will consider you...

  7. 20 CFR 416.906 - Basic definition of disability for children.

    Code of Federal Regulations, 2012 CFR

    2012-04-01

    ... 20 Employees' Benefits 2 2012-04-01 2012-04-01 false Basic definition of disability for children... INCOME FOR THE AGED, BLIND, AND DISABLED Determining Disability and Blindness Definition of Disability § 416.906 Basic definition of disability for children. If you are under age 18, we will consider you...

  8. Addressing sexual and reproductive health in adolescents and young adults with intellectual and developmental disabilities.

    PubMed

    Walters, Frinny Polanco; Gray, Susan Hayden

    2018-05-24

    This review provides support for promoting the sexual health of adolescents and young adults with developmental disabilities, and particularly those with intellectual disabilities. It offers guidance for pediatricians on incorporating counseling on sexuality and reproductive healthcare, socially appropriate behavior, and sexual abuse prevention for adolescents and young adults with developmental disabilities into healthcare visits. Additionally, it provides resources for developmentally appropriate sexuality education in the home and community to allow access to the comprehensive sexual and reproductive healthcare patients deserve. Adolescents and young adults with developmental disabilities often do not receive developmentally appropriate sexual health education, and this is associated with poor sexual health outcomes and increased rates of sexual abuse in this population. Pediatricians should discuss sexual health with all patients, including adolescents and young adults with developmental disabilities. They are well suited to provide sexual health education and inform families about appropriate sexual health resources.

  9. Behavioural profile and maternal stress in Greek young children with Williams syndrome.

    PubMed

    Papaeliou, C; Polemikos, N; Fryssira, E; Kodakos, A; Kaila, M; Yiota, X; Benaveli, E; Michaelides, C; Stroggilos, V; Vrettopoulou, M

    2012-11-01

    Williams syndrome (WS) is a genetic disorder causing intellectual disability. Children with WS often exhibit various kinds of maladaptive behaviours that affect their social functioning. In order to determine whether these behaviours are syndrome-specific, it would be necessary to compare children with WS with children with other syndromes as well as to provide data on the socio-emotional profile in WS from a variety of cultures. The present study investigated the behavioural profile and its relation to maternal stress in Greek young children with WS in comparison with young children with Down syndrome and typically developing (TD) children. Participants were 60 mothers, 20 in each syndrome group and 20 in the control group. The three groups were matched for mental age. The behavioural profile of the participants was investigated through the Child Behaviour Checklist (1.5-5 years) and maternal stress through the Parental Stress Index. In accordance with studies in other cultures, it was found that young children with WS received significantly higher rates in emotional problems and anxiety/depression, compared with both children with Down syndrome and TD children. Moreover, mothers of children with WS reported significantly higher scores in the Total Stress index compared with mothers of TD children. However, in contrast with previous studies, only 25% of children with WS fell into the clinical range in the total Child Behavior Checklist score. The consistency of the socio-emotional characteristics of children with WS across cultures and developmental stages implies a strong influence of the genetic phenotype. However, Greek mothers avoided to characterize these behaviours as pathological. Implications of these findings for clinical practice are also discussed. © 2011 Blackwell Publishing Ltd.

  10. Unintentional injuries among Chinese children with different types and severity of disability

    PubMed Central

    Zhu, Huiping; Xiang, Huiyun; Xia, Xin; Yang, Xia; Li, Dan; Stallones, Lorann; Du, Yukai

    2014-01-01

    Purpose Little research has been done in China to study injury in individuals with disability. We investigated impact of type and severity of disability on injury among children with disability in Hubei Province of China. Methods A sample of 1201 children with disability were matched with 1201 healthy children on gender, age, and neighborhood. Disability type and severity were determined using the Chinese national standards. Caregivers were interviewed face-to-face about nonfatal unintentional injuries suffered by the child in the past 12 months prior to the interview. Univariate Chi-square test and logistic regression models were used to investigate association between disability type/severity and nonfatal unintentional injuries. Results Injury rate among children with disability was significantly higher than that among children without disability (10.2% vs. 4.4%; P <.001). Children with multiple disabilities had the highest risk of injury after controlling for confounding variables (OR=4.54; 95% CI=2.82, 7.30; P<.001). The magnitude of the association between disability and injury varied by type and severity of disability. Conclusions The magnitude of the association between the presence or absence of disability in children and their risk of injury was large and significant, regardless of the type or severity of the children's disabilities. PMID:24331162

  11. Melatonin Treatment in Children with Developmental Disabilities.

    PubMed

    Schwichtenberg, A J; Malow, Beth A

    2015-06-01

    Melatonin is commonly recommended to treat sleep problems in children with developmental disabilities. However, few studies document the efficacy and safety of melatonin in these populations. This article reviews recent studies of melatonin efficacy in developmental disabilities. Overall, short treatment trials were associated with a significant decrease in sleep onset latency time for each of the disorders reviewed, with 1 notable exception-tuberous sclerosis. Reported side effects were uncommon and mild. Across disorders, additional research is needed to draw disability-specific conclusions. However, studies to date provide positive support for future trials that include larger groups of children with specific disabilities/syndromes. Copyright © 2015 Elsevier Inc. All rights reserved.

  12. Parent Perception of Two Eye-Gaze Control Technology Systems in Young Children with Cerebral Palsy: Pilot Study.

    PubMed

    Karlsson, Petra; Wallen, Margaret

    2017-01-01

    Eye-gaze control technology enables people with significant physical disability to access computers for communication, play, learning and environmental control. This pilot study used a multiple case study design with repeated baseline assessment and parents' evaluations to compare two eye-gaze control technology systems to identify any differences in factors such as ease of use and impact of the systems for their young children. Five children, aged 3 to 5 years, with dyskinetic cerebral palsy, and their families participated. Overall, families were satisfied with both the Tobii PCEye Go and myGaze® eye tracker, found them easy to position and use, and children learned to operate them quickly. This technology provides young children with important opportunities for learning, play, leisure, and developing communication.

  13. Friendships of Children with Disabilities in the Home Environment.

    ERIC Educational Resources Information Center

    Geisthardt, Cheryl L.; Brotherson, Mary Jane; Cook, Christine C.

    2002-01-01

    Interviews and home observations examined friendships of 28 children (ages 3-10) with disabilities. Children with the greatest amount of contact with friends had disabilities that were mainly physical, while children with behavior problems and cognitive limitations had the fewest peer interactions. Children living in isolated areas had more…

  14. Addressing the Needs of Children With Disabilities Experiencing Disaster or Terrorism.

    PubMed

    Stough, Laura M; Ducy, Elizabeth McAdams; Kang, Donghyun

    2017-04-01

    This paper reviews the empirical literature on psychosocial factors relating to children with disabilities in the context of disaster or terrorism. Research indicates adults with disabilities experience increased exposure to hazards due to existing social disparities and barriers associated with disability status. However, studies on the psychological effects of disaster/terrorism on children with pre-existing disabilities are exceedingly few and empirical evidence of the effectiveness of trauma-focused therapies for this population is limited. Secondary adversities, including social stigma and health concerns, also compromise the recovery of these children post-disaster/terrorism. Schools and teachers appear to be particularly important in the recovery of children with disabilities from disaster. Disasters, terrorism, and war all contribute to increased incidence of disability, as well as disproportionately affect children with pre-existing disabilities. Disaster preparedness interventions and societal changes are needed to decrease the disproportionate environmental and social vulnerability of children with disabilities to disaster and terrorism.

  15. Disabled Children: The Right to Feel Safe

    ERIC Educational Resources Information Center

    Mepham, Sarah

    2010-01-01

    This article explores the fundamental right of disabled children to feel safe and be free from bullying, harassment and abuse. The article proposes that, 20 years since the United Nations Convention on the Rights of the Child, disabled children are still facing barriers to securing this right. The article focuses on recent Mencap research that…

  16. Setting research priorities to improve the health of children and young people with neurodisability: a British Academy of Childhood Disability-James Lind Alliance Research Priority Setting Partnership.

    PubMed

    Morris, Christopher; Simkiss, Doug; Busk, Mary; Morris, Maureen; Allard, Amanda; Denness, Jacob; Janssens, Astrid; Stimson, Anna; Coghill, Joanna; Robinson, Kelly; Fenton, Mark; Cowan, Katherine

    2015-01-28

    To engage young people, parent carers and clinicians in a systematic process to identify and prioritise research questions regarding ways to improve the health and well-being of children and young people with neurodisability. British Academy of Childhood Disability (BACD)-James Lind Alliance research priority setting partnership bringing together patients, carers and clinicians as equal stakeholders. UK health service and community. The BACD Strategic Research Group formed the partnership. A Steering Group was established; charity and professional partner organisations were recruited. Suggestions were gathered in an open survey and from research recommendations for statutory guidance. Items were aggregated to formulate indicative research questions and verified as uncertainties from research evidence. An interim survey was used to rank the questions to shortlist topics. A mixed group of stakeholders discussed the top 25 questions at the final priority setting workshop agreeing a final rank order and the top 10 research priorities. Partner organisations were 13 charities and 8 professional societies. 369 people submitted suggestions (40% non-clinicians). 76 people participated in the interim prioritisation (26 parents, 1 young person, 10 charity representatives, 39 clinicians); 22 took part in the final workshop (3 young people, 7 parents, 3 charity representatives, 9 professionals). The top three research priorities related to (1) establishing the optimal frequency and intensity (dose) for mainstream therapies, (2) means for selecting and encouraging use of communication strategies and (3) ways to improve children's attitudes towards disability. The top 10 included evaluating interventions to promote mobility, self-efficacy, mental health, continence, physical fitness, educational inclusion and reduce impacts of sleep disturbance. The methodology provided a systematic and transparent process to identify research priorities that included stakeholders that have

  17. Can ICT Give Children with Disabilities Equal Opportunities in School?

    ERIC Educational Resources Information Center

    Brodin, Jane

    2010-01-01

    Opportunities for children with disabilities to participate in school on equal conditions as others are often stressed, while reality shows that many children with disabilities are still segregated. Information and Communication Technology (ICT) has been highlighted as a tool for communication and inclusion for children with disabilities but from…

  18. Is transition to disability pension in young people associated with changes in risk of attempted suicide?

    PubMed

    Mittendorfer-Rutz, E; Alexanderson, K; Westerlund, H; Lange, T

    2014-08-01

    The aim of the present study was to investigate trajectories of suicide attempt risks before and after granting of disability pension in young people. The analytic sample consisted of all persons 16-30 years old and living in Sweden who were granted a disability pension in the years 1995-1997; 2000-2002 as well as 2005-2006 (n = 26,624). Crude risks and adjusted odds ratios for suicide attempt were computed for the 9-year window around the year of disability pension receipt by repeated-measures logistic regressions. The risk of suicide attempt was found to increase continuously up to the year preceding the granting of disability pension in young people, after which the risk declined. These trajectories were similar for women and men and for disability pension due to mental and somatic diagnoses. Still, the multivariate odds ratios for suicide attempts for women and for disability pension due to mental disorders were 2.5- and 3.8-fold increased compared with the odds ratios for men and disability pension due to somatic disorders, respectively. Trajectories of suicide attempts differed for young individuals granted a disability pension during 2005-2006 compared with those granted during 1995-1997 and 2000-2002. We found an increasing risk of suicide attempt up until the granting of a disability pension in young individuals, after which the risk decreased. It is of clinical importance to monitor suicide attempt risk among young people waiting for the granting of a disability pension.

  19. Prevalence and outcomes of heart transplantation in children with intellectual disability.

    PubMed

    Wightman, Aaron; Bartlett, Heather L; Zhao, Qianqian; Smith, Jodi M

    2017-03-01

    Heart transplantation in children with intellectual disability is a controversial issue. We sought to describe the prevalence and outcomes of heart transplantation in children with intellectual disability and hypothesized that recipients with intellectual disability have comparable short-term outcomes compared to recipients without intellectual disability. We performed a retrospective cohort analysis of children receiving a first heart-alone transplant in the UNOS STAR database from 2008 to 2013. Recipients with intellectual disability were compared to those without using chi-square tests. Kaplan-Meier curves were constructed for patient and graft survival. Cox proportional hazard models were used to estimate the association between intellectual disability and graft failure and patient survival. Over the study period, 107 children with intellectual disability underwent initial heart transplantation, accounting for 8.9% of first pediatric heart transplants (total=1204). There was no difference in the incidence of acute rejection between groups in the first year after transplant. Mean functional status scores at follow-up improved in both groups after transplantation, but tended to be lower among children with intellectual disability than children without. Log-rank tests did not suggest significant differences in graft survival between those with and without intellectual disability during the first 4 years following transplantation. Children with intellectual disability constitute a significant portion of total heart transplants with short-term outcomes comparable to children without intellectual disability. © 2016 John Wiley & Sons A/S. Published by John Wiley & Sons Ltd.

  20. Caring for independent lives: geographies of caring for young adults with intellectual disabilities.

    PubMed

    Power, Andrew

    2008-09-01

    This paper engages with the emerging disciplinary clash between 'care' and 'independence' within disability studies by examining the geography of home care for young adults with intellectual disabilities. The care system as a whole is viewed as central to disablist structures within disability studies (see Thomas, C. (2007). Sociologies of disability and illness: Contested ideas in disability studies and medical sociology. Hampshire: Palgrave Macmillan.). However, despite the theorisation of dependency as being in antipathy to the goals of the disability movement, caregiving at home still continues to dominate community care. The paper attempts to address how family carers are 'caught-in-the-middle' between their 'duty' to care and at the same time, perpetuating dependency; the reality being that parents have to deal with issues of being overprotective and confronting various social assumptions about disability. It examines the narratives from 25 family caregivers in Ireland who provide personal assistance to young adults with intellectual disabilities.

  1. Swiss Children's Moral and Psychological Judgments about Inclusion and Exclusion of Children with Disabilities

    ERIC Educational Resources Information Center

    Gasser, Luciano; Malti, Tina; Buholzer, Alois

    2014-01-01

    Children's judgments about inclusion and exclusion of children with disabilities were investigated in a Swiss sample of 6-, 9-, and 12-year-old children from inclusive and noninclusive classrooms (N = 422). Overall, the majority of children judged it as morally wrong to exclude children with disabilities. Yet, participants were less likely to…

  2. Developmental Defects of Enamel in Children with Intellectual Disability.

    PubMed

    Erika, Vesna; Modrić; Verzak, Željko; Karlović, Zoran

    2016-03-01

    To investigate the frequency of developmental defects of enamel (DDE) in children with intellectual disability. Children aged 5-18 years (72 children with intellectual disabilities and 72 controls) were included in the study. All the teeth were screened for developmental defects of enamel using the modified Developmental defects of enamel (mDDE) index. Out of the 72 children with intellectual disabilities in this study, 20 (27.78%) presented dental defects of enamel, compared with 8 (11.11%) of those in the control group, which was considered statistically significant (p = 0.021). The majority of children in both groups had white demarcated opacities. Children in both groups were more likely to have maxillary teeth affected than the mandibular teeth and the asymmetrical demarcated enamel defects were more common than the symmetric ones. Majority of opacities in children in both groups were on the maxillary incisors. Children with intellectual disabilities have more developmental defects of enamel than children in the control group. Enamel defects increase caries risk and cause reduction in enamel mechanical properties leading to restoration failures.

  3. Caregiver burden and sibling relationships in families raising children with disabilities and typically developing children.

    PubMed

    Roper, Susanne Olsen; Allred, Diane W; Mandleco, Barbara; Freeborn, Donna; Dyches, Tina

    2014-06-01

    Using family systems theory as a theoretical framework, we investigated direct and indirect associations between type of disability, caregiver burden, and sibling relationships with structural equation modeling. We recruited 172 families raising typically developing children or a child with a disability. Participants volunteered at meetings and workshops for families of children with disabilities and were also recruited through snowball sampling. Mothers and fathers independently completed self-report questionnaires on caregiver burden and perceptions of the sibling relationship. Mothers experienced higher levels of caregiver burden than fathers. Parents of children with autism reported higher levels of caregiver burden than parents of typically developing children. Mothers of children with Down syndrome and multiple disabilities reported more positive sibling relationships than mothers of typically developing children. Mothers' and fathers' perceptions of caregiver burden were negatively related to their perceptions of the sibling relationship. Caregiver burden mediated the relationship between having a child with autism and positive sibling relationships. Results indicate the benefits of using a systems framework in examining families raising children with disabilities. Future research should focus on interventions for families of children with disabilities that help alleviate parental burden and foster positive sibling relationships.

  4. Nutrition and Young Children.

    ERIC Educational Resources Information Center

    Frank, Mary, Ed.; And Others

    1978-01-01

    The special issue of the journal contains 12 articles on nutrition and young children. The following titles and authors are included: "Overview--Nutritional Needs of Young Children" (M. Scialabba); "Nurturance--Mutually Created--Mother and Child" (M. McFarland); "Feeding the Special Needs Child" (E. Croup); "Maternal and Neonatal Nutrition--Long…

  5. Psychosocial Functioning of Learning-Disabled Children: Replicability of Statistically Derived Subtypes.

    ERIC Educational Resources Information Center

    Fuerst, Darren R.; And Others

    1989-01-01

    Investigated Personality Inventory for Children scores of 132 learning-disabled children between ages of 6 and 12 years. Results indicated that learning-disabled children comprised heterogeneous population in terms of psychosocial functioning and that subtypes of learning-disabled children with similar patterns of socioemotional adjustment can be…

  6. Including Disabled Children in Learning: Challenges in Developing Countries. CREATE Pathways to Access. Research Monograph No. 36

    ERIC Educational Resources Information Center

    Croft, Alison

    2010-01-01

    This is an exploratory study suggesting ways of analysing challenges for developing countries in the move to greater inclusion of disabled children and young people in learning. The paper focuses on pedagogical challenges to realising more inclusive education. Pedagogy encompasses not only the practice of teaching and learning, but also the ideas…

  7. Perception of the Image of a Child and Oneself in the Role of a Mother by Women Parenting Disabled Children

    PubMed Central

    Inevatkina, Svetlana Evgenyevna

    2015-01-01

    The article discusses the role of the parent-child interaction in the development of a young child with disabilities. It mentions possible distortions of the said interaction. In addition, the submitted material contains the results of an empirical study on the structure and content of the image of a child and perception of oneself in the role of a mother by women parenting children with disabilities. PMID:26156936

  8. Physical Disability on Children's Television Programming: A Content Analysis

    ERIC Educational Resources Information Center

    Bond, Bradley J.

    2013-01-01

    Research Findings: Media representations of physical disability can influence the attitudes of child audiences. In the current study, the depiction of physical disability was analyzed in more than 400 episodes of children's television programming to better understand how media depict physical disability to children and, in turn, how exposure may…

  9. The Identification and Development of Talented Young Dancers with Disabilities

    ERIC Educational Resources Information Center

    Aujla, Imogen Jane; Redding, Emma

    2014-01-01

    There is a general recognition of the lack of progression routes for dancers with disabilities. Alongside this, there is a lack of understanding of how best to identify and develop talent among young disabled dancers. The current study sought to address this gap in the literature by investigating criteria that might be appropriately applied when…

  10. Education of Children with Disabilities.

    ERIC Educational Resources Information Center

    Kaye, H. Stephen

    1997-01-01

    This abstract uses graphs and text to summarize recent statistics on the education of children with disabilities based on data from the U.S. Department of Education. It reports that 12.2 percent of students enrolled in American schools in 1993-94 were officially designated as having disabilities. More than two-thirds of students have mental or…

  11. Unintentional injuries in children with disabilities: a systematic review and meta-analysis.

    PubMed

    Shi, Xiuquan; Shi, Junxin; Wheeler, Krista K; Stallones, Lorann; Ameratunga, Shanthi; Shakespeare, Tom; Smith, Gary A; Xiang, Huiyun

    2015-12-01

    Children with disabilities are thought to have an increased risk of unintentional injuries, but quantitative syntheses of findings from previous studies have not been done. We conducted a systematic review and meta-analysis to assess whether pre-existing disability can increase the risk of unintentional injuries among children when they are compared to children without disability. We searched 13 electronic databases to identify original research published between 1 January 1990 and 28 February 2013. We included those studies that reported on unintentional injuries among children with pre-existing disabilities compared with children without disabilities. We conducted quality assessments and then calculated pooled odds ratios of injury using random-effects models. Fifteen eligible studies were included from 24,898 references initially identified, and there was a total sample of 83,286 children with disabilities drawn from the eligible studies. When compared with children without disabilities, the pooled OR of injury was 1.86 (95 % CI 1.65-2.10) in children with disabilities. The pooled ORs of injury were 1.28, 1.75, and 1.86 in the 0-4 years, 5-9 years, and ≥10 years of age subgroups, respectively. Compared with children without disabilities, the pooled OR was 1.75 (95 % CI 1.26-2.43) among those with International Classification of Functioning (ICF) limitations. When disability was defined as physical disabilities, the pooled OR was 2.39 (95 % CI 1.43-4.00), and among those with cognitive disabilities, the pooled OR was 1.77 (95 % CI 1.49-2.11). There was significant heterogeneity in the included studies. Compared with peers without disabilities, children with disabilities are at a significantly higher risk of injury. Teens with disabilities may be an important subgroup for future injury prevention efforts. More data are needed from low- and middle-income countries.

  12. Special or Mainstream? The Views of Disabled Students

    ERIC Educational Resources Information Center

    Shah, Sonali

    2007-01-01

    This article explores the recent policy concerning the education of disabled children and young people, and the debate of special education versus mainstream inclusion propelled by Warnock. It argues that the formal and informal practices, designed by non-disabled adults, to facilitate the inclusion of disabled students in mainstream schools may…

  13. Home literacy environment of pre-school children with intellectual disabilities.

    PubMed

    van der Schuit, M; Peeters, M; Segers, E; van Balkom, H; Verhoeven, L

    2009-12-01

    For pre-school children, the home literacy environment (HLE) plays an important role in the development of language and literacy skills. As there is little known about the HLE of children with intellectual disabilities (ID), the aim of the present study was to investigate the HLE of children with ID in comparison with children without disabilities. Parent questionnaires concerning aspects of the HLE were used to investigate differences between 48 children with ID, 107 children without disabilities of the same chronological age and 36 children without disabilities of the same mental age (MA). Furthermore, for the children with ID, correlations were computed between aspects of the HLE and children's non-verbal intelligence, speech intelligibility, language and early literacy skills. From the results of the multivariate analyses of variance it could be concluded that the HLE of children with ID differed from that of children in the chronological age group on almost all aspects. When compared with children in the MA group, differences in the HLE remained. However, differences mainly concerned child-initiated activities and not parent-initiated activities. Correlation analyses showed that children's activities with literacy materials were positively related with MA, productive syntax and vocabulary age, and book orientation skills. Also, children's involvement during storybook reading was related with their MA, receptive language age, productive syntax and vocabulary age, book orientation and rapid naming of pictures. The amount of literacy materials parents provided was related to a higher productive syntax age and level of book orientation of the children. Parent play activities were also positively related to children's speech intelligibility. The cognitive disabilities of the children were the main cause of the differences found in the HLE between children with ID and children without disabilities. Parents also adapt their level to the developmental level of their

  14. Educational Inclusion in Singapore for Children with Physical Disabilities

    ERIC Educational Resources Information Center

    Yeo, Lay See; Tan, Su-Lynn

    2018-01-01

    Under Singapore's inclusive education policy, children with mild physical disabilities are integrated into mainstream schools. There is currently no known published research yet in Singapore on the outcomes of inclusion for children with physical disabilities. Internationally, recent research had compared the school experience of children with…

  15. Facilitated Playgroups to Promote Speech and Language Skills of Young Children with Communication Delays: A Pilot Study

    ERIC Educational Resources Information Center

    Green, Katherine B.; Towson, Jacqueline A.; Head, Cynthia; Janowski, Brittany; Smith, Laura

    2018-01-01

    Family-centered practices that build caregiver capacity are a central focus of early intervention services for young children with disabilities. The purpose of this study was to evaluate the feasibility of adapting the "Parents Interacting with Infants" (PIWI) facilitated playgroup model to target effective communication strategies for…

  16. Community Involvement of Young Adults with Intellectual Disabilities: Their Experiences and Perspectives on Inclusion.

    PubMed

    Hall, Sarah A

    2017-09-01

    Inclusion in the community is essential to enhancing a person's quality of life. Although people with intellectual disabilities have a desire to be more involved in activities, they experience barriers that limit their inclusion. The purpose of this study was to describe the community involvement of young adults with intellectual disability. I interviewed fourteen young adults with intellectual disability to explore their involvement in work, recreation and leisure activities. Four themes emerged from the data: vocational endeavours, leisure pursuits, social inclusion and supports. The contexts of their experiences either facilitated or hindered their community involvement. The community involvement of young adults with intellectual disability varies depending on the opportunities and supports available to them. Their inclusion in the community may be enhanced by additional transportation options, continuing education in vocational and social skills, personalized guidance from group members and environments that are welcoming to people with disabilities. © 2016 John Wiley & Sons Ltd.

  17. Twenty-Five Year Survival of Children with Intellectual Disability in Western Australia.

    PubMed

    Bourke, Jenny; Nembhard, Wendy N; Wong, Kingsley; Leonard, Helen

    2017-09-01

    To investigate survival up to early adulthood for children with intellectual disability and compare their risk of mortality with that of children without intellectual disability. This was a retrospective cohort study of all live births in Western Australia between January 1, 1983 and December 31, 2010. Children with an intellectual disability (n = 10 593) were identified from the Western Australian Intellectual Disability Exploring Answers Database. Vital status was determined from linkage to the Western Australian Mortality database. Kaplan-Meier product limit estimates and 95% CIs were computed by level of intellectual disability. Hazard ratios (HRs) and 95% CIs were calculated from Cox proportional hazard regression models adjusting for potential confounders. After adjusting for potential confounders, compared with those without intellectual disability, children with intellectual disability had a 6-fold increased risk of mortality at 1-5 years of age (adjusted HR [aHR] = 6.0, 95%CI: 4.8, 7.6), a 12-fold increased risk at 6-10 years of age (aHR = 12.6, 95% CI: 9.0, 17.7) and a 5-fold increased risk at 11-25 years of age (aHR = 4.9, 95% CI: 3.9, 6.1). Children with severe intellectual disability were at even greater risk. No difference in survival was observed for Aboriginal children with intellectual disability compared with non-Aboriginal children with intellectual disability. Although children with intellectual disability experience higher mortality at all ages compared with those without intellectual disability, the greatest burden is for those with severe intellectual disability. However, even children with mild to moderate intellectual disability have increased risk of death compared with unaffected children. Copyright © 2017 Elsevier Inc. All rights reserved.

  18. Predictors of Depression and Musculoskeletal Disorder Related Work Disability Among Young, Middle-Aged, and Aging Employees.

    PubMed

    Ervasti, Jenni; Mattila-Holappa, Pauliina; Joensuu, Matti; Pentti, Jaana; Lallukka, Tea; Kivimäki, Mika; Vahtera, Jussi; Virtanen, Marianna

    2017-01-01

    The aim of this study was to investigate the level and predictors of work disability in different age groups. We followed young (18 to 34 years), middle-aged (35 to 50 years), and aging (>50 years) employees (n = 70,417) for 7 years (2005 to 2011) for all-cause and cause-specific work disability (sickness absence and disability pension). Using negative binomial regression, we obtained both relative risk estimates and absolute rates, that is, days of work disability per person-year. The greatest relative difference in all-cause, and specifically depression-related work disability, was between young women and young men, and between employees with low versus high levels of education. Aging employees with a low education and chronic somatic disease had the highest levels of musculoskeletal disorder related work disability. The predictors of work disability vary by age and diagnosis. These results help target age-specific measures for the prevention of permanent work disability.

  19. The Needs of Children with Disabilities. A Comprehensive View.

    ERIC Educational Resources Information Center

    Healy, Alfred

    The monograph offers an overview of the history of health care for children with disabilities. Health goals for the disabled child are considered and a systems model discussed that views health care services as part of the child's total service needs. Routine and specialized health care needs of disabled children are covered, and service areas…

  20. Moving On: Transitions out of Care for Young People with Learning Disabilities in England and Sweden

    ERIC Educational Resources Information Center

    Roberts, Helen; Ingold, Anne; Liabo, Kristin; Manzotti, Grazia; Reeves, David; Bradby, Hannah

    2018-01-01

    Background: Young people with learning disabilities are frequently underrepresented in research accounts. This study describes the experiences of young people moving from the care system. Methods: We scoped the English and Swedish literature for first-hand accounts and interviewed four young people with learning disabilities leaving the English…

  1. The Role of Parental Expectations in Understanding Social and Academic Well-Being among Children with Disabilities in Ireland

    ERIC Educational Resources Information Center

    McCoy, Selina; Maître, Bertrand; Watson, Dorothy; Banks, Joanne

    2016-01-01

    This paper draws on longitudinal data to examine the extent to which parents' educational expectations shape academic development and changes in self-concept among young people with different types of disability. The analysis is based on the "Growing Up in Ireland" longitudinal study, which tracked 7423 children between the primary to…

  2. Supporting the Transition into Employment: A Study of Canadian Young Adults Living with Disabilities.

    PubMed

    Jetha, Arif; Bowring, Julie; Furrie, Adele; Smith, Frank; Breslin, Curtis

    2018-04-25

    Objective To examine the job accommodation and benefit needs of young adults with disabilities as they transition into employment, and their perceived barriers to meeting support needs. Methods An online survey was conducted of 155 Canadian young adults with disabilities (mean age = 25.8 years). Respondents were either employed or seeking employment, and were asked about their need for health benefits, and soft (e.g., flexible scheduling) and hard accommodations (e.g., ergonomic interventions), and perceived accommodation barriers. Disability characteristics (e.g., disability type), demographic details and work context information were collected. Multivariable logistic analyses were conducted to examine the factors associated with a greater need for health benefits and hard and soft accommodations. Result Participants reported having a physical (79%), psychological (79%) or cognitive/learning disability (77%); 68% had > 1 disability. Over half (55%) were employed. Health benefits and soft accommodations were most needed by participants. Also, an average of six perceived accommodation barriers were indicated; difficulty with disability disclosure was most frequently reported. More perceived accommodation barriers were associated with a greater need for health benefits (OR 1.17, 95% CI 1.04-1.31) and soft accommodations (OR 1.13, 95% CI 1.01-1.27). A psychological disability was a associated with a greater need for health benefits (OR 2.91, 95% CI 1.09-7.43) and soft accommodations (OR 3.83, 95% CI 1.41-10.42). Discussion Employers can support the employment of young adults with disabilities through provision of extended health benefits and soft accommodations. Addressing accommodation barriers could minimize unmet workplace need, and improve employment outcomes for young adults with disabilities as they begin their career and across the life course.

  3. Meeting the communication support needs of children and young people with intellectual disabilities in the Bolivian Andes.

    PubMed

    Buell, Susan; Chadwick, Darren

    2017-09-01

    Services available for people with disabilities in Bolivia tend to be fragmented and costly. Children and adults with intellectual disabilities are more likely to have a related communication disability and are thus both literally and metaphorically excluded from having a voice. The following research aimed to explore the experiences of accessing services by people with communication disabilities in Bolivia through semi-structured interviews and one focus group carried out with family members, professionals, service providers, educators and policymakers. It aimed to establish the nature of current services in Bolivia where knowledge, information and resources are scarce. Findings indicated the need to consider an alternative to a medical model approach through a focus on empowering other stakeholders to participate more fully in meeting communication support needs. Conclusions plot ideas for future service delivery and emphasize the central power of sharing practical and expert knowledge.

  4. Care needs of children with disabilities - Use of the Pediatric Evaluation of Disability Inventory

    PubMed Central

    Teles, Fernanda Moreira; Resegue, Rosa; Puccini, Rosana Fiorini

    2016-01-01

    Abstract Objective: To describe the care needs reported by caregivers of children with disabilities going through the school inclusion process using the Pediatric Evaluation of Disability Inventory. Methods: Cross-sectional study with 181 children aged 7-10 years with physical or mental disabilities, undergoing the inclusion process in elementary school in 2007. Location: 31 schools of the Regional Education Board-District of Penha, East Side the city of São Paulo. The children's care needs according to the caregivers were assessed in three areas-self-care, mobility and social function, using the Pediatric Evaluation of Disability Inventory, according to the following score: 5, Independent; 4, Supervision; 3, Minimum Assistance; 2, Moderate Assistance; 1, Maximum Assistance and 0, Total Assistance. For statistical analysis, we used Student's t-test and analysis of variance (ANOVA), with p<0.05 being statistically significant. Results: The lower means, with statistically significant differences, were observed for the items related to social function (55.8-72.0), followed by self-care functions (56.0-96.5); for all types of disabilities, except for children with physical disabilities, who had lower means for self-care (56.0) and mobility (63.8). Conclusions: Social function was the area referred to as the one that needed a higher degree of assistance from the caregiver and the Pediatric Evaluation of Disability Inventory is a tool that can help identify these needs and develop a more targeted intervention. PMID:27080218

  5. 20 CFR 416.924 - How we determine disability for children.

    Code of Federal Regulations, 2010 CFR

    2010-04-01

    ... 20 Employees' Benefits 2 2010-04-01 2010-04-01 false How we determine disability for children. 416....924 How we determine disability for children. (a) Steps in evaluating disability. We consider all... requirement, we will find that you are not disabled. (b) If you are working. If you are working and the work...

  6. Self-Esteem and Facial Attractiveness among Learning Disabled Children.

    ERIC Educational Resources Information Center

    Anderson, Lisa K.; And Others

    Past research has demonstrated a relationship between children's physical attractiveness and their self-esteem. Other research has found that learning disabled children are at risk for having low self-esteem. This study examined the relationship between self-esteem and facial attractiveness in learning disabled children. Subjects were 20 diagnosed…

  7. Speech and Language Disorders in Children with Intellectual Disability.

    ERIC Educational Resources Information Center

    Georgieva, Dobrinka; Cholakova, Maya

    This study of 148 Bulgarian children with mild intellectual disabilities investigated the incidence of various types of speech and language disorders in children with intellectual disabilities. A questionnaire was given to the parents and relatives of the children requiring information about the pupils' pre-, peri-, and early postnatal…

  8. Children's moral judgments and moral emotions following exclusion of children with disabilities: relations with inclusive education, age, and contact intensity.

    PubMed

    Gasser, Luciano; Malti, Tina; Buholzer, Alois

    2013-03-01

    We investigated relations between children's moral judgments and moral emotions following disability-based exclusion and inclusive education, age, and contact intensity. Nine- and 12-year-old Swiss children (N=351) from inclusive and noninclusive classrooms provided moral judgments and moral emotion attributions following six vignettes about social exclusion of children with disabilities. Children also reported on their level of sympathy towards children with disabilities and their contact intensity with children with disabilities. Overall, children condemned disability-based exclusion, attributed few positive emotions to excluder targets, and expressed high sympathy for children with disabilities, independent of age and educational setting. However, younger children from inclusive classrooms exhibited more moral judgments and moral emotions than younger children from noninclusive classrooms. Moreover, children who expressed high sympathy towards children with disabilities were more likely to report frequent contact with children with disabilities. The findings extend existing research on social exclusion by examining disability-based exclusion and are discussed with respect to developmental research on social and moral judgments and emotions following children's inclusion and exclusion decisions. Copyright © 2012 Elsevier Ltd. All rights reserved.

  9. Young Athletes: A Special Olympics Motor Skill Development Program

    ERIC Educational Resources Information Center

    Favazza, Paddy C.; Siperstein, Gary N.

    2013-01-01

    While motor skills develop naturally among most typically developing preschoolers, young children with disabilities often experience deficits in this area. Therefore, it is important that children with disabilities are provided with "direct and intentional instruction" for motor skill development during the preschool years. One program…

  10. Naturally Occurring Opportunities for Preschool Children with or without Disabilities To Make Choices.

    ERIC Educational Resources Information Center

    Jolivette, Kristine; Stichter, Janine Peck; Sibilsky, Sara; Scott, Terrance M.; Ridgley, Robyn

    2002-01-01

    A study involving 14 preschool children (7 with disabilities) found that the children with disabilities were provided with more choices than the children without disabilities. Children both with and without disabilities, however, initiated choice making opportunities at the same rate. Female children were provided with more opportunities to make…

  11. Melatonin Treatment in Children with Developmental Disabilities

    PubMed Central

    Schwichtenberg, A.J.; Malow, Beth A.

    2015-01-01

    Melatonin is commonly recommended to treat sleep problems in children with developmental disabilities. However, relatively few studies document the efficacy and safety of melatonin in pediatric populations with developmental diagnoses. This chapter reviews recent studies of melatonin efficacy across a wide breadth of developmental disabilities. Overall, short treatment trials (1 week to 3 months) of melatonin were associated with a significant decrease in sleep onset latency time for each of the disorders reviewed, with one notable exception, tuberous sclerosis. In general, reported side effects were uncommon and mild in nature. Across disorders, additional research is needed to draw disability-specific conclusions. However, studies to date provide positive support for future trials that include larger groups of children with specific disabilities/syndromes. PMID:26055866

  12. Comparing Participation in Activities among Children with Disabilities

    ERIC Educational Resources Information Center

    Masse, Louise C.; Miller, Anton R.; Shen, Jane; Schiariti, Veronica; Roxborough, Lori

    2012-01-01

    Introduction: Compared to typically developing peers, children with disabilities due to neurodevelopmental disorders and disabilities (NDD/D) and to chronic medical conditions (CMC) have reduced participation in activities. The extent to which these two groups of children have different levels of participation is unknown and was examined in this…

  13. Oral health care utilization in children with disabilities.

    PubMed

    Leroy, Roos; Declerck, Dominique

    2013-11-01

    The objectives of this report were to survey the utilization of oral health care in children and adolescents with disabilities over a 7-year period and to compare these data with the utilization pattern of their peers without disabilities. For most countries, these data have not been published in the international literature so far. The cohort used was the Permanent Sample of Socially Insured Persons, an anonymous representative sample of Belgian residents. The database comprised prospective data on oral and general health care utilization and sociodemographic variables collected from 2002 up to 2008. Data were available from 326 children and adolescents with and 53,589 without disabilities. Dental attendance rates were low in both subgroups: only 50 % had a dental visit in four or more of the seven observation years. Emergency oral and medical care was recorded significantly more often in children with disabilities whereas radiographs, restorations, and orthodontic assessments and treatments more frequently in children without disabilities. The present study demonstrated that dental attendance rates in both subgroups were low and that in those who attended, preventive oral health care was only infrequently attested. Further research is needed to elucidate whether the lower number of radiographs and restorations and the higher number of emergency visits observed in the subgroup with disabilities reflect unmet oral treatment needs. Objective data on health care utilization are essential to enable governments and stakeholders to devise appropriate care and to optimize access to care for persons with disabilities.

  14. Young Children's Understanding of Denial

    ERIC Educational Resources Information Center

    Austin, Keith; Theakston, Anna; Lieven, Elena; Tomasello, Michael

    2014-01-01

    Although a fair amount is known about young children's production of negation, little is known about their comprehension. Here, we focus on arguably the most complex basic form, denial, and how young children understand denial, when it is expressed in response to a question with gesture, single word, or sentence. One hundred twenty-six children in…

  15. An interview study of young adults born to mothers with mild intellectual disability.

    PubMed

    Lindblad, Ida; Billstedt, Eva; Gillberg, Christopher; Fernell, Elisabeth

    2013-12-01

    A group of 10 young adults from a population-based series in Sweden, of originally 42 individuals, born to mothers with mild intellectual disability (ID), were interviewed with regard to their experiences during childhood, adolescence, and their current situation. The interview revealed that 6 of the 10 individuals had been removed from their biological parents during childhood, 6 reported clear child abuse and/or neglect, and 6 individuals had mild ID. The majority of the individuals reported difficulties in their relations with family and in school. The small number of participants (n = 10) who could be personally interviewed reflected the major problems that were encountered in the process of making contact with this group of young individuals. In conclusion, this study adds to other reports that children of mothers with ID constitute an extremely vulnerable group. Therefore, these families need full and continuous attention from the supportive systems in society.

  16. Food security among young adults with disabilities in the United States: Findings from the National Health Interview Survey.

    PubMed

    Brucker, Debra L

    2016-04-01

    Prior research has suggested that young adults with disabilities face economic, health and social disadvantage. Food security, an area of disadvantage that can influence overall health, has not been fully explored for this population. To examine levels of food security between young adults with and without disabilities, controlling for individual characteristics. Logistic regression analysis of a nationally representative sample of young adults (age 18-25) (n = 32,795) with and without disabilities, using pooled data form the 2011-2013 National Health Interview Survey. Young adults with disabilities have significantly higher odds (OR: 2.58, p < 0.001) of living in a household that is food insecure than young adults without disabilities, even when controlling for individual characteristics. Odds of living in a household that is food insecure are particularly high (OR: 5.35, p < 0.001) among young adults with high levels of psychological distress, controlling for other factors. Young adults with disabilities have increased odds of living in a household that is food insecure. This study has important policy and community program implications. Copyright © 2016 Elsevier Inc. All rights reserved.

  17. Reported Wandering Behavior among Children with Autism Spectrum Disorder and/or Intellectual Disability.

    PubMed

    Rice, Catherine E; Zablotsky, Benjamin; Avila, Rosa M; Colpe, Lisa J; Schieve, Laura A; Pringle, Beverly; Blumberg, Stephen J

    2016-07-01

    To characterize wandering, or elopement, among children with autism spectrum disorder (ASD) and intellectual disability. Questions on wandering in the previous year were asked of parents of children with ASD with and without intellectual disability and children with intellectual disability without ASD as part of the 2011 Survey of Pathways to Diagnosis and Services. The Pathways study sample was drawn from the much larger National Survey of Children with Special Health Care Needs conducted in 2009-2010. For children with special healthcare needs diagnosed with either ASD, intellectual disability, or both, wandering or becoming lost during the previous year was reported for more than 1 in 4 children. Wandering was highest among children with ASD with intellectual disability (37.7%) followed by children with ASD without intellectual disability (32.7%), and then children with intellectual disability without ASD (23.7%), though the differences between these groups were not statistically significant. This study affirms that wandering among children with ASD, regardless of intellectual disability status, is relatively common. However, wandering or becoming lost in the past year was also reported for many children with intellectual disability, indicating the need to broaden our understanding of this safety issue to other developmental disabilities. Copyright © 2016 Elsevier Inc. All rights reserved.

  18. Reported Wandering Behavior among Children with Autism Spectrum Disorder and/or Intellectual Disability

    PubMed Central

    Rice, Catherine E.; Zablotsky, Benjamin; Avila, Rosa M.; Colpe, Lisa J.; Schieve, Laura A.; Pringle, Beverly; Blumberg, Stephen J.

    2016-01-01

    Objective To characterize wandering, or elopement, among children with autism spectrum disorder (ASD) and intellectual disability. Study design Questions on wandering in the previous year were asked of parents of children with ASD with and without intellectual disability and children with intellectual disability without ASD as part of the 2011 Survey of Pathways to Diagnosis and Services. The Pathways study sample was drawn from the much larger National Survey of Children with Special Health Care Needs conducted in 2009-2010. Results For children with special healthcare needs diagnosed with either ASD, intellectual disability, or both, wandering or becoming lost during the previous year was reported for more than 1 in 4 children. Wandering was highest among children with ASD with intellectual disability (37.7%) followed by children with ASD without intellectual disability (32.7%), and then children with intellectual disability without ASD (23.7%), though the differences between these groups were not statistically significant. Conclusions This study affirms that wandering among children with ASD, regardless of intellectual disability status, is relatively common. However, wandering or becoming lost in the past year was also reported for many children with intellectual disability, indicating the need to broaden our understanding of this safety issue to other developmental disabilities. PMID:27157446

  19. As If Children Matter: Perspectives on Children, Rights and Disability.

    ERIC Educational Resources Information Center

    Roeher Inst., North York (Ontario).

    This collection of 16 papers attempts to provide a comprehensive overview of the state of children in the nations of the Americas. The collection's five sections examine children's rights, perspectives of five parents from five different nations, children with disabilities in the legal system, promoting the rights of children through social…

  20. Reflections on Meeting the Needs of Children with Disabilities in Ethiopia

    ERIC Educational Resources Information Center

    Kurtz, Kimberly M.; Shepherd, Terry L.

    2011-01-01

    In many countries, children with disabilities seldom receive the educational services they need. Economic instability has often forced a reduction in services for children with disabilities. Cultural values have also impacted support for children with disabilities. A special education residential facility in Ethiopia that serves orphaned children…

  1. Parenting Children with Disabilities: Navigating through the Storms

    ERIC Educational Resources Information Center

    Costantino, Margaret

    2010-01-01

    Parenting children with disabilities means coming to terms with feelings of loss and grief and balancing these with hope and resilience. Drawing from personal experiences as a parent with two disabled children, the author refers to elements of Schlossberg's model of transition, Herman's writings about trauma and recovery, and elements of…

  2. [Impact of children with multiple disabilities on families in Abidjan].

    PubMed

    N Dri, Koumé Mathias; Yaya, Issifou; Zigoli, Robertine; Endemel Ayabakan, François; Ipou, Stéphane Yves; Lambert Moke, Botty

    A child's multiple disabilities have a major impact on families in both developed and developing countries. In Côte d'Ivoire, very few data are available concerning the real experiences of families of children with multiple disabilities. The objective of this study was to improve our knowledge of the impact of children with multiple disabilities on families in Côte d'Ivoire. A qualitative study was conducted among the families consulting the Child Guidance Centre of the National Institute of Public Health in Abidjan. Data were collected in May 2015 by semi-structured individual interviews with mothers of children with multiple disabilities. Twenty mothers of multiply disabled children between the ages of 2 and 14 years were interviewed. The child's multiple disability was found to have a negative impact on finances, health, and social life. Health check-ups, treatment and transport are the main additional costs. Mothers suffer from insomnia, fatigue, back pain and anxiety and were often held responsible for their child's disability. A disabled child was a source of discord in several couples and a cause of school drop-out in some families.This study partially addresses the experiences of families with children with multiple disabilities. It confirms the results of several other studies, highlighting the vulnerability and social dysfunction of these families. The presence of a child with multiple disabilities in a family is a source of psychological, financial and social upheaval. This study raises questions about the impact of multiple disabilities on the whole family and a more detailed analysis of economic aspects.

  3. The Voices of Parents: Post-High School Expectations, Priorities, and Concerns for Children With Intellectual and Developmental Disabilities

    ERIC Educational Resources Information Center

    Blustein, Carly L.; Carter, Erik W.; McMillan, Elise D.

    2016-01-01

    The expectations of parents can shape the post-school pathways of young people with intellectual and developmental disabilities (IDD). Yet little is known about how parents view the employment prospects and priorities of their sons and daughters after high school. We examined expectations, preferences, and concerns of 1,065 parents of children and…

  4. School Adjustment of Children with Observable Disabilities

    ERIC Educational Resources Information Center

    Richman, Lynn; Harper, Dennis

    1978-01-01

    In an investigation of school behavior and achievement of 78 10-to 15-year-old children with observable physical disability, Ss from two different disability types (cleft palate and cerebral palsy) were compared with each other and to a control group in order to determine potential similarities across disability types. (Author/CL)

  5. Cognitive Aging in Parents of Children with Disabilities.

    PubMed

    Song, Jieun; Mailick, Marsha R; Greenberg, Jan S; Ryff, Carol D; Lachman, Margie E

    2016-09-01

    This study examines the cognitive functioning of parents of children with disabilities, specifically, whether there is an evidence of accelerated cognitive aging among these parents. In addition, the study investigates the moderating influences of two variables: parents' gender and stress from negative parenting experience. The analyses utilize data from the National Survey of Midlife in the United States (2005). The analytic sample consisted of two groups of parents, who completed the cognitive battery, the interview, and the mail-back survey: 128 parents who had children with childhood-onset disabilities and 512 matched comparison parents who had only nondisabled children. Age differences in episodic memory were more pronounced among mothers of children with disabilities than among mothers with nondisabled children, especially among mothers with higher levels of negative parenting experience. In contrast, there were no interaction effects of parenting status, age, and negative parenting experience among fathers. The results show that parenting children with disabilities over a prolonged period of time jeopardizes cognitive function (especially memory) among older mothers, possibly via the mechanism of heightened parenting stress due to higher levels of negative parenting experience. © The Author 2015. Published by Oxford University Press on behalf of The Gerontological Society of America. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com.

  6. Examining the Quality of IEPs for Young Children with Autism

    PubMed Central

    McGrew, John; Dalrymple, Nancy; Jung, Lee Ann

    2011-01-01

    The purpose of this study was to develop an Individual Education Program (IEP) evaluation tool based on Individuals with Disabilities Education Act (IDEA) requirements and National Research Council recommendations for children with autism; determine the tool’s reliability; test the tool on a pilot sample of IEPs of young children; and examine associations between IEP quality and school, teacher, and child characteristics. IEPs for 35 students with autism (Mage = 6.1 years; SD = 1.6) from 35 different classrooms were examined. The IEP tool had adequate interrater reliability (ICC = .70). Results identified no statistically significant association between demographics and IEP quality, and IEPs contained relatively clear descriptions of present levels of performance. Weaknesses of IEPs were described and recommendations provided. PMID:20373007

  7. Examining the quality of IEPs for young children with autism.

    PubMed

    Ruble, Lisa A; McGrew, John; Dalrymple, Nancy; Jung, Lee Ann

    2010-12-01

    The purpose of this study was to develop an Individual Education Program (IEP) evaluation tool based on Individuals with Disabilities Education Act (IDEA) requirements and National Research Council recommendations for children with autism; determine the tool's reliability; test the tool on a pilot sample of IEPs of young children; and examine associations between IEP quality and school, teacher, and child characteristics. IEPs for 35 students with autism (Mage = 6.1 years; SD = 1.6) from 35 different classrooms were examined. The IEP tool had adequate interrater reliability (ICC = .70). Results identified no statistically significant association between demographics and IEP quality, and IEPs contained relatively clear descriptions of present levels of performance. Weaknesses of IEPs were described and recommendations provided.

  8. Priorities for children and young people - opportunities and challenges for children and young people's nurses.

    PubMed

    Smith, Fiona

    2016-05-09

    Across Europe children's nurses today face many challenges, including rising childhood obesity, the soaring incidence of issues with the mental health of children and young people, the effects of social media, child maltreatment and the impact of poverty, war and conflict on children and families. There are opportunities for children's nurses to undertake new roles and to influence both policy and practice to improve the health outcomes of children and young people, and thereby the future health of the population.

  9. Young children's harmonic perception.

    PubMed

    Costa-Giomi, Eugenia

    2003-11-01

    Harmony and tonality are two of the most difficult elements for young children to perceive and manipulate and are seldom taught in the schools until the end of early childhood. Children's gradual harmonic and tonal development has been attributed to their cumulative exposure to Western tonal music and their increasing experiential knowledge of its rules and principles. Two questions that are relevant to this problem are: (1) Can focused and systematic teaching accelerate the learning of the harmonic/tonal principles that seem to occur in an implicit way throughout childhood? (2) Are there cognitive constraints that make it difficult for young children to perceive and/or manipulate certain harmonic and tonal principles? A series of studies specifically addressed the first question and suggested some possible answers to the second one. Results showed that harmonic instruction has limited effects on children's perception of harmony and indicated that the drastic improvement in the perception of implied harmony noted approximately at age 9 is due to development rather than instruction. I propose that young children's difficulty in perceiving implied harmony stems from their attention behaviors. Older children have less memory constraints and more strategies to direct their attention to the relevant cues of the stimulus. Younger children focus their attention on the melody, if present in the stimulus, and specifically on its concrete elements such as rhythm, pitch, and contour rather than its abstract elements such as harmony and key. The inference of the abstract harmonic organization of a melody required in the perception of implied harmony is thus an elusive task for the young child.

  10. [A study on incidence of injury and its socio-economic loss in children and young adults].

    PubMed

    Wang, S; Guo, C; Zhang, G; Lu, G; Li, L; Lin, H; Fan, C; Huang, G; Zhou, C; Lu, Y

    2000-07-01

    To study the current status of incidence of injury among children and young adults and the causes of common injuries, and to estimate its socio-economic loss and extent of harmfulness. Pupils in 19 primary and middle schools aged 7 to 18 years, totaling 14,533, were recruited with stratified cluster sampling during 1998 to 1999 in Guangzhou, Maoming, Jiangmen and Shantou. Judgement for injury was based on the following criteria: (1) diagnosed and treated in hospitals or school clinics, (2) a half-day off or more due to injury, and (3) emergency management by pupils' parents or teachers. There were 6 941 pupils suffered from varied injures during the year, with an incidence rate of 47.76% (50.08% for boys and 45.02% for girls). Incidence rate of injury was higher in the middle school pupils (13 - 18 years old, 58.49%) than that in the primary school pupils (7 - 12 years old, 40.08%). The incidence increased significantly with age, with a peak at ages of 13 - 15. Major causes of injuries resulted from falls, injury by sharp articles, collision, traffic injuries and burn/scalds, etc, which usually occurred due to carelessness in sports, playing, walking, bike-riding and working. Frequency of multiple injuries related to the educational level of parents and depended on whether or not an only-child in family. There were 2,173 injured pupils (accounting for 31.3% of the total) visited clinics or emergency department in hospitals and 627 (9.0%) hospitalized for treatment. Twenty-eight percent of the injured pupils were absent from school, with an average absenteeism of 5.6 days. There were 154 injured pupils with transient disability and 53 with permanent disability, with a disability rate of 410.47 per 100,000. Cost for their medical care averaged 81.5 yuan RMB per injured pupil. Injury was a common and frequently-happened incident among children and young adults and could seriously affect their health, development and growth, studying and their future of children and

  11. Dangerous girls and cheating boys: Zulu-speaking disabled young peoples' constructs of heterosexual relationships in Kwazulu-Natal, South Africa.

    PubMed

    Chappell, Paul

    2017-05-01

    Across South Africa there is a growing body of work that explores gender dynamics in heterosexual relationships between young people aged 15-24 years. This is mainly influenced by the high prevalence of HIV and the incidence of intimate partner violence in this age group. Most studies to date have been based upon non-disabled young people, with limited focus on young disabled people. In an attempt to address this gap, this paper describes findings from a study conducted with 22 Zulu-speaking young people with visual and physical disabilities in KwaZulu-Natal. Throughout the findings, young disabled participants appeared to downplay their disability with respect to intimate relationships and accentuated the interweaving of complementary and contentious discourses of gender and cultural identity. Taking cognisance of the intersectionality of gender and cultural discourses, the paper extend constructs of disabled sexualities beyond an exclusive gaze on disability in the South African context.

  12. Head Start Impact on Social-Emotional Outcomes for Children with Disabilities

    ERIC Educational Resources Information Center

    Lee, Kyunghee; Calkins, Andrea; Shin, Tae Seob

    2016-01-01

    Objective: Using the Head Start Impact Study data, this study examines Head Start's impacts on social-emotional outcomes for children with disabilities. Method: Among 4,442 children, 570 children were reported to have disabilities. Ordinary least squares regression was used to determine whether the number of disabilities, having an individualized…

  13. Perspectives of Parent-Child Interaction in Filipino Mothers of Very Young Children with and without Disabilities

    ERIC Educational Resources Information Center

    Santos, Rosa Milagros; McCollum, Jeanette A.

    2007-01-01

    This study was designed to expand understandings about Filipino mothers' daily interactions with their infants and toddlers with and without disabilities. Qualitative procedures were used to analyze transcripts from structured, open-ended interviews with mothers of 10- to 26-month-old children. Three themes were used to characterize and compare…

  14. Making the Case for Early Identification and Intervention for Young Children at Risk for Learning Disabilities

    ERIC Educational Resources Information Center

    Steele, Marcee M.

    2004-01-01

    The early identification of children with learning disabilities (LD) is difficult but can be accomplished. Observation of key behaviors which are indicators of LD by preschool and kindergarten teachers can assist in this process. This early identification facilitates the use of intervention strategies to provide a positive early experience for…

  15. Paid employment of mothers and fathers of an adult child with multiple disabilities.

    PubMed

    Einam, M; Cuskelly, M

    2002-02-01

    Paid employment is increasingly undertaken by mothers as their children age, with the majority of women being in employment by the time their offspring are adult. Opportunities to engage in employment appear to be reduced for mothers of children with disabilities; however, little is known about the employment of mothers or fathers of adults with disabilities. Data were collected regarding the employment decisions of parents of a young adult with multiple disabilities and contrasted with those of parents whose children were all developing normally. Twenty-five mothers and 12 fathers of a young adult with multiple disabilities were interviewed, as were 25 comparison mothers and 19 comparison fathers. Data collected included hours of work, reasons for employment status, attitudes towards work and child care, and psychological well-being. Clear differences were found between the two groups. Mothers and fathers of a child with multiple disabilities showed different engagement patterns with the paid workforce from comparison parents. Hours of work for fathers of a young adult with multiple disabilities showed a bi-modal distribution, with some fathers working fewer hours than usual and others working very long hours. For mothers in both groups, the number of hours in paid employment was negatively associated with reports of psychological problems. Increased attention needs to be given to the employment opportunities of parents of children with disabilities since employment appears to play a protective role for mothers, in particular. Services provided to adults with disabilities will need to change if parents are to have the same life chances as parents without adult offspring with a disability.

  16. Fourth Grade Outcomes of Children with a Preschool History of Developmental Disability

    ERIC Educational Resources Information Center

    Delgado, Christine E. F.

    2009-01-01

    Special education outcomes were evaluated for 3,608 children (2,513 males) with a preschool history of developmental disability. Sixty-six percent of the children had an identified disability in fourth grade. The percentage of children with a disability at outcome varied across preschool disability categories from 54% to 96%. The consistency of…

  17. Communication Problems of Learning Disabled Children.

    ERIC Educational Resources Information Center

    Bryan, Tanis

    The presentation reviews the empirical data concerning the existence and types of language problems experienced by learning disabled (LD) and reading disabled (RD) children. An introductory section provides criteria for classification as LD in research samples and a discussion of research data sources in the field of language assessment. Section…

  18. Health Insurance and Children with Disabilities

    ERIC Educational Resources Information Center

    Szilagyi, Peter G.

    2012-01-01

    Few people would disagree that children with disabilities need adequate health insurance. But what kind of health insurance coverage would be optimal for these children? Peter Szilagyi surveys the current state of insurance coverage for children with special health care needs and examines critical aspects of coverage with an eye to helping policy…

  19. Patterns of Awareness in Children's Understanding of Disabilities.

    ERIC Educational Resources Information Center

    Conant, Susan; Budoff, Milton

    1983-01-01

    Nondisabled children and adults (n=103) were interviewed about their conceptions of blindness, deafness, orthopedic disabilities, mental retardation, and psychological disturbance. In the Guttman scalogram analyses, psychological disturbance was the "most difficult" disability, then mental retardation, then orthopedic disabilities, then…

  20. Cross-Cultural Perspectives on the Classification of Children with Disabilities: Part I. Issues in the Classification of Children with Disabilities

    ERIC Educational Resources Information Center

    Florian, Lani; Hollenweger, Judith; Simeonsson, Rune J.; Wedell, Klaus; Riddell, Sheila; Terzi, Lorella; Holland, Anthony

    2006-01-01

    This article is the first of a 2-part synthesis of an international seminar on the classification of children with disabilities. It synthesizes 6 papers that address broad questions relating to disability classification and categorization, cross-national comparisons on disability in education, the World Health Organization's "International…

  1. Challenges faced by parents of children with learning disabilities in Opuwo, Namibia.

    PubMed

    Taderera, Clever; Hall, Herna

    2017-01-01

    Parenting children with learning disabilities requires a high level of knowledge and access to resources, information and services. In developing countries, however, these resources and services are not always available. Parents in Namibia, a developing country, therefore face challenges addressing children's learning and other developmental disabilities, including challenges related to preventative and supportive interventions. This research focuses on challenges faced by parents as they parent children with learning disabilities in Opuwo, Namibia. In-depth interviews were conducted with eight parents regarding the challenges they face in parenting their children with learning disabilities. Thematic analysis enabled the researchers to identify, analyse and report on themes that emerged from the qualitative interview data. Analysis of the interviews indicated that some participants had only a vague understanding of learning disabilities, as they did not have access to essential knowledge about this phenomenon. They also lacked an awareness of the availability of programmes, services and policies meant to benefit their children with learning disabilities. Participants voiced that they, their children with learning disabilities and community members have stereotypes and prejudices regarding learning disabilities. In this study, most of the children with learning disabilities were raised by single, unemployed parents who seemed to have access to less support from external sources than married couples parenting children with learning disabilities. These single parents are usually not married and because of lack of financial support from the other parent, the majority of them indicated that they struggle to meet the financial and material needs of their children. The researchers concluded that the participants in this study experience a range of challenges in parenting their children with learning disabilities. The main challenges emanate from financial instability, as

  2. The role of perceived family social support and parental solicitous responses in adjustment to bothersome pain in young people with physical disabilities.

    PubMed

    Miró, Jordi; de la Vega, Rocío; Gertz, Kevin J; Jensen, Mark P; Engel, Joyce M

    2017-11-12

    Family social support and parental solicitous responses have been hypothesised to play an important role in paediatric pain. However, research testing the hypothesised associations between these social domains and measures of adjustment to pain in youths with disabilities and chronic pain is non-existent. About 111 youths with physical disabilities and bothersome pain were interviewed and asked to complete measures of average pain intensity, pain interference, family social support, parent solicitous responding, and catastrophising. Children's perceptions of pain-related solicitous responses from their parent/guardian were associated both with more pain interference and greater pain-related catastrophising; perceived social support was negatively associated with pain interference. The findings provide new information regarding the role that psychosocial factors have in predicting function and adjustment, and have important implications as to how youth with physical disabilities with pain might be most effectively treated. Implications for rehabilitation Little is known about the role of perceived family social support or parental solicitous responses in the adjustment to chronic pain in young people with physical disabilities. This study provides new and important findings that have significant theoretical and practical implications that could help to understand and manage function in these patients. Results show that it matters how parents respond to their children with disabilities who have pain, and raise the possibility that interventions which target these responses may result in significant benefits for the children.

  3. A systematic review of disability awareness interventions for children and youth.

    PubMed

    Lindsay, Sally; Edwards, Ashley

    2013-04-01

    Children's lack of knowledge about disability can adversely impact their attitudes toward people with disabilities. The purpose of this study is to review the common elements of effective disability awareness interventions. A systematic review of disability awareness interventions for children and youth was conducted to assess the effective components of these interventions. Electronic searches were conducted using OVID, CENTRAL, PsychInfo, ERIC, Social Science Citation Index, GreyNET Scopus and Google Scholar. The inclusion criteria included (i) an intervention raising awareness about disability, (ii) school-age children with the average age between 5-19 years old, (iii) at least one measurable outcome focusing on knowledge about disability or attitudes towards and/or acceptance of people with a disability and (iv) published article or grey literature. Of the 1031 articles that were identified in the search, 42 met the criteria to be included in the review. We classified the disability awareness interventions into 5 broad types including (i) social contact, (ii) simulation, (iii) curriculum, (iv) multi-media curriculum and (v) multiple components. Thirty-four studies showed an improvement in attitudes towards and/or acceptance of peers with disabilities. Eight of these studies also demonstrated an improvement in knowledge of people with disabilities. Five of the interventions found no support for improving knowledge about, or acceptance of people with disabilities. Disability awareness interventions can successfully improve children's knowledge about and attitudes towards peers with a disability; they should include several different components over multiple sessions. These findings are being used to further develop disability awareness interventions to help improve the social inclusion and participation of children with disabilities within mainstream classrooms.

  4. Hear Our Voice: Parents of Children with Disabilities from Mexico

    ERIC Educational Resources Information Center

    Bauman, Dona C.

    2007-01-01

    This purpose of this study was to examine the perceptions of parents with children with disabilities towards their children and how Mexican society treats their children. Using a focus group with a translator four middle class parents were interviewed about their children with disabilities in Guadalajara, Mexico. At a later date two other parents…

  5. Young People with Harmful Sexual Behaviour: Do Those with Learning Disabilities Form a Distinct Subgroup?

    ERIC Educational Resources Information Center

    Almond, Louise; Giles, Susan

    2008-01-01

    The study examines 102 young people with Learning Disabilities (n = 51) and without a learning disability (NLD; n = 51) to explore ways in which LD young people with harmful sexual behaviours (HSB) should be recognized as a subgroup requiring specialized treatment and intervention. Throughout this comparison of perpetrator, victim and abuse…

  6. Literacy achievement of children with intellectual disabilities and differing linguistic backgrounds.

    PubMed

    Verhoeven, L; Vermeer, A

    2006-10-01

    The aim of the present study was to examine the literacy achievement of 10- to 12-year-old native and non-native children with intellectual disabilities (ID) living in the Netherlands. An intriguing question within this context was whether the second language learning non-native children with ID would show a double disadvantage when compared with their monolingual Dutch peers with no ID. Dutch literacy scores in the domains of word decoding, vocabulary, syntax and text were therefore compared for: (1) intellectually disabled native Dutch children; (2) intellectually disabled non-native children; (3) normally developing native Dutch children; and (4) normally developing non-native children. The interrelations between literacy subskills were also compared for native vs. non-native children with ID. The native and non-native students diagnosed as intellectually disabled produced substantially lower literacy scores than their non-disabled peers. The differences between the native (L1) and non-native (L2) children in regular vs. special education were found to depend on the aspect of literacy considered. Word decoding and language skills turned out to significantly predict the children's reading comprehension, although some differences in the strength of relationships could also be evidenced. The literacy achievement of intellectually disabled children with differing linguistic backgrounds generally falls behind that of their non-disabled peers. For word decoding, the non-native children in regular and special education were generally able to keep up with their native peers. For higher-order literacy abilities closely related to the mental lexicon, sentence processing and text processing, however, significant differences in the performances of the native (L1) and non-native (L2) children in regular vs. special education were found, suggesting a double disadvantage for the non-native children in special education.

  7. Lived Experiences of Parents of Children with Disabilities in Swaziland

    ERIC Educational Resources Information Center

    Thwala, S'lungile K.; Ntinda, Kayi; Hlanze, Buyisile

    2015-01-01

    Raising a child with disability is a challenge to most parents. The study explored the lived experiences of parents of children with disabilities in Swaziland. The specific objective was to determine the challenges which parents of children with disability encounter at home, school and community, which may hinder them to work collaboratively with…

  8. Participation of Children with Intellectual Disability Compared with Typically Developing Children

    ERIC Educational Resources Information Center

    King, Matthew; Shields, Nora; Imms, Christine; Black, Monique; Ardern, Clare

    2013-01-01

    We compared participation in out-of-school activities between children with intellectual disability and children with typical development using the Children's Assessment of Participation and Enjoyment and Preferences for Activities of Children questionnaires. Thirty-eight pairs of children were matched for age (mean age 12.3 plus or minus 2.7…

  9. Challenges faced by parents of children with learning disabilities in Opuwo, Namibia

    PubMed Central

    Taderera, Clever

    2017-01-01

    Background Parenting children with learning disabilities requires a high level of knowledge and access to resources, information and services. In developing countries, however, these resources and services are not always available. Parents in Namibia, a developing country, therefore face challenges addressing children’s learning and other developmental disabilities, including challenges related to preventative and supportive interventions. Objective This research focuses on challenges faced by parents as they parent children with learning disabilities in Opuwo, Namibia. Method In-depth interviews were conducted with eight parents regarding the challenges they face in parenting their children with learning disabilities. Thematic analysis enabled the researchers to identify, analyse and report on themes that emerged from the qualitative interview data. Results Analysis of the interviews indicated that some participants had only a vague understanding of learning disabilities, as they did not have access to essential knowledge about this phenomenon. They also lacked an awareness of the availability of programmes, services and policies meant to benefit their children with learning disabilities. Participants voiced that they, their children with learning disabilities and community members have stereotypes and prejudices regarding learning disabilities. In this study, most of the children with learning disabilities were raised by single, unemployed parents who seemed to have access to less support from external sources than married couples parenting children with learning disabilities. These single parents are usually not married and because of lack of financial support from the other parent, the majority of them indicated that they struggle to meet the financial and material needs of their children. Conclusion The researchers concluded that the participants in this study experience a range of challenges in parenting their children with learning disabilities. The main

  10. Resilience and the Course of Daily Parenting Stress in Families of Young Children with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Gerstein, E. D.; Crnic, K. A.; Blacher, J.; Baker, B. L.

    2009-01-01

    Background: Parenting stresses have consistently been found to be higher in parents of children with intellectual disabilities (ID); yet, some families are able to be resilient and thrive in the face of these challenges. Despite the considerable research on stress in families of ID, there is still little known about the stability and compensatory…

  11. Support for AAC Use in Preschool, and Growth in Language Skills, for Young Children with Developmental Disabilities

    PubMed Central

    BARKER, R. MICHAEL; AKABA, SANAE; BRADY, NANCY C.; THIEMANN-BOURQUE, KATHY

    2014-01-01

    Little is known about how AAC use in preschool may impact language development for children with complex communication needs (e.g., children with autism, cerebral palsy, Down syndrome, and other developmental disabilities). We developed two surveys (a) to describe children’s use of AAC in preschool classrooms, as well as the use of prompts and question asking, and augmented input by their communication partners; and (b) to describe teachers’ experience, training, and perceived support in providing AAC. We then examined the relationship between children’s experience of AAC, including the use of prompts, question asking, and augmented input by their partners, and the growth of receptive and expressive language for 71 children with developmental disabilities over a two-year period. The use of AAC by peers to provide augmented input was associated with stronger language growth; the use of prompting and question asking by teachers was associated with weaker language growth. Teachers reported that they received little training regarding ways to support a child’s use of AAC. Results suggest the need for further research on promoting AAC use at the preschool level, including research to promote peer interactions for AAC users. PMID:24229337

  12. Financial well-being of single, working-age mothers of children with developmental disabilities.

    PubMed

    Parish, Susan L; Rose, Roderick A; Swaine, Jamie G; Dababnah, Sarah; Mayra, Ellen Tracy

    2012-09-01

    Understanding the financial well-being of single mothers who care for children with developmental disabilities is important to ensure that public policies can be effectively targeted to support these vulnerable families. The authors analyze data from the Survey of Income and Program Participation to describe income poverty, asset poverty, income, net worth, and liquid assets of U.S. single, working-age mothers (n  =  242) of children and adult children with developmental disabilities. The well-being of these mothers was compared to the situation of married mothers of children with developmental disabilities (n  =  345) and of single mothers who did not have children with developmental disabilities (n  =  6,547). Compared with both married mothers of children with developmental disabilities and single mothers without children with developmental disabilities, single mothers of children with developmental disabilities had markedly worse financial well-being across a range of income- and asset-based measures. Single mothers caring for children with developmental disabilities face adverse financial well-being as compared with other mothers. Policy makers should consider targeted measures to improve the financial well-being of these parents.

  13. Predictors of visual-motor integration in children with intellectual disability.

    PubMed

    Memisevic, Haris; Sinanovic, Osman

    2012-12-01

    The aim of this study was to assess the influence of sex, age, level and etiology of intellectual disability on visual-motor integration in children with intellectual disability. The sample consisted of 90 children with intellectual disability between 7 and15 years of age. Visual-motor integration was measured using the Acadia test of visual-motor integration. A multiple regression analysis was used for data analysis. The results of this study showed that sex, level of intellectual disability, and age were significant predictors of visual-motor integration. The etiology of intellectual disability did not play a significant role in predicting visual-motor integration. Visual-motor integration skills are very important for a child's overall level of functioning. Individualized programs for the remediation of visual-motor integration skills should be a part of the curriculum for children with intellectual disability.

  14. Multiple definitions of reading disability: implications for preschool screening.

    PubMed

    Colligan, R C; Bajuniemi, L E

    1984-10-01

    A preschool screening battery was evaluated for effectiveness in identifying children who later would be found to have reading disabilities. The battery was used to evaluate 165 preschool children; 95 of these children were available for 3-yr. follow-up assessment. The battery was effective in identifying children at risk for later reading disability by using four different diagnostic criteria. The data suggest that intervention should be directed toward the immature or young boy who shows weaknesses in the preschool acquisition of number concepts and symbol recognition.

  15. Disabled Children and Their Families: A Decade of Policy Change

    ERIC Educational Resources Information Center

    Read, Janet; Blackburn, Clare; Spencer, Nick

    2012-01-01

    Focusing mainly on the United Kingdom, this article reviews a decade of national and international policy and legal changes in relation to disabled children and their families. It discusses attempts to transform the ways that disabled children are perceived and the rights accorded to them. The UN Convention on the Rights of Disabled Persons,…

  16. Predictors of Visual-Motor Integration in Children with Intellectual Disability

    ERIC Educational Resources Information Center

    Memisevic, Haris; Sinanovic, Osman

    2012-01-01

    The aim of this study was to assess the influence of sex, age, level and etiology of intellectual disability on visual-motor integration in children with intellectual disability. The sample consisted of 90 children with intellectual disability between 7 and 15 years of age. Visual-motor integration was measured using the Acadia test of…

  17. How children and young people construct and negotiate living with medical technology.

    PubMed

    Kirk, Susan

    2010-11-01

    Increasing numbers of children need the support of medical technology for their survival and wellbeing, yet little is known about their experiences of living technology-assisted lives. This study aimed to explore how this group of children experience and construct medical technology and its influence on their identity and social relationships. Using a Grounded Theory approach, 28 children/young people aged between 8 and 19 years old and using different types of medical devices were recruited via nursing services in England. Data were collected by in-depth interviews conducted in children's homes. The medical technology occupied an ambivalent position in children's lives being seen as having both an enabling and disabling presence. Children actively engaged in work to incorporate the technology into their lives and bodies by developing strategies to manage their condition, the technology and their identities. This body work appeared to be driven by a desire to 'normalise' their bodies and their lives. Technologies were shaped to integrate them into everyday life and children managed their self-presentation and controlled information about their condition. This work was ongoing, responding to changing social contexts and relationships. For these children the process of 'growing up' involves incorporating disability, illness and technology. This study contributes to knowledge by examining how medical technology is constructed by children whose lives are dependent on it and illuminating the resources and strategies they use to manage their identity and negotiate peer culture interactions and norms. Copyright © 2010 Elsevier Ltd. All rights reserved.

  18. Gastrointestinal and nutritional issues in children with neurological disability.

    PubMed

    Romano, Claudio; Dipasquale, Valeria; Gottrand, Frederic; Sullivan, Peter B

    2018-05-27

    Neurological disability is often associated with feeding and gastrointestinal disorders leading to malnutrition and growth failure. Assessment of nutritional status represents the first step in the clinical evaluation of children with neurological disability. The European Society of Gastroenterology, Hepatology, and Nutrition (ESPGHAN) recently issued a consensus statement on gastrointestinal and nutritional management in children with neurological disability. Here we critically review and address implications of this consensus for clinical practice, including assessment and monitoring of nutritional status, definition of nutritional requirements, diagnosis and treatment of gastro-oesophageal reflux disease, and indications for and modalities of nutritional support. There is a strong evidence base supporting the ESPGHAN guidelines; their application is expected to lead to better management of this group of children. Assessment of nutritional status in children with neurological disability should include the evaluation of body composition. Standard polymeric formula via gastrostomy tube is an effective, long-term nutritional intervention. Tube feeding should be started early, before the development of malnutrition. © 2018 Mac Keith Press.

  19. Conducting participatory photography with children with disabilities: a literature review.

    PubMed

    Eisen, Isabel; Cunningham, Barbara Jane; Campbell, Wenonah

    2018-03-28

    This review summarized studies that used participatory photography with children with disabilities, including those with communication impairments, and described modifications made to the methodology to facilitate their participation in qualitative research. In the fall of 2016, we searched Psycinfo (OVID), ERIC, CINAHL and Web of Science to identify studies that used participatory photography with children with disabilities. The search was repeated in January 2018 to retrieve any new publications. The first author extracted data that described the characteristics of each study and the modifications used. Of the 258 articles identified, 19 met inclusion criteria. Participants ranged from 4-21 years old and had a variety of disabilities. Study topics included education, leisure activities and adulthood. Researchers modified participatory photography to enhance accessibility by: modifying cameras; providing individual training; teaching consent through role play; allowing children to direct adults to take photographs; including additional forms of media; using diaries and questionnaires; providing individual interviews with simplified questions; using multiple forms of communication; and modifying how photographs are shared. Participatory photography can be an effective method for studying the lived experiences of children with disabilities, particularly those with communication impairments. Methodological modifications can enhance the accessibility of this approach for this population. Implications for Rehabilitation Participatory photography may be an effective qualitative research method for learning about the perspectives and experiences of children with disabilities on a wide array of topics. There are many specific modifications that researchers can use to support the inclusion of children with disabilities in participatory photography research. The findings of studies that use participatory photography methodology may provide rehabilitation professionals

  20. Discovering Nature with Young Children.

    ERIC Educational Resources Information Center

    Chalufour, Ingrid; Worth, Karen

    Young children's curiosity about nature and their need to make sense of the world presents an opportunity to incorporate science as a natural and critical part of children's early learning. This guide, part of a preschool science curriculum, uses an inquiry approach to encourage young naturalists to observe life more closely, build an…

  1. Vision and academic performance of learning disabled children.

    PubMed

    Wharry, R E; Kirkpatrick, S W

    1986-02-01

    The purpose of this study was to assess difference in academic performance among myopic, hyperopic, and emmetropic children who were learning disabled. More specifically, myopic children were expected to perform better on mathematical and spatial tasks than would hyperopic ones and that hyperopic and emmetropic children would perform better on verbal measures than would myopic ones. For 439 learning disabled students visual anomalies were determined via a Generated Retinal Reflex Image Screening System. Test data were obtained from school files. Partial support for the hypothesis was obtained. Myopic learning disabled children outperformed hyperopic and emmetropic children on the Key Math test. Myopic children scored better than hyperopic children on the WRAT Reading subtest and on the Durrell Analysis of Reading Difficulty Oral Reading Comprehension, Oral Rate, Flashword, and Spelling subtests, and on the Key Math Measurement and Total Scores. Severity of refractive error significantly affected the Wechsler Intelligence Scale for Children--Revised Full Scale, Performance Scale, Verbal Scale, and Digit Span scores but did not affect any academic test scores. Several other findings were also reported. Those with nonametropic problems scored higher than those without problems on the Key Math Time subtest. Implications supportive of the theories of Benbow and Benbow and Geschwind and Behan were stated.

  2. Social support and anxiety levels of parents with disabled children.

    PubMed

    Özyazıcıoğlu, Nurcan; Buran, Gonca

    2014-01-01

    This is a descriptive study carried out to determine the state-trait anxiety and social support perceptions of parents with disabled children. This study has been carried out on 75 parents whose children attended the Private Rehabilitation Center. The data included the personal information form composed by the investigators, the state-trait anxiety inventory, and the multi-dimensional scale of perceived social support. The disabilities of the children were mental in 26.7%, physical in 25.3%, and physical/mental in 12%. As the degree of disability increased and the income levels decreased, the trait anxiety scores of the parents increased. There was a significant negative correlation between parental age and social support. Among the parents, 37.3% experienced problems with their spouses after having a child with a disability. The development and implementation of alternative support systems for of parents with disabled children would be beneficial. © 2014 Association of Rehabilitation Nurses.

  3. Young Children and Families Experiencing Homelessness

    ERIC Educational Resources Information Center

    Wilson, Allison B.; Squires, Jane

    2014-01-01

    The increasing prevalence of homelessness among young children and families in the United States is described, as is the developmental impact on young children and cost to society. Although services are mandated for this population under the McKinney­-Vento Act, Education of Homeless Children and Youth Program, and the Individuals With…

  4. A conceptual model of children's cognitive adaptation to physical disability.

    PubMed

    Bernardo, M L

    1982-11-01

    Increasing numbers of children are being required to adapt to lifelong illness and disability. While numerous studies exist on theories of adaptation, reaction to illness, and children's concepts of self and of illness, an integrated view of children's ability to conceptualize themselves, their disabilities and possible adaptations has not been formulated. In this article an attempt has been made to integrate models of adaptation to disability and knowledge about children's cognitive development using Piagetian theory of cognitive development and Crate's stages of adaptation to chronic illness. This conceptually integrated model can be used as a departure point for studies to validate the applicability of Piaget's theory to the development of the physically disabled child and to clinically assess the adaptational stages available to the child at various developmental stages.

  5. Mothers' Perceptions of Young Children, Parenting, and Young Children's Behavior Problems

    ERIC Educational Resources Information Center

    Renk, Kimberly

    2011-01-01

    Historically, research demonstrates that mothers' attitudes and characteristics of their parenting are intertwined. More recently, mothers' perceptions of their children are becoming a new focus of interest. To further understand the relationships among mothers' perceptions of their young children, their parenting behaviors, and their ratings of…

  6. Power Mobility Training for Young Children with Multiple, Severe Impairments: A Case Series.

    PubMed

    Kenyon, Lisa K; Farris, John P; Gallagher, Cailee; Hammond, Lyndsay; Webster, Lauren M; Aldrich, Naomi J

    2017-02-01

    Young children with neurodevelopmental conditions are often limited in their ability to explore and learn from their environment. The purposes of this case series were to (1) describe the outcomes of using an alternative power mobility device with young children who had multiple, severe impairments; (2) develop power mobility training methods for use with these children; and (3) determine the feasibility of using various outcome measures. Three children with cerebral palsy (Gross Motor Function Classification System Levels IV, V, and V) ages 17 months to 3.5 years participated in the case series. Examination included the Pediatric Evaluation of Disability Inventory-Computer Adaptive Test (PEDI-CAT) and the Dimensions of Mastery Questionnaire (DMQ). An individualized, engaging power mobility training environment was created for each participant. Intervention was provided for 60 minutes per week over 12 weeks. All participants exhibited improvements in power mobility skills. Post-intervention PEDI-CAT scores increased in various domains for all participants. Post-intervention DMQ scores improved in Participants 1 and 2. The participants appeared to make improvements in their beginning power mobility skills. Additional research is planned to further explore the impact of power mobility training in this unique population.

  7. Home literacy experiences and early childhood disability: a descriptive study using the National Household Education Surveys (NHES) program database.

    PubMed

    Breit-Smith, Allison; Cabell, Sonia Q; Justice, Laura M

    2010-01-01

    The present article illustrates how the National Household Education Surveys (NHES; U.S. Department of Education, 2009) database might be used to address questions of relevance to researchers who are concerned with literacy development among young children. Following a general description of the NHES database, a study is provided that examines the extent to which parent-reported home literacy activities and child emergent literacy skills differ for children with (a) developmental disabilities versus those who are developing typically, (b) single disability versus multiple disabilities, and (c) speech-language disability only versus other types of disabilities. Four hundred and seventy-eight preschool-age children with disabilities and a typically developing matched sample (based on parent report) were identified in the 2005 administration of the Early Childhood Program Participation (ECPP) Survey in the NHES database. Parent responses to survey items were then compared between groups. After controlling for age and socioeconomic status, no significant differences were found in the frequency of home literacy activities for children with and without disabilities. Parents reported higher levels of emergent literacy skills for typically developing children relative to children with disabilities. These findings suggest the importance of considering the home literacy experiences and emergent literacy skills of young children with disabilities when making clinical recommendations.

  8. Educating the Learning Disabled Adolescent about Sexuality.

    ERIC Educational Resources Information Center

    Rothenberg, Gloria S.; And Others

    1979-01-01

    A sex education program was initiated by the parents of 16 learning disabled young adults. Students' responses to the program varied, reflecting their differences in emotional maturity, intellectual performance, motivation, and social skills. Because of their participation in the program, the parents began to view their children as young adults…

  9. Assessing functional impairment in siblings living with children with disability.

    PubMed

    Goudie, Anthony; Havercamp, Susan; Jamieson, Barry; Sahr, Timothy

    2013-08-01

    The purpose of this study was to empirically test if siblings of children with disability had higher levels of parent-reported behavioral and emotional functional impairment compared with a peer group of siblings residing with only typically developing children. This was a retrospective secondary analysis of data from the Medical Expenditure Panel Survey. We included only households with at least 2 children to ensure sibling relationships. Two groups of siblings were formed: 245 siblings resided in households with a child with disability and 6564 siblings resided in households with typically developing children. Parents responded to questions from the Columbia Impairment Scale to identify functional impairment in their children. On the basis of parent reports and after adjusting for sibling demographic characteristics and household background, siblings of children with disability were more likely than siblings residing with typically developing children to have problems with interpersonal relationships, psychopathological functioning, functioning at school, and use of leisure time (P < .05). The percentage of siblings of children with disability classified with significant functional impairment was 16.0% at the first measurement period and 24.2% at the second (P < .001). For siblings of typically developing children there was a smaller percentage increase from 9.5% to 10.3% (P < .001). Functional impairment is a key indicator for the need of mental health services and, as such, early assessment and interventions to limit increasing severity and short- to long-term consequences need to be addressed. Health care professionals need to consider a family-based health care approach for families raising children with disability.

  10. Parental Influence on Physical Activity of Children with Disabilities

    ERIC Educational Resources Information Center

    Siebert, Erin A.; Hamm, Jessica; Yun, Joonkoo

    2017-01-01

    The purpose of this study was to identify parental influences on physical activity behaviours of children with disabilities. One hundred and forty-eight parents of children with disabilities responded to a survey about factors related to parent and child physical activity, parental support and belief in their child's abilities regarding physical…

  11. Procedures Governing Programs and Services for Children with Disabilities

    ERIC Educational Resources Information Center

    North Carolina Department of Public Instruction, 2004

    2004-01-01

    The term "children with disabilities" includes, without limitation, all children who, because of permanent or temporary mental, physical or emotional disabilities, need special education, are unable to have all their educational needs met in a regular class without special education and related services, or are unable to be adequately educated in…

  12. Inclusion Understood from the Perspectives of Children with Disability

    ERIC Educational Resources Information Center

    Spencer-Cavaliere, Nancy; Watkinson, E. Jane

    2010-01-01

    This study explored the perspectives of children with disabilities regarding the concept of inclusion in physical activity. Participants were children (two girls, nine boys, M[subscript age] = 10 years, five months, age range: 8-12 years) with disabilities, including cerebral palsy, fine and gross motor delays, developmental coordination disorder,…

  13. Young Children Surfing: Gender Differences in Computer Use

    ERIC Educational Resources Information Center

    Kirmani, Mubina Hassanali; Davis, Marcia H.; Kalyanpur, Maya

    2009-01-01

    Computers have become an important part of young children's lives, both as a source of entertainment and education. The National Association for the Education of Young Children's (NAEYC) position statement on Technology and Young Children (2006) supports the need for equal access to technology for all children with attention to eliminating gender…

  14. Aiming High: The Educational and Occupational Aspirations and of Young Disabled People

    ERIC Educational Resources Information Center

    Burchardt, Tania

    2004-01-01

    This article provides an overview of the aspirations and expectations disabled teenagers form for their future education and employment and the factors which are associated with positive aspirations. After reviewing what is already known about the formation of aspirations in general, and among young disabled people in particular, Tania Burchardt…

  15. "Friendship in All Directions": Norwegian Children with Physical Disabilities Experiencing Friendship

    ERIC Educational Resources Information Center

    Asbjornslett, Mona; Engelsrud, Gunn H.; Helseth, Solvi

    2012-01-01

    This article examines how Norwegian children with physical disabilities experience friendship during the transition between primary and secondary school. The research was based on 38 life mode interviews with 15 children. Two themes were explored: (1) different kinds of friends: friends with disabilities, friends without disabilities and…

  16. Neurobehavioral assessment of children and adolescents attending a developmental disabilities clinic.

    PubMed

    Brasić, James Robert; Barnett, Jacqueline Y; Kowalik, S; Tsaltas, Margaret Owen; Ahmad, Raheela

    2004-12-01

    Although the risk of the eventual development of tardive dyskinesia and other persistent adverse effects of neuroleptics is high, among adults with mental retardation and other developmental disabilities, neuroleptics may ameliorate dyskinesias, aggression, and inattention. The effects of traditional neuroleptics on a comparable population of children and adolescents with mental retardation and other developmental disabilities are unknown. The objective of this study was to develop an assessment battery to describe the effects of traditional neuroleptics on the behavior and movements of a small sample of children and adolescents with mental retardation and other developmental disabilities. 13 children and adolescents aged 6 to 16 years attending a developmental disabilities clinic were evaluated utilizing a Movement Assessment Battery to measure behavior and motions. Five subjects took traditional neuroleptic medications. Trained raters can reliably assess the movements and behaviors of children and adolescents with multiple handicaps. Children and adolescents with developmental disabilities may be vulnerable to experience functional impairment and akathisia, tics, and other dyskinesias when administered traditional neuroleptic medications.

  17. Health and educational status of children raised by a caregiver with a disability.

    PubMed

    Miles, Donna R; Steiner, Michael J; Luken, Karen J; Sanderson, Michael R; Coyne-Beasley, Tamera; Herrick, Harry; Mizelle, Elizabeth; Ford, Carol A

    2011-07-01

    Research on children raised by adults with disability is limited. Our goal was to provide a profile of the health and educational status of children raised by a caregiver with disability. In 2007-2008, 4571 adults completed the North Carolina Behavior Risk Factor Surveillance System (BRFSS) and Child Health Assessment Monitoring Program (CHAMP) surveys. Analyses using weighted data provided population-based health/educational status comparisons of children (0 to 17 years old) raised by caregivers with and without disability. Twenty-three percent of caregivers reported disability. Rates of insurance coverage and preventive care did not differ by caregiver disability status, although children of caregivers with disability were more likely to have publicly funded insurance. The majority of children of caregivers with disability were in excellent/very good health (70%), healthy weight (58%), and making above-average grades (74%). Nonetheless, children raised by caregivers with disability appear to be at disproportionately higher risk for overall poorer outcomes. Children raised by caregivers with disability were more likely to be in fair/poor health (adjusted odds ratio [aOR] 2.2; 95% confidence interval [CI] 1.3 to 3.6), overweight/obese (aOR = 1.5, 95% CI 1.1-2.0), need medical/educational services (aOR = 2.0, 95% CI 1.5-2.6), have lower grades (aOR = 1.9, 95% CI 1.4-2.5), and higher rates of school absenteeism (aOR = 2.4, 95% CI 1.8-3.4), compared to children of caregivers without disability. Children raised by a caregiver with disability show good overall wellness; however, caregiver disability status was found to be associated with an increased risk for poor child health and educational outcomes. Future research is needed to clarify the causes of these disparities and inform policies to alleviate them. Published by Elsevier Inc.

  18. Promoting the participation of children with disabilities in sports, recreation, and physical activities.

    PubMed

    Murphy, Nancy A; Carbone, Paul S

    2008-05-01

    The benefits of physical activity are universal for all children, including those with disabilities. The participation of children with disabilities in sports and recreational activities promotes inclusion, minimizes deconditioning, optimizes physical functioning, and enhances overall well-being. Despite these benefits, children with disabilities are more restricted in their participation, have lower levels of fitness, and have higher levels of obesity than their peers without disabilities. Pediatricians and parents may overestimate the risks or overlook the benefits of physical activity in children with disabilities. Well-informed decisions regarding each child's participation must consider overall health status, individual activity preferences, safety precautions, and availability of appropriate programs and equipment. Health supervision visits afford pediatricians, children with disabilities, and parents opportunities to collaboratively generate goal-directed activity "prescriptions." Child, family, financial, and societal barriers to participation need to be directly identified and addressed in the context of local, state, and federal laws. The goal is inclusion for all children with disabilities in appropriate activities. This clinical report discusses the importance of physical activity, recreation, and sports participation for children with disabilities and offers practical suggestions to pediatric health care professionals for the promotion of participation.

  19. Noticing Young Children's Mathematical Strengths and Agency

    ERIC Educational Resources Information Center

    Dockett, Sue; Goff, Wendy

    2013-01-01

    This paper promotes the importance of noticing young children's mathematical strengths. It draws on the philosophical positions of children's rights and competence to propose a shift in the ways in which all involved might notice the mathematical engagement, understandings, experiences and practices of young children. Noticing children's…

  20. The Transition from Prekindergarten to Kindergarten for Children with and without Disabilities: Comparing Engagement and Value Ratings of Prekindergarten and Kindergarten Teachers in Transition-to-Kindergarten Activities

    ERIC Educational Resources Information Center

    Tepe, Jennifer Harris

    2012-01-01

    Transition to kindergarten is defined as an important milestone for young children. Transition from prekindergarten to kindergarten sets the stage for formal school. Academic success, parental involvement and teacher-to-teacher support are all the building blocks to future success for children with and without disabilities. As educators and…

  1. Parenting and the Behavior Problems of Young Children with an Intellectual Disability: Concurrent and Longitudinal Relationships in a Population-Based Study

    ERIC Educational Resources Information Center

    Totsika, Vasiliki; Hastings, Richard Patrick; Vagenas, Dimitrios; Emerson, Eric

    2014-01-01

    We examined parenting behaviors, and their association with concurrent and later child behavior problems. Children with an intellectual disability (ID) were identified from a UK birth cohort (N = 516 at age 5). Compared to parents of children without an ID, parents of children with an ID used discipline less frequently, but reported a more…

  2. Promoting Access to Education for Disabled Children in Low-Income Countries: Do We Need to Know How Many Disabled Children There Are?

    ERIC Educational Resources Information Center

    Croft, Alison

    2013-01-01

    Poor people are most likely to be disabled, and the exclusion of disabled people from education means that they are also more likely to remain poor. Despite calls for better data to inform the extension of education for disabled children, data in this field remain weak. This paper asks whether a national survey of disability prevalence is the best…

  3. Children With Intellectual Disability and Hospice Utilization: The Moderating Effect of Residential Care.

    PubMed

    Lindley, Lisa C

    2017-01-01

    Children with intellectual disability commonly lack access to pediatric hospice care services. Residential care may be a critical component in providing access to hospice care for children with intellectual disability. This research tested whether residential care intensifies the relationship between intellectual disability and hospice utilization (ie, hospice enrollment, hospice length of stay), while controlling for demographic characteristics. Multivariate regression analyses were conducted using 2008 to 2010 California Medicaid claims data. The odds of children with intellectual disability in residential care enrolling in hospice care were 3 times higher than their counterparts in their last year of life, when controlling for demographics. Residential care promoted hospice enrollment among children with intellectual disability. The interaction between intellectual disability and residential care was not related to hospice length of stay. Residential care did not attenuate or intensify the relationship between intellectual disability and hospice length of stay. The findings highlight the important role of residential care in facilitating hospice enrollment for children with intellectual disability. More research is needed to understand the capability of residential care staff to identify children with intellectual disability earlier in their end-of-life trajectory and initiate longer hospice length of stays.

  4. Obesity in British children with and without intellectual disability: cohort study.

    PubMed

    Emerson, Eric; Robertson, Janet; Baines, Susannah; Hatton, Chris

    2016-07-27

    Reducing the prevalence of and inequities in the distribution of child obesity will require developing interventions that are sensitive to the situation of 'high risk' groups of children. Children with intellectual disability appear to be one such group. We aimed to estimate the prevalence of obesity in children with and without intellectual disability in a longitudinal representative sample of British children and identify risk factors associated with obesity at age 11. Information was collected on a nationally representative sample of over 18,000 at ages 9 months, 3, 5, 7 and 11 years. We used UK 1990 gender-specific growth reference charts and the LMS Growth programme to identify age and gender-specific overweight and obesity BMI thresholds for each child at ages 5, 7 and 11 years. Children with intellectual disabilities were significantly more likely than other children to be obese at ages five (OR = 1.32[1.03-1.68]), seven (OR = 1.39[1.05-1.83]) and eleven (OR = 1.68[1.39-2.03]). At ages five and seven increased risk of obesity among children with intellectual disabilities was only apparent among boys. Among children with intellectual disability risk of obesity at age eleven was associated with persistent maternal obesity, maternal education, child ethnicity and being bullied at age five. Children with intellectual disability are a high-risk group for the development of obesity, accounting for 5-6 % of all obese children. Interventions to reduce the prevalence and inequities in the distribution of child obesity will need to take account of the specific situation of this group of children.

  5. Music for All: Including young people with intellectual disability in a university environment.

    PubMed

    Rickson, Daphne; Warren, Penny

    2017-01-01

    We investigated a continuing education course in creative music making, initiated to promote the inclusion of young people with intellectual disability in a university setting. Despite organizers' attempts to foster diversity within the student cohort, enrolments were almost exclusively from students who had intellectual disability. Being in the university environment, and in a place of higher learning, seemed to be valued by some. However, students' main focus was on group musicking in a dedicated music room rather than interacting with the wider university community. Those who did not identify as disabled believed it was important to continue to address the barriers to wider inclusion. While acknowledging the risks around mediating the social interactions of young people with intellectual disability, we argue that future courses should include activities specifically designed to bring them to classes with typical students and to the wider activities of the university.

  6. Sexual and reproductive health status and related problems of young people with disabilities in selected associations of people with disability, Addis Ababa, Ethiopia.

    PubMed

    Alemu, Tigist; Fantahun, Mesganaw

    2011-04-01

    Young people in Ethiopia face many sexual and reproductive health problems. In particular young people with disability are among the most stigmatized, poorest, and least educated. To date, very little is known about the sexuality of disabled youth, in general the reproductive health need and related problems of this group. The aim of this study is to assess the sexual reproductive health status and associated problems of young people with disability at selected associations of people with disability in Addis Ababa. A cross-sectional survey was conducted from Feb 11-17, 2008 to assess disabled youth reproductive health status and related problems. Data were collected by trained interviewers using a structured questionnaire and two complementary focus group discussions were also conducted guided by semi-structured questions. A total of 384 young people with disability were selected using systematic sampling technique. The sociodemographic and the sexual reproductive health characteristics of the respondents were described and appropriate statistical methods including chi-square test, crude and adjusted odds ratio were used to make comparisons A total 174 (45.3%) of respondents in the study ever had sexual intercourse; out of which 100 (57.5%) and 74 (42.5%) were males and females respectively. Seventy three (42.0%) started sex between the age of 15-19 years and only 9.2% were married Only 45.4% of the sexually experienced respondents had used some kind of contraceptive during their first sexual encounter. The prevalence of unintended pregnancy was 62.5% among young disabled females who had ever been pregnant and 50% of them had history of abortion, 87.5% of this abortion was induced type. In this study, 58.6% of the sexually active respondents had multiple life time sexual partners, 20.7% had a casual sex partner and 18.0% of sexually active males had a commercial sex partner in the past 12 months period prior to the survey. The prevalence of history of ever having

  7. Young Children and Job Satisfaction.

    ERIC Educational Resources Information Center

    Hanson, Sandra L.; Sloane, Douglas M.

    1992-01-01

    Used data from General Social Surveys to examine effect of young children on job satisfaction of men and women. Findings suggest that young children have no effect on job satisfaction of male or female workers regardless of time period, work status, or marital status. This was true for women working in labor market as well as in home. (Author/NB)

  8. Social spaces for young children in hospital.

    PubMed

    Lambert, V; Coad, J; Hicks, P; Glacken, M

    2014-03-01

    In the last number of years heightened interest has been attributed to the impact of hospital environments on children's psychosocial well-being. With policy largely built around adult assumptions, knowledge about what constitutes a child-friendly hospital environment from young children's perspectives has been lacking. If hospital environments are to aspire to being child friendly then the views of younger aged children must be taken into account. The current study investigated young children's perspectives of hospital social spaces to inform the design of the built environment of a new children's hospital. An exploratory qualitative participatory design was employed. Data were collected through semi-structured interviews (one-to-one and group workshops) which incorporated art-based activities to actively engage young children. Fifty-five young children aged 5 to 8 years with various acute and chronic illnesses were recruited from inpatient, outpatient and emergency departments of three children's hospitals. Young children want a diversity of readily available, independently accessible, age, gender and developmentally appropriate leisure and entertainment facilities seamlessly integrated throughout the hospital environment. Such activities were invaluable for creating a positive hospital experience for children by combating boredom, enriching choice and control and reducing a sense of isolation through enhanced socialization. When in hospital, young children want to feel socially connected to the internal hospital community as well as to the outside world. Technology can assist to broaden the spectrum of children's social connectivity when in hospital - to home, school and the wider outside world. While technology offers many opportunities to support children's psychosocial well-being when in confined healthcare spaces, the implementation and operation of such services and systems require much further research in the areas of ethics, facilitation, organizational

  9. Problem behaviour and psychosocial functioning in young children with Williams syndrome: parent and teacher perspectives.

    PubMed

    Klein-Tasman, B P; Lee, K

    2017-09-01

    There is sparse literature about problem behaviour in young children with Williams syndrome (WS) and little consideration of the perspectives of multiple respondents. Problem behaviour of 35 children with WS ages 2 to 6 was examined based on both parent and teacher report using the Achenbach preschool forms. The most prominent areas of difficulty based on both parent and teacher report were attention problems, pervasive developmental problems and emotion reactivity difficulties. Some rater differences were observed; most notably, teachers reported more externalising behaviour problems including more aggressive behaviour, Attention Deficit/Hyperactivity problems and Oppositional Defiant problems than did parents. Few relations to intellectual functioning, age or gender were observed. Some aspects of problem behaviour evident in older children (e.g. attention problems, social problems) are also apparent for young children with WS, while other areas are less prominent (e.g. anxiety). The implications of the findings for understanding the behavioural phenotype associated with WS are discussed. © 2017 MENCAP and International Association of the Scientific Study of Intellectual and Developmental Disabilities and John Wiley & Sons Ltd.

  10. Assessing Functional Impairment in Siblings Living With Children With Disability

    PubMed Central

    Havercamp, Susan; Jamieson, Barry; Sahr, Timothy

    2013-01-01

    OBJECTIVE: The purpose of this study was to empirically test if siblings of children with disability had higher levels of parent-reported behavioral and emotional functional impairment compared with a peer group of siblings residing with only typically developing children. METHODS: This was a retrospective secondary analysis of data from the Medical Expenditure Panel Survey. We included only households with at least 2 children to ensure sibling relationships. Two groups of siblings were formed: 245 siblings resided in households with a child with disability and 6564 siblings resided in households with typically developing children. Parents responded to questions from the Columbia Impairment Scale to identify functional impairment in their children. RESULTS: On the basis of parent reports and after adjusting for sibling demographic characteristics and household background, siblings of children with disability were more likely than siblings residing with typically developing children to have problems with interpersonal relationships, psychopathological functioning, functioning at school, and use of leisure time (P < .05). The percentage of siblings of children with disability classified with significant functional impairment was 16.0% at the first measurement period and 24.2% at the second (P < .001). For siblings of typically developing children there was a smaller percentage increase from 9.5% to 10.3% (P < .001). CONCLUSIONS: Functional impairment is a key indicator for the need of mental health services and, as such, early assessment and interventions to limit increasing severity and short- to long-term consequences need to be addressed. Health care professionals need to consider a family-based health care approach for families raising children with disability. PMID:23897909

  11. Optimism and positive and negative feelings in parents of young children with developmental delay.

    PubMed

    Kurtz-Nelson, E; McIntyre, L L

    2017-07-01

    Parents' positive and negative feelings about their young children influence both parenting behaviour and child problem behaviour. Research has not previously examined factors that contribute to positive and negative feelings in parents of young children with developmental delay (DD). The present study sought to examine whether optimism, a known protective factor for parents of children with DD, was predictive of positive and negative feelings for these parents. Data were collected from 119 parents of preschool-aged children with developmental delay. Two separate hierarchical linear regression analyses were conducted to determine if optimism significantly predicted positive feelings and negative feelings and whether optimism moderated relations between parenting stress and parent feelings. Increased optimism was found to predict increased positive feelings and decreased negative feelings after controlling for child problem behaviour and parenting stress. In addition, optimism was found to moderate the relation between parenting stress and positive feelings. Results suggest that optimism may impact how parents perceive their children with DD. Future research should examine how positive and negative feelings impact positive parenting behaviour and the trajectory of problem behaviour specifically for children with DD. © 2017 MENCAP and International Association of the Scientific Study of Intellectual and Developmental Disabilities and John Wiley & Sons Ltd.

  12. What Can Baby See? Vision Tests and Interventions for Infants with Multiple Disabilities. [Videotape].

    ERIC Educational Resources Information Center

    Chen, Deborah

    This videotape explains common vision tests used with infants with multiple disabilities, shows how to gather information from parents on their children's use of vision, and demonstrates selected early intervention strategies for encouraging infants and young children with multiple disabilities to use their vision in functional ways. The videotape…

  13. MEASURING DIETARY EXPOSURE OF YOUNG CHILDREN

    EPA Science Inventory

    Young children do not consume foods in a structured manner. Their foods contact surfaces (hands, floors, eating surfaces, etc.) that may be contaminated while they are eating them. Thus, dietary exposures of young children are difficult to accurately assess or measure. A recen...

  14. Visual and Auditory Learning Processes in Normal Children and Children with Specific Learning Disabilities. Final Report.

    ERIC Educational Resources Information Center

    McGrady, Harold J.; Olson, Don A.

    To describe and compare the psychosensory functioning of normal children and children with specific learning disabilities, 62 learning disabled and 68 normal children were studied. Each child was given a battery of thirteen subtests on an automated psychosensory system representing various combinations of auditory and visual intra- and…

  15. Children's Conceptions of the Word "Disabled": A Phenomenographic Study

    ERIC Educational Resources Information Center

    Skar, Lisa

    2010-01-01

    The aim of this study was to investigate the qualitative differences in children's conceptions of the word "disabled". Two hundred and thirty children, aged 7-12 years of age, were instructed to make a drawing of what came into their minds when they heard the word "disabled". A brief written commentary on their drawing was also…

  16. Group Hypnotherapy With Learning Disabled Children.

    ERIC Educational Resources Information Center

    Johnson, Lynn S.; And Others

    The impact of group hypnotic and self-hypnotic training on the academic performance and self-esteem of learning disabled children was explored. Three hypnotic training sessions and instructions for six weeks of daily self-hypnotic practice containing suggestions for imagery related to improvement in these areas were given to 15 children, their…

  17. The effect of color on the recognition and use of line drawings by children with severe intellectual disabilities.

    PubMed

    Stephenson, Jennifer

    2007-03-01

    Line drawings are commonly used as communication symbols for individuals with severe intellectual disabilities. This study investigated the effect of color on the recognition and use of line drawings by young children with severe intellectual disabilities and poor verbal comprehension who were beginning picture users. Drawings where the color of the picture matched the object and where the color of the drawing did not match the object were used, as well as black and white line drawings. Tentative findings suggest that some students with intellectual disabilities may find it more difficult to recognize and line drawings where the color does not match the object compared to line drawings where the color of the drawing does match the color of the object.

  18. Inclusive Literature in the Library and the Classroom: The Importance of Young Adult and Children's Books that Portray Characters with Disabilities

    ERIC Educational Resources Information Center

    Wopperer, Emily

    2011-01-01

    Literature for children and young adults is written for many different reasons. It is written purely to entertain, to help children and young adults understand the world they live in, or to help cope with problems they face. It can also be written to introduce new places, ideas, or situations to its readers, or to portray characters with whom…

  19. Predictors of psychological morbidity in parents of children with intellectual disabilities.

    PubMed

    Gallagher, Stephen; Phillips, Anna C; Oliver, Christopher; Carroll, Douglas

    2008-01-01

    This study examined predictors of excess psychological morbidity in parents of children with intellectual disabilities. Thirty-two parents of children with intellectual disabilities and 29 parents of typically developing children completed the Hospital Depression and Anxiety Scale, and measures of social support, child problem behaviors, sleep quality, and perceived caregiver burden. Parents of children with intellectual disabilities registered high depression and anxiety scores, and the majority met the criteria for possible clinical depression and/or anxiety. The strongest predictor of psychological morbidity was caregiver burden. Analyses of its component dimensions indicated that feelings of guilt held the greatest consequence for depression and anxiety. Caregiver burden, in general, and its guilt component, in particular, predicted symptoms of depression and anxiety in parents of children with intellectual disabilities. Assisting such parents to resolve their feelings of guilt should benefit their psychological status.

  20. The State of Young Children in Israel

    ERIC Educational Resources Information Center

    Kosher, Hanita, Ed.

    2015-01-01

    This document, based on the statistical yearbook, "Children in Israel 2014," presents data on the population of young children in Israel. The document presents a current picture of the well-being of young children in Israel intended to assist policy-makers and practitioners to understand the situation of this group of children and to…

  1. Is Celiac Disease an Etiological Factor in Children with Nonsyndromic Intellectual Disability?

    PubMed

    Sezer, Taner; Balcı, Oya; Özçay, Figen; Bayraktar, Nilufer; Alehan, Füsun

    2016-03-01

    To determine the prevalence of celiac disease in children and adolescents with nonsyndromic intellectual disability, we investigated serum levels of tissue transglutaminase antibody and total IgA from 232 children with nonsyndromic intellectual disability and in a healthy control group of 239 children. Study participants who were positive for tissue transglutaminase antibody underwent a duodenal biopsy. A total of 3 patients in the nonsyndromic intellectual disability group (5.45%) and 1 in the control group (0.41%) had positive serum tissue transglutaminase antibody (P > .05). Duodenal biopsy confirmed celiac disease in only 1 patient who had nonsyndromic intellectual disability. In this present study, children with nonsyndromic intellectual disability did not exhibit a higher celiac disease prevalence rate compared with healthy controls. Therefore, we suggest that screening test for celiac disease should not be necessary as a part of the management of mild and moderate nonsyndromic intellectual disability. However, cases of severe nonsyndromic intellectual disability could be examined for celiac disease. © The Author(s) 2015.

  2. Learning Disability Subtypes in Children with Neurofibromatosis.

    ERIC Educational Resources Information Center

    Brewer, Vickie R.; Moore, Bartlett D., III; Hiscock, Merrill

    1997-01-01

    This study investigated the incidence of learning disabilities in 105 children (ages 6-18) with neurofibromatosis Type 1 (NF-1). Results found that nearly 70% of the subjects were academically deficient and 42% met the criteria for learning disabilities. A low incidence of visuospatial-constructional deficits was also found. (Author/CR)

  3. Indian Family Adjustment to Children with Disabilities

    ERIC Educational Resources Information Center

    Nichols, Lee Anne; Keltner, Bette

    2005-01-01

    The purpose of this study was to explore the community response of how American Indian families adapt to having school age children with disabilities in two diverse American Indian communities. An ethnographic design was utilized to construct a taxonomy about family adjustment of American Indian families with disabilities. Community Assessment…

  4. How do children with disabilities view 'healthy living'? A descriptive pilot study.

    PubMed

    McPherson, Amy C; Lindsay, Sally

    2012-07-01

    Childhood obesity is one of the greatest health problems of the 21st Century. Compared with their non-disabled peers, children with disabilities have been shown to be at higher risk of obesity and associated secondary conditions which can hinder independence and community participation. Health promotion initiatives for children are rarely tailored to those with disabilities, and children may have different perceptions of health and well-being than those without disabilities. These need to be understood for future health promotion programs to be effective. This pilot study explored how children with disabilities perceive health and well-being and involved four discussion groups with children who were currently inpatients at a children's rehabilitation hospital. Descriptive thematic analysis was used. Fourteen children (eight girls, six boys; aged 8-13 years) with a range of congenital and acquired conditions participated in one of four discussion groups. There was an awareness of "healthy living" behaviors, nutrition and exercise examples being most commonly cited, although participants particularly discussed "unhealthy" food preferences. Physical capabilities, both before their hospital stay and their expectations for future activities, were also prominent. Although children in this study had some basic understanding of healthy nutrition, it was not easily translated to their own food choices. Children may need assistance to engage in rewarding physical activities within the constraints of their disability. Copyright © 2012 Elsevier Inc. All rights reserved.

  5. Foster Care Outcomes for Children With Intellectual Disability.

    PubMed

    Slayter, Elspeth M

    2016-10-01

    The promotion of speedy, permanent outcomes for foster children is a central child welfare policy goal. However, while children with intellectual disability (ID) are at greater risk for child welfare involvement, little is known about their case outcomes. This cross-sectional national study explores between-group foster care outcomes. Foster children with intellectual disability were more likely to have experienced an adoption disruption or dissolution but less likely to be reunified with a parent, primary caretaker or other family member. Implications for interagency collaboration in support of pre and post-foster care discharge support services are discussed.

  6. 78 FR 57324 - Assistance to States for the Education of Children With Disabilities

    Federal Register 2010, 2011, 2012, 2013, 2014

    2013-09-18

    ... States for the Education of Children With Disabilities AGENCY: Office of Special Education and...). These regulations govern the Assistance to States for the Education of Children with Disabilities... services to children with disabilities. There are four key purposes of the Part B regulations: (1) To...

  7. Parents’ Education Shapes, but Does Not Originate, the Disability Representations of Their Children

    PubMed Central

    Meloni, Fabio; Federici, Stefano; Dennis, John Lawrence

    2015-01-01

    The present research tested whether children’s disability representations are influenced by cultural variables (e.g., social activities, parent education, custom complex variables) or by cognitive constraints. Four questionnaires were administered to a sample of 76 primary school aged children and one of their parents (n = 152). Questionnaires included both open-ended and closed-ended questions. The open-ended questions were created to collect uncensored personal explanations of disability, whereas the closed-ended questions were designed to elicit a response of agreement for statements built on the basis of the three most widespread disability models: individual, social, and biopsychosocial. For youngest children (6–8 years old), people with disabilities are thought of as being sick. This early disability representation of children is consistent with the individual model of disability and independent from parents’ disability explanations and representations. As children grow older (9–11 years old), knowledge regarding disability increases and stereotypical beliefs about disability decrease, by tending to espouse their parents representations. The individual model remains in the background for the adults too, emerging when the respondents rely on their most immediately available mental representation of disability such as when they respond to an open-ended question. These findings support that the youngest children are not completely permeable to social representations of disability likely due to cognitive constraints. Nevertheless, as the age grows, children appear educable on perspectives of disability adhering to a model of disability representation integral with social context and parent perspective. PMID:26053585

  8. The wellbeing of siblings of children with disabilities.

    PubMed

    Emerson, Eric; Giallo, Rebecca

    2014-09-01

    (1) to estimate the extent of differences in wellbeing between siblings of children with disabilities or long-term health conditions and siblings of 'typically developing' children in a nationally representative cohort of Australian children (the Longitudinal Study of Australian Children); (2) to determine whether any between-group differences in wellbeing may be potentially attributable to between-group differences in exposure to socio-economic disadvantage. The results of our analyses were consistent with the existing literature in indicating that, in unadjusted comparisons, the siblings of children with long-term health conditions or disabilities: (1) had lower wellbeing than their peers on some, but not all, indicators of wellbeing; and (2) that where differences did exist the effect sizes were small. Our results add to the existing literature in: (1) indicating that adjusting for between-group differences in exposure to low SEP and associated adversities eliminated the statistical significance of unadjusted comparisons in the majority of instances; and (2) failing to find any evidence of deterioration over time in the wellbeing of siblings with long-term health conditions or disabilities over a two-year period from age 4/5 to age 6/7. Copyright © 2014 Elsevier Ltd. All rights reserved.

  9. Caring for Young Children in the Home.

    ERIC Educational Resources Information Center

    Birckmayer, Jennifer; And Others

    Group leaders of 10- to 13-year-olds may use this program guide to help the preteens interact with young children through six discussion meetings and five visits with a preschool child at home. Discussion topics concern (1) the family environment of young children, (2) children's play; (3) children's play areas at home, (4) safety at home, (5)…

  10. Curriculum for Young Deaf Children.

    ERIC Educational Resources Information Center

    Restaino, Lillian C. R.; And Others

    Presented is a curriculum designed to provide the teacher of the young deaf child with learning disabilities with a description of developmental objectives and methods for fulfilling these objectives in the areas of gross motor development, sensory motor integration, visual analysis, attention and memory, and conceptualization. The objectives are…

  11. Controversial Therapies for Young Children with Developmental Disabilities.

    ERIC Educational Resources Information Center

    Nickel, Robert E.

    1996-01-01

    This article examines reasons parents may choose a controversial alternative treatment for a child with developmental disabilities and reviews a few specific treatments--vitamin B-6 and magnesium, auditory integration training, megavitamins and minerals, Piracetam, intravenous immunoglobulin, and melatonin. Recommendations on talking with families…

  12. Learning Disability and Depression in Young Adulthood

    ERIC Educational Resources Information Center

    MacInnes, Maryhelen; Broman, Clifford L.

    2013-01-01

    It is well established that children and adolescents with learning disabilities are more likely to experience depressed mood than are their peers. Many scholars explain this relationship as resulting from low self-esteem, stress, or social isolation. However, little work has explored whether this relationship continues to exist into young…

  13. Disabled children and their families in Ukraine: health and mental health issues for families caring for their disabled child at home.

    PubMed

    Bridge, Gillian

    2004-01-01

    In the Eastern European countries included in the communist system of the USSR, parents of disabled children were encouraged to commit their disabled child to institutional care. There were strict legal regulations excluding them from schools. Medical assessments were used for care decisions. Nevertheless many parents decided to care for their disabled child at home within the family. Ukraine became an independent country in 1991, when communism was replaced by liberal democracy within a free market system. Western solutions have been sought for many social problems existing, but 'hidden,' under the old regime. For more of the parents of disabled children, this has meant embracing ideas of caring for their disabled children in the community, and providing for their social, educational, and medical needs, which have previously been denied. The issue of disability is a serious one for Ukraine where the nuclear disaster at Chernobyl in 1986 caused extensive radiation poisoning. This almost certainly led to an increase in the number of disabled children being born and an increase in the incidence of various forms of cancer. This paper is based on a series of observation visits to some of the many self-help groups established by parents, usually mothers, for their disabled children. It draws attention to the emotional stress experienced both by parents and their disabled children in the process of attempting to come to terms with the disabling conditions, and the denial of the normal rights of childhood resulting from prejudice, poor resources, ignorance, and restrictive legislation. Attempts have been made to identify the possible role and tasks of professional social workers within this context. International comparisons show that many parents and their children do not benefit from the medical model of disability, and that serious consequences include the development of depressive illness among those who find that little help is available from public services.

  14. [Prosocial Development of Very Young Children.

    ERIC Educational Resources Information Center

    Pawl, Jeree, Ed.

    1992-01-01

    This newsletter presents five articles focusing on the social development of infants and very young children. The first article, "Sympathetic Behavior in Very Young Children," by Lois Barclay Murphy, gives examples of early sympathetic behavior, traces the development of sympathy, identifies individual patterns of sympathetic response,…

  15. Young people with psychiatric disabilities and their views of day centres.

    PubMed

    Gunnarsson, A Birgitta; Eklund, Mona

    2017-05-01

    Young people with psychiatric disabilities may require support in structuring their everyday life. To learn more about the relevance of day centres in this respect, this study aimed to examine the experiences of young people with psychiatric disabilities. A particular focus was on the perceptions of meaningful occupation when visiting day centres, their reasons for not choosing this option when given it and what they desired instead. A qualitative design based on individual interviews was used. Twelve women and eight men between 18 and 35 years, with a need for organized daily occupations, participated as informants. Qualitative content analysis revealed three categories: 'Being in a context', 'Balancing between developing and stagnating', and 'Longing for something more'. The findings indicated that the occupations were inherently age neutral, as were the possibilities for socializing. There was a desire for more activities in the community and more support for engaging in occupations that other young people did. A major issue in the accomplishment of this was the need to earn money, and the lack of opportunities for doing that in the day centre context was a considerable drawback. The findings highlight the importance of identifying young people's views when designing day centres.

  16. Physical Activity Levels Among Adolescent and Young Adult Women and Men with and without Intellectual Disability.

    PubMed

    Sundahl, Lina; Zetterberg, Marie; Wester, Anita; Rehn, Börje; Blomqvist, Sven

    2016-01-01

    As physical activity can prevent overweight and promote general health, the aim was to investigate the amount of physical activity among adolescent and young adult women and men with intellectual disability (ID), compared to age-matched control groups without intellectual disability. A further aim was to examine whether physical activity level was associated with the body mass index (BMI). Fifty-two adolescent and young adult women and men with intellectual disability and 48 without intellectual disability, between the ages 16 and 20 years, BMIs ranging from 16.3 to 50.3 kg/m(2) , were measured for number of steps taken with a pedometer for five consecutive days (Sunday-Thursday). The only group to meet recommendations regarding number of steps (10 000-12 000/day) was women without intellectual disability. No significant associations were found between total number of steps taken and BMI. As the majority of adolescents and young adults with intellectual disability, especially women, did not reach recommended activity levels regardless of their BMIs, this call for broad measures to increase physical activity. © 2015 John Wiley & Sons Ltd.

  17. The TEFRA medicaid eligibility option for children with severe disabilities: a national study.

    PubMed

    Semansky, Rafael M; Koyanagi, Chris

    2004-01-01

    The Tax Equity and Fiscal Responsibility Act (TEFRA) Medicaid Eligibility Option, also known as the Katie Beckett Option, was developed to allow children with disabilities from near-poor and middle-income families to qualify for Medicaid. TEFRA has been available since 1982; however, little is known about the number of children served and their qualifying disability. This first national study found that 20 states enrolled nearly 25,000 children in 2001. Only 10 of these states allowed children to qualify because of a mental health disability. Additional research is needed to understand the role of TEFRA in providing insurance to children with disabilities.

  18. Mental health care needs and preferences for mothers of children with a disability.

    PubMed

    Gilson, K-M; Davis, E; Johnson, S; Gains, J; Reddihough, D; Williams, K

    2018-05-01

    Mothers of children with a disability are at increased risk of poor mental health compared with mothers of typically developing children. The aim of the study was to describe the mental health care needs and preferences for support of mothers of children and young people aged 0-25 years with a disability. A cross-sectional study was used, using an online survey with 294 mothers of children with a disability. Questions were asked about mental health, perceived need for support, barriers to accessing mental health care, and preferences for support. Descriptive and chi-squared analyses were performed. High rates of mental ill health were self-identified in the previous 12 months, with reported clinically significant depression (44%), anxiety (42%), and suicidality (22%). Nearly half (48%) of the mothers reported high to very high psychological distress. Although 75% of mothers perceived a need for professional support, only 58% attempted to access this. Key barriers to accessing support were caregiving duties making it difficult to schedule appointments (45%) and not perceiving the mental health problem as serious enough to require help (36%). Individual counselling was the preferred type of support (66%) followed by professionally guided relaxation (49%) and education about mental health (47%). Support was considered most critical at the time of diagnosis and during medical intervention for their child. Although mental health problems were common and mothers perceived the need for professional help, several key barriers were preventing mothers from accessing help. Our study suggests that improving mothers' knowledge of when and where to seek help (mental health literacy) may encourage their access to support. There also needs to be more accessible treatment to mothers given the high care demands that are placed upon them. © 2018 John Wiley & Sons Ltd.

  19. Making choices about medical interventions: the experience of disabled young people with degenerative conditions.

    PubMed

    Mitchell, Wendy A

    2014-04-01

    Current western policy, including the UK, advocates choice for service users and their families, taking greater control and being more involved in decision making. However, children's role in health decision making, especially from their own perspective, has received less research attention compared to doctors and parents' perspectives. To explore the perspective and experiences of disabled young people with degenerative conditions as they face significant medical interventions and engage in decision-making processes. Findings from a longitudinal qualitative study of 10 young people (13-22 years) with degenerative conditions are reported. Individual semi-structured interviews were conducted with participants over 3 years (2007-2010); the paper reports data from all three interview rounds. Interviews focused on medical intervention choices the young people identified as significant. Although the young people in this study felt involved in the medical intervention choices discussed, findings demonstrate a complex and diverse picture of decision making. Results highlighted different decisional roles adopted by the young people, the importance of information heuristics and working with other people whilst engaging in complex processes weighing up different decisional factors. Young people's experiences demonstrate the importance of moving beyond viewing health choices as technical or rational decisions. How each young person framed their decision was important. Recognizing this diversity and the importance of emerging themes, such as living a normal life, independence, fear of decisions viewed as 'irreversible' and the role of parents and peers in decision making highlights that, there are clear practice implications including, active practitioner listening, sensitivity and continued holistic family working. © 2012 John Wiley & Sons Ltd.

  20. Disability and stigma: how Japanese educators help parents accept their children's differences.

    PubMed

    Kayama, Misa; Haight, Wendy

    2014-01-01

    In this report, part of a larger ethnographic study, the authors examined the support Japanese elementary school educators provide to parents of children with relatively mild cognitive and behavioral disabilities, such as learning disabilities, attention deficit/hyperactivity disorders, and high-functioning autism. Conditions that affect children's learning and behaviors are widespread, but cultures vary in responses to children with such difficulties and their families. In many cultures, disability remains a sensitive issue due to lingering stigma. Japan's recent implementation of special education services for children with mild cognitive and behavioral disabilities provided a unique context in which to examine otherwise taken-for-granted beliefs and practices related to disability. Participant observations in a Japanese elementary school and individual interviews with educators and parents suggest that parents' sensitivity to other people's "eyes," or stigma, can be an obstacle to their acceptance of their children's need for special education, permission for their children to receive services, and collaboration with educators. Educators supported parents through a steadfast focus on emotional support, communication, relationship building, and partnerships. Japanese practices and adults' reflections on stigma provide a broader context for international, school, and other social workers to reflect on their own beliefs and practices with families of children with disabilities.

  1. Using an iPad Application to Promote Early Literacy Development in Young Children with Disabilities

    ERIC Educational Resources Information Center

    Chai, Zhen; Vail, Cynthia O.; Ayres, Kevin M.

    2015-01-01

    This investigation evaluated the effects of using an iPad application to teach young children with developmental delays to receptively identify initial phonemes through 0- to 5-s constant time delay procedures in the context of a multiple-probe design across three sets of behaviors and replicated across three students. The dependent variable was…

  2. Process Deficits in Learning Disabled Children and Implications for Reading.

    ERIC Educational Resources Information Center

    Johnson, Doris J.

    An exploration of specific deficits of learning disabled children, especially in the auditory system, is presented in this paper. Disorders of attention, perception, phonemic and visual discrimination, memory, and symbolization and conceptualization are considered. The paper develops several questions for teachers of learning disabled children to…

  3. Training support staff to embed teaching within natural routines of young children with disabilities in an inclusive preschool.

    PubMed

    Schepis, M M; Reid, D H; Ownbey, J; Parsons, M B

    2001-01-01

    We evaluated a program for training 4 support staff to embed instruction within the existing activities of 5 children with disabilities in an inclusive preschool. The program involved classroom-based instruction, role playing, and feedback regarding how to effectively prompt, correct, and reinforce child behavior. Descriptions of naturally occurring teaching opportunities in which to use the teaching skills were also provided. Following classroom training, brief on-the-job training was provided to each staff member, followed by on-the-job feedback. Results indicated that each staff member increased her use of correct teaching procedures when training was implemented. Improvements in child performance accompanied each application of the staff training program. Results are discussed in terms of using effective staff training as one means of increasing the use of recommended intervention procedures in inclusive settings. Areas for future research could focus on training staff to embed other types of recommended practices within typical preschool routines involving children with disabilities.

  4. Predictors of Co-occurring Neurodevelopmental Disabilities in Children With Autism Spectrum Disorders.

    PubMed

    Zauche, Lauren Head; Darcy Mahoney, Ashley E; Higgins, Melinda K

    Co-occurring neurodevelopmental disabilities (including cognitive and language delays and attention deficit hyperactivity disorder) affect over half of children with ASD and may affect later behavioral, language, and cognitive outcomes beyond the ASD diagnosis. However, no studies have examined predictors of co-occurring neurodevelopmental disabilities in children with ASD. This study investigated whether maternal sociodemographic, perinatal and neonatal factors are associated with co-occurring disabilities. This study involved a retrospective analysis of medical records for children diagnosed with ASD between 2009 and 2010 at an Autism Center in the southeast United States. Logistic regression was used to identify predictors of co-occurring neurodevelopmental disabilities. Of the 385 children in the sample, 61% had a co-occurring neurodevelopmental disability. Children whose mothers had less education (OR: 0.905), had never been married (OR: 1.803), or had bleeding during pregnancy (OR: 2.233) were more likely to have a co-occurring neurodevelopmental disability. Both preterm birth and African American race were associated with bleeding during pregnancy. Several maternal and perinatal risk factors for ASD were found to put children at risk for further diagnoses of co-occurring neurodevelopmental disabilities. While prematurity, a well-established risk factor for ASD, as well as maternal ethnicity was not found to increase the risk of a co-occurring disability, this study suggests that bleeding during pregnancy may moderate these relationships. Understanding maternal, perinatal, and neonatal risk factors may inform healthcare provider screening for ASD and co-occurring neurodevelopmental disabilities by helping providers recognize infants who present with multiple risk factors. Copyright © 2017 Elsevier Inc. All rights reserved.

  5. [The children disability as an indicative index assessing the quality of prenatal diagnostics].

    PubMed

    Tiukov, Iu A; Kosareva, S R

    2009-01-01

    The study was applied to investigate the disability due to inherent malformations in children of Kurgan oblast. The causes of common disability were analyzed and the age-gender structure of common children disability during 2002-2007. The economic losses related to child disability was calculated.

  6. Exploring the Effects of Reading Young Adult Literature that Portrays People with Disabilities

    ERIC Educational Resources Information Center

    Darragh, Janine Julianna

    2010-01-01

    This intervention study examined the impact of reading young adult novels that portray people with disabilities on the attitudes of 229 eighth grade students. Students' beliefs and intentions to interact with peers with disabilities were measured on three occasions utilizing the Shared Activities Questionnaire (Morgan, Walker, Bieberich &…

  7. The Novice Researcher: Interviewing Young Children

    ERIC Educational Resources Information Center

    Danby, Susan; Ewing, Lynette; Thorpe, Karen

    2011-01-01

    Being a novice researcher undertaking research interviews with young children requires understandings of the interview process. By investigating the interaction between a novice researcher undertaking her first interview and a child participant, the authors attend to theoretical principles, such as the competence of young children as informants,…

  8. Input Devices for Young Handicapped Children.

    ERIC Educational Resources Information Center

    Morris, Karen

    The versatility of the computer can be expanded considerably for young handicapped children by using input devices other than the typewriter-style keyboard. Input devices appropriate for young children can be classified into four categories: alternative keyboards, contact switches, speech input devices, and cursor control devices. Described are…

  9. Syntactic Awareness and Arithmetic Word Problem Solving in Children With and Without Learning Disabilities.

    PubMed

    Peake, Christian; Jiménez, Juan E; Rodríguez, Cristina; Bisschop, Elaine; Villarroel, Rebeca

    2015-01-01

    Arithmetic word problem (AWP) solving is a highly demanding task for children with learning disabilities (LD) since verbal and mathematical information have to be integrated. This study examines specifically how syntactic awareness (SA), the ability to manage the grammatical structures of language, affects AWP solving. Three groups of children in elementary education were formed: children with arithmetic learning disabilities (ALD), children with reading learning disabilities (RLD), and children with comorbid arithmetic and reading learning disabilities (ARLD). Mediation analysis confirmed that SA was a mediator variable for both groups of children with reading disabilities when solving AWPs, but not for children in the ALD group. All groups performed below the control group in the problem solving task. When SA was controlled for, semantic structure and position of the unknown set were variables that affected both groups with ALD. Specifically, children with ALD only were more affected by the place of the unknown set. © Hammill Institute on Disabilities 2014.

  10. Social determinants of self-rated health among Japanese mothers of children with disabilities.

    PubMed

    Kimura, Miyako

    2018-06-01

    Caregivers of children with disability are more likely to be affected by social determinants that lead to poor health. Additionally, a previous study revealed that although mothers of a single child with disability wanted to have another child, various obstacles including social, cultural, economic, and biological factors existed and some had to give up on having another child. Since the mental health and well-being of these mothers were poorer than those of mothers with multiple children with and without disabilities, such family composition may also affect maternal health. This study aimed to investigate and compare the social determinants of self-rated health of mothers only having children with disabilities and those having multiple children with and without disabilities. Through parents' associations of children with disabilities throughout Japan, 2311 self-administrated questionnaires were distributed to mothers of such children from January to March 2016. Out of the 1133 responses (return rate 49%), 1012 (43.8%) mothers of children with disabilities under 20 years of age were used for this study. Logistic regression showed that poor financial situation was most strongly related to poor self-rated health among all mothers. Other factors related to poor self-rated health were a lack of existence of child without disability, social isolation, low health consciousness, child's sex (girl), and severity of disability (mild/moderate). However, these relationships differ based on the existence of a child without disability. Investigating how socioeconomic and cultural conditions relate to family composition including child birth, and how they determine health is needed in the future.

  11. Siblings of children with disabilities: research themes.

    PubMed

    Stoneman, Zolinda

    2005-10-01

    Until the early 1980s, most researchers paid little attention to sibling relationships. Studies of mothers dominated the research agenda, to the almost total exclusion of fathers, extended families, and siblings. Although in early classic studies of families of children with disabilities, investigators embraced a family systems approach that included siblings, this emphasis did not take root until recently. There has been an impressive growth in the number of published studies focusing on siblings of children with disabilities. In this paper, my goal is to examine themes in this research and reflect on our state of knowledge.

  12. Oppositional Defiant Disorder in Children with Intellectual Disabilities

    ERIC Educational Resources Information Center

    Christensen, Lisa; Baker, Bruce L.; Blacher, Jan

    2013-01-01

    The study examines the epidemiology of oppositional defiant disorder (ODD) for children with intellectual disabilities (ID; n = 49), children with borderline intellectual functioning (BIF; n = 20), and typically developing children (TD; n = 115). The Diagnostic Interview Schedule for Children was administered to mothers at child ages 5, 6, 7, 8,…

  13. WISC-R Profile Analysis in Differentiating Learning Disabled from Emotionally Disabled Children.

    ERIC Educational Resources Information Center

    Vance, Booney

    The paper examines the usefulness of the Wechsler Intelligence Scale for Children-Revised (WISC-R) subtest score pattern for distinguishing between groups of handicapped children, specifically learning disabled and emotionally disturbed students. The author asserts that no single clear cut pattern characteristic of either population is likely to…

  14. The Individuals with Disabilities Education Act: State Achievements, Challenges, and Implications. FPG Snapshot #65

    ERIC Educational Resources Information Center

    FPG Child Development Institute, 2012

    2012-01-01

    The goal of Individuals with Disabilities Education Act (IDEA) is no longer simply to make services available to young children with disabilities and their families, but also to ensure that those services lead to enhanced outcomes for participating children and families. To that end, IDEA 2004 requires states to submit State Performance Plans…

  15. The influence of ICT on the activity patterns of children with physical disabilities outside school.

    PubMed

    Lidström, H; Ahlsten, G; Hemmingsson, H

    2011-05-01

    To investigate the outside school activity patterns of children with physical disabilities, and specifically their information and communication technology (ICT) usage compared with that of non-disabled children. In addition, the aim was to investigate the children's opinions on computer use and the associations between their use of the Internet and their interaction with peers. Questionnaire on activities outside school, answered by 215 children and youths with physical disabilities, mean age 12 years 10 months, attending mainstream schools. For group comparisons with non-disabled children, data from the survey 'Kids and Media' were used. In the analysis, two sets of activity patterns were identified, depending on whether the child was disabled or not and on the gender of the child. A higher proportion of children with physical disabilities were engaged in ICT activities, while non-disabled children tended to be engaged in a broader range of activities outside school. The activity pattern was more uniform for boys and girls with disabilities than for their non-disabled peers. Use of the Internet was positively associated with peer interaction. Outside school, the activity patterns of children and youths with physical disabilities seem to be characterized by a focus on ICT activities, which enable children to compensate for their impairment because it suits all. In addition, digital skills developed outside school engage children with physical disabilities, giving them increased access to society and for educational purposes. © 2010 Blackwell Publishing Ltd.

  16. [Psychiatric disorders and neurological comorbidity in children with intellectual disability].

    PubMed

    Wriedt, Elke; Wiberg, Anja; Sakar, Vehbi; Noterdaeme, Michele

    2010-05-01

    This article gives an overview of the consultant child and adolescent psychiatric services in the region of Upper Bavaria (Germany). The data of 257 children and adolescents with intellectual disability and psychiatric disorders were evaluated. About 14% of the children with ID in special schools or day care centers, and 40% of the children with ID in residential care showed a definite psychiatric disorder. The most frequently diagnosed disorders were adjustment disorders, hyperkinetic disorders and conduct disorders, as well as emotional problems and pervasive developmental disorders. Children with severe intellectual disability had more additional somatic disorders and were more impaired in their psychosocial functions. The results show the need for psychiatric services for children and adolescents with intellectual disability and psychiatric disorders. The development and implementation of integrative and interdisciplinary models is necessary to allow for adequate medical care for these patients.

  17. Construction and Standardization of Verbal Learning Disabilities Checklist for School Children

    ERIC Educational Resources Information Center

    Sood, Vishal

    2013-01-01

    For identifying children with four major kinds of verbal learning disabilities viz. reading disability, speech and language comprehension disability, writing disability and mathematics disability, the present task was undertaken to construct and standardize verbal learning disabilities checklist. This checklist was developed by keeping in view the…

  18. Food Insecurity in U.S. Households That Include Children with Disabilities

    ERIC Educational Resources Information Center

    Sonik, Rajan; Parish, Susan L.; Ghosh, Subharati; Igdalsky, Leah

    2016-01-01

    The authors examined food insecurity in households including children with disabilities, analyzing data from the 2004 and 2008 panels of the Survey of Income and Program Participation, which included 24,729 households with children, 3,948 of which had children with disabilities. Logistic regression models were used to estimate the likelihood of…

  19. The Development of Research Skills in Young Adults with Intellectual Disability in Participatory Research

    ERIC Educational Resources Information Center

    Morgan, Michelle F.; Moni, Karen B.; Cuskelly, Monica

    2015-01-01

    There is limited information about specific research constructs developed by adults with intellectual disability in undertaking research despite increasing involvement in research "with" rather than "on" these individuals. Participatory research was used with three young adults with intellectual disability to collaboratively…

  20. A Comparison of Support for Two Groups of Young Adults with Mild Intellectual Disability

    ERIC Educational Resources Information Center

    Soenen, Sarah; van Berckelaer-Onnes, Ina; Scholte, Evert

    2016-01-01

    Young adults with mild to borderline intellectual disability (MBID) have varying profiles of cognitive, adaptive and behavioural functioning. There is also variability in their educational and therapeutic needs. This study compares recommended and actual provision of support for two groups of young adults with MBID and looks at young adults'…

  1. Refining the Pediatric Evaluation of Disability Inventory-Patient-Reported Outcome (PEDI-PRO) item candidates: interpretation of a self-reported outcome measure of functional performance by young people with neurodevelopmental disabilities.

    PubMed

    Kramer, Jessica M; Schwartz, Ariel

    2017-10-01

    This study examined the item interpretability and rating scale use of the Pediatric Evaluation of Disability Inventory-Patient-Reported Outcome (PEDI-PRO) by young people with developmental disabilities. The PEDI-PRO assesses the functional performance of discrete functional tasks in the context of everyday life situations. A two-phase cognitive interview design was implemented with a convenience sample of 37 young people (mean age 19y, SD 2y 5mo; 13 males and 24 females; 68% with intellectual disability) with developmental disabilities. In phase I, 182 item candidates were each reviewed by an average of four young people. In phase II, 103 items were carried forward or revised and each reviewed by an average of seven additional young people. Two raters coded responses for intended item interpretation and performance quality; codes were analysed using descriptive statistics. Qualitative analysis explored young people's self-evaluation process. Items were interpreted as intended by most young people (mean 86%). Young people can use PEDI-PRO response categories appropriately to describe their performance: 94% of positive performance descriptions coincided with a positive response category choice; 73% of negative descriptions coincided with a negative response category choice. Young people interpreted items in a literal manner, and their self-evaluation incorporated the use of supports that facilitate functional performance. The PEDI-PRO's measurement framework appears to support the self-evaluation of functional performance of young people with developmental disabilities. © 2017 Mac Keith Press.

  2. Orthodontic treatment for disabled children: a survey of parents' attitudes and overall satisfaction.

    PubMed

    Abeleira, María Teresa; Pazos, Elisabeth; Ramos, Isabel; Outumuro, Mercedes; Limeres, Jacobo; Seoane-Romero, Juan; Diniz, Marcio; Diz, Pedro

    2014-08-05

    Many patients with disability require orthodontic treatment (OT) to achieve adequate oral function and aesthetic appearance. The cooperation of disabled patients and of their parents is central to the success of OT, as treatment can involve ethical dilemmas. The aim of this study was to analyze the motivation, expectations and overall satisfaction with OT among parents of patients with disabilities. The parents of 60 disabled Spanish children with physical, mental and/or sensory impairment undergoing OT were surveyed on attitudes to OT and level of satisfaction with the outcomes. The survey consisted of 23 questions in 4 sections: attitude and adaptation, benefits, adverse effects, and level of satisfaction after completion of OT. A control group formed of the parents of 60 healthy children undergoing OT at the same institution were also surveyed. Parents of disabled children undergoing OT showed a high level of motivation and they are willing to collaborate in oral hygiene procedures. Adaptation to the removable appliances was poorer in disabled children but adaptation to fixed appliances was excellent. OT can provide a marked improvement in quality of life, social relationships and oral functionality in disabled children. Among parents of disabled children undergoing OT, the perceived level of overall satisfaction was very high and expectations were often exceeded.

  3. Can We Use Young People's Knowledge to Develop Teachers and HIV-Related Education?

    ERIC Educational Resources Information Center

    McLaughlin, Colleen; Swartz, Sharlene

    2011-01-01

    Despite recent progress in meeting the goals of the Education for All agenda, certain groups of young people are particularly vulnerable to exclusion and underachievement, including children with HIV/AIDS, children living in poverty, and children with disabilities. HIV/AIDS has reduced many young people's rights to access education, to live a full…

  4. Strengthening Grief Support for Children with Developmental Disabilities

    ERIC Educational Resources Information Center

    Sormanti, Mary; Ballan, Michelle S.

    2011-01-01

    Although a sizable literature investigates and describes children's grief, the majority of information focuses on typically developing children. Far less has been published about the loss and grief of children with developmental disabilities (DD), even though this population experiences significant and multiple losses, increasing their…

  5. Social Competence and Temperament in Children with Chronic Orthopaedic Disability

    ERIC Educational Resources Information Center

    Yagmurlu, Bilge; Yavuz, H. Melis

    2015-01-01

    The aim of the study was to investigate social competence in children with orthopaedic disability and its concurrent relations to child's temperament, health condition, and maternal warmth. Participants were 68 Turkish children (mean = 5.94 years) with chronic orthopaedic disability and their mothers coming from disadvantaged backgrounds. Mother…

  6. Follow-Up Study of Reading Achievement in Learning Disabled Children.

    ERIC Educational Resources Information Center

    Gottesman, Ruth L.

    Forty-three learning disabled children referred initially between ages 7 and 14 years to a medical outpatient clinic for developmentally disabled children were evaluated and followed for a period of 5 to 7 years after which their level of academic achievement was reassessed. Initial evaluation included pediatric, neurological and developmental…

  7. Interpersonal sources of conflict in young people with and without mild to moderate intellectual disabilities at transition from adolescence to adulthood.

    PubMed

    Larkin, P; Jahoda, A; MacMahon, K; Pert, C

    2012-01-01

    Interpersonal conflict is a source of stress and contributes to poor mental health in people with mild to moderate intellectual disabilities. Understanding the contexts in which conflict typically occurs can better equip services to help people with such difficulties. However, existing studies into the contexts of conflict have included participants with wide-ranging ages and may not reflect the experiences of young adults in particular. Twenty-six young adults (16-20 years) with intellectual disabilities and 20 non-disabled young adults completed a semi-structured interview about a recent experience of interpersonal conflict. Participants were asked to describe their beliefs and feelings about the event and their subsequent response. Participants with intellectual disabilities were more likely to encounter conflict with strangers or peers outside their friendship group and to describe incidents of aggression than non-disabled participants. They were also more likely to characterize the other person globally as 'bad' and to perceive the other's actions as being personally directed at them. Young women with intellectual disabilities were less likely to describe responding aggressively to incidents. Findings suggest that young adults with intellectual disabilities are often the target of overt aggression from those outside their inner social sphere, while their non-disabled peers are more likely to experience conflict with people close to them. Young adults with intellectual disabilities may also be more likely to feel victimized by interpersonal conflict. Implications of these findings and limitations of the study are discussed. © 2011 Blackwell Publishing Ltd.

  8. "Learning to Work" in Small Businesses: Learning and Training for Young Adults with Learning Disabilities

    ERIC Educational Resources Information Center

    Ruggeri-Stevens, Geoff; Goodwin, Susan

    2007-01-01

    Purpose: The paper alerts small business employers to new dictates of the Disability Discrimination Act (2005) as it applies to learning disabilities. Then the "Learning to Work" project featured in the paper offers small business employers a set of approaches and methods for the identification of a learning-disabled young adult…

  9. Epilepsy in Children with Intellectual Disability in Bosnia and Herzegovina: Effects of Sex, Level and Etiology of Intellectual Disability

    ERIC Educational Resources Information Center

    Memisevic, Haris; Sinanovic, Osman

    2009-01-01

    The purpose of this study was to examine the occurrence of epilepsy in children with intellectual disability. An additional goal was to determine if there were statistical differences in the occurrence of epilepsy related to the sex, level and etiology of intellectual disability of children. The sample consisted of 167 children with intellectual…

  10. Obesity Prevention for Children with Developmental Disabilities

    PubMed Central

    Curtin, Carol; Hubbard, Kristie; Sikich, Linmarie; Bedford, James; Bandini, Linda

    2014-01-01

    The prevention of obesity in children with DD is a pressing public health issue, with implications for health status, independent living, and quality of life. Substantial evidence suggests that children with developmental disabilities (DD), including those with intellectual disabilities (ID) and autism spectrum disorder (ASD), have a prevalence of obesity at least as high if not higher than their typically developing peers. The paper reviews what is known about the classic and unique risk factors for childhood obesity in these groups of children, including dietary, physical activity, sedentary behavior, and family factors, as well as medication use. We use evidence from the literature to make the case that primary prevention at the individual/family, school and community levels will require tailoring of strategies and adapting existing intervention approaches. PMID:25530916

  11. Needs of disabled children and their families.

    PubMed Central

    Milner, J; Bungay, C; Jellinek, D; Hall, D M

    1996-01-01

    In the new NHS those who provide services for disabled children need to measure and demonstrate their effectiveness, but there are no easily available outcome measures for use by child development centres and teams. The development of an alternative approach, using a series of statements of good practice, is described. Parents of children with cerebral palsy were asked to participate in semistructured interviews, to ascertain the value and relevance of these quality statements. Parents were most concerned about the standard of news breaking and early follow up, the sharing of information, and the supply and repair of equipment. The findings were used to modify the quality checklist and it is proposed that this should form the basis of a "charter for disabled children and their families'. PMID:8957952

  12. Barriers to Dance Training for Young People with Disabilities

    ERIC Educational Resources Information Center

    Aujla, Imogen J.; Redding, Emma

    2013-01-01

    Dance is a viable and enjoyable activity -- and potential career -- for young people with disabilities, yet they face several barriers to participation and training. The aim of this article, by Imogen J. Aujla of the University of Bedfordshire and Emma Redding of Trinity Laban Conservatoire of Music and Dance, is to review the literature on…

  13. Parents' perception of dental caries in intellectually disabled children.

    PubMed

    Weckwerth, Solange Aparecida Modesto; Weckwerth, Giovana Maria; Ferrairo, Bunna Mota; Chicrala, Gabriela Moura; Ambrosio, Alexandre Macedo Natitucci; Toyoshima, Guilherme Hideki Lima; Bastos, José Roberto Magalhães; Pinto, Edu Cassiano; Velasco, Sofia Rafaela Maito; Bastos, Roosevelt Silva

    2016-11-01

    The aim of this study was to evaluate the parents' perception of dental caries in children with intellectual disability. This cross-sectional study was conducted with 6 to 14 years old schoolchildren: Group 1 (50 children diagnosed with intellectual disabilities) and Group 2 (50 children without it). The dental caries was assessed by the World Health Organization (WHO) criteria for primary and permanent teeth. Parents' psychosocial perception was assessed by Early Childhood Oral Health Impact Scale (ECOHIS). Similar prevalence of caries free children was found between groups in both dentitions. In primary dentition the caries index was higher in Group 2, and the opposite occurred in permanent teeth. Group 1 presented higher impact (p < .05) in the dimension drinking, eating and pronunciation, whereas in Group 2 there was higher impact (p = .01) on pain, sleep, irritation, the smile and family finances. Findings showed significant impact of dental caries on parents' perception of the oral health related quality of life of children with intellectual disabilities. © 2016 Special Care Dentistry Association and Wiley Periodicals, Inc.

  14. Mother-child interactions in young children with excessive physical aggression and in typically developing young children.

    PubMed

    Urbain-Gauthier, Nadine; Wendland, Jaqueline

    2017-07-01

    Among the multiple risk factors, the emergence of conduct problems in young children may be linked to harsh parenting and child's temperamental difficulties, leading to a reciprocal early discordant relationship. Little is known about the characteristics of early parent-child interactions in young children with physical aggression. The purpose of the current study was to evaluate the characteristics of mother-child interactions in dyads referred for excessive physical aggression in young children under 5 years of age compared to mother-child interactions in typically developing young children. Mother-child interactions were assessed during a free-play session in both a clinical sample ( N = 70, child mean age  = 3.5 years) and a nonclinical sample ( N = 80, child mean age  = 3.5 years) by using the Rating Scale of Interaction Style (Clark and Seifer, adapted by Molitor and Mayes). Significant differences were found between several interactive features in clinical and nonclinical dyads. In clinical dyads, mothers' behaviors were often characterized by intrusiveness and criticism toward children, and poor facilitative positioning. Children with excessive aggressive behavior often displayed poor communication, initiation of bids, and poor responsiveness toward the mother. They displayed fewer sustained bouts of play than typically developing children did. In clinical dyads, strong positive correlations were found between child responsiveness and maternal interest in engagement ( r = .41, p < .001), while the child displaying sustained bouts of play was negatively correlated with the mother's attempts to intrude on the child's activity ( r = .64, p < .05). These data show that children with excessive aggressive behavior develop disrupted mother-infant interactions from a very young age. Several negative interactive features and correlations between child behavior and maternal behavior were found in clinical samples. The effects of

  15. Prevalence, Trends and Custody Among Children of Parents with Intellectual Disabilities in Norway.

    PubMed

    Tøssebro, Jan; Midjo, Turid; Paulsen, Veronika; Berg, Berit

    2017-05-01

    This study addresses children of parents with intellectual disability in Norway. The aim was to examine: (i) the impact of definitions of intellectual disability on prevalence, (ii) whether numbers were increasing, (iii) the prevalence of motherhood and fatherhood and (iv) rates of lost custody. Analyses of national registers (n = 30 834) and mapping in four municipalities (n = 85). 0.19% of all children had parents with recorded intellectual disability, increasing to 0.87% with wider inclusion criteria. The number of children born to parents with intellectual disability has been declining since the mid-1980s. The proportion of mothers with intellectual disability was twice that of fathers. Parental custody was revoked for 30-50% of children, with single mothers being at particular risk. Parents with intellectual disability accounted for 20-25% of all custody cases. The results show that prevalence depends on the definition of intellectual disability. The decreasing number of children and the need for development of specially adapted family supports are discussed. © 2016 John Wiley & Sons Ltd.

  16. Sexual Understanding, Sources of Information and Social Networks; the Reports of Young People with Intellectual Disabilities and Their Non-Disabled Peers

    ERIC Educational Resources Information Center

    Jahoda, A.; Pownall, J.

    2014-01-01

    Background: Sexual development plays a vital part in young people's emotional adjustment. Method: This study compared the sexual understanding of 30 adolescents with mild intellectual disabilities (ID) and 30 non-disabled adolescents, along with their reports of where they obtained sexual information, and the nature of their social networks…

  17. [Geographic distribution of supportive care for disabled young people].

    PubMed

    Bourgarel, Sophie; Piteau-Delord, Monique

    2013-01-01

    To analyse the logic for the distribution of home care services for disabled children (SESSAD) in a context of under-equipment. Questionnaire-based survey of 75 units (82% of the region's SESSAD units) concerning patient transport. Equipment and transport mapping. Support units for disabled children are often set up in the housing facilities that contributed to their creation. These sites are sometimes situated a long way from densely populated regions, thereby generating unnecessary travel times and expenses. Chronic under-equipment makes these sites viable, as the various units are always full, despite their distance from the children for whom they provide support. Mapping illustrates the extensive recruitment zones overlapping several units managing similar patients. The major revision of accreditation of these units, planned for 2017, could lead to redefinition of geographical zones of accreditations. New unit opening procedures based on ARS calls for tenders may help to improve the geographical distribution of this supportive care.

  18. Expectations from different perspectives on future work outcome of young adults with intellectual and developmental disabilities.

    PubMed

    Holwerda, Anja; Brouwer, Sandra; de Boer, Michiel R; Groothoff, Johan W; van der Klink, Jac J L

    2015-03-01

    Expectations strongly influence future employment outcomes and social networks seem to mediate employment success of young adults with intellectual and developmental disabilities. The aim of this study is to examine the expectations of young adults with intellectual and developmental disabilities from special needs education, their parents and their school teachers regarding future work and the extent to which these expectations predict work outcome. Data on 341 young adults with intellectual or developmental disabilities, coming from special needs education, aged 17-20 years, and with an ability to work according to the Social Security Institute were examined. The school teacher's expectation was the only perspective that significantly predicted entering competitive employment, with a complementary effect of the expectation of parents and a small additional effect of the expectation of the young adult. Expectations of school teachers and parents are valuable in predicting work outcome. Therefore, it is important for professionals working with the young adult in the transition from school to work to incorporate the knowledge of school teachers and parents regarding the abilities of the young adult to enter competitive employment as a valuable source of information.

  19. Instructional Package of Development of Skill in Using Fine Motor of Children for Children with Intellectual Disabilities

    NASA Astrophysics Data System (ADS)

    Sangsawang, T.

    2018-02-01

    This research has the following purposes: 1) to find the efficiency of the self-learning activity set on development of skill in using fine motor of children with intellectual disabilities., 2) to compare the abilities to use the small muscles after the study more than before the study of children with intellectual disabilities, who made study with the self-learning activity on development of small muscles use., 3) to study the satisfaction of the children with intellectual disabilities using the self-learning activity on development of small muscles use. The sample groups on the research are the children with intellectual disabilities of the special education Maha Chakri Sirindhorn Provincial Nakhon Nayok Center in the school year 2016, for 7 children. The tools used on the research consist of the self-learning activity on development of small muscles use for the children with intellectual disabilities of the special, the observation form of abilities of small muscles before and after using the activity set and the observation form of satisfaction of the children with intellectual disabilities of the special towards the self-learning activity set on development of small muscles for the children with intellectual disabilities of the special. The statistics used on the research include the percentage, mean value, standard deviation and the t-test for dependent sample. From the research, it was found that the self-learning activity set on development of small muscles use for children with intellectual disabilities of the special is efficient based on the criteria in average equal to 77.78/76.51, the educational coefficient of the student after the study higher than before the study with average points before the study equal to 55.14 and S.D. value equal to 3.72. The average points after the study equal to 68.86, S.D. value equal to 2.73, t-test value before and after the study equal to 7.94, which are different significantly on statistics at the level 0.05 and the

  20. Assessing Children With Disabilities Using WHO International Classification of Functioning, Disability and Health Child and Youth Version Activities and Participation D Codes

    PubMed Central

    Gradel, Kim Oren

    2015-01-01

    Aim: Evaluation of the International Classification of Functioning, Disability and Health child and youth version (ICF-CY) activities and participation d code functions in clinical practice with children across diagnoses, disabilities, ages, and genders. Methods: A set of 57 codes were selected and worded to describe children’s support needs in everyday life. Parents of children aged 1 to 15 years participated in interviews to discuss and rate their child’s disability. Results: Of 367 invited parents, 332 (90.5%) participated. The mean age of their children with disability was 9.4 years. The mean code scores were 50.67, the corrected code–total correlations were .76, intercode correlations had the mean of 0.61, and Cronbach’s α was .98. As a result of Rasch analysis, graphical data for disability measures paralleled clinical expectations across the total population of 332 children. Conclusion: The World Health Organization International Classification of Functioning, Disability and Health child and youth version d code data can provide a coherent measure of severity of disability in children across various diagnoses, ages, and genders. PMID:28503598